NHS Digital

NHS Data Model and Dictionary Service

Type:Patch
Reference:1590
Version No:1.0
Subject:http://systems.digital.nhs.uk Patch
Effective Date:Immediate
Reason for Change:Patch
Publication Date:9 December 2016

Background:

The NHS Digital website moved into its public beta phase on 28th September 2016, with a new home page, new navigation and content redeveloped to best practice standards.

Following this phase, content previously available at: http://systems.digital.nhs.uk has been moved to: http://digital.nhs.uk.

This patch updates the links to: http://systems.digital.nhs.uk in the NHS Data Model and Dictionary which have been moved to: http://digital.nhs.uk.

To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: http://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.

Note: if the web page does not open, please copy the link and paste into the web browser.

Summary of changes:

Central Return Forms
KC53 1   Changed Description
KC53 10   Changed Description
KC53 2   Changed Description
KC53 3   Changed Description
KC53 4   Changed Description
KC53 5   Changed Description
KC53 6   Changed Description
KC53 7   Changed Description
KC53 8   Changed Description
KC53 9   Changed Description
KC61 1   Changed Description
KC61 2   Changed Description
KC61 3   Changed Description
KC61 4   Changed Description
KC61 5   Changed Description
KC61 6   Changed Description
KC65 1   Changed Description
KC65 2   Changed Description
KC65 3   Changed Description
KC65 4   Changed Description
KC65 5   Changed Description
KC65 6   Changed Description
KC65 7   Changed Description
 
Supporting Information
CANCER REFERRAL TO TREATMENT PERIOD   Changed Description
CANCER TREATMENT PERIOD   Changed Description
CLINICAL CLASSIFICATIONS SERVICE   Changed Description
INTERNATIONAL CLASSIFICATION OF DISEASES (ICD)   Changed Description
NATIONAL CANCER WAITING TIMES MONITORING DATA SET OVERVIEW   Changed Description
NATIONAL CANCER WAITING TIMES MONITORING DATA SET SCENARIOS   Changed Description
NATIONAL INTERIM CLINICAL IMAGING PROCEDURE CODE SET   Changed Description
NHS DICTIONARY OF MEDICINES AND DEVICES   Changed Description
OPCS CLASSIFICATION OF INTERVENTIONS AND PROCEDURES   Changed Description
PERSONAL DEMOGRAPHICS SERVICE   Changed Description
PERSONAL DEMOGRAPHICS SERVICE BIRTH NOTIFICATION DATA SET OVERVIEW   Changed Description
PERSONAL DEMOGRAPHICS SERVICE BIRTH NOTIFICATION DATA SETS INTRODUCTION   Changed Description
PERSONAL DEMOGRAPHICS SERVICE CREATE INITIAL RECORD REQUEST DATA SET OVERVIEW   Changed Description
READ CODED CLINICAL TERMS   Changed Description
SNOMED CT   Changed Description
SNOMED CT SUBSET   Changed Description
UK TERMINOLOGY CENTRE   Changed Description
 
Attribute Definitions
CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS   Changed Description
DELAY REASON COMMENT   Changed Description
NHS NUMBER   Changed Description
ORGANISATION CODE   Changed Description
ORGANISATION SITE CODE   Changed Description
RADIOTHERAPY INTENT   Changed Description
TREATMENT START DATE FOR CANCER   Changed Description
 
Data Elements
WAITING TIME ADJUSTMENT (FIRST SEEN)   Changed Description
WAITING TIME ADJUSTMENT (TREATMENT)   Changed Description
 

Date:9 December 2016
Sponsor:Alex Elias, Standards Delivery and Cross-Government Programmes Director, NHS Digital

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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KC53 1

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.

  • Contextual Overview
  • The Department of Health, NHS Cervical Screening Programme (NHSCSP) and Strategic Health Authorities require information from Primary Care Trusts on Cervical Screening.

  • The information helps to monitor the process of achieving the Government's target to reduce the incidence of invasive cervical cancer and to ensure that the screening programme is managed effectively. It is used to monitor coverage by the cervical screening programme of the eligible Primary Care Trust responsible population.

  • Information on the return is also used in Public Expenditure Survey (PES) negotiations, resource allocation to the NHS and Departmental accountability.

  • Information based on the KC53 return is published annually by the Department in the Statistical Bulletin `Cervical Screening Programme'.

    Completing Return KC53: Cervical Screening Programme
  • The Cervical Screening Programme is a programme to deliver services within a 'structured framework' to a defined target population, planned by a Primary Care Trust. The services provided to the population under this programme may be carried out by one or more Health Care Providers - NHS Trust, general medical practitioner (GMP), private or voluntary organisation or any combination of these.

  • Information on Cervical Screening should be readily available from the call and recall service's computerised call and recall system.

  • The return requires the ORGANISATION CODE and ORGANISATION NAME of the Primary Care Trust. It requires information about women (PERSONS) on the lists of GPs in the Primary Care Trust and women from the unregistered population who live in the geographical area for which the Primary Care Trust is responsible at 31 March. It is completed annually and submitted within two months of this date.

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KC53 10

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.

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KC53 2

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part A: Cervical Screening Programme - Status of PCT Responsible Population
    Part A1
  • Part A1 of KC53 requires information on the routine recall interval in force in the Primary Care Trust for the Screening Programme. This is the CERVICAL SCREENING RECALL INTERVAL.

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 06 'Screening Programme'.

    Part A2
  • Part A2 of KC53 requires information on the SCREENING STATUS of the Screening Population - the number of women in Primary Care Trusts responsible population at 31 March.

    Screening Population is a HEALTH PROGRAMME POPULATION where the HEALTH PROGRAMME TYPE is National Code 06 'Screening Programme'.

    Age of woman at 31 March (column 1)
  • The age bands are derived from the PERSON BIRTH DATE.

    Under 20 (line 0001)
    20-24 (line 0002)
    25-29 (line 0003)
    30-34 (line 0004)
    35-39 (line 0005)
    40-44 (line 0006)
    45-49 (line 0007)
    50-54 (line 0008)
    55-59 (line 0009)
    60-64 (line 0010)
    65-69 (line 0011)
    70-74 (line 0012)
    75-79 (line 0013)
    80 & over (line 0014)
    Number of women resident in Primary Care Trust responsible population (column 2)
  • This is the total number of women of all ages derived from the registers maintained by the Primary Care Trust to ensure compatibility with the other data recorded on the return.

    The responsible population includes:

    and
    • the unregistered population who live within the geographical area for which the Primary Care Trust is responsible.
    Number of women recorded as having recall ceased (columns 3, 4 and 5)
  • These columns do not include women with the SCREENING STATUS classification of Recall suspended.

  • Column 3 counts women in the Screening Programme with the SCREENING STATUS classification of Recall ceased - clinical reasons. Women no longer eligible for screening due to removal of the cervix are included.

  • Column 4 counts the number of women with the SCREENING STATUS classification of Recall ceased - age reasons, and column 5 counts those with the classification of Recall ceased - other reasons.

    Eligible population (column 6)
  • This is calculated by subtracting the number of women in column 3 (i.e. women with the SCREENING STATUS classification of Recall ceased - clinical reasons) from the number in column 2 (i.e. the Primary Care Trust responsible population).

    Number of women whose most recent test was no more than 5 years ago (column 7)
  • This is calculated from the addition of columns (2) to (5) in part A3.

    Coverage (%) - less than 5 years since last adequate test (column 8)
  • This is calculated from columns (6) and (7) in Part A2.

    Target Age Group (25-64) (line 0015)
  • This counts the number of women in the Screening Programme aged between 25 and 64 on 31 March (sum of lines 0003 to 0010). Coverage of the Screening Programme is based on women aged 25 to 64, and not on the NHS Cervical Screening Programme's target population of women aged 20 to 64 who are eligible to receive screening test invitations.

    Total all ages (line 9999)
  • This is the total for all age groups counted in lines 0001 to 0014 for each category of women.

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KC53 3

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part A3: Cervical Screening Programme - Screening Status of Eligible Women at 31 March YYYY
  • This part of the return collects information specifically about the number of women screened by time since their last test. It includes all women who have had a Screening Test at any time during their life, even if the test was not part of a call and recall system, but was taken opportunistically. It does not include inadequate tests.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'.

Age of women at 31 March (column 1)

  • The age bands are derived from the PERSON BIRTH DATE.

    Under 20 (line 0001)
    20-24 (line 0002)
    25-29 (line 0003)
    30-34 (line 0004)
    35-39 (line 0005)
    40-44 (line 0006)
    45-49 (line 0007)
    50-54 (line 0008)
    55-59 (line 0009)
    60-64 (line 0010)
    65-69 (line 0011)
    70-74 (line 0012)
    75-79 (line 0013)
    80 & over (line 0014)
    Number of women whose most recent adequate test was in last 1.5 years (column 2)
    Number of women whose most recent adequate test was more than 1.5 years but no more than 3 years ago (column 3)
    Number of women whose most recent adequate test was more than 3 years but no more than 3.5 years ago (column 4)
    Number of women whose most recent adequate test was more than 3.5 years but no more than 5 years ago (column 5)
    Number of women whose most recent adequate test was more than 5 years but no more than 10 years ago (column 6)
    Number of women whose most recent adequate test was more than 10 years but no more than 15 years ago (column 7)
    Number of women whose most recent adequate test was more than 15 years ago (column 8)
  • The Screening Test Date should be used to derive the count of women tested in the time periods required by the return.

    The Screening Test Date is the same as attribute ACTIVITY DATE where ACTIVITY DATE TYPE is National Code 'Screening Test Date'
Women called but no adequate smear (column 9)
  • This is a count of the number of women who have been invited at any time in their lives but have no adequate smear.

    Women called but never attended (column 10)
  • This is a count of the number of women who have been invited at any time in their lives but have never attended.

    Number of women with no cytology record (column 11)
  • This is a count of women in the Primary Care Trust responsible population with no cervical screening history.

    The responsible population includes:

    and
    • the unregistered population who live within the geographical area for which the Primary Care Trust is responsible.

    Target Age Group (25-64) (line 0015)

  • This is the total for all age groups counted in lines 0001 to 0014 for each category of women.

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KC53 4

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part B: Cervical Screening Programme - Number of Women Invited
  • Part B of KC53 requires age-banded data on the number of women invited for screening, The number invited relates to Screening Test Invitations with an APPOINTMENT DATE OFFERED between 1 April and 31 March. This date does not necessarily relate to a due date in the year - e.g. the Screening Test could be set to take place outside this period. Where a woman is invited on more than one occasion in the year, the last invitation is recorded on KC53.

    A Screening Test Invitation is an APPOINTMENT associated with an APPOINTMENT OFFER for a Screening Test.

    A Screening Test is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 28 'Screening Test'.
    Age of woman at 31 March (column 1)
  • The age bands are derived from the PERSON BIRTH DATE.

    Under 20 (line 0001)
    20-24 (line 0002)
    25-29 (line 0003)
    30-34 (line 0004)
    35-39 (line 0005)
    40-44 (line 0006)
    45-49 (line 0007)
    50-54 (line 0008)
    55-59 (line 0009)
    60-64 (line 0010)
    65-69 (line 0011)
    70-74 (line 0012)
    75 & over (line 0013)
    Call (column 2)
  • A count of the number of women invited for their first screen i.e. those who have never been screened before. The INVITATION TYPE of the Screening Test Invitation will have the classification First call.

    Routine recall (column 3)
  • A count of the number of women invited for screening in the year as a result of a routine recall for screening. These women will have had a previous negative result and been recalled after the usual interval (3 to 5 years). The INVITATION TYPE of the Screening Test Invitation will have the classification Routine recall.

    Surveillance (column 4)
  • A count of the number of women invited for early screening because of a previous abnormal screening result or following treatment for cervical abnormalities. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than three years for surveillance.

    Abnormality (column 5)
  • A count of the number of women invited for early screening because their last smear showed some abnormality and a repeat was advised. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than three years because of abnormality.

    Inadequate smear (column 6)
  • A count of the number of women invited for screening because their last smear was inadequate. The INVITATION TYPE of the Screening Test Invitation will have either the classification Repeat in less than three years because of inadequate smear, or the classification Technical recall (inadequate test).

    Target age group (line 0014)
  • This counts the number of women in the Screening Programme aged between 20 and 64 on 31 March (sum of lines 0002 to 0010).

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 06 'Screening Programme'.

    Total all ages (line 9999)
  • This is the total for all age groups counted in lines 0001 to 0013 for each INVITATION TYPE.

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KC53 5

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C1: Cervical Screening Programme - Number of Women Tested - by Age
  • Part C1 of KC53 requires data on the women screened in the year, by invitation or opportunistically. The number screened relates to Screening Tests with a Screening Test Date between 1 April and 31 March. Where a woman is screened more than once in the year, for whatever reason, her INVITATION TYPE at her first Screening Test Date in the review period is to be recorded.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'. Screening Test Date is the same as attribute ACTIVITY DATE where ACTIVITY DATE TYPE is National Code 'Screening Test'.

    Call (column 2)
  • A count of the number of women screened in the year as a result of a first call for screening within 12 months of the original invitation. These women will not have been screened before. The INVITATION TYPE of the Screening Test Invitation will have the classification First call.

    A Screening Test Invitation is an APPOINTMENT associated with an APPOINTMENT OFFER for a Screening Test.

    Routine recall (column 3)
  • A count of the number of women screened in the year as a result of a routine recall for screening within 12 months of the recall invitation. These women will have had a previous negative result and been recalled after the usual interval (3 to 5 years). The INVITATION TYPE of the Screening Test Invitation will have the classification Routine recall.

    Surveillance (column 4)
  • A count of the number of women screened in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years for surveillance.

    Abnormality (column 5)
  • A count of the number of women screened in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. These women will usually have had a recent mildly abnormal smear. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years because of abnormality.

    Inadequate smear (column 6)
  • Enter the number of women screened in the year as a result of a technical recall within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have either the classification Repeat in less than 3 years because of inadequate smear or the classification Technical recall (inadequate test).

    While recall suspended (column 7)
  • A count of the number of women screened in the year who were suspended from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'screened while recall suspended'.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'.

    While recall ceased (column 8)
  • A count of the number of women screened opportunistically in the year who were ceased from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'screened while recall ceased'.

    Not Invited by Programme (column 9)
  • A count of the number of women screened opportunistically during the year. This includes all women whose Recall Status was "No action", "GP not informed", "GP informed", "ZZZ GP" and those women whose Recall Status was "Final non-responder" where the initial invitation was generated more than 12 months ago. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'not invited by programme'.

    Target age group (line 0014)
  • This counts the number of women in the Screening Programme aged between 20 and 64 on 31 March (sum of lines 0002 to 0010).

    Total all women (line 9999)
  • This is the total for all age groups counted in lines 0001 to 0013 for each INVITATION TYPE or women who have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE recorded.

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KC53 6

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C2: Cervical Screening Programme - Number of Women Tested - by Result
  • Part C2 of KC53 requires data on the women aged 20 - 64 screened in the year, by invitation or opportunistically. The number screened relates to Screening Tests with a Screening Test Date between 1 April and 31 March. Where a woman is screened more than once in the year, for whatever reason, her INVITATION TYPE at her first Screening Test Date in the review period is to be recorded.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'. Screening Test Date is the same as attribute ACTIVITY DATE where the ACTIVITY DATE TYPE is National Code 'Screening Test Date'.

    Call (column 2)
  • A count of the number of women screened in the year as a result of a first call for screening within 12 months of the original invitation. These women will not have been screened before. The INVITATION TYPE of the Screening Test Invitation will have the classification First call.

    A Screening Test Invitation is an APPOINTMENT associated with an APPOINTMENT OFFER for a Screening Test.

    Routine recall (column 3)
  • A count of the number of women screened in the year as a result of a routine recall for screening within 12 months of the recall invitation. These women will have had a previous negative result and been recalled after the usual interval (3 to 5 years). The INVITATION TYPE of the Screening Test Invitation will have the classification Routine recall.

    Surveillance (column 4)
  • A count of the number of women screened in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years for surveillance.

    Abnormality (column 5)
  • A count of the number of women screened in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. These women will usually have had a recent mildly abnormal smear. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years because of abnormality.

    Inadequate smear (column 6)
  • Enter the number of women screened in the year as a result of a technical recall within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have either the classification Repeat in less than 3 years because of inadequate smear or the classification Technical recall (inadequate test).

    While recall suspended (column 7)
  • A count of the number of women screened in the year who were suspended from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'screened while recall suspended'.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'.

    While recall ceased (column 8)
  • A count of the number of women screened opportunistically in the year who were ceased from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'screened while recall ceased'.

    Not Invited by Programme (column 9)
  • A count of the number of women screened opportunistically during the year. This includes all women whose Recall Status was "No action", "GP not informed", "GP informed", "ZZZ GP" and those women whose Recall Status was "Final non-responder" where the initial invitation was generated more than 12 months ago. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'not invited by programme'.

    Result of test
  • This is classified by the following CYTOLOGY RESULT TYPES:
    Inadequate (cat. 1) (line 0001)
    Negative (cat. 2) (line 0002)
    Borderline changes (cat. 8) (line 0003)
    Mild dyskaryosis (cat. 3) (line 0004)
    Moderate dyskaryosis (cat. 7) (line 0005)
    Severe dyskaryosis (cat. 4) (line 0006)
    Severe dyskaryosis/?invasive carcinoma (cat. 5) (line 0007)
    ?Glandular neoplasia (cat. 6) line 0008)

    Total women tested aged 20-64 (line 9999)
  • This counts the number of women in the Screening Programme aged between 20 and 64 on 31 March (sum of lines 0001 to 0008).

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 'Screening Programme'.

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KC53 7

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C3: Cervical Screening Programme - Number of Tests - by Result
  • Part C3 of KC53 requires data on all tests in the review period, not limited to the target age group 20 - 64, by invitation or opportunistically. The number screened relates to Screening Tests with a Screening Test Date between 1 April and 31 March. Where a woman is screened more than once in the year, for whatever reason, her INVITATION TYPE at her first Screening Test Date in the review period is to be recorded.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'. Screening Test Date is the same as attribute ACTIVITY DATE where the ACTIVITY DATE TYPE is National Code 'Screening Test Date'.

    Call (column 2)
  • A count of the number of tests in the year as a result of a first call for screening within 12 months of the original invitation. These women will not have been screened before. The INVITATION TYPE of the Screening Test Invitation will have the classification First call.

    A Screening Test Invitation is an APPOINTMENT associated with an APPOINTMENT OFFER for a Screening Test.

    Routine recall (column 3)
  • A count of the number of tests in the year as a result of a routine recall for screening within 12 months of the recall invitation. These women will have had a previous negative result and been recalled after the usual interval (3 to 5 years). The INVITATION TYPE of the Screening Test Invitation will have the classification Routine recall.

    Surveillance (column 4)
  • A count of the number of tests in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years for surveillance.

    Abnormality (column 5)
  • A count of the number of tests in the year as a result of a non-routine recall for screening within 12 months of the recall invitation. These women will usually have had a recent mildly abnormal smear. The INVITATION TYPE of the Screening Test Invitation will have the classification Repeat in less than 3 years because of abnormality.

    Inadequate smear (column 6)
  • Enter the number of tests in the year as a result of a technical recall within 12 months of the recall invitation. The INVITATION TYPE of the Screening Test Invitation will have either the classification Repeat in less than 3 years because of inadequate smear or the classification Technical recall (inadequate test).

    While recall suspended (column 7)
  • A count of the number of tests in the year of women who were suspended from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'Screened while recall suspended'

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'.

    While recall ceased (column 8)
  • A count of the number of tests in the year of women who were ceased from the call and recall system at the time of their Screening Test Date. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification of 'screened while recall ceased'.

    Not Invited by Programme (column 9)
  • A count of the number of opportunistic tests during the year. This includes all women whose Recall Status was "No action", "GP not informed", "GP informed", "ZZZ GP" and those women whose Recall Status was "Final non-responder" where the initial invitation was generated more than 12 months ago. These women will have had a Screening Test with the OPPORTUNISTIC SCREENING TYPE classification 'not invited by programme'.

    Result of test
  • This is classified by the following CYTOLOGY RESULT TYPES:
    Inadequate (cat. 1) (line 0001)
    Negative (cat. 2) (line 0002)
    Borderline changes (cat. 8) (line 0003)
    Mild dyskaryosis (cat. 3) (line 0004)
    Moderate dyskaryosis (cat. 7) (line 0005)
    Severe dyskaryosis (cat. 4) (line 0006)
    Severe dyskaryosis/?invasive carcinoma (cat. 5) (line 0007)
    ?Glandular neoplasia (cat. 6) line 0008)

    Total all results (line 9999)
  • This counts the number of tests in the Screening Programme for all age groups on 31 March (sum of lines 0001 to 0008).

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 'Screening Programme'.

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KC53 8

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.

top


KC53 9

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC53: Adult Screening Programmes: Cervical Screening

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part E: Cervical Screening Programme - Notification of Result - Waiting Times
  • This part of the return requires information on the length of time elapsing between a woman taking a smear test and when notification of the result is sent to her by the call and recall service. The national standard to be achieved is that women should be advised in writing of the result of their test four weeks from the date the test was taken. The information is used to monitor the performance of Screening Programmes and laboratories.

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 'Screening Programme'.

  • The return also collects information on those instances where the letter is sent directly by the laboratory or by some other agency instead of by the call and recall service.

  • The return counts all tests and not just those tests with the most severe result. It includes only smears taken as part of a NHS Screening Programme.

    Number of weeks between date smear is taken and date result is sent from the call and recall service
  • This is the number of weeks between the Screening Test Date and the Screening Result Sent Date of the Screening Test, where the RESULT SENT DIRECT indicator is Yes.

    A Screening Test is a CLINICAL INTERVENTION where the CLINICAL INTERVENTION TYPE is National Code 'Screening Test'. Screening Test Date is the same as attribute ACTIVITY DATE where the ACTIVITY DATE TYPE is National Code 'Screening Test Date'. Screening Result Sent Date is the same as attribute ACTIVITY DATE where ACTIVITY DATE TYPE is National Code 'Screening Result Sent Date'.

  • They are sub-divided into the following time periods:

    Less than or equal to four weeks (line 0001)
    > 4 weeks up to 6 weeks (line 0002)
    > 6 weeks up to 8 weeks (line 0003)
    > 8 weeks up to 10 weeks (line 0004)
    > 10 weeks up to 12 weeks (line 0005)
    > Over 12 weeks (line 0006)
    Number of tests (column 2)
  • This counts the number of Screening Tests where results were sent from the call and recall service for each time period.

    Total (line 0007)
  • This is the total of Screening Tests for all time periods counted in lines 0001 to 0006.

    Letter not sent by the call and recall service (line 0008)
  • This counts the number of Screening Tests where the RESULT SENT DIRECT indicator is No, indicating that the result was not sent by the call and recall service.

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KC61 1

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Contextual Overview
  • The Department of Health, NHS Cervical Screening Programme (NHSCSP), Strategic Health Authorities and trusts require information from Pathology Laboratories on cervical cytology and outcome of referrals.

    A Pathology Laboratory is a Laboratory.

  • The information helps to monitor the process of achieving the Government's target to reduce the incidence of invasive cervical cancer and to ensure that the screening programme is managed effectively. The information is used to ensure that the laboratory is achieving acceptable standards in examining smears in line with guidance provided by the NHS Cervical Screening Programme.

  • Information on the return is also used in Public Expenditure Survey (PES) negotiations, resource allocation to the NHS and Departmental accountability.

  • Information based on the KC61 return is published annually by the Department in the Statistical Bulletin `Cervical Screening Programme'.

    Completing Return KC61: Pathology Laboratories - Cervical Cytology and Outcome of Referrals
  • KC61 returns are required by all Pathology Laboratories carrying out cervical cytology within NHS Health Care Providers. This applies to independently managed NHS laboratories, including cytopathology laboratories and also private laboratories if they are commissioned to report on smears for the NHS.

    Each return requires the ORGANISATION CODE and ORGANISATION NAME of the NHS Trust and must be signed by a CONSULTANT in one of the Pathology MAIN SPECIALTY CODES. It also requires the pathology LABORATORY NAME and pathology LABORATORY CODE. Note that pathology LABORATORY CODES are maintained and issued by the Organisation Data Service on behalf of the NHS Cervical Screening Programme.

  • A Pathology Laboratory's KC61 return should include all the original Requests for Pathology Investigation received by that laboratory. A Request for Pathology Investigation forwarded to another laboratory should only be included in the first laboratory's return (except Part A3).

    A Request for Pathology Investigation is a DIAGNOSTIC TEST REQUEST where the DIAGNOSTIC TEST REQUEST is National Code 03 'Request for Pathology Investigation'.

  • Smears re-screened within the same Laboratory as part of internal or external quality control or for any other reason should not be included in the KC61 return. The number of requests sent to or received from another Laboratory for primary screening or other reason should be recorded in Part A3.

  • Where more than one slide is associated with one Request for Pathology Investigation, only the most significant CYTOLOGY RESULT TYPES may be counted for the KC61.

  • The return KC61 is completed annually and submitted within two months of the end of the period.

  • Parts A and B of the return relate to all smears reported by the laboratory where the smear was received and registered between 1 April of one year and 31 March of the following year. If this date is not recorded, the CERVICAL SMEAR EXAMINED DATE can be used as a proxy. Part C1 of the return relates to smears where the date of the smear which led to a referral fell in the first three months of the financial year (April, May and June). Part C2 is a duplicate of Part C1, but will collect data relating to gynaecological referrals from smears registered during the whole of the financial year prior to the current year.

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KC61 2

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part A1: Number of Smears Examined by Source of Smear
  • Part A1 requires data on the number of results recorded analysed by SMEAR SOURCE TYPE and CYTOLOGY RESULT TYPES and are in accordance with the categories shown in boxes 9 and 22 of HMR 101/5 Request/Report for Cervical or Vaginal Cytology.

  • Column 10 counts the total of cytology samples examined. These are subdivided by the test results, derived from the CYTOLOGY RESULT TYPE classifications (columns 2 - 9).

  • The totals are further subdivided by SMEAR SOURCE TYPE (lines 0001-0006).

  • Line 0007 of the return counts the combined total smears in lines 0001 and 0002 i.e. total smears examined from SMEAR SOURCE TYPE classifications of 'GENERAL MEDICAL PRACTITIONER' and 'NHS Community Clinic - this includes Sexual and Reproductive Health Clinics, well women clinics and young persons' clinics, other than those run by GENERAL MEDICAL PRACTITIONERS'.

  • Line 008 of the return counts the Grand Total of lines 0001 to 0006 for columns 2 to 10.

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KC61 3

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part A2: Laboratory Processing from Receipt of Smear to Authorisation of Report
  • Part A2 collects information about the backlog of smears in laboratories. The laboratory which receives the original request should issue the report and include the information within this return.

    Total number of smears registered
  • This is the total number of Pathology Laboratory Investigations received and registered in:

    Quarter 1 - As at 30 June yyyy (Line 0001)
    Quarter 2 - As at 30 September yyyy (Line 0002)
    Quarter 3 - As at 31 December yyyy (Line 0003)
    Quarter 4 - As at 31 March yyyy (Line 0004)

    A Pathology Laboratory Investigation is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 24 'Pathology Laboratory Investigation'.
    Number of results reported (to woman or PCT) within
  • The number of results reported are subdivided into the following time periods:

    0-2 weeks 0-14 days (column 3)
    3-4 weeks 15-28 days (column 4)
    5-6 weeks 29-42 days (column 5)
    7-8 weeks 43-56 days (column 6)
    9-10 weeks 57-70 days (column 7)
    More than 10 weeks over 70 days (column 8)
  • The interval to be reported is from the date of receipt of the smear at the Laboratory, the SAMPLE RECEIPT DATE, and the date of authorisation of the final report, the PATHOLOGY RESULT REPORTED DATE (for the SAMPLE collected).

    Total (line 0005)
  • This is the total for all time periods counted in lines 0001 to 0004.

    Part A3: Requests Screened for/by Another Laboratory
  • Part A3 records information about which laboratories import and export smears.

    Requests Sent To Another Laboratory For Screening (Line 0001)
  • This requires the number of Requests for Pathology Investigation where the DIAGNOSTIC TEST REQUEST for the screening is to be sent to and carried out by another Pathology Laboratory, sub-divided by details of Laboratory sent to and whether for primary screening or 'other'. 'Other' may include rapid review, checking, abnormal or clinical reporting etc.

    A Pathology Laboratory is a Laboratory. A Request for Pathology Investigation is a DIAGNOSTIC TEST REQUEST where the DIAGNOSTIC TEST REQUEST is National Code 03 'Request for Pathology Investigation'.

    Requests Received From Another Laboratory For Screening (Line 0002)
  • This requires the number of Requests for Pathology Investigation where the DIAGNOSTIC TEST REQUEST for the screening of the received smear has been sent from another Pathology Laboratory, sub-divided by details of Laboratory received from and whether for primary screening or 'other'. 'Other' may include rapid review, checking, abnormal or clinical reporting etc.

    Part A3: Where More Than One Smear is Taken
  • Part A3 also requires the number of instances where a single report is derived from more than one sample.

    Number of Instances Where a Single Report is Derived from More Than One Sample (Line 0003)
  • This requires the number of Requests for Pathology Investigation where there is more than one SAMPLE collected. Full details should be available on request.

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KC61 4

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part B: Results of Smears from GP and NHS Community Clinics Only by Age Group of Women
  • Part B requires the results of smears examined, but only those where the SMEAR SOURCE TYPE is classified as either 'GENERAL MEDICAL PRACTITIONER' or 'NHS Community Clinic - this includes Sexual and Reproductive Health Clinics, well women clinics and young persons' clinics, other than those run by GENERAL MEDICAL PRACTITIONERS'.

  • Columns 2 - 9 count the number of samples examined for each CYTOLOGY RESULT TYPES and are in accordance with the categories shown in box 22 of HMR 101/5 Request/Report for Cervical or Vaginal Cytology.

  • These results are further broken down into age bands derived from the PERSON BIRTH DATE of the PERSON - the woman from whom the cervical smear was taken. This is the age of the woman at the date of the smear and not the woman's age on 31 March. The smears are the subject of the Request for Pathology Investigation.

    A Request for Pathology Investigation is a DIAGNOSTIC TEST REQUEST where the DIAGNOSTIC TEST REQUEST is National Code 03 'Request for Pathology Investigation'.

    Total 20 - 64 (line 0014)
  • This counts the number of women in NHS Cervical Screening Programme aged between 20 and 64 on 31 March (sum of lines 0002 to 0010).

    Grand Total (line 0015)
  • This is the total for all age groups examined in lines 0001 to 0013. This total should be the same as line 0007 in Part A1.

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KC61 5

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C1: Outcome by 31 March yyyy for Women Recommended for Gynaecological Referral where the Smear was Registered during April- June yyyy.
  • Part C1 requires the analysis of the number of women subsequently referred for gynaecological investigation following a smear. This is where the CYTOLOGY SCREENING ACTION TYPE of a Screening Test has a classification of Refer for medical assessment or under medical treatment (Suspend) (S). The date of the smear must be between 1 April and 30 June of the current data year. The CYTOLOGY RESULT TYPES for each woman is used to allocate her to one of appropriate subdivisions of Most significant result in columns 3 to 9.

    A Screening Test is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 28 'Screening Test'.

  • Note that CYTOLOGY RESULT TYPE classifications of Severe dyskaryosis (cat. 4), Severe dyskaryosis/invasive carcinom a (Cat. 5) and Glandular neoplasia (Cat. 6) are recorded separately in columns 7,8 and 9 respectively.

  • CYTOLOGY RESULT TYPE with a classification of Negative (cat. 2) are not counted.

  • The number of Most significant results in the CYTOLOGY RESULT TYPE columns (columns 3 - 9) are further analysed by the BIOPSY REFERRAL OUTCOME (lines 0001-0014). For cervical histology, biopsies are taken at colposcopy.

  • Note that Cervical cancer is sub-divided into 'stage 1B or worse' (line 0001) and 'stage 1A' (line 0002) and that there are four options to describe results which are not applicable or not known: 'Seen in Colposcopy - NAD no biopsy taken' (line 0009), 'Outcome known - none of the above' (line 0010), 'Seen in Colposcopy - result not known' (line 0011) and 'No outcome available' (line 0012).

  • Part C1 also includes the formula to calculate the Positive Predictive Value (PPV) of smears reported as moderate dyskaryosis or worse to enable the laboratory to assess whether or not they are reaching an achievable standard.

  • Part C1 includes the formula to calculate Lost to follow-up of smears reported as 'Seen in colposcopy - result not known' (line 0011) and 'No outcome available' (line 0012), as a percentage of the Total.

  • Provision has been made to record details of non-cervical cancers at the bottom of Part C1.

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KC61 6

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC61: Pathology Laboratories - Cervical Cytology and Outcome of Gynaecological Referrals

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C2: Retrospective Collection

    Outcome by 31 March yyyy for Women Recommended for Gynaecological Referral where the Smear was Registered during April yyyy - March yyyy.

  • Part C2 is a duplicate of Part C1 but will collect data relating to gynaecological referrals from smears registered during the whole of the financial year prior to the current year. This is where the CYTOLOGY SCREENING ACTION TYPE of a Screening Test has a classification of Refer for medical assessment or under medical treatment (Suspend) (S). The date of the smear must be between 1 April and 31 March of the previous data year. The CYTOLOGY RESULT TYPES for each woman is used to allocate her to one of appropriate subdivisions of Most significant result in columns 3 to 9.

    A Screening Test is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 28 'Screening Test'.

  • Note that CYTOLOGY RESULT TYPE classifications of 'Severe dyskaryosis (cat. 4)', 'Severe dyskaryosis/invasive carcinom a (Cat. 5)' and 'Glandular neoplasia (Cat. 6)' are recorded separately in columns 7,8 and 9 respectively.

  • CYTOLOGY RESULT TYPES with a classification of 'Negative (cat. 2)' are not counted.

  • The number of Most significant results in the CYTOLOGY RESULT TYPE columns (columns 3 - 9) are further analysed by the BIOPSY REFERRAL OUTCOME (lines 0001-0014). For cervical histology, biopsies are taken at colposcopy.

  • Note that Cervical cancer is sub-divided into 'stage 1B or worse' (line 0001) and 'stage 1A' (line 0002) and that there are four options to describe results which are not applicable or not known: 'Seen in Colposcopy - NAD no biopsy taken' (line 0009), 'Outcome known - none of the above' (line 0010), 'Seen in Colposcopy - result not known' (line 0011) and 'No outcome available' (line 0012).

  • Part C2 also includes the formula to calculate the Positive Predictive Value (PPV) of smears reported as moderate dyskaryosis or worse to enable the laboratory to assess whether or not they are reaching an achievable standard.

  • Part C2 includes the formula to calculate Lost to follow-up of smears reported as 'Seen in colposcopy - result not known' (line 0011) and 'No outcome available' (line 0012), as a percentage of the Total.

  • Provision has been made to record details of non-cervical cancers at the bottom of Part C2.

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KC65 1

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65: Colposcopy Clinics, Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Contextual Overview
  • The Department of Health, NHS Cervical Screening Programme (NHSCSP) and Regional Offices require information from NHS Health Care Providers on colposcopy clinic activity.

  • The KC65 forms part of the wider NHS Cancer Information Strategy which aims to improve the effectiveness and efficiency of care delivery for those with actual or suspected cancer, throughout the PATIENT journey.

  • The information is used to monitor the process of achieving the Government's target to reduce the incidence of invasive cervical cancer and to monitor the performance of colposcopy clinics on local, regional and national levels.

  • Information on the return is also used in Public Expenditure Survey (PES) negotiations, resource allocation to the NHS and Departmental accountability.

  • Information based on the KC65 return is published annually by the Department in the Statistical Bulletin Cervical Screening Programme.

    Completing Return KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes
  • KC65 is a quarterly return with the first quarter starting on 1 April and the last quarter ending on 31 March. Returns must be submitted by the thirtieth working day after the end of the quarter.

  • The KC65 return requires the ORGANISATION CODE and ORGANISATION NAME of the NHS Health Care Provider - NHS Trust or Primary Care Trust - as well as the name of a contact and the contact telephone number on the front page. It must be signed and dated by the person completing the return.

  • The British Society for Colposcopy and Cervical Pathology has agreed a Minimum Data Set (MDS) for colposcopy services, currently being introduced into Colposcopy Clinics. The MDS meets professional requirements for audit and quality improvement as well as departmental needs, and provides the information needed to complete the KC65.

    Colposcopy
  • Colposcopy is a Patient Procedure carried out on a woman who has been referred to a Colposcopy Clinic following a Screening Test carried out either as part of a Screening Programme or opportunistically. Alternatively the woman may be referred as a result of clinical indications.

    A Screening Programme is a HEALTH PROGRAMME where the HEALTH PROGRAMME TYPE is National Code 06 'Screening Programme'.

    Patient Procedure and Screening Test are both a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 25 'Patient Procedure' and 28 'Screening Test' respectively.

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KC65 2

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.

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KC65 3

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part B - Appointments for Colposcopy
  • Part B of the KC65 return is a breakdown of appointments by cancellation/non-attendance, and type of appointment. This information will allow monitoring of non-attendances, patient cancellations, and clinic cancellations.

    It includes all Out-Patient Appointments with an APPOINTMENT DATE within the REPORTING PERIOD.

    An Out-Patient Appointment is an APPOINTMENT.

    Attendance Status
  • The Attendance status is derived from the value of ATTENDED OR DID NOT ATTEND for the Out-Patient Appointment.

    Attended (line 0001)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was either National Code 5 'attended on time or, if late, before the relevant care professional was ready to see the patient', or National Code 6 'arrived late, after the relevant care professional was ready to see the patient, but was seen'.

    Cancelled by patient - in advance (line 0002)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was National Code 2 'appointment cancelled by, or on behalf of, the patient' - before the appointment date.

    Cancelled by patient - on the day (line 0003)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was National Code 2 'appointment cancelled by, or on behalf of, the patient' - on the appointment day.

    Cancelled by Clinic (line 0004)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was National Code 4 'appointment cancelled or postponed by the Health Care Provider'.

    DNA - no advance warning (line 0005)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was National Code 3 'did not attend - no advance warning given'.

    DNA - arrived late (line 0006)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was National Code 7 'patient arrived late and could not be seen'.

    DNA - left without being seen (line 0007)
  • The number of appointments for which ATTENDED OR DID NOT ATTEND was national Code 3 'did not attend - no advance warning given' (arrived, but did not wait to be seen).

    Total (line 0008)
  • This is the total of all women counted in lines 0001 to 0007.

    Appointment Type
  • Columns 2 to 4 require counts of colposcopy Out-Patient Appointments by APPOINTMENT TYPE.

    An Out-Patient Appointment is an APPOINTMENT.

    New (column 2)
  • The number of colposcopy Out-Patient Appointments which are first APPOINTMENTS.

    Return for Treatment (column 3)
  • The number of colposcopy Out-Patient Appointments where the APPOINTMENT TYPE is National Code 01 'Treatment: An appointment specifically for treatment'.

    Follow Up (column 4)
  • The number of colposcopy Out-Patient Appointments which are follow-up APPOINTMENTS where the APPOINTMENT TYPE is National Code 02 'Surveillance: All other appointments'.

    Total (column 5)
  • This is the total for all women in columns 3 to 5.

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KC65 4

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C1 - First attendances by type of procedure and result of referral
  • Parts C1 and C2 of the KC65 return are counts of procedures undertaken at colposcopy clinics, showing the nature of treatment by result of referral. The information is used to monitor treatment patterns to ensure that treatment guidelines, such as on the number of biopsies taken, are met.

  • Parts C1 and C2 are identical, except that Part C1 relates to initial treatment at first attendance, and Part C2 relates to all attendances. For part C1 data is collected on the woman's first Clinic Attendance Consultant or Clinic Attendance Nurse in the REPORTING PERIOD.

    Where a woman has a smear taken during the attendance the COLPOSCOPY PRIME PROCEDURE TYPE should be recorded as classification 'No treatment; no treatment received and no biopsy taken'.

    Clinic Attendance Consultant and Clinic Attendance Nurse are both a CARE CONTACT where CARE CONTACT TYPE is National Code 06 'Clinic Attendance Consultant' and 10 'Clinic Attendance Nurse' respectively.

    For Clinic Attendance Consultant and Clinic Attendance Nurse, a first attendance is the first in a series of the only attendance at the clinic by a patient.

  • The procedures undertaken in the colposcopy clinics are Patient Procedure. Only one Patient Procedure should be counted for each woman's first attendance. If more than one procedure is carried out, the most severe should be recorded for KC65.

    Patient Procedure is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 25 'Patient Procedure'.

    Result of referral smear
  • Lines 0001 to 0008 require data on the number of women referred for colposcopy by CYTOLOGY RESULT TYPES.

    Inadequate (line 0001)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Inadequate sample (cat. 1)'.

    Borderline changes (line 0002)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Borderline changes (cat. 8)'.

    Mild dyskaryosis (line 0003)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Mild dyskaryosis (cat. 3)'.

    Moderate dyskaryosis (line 0004)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Moderate dyskaryosis (cat. 7), including abnormal, unclassifiable and ungraded smears'.

    Severe dyskaryosis (line 0005)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Severe dyskaryosis (cat. 4)'.

    Severe dyskaryosis/invasive carcinoma (line 0006)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Severe dyskaryosis/invasive carcinoma (cat. 5)'.

    Glandular neoplasia (line 0007)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Glandular neoplasia (cat. 6), including adenocarcinoma'.

    Referral Indication - Clinical indication (lines 0008, 0009)
  • These columns count first attendances for women with a REFERRAL REQUEST for colposcopy with a COLPOSCOPY REFERRAL INDICATION classification of 'Clinical indication'.

    Note all procedures carried out on women who have been referred to the colposcopy clinic with a REFERRAL REQUEST with a COLPOSCOPY REFERRAL INDICATION of classification Clinical indication should be recorded in this line regardless of the result of any smear taken after the referral.

    Clinical Indication Urgent (line 0008)
  • A count of the number of women with a COLPOSCOPY REFERRAL INDICATION of classification of 'urgent'. This is restricted to cervical lesions suspicious of cancer, or post-coital bleeding of over four weeks where the patient is aged over 35.

    Clinical Indication Non-Urgent (line 0009)
  • A count of the number of women with a COLPOSCOPY REFERRAL INDICATION classification of 'non-urgent'. This includes all other symptomatic referrals for colposcopy

    Other (line 0010)
  • A count of the number of women with a COLPOSCOPY REFERRAL INDICATION classification of 'Other'.

    Entries recorded in Other (line 0010) should only occur in exceptional circumstances. NHS Cervical Screening Programme (NHSCSP) guidelines state that all smears should be identified as belonging to one of the eight recognised category classifications of CYTOLOGY RESULT TYPE. Other (line 0010) does not correspond to these recognised categories and should be used to record those rare cases in which a recognised category is not appropriate. Where an entry is present in Other (line 0010) then supporting notes should be recorded in the available box on the first page of the KC65 form.

    Total (line 0011)
  • This is the total for all women counted in columns 2 to 8.

    No treatment (column 2)
  • This counts the number of women who received no treatment and for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'No treatment; no treatment received and no biopsy taken'.

    Procedure Type
    Diagnostic biopsy (punch) (column 3)
  • This counts the number of women who received no treatment and for whom a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Diagnostic biopsy (punch); no treatment received and biopsy type recorded as directed biopsy or multiple directed biopsy, or any other biopsy taken for diagnostic purposes only' was recorded.

    Treatment biopsy or treatment/diagnostic biopsy - Excision (column 4)
  • This counts the number of women who for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Loop/laser excision or knife cone; treatment method recorded as loop/laser excision or knife cone and biopsy type recorded as other than no biopsy. This will include LLETZ and NEEP'.

    Ablation + No Biopsy taken or biopsy result not yet known (column 5)
  • This counts the number of women who for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Ablation; treatment method recorded as ablation. This will include cold coagulation, Cryotherapy, cautery and diathermy. (ii) no biopsy taken, or biopsy result not known by clinic'.

    Ablation + Biopsy (column 6)
  • This counts the number of women for whom COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Ablation; treatment method recorded as ablation. This will include cold coagulation, Cryotherapy , cautery and diathermy. (i) biopsy result available' was recorded.

    Other (column 7)
  • This counts the number of women for whom COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Other; treatment method recorded as other and biopsy type recorded as other than no biopsy . This will include polyp avulsion and treatment with silver nitrate' was recorded. It excludes any treatment that is not related to cervical abnormalities.

    Number of first attendances (column 8)
  • This is the total of all first attendances (see paragraph 2), subdivided by the CYTOLOGY RESULT TYPE classifications.

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KC65 5

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part C2 - All attendances by type of procedure and result of referral
  • Parts C1 and C2 of the KC65 return are counts of procedures undertaken at colposcopy clinics, showing the nature of treatment by result of referral. The information is used to monitor treatment patterns to ensure that treatment guidelines, such as on the number of biopsies taken, are met.

  • Parts C1 and C2 are identical, except that Part C1 relates to initial treatment at first attendance, and Part C2 relates to all attendances. For part C2 data is collected on each Clinic Attendance Consultant or Clinic Attendance Nurse in the REPORTING PERIOD.

    Where a woman has a smear taken during the attendance the COLPOSCOPY PRIME PROCEDURE TYPE should be recorded as classification 'No treatment; no treatment received and no biopsy taken'.

    Clinic Attendance Consultant and Clinic Attendance Nurse are both a CARE CONTACT where CARE CONTACT TYPE is National Code 06 'Clinic Attendance Consultant' and 10 'Clinic Attendance Nurse' respectively.

    For Clinic Attendance Consultant and Clinic Attendance Nurse, a first attendance is the first in a series of the only attendance at the clinic by a patient.

  • The procedures undertaken in the colposcopy clinics are Patient Procedures. Only one Patient Procedure should be counted for each Clinic Attendance Consultant or Clinic Attendance Nurse. If more than one procedure is carried out, the most severe should be recorded for KC65.

    Patient Procedure is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 25 'Patient Procedure'.

    Result of referral smear
  • Lines 0001 to 0008 require data on the number of women referred for colposcopy by CYTOLOGY RESULT TYPES.

    Inadequate (line 0001)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Inadequate sample (cat. 1)'.

    Borderline changes (line 0002)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Borderline changes (cat. 8)'.

    Mild dyskaryosis (line 0003)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Mild dyskaryosis (cat. 3)'.

    Moderate dyskaryosis (line 0004)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Moderate dyskaryosis (cat. 7), including abnormal, unclassifiable and ungraded smears'.

    Severe dyskaryosis (line 0005)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Severe dyskaryosis (cat. 4)'.

    Severe dyskaryosis/invasive carcinoma (line 0006)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Severe dyskaryosis/invasive carcinoma (cat. 5)'.

    Glandular neoplasia (line 0007)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Glandular neoplasia (cat. 6), including adenocarcinoma'.

    Referral Indication - Clinical indication (lines 0008, 0009)
  • These columns count attendances for women with a REFERRAL REQUEST for colposcopy with a COLPOSCOPY REFERRAL INDICATION classification of 'Clinical indication'.

    Note all procedures carried out on women who have been referred to the colposcopy clinic with a REFERRAL REQUEST with a COLPOSCOPY REFERRAL INDICATION classification of 'Clinical indication' should be recorded in this line regardless of the result of any smear taken after the referral.

    Clinical Indication Urgent (line 0008)
  • A count of the number of women with a COLPOSCOPY REFERRAL INDICATION classification of 'urgent'. This is restricted to cervical lesions suspicious of cancer, or post-coital bleeding of over four weeks where the patient is aged over 35.

    Clinical Indication Non-Urgent (line 0009)
  • A count of the number of women with a COLPOSCOPY REFERRAL INDICATION classification of 'non-urgent'. This includes all other symptomatic referrals for colposcopy

    Other (line 0010)
  • A count of the number of women with a CYTOLOGY RESULT TYPE classification of 'Other'.

    Entries recorded in Other (line 0010) should only occur in exceptional circumstances. NHS Cervical Screening Programme (NHSCSP) guidelines state that all smears should be identified as belonging to one of the eight recognised category classifications of CYTOLOGY RESULT TYPE. Other (line 0010) does not correspond to these recognised categories and should be used to record those rare cases in which a recognised category is not appropriate. Where an entry is present in Other (line 0010) then supporting notes should be recorded in the available box on the first page of the KC65 form.

    Total (line 0011)
  • This is the total for all women counted in columns 2 to 8.

    No treatment (column 2)
  • This counts the number of women who received no treatment and for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'No treatment; no treatment received and no biopsy taken'.

    Procedure Type
    Diagnostic biopsy (punch) (column 3)
  • This counts the number of women who received no treatment and for whom a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Diagnostic biopsy (punch); no treatment received and biopsy type recorded as directed biopsy or multiple directed biopsy, or any other biopsy taken for diagnostic purposes only' was recorded.

    Treatment biopsy or treatment/diagnostic biopsy - Excision (column 4)
  • This counts the number of women who for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Loop/laser excision or knife cone; treatment method recorded as loop/laser excision or knife cone and biopsy type recorded as other than no biopsy. This will include LLETZ and NEEP'.

    Ablation + No Biopsy taken or biopsy result not yet known (column 5)
  • This counts the number of women who for whom was recorded a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Ablation; treatment method recorded as ablation. This will include cold coagulation, Cryotherapy, cautery and diathermy. (ii) no biopsy taken, or biopsy result not known by clinic'.

    Ablation + Biopsy (column 6)
  • This counts the number of women for whom COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Ablation; treatment method recorded as ablation. This will include cold coagulation, Cryotherapy , cautery and diathermy. (i) biopsy result available' was recorded.

    Other (column 7)
  • This counts the number of women for whom COLPOSCOPY PRIME PROCEDURE TYPE of 'Other; treatment method recorded as other and biopsy type recorded as other than no biopsy. This will include polyp avulsion and treatment with silver nitrate' was recorded. It excludes any treatment that is not related to cervical abnormalities.

    Number of first attendances (column 8)
  • This is the total of all first attendances (see paragraph 2), subdivided by the CYTOLOGY RESULT TYPE classifications.

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KC65 6

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65 - Colposcopy Clinics: Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part D - Cervical Biopsies, by time from biopsy to informing patient of result in writing
  • Part D of the KC65 return shows for each cervical biopsy the time elapsing before the woman is informed in writing of the result. The NHS Cervical Screening Programme (NHSCSP) has issued guidance on waiting times, and the information is used to monitor whether clinics are meeting these standards. The return is based upon those biopsies taken during the first month of the quarter.

  • The time measured in this part of the return is the interval between the PROCEDURE DATE of the colposcopy Patient Procedure at which the biopsy was taken and the Patient Informed Biopsy Result Date.

    Patient Procedure is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 'Patient Procedure'. PROCEDURE DATE and Patient Informed Biopsy Result Date are both the same as attribute ACTIVITY DATE where ACTIVITY DATE TYPE is National Code 'Procedure Date' and 'Patient Informed Biopsy Result Date' respectively.

    Total biopsies in first month of quarter
  • Column 2 counts the number of biopsies taken during the first month of the quarter. These are subdivided by the waiting times in lines 0001-0005.

    Less than or equal to 2 weeks (line 0001)
  • This counts the number of women whose waiting time was less than or equal to 14 days.

    >2 weeks up to 4 weeks (line 0002)
  • This counts the number of women whose waiting time was more than 14 days but less than or equal to 28 days.

    >4 weeks up to 8 weeks (line 0003)
  • This counts the number of women whose waiting time was more than 28 days but less than or equal to 56 days.

    >8 weeks up to 12 weeks (line 0004)
  • This counts the number of women whose waiting time was more than 56 days but less than or equal to 84 days.

    >12 weeks (line 0005)
  • This counts the number of women whose waiting time was more than 84 days.

    Total (line 0006)
  • This is the total for all women counted in column 2.

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KC65 7

Change to Central Return Form: Changed Description

Central Return Form Guidance
 

KC65: Colposcopy Clinics, Referrals, Treatments and Outcomes

This return is in development by the NHS Cancer Screening Programme, therefore the information should not be used.
For the latest version of the form and further details, please see the NHS Digital website.For further information on National Cervical Screening, please see the NHS Digital website.
  • Part E - Cervical Biopsies, by type and outcome
  • Part E of KC65 shows the histological result BIOPSY REFERRAL OUTCOME for each cervical biopsy, which indicates whether cancer or a pre-cancerous condition has been identified from the sample taken. The information will help to monitor whether NHS Cervical Screening Programme (NHSCSP) guidance on the quality of biopsies and accuracy of diagnosis is being met.

  • This part of the KC65 return is based upon those biopsies taken during the first month of the quarter. Please note that the total number of biopsies recorded in Part E should equal the total number recorded in Part D as both parts relate to the same biopsies.

  • Column 5 counts the total number of BIOPSY REFERRAL OUTCOMES. These are analysed by biopsy type.

    Biopsy Type - Diagnostic (punch) (column 2)
  • This counts the number of women for whom a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Diagnostic biopsy (punch); no treatment received and biopsy type recorded as directed biopsy or multiple directed biopsy or any other biopsy taken for diagnostic purposes only' was recorded.

    Biopsy Type - Excision (column 3)
  • This counts the number of women for whom a COLPOSCOPY PRIME PROCEDURE TYPE classification of 'Loop/laser excision or knife cone; treatment method recorded as loop/laser excision or knife cone and biopsy type recorded as other than no biopsy. This will include LLETZ and NEEP.' was recorded.

    Biopsy Type - Other (column 3)
  • This counts the number of women for whom a COLPOSCOPY PRIME PROCEDURE TYPE classification of other than 'Diagnostic biopsy (punch)', or 'Loop/laser excision or knife' was recorded.

    Outcome (Histology result)
  • These results are further sub-divided by BIOPSY REFERRAL OUTCOME.

    Cancer (including micro-invasive) (line 0001)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'Cancer (including micro-invasive)'.

    Adenocarcinoma in situ / CGIN (line 0002)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'Adenocarcinoma in situ'.

    CIN3 (line 0003)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'CIN3'.

    CIN2 (line 0004)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'CIN2'.

    CIN1 (line 0005)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'CIN1'.

    HPV/cervicitus only (line 0006)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'HPV/cervicitus only'.

    No CIN/No HPV (line 0007)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'No CIN/No HPV (normal)'.

    Inadequate / unsatisfactory biopsy (line 0008)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'Inadequate/unsatisfactory biopsy'.

    Result not known by clinic (line 0009)
  • This counts women with a BIOPSY REFERRAL OUTCOME classification of 'Result not known by clinic'.

    Total (line 0010)
  • This is the total for all women counted in columns 2 to 5.

    Data Quality Checks
  • The following data quality checks should be made:

    Part DPart E
      
    Column 2 Line 006= Column 4 Line 010

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CANCER REFERRAL TO TREATMENT PERIOD

Change to Supporting Information: Changed Description

A Cancer Referral To Treatment Period is a REFERRAL TO TREATMENT PERIOD.

The service standard for referral to treatment for cancer is that the PATIENT must receive First Definitive Treatment within 62 days (or 31 days for Acute Leukaemia, testicular, and children's cancers), rather than within 18 Weeks.

A PATIENT will have a Cancer Referral To Treatment Period in the following circumstances:

A Cancer Referral To Treatment Period is the period of time between CANCER REFERRAL TO TREATMENT PERIOD START DATE and either:

A Cancer Referral To Treatment Period does NOT complete automatically if the PATIENT does not attend the first APPOINTMENT during the Cancer Referral To Treatment PeriodWAITING TIME ADJUSTMENT (FIRST SEEN) is used to align waiting times monitoring with the service standard for 18 Weeks.

 

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CANCER TREATMENT PERIOD

Change to Supporting Information: Changed Description

A Cancer Treatment Period is an ACTIVITY GROUP.

A Cancer Treatment Period is initiated when a decision to treat for a cancer condition is made, and ends when the PATIENT receives the Planned Cancer Treatment specified in the Cancer Care Plan covering the PATIENTS condition.  This is the same as TREATMENT START DATE FOR CANCER. (See Cancer Waiting Times - Useful Documentation and Links). (See Cancer Waiting Times).

If the PATIENT receives several different types of treatment within the same Cancer Care Plan (e.g. surgery, followed by Chemotherapy, followed by Radiotherapy), then each stage has its own Cancer Treatment Period of 31 days between DECISION TO TREAT DATE (or EARLIEST CLINICALLY APPROPRIATE DATE), and TREATMENT START DATE FOR CANCER.

CANCER CARE SETTING (TREATMENT) is used to derive whether a waiting time adjustment between CANCER TREATMENT PERIOD START DATE and TREATMENT START DATE FOR CANCER may be recorded in WAITING TIME ADJUSTMENT (TREATMENT).

 

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CLINICAL CLASSIFICATIONS SERVICE

Change to Supporting Information: Changed Description

The Clinical Classifications Service (CCS) is provided by NHS Digital.

The Clinical Classifications Service is the definitive source of clinical coding guidance and sets the national standards used by the NHS in coding clinical data.

For further information on the Clinical Classifications Service, see the NHS Digital website at: About the Clinical Classifications Service.For further information on clinical information, see the NHS Digital website at: Terminology and Classifications.

 

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INTERNATIONAL CLASSIFICATION OF DISEASES (ICD)

Change to Supporting Information: Changed Description

International Classification of Diseases (ICD) is the international standard diagnostic classification for all general epidemiological, health management purposes and clinical use. These include the analysis of the general health situation of population groups and monitoring of the incidence and prevalence of diseases and other health problems in relation to other variables such as the characteristics and circumstances of the individuals affected, reimbursement, resource allocation, quality and guidelines.

International Classification of Diseases (ICD) provides systematic analysis, interpretation and comparison of morbidity data collected in different areas and at different times. It is a means of classifying medical terms and is defined as a system of categories to which morbid entries are assigned according to established criteria. It is used to support operational and strategic planning, resource utilisation, performance management, reimbursement, research and epidemiology.

It is published by the World Health Organisation and further information is available from the World Health Organisation website.

The classifications are revised periodically and national information standards and collections requiring International Classification of Diseases (ICD) coding should use the latest mandated version of the International Classification of Diseases (ICD) as given in the table below.

Year Revision and Edition
Up to 31 March 19959th Revision
01-Apr-1995 to 31-Mar-200410th Revision
01-Apr-2004 to 31-Mar-201210th Revision - Reprinted (with corrections and updates) 2000
01-Apr-2012 to 31-Mar-201610th Revision 4th Edition
01-Apr-2016 until further notification10th Revision 5th Edition

For details on current versions and further information, see the Clinical Classifications Service part of the NHS Digital website at: Clinical Classifications Service.For details on current versions and further information, see the NHS Digital website at: ICD-10 Classification.

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NATIONAL CANCER WAITING TIMES MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction:

The Cancer Reform Strategy (2007) introduced new and changed commitments in terms of service standards for cancer PATIENTS that must be met. A Review of Cancer Waiting Times Standards was carried out by the Department of Health and published alongside Improving Outcomes: A Strategy for Cancer (2011).

Following this review it was confirmed in Improving Outcomes: A Strategy for Cancer that:

“overall, cancer waiting time standards should be retained. Shorter waiting times can help to ease patient anxiety and, at best, can lead to earlier diagnosis, quicker treatment, a lower risk of complications, an enhanced patient experience and improved cancer outcomes. The current cancer waiting times standards will therefore be retained.”

This updated version of the National Cancer Waiting Times Monitoring Data Set supports the continued management and monitoring of the following waiting times:

Patient Pathway Scenarios:

The Patient Pathway Scenarios for the National Cancer Waiting Times Monitoring Data Set are to be used to manage the collection of data for all PATIENTS suspected of having, or diagnosed with cancer.

Cancer for the purpose of this data collection exercise is defined using the International Classification of Diseases (ICD) codes. Data for Patient Pathway Scenarios two to seven must be collected and transmitted as specified for all PATIENTS with a PRIMARY DIAGNOSIS within the range C00 to C97 or D05, or a secondary or metastatic disease linked to the original PRIMARY DIAGNOSIS (ICD) within this range (excluding categories relating to non-melanoma skin cancer).

A full list of the International Classification of Diseases (ICD) diagnosis codes the Cancer Waiting Times Database will accept is available at: Cancer Waiting Times - Useful Documentation and Links.A full list of the International Classification of Diseases (ICD) diagnosis codes the Cancer Waiting Times Database will accept is available at: Cancer Waiting Times.

When reporting patient records to the Cancer Waiting Times Database:

  • The Trust first seeing a PATIENT in a particular month or quarter is responsible for ensuring that the mandated and required data fields, up to DATE FIRST SEEN, are complete on the database by the national deadline.
  • The Trust first treating or giving subsequent treatment to a PATIENT in a particular month or quarter is responsible for ensuring that the mandated data fields on that PATIENT are complete on the database by the national deadline.
  • Data to be complete and validated 25 working days after the REPORTING PERIOD END DATE, either month or quarter
  • Specified dates are available at: Cancer Waiting Times.

Transmisssion:

Security and Confidentiality:

Security and confidentiality information to accompany the collection of this information is available at: Cancer Waiting Times - Useful Documentation and Links.Security and confidentiality information to accompany the collection of this information is available at: Cancer Waiting Times.

Further guidance:

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NATIONAL CANCER WAITING TIMES MONITORING DATA SET SCENARIOS

Change to Supporting Information: Changed Description

National Cancer Waiting Times Monitoring Data Set

Concept of Operation and Patient Pathway Scenarios:

The National Cancer Waiting Times Monitoring Data Set is a generic data set designed to support the monitoring of waiting times for a variety of different pathways of cancer care. For the purpose of this data collection cancer is defined using the International Classification of Diseases (ICD) codes. Data must be collected and transmitted as specified for all PATIENTS with a PRIMARY DIAGNOSIS within the range C00 to C97 or D05, or a secondary or metastatic disease linked to the original PRIMARY DIAGNOSIS (ICD) within this range (excluding categories relating to non-melanoma skin cancer). A full list of the International Classification of Diseases (ICD) diagnosis codes the Cancer Waiting Times Database will accept is available at: Cancer Waiting Times - Useful Documentation and Links. A full list of the International Classification of Diseases (ICD) diagnosis codes the Cancer Waiting Times Database will accept is available at: Cancer Waiting Times.

Collection and submission of the National Cancer Waiting Times Monitoring Data Set is to be managed according to the maximum waiting time and information requirements of the pathway of care for each individual PATIENT. These requirements for providers of cancer SERVICES to return data to the Cancer Waiting Times Database are defined using seven different scenarios.

The seven columns in the table below show which data items are required for a range of health care scenarios:

Data Set Notation:

  • M = Mandatory: the Standard Contract Schedule 5 requires NHS provider Organisations to submit this information on a monthly basis. NHS England require the data to be submitted 25 working days after the end of each month or quarter.
  • M* = Mandatory if applicable: the Standard Contract Schedule 5 requires NHS provider Organisations to submit this information on a monthly basis, where collection of the item was applicable to them. NHS England require the data to be submitted 25 working days after the end of each month or quarter.
  • O = Optional
  • O* = Optional if applicable: These optional fields should only be populated if they relate to the PATIENT PATHWAY identified in scenarios 1 to 7 and the conditions required for their use are met.
  • N/A = Not Applicable
Data Item
Scenario 1Scenario 2Scenario 3Scenario 4Scenario 5Scenario 6Scenario 7
NHS NUMBER
M
M
M
M
M
M
M
NHS NUMBER STATUS INDICATOR CODE
M
M
M
M
M
M
M
PATIENT PATHWAY IDENTIFIER
M
M*
M*
M*
M*
M*
M*
ORGANISATION CODE (PATIENT PATHWAY IDENTIFIER ISSUER)
M
M*
M*
M*
M*
M*
M*
SOURCE OF REFERRAL FOR OUT-PATIENTS
M
N/A
N/A
M
N/A
O
N/A
PRIORITY TYPE CODE
M
N/A
N/A
M
N/A
O
N/A
DECISION TO REFER DATE (CANCER OR BREAST SYMPTOMS)
M*
N/A
N/A
N/A
N/A
O
N/A
CANCER REFERRAL TO TREATMENT PERIOD START DATE
M
M
N/A
O
N/A
O
N/A
TWO WEEK WAIT CANCER OR SYMPTOMATIC BREAST REFERRAL TYPE
M
N/A
N/A
N/A
N/A
O
N/A
CONSULTANT UPGRADE DATE
N/A
N/A
N/A
M
N/A
O
N/A
SITE CODE (OF PROVIDER CONSULTANT UPGRADE)
N/A
N/A
N/A
M
N/A
O
N/A
DATE FIRST SEEN
M
N/A
N/A
M
N/A
O
N/A
SITE CODE (OF PROVIDER FIRST SEEN)
M
N/A
N/A
M
N/A
N/A
N/A
WAITING TIME ADJUSTMENT (FIRST SEEN)
M*
N/A
N/A
O*
N/A
N/A
N/A
WAITING TIME ADJUSTMENT REASON (FIRST SEEN)
M*
N/A
N/A
O*
N/A
N/A
N/A
DELAY REASON REFERRAL TO FIRST SEEN (CANCER OR BREAST SYMPTOMS)
M*
N/A
N/A
N/A
N/A
N/A
N/A
DELAY REASON COMMENT (FIRST SEEN)
M*
N/A
N/A
M*
N/A
N/A
N/A
MULTIDISCIPLINARY TEAM DISCUSSION INDICATOR
M*
M*
M*
M*
M*
M*
M*
MULTIDISCIPLINARY TEAM DISCUSSION DATE (CANCER)
M*
M*
M*
M*
M*
M*
M*
CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS
M
M
M
M
M
M
M
PRIMARY DIAGNOSIS (ICD)
N/A
M
M
M
M
M
M
METASTATIC SITE
N/A
M*
M*
M*
M*
M*
M*
TUMOUR LATERALITY
N/A
M
M
M
M
M
M
CANCER TREATMENT PERIOD START DATE
N/A
M
M
M
M
M
M
SITE CODE (OF PROVIDER CANCER DECISION TO TREAT)
M*
M
M
M
M
M
M
REFERRAL REQUEST RECEIVED DATE (INTER-PROVIDER TRANSFER)
N/A
M*
M*
M*
M*
M*
M*
TREATMENT START DATE (CANCER)
N/A
M
M
M
M
M
M
SITE CODE (OF PROVIDER CANCER TREATMENT START DATE)
N/A
M
M
M
M
M
M
CANCER TREATMENT EVENT TYPE
N/A
M
M
M
M
M
M
CANCER TREATMENT MODALITY
N/A
M
M
M
M
M
M
CLINICAL TRIAL INDICATOR
N/A
M
M
M
M
M
M
CANCER CARE SETTING (TREATMENT)
N/A
M
M
M
M
M
M
RADIOTHERAPY INTENT
N/A
M*
M*
M*
M*
M*
M*
RADIOTHERAPY PRIORITY
N/A
M*
M*
M*
M*
M*
M*
DELAY REASON (DECISION TO TREATMENT)
N/A
M*
M*
M*
M*
M*
M*
DELAY REASON COMMENT (DECISION TO TREATMENT)
N/A
M*
M*
M*
M*
M*
M*
WAITING TIME ADJUSTMENT (TREATMENT)
N/A
M*
M*
M*
M*
M*
M*
WAITING TIME ADJUSTMENT REASON (TREATMENT)
N/A
M*
M*
M*
M*
M*
M*
DELAY REASON REFERRAL TO TREATMENT (CANCER)
N/A
M*
N/A
M*
N/A
O*
N/A
DELAY REASON COMMENT (REFERRAL TO TREATMENT)
N/A
M*
N/A
M*
N/A
O*
N/A
DELAY REASON (CONSULTANT UPGRADE)
N/A
M*
N/A
M*
N/A
O*
N/A
DELAY REASON COMMENT (CONSULTANT UPGRADE)
N/A
M*
N/A
M*
N/A
O*
N/A

Full details of the validation rules and processes are available at Cancer Waiting Times - Useful Documentation and Links.Full details of the validation rules and processes are available at: Cancer Waiting Times.

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NATIONAL INTERIM CLINICAL IMAGING PROCEDURE CODE SET

Change to Supporting Information: Changed Description

The National Interim Clinical Imaging Procedure Code Set (NICIP Code Set) is a comprehensive national standard set of codes and descriptions for imaging procedures and is maintained by the UK Terminology Centre.  It is intended for use in all Imaging Department information systems.

The NICIP Code Set was approved by the Information Standards Board for Health and Social Care (ISB) and is mandated for all in-scope use cases. Further detail about the initial information standard and subsequent amendments can be found on the Information Standards Board for Health and Social Care website at: ISB 0148 "Interim Clinical Imaging Procedure Codes".

The NICIP Code Set is released biannually. The release dates are the 1st of April and the 1st of October each year.

All versions of the NICIP Code Set, both with and without SNOMED CT maps, are only available from the Technology Reference Data Update Distribution Service (TRUD).All versions of the NICIP Code Set, both with and without SNOMED CT maps, are only available from the Technology Reference Data Update Distribution Service (TRUD).

Clinicians and system managers working with the Picture Archiving and Communication Systems (PACS) and Radiology Information Systems (RIS) can make requests for additions to the NICIP Code Set. All requests must first be checked for conformance to the Editorial Principles. All requests must first be checked for conformance to the Editorial Principles.

Requests for changes to the NICIP Code Set should be made via the Information Standards Service Desk and clearly marked “Diagnostic Imaging."

For further information on the National Interim Clinical Imaging Procedure Code Set, see the UK Terminology website.For further information on the National Interim Clinical Imaging Procedure Code Set, see the NHS Digital website at: National standard representation of clinical imaging procedures.

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NHS DICTIONARY OF MEDICINES AND DEVICES

Change to Supporting Information: Changed Description

The NHS dictionary of medicines and devices (dm+d) is a dictionary containing unique identifiers and associated textual descriptions for medicines and medical devices. It has been developed for use throughout the NHS as a means of uniquely identifying the specific medicines and devices used in the diagnosis and treatment of PATIENTS.

Data within dm+d is also used to populate the UK Drug Extension; the drug extension then includes relationships into the full UK Edition of SNOMED CT® to items such as products and substances. Further details on these two products can be found on the UK Terminology website. Further details on these two products can be found on the NHS Digital website at: Terminology and Classifications.

The codes used to identify dm+d concepts are of the same form as those used in SNOMED CT® and thus conform to the same specification.

For further information on the NHS dictionary of medicines and devices, see the NHS Business Services Authority website at: Dictionary of Medicines and Devices.

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OPCS CLASSIFICATION OF INTERVENTIONS AND PROCEDURES

Change to Supporting Information: Changed Description

Introduction

The OPCS Classification of Interventions and Procedures (OPCS-4) is a Fundamental Information Standard.  The classification is used by Health Care Providers and national and regional Organisations.

OPCS-4 is used to support operational and strategic planning, resource utilisation, performance management, reimbursement, research and epidemiology.  It is used by NHS suppliers to build/update software to support NHS business functions and interoperability.

OPCS-4 is updated every three years to ensure that modern clinical practice is represented appropriately.  This will be continued until further notice as shown below:

Year Version of OPCS-4* 
Up to 31 March 2006OPCS-4.2
01-Apr-2006 to 31-Mar-2007OPCS-4.3
01-Apr-2007 to 31-Mar-2008
01-Apr-2008 to 31-Mar-2009
OPCS-4.4
01-Apr-2009 to 31-Mar-2011OPCS-4.5
01-Apr-2011 to 31-Mar-2014OPCS-4.6
01-Apr-2014 until further notificationOPCS-4.7

*Tables of Coding Equivalences are issued for mapping back to previous versions and are available from the Technology Reference Data Update Distribution Service (TRUD).

The NHS Data Model and Dictionary contains a number of data collections that require OPCS-4 codes, such as Central Returns and Commissioning Data Sets.  All data collections should use the latest version of the OPCS-4 classification as specified in the table above.

Background

The classification of Surgical Operations and Procedures was originally issued by the Office of Population Censuses and Surveys (OPCS). The 4th revision was first implemented in hospital information systems in 1987. This was subject to a significant number of amendments and a consolidated version was reproduced in 1990.

The OPCS Classification of Surgical Operations and Procedures (OPCS-4.2) was substantially enhanced to ensure that modern clinical practice was represented appropriately within the classification and a new version was implemented in 2006 titled OPCS Classification of Interventions and Procedures (OPCS-4.3) with a commitment to undertake annual review and potential update. The classification comprises a list of alphanumeric codes with mainly anatomically based chapters, most of which relate to the whole or part of a body system. Each chapter is designated alphabetically e.g. Chapter A covers the nervous system and Chapter K is assigned to the heart. The alphabetic character for each chapter forms the prefix of the 3 and 4 digit codes within it. The strict link between chapters and body systems with specific procedures being listed for individual organs was breached in OPCS-4.3 because of limited capacity.

There are instances where an existing category needs extension because all the available codes have been allocated. In such cases an extended category is created within the Tabular List chapter. These categories are referred to as principal category or extended category and identified by an accompanying note to ease navigation.

Chapters that have reached capacity are extended using alphanumeric categories which are assigned using the free alpha O. This has occurred within three chapters (Chapters L, W and Z). Codes created in this way still form part of an existing chapter even though they have a different alpha prefix to the rest of that chapter. Such new codes will, therefore, logically sit at the end of the body system chapter and are readily identified within the alphabetical index. There is an additional chapter (Chapter X) for operations on multiple systems using miscellaneous procedures.

The classification is published in two volumes. The Tabular List and Alphabetical Index are available from The Stationery Office at www.tsoshop.co.uk

OPCS-4 Requests Portal

The OPCS-4 Requests Portal allows stakeholders to submit change requests to the Clinical Classifications Service all year round. A cut-off date for receipt of change requests for consideration in the next release is published on the Requests Portal.  Requests received after the cut-off date will be considered in a subsequent release.

For further information and access to the OPCS-4 Requests Portal, see Submissions for review of OPCS-4.For further information and access to the OPCS-4 Requests Portal, see the NHS Digital website at: OPCS-4 Classification.

High Cost Drugs and Chemotherapy Regimens

The listings of High Cost Drugs and Chemotherapy Regimens which are mapped to OPCS-4 codes are provided as look-up tables downloadable from the Technology Reference Data Update Distribution Service (TRUD) via the TRUD website.The listings of High Cost Drugs and Chemotherapy Regimens which are mapped to OPCS-4 codes are provided as look-up tables downloadable from the Technology Reference Data Update Distribution Service (TRUD).

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PERSONAL DEMOGRAPHICS SERVICE

Change to Supporting Information: Changed Description

The Personal Demographics Service (PDS) is the national electronic database of NHS patient demographic details such as name, ADDRESS, date of birth and NHS NUMBER.

For further information on the Personal Demographics Service, see the Personal Demographics Service website.For further information on the Personal Demographics Service, see the NHS Digital website at: Demographics.

 

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PERSONAL DEMOGRAPHICS SERVICE BIRTH NOTIFICATION DATA SET OVERVIEW

Change to Supporting Information: Changed Description

The Personal Demographics Service Birth Notification Data Set has been developed by the Personal Demographics Service to replace the NHS Number for Babies service. 

The Personal Demographics Service Birth Notification Data Set outlines the minimum systems compliance required by maternity and child health systems for the purposes of notifying Organisations of a new NHS NUMBER assigned to a baby.

For further guidance and support see the Personal Demographics Service Birth Notifications Service website and refer to the Guidance Documentation for PDS Birth Notifications.For further guidance and support see the NHS Digital website at: Demographics.

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PERSONAL DEMOGRAPHICS SERVICE BIRTH NOTIFICATION DATA SETS INTRODUCTION

Change to Supporting Information: Changed Description

The Personal Demographics Service Birth Notification Data Sets have been developed by the Personal Demographics Service to replace the NHS Number for Babies service. 

The Personal Demographics Service Birth Notification Data Sets outline the minimum systems compliance required by maternity and child health systems for the purposes of sending or receiving the following data sets:

For further guidance and support see the Personal Demographics Service Birth Notifications Service website and refer to the Guidance Documentation for PDS Birth Notifications.For further guidance and support see the NHS Digital website at: Demographics.

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PERSONAL DEMOGRAPHICS SERVICE CREATE INITIAL RECORD REQUEST DATA SET OVERVIEW

Change to Supporting Information: Changed Description

The Personal Demographics Service Create Initial Record Request Data Set has been developed by the Personal Demographics Service to replace the NHS Number for Babies service. 

The Personal Demographics Service Create Initial Record Request Data Set outlines the minimum systems compliance required by maternity systems for the purposes of requesting an NHS NUMBER for babies.

For further guidance and support see the Personal Demographics Service Birth Notifications Service website and refer to the Guidance Documentation for PDS Birth Notifications.For further guidance and support see the NHS Digital website at: Demographics.

Notes:

Birth Notifications web application

Where the Personal Demographics Service Create Initial Record Request Data Set is reported using the Birth Notifications web application the NHS NUMBER (MOTHER) is required where available.

Interim NHS Number Service

Where the information for the Primary Care Mother data group is not available, the Interim NHS Number Service should be used instead of the Personal Demographics Service Create Initial Record Request Data Set.

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READ CODED CLINICAL TERMS

Change to Supporting Information: Changed Description

It should be noted that the Read Coded Clinical Terms are scheduled for a staged withdrawal commencing April 2016.

The Read Coded Clinical Terms are a comprehensive computerised coded thesaurus for use by clinicians. They are available in two main formats, known as Version 2 and Clinical Terms Version 3 (CTV3). They are designed for use in the electronic health care record. Clinical Terms Version 3 (CTV3) of the Read Codes is a "Superset" of all the codes from the earlier versions.

Read Coded Clinical Terms are not acceptable directly for coding Hospital Episode Statistics which are extracted from the Admitted Patient Care Commissioning Data Sets. Version 2 and Clinical Terms Version 3 (CTV3) of the Read Codes contain mapping tables which can be used to generate ICD-10 and OPCS-4 codes.

For further information on Read Coded Clinical Terms, see the NHS Digital website at: Read Codes.For further information on Read Coded Clinical Terms, see the NHS Digital website at: Read Codes.

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SNOMED CT

Change to Supporting Information: Changed Description

SNOMED CT® is the clinical terminology approved as an Information Standard.

Requirements for utilising SNOMED CT® are stated within the National Information Board document "A Framework for Action".

SNOMED CT® provides the clinical language that facilitates electronic communication between healthcare professionals in clear and unambiguous terms, and can be used to code, retrieve and analyse clinical data.

SNOMED CT® is comprehensive and provides clinical terms for all healthcare professions. Applications often use subsets of SNOMED CT® that have been developed to support specific requirements. The NHS Data Model and Dictionary references SNOMED CT Subsets to support data reporting for specific data items.

SNOMED CT® is currently provided in two release formats:

SNOMED CT® is managed and maintained internationally by the International Health Terminology Standards Development Organisation (IHTSDO) and in the UK by the UK Terminology Centre (UKTC).

National and International arrangements have been established to ensure there is adequate and relevant governance of SNOMED CT®, to ensure it meets the needs of healthcare in the respective jurisdictions with:

Note: previous versions of SNOMED (including SNOMED RT and SNOMED 3) cease to be licenced by the International Health Terminology Standards Development Organisation (IHTSDO) after April 2017 other than for historical content.

Mapping tables and guidance to enable historical data previously captured using a previous version of SNOMED, can be found on the Technology Reference Data Update Distribution Service (TRUD) at: SNOMED Antecedent Versions Data Migration.

For further information on SNOMED CT®, see the NHS Digital website at: SNOMED CT.For further information on SNOMED CT®, see the NHS Digital website at: SNOMED CT.

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SNOMED CT SUBSET

Change to Supporting Information: Changed Description

A SNOMED CT Subset is a:

SNOMED CT Subsets:

  • Usually represent groups of concepts that share specified characteristics (for example, a specific clinical domain)
  • Support user interface development through the organisation of clinical display, creation of menus and pick-lists, or support of knowledge structures
  • May be created as value sets for messaging or data entry.

Different types of SNOMED CT Subsets are used to represent:

  • Descriptions or concepts for particular realms or specialties
  • Suitability of particular concepts for use in a particular context in a record.

Change requests for SNOMED CT Subsets and SNOMED CT Refsets released by the United Kingdom Terminology Centre (UKTC) should be requested through the Request Submission Portal on the NHS Digital website at: Welcome to the Request Submission Portal.

For further information on SNOMED CT Subsets, see the NHS Digital website at: SNOMED CT Subsets.For further information on SNOMED CT Subsets, see the NHS Digital website at: SNOMED CT Subsets.

 

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UK TERMINOLOGY CENTRE

Change to Supporting Information: Changed Description

The UK Terminology Centre is a member of the International Health Terminology Standards Development Organisation.

The core activities of the UK Terminology Centre are:

  • Product Development
  • Technical Infrastructure and
  • Product Support

The UK Terminology Centre's responsibilities include:

  • Being the primary point of liaison with the International Health Terminology Standards Development Organisation (IHTSDO) with regard to all aspects of the management of the Terminology Products within the UK
  • Establishing and maintaining processes for distributing and sub-licensing the Terminology Products within the UK
  • Being the principal contact point within the UK for contact in relation to the Terminology Products, including sub-licensing, technical support; and obtaining updates and enhancements to the Terminology Products ensuring that any products and their releases that the Member deploys within its jurisdiction that are based on the IHTSDO’s Terminology Products, are prepared, checked and managed in conformance with the IHTSDO’s standards
  • Maintaining a record of problems and other issues reported within the UK in connection with the Terminology Products
  • Documenting, submitting and supporting requests (to the IHTSDO) for proposed updates and enhancements to the Terminology Products
  • Monitoring the distribution and applications of the IHTSDO’s Terminology Products, Trade Marks and other Intellectual Property within the UK and reporting to the IHTSDO
  • Maintaining the UK National extension to SNOMED CT® and co-ordinating its release with the International Terminology Products. The combined International Release and local extension is known as the National Release
  • Creation, maintenance, co-ordination and release of UK sub-sets (reference sets) and other UK derivative works
  • Managing UK National release content requests
  • Administration for the UK Health Terminology Governance Board (organise meetings; distribute papers; minutes, etc.)

For further information on the UK Terminology Centre, see the NHS Digital website at: UK Terminology Centre (UKTC).For further information on the UK Terminology Centre, see the NHS Digital website at: Terminology and Classifications.

 

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CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS

Change to Attribute: Changed Description

CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS is recorded to enable tracking of the status of REFERRAL REQUESTS for PATIENTS referred with a suspected cancer, or referred with breast symptoms with cancer not originally suspected.

Where a diagnosis of cancer is subsequently made, data on First Definitive Treatment and subsequent treatments should be recorded for PATIENTS receiving treatment within the NHS in England.

English NHS in this context refers to Health Care Provider Organisation within England who are treating PATIENTS with cancer (where the PATIENTS have NHS NUMBERS which exist on the Patient Demographic Service database, and which can be used within the National Cancer Waiting Times Monitoring Data Set for transmission purposes) who may have been referred from outside England.

Further details can be found at: Cancer Waiting Times - Useful Documentation and Links.Further details can be found at: Cancer Waiting Times.

Where PATIENTS with a diagnosis of cancer do NOT receive treatment within the NHS in England, or where the diagnosed condition is not within the NHS England list of cancer conditions (see Cancer Waiting Times - Useful Documentation and Links), further data need not be collected.Where PATIENTS with a diagnosis of cancer do NOT receive treatment within the NHS in England, or where the diagnosed condition is not within the NHS England list of cancer conditions (see Cancer Waiting Times), further data need not be collected.

The National Codes have been listed in logical sequence rather than numeric order.

National Codes:

14Suspected primary cancer
09Under investigation following symptomatic referral, cancer not suspected (breast referrals only) *
03No new cancer diagnosis identified by the Health Care Provider 
10Diagnosis of new cancer confirmed - first treatment not yet planned
11Diagnosis of new cancer confirmed - English NHS first treatment planned
07Diagnosis of cancer confirmed - no English NHS treatment planned
08First treatment commenced (English NHS only)
12Diagnosis of new cancer confirmed - subsequent treatment not yet planned
13Diagnosis of new cancer confirmed - subsequent English NHS treatment planned
21Subsequent treatment commenced (English NHS only)
15Suspected recurrent cancer
16Diagnosis of recurrent cancer confirmed - first treatment not yet planned
17Diagnosis of recurrent cancer confirmed - English NHS first treatment planned
18Diagnosis of recurrent cancer confirmed - no English NHS treatment planned
19Diagnosis of recurrent cancer confirmed - subsequent treatment not yet planned
20Diagnosis of recurrent cancer confirmed - subsequent English NHS treatment planned

* National Code 09 'Under investigation following symptomatic referral, cancer not suspected (breast referrals only)' should only be used when the TWO WEEK WAIT CANCER OR SYMPTOMATIC BREAST REFERRAL TYPE is National Code 16 'Exhibited (non-cancer) breast symptoms - cancer not initially suspected.'

 

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DELAY REASON COMMENT

Change to Attribute: Changed Description

A comment on the reason why a Cancer Care Spell Delay was experienced with regard to a Cancer Care Spell.

This must be recorded for each breach of existing service standards (introduced by the NHS Cancer Plan (2000)) and the extended service standards (as specified within the Cancer Reform Strategy (2007)) after any patient pauses have been taken into account.

The standards for which a DELAY REASON COMMENT must be given are:

-maximum two week wait** for an urgent GENERAL PRACTITIONER referral for suspected cancer to Date First Seen for all suspected cancers
-maximum one month** wait from urgent GENERAL PRACTITIONER referral for suspected cancer to First Definitive Treatment for testicular cancer, acute leukaemia and children's cancer (under 16 years of age at date of First Definitive Treatment)*
-maximum two month wait** from urgent GENERAL PRACTITIONER referral for suspected cancer to First Definitive Treatment for all cancers
-maximum one month wait** from CANCER TREATMENT PERIOD START DATE (DECISION TO TREAT DATE) to First Definitive Treatment for all cancers
-maximum 31-day wait from CANCER TREATMENT PERIOD START DATE (DECISION TO TREAT DATE or EARLIEST CLINICALLY APPROPRIATE DATE) to the start of second or subsequent treatment for all cancers, where the CANCER TREATMENT MODALITY is Radiotherapy (Teletherapy, Brachytherapy or Proton Therapy)
-maximum 31-day wait from CANCER TREATMENT PERIOD START DATE (DECISION TO TREAT DATE or EARLIEST CLINICALLY APPROPRIATE DATE) to start of second or subsequent treatment for all cancers where the CANCER TREATMENT MODALITY is surgery
-maximum 31-day wait from CANCER TREATMENT PERIOD START DATE (DECISION TO TREAT DATE or EARLIEST CLINICALLY APPROPRIATE DATE) to start of second or subsequent treatment for all cancers where the CANCER TREATMENT MODALITY is an Anti-Cancer Drug Regimen (Cytotoxic Chemotherapy, Hormone Therapy, Immunotherapy or other drug regimen)
-maximum 31-day wait from CANCER TREATMENT PERIOD START DATE (DECISION TO TREAT DATE or EARLIEST CLINICALLY APPROPRIATE DATE) to start of second or subsequent treatment for all cancers where the CANCER TREATMENT MODALITY is other than Anti-Cancer Drug Regimen, surgery or Radiotherapy.
-maximum 62-day wait from referral for suspected cancer from an NHS Cancer Screening Programme to First Definitive Treatment for breast, bowel and cervical cancers*
-maximum 62-day wait from a decision to upgrade the priority of a PATIENT by a CONSULTANT (or authorised member of a CONSULTANT team) to First Definitive Treatment 
-maximum two week wait** for an urgent referral for breast symptoms (where cancer is not initially suspected) to DATE FIRST SEEN.

* Breast, bowel, cervical and testicular cancer and acute leukaemia are defined by ICD-10 coding - see Cancer Waiting Times - Useful Documentation and Links.* Breast, bowel, cervical and testicular cancer and acute leukaemia are defined by ICD-10 coding - see Cancer Waiting Times.

** For the performance management and the requirement to record a DELAY REASON COMMENT for the above service standards, the following standardised time periods have been identified:

Time PeriodNumber of Calendar Days
Two Weeks14
One Month31
Two Months62
 

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NHS NUMBER

Change to Attribute: Changed Description

The NHS NUMBER, the primary identifier of a PERSON, is a unique identifier for a PATIENT within the NHS in England and Wales.

This will not vary by any Organisation of which a PERSON is a PATIENT.

It is mandatory to record the NHS NUMBER. There are exceptions, such as Accident and Emergency care, sexual health and major incidents, as defined in existing national policies.

The NHS NUMBER is 10 numeric digits in length. The tenth digit is a check digit used to confirm its validity. The check digit is validated using the Modulus 11 algorithm and the use of this algorithm is mandatory. There are 5 steps in the validation of the check digit:

Step 1 Multiply each of the first nine digits by a weighting factor as follows:

Digit Position
(starting from the left) Factor:

110
29
38
47
56
65
74
83
92

Step 2 Add the results of each multiplication together.

Step 3 Divide the total by 11 and establish the remainder.

Step 4 Subtract the remainder from 11 to give the check digit.

If the result is 11 then a check digit of 0 is used. If the result is 10 then the NHS NUMBER is invalid and not used.

Step 5 Check the remainder matches the check digit. If it does not, the NHS NUMBER is invalid.

Further guidance is available from the NHS Digital website at: NHS Number.Further guidance is available from the NHS Digital website at: NHS Number.

Note:
This was e-GIF approved for use in NHS England.
e-GIF and the Government Data Standards Catalogue have been archived and are available for reference only.

 

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ORGANISATION CODE

Change to Attribute: Changed Description

ORGANISATION CODE will be replaced with ORGANISATION IDENTIFIER, which is the most recent approved national information standard to describe the required definition.

An ORGANISATION CODE is a code which identifies an Organisation uniquely.

ORGANISATION CODES are managed by:

Notes:

ORGANISATION CODING FRAMES

  • All NHS Organisations are coded using coding frames, as shown in the tables below:

Character
Position

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame

 

Organisation
Type Identifier

 

Organisation Identifier

 
   

B Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

C Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

D Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

E Frame

 

Organisation Identifier

 
       

F Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

G Frame

 

Organisation Type Identifier

 

Practice Identifier

 
  

H Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

I Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

K Frame

 

Organisation Identifier

 
     

 L Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Organisation Type Identifier

 
   

M Frame

 

Organisation and Organisation Type Identifier

 
     

N Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

A Frame:

Example
Non NHS Organisation (Independent Provider) e.g. 8HA03

  • 8 = Organisation Type Identifier
  • Remainder = Organisation Identifier

B Frame:

Example
Local Service Provider e.g. LSP01

  • LSP = Organisation Type Identifier
  • 01 = Organisation Identifier

Also:

Application Service Providere.g. YGM01
Education Establishmente.g. YDF01
NHS Support Agencye.g. YDD01

C Frame:

Example
School e.g. EE134290

  • EE = Organisation Type Identifier
  • Remainder = Organisation Identifier

D Frame:

Example
Care Trust e.g. TAK

  • T = Organisation Type Identifier
  • AK = Organisation Identifier

Also:

Commissioning Support Unit (CSU) / 
Data Services for Commissioners Regional Office (DSCRO)
e.g. 0AA
High Level Health Geography, e.g. NHS England Region (Geography)e.g. Q72
Local Health Board (Wales)e.g. 7A1
NHS Truste.g. RH8
Justice Organisatione.g. VAA

E Frame:

Example
Government Office Region (GOR) e.g. K

  • K = Organisation Identifier
Note: Government Office Region (GOR) is identified by a one character code; no other one character code exists.

F Frame:

Example
Pharmacy Headquarters e.g. P001

  • P = Organisation Type Identifier
  • 001 = Organisation Identifier

Also:

Care Home Headquarterse.g.CA0A
Optical Headquarters e.g.T1A1

G Frame:

Example
GP Practices in England and Wales e.g. Y00001

  • Y = Organisation Type Identifier
  • 00001 = Practice Identifier

Also:

Dental Practicee.g.V20052

H Frame:

Example
Cancer Network e.g. N01

  • N0 (where the 2nd character is numeric and not alpha) = Organisation Type Identifier
  • 1 = Organisation Identifier

Also:

Booking Management System (BMS) Call Centre Establishmente.g. YF1
Government Departmente.g. XDA
Independent Sector Healthcare Provider (ISHP) (where the 2nd character is alpha)e.g. NV7
National Application Service Providere.g. YEA
Other Statutory Authority (OSA)e.g. X16

I Frame:

Example
Special Health Authority (SpHA) e.g. T1150

  • T1 = Organisation Type Identifier
  • 150 = Organisation Identifier

K Frame:

Example
NHS Wales Informatics Service e.g. W00

  • W00 = Organisation Identifier

L Frame:

Example
Northern Ireland Local Commissioning Group e.g. ZC010

  • Characters 1-3 (ZC0) AND character 5 (0) = Organisation Type Identifier
  • Character 4 = Organisation Identifier

Note: this is a 5 character method of displaying Northern Ireland Local Commissioning Group identifiers.
Characters 3 and 5 are ‘fillers’. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory) zeros can be omitted, e.g. ZC1.
The 3 character method of displaying the Northern Ireland Local Commissioning Group identifiers fit under the H Frame.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009.


M Frame:

Example
Clinical Commissioning Group (CCG) e.g. 12A

  • 12A = Organisation and Organisation Type Identifier

Also:

Local Authoritye.g.000


N Frame:

Example
GP Abeyance and Dispersal GP Practice e.g. G7817414

  • G78 = Organisation Type Identifier
  • 17414 = Organisation Identifier

The structure and format of ORGANISATION CODES maintained by the Organisation Data Service, NHS Prescription Services, NHS Dental Services and other agencies are detailed in the tables below.

ORGANISATION CODES TABLES

Table 1: CODING FORMATS FOR ORGANISATIONS IN ENGLAND AND WALES

Organisation Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 
  

Application Service Provider

 

B

 

Y

 

G

 

M

 

A-9

 

A-9

 
   

ODS 

 

e.g. YGM01

 

Booking Management System (BMS) Call Centre Establishment

 

H

 

Y

 

F

 

A-9

 
     

ODS

 

e.g. YF1

 

Cancer Network

 

H

 

N

 

0-9

 

A-9

 
     

ODS

 

e.g. N01

 

Cancer Registry

A

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. Y0401

All Cancer Registries in England are now part of the National Cancer Registration and Analysis Service

Care Home Headquarters

 

F

 

A, C or D

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. CA0A

 

Care Trust (CT)

 

D

 

T

 

A-Y

 

A-Y

 
     

ODS

 

e.g. TAK

 

Clinical Commissioning Group (CCG

M

 

0-9

 

0-9

 

A-Y

 
     

ODS

 

e.g. 12A

 

Clinical Network

B

 

Y

 

D

 

G

 

A-9

 

A-9

 
   

ODS

 

e.g. YDG01

 

Commissioning Support Unit (CSU) / Data Services for Commissioners Regional Office (DSCRO)

D

 

0

 

A-Y

 

A-Y

 
     

ODS

 

e.g. 0AA

 

Dental Practice - England and Wales

 

G

 

V

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Dental Services

 

e.g. V20052

 

Education Establishment

 

B

 

Y

 

D

 

F

 

A-9

 

A-9

 
   

ODS

 

e.g. YDF01

 

Executive Agency

 

N/A

See Note 1 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X09

 

Executive Agency Programme

 

N/A

See Note 1 

X

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

ODS

 

First three characters denote Executive Agency

e.g. X09001

 

Government Department

 

H

 

X

 

A-Y

 

A-Y

 
     

ODS

 

e.g. XDA

 

Government Office Region (GOR)

 

E

A-Y

 
       

ONS

 

e.g. K

Government Office Regions (GORs) closed 31 March 2011 - from 1 April 2011 referred to as Regions

 

GP Abeyance and Dispersal GP Practice

 

N

G

 

7

 

8

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

ODS

 

e.g. G7817414

 

GP Practices in England and Wales

G

 

A-H,
J-N,
P,
W &
Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Prescription Services

 

Char 1 = W for Welsh GP Practice.

All other values represent GP Practices in England.

Note: from 2003, ALL newly allocated Practice Codes in England begin with a Y

e.g. Y00001

 
Justice Organisation

D

 

V or W

 

A-Y

 

A-9

 

 

 

 

 

 

 

 

 

 

 

ODS

 

e.g. VAA

 

High Level Health Geography, e.g. NHS England Region (Geography)

 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. Q72

 

Independent Sector Healthcare Provider (ISHP)

H

 

A, B, D, G, I, K, L, M , N, O, S, U, V, W

 

A-Y

 

A-Y, 0-9

 
     

ODS

 

e.g. NV7

 

Local Authority (LA)

 

M

 

0-9

 

0-9

 

0-9

 
     

ODS

 

e.g. 000

 

Local Health Board (Wales)

 

B

 

7

 

A-9

 

A-9

 
     

ODS 

 

e.g. 7A1 

 

Local Service Provider (LSP)

 

B

 

L

 

S

 

P

 

0-9

 

0-9

 
   

ODS

 

e.g. LSP01

 

Military Hospital

B

 

X

 

M

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g.XMDA1

 

National Application Service Provider

H

 

Y

 

E

 

A-9

 
     

ODS

 

e.g. YEA

 

National Groupings (England) 

H

Y

 

5

 

0-9

 
     

ODS

 

e.g. Y51

 

NHS Support Agency 

B

 

Y

 

D

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g. YDD01

 

NHS Trust

 

D

 

R

 

A-9

 

A-9

 
     

ODS

 

e.g. RH8

 

NHS Wales Informatics Service (NWIS)

 

K

 

W

 

0

 

0

 
     

ODS

 

Only one organisation of this type exists for Wales

e.g. W00

 

Non NHS Organisation (Independent Provider)

 

A

 

8

 

A-Y

 

A-9

 

0-9

 

0-9

 
   

ODS

 

e.g. 8HA03

 

Northern Ireland Health & Social Care Board

N/A

 

Z

 

B

 

0

 

0

 

1

 
   

ODS

 

e.g. ZB001

 

Northern Ireland Health & Social Care Trust

 

I

 

Z

 

T

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. ZT001

 

Northern Ireland Local Commissioning Group

 

L

 

Z

 

C

 

0

 

0-9

 

0

 
   

Department for Health, Social Services and Public Safety (DHSSPS), Northern Ireland

 

e.g. ZC010

Note that characters 3 and 5 are ‘fillers’ to create a 5 character code. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory), zeros can be omitted and fits under the H frame: e.g. ZC1.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009. 

 

Optical Headquarters

 

 

 

0-9

 

A-9

 

A-9

 
    

ODS 

 

e.g. T1A1 

 

Other Statutory Authority (OSA)

 

H

 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X16

 

Pharmacy

 

A

 

F

 

A-Y

 

A-9

 

A-9

 

A-9

 
   

ODS

 

e.g. FA002

 

Pharmacy Headquarters

 

F

 

P

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. P001

 

Primary Care Trust (PCT)

 

D

 

5

 

A-9

 

A-9

 
     

ODS

 

e.g. 5CT

All Primary Care Trusts closed 31 March 2013

Prison Health Service

B

 

Y

 

D

 

E

 

A-9

 

A-9

 
   

ODS

 

e.g. YDE01

 

School

 

C

 

E

 

E

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

Department for Education and ODS

 

e.g. EE134290

 

Special Health Authority (SpHA)

 

I

 

T

 

1

 

0-9

 

0-9

 

0

 
   

ODS

 

e.g. T1150

 

Strategic Health Authority (SHA)

 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. Q30

All Strategic Health Authorities in England closed 31 March 2013

Welsh Assembly

 

D

 

W

 

0-9

 

0-9

 

 

 

 
   

ODS

 

e.g. W01

 

Welsh Health Commission 

A

 

W

 

0-9

 

0-9

 

A-Y

 

A-Y

 
   

ODS

 

e.g. W01HC

 

Notes:

  • Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.

Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.

Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).

 

Table 2: CODING FORMATS FOR ORGANISATIONS IN SCOTLAND

Scottish ORGANISATION CODES are supplied by the Information Standards Directorate (ISD) from NHS Scotland and published by the Organisation Data Service.

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Scotland 

S

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS

 
 

Scottish GP Fundholder

 

S

 

A-Z

 

B

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the GPFH reports to.
3rd character (always B) shows GPFH status.

 

Scottish Health Agency

 

S

 

D

 

0-9

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character (D) identifies Scottish Office agencies

 

Scottish Health Board

 

S

 

A-Z

 

9

 

9

 

9

 
 

 ISD, Scotland

 

 

Scottish Provider

 

S

 

A-Z

 

A,C,D

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the organisation reports to.
3rd character identifies the organisation type:
A= Health Unit
C = Hospital Trust
D = Nursing Home

 

Table 3: CODING FORMATS for ORGANISATIONS in OTHER HOME COUNTRIES

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Alderney

 

A

 

L

 

D

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Guernsey

 

G

 

U

 

E

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Isle of Man (IOM)

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Jersey

 

J

 

E

 

R

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

Primary Healthcare Directorate (Isle of Man)

 

Y

 

K

 

A-9

 
   

ODS

 

e.g. YK1

 

Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).

 

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ORGANISATION SITE CODE

Change to Attribute: Changed Description

ORGANISATION SITE CODE will be replaced with ORGANISATION IDENTIFIER, which is the most recent approved national information standard to describe the required definition.

An ORGANISATION SITE CODE is a code which identifies an Organisation Site uniquely.

Note: Only ORGANISATION SITE CODES which have been notified to and issued by the Organisation Data Service may be used.

Notes:

ORGANISATION SITE CODING FRAMES

Character
Position

1

2

3

4

5

6

7

8

9

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
  

B Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
    

C Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
    

D Frame

 

Organisation Type
Identifier

 

Practice Identifier

 

Branch Surgery Identifier

 

F Frame

 

Organisation Type
Identifier

 

Organisation Identifier

 
    

H Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

I Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

J Frame

 

Organisation Type Identifier

Organisation Identifier

    

K Frame

 

Organisation and Organisation Type Identifier

Organisation Site Identifier

    

L Frame

 

Organisation Type Identifier and
Site or Sub-Division Identifier

    

A Frame:

Example
Local Service Provider Site e.g. LSP0101

  • LSP = Org Type Identifier
  • 01 = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

B Frame:

Example
Care Trust Site e.g. TAK01

  • T = Organisation Type Identifier
  • AK = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

Also:

Government Department Sitee.g. XDA01
High Level Health Geography Site, e.g. NHS England Region (Geography) sitee.g. Q7201
Local Authority Sitee.g. 000AA
Local Health Board (Wales) Sitee.g. 7A101 
NHS Trust Sitee.g. RH802 
Other Statutory Authority (OSA) Site e.g. X1601 
 e.g. Q3001

C Frame:

Example
Independent Sector Healthcare Provider (ISHP) Site e.g. NV701

  • NV = Organisation Site Type Identifier
  • 7 = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

D Frame

Example
GP Practice Branch Surgery: e.g. H81010002

  • H (and length of code) = Organisation Identifier
  • 81010 = Organisation Identifier (parent GP Practice)
  • 002 = Branch Surgery Identifier

F Frame

Example
Commissioning Support Unit Site: e.g. 0AA01

  • 0 = Organisation Type Identifier
  • AA01 = Organisation Identifier

H Frame

Example
Prison: e.g. YDE01

  • YDE = Organisation Type Identifier
  • 01 = Site or Sub-Division Identifier

I Frame

Example
Optical Site: e.g. TP01A

  • TP = Organisation Type Identifier
  • 01A = Site or Sub-Division Identifier

J Frame

Example
Care Home Site: e.g. VN01A

  • VN = Organisation Type Identifier
  • 01A = Site or Sub-Division Identifier

Also:

Health Observatorye.g. XP001
Primary Healthcare Directorate (Isle of Man) Sitee.g. YK101



K Frame

Example
Clinical Commissioning Group (CCG) Site e.g. 11AAA - 99YZZ

  • 11A = Organisation and Organisation Type Identifier
  • AA = Organisation Site Identifier

L Frame

Example
Special Health Authority (SpHA) Site: e.g. T115A

  • T115A – Organisation Type Identifier and Site or Sub-Division Identifier

The structure and format of ORGANISATION SITE CODES maintained by the Organisation Data Service, NHS Prescription Services and other agencies are detailed in the tables below.

NHS ORGANISATION SITE CODES TABLES

Coding Formats

Table 1: CODING FORMATS FOR ORGANISATION SITES IN ENGLAND AND WALES

Organisation Site Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

9

 
  

Care Home Site

 

J

 

V

 

L, M or N

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. VN01A, VM01A, VL01A

 

Care Trust Site

 

B

 

T

 

A-Y

 

A-Y

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning Care Trust

e.g. TAK01

 
Clinical Commissioning Group (CCG) Site  

K

 

0-9

 

0-9

 

A-Y

 

A-Y

 

A-Y

 
    

ODS

 

First three characters denote owning Clinical Commissioning Group

e.g. 11AAA - 99YZZ

 

Commissioning Support Unit (CSU) Site

 

F

 

0

 

A-Y

 

A-Y

 

A-9

 

A-9

 
    

ODS

 

e.g. 0AA01

 

Executive Agency Site

 

N/A

See Note

 

X

 

0-9

 

0-9

 

0-9

 

0-9

 
    

ODS

 

First three characters denote Executive Agency

e.g. X0901

 

Government Department Site

 

B

 

X

 

A-Y

 

A-Y

 

0-9

 

0-9

 
    

ODS

 

First three characters denote Government Department

e.g. XDA01

 

GP Practice Branch Surgery - England and Wales

 

D

 

A-H,
J-N,
P,
W &
Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

ODS

 

First 6 characters denote parent practice. Char 1 = W for Welsh GP Practice.

All other values represent English GP Practices

e.g. H81010002

 
Health Observatory

J

 

X

P

 

0-9

 

0-9

 

0-9

 
    

ODS

 

e.g. XP001

 

High Level Health Geography Site, e.g. NHS England Region (Geography) site

 

B

 

Q

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. Q7201

 

Independent Sector Healthcare Provider (ISHP) Site

 

C

 

A, B, D, G, I, K, L, M , N, O, S, U, V, W

 

A-Y

 

A-Y, 0-9

 

A-Y, 0-9

 

A-Y, 0-9

 
    

ODS

 

First three characters denote owning Independent Sector Healthcare Provider (ISHP)

e.g. NV701

Note: The A-Y range includes all letters except Z

 

Local Authority (LA) Site

 

B

 

0-9

 

0-9

 

0-9

 

A-Z

 

A-Z

 
    

ODS

 

First three characters denote parent Local Authority

e.g. 000AA

 
Local Health Board (Wales) Site

B

 

7

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning NHS Trust

e.g. 7A101

 

Local Service Provider Site

 

A

 

L

 

S

 

P

 

0-9

 

0-9

 

0-9

 

0-9

 
  

ODS

 

First five characters denote owning Local Service Provider

e.g. LSP0101

 

NHS Trust Site

 

B

 

R

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning NHS Trust

e.g. RH802

 

Optical Site

 

I

 

T

 

P or Q

 

0-9

 

A-9

 

A-9

 
    

ODS

 

e.g. TP01A, TQ01A

 

Other Statutory Authority (OSA) Site

 

B

 

X

 

0-9

 

0-9

 

0-9

 

0-9

 
    

ODS

 

First three characters denote owning Other Statutory Authority

e.g. X1601 

 

Primary Care Trust (PCT) Site

 

B

 

5

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning Primary Care Trust

e.g. 5CT49

All Primary Care Trusts closed 31 March 2013

Special Health Authority (SpHA) Site

 

L

 

T

 

1

 

0-9

 

0-9

 

A-Y, 1-9

 
    

ODS

 

The characters do NOT denote any ownership.

e.g. T115A

Strategic Health Authority (SHA) Site

 

B

 

Q

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning SHA Trust

e.g. Q3001

All Strategic Health Authorities closed 31 March 2013 - from 1 April 2013 referred to as High Level Health Geography Site

Note: Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.

Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.

Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).


Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity). This applies to all ORGANISATION SITE CODES in the Coding Format Table above except Independent Sector Healthcare Provider (ISHP) sites.

  

Table 2: CODING FORMATS FOR ORGANISATION SITES IN OTHER HOME COUNTRIES

Organisation Site Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

9

 
  

Primary Healthcare Directorate (Isle of Man) Site

J

 

Y

 

K

 

A-9

 

A-9

 

A-9

 
  

 

 
 

ODS

 

e.g. YK101

 

Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).

 

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RADIOTHERAPY INTENT

Change to Attribute: Changed Description

The intent of the delivered beam radiation for PATIENTS with a cancer PRIMARY DIAGNOSIS (ICD), as defined by NHS England (see Cancer Waiting Times - Useful Documentation and Links), where the CANCER TREATMENT MODALITY recorded is National Code 'Teletherapy (Beam Radiation excluding Proton Therapy)'.The intent of the delivered beam radiation for PATIENTS with a cancer PRIMARY DIAGNOSIS (ICD), as defined by NHS England (see Cancer Waiting Times), where the CANCER TREATMENT MODALITY recorded is National Code 'Teletherapy (Beam Radiation excluding Proton Therapy)'.

National Codes:

01Palliative
02Anti-cancer
03Other
 

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TREATMENT START DATE FOR CANCER

Change to Attribute: Changed Description

The Start Date of the first, second or subsequent cancer treatment given to a PATIENT who is receiving care for a cancer condition, with a PRIMARY DIAGNOSIS (ICD) code within the range C00 to C97 or D05 as defined by NHS England (see Cancer Waiting Times - Useful Documentation and Links).The Start Date of the first, second or subsequent cancer treatment given to a PATIENT who is receiving care for a cancer condition, with a PRIMARY DIAGNOSIS (ICD) code within the range C00 to C97 or D05 as defined by NHS England (see Cancer Waiting Times).

If the CANCER TREATMENT MODALITY given is National Code 'Surgery', the TREATMENT START DATE FOR CANCER is the same as START DATE (HOSPITAL PROVIDER SPELL) of the related admission.

TREATMENT START DATE FOR CANCER is also the END DATE of a Cancer Treatment Period.

A Cancer Referral To Treatment Period will end on the same date as the TREATMENT START DATE FOR CANCER where First Definitive Treatment is given, unless cancer was discounted when the PATIENT was first seen (in which case the Cancer Referral To Treatment Period is ended at DATE FIRST SEEN).

If a PATIENT declines all treatment (CANCER TREATMENT MODALITY is recorded as National Code 'All treatment declined') then the TREATMENT START DATE FOR CANCER should be recorded as the DATE upon which the PATIENT made this decision.

 

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WAITING TIME ADJUSTMENT (FIRST SEEN)

Change to Data Element: Changed Description

Format/Length:max n3
National Codes: 
Default Codes: 

Notes:
WAITING TIME ADJUSTMENT (FIRST SEEN) records the number of days that should be removed from the derived waiting time between the CANCER REFERRAL TO TREATMENT PERIOD START DATE and DATE FIRST SEEN.

Adjustments are only permissible when a PATIENT does not attend an Out-Patient Appointment or arrives late and could not be seen.

Guidance on calculating the number of days which may be deducted from the waiting time is at: Cancer Waiting Times - Useful Documentation and Links.Guidance on calculating the number of days which may be deducted from the waiting time is at: Cancer Waiting Times.

 

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WAITING TIME ADJUSTMENT (TREATMENT)

Change to Data Element: Changed Description

Format/Length:max n3
National Codes: 
Default Codes: 

Notes:
WAITING TIME ADJUSTMENT (TREATMENT) records the number of days that should be removed from the derived waiting time between CANCER TREATMENT PERIOD START DATE and TREATMENT START DATE FOR CANCER.

The recording of this data item is mandatory for all Tumours, regardless of whether a national service standard is in place.

Adjustments are allowed in the following circumstances:

  • When a patient pause is initiated because the PATIENT is unavailable for treatment for a specified period because of family commitments, holidays, or other (non-clinical) reasons

WAITING TIME ADJUSTMENT (TREATMENT) should only be recorded where CANCER CARE SETTING (TREATMENT) is:

Guidance on calculating the number of days which may be removed from the waiting time is available at: Cancer Waiting Times - Useful Documentation and Links.Guidance on calculating the number of days which may be removed from the waiting time is available at: Cancer Waiting Times.

 

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For enquiries about this Change Request, please email information.standards@nhs.net

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