NHS Connecting for Health
NHS Data Model and Dictionary Service
| Reference: | Change Request 1185 |
| Version No: | 1.0 |
| Subject: | NHS Data Model and Dictionary Modelling Changes - Newborn Blood Spot Test |
| Effective Date: | Immediate |
| Reason for Change: | Change to Data Standards |
| Publication Date: | 3 September 2010 |
Background:
The NHS Data Model and Dictionary Service are currently working with the Department of Health and Information Centre for Health and Social Care to develop a number of Data Sets.
During the business analysis stage, it has been identified that these Data Sets cover a number of common areas which are either not currently in the NHS Data Model and Dictionary or amendments are required to make the current information suitable for use in these Data Sets.
This Data Set Change Notice adds the common data items and associated data modelling changes for "Newborn Blood Spot Tests" into the NHS Data Model and Dictionary in preparation for these Data Sets. The changes are detailed in the "Summary of changes" below.
The primary purpose is to introduce a new Attribute and NHS Business Definition into the NHS Data Model to support the new data sets currently under development. This will enable the new data sets to use the generic data items and codes for reporting Newborn Blood Spot Test statuses and outcomes.
These changes do not need to be implemented in end-user systems until the Information Standards Notices for the specific data sets come into effect. Other specific items will be added to the Data Sets during development.
Summary of changes:
| Supporting Information | |
| NEWBORN BLOOD SPOT TEST | New Supporting Information |
| Class Definitions | |
| CLINICAL INTERVENTION | Changed Description |
| CLINICAL INVESTIGATION RESULT ITEM | Changed Attributes |
| Attribute Definitions | |
| NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE | New Attribute |
| Date: | 3 September 2010 |
| Sponsor: | Ken Lunn, Director of Data Standards and Products, NHS Connecting for Health |
Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.
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Change to Supporting Information: New Supporting Information
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
A Newborn Blood Spot Test is a Clinical Investigation.
A Newborn Blood Spot Test is performed to identify any serious condition that a baby may have.
All babies are screened for:
- Phenylketonuria
- Congenital Hypothyroidism
- Sickle Cell Disorders
- Cystic Fibrosis
- Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)
For further information on Newborn Blood Spot Tests, see the UK Newborn Screening Programme Centre website.
This supporting information is also known by these names:
| Context | Alias |
|---|---|
| plural | Newborn Blood Spot Tests |
Change to Class: Changed Description
This item is being updated for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
A subtype of CARE ACTIVITY.
Information about medical or surgical actions performed on or planned to be performed on a PATIENT.
CLINICAL INTERVENTIONS include:- Anaesthetic Service
- Anti-Cancer Drug Cycle
- Anti-Cancer Drug Fraction
- Anti-Cancer Drug Programme
- Anti-Cancer Drug Regimen
- Newborn Blood Spot Test
- Brachytherapy Treatment Course
- Clinical Investigation
- Contraceptive Service
- Dental Haemorrhage Service
- Dental Treatment
- Drug Dosage And Administration
- Drug Treatment
- Emergency Treatment Service
- Endocrine Therapy
- Fraction
- Hip Replacement Surgery
- Imaging Or Radiodiagnostic Event
- Immunisation Dose Given
- Joint Replacement Surgery
- Knee Replacement Surgery
- Labour And Delivery
- Lithotripsy Course Attendance
- Maternity Medical Service
- Minor Surgery Procedure
- Pathology Laboratory Investigation
- Patient Procedure
- Post Mortem
- Radiotherapy Treatment Course
- Screening Test
- Teletherapy Treatment Course
- Test Of Immunity
- Therapy After Discharge
- Thrombo Prophylaxis Regime
- Unsealed Source Treatment Course
- Vaccination Service
- Vasectomy Performed
Change to Class: Changed Attributes
| K | INVESTIGATION RESULT DATE | |
| K | INVESTIGATION RESULT TIME | |
| ARITHMETIC COMPARATOR | ||
| BIOPSY REFERRAL OUTCOME | ||
| CANCER HISTOLOGICAL TYPE | ||
| CANCER MARKER LYMPH NODE STATUS | ||
| CANCER VASCULAR OR LYMPHATIC INVASION | ||
| CERVICAL SMEAR EXAMINED DATE | ||
| CLINICAL INVESTIGATION ITEM UNIT OF MEASURE | ||
| CLOSEST MARGIN | ||
| CYTOLOGY RESULT TYPE | ||
| CYTOLOGY SMEAR REASON | ||
| DEVIATING RESULT INDICATOR | ||
| EXCISION MARGIN | ||
| GRADE OF DIFFERENTIATION | ||
| INVASIVE CANCER SPECIAL TYPE INDICATOR | ||
| INVASIVE LESION SIZE | ||
| INVESTIGATION EXAMINATION RESULT CODE | ||
| INVESTIGATION RESULT TEXT | ||
| LYMPH NODE STATUS | ||
| MARKER LYMPH NODE RESULT | ||
| NECROSIS | ||
| NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE | ||
| NEWBORN HEARING SCREENING OUTCOME | ||
| NODES EXAMINED NUMBER | ||
| NODES POSITIVE NUMBER | ||
| NUMERICAL VALUE | ||
| PERINEURAL INVASION | ||
| RADIOLOGICAL RESULT VERIFIED DATE | ||
| RADIOLOGICAL RESULT VERIFIED TIME | ||
| RESULT ITEM STATUS | ||
| SARCOMA RELATION TO DEEP FASCIA | ||
| SCREENING TEST RESULT | ||
| SMEAR INFECTION TYPE | ||
| SPECIMEN NATURE | ||
| SYNCHRONOUS TUMOUR INDICATOR |
Change to Attribute: New Attribute
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The outcome/status following a Newborn Blood Spot Test.
National Codes:
| 01 | Specimen received in LABORATORY |
| 02 | Screening declined |
| 03 | Further sample required |
| 04 | Condition not suspected |
| 05 | Carrier |
| 06 | Carrier of other haemoglobin |
| 07 | Condition not suspected, other disorders follow up |
| 08 | Condition suspected |
| 09 | Not screened/screening incomplete |
This attribute is also known by these names:
| Context | Alias |
|---|---|
| plural | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODES |
For enquiries about this Change Request, please email datastandards@nhs.net