NHS Data Model and DictionaryNHS Digital
Type:Patch
Reference:1780
Version No:1.0
Subject:August 2020 Release Patch
Effective Date:Immediate
Reason for Change:Patch
Publication Date:17 August 2020

Background:

This patch updates the NHS Data Model and Dictionary in preparation for the new release and includes:

To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: https://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.

Note: if the web page does not open, please copy the link and paste into the web browser.

Summary of changes:

Data Set
CANCER OUTCOMES AND SERVICES DATA SET - BREAST   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - CENTRAL NERVOUS SYSTEM   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - CHILDREN TEENAGERS AND YOUNG ADULTS   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - COLORECTAL   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - CORE   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - GYNAECOLOGICAL   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - HAEMATOLOGICAL   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - HEAD AND NECK   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - LIVER   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - LUNG   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - PATHOLOGY   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - SARCOMA   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - SKIN   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - UPPER GASTROINTESTINAL   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET - UROLOGICAL   Changed Description
COMMUNITY SERVICES DATA SET   Changed Description
IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES DATA SET   Changed Description
NATIONAL JOINT REGISTRY DATA SET - ANKLE   Changed Description
NATIONAL NEONATAL DATA SET - EPISODIC AND DAILY CARE   Changed Description
NATIONAL NEONATAL DATA SET - TWO YEAR NEONATAL OUTCOMES ASSESSMENT   Changed Description
 
Supporting Information
ACCESSIBILITY   Changed Description
ORGANISATION CODING FRAMES   New Supporting Information
ORGANISATION SITE CODING FRAMES   New Supporting Information
PATIENT LEVEL INFORMATION COSTING SYSTEM ACUTE DATA SET INTRODUCTION   Changed Description
SUPPORTING DEFINITIONS MENU   Changed Description
SUPPORTING INFORMATION INTRODUCTION   Changed Description
SUPPORTING INFORMATION MENU   Changed Description
URGENT TREATMENT CENTRE   Changed Description
 
Class Definitions
ACTIVITY GROUP   Changed Attributes
CLINICAL INVESTIGATION RESULT ITEM   Changed Attributes
MEDICAL DEVICE   Changed Description
SERVICE PROVIDED UNDER AGREEMENT   Changed Attributes
 
Attribute Definitions
CANCER SURGICAL ADMISSION TYPE   Changed Description
IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE   Changed Description
ORGANISATION CODE   Changed Description
ORGANISATION SITE CODE   Changed Description
PERSON GENOTYPIC SEX FOR NATIONAL NEONATAL DATA SET   New Attribute
PRIMARY DIAGNOSIS   Changed Description
REFERRAL TO TREATMENT PERIOD STATUS   Changed Description
SICKNESS ABSENCE INDICATOR   Changed Description
WAITING TIME MEASUREMENT TYPE   Changed Description
WARD DAY PERIOD AVAILABILITY   Changed Description
WARD NIGHT PERIOD AVAILABILITY   Changed Description
 
Data Elements
ATTENDED OR DID NOT ATTEND CODE   Changed Description
CDS BULK REPLACEMENT GROUP CODE   Changed Description
CRITICAL CARE ACTIVITY CODE   Changed Description
DATA SET CREATED TIME   Changed Description
DEATH CAUSE ICD CODE (IMMEDIATE) (RETIRED)   Changed linked Attribute
DEATH CAUSE ICD CODE (SIGNIFICANT) (RETIRED)   Changed linked Attribute
DEATH CAUSE ICD CODE (UNDERLYING) (RETIRED)   Changed linked Attribute
DIAGNOSIS SCHEME IN USE   Changed Description
EMERGENCY CARE ARRIVAL DATE   Changed Description
EMERGENCY CARE ARRIVAL TIME   Changed Description
GS1 APPLICATION IDENTIFIER (GLOBAL)   Changed Description
GS1 UNIQUE ORGANISATION PREFIX NUMBER   Changed Description
ONWARD REFERRAL REASON   Changed Description
PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)   Changed linked Attribute, Description
PROCEDURE SCHEME IN USE   Changed Description
PROFESSIONAL REGISTRATION BODY CODE   Changed Description
REFERRING CARE PROFESSIONAL STAFF GROUP (MENTAL HEALTH AND COMMUNITY CARE)   Changed Description
SEX OF PATIENTS CODE   Changed Description
SOURCE OF REFERRAL FOR MENTAL HEALTH   Changed Description
WARD DAY PERIOD AVAILABILITY CODE   Changed Description
WARD NIGHT PERIOD AVAILABILITY CODE   Changed Description
 

Date:17 August 2020
Sponsor:Nicholas Oughtibridge, Head of Clinical Data Architecture, NHS Digital

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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CANCER OUTCOMES AND SERVICES DATA SET - BREAST

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Breast.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

TRIPLE DIAGNOSTIC ASSESSMENT - BREAST

To carry diagnostic details for Breast cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
MBREAST TRIPLE DIAGNOSTIC ASSESSMENT INDICATOR

PROGNOSTIC INDEX - BREAST

To carry prognostic details for Breast cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
MNOTTINGHAM PROGNOSTIC INDEX SCORE

CLINICAL NURSE SPECIALIST AND RISK FACTOR ASSESSMENT: NATIONAL AUDIT OF BREAST CANCER IN OLDER PATIENTS (NABCOP) - BREAST

To carry National Audit of Breast Cancer in Older Patients assessment details for Breast cancer.
One occurrence of this group is permitted per Core Clinical Nurse Specialist and Risk Factor Assessment.
M/RData Set Data Elements
RFITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER INDICATOR
RFITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER COMPLETED DATE
RCLINICAL FRAILTY SCALE POINT
RABBREVIATED MENTAL TEST SCORE
RSEVERE CARDIORESPIRATORY DISEASE INDICATOR
ROTHER NON BREAST LOCALLY ADVANCED METASTATIC MALIGNANCY INDICATOR

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CANCER OUTCOMES AND SERVICES DATA SET - CENTRAL NERVOUS SYSTEM

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Central Nervous System.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

IMAGING - CENTRAL NERVOUS SYSTEM (CNS)

To carry imaging details for Central Nervous System (CNS) cancer.
One occurrence of this group is permitted per Core Imaging.
M/RData Set Data Elements
RLESION LOCATION (RADIOLOGICAL)
RNUMBER OF LESIONS (RADIOLOGICAL)
RLESION SIZE (RADIOLOGICAL)
RPRINCIPAL DIAGNOSTIC IMAGING TYPE

CANCER CARE PLAN - CENTRAL NERVOUS SYSTEM (CNS)

To carry cancer care plan details for Central Nervous System (CNS) cancer.
One occurrence of this group is permitted Core Cancer Care Plan.
M/RData Set Data Elements
RPROVISIONAL DIAGNOSIS (ICD)

SURGERY - TREATMENT - CENTRAL NERVOUS SYSTEM (CNS)

To carry surgery details for Central Nervous System (CNS) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RTUMOUR LOCATION (SURGICAL)
RBIOPSY TYPE (CENTRAL NERVOUS SYSTEM TUMOURS)
REXCISION TYPE (CENTRAL NERVOUS SYSTEM TUMOURS)

SURGERY - TREATMENT: CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) - CENTRAL NERVOUS SYSTEM (CNS)

To carry surgery details for Children, Teenagers and Young Adults (CTYA) for Central Nervous System (CNS) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RRESECTION STATUS

DIAGNOSIS: LOW GRADE GLIOMA - CENTRAL NERVOUS SYSTEM (CNS)

To carry diagnostic Low Grade Glioma details for Central Nervous System (CNS) cancer.
One occurrence of this group is permitted per Core Diagnosis
.
M/RData Set Data Elements
RVISUAL ACUITY TEST RESULT (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
RVISUAL FIELD TEST RESULT (AT DIAGNOSIS)
Multiple occurrences of this item are permitted

SITE SPECIFIC STAGING: CEREBROSPINAL FLUID (CSF) - CENTRAL NERVOUS SYSTEM (CNS)

To carry site specific staging Cerebrospinal Fluid (CSF) details for Central Nervous System (CNS) cancer.
One occurrence of this group is required per Core Site Specific Staging.
M/RData Set Data Elements
MCHANG STAGING SYSTEM STAGE

LABORATORY RESULTS: GERM CELL CENTRAL NERVOUS SYSTEM (CNS) TUMOURS CHOICE - CENTRAL NERVOUS SYSTEM (CNS)

One occurrence of this group is permitted per Core Laboratory Results
One of the following Germ Cell Central Nervous System (CNS) tumour laboratory result details MUST be provided per Core Laboratory Results
CHOICE 1 - ALPHA FETOPROTEIN
To carry Germ Cell Central Nervous System (CNS) tumour laboratory result details.
One occurrence of this group is required per Core Laboratory Results if selected as the choice
.
M/RData Set Data Elements
MALPHA FETOPROTEIN (CEREBROSPINAL FLUID)
OR
CHOICE 2 - BETA HUMAN CHORIONIC GONADOTROPIN
To carry Germ Cell Central Nervous System (CNS) tumour laboratory result details.
One occurrence of this group is required per Core Laboratory Results if selected as the choice
.
M/RData Set Data Elements
MBETA HUMAN CHORIONIC GONADOTROPIN (CEREBROSPINAL FLUID)

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CANCER OUTCOMES AND SERVICES DATA SET - CHILDREN TEENAGERS AND YOUNG ADULTS

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Children, Teenagers and Young Adults.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

REFERRALS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry referral details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted per Core Referrals and First Stage of Patient Pathway.
M/RData Set Data Elements
RCARE PROFESSIONAL MAIN SPECIALTY CODE (CANCER REFERRAL)

DIAGNOSIS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry diagnostic details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RCARE PROFESSIONAL MAIN SPECIALTY CODE (DIAGNOSIS)
RCHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY (CONSULTANT AT DIAGNOSIS)

DIAGNOSIS: NEUROBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry diagnostic Neuroblastoma details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RLIFE THREATENING SYMPTOMS AT DIAGNOSIS INDICATOR (NEUROBLASTOMA)

SITE SPECIFIC STAGING CHOICE - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

One of the following Site Specific Staging Sections MUST be provided per Core Site Specific Staging
CHOICE 1 - WILMS
To carry staging renal tumour details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Site Specific Staging group if selected as the choice.
M/RData Set Data Elements
MWILMS TUMOUR STAGE
OR
CHOICE 2 - INTERNATIONAL NEUROBLASTOMA RISK GROUP
To carry staging Neuroblastoma details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Site Specific Staging group if selected as the choice.
M/RData Set Data Elements
MINTERNATIONAL NEUROBLASTOMA RISK GROUP STAGING SYSTEM STAGE
OR
CHOICE 3 - INTERNATIONAL NEUROBLASTOMA RISK GROUP
To carry staging Hepatoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Site Specific Staging group if selected as the choice.
M/RData Set Data Elements
MPRETEXT STAGING SYSTEM STAGE
MPRETEXT STAGING SYSTEM STAGE ANNOTATION FACTORS
OR
CHOICE 4 - RETINOBLASTOMA
To carry staging Retinoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Site Specific Staging group if selected as the choice.
M/RData Set Data Elements
MINTERNATIONAL STAGING SYSTEM STAGE (RETINOBLASTOMA)

TREATMENT: PRINCIPAL TREATMENT CENTRE CHOICE - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

One of the following Principal Treatment Centre Sections MUST be provided per Core Treatment
CHOICE 1 - CHILDREN
To carry Treatment details for the nominated children's Principal Treatment Centre for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Treatment if selected as the choice.
M/RData Set Data Elements
MORGANISATION IDENTIFIER (CHILDRENS NOMINATED PRINCIPAL TREATMENT CENTRE)
Multiple occurrences of this item are permitted
OR
CHOICE 2 - TEENAGE YOUNG ADULT (TYA)
To carry Treatment details for the nominated Teenage Young Adult's (TYA) Principal Treatment Centre for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is required per Core Treatment if selected as the choice.
M/RData Set Data Elements
MORGANISATION IDENTIFIER (TEENAGE YOUNG ADULTS NOMINATED PRINCIPAL TREATMENT CENTRE)
Multiple occurrences of this item are permitted

TREATMENT: CHILDREN'S CANCER AND LEUKAEMIA GROUP (CCLG) - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry treatment details for the Children's Cancer and Leukaemia Group (CCLG) guidelines for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted per Core Treatment.
M/RData Set Data Elements
RPATIENT TREATED TO CHILDRENS CANCER AND LEUKAEMIA GROUP GUIDELINES INDICATOR
RCHILDRENS CANCER AND LEUKAEMIA GROUP GUIDELINE NAME

LABORATORY RESULTS: NEUROBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry Neuroblastoma laboratory result details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted per Core Laboratory Results.
M/RData Set Data Elements
RURINE VANILLYLMANDELIC ACID CREATININE RATIO

RENAL TUMOURS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry renal tumour details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RPATHOLOGICAL RISK CLASSIFICATION CODE (AFTER NEPHRECTOMY)
RPATHOLOGICAL RISK CLASSIFICATION CODE (AFTER PREOPERATIVE CHEMOTHERAPY)

RETINOBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry Retinoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer.
Multiple occurrences of this group are permitted.
M/RData Set Data Elements
RRETINOBLASTOMA ASSESSMENT LATERALITY
RINTERNATIONAL CLASSIFICATION FOR INTRAOCULAR RETINOBLASTOMA

CHEMOTHERAPY - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA)

To carry chemotherapy details for Children, Teenagers and Young Adults (CTYA) cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RCHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY (CONSULTANT PRESCRIBING CHEMOTHERAPY)

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CANCER OUTCOMES AND SERVICES DATA SET - COLORECTAL

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Colorectal.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

DIAGNOSIS - COLORECTAL

To carry diagnostic details for Colorectal cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RSYNCHRONOUS TUMOUR COLON LOCATION (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
RTUMOUR HEIGHT ABOVE ANAL VERGE

CLINICAL NURSE SPECIALIST - COLORECTAL

To carry details of the Clinical Nurse Specialist.
Multiple occurrences of this group are permitted per Core Clinical Nurse Specialist and Risk Factor.
M/RData Set Data Elements
RCLINICAL NURSE SPECIALIST TYPE

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CANCER OUTCOMES AND SERVICES DATA SET - CORE

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Core.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory, Required or Optional (M/R/O) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

SUBMISSION HEADER

To carry the submission header details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MCOSDS SUBMISSION IDENTIFIER
MORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
MCOSDS SUBMISSION RECORD COUNT
MREPORTING PERIOD START DATE
MREPORTING PERIOD END DATE
MDATE AND TIME DATA SET CREATED

RECORD IDENTIFIER

To carry the record identifier details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MCOSDS UNIQUE IDENTIFIER

LINKAGE: IDENTIFIER CHOICE - CORE

One of the following Core Linkage Identifier sections MUST be provided
CHOICE 1 - NHS NUMBER
To carry patient identity details for linkage.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MNHS NUMBER
OR
CHOICE 2 - LOCAL PATIENT IDENTIFIER
To carry patient identity details for linkage.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)

LINKAGE: PATIENT IDENTITY DETAILS - CORE

To carry patient identity details for linkage.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MNHS NUMBER STATUS INDICATOR CODE
MPERSON BIRTH DATE
MORGANISATION IDENTIFIER (CODE OF PROVIDER)

DIAGNOSTIC: CANCER PATHWAY CHOICE - CORE

One of the following Cancer Pathway sections MUST be provided
CHOICE 1 - PRIMARY CANCER PATHWAY
To carry diagnostic details for linkage.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MPRIMARY DIAGNOSIS (ICD)
MTUMOUR LATERALITY
MDATE OF PRIMARY CANCER DIAGNOSIS (CLINICALLY AGREED)
OR
CHOICE 2 - NON PRIMARY CANCER PATHWAY
To carry diagnostic details for linkage.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MDATE OF NON PRIMARY CANCER DIAGNOSIS (CLINICALLY AGREED)

DIAGNOSTIC: NON PRIMARY CANCER PATHWAY - CORE

One of the following Core Diagnosis sections MUST be provided per Non Primary Cancer Pathway
CHOICE 1 - CANCER RECURRENCE
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Recurrence.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
RPRIMARY DIAGNOSIS (ICD ORIGINAL)
MCANCER METASTATIC DISEASE TYPE
Multiple occurrences of this item are permitted
MMETASTATIC SITE (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
RPALLIATIVE CARE SPECIALIST SEEN INDICATOR (CANCER RECURRENCE)
RRELAPSE METHOD DETECTION TYPE
Multiple occurrences of this item are permitted
OR
CHOICE 2 - CANCER PROGRESSION
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Progression.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MCANCER PROGRESSION (ICD ORIGINAL)
MCANCER METASTATIC DISEASE TYPE
Multiple occurrences of this item are permitted
MMETASTATIC SITE (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
OR
CHOICE 3 - CANCER TRANSFORMATION
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation.
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
RMORPHOLOGY (ICD-O CANCER TRANSFORMATION ORIGINAL)
RMORPHOLOGY (SNOMED CANCER TRANSFORMATION ORIGINAL)

DIAGNOSTIC: NON PRIMARY CANCER PATHWAY: TRANSFORMATION CURRENT MORPHOLOGY CHOICE - CORE

At least one of the following MUST be provided per Cancer Transformation
CHOICE 1 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY ICD
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (ICD).
One occurrence of this group is required if selected as the choice.
M/R/OData Set Data Elements
MMORPHOLOGY (ICD-O CANCER TRANSFORMATION)
OR
CHOICE 2 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY SNOMED
To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (SNOMED).
One occurrence of this group is permitted if selected as the choice.
M/R/OData Set Data Elements
MMORPHOLOGY (SNOMED CANCER TRANSFORMATION)
MSNOMED VERSION (CANCER TRANSFORMATION)

DEMOGRAPHICS - CORE

To carry patient demographic details.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RPERSON FAMILY NAME
RPERSON GIVEN NAME
RPATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED
or
PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS UNSTRUCTURED
RPOSTCODE OF USUAL ADDRESS (AT DIAGNOSIS)
RPERSON STATED GENDER CODE
RPERSON STATED SEXUAL ORIENTATION CODE (AT DIAGNOSIS)`
RGENERAL MEDICAL PRACTITIONER (SPECIFIED)
RGENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION)
RPERSON FAMILY NAME (AT BIRTH)
RETHNIC CATEGORY

REFERRALS AND FIRST STAGE OF PATIENT PATHWAY - CORE

To carry patient referral details to the trust that receives the first referral.
These details include information relating to the first stage of the Patient Pathway.
One occurrence of this group is permitted per Primary Cancer Pathway.
M/R/OData Set Data Elements
RSOURCE OF REFERRAL FOR OUT-PATIENTS
RDATE FIRST SEEN
MPROFESSIONAL REGISTRATION ISSUER CODE (CANCER FIRST SEEN)
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (CANCER FIRST SEEN)
RORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST SEEN)
RDATE FIRST SEEN (CANCER SPECIALIST)
RORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST CANCER SPECIALIST)
RCANCER SYMPTOMS FIRST NOTED DATE

NON PRIMARY CANCER PATHWAY: REFERRAL - CORE

To carry non primary cancer pathway details.
One occurrence of this group is permitted per Non Primary Cancer Pathway.
M/R/OData Set Data Elements
RSOURCE OF REFERRAL FOR OUT-PATIENTS (NON PRIMARY CANCER PATHWAY)
RDATE FIRST SEEN (NON CANCER PRIMARY PATHWAY)
RORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST SEEN NON PRIMARY CANCER PATHWAY)

IMAGING - CORE

To carry imaging details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
MORGANISATION SITE IDENTIFIER (OF IMAGING)
MPROCEDURE DATE (CANCER IMAGING)
RCANCER IMAGING OUTCOME

IMAGING: CANCER SITE LOCATION CHOICE - CORE

One of the following Core Imaging data items or sections can be provided per Core Imaging
CHOICE 1 - NICIP
To carry imaging NICIP details.
Multiple occurrences of this group are permitted per Core Imaging.
M/R/OData Set Data Elements
MIMAGING CODE (NICIP)
OR
CHOICE 2 - SNOMED CT
To carry imaging SNOMED CT details.
Multiple occurrences of this group are permitted per Core Imaging.
M/R/OData Set Data Elements
MIMAGING CODE (SNOMED CT)
OR
CHOICE 3 - CANCER SITE IMAGING LOCATION GROUP
To carry imaging details.
Multiple occurrences of this group are permitted per Core Imaging.
M/R/OData Set Data Elements
MCANCER IMAGING MODALITY
RIMAGING ANATOMICAL SITE
RANATOMICAL SIDE (IMAGING)

To carry imaging details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RIMAGING REPORT TEXT
RLESION SIZE (RADIOLOGICAL)

DIAGNOSTIC PROCEDURES - CORE

To carry diagnostic procedure details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
MORGANISATION SITE IDENTIFIER (OF DIAGNOSTIC PROCEDURE)
MPROCEDURE DATE (DIAGNOSTIC PROCEDURE)

DIAGNOSTIC PROCEDURES: CHOICE - CORE

One of the following Core Diagnostic procedures data items MUST be provided per Core Diagnostic Procedures
CHOICE 1 - OPCS
To carry OPCS diagnostic procedure details.
Multiple occurrences of this group are permitted per Core Diagnostic Procedures.
M/R/OData Set Data Elements
MDIAGNOSTIC PROCEDURE (OPCS)
OR
CHOICE 2 - SNOMED CT
To carry SNOMED CT diagnostic procedure details.
Multiple occurrences of this group are permitted per Core Diagnostic Procedures.
M/R/OData Set Data Elements
MDIAGNOSTIC PROCEDURE (SNOMED CT)

DIAGNOSTIC PROCEDURES: SENTINEL NODE BIOPSY - CORE

To carry diagnostic details for Sentinel Node Biopsy.
One occurrence of this group is permitted per Core Diagnostic Procedures.
M/R/OData Set Data Elements
RSENTINEL LYMPH NODE BIOPSY OUTCOME

DIAGNOSIS - CORE

To carry diagnostic details for the Primary Diagnosis.
One occurrence of this group is permitted per Primary Cancer Pathway.
M/R/OData Set Data Elements
RORGANISATION SITE IDENTIFIER (OF DIAGNOSIS)
RBASIS OF DIAGNOSIS (CANCER)
RMORPHOLOGY (ICD-O DIAGNOSIS)
MMORPHOLOGY (SNOMED DIAGNOSIS)
MSNOMED VERSION (DIAGNOSIS)
RTOPOGRAPHY (ICD-O)
RGRADE OF DIFFERENTIATION (AT DIAGNOSIS)
RPERFORMANCE STATUS (ADULT)
RDIAGNOSIS (SNOMED CT)
MCANCER METASTATIC DISEASE TYPE
Multiple occurrences of this item are permitted
MMETASTATIC SITE (AT DIAGNOSIS)
Multiple occurrences of this item are permitted

DIAGNOSIS: ADDITIONAL ITEMS - CORE

To carry additional diagnostic details.
One occurrence of this group is permitted per Core Diagnosis.
M/R/OData Set Data Elements
RPRIMARY DIAGNOSIS (CANCER COMMENT)
RSECONDARY DIAGNOSIS (ICD)
Multiple occurrences of this item are permitted
RSECONDARY DIAGNOSIS (CANCER COMMENT)
RFAMILIAL CANCER SYNDROME INDICATOR
RFAMILIAL CANCER SYNDROME COMMENT

DIAGNOSIS: CANCER PROGRESSION - CORE

To carry additional diagnostic details for Cancer Progression.
May be multiple occurrences per Core Diagnosis.
M/R/OData Set Data Elements
MCANCER METASTATIC DISEASE TYPE
Multiple occurrences of this item are permitted
MMETASTATIC SITE (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
MCANCER PROGRESSION AGREED DATE (PRIMARY CANCER PATHWAY)

DIAGNOSIS: CANCER TRANSFORMATION - CORE

To carry additional diagnostic details for Cancer Transformation.
May be multiple occurrences per Core Diagnosis.
M/R/OData Set Data Elements
MCANCER TRANSFORMATION AGREED DATE (PRIMARY CANCER PATHWAY)

DIAGNOSIS: CANCER TRANSFORMATION CHOICE - CORE

At least one of the following MUST be provided per Cancer Transformation
CHOICE 1 - ICD
To carry ICD additional diagnostic details for Cancer Transformation.
One occurrence of this group is required per Core Diagnosis Cancer Transformation.
M/R/OData Set Data Elements
MMORPHOLOGY (ICD-O CANCER TRANSFORMATION)
OR
CHOICE 2 - SNOMED
To carry additional diagnostic details for Cancer Transformation.
One occurrence of this group is required per Core Diagnosis Cancer Transformation.
M/R/OData Set Data Elements
MMORPHOLOGY (SNOMED CANCER TRANSFORMATION)
MSNOMED VERSION (CANCER TRANSFORMATION)

DIAGNOSIS: BANKED TISSUE - CORE

To carry Banked Tissue details.
One occurrence of this group is permitted per Core Diagnosis.
M/R/OData Set Data Elements
RPATIENT CONSENT FOR TISSUE BANKED AT DIAGNOSIS INDICATION CODE
RTISSUE TYPE BANKED AT DIAGNOSIS (CANCER)
Multiple occurrences of this item are permitted

PERSON OBSERVATION - CORE

To carry person observation details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RPERSON HEIGHT IN METRES
RPERSON WEIGHT
RBODY MASS INDEX
MOBSERVATION DATE

CLINICAL NURSE SPECIALIST AND RISK FACTOR ASSESSMENT - CORE

To carry Clinical Nurse Specialist and risk factor assessment details.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RCLINICAL NURSE SPECIALIST INDICATION CODE
RSMOKING STATUS (CANCER)
RTOBACCO SMOKING CESSATION TREATMENT INDICATION CODE
RALCOHOL HISTORY (CANCER IN LAST THREE MONTHS)
RALCOHOL HISTORY (CANCER BEFORE LAST THREE MONTHS)
RPATIENT DIAGNOSIS INDICATOR (DIABETES)
RMENOPAUSAL STATUS (AT DIAGNOSIS)
RPHYSICAL ACTIVITY VITAL SIGN LEVEL (CURRENT)

CLINICAL NURSE SPECIALIST: HOLISTIC NEEDS ASSESSMENT (HNA) - CORE

To carry details of Clinical Nurse Specialist, Holistic Needs Assessments.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
ROFFER STATUS (HOLISTIC NEEDS ASSESSMENT)
RHOLISTIC NEEDS ASSESSMENT COMPLETED DATE
RHOLISTIC NEEDS ASSESSMENT POINT OF PATHWAY (CANCER)
RSTAFF ROLE CARRYING OUT HOLISTIC NEEDS ASSESSMENT

CLINICAL NURSE SPECIALIST: PERSONALISED CARE AND SUPPORT PLANNING - CORE

To carry details of Clinical Nurse Specialist, Personalised Care and Supportive Planning Assessments.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
ROFFER STATUS (PERSONALISED CARE AND SUPPORT PLANNING)
RPERSONALISED CARE AND SUPPORT PLANNING COMPLETED DATE
RPERSONALISED CARE AND SUPPORT PLANNING POINT OF CANCER PATHWAY
RSTAFF ROLE CARRYING OUT PERSONALISED CARE AND SUPPORT PLANNING

MULTIDISCIPLINARY TEAM MEETINGS CHOICE - CORE

One of the following Core Multidisciplinary Team Meeting data items MUST be provided per Core Multidisciplinary Team Meeting
CHOICE 1 - NOT DISCUSSED
To carry details of all multidisciplinary team meetings where the patient was not discussed.
One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice.
M/R/OData Set Data Elements
MMULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN NOT DISCUSSED INDICATION CODE
OR
CHOICE 2 - DISCUSSED
To carry details of all multidisciplinary team meetings where the patient was discussed.
One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice.
M/R/OData Set Data Elements
MMULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN DISCUSSION TYPE
MMULTIDISCIPLINARY TEAM MEETING DATE (CANCER)
MORGANISATION SITE IDENTIFIER (OF MULTIDISCIPLINARY TEAM MEETING)
MMULTIDISCIPLINARY TEAM MEETING TYPE (CANCER)
RMULTIDISCIPLINARY TEAM MEETING TYPE COMMENT (CANCER)

CANCER CARE PLAN - CORE

To carry cancer care plan details.
One occurrence of this group is permitted per Primary Cancer Pathway.
M/R/OData Set Data Elements
RMULTIDISCIPLINARY TEAM DISCUSSION DATE (CANCER)
MPROFESSIONAL REGISTRATION ISSUER CODE (MULTIDISCIPLINARY TEAM LEAD)
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (MULTIDISCIPLINARY TEAM LEAD)
RCANCER CARE PLAN INTENT
RPLANNED CANCER TREATMENT TYPE
Multiple occurrences of this item are permitted
RNO CANCER TREATMENT REASON
OADULT COMORBIDITY EVALUATION - 27 SCORE

MOLECULAR AND BIOMARKERS - GERMLINE TESTING FOR CANCER PREDISPOSITION - CORE

To carry Molecular and Biomarkers (Germline Testing for Cancer Predisposition) details for a patient.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
ROFFER STATUS (GERMLINE GENETIC TEST)
RGERMLINE GENETIC TEST TYPE OFFERED
Multiple occurrences of this item are permitted
ROTHER GERMLINE GENETIC TEST TYPE OFFERED COMMENT
Multiple occurrences of this item are permitted
RACTIVITY OFFER DATE (GERMLINE GENETIC TEST)
RORGANISATION IDENTIFIER (REPORTING LABORATORY)
ROFFER STATUS (REFERRAL TO REGIONAL CLINICAL GENETICS SERVICE)

MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED MEDICINE - CORE

To carry Molecular and Biomarkers (Somatic Testing for Targeted Therapy and Personalised Medicine) details for a patient, where these have been performed by the clinical teams.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RGENE OR STRATIFICATION BIOMARKER TYPE ANALYSED
Multiple occurrences of this item are permitted
ROTHER GENE OR STRATIFICATION BIOMARKER TYPE ANALYSED COMMENT
Multiple occurrences of this item are permitted
RGENE OR STRATIFICATION BIOMARKER REPORTED DATE
RORGANISATION IDENTIFIER (REPORTING LABORATORY)

CLINICAL TRIALS - CORE

To carry details for a patient who is eligible for a cancer clinical trial.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RPATIENT TRIAL STATUS (CANCER)
RCLINICAL TRIAL DECISION DATE
RCLINICAL TRIAL START DATE
RCANCER CLINICAL TRIAL TREATMENT TYPE

STAGING - CORE

To carry the staging details at the time that the first cancer care plan is agreed.
One occurrence of this group is permitted per Primary Cancer Pathway.
M/R/OData Set Data Elements
RT CATEGORY (FINAL PRETREATMENT)
RN CATEGORY (FINAL PRETREATMENT)
RM CATEGORY (FINAL PRETREATMENT)
RTNM STAGE GROUPING (FINAL PRETREATMENT)
RORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING FINAL PRETREATMENT)
RTNM STAGE GROUPING DATE (FINAL PRETREATMENT)
RT CATEGORY (INTEGRATED STAGE)
RN CATEGORY (INTEGRATED STAGE)
RM CATEGORY (INTEGRATED STAGE)
RTNM STAGE GROUPING (INTEGRATED)
RORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING INTEGRATED)
RTNM STAGE GROUPING DATE (INTEGRATED)
MTNM CODING EDITION
MTNM VERSION NUMBER (STAGING)

SITE SPECIFIC STAGING - CORE

To carry the site specific cancer staging details. These fields are only required where there is a site specific stage recorded for a patient and will not be applicable to every cancer.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
MORGANISATION SITE IDENTIFIER (OF CANCER SITE SPECIFIC STAGE)
MSTAGE DATE (CANCER SITE SPECIFIC STAGE)

TREATMENT - CORE

To carry the cancer treatment details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RADJUNCTIVE THERAPY TYPE
RCANCER TREATMENT INTENT
MTREATMENT START DATE (CANCER)
MCANCER TREATMENT MODALITY (REGISTRATION)
MORGANISATION SITE IDENTIFIER (OF PROVIDER CANCER TREATMENT START DATE)
MPROFESSIONAL REGISTRATION ISSUER CODE (TREATMENT)
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (TREATMENT)
OCANCER END OF TREATMENT SUMMARY PLAN COMPLETION DATE
Multiple occurrences of this item are permitted
RDISCHARGE DATE (HOSPITAL PROVIDER SPELL)
RDISCHARGE DESTINATION CODE (HOSPITAL PROVIDER SPELL)

TREATMENT: SURGERY - CORE

To carry the surgery details.
One occurrence of this group is permitted per Core Treatment.
M/R/OData Set Data Elements
MPROCEDURE DATE
RCANCER SURGICAL ADMISSION TYPE
MPROFESSIONAL REGISTRATION ISSUER CODE (RESPONSIBLE SURGEON)
Multiple occurrences of this item are permitted
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (RESPONSIBLE SURGEON)
Multiple occurrences of this item are permitted
RPRIMARY PROCEDURE (OPCS)
RPRIMARY PROCEDURE (SNOMED CT)
RPROCEDURE (OPCS)
Multiple occurrences of this item are permitted
RPROCEDURE (SNOMED CT)
Multiple occurrences of this item are permitted
RADDITIONAL UNPLANNED PROCEDURE REQUIRED INDICATOR
RASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE
RSURGICAL ACCESS TYPE

TREATMENT: STEM CELL TRANSPLANTATION - CORE

To carry surgery Stem Cell Transplantation details.
One occurrence of this group is permitted per Core Treatment.
M/R/OData Set Data Elements
RSTEM CELL INFUSION SOURCE CODE
RSTEM CELL INFUSION DONOR TYPE
RSTEM CELL TRANSPLANT CONDITIONING REGIMEN

ACUTE ONCOLOGY - CORE

To carry Acute Oncology details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RACUTE ONCOLOGY ASSESSMENT COMPLETED DATE
RORGANISATION SITE IDENTIFIER (OF ACUTE ONCOLOGY ASSESSMENT)
RACUTE ONCOLOGY ASSESSMENT LOCATION
RACUTE ONCOLOGY ASSESSMENT PATIENT PRESENTATION TYPE
Multiple occurrences of this item are permitted
RACUTE ONCOLOGY EPISODE OUTCOME

LABORATORY RESULTS - CORE

To carry laboratory result details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
MLABORATORY RESULT AUTHORISED DATE
MORGANISATION IDENTIFIER (OF LABORATORY RESULT)

LABORATORY RESULTS: GENERAL - CORE

To carry general laboratory result details.
One occurrence of this group is permitted per Core Laboratory Results.
M/R/OData Set Data Elements
RLACTATE DEHYDROGENASE LEVEL (PEAK AT DIAGNOSIS)
RBETA HUMAN CHORIONIC GONADOTROPIN (MAXIMUM AT DIAGNOSIS)
RALPHA FETOPROTEIN (MAXIMUM AT DIAGNOSIS)

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CANCER OUTCOMES AND SERVICES DATA SET - GYNAECOLOGICAL

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Gynaecological.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

SITE SPECIFIC STAGING - GYNAECOLOGICAL

To carry staging details for Gynaecological cancer.
One occurrence of this group is permitted per Core Site Specific Staging.
M/RData Set Data Elements
MFINAL FIGO STAGE

TREATMENT: SURGERY - GYNAECOLOGICAL

To carry surgery details for Gynaecological cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RCARE PROFESSIONAL SENIOR OPERATING SURGEON GRADE (CANCER)
RRESIDUAL DISEASE SIZE (GYNAECOLOGICAL CANCER)

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CANCER OUTCOMES AND SERVICES DATA SET - HAEMATOLOGICAL

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Haematological.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

CANCER CARE PLAN CHOICE - HAEMATOLOGICAL

One of the following Cancer Care Plan Sections MUST be provided per Core Cancer Care Plan
CHOICE 1 - CHRONIC MYELOID LEUKAEMIA (CML)
To carry cancer care plan details specific to Chronic Myeloid Leukaemia (CML) for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
MCHRONIC MYELOID LEUKAEMIA INDEX SCORE (SOKAL)
OR
CHOICE 2 - MYELODYSPLASIA
To carry cancer care plan details specific to Myelodysplasia for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
MREVISED INTERNATIONAL PROGNOSTIC SCORING SYSTEM SCORE
OR
CHOICE 3 - CHRONIC LYMPHOID LEUKAEMIA (CLL)
To carry cancer care plan details specific to Chronic Lymphoid Leukaemia (CLL) for Haematological cancer. 
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
MSPLENOMEGALY INDICATOR
OR
CHOICE 4 - FOLLICULAR LYMPHOMA
To carry cancer care plan details specific to Follicular Lymphoma for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
RNUMBER OF ABNORMAL NODAL AREAS 
RFOLLICULAR LYMPHOMA INTERNATIONAL PROGNOSTIC INDEX 2 SCORE
OR
CHOICE 5 - DIFFUSE LARGE B-CELL LYMPHOMA (DLBCL)
To carry cancer care plan details specific to Diffuse Large B-Cell Lymphoma (DLBCL) for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
RNUMBER OF ABNORMAL NODAL AREAS 
RPRIMARY EXTRANODAL CANCER SITE
RNUMBER OF EXTRANODAL SITES CODE
RREVISED INTERNATIONAL PROGNOSTIC INDEX SCORE
OR
CHOICE 6 - HODGKIN LYMPHOMA
To carry cancer care plan details specific to Hodgkin Lymphoma for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
RNUMBER OF ABNORMAL NODAL AREAS 
RPRIMARY EXTRANODAL CANCER SITE
RHASENCLEVER INDEX SCORE
OR
CHOICE 7 - ACUTE LYMPHOBLASTIC LEUKAEMIA (ALL)
To carry cancer care plan details specific to Acute Lymphoblastic Leukaemia (ALL) for Haematological cancer.
One occurrence of this group is required per Core Cancer Care Plan if selected as the choice.
M/RData Set Data Elements
MEXTRAMEDULLARY DISEASE SITE
Multiple occurrences of this item are permitted

SITE SPECIFIC STAGING - HAEMATOLOGICAL

One of the following Site Specific Staging Sections MUST be provided per Core Site Specific Staging
CHOICE 1 - ANN ARBOR
To carry Ann Arbor site specific staging details for various haematological diseases for Haematological cancer.
One occurrence of this group is required per Core Site Specific Staging if selected as the choice.
M/RData Set Data Elements
MANN ARBOR STAGE
OR
CHOICE 2 - CHRONIC LYMPHOID LEUKAEMIA (CLL)
To carry Chronic Lymphoid Leukaemia (CLL) staging details for Haematological cancer.
One occurrence of this group is required per Core Site Specific Staging if selected as the choice.
M/RData Set Data Elements
MBINET STAGE
OR
CHOICE 3 - MYELOMA
To carry Myeloma staging details for Haematological cancer.
One occurrence of this group is permitted per Core Site Specific Staging if selected as the choice.
M/RData Set Data Elements
MREVISED INTERNATIONAL STAGING SYSTEM STAGE FOR MULTIPLE MYELOMA
OR
CHOICE 4 - NON HODGKIN LYMPHOMA (NHL)
To carry Non Hodgkin Lymphoma (NHL) staging details for Haematological cancer.
One occurrence of this group is required per Core Site Specific Staging if selected as the choice.
M/RData Set Data Elements
MMURPHY ST JUDE STAGE

ANN ARBOR: EXTENSIONS - HAEMATOLOGICAL

To carry supporting Ann Arbor staging details for various haematological diseases as specified.
One occurrence of this group is permitted.
M/RData Set Data Elements
RANN ARBOR SYMPTOMS INDICATION CODE
RANN ARBOR EXTRANODALITY INDICATION CODE
RANN ARBOR BULKY DISEASE INDICATION CODE
RANN ARBOR SPLENIC INDICATION CODE

LABORATORY RESULTS CHOICE - HAEMATOLOGICAL

One occurrence of this group is required per Core Laboratory Results
One of the following Laboratory Results MUST be provided per Core Laboratory Results
CHOICE 1 - VARIOUS HAEMATOLOGICAL DISEASES
To carry laboratory results for various haematological diseases for Haematological cancer.
One occurrence of this group is required per Core Laboratory Results if selected as the choice.
M/RData Set Data Elements
REUROPEAN LEUKAEMIA NET GENETIC RISK CODE
RWHITE BLOOD CELL COUNT (HIGHEST PRETREATMENT)
OR
CHOICE 2 - VARIOUS HAEMATOLOGICAL DISEASES: CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA).
To carry laboratory results for various haematological diseases for Children Teenagers and Young Adults (CTYA) Haematological cancer.
One occurrence of this group is required per Core Laboratory Results if selected as the choice.
M/RData Set Data Elements
RBONE MARROW BLAST CELLS PERCENTAGE
RCYTOGENETIC FINDINGS COMMENT
OR
CHOICE 3 - PAEDIATRIC MYELODYSPLASIA
To carry Paediatric Myelodysplasia laboratory result details for Haematological cancer.
One occurrence of this group is required per Core Laboratory Results if selected as the choice.
M/RData Set Data Elements
RCELLULARITY PERCENTAGE
RDIEPOXYBUTANE TEST RESULT
RDYSPLASTIC HAEMOPOIESIS TYPE
OR
CHOICE 4 - ACUTE LYMPHOBLASTIC LEUKAEMIA (ALL) - RESPONSE
To carry Acute Lymphoblastic Leukaemia (ALL) Response laboratory result details for Haematological cancer.
One occurrence of this group is required per Core Laboratory Results if selected as the choice.
M/RData Set Data Elements
MLEUKAEMIC CELLS PRESENT POST MINIMAL RESIDUAL DISEASE INDUCTION PERCENTAGE

DIAGNOSIS CHOICE - HAEMATOLOGICAL

One of the following can be provided per Core Diagnosis
CHOICE 1 - MIXED PHENOTYPE ACUTE LEUKAEMIA (MPAL)
To carry diagnostic Mixed Phenotype Acute Leukaemia (MPAL) details for Haematological cancer.
One occurrence of this group is required per Core Diagnosis if selected as the choice.
M/RData Set Data Elements
RMIXED PHENOTYPE ACUTE LEUKAEMIA SYMPTOMS (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
REUROPEAN GROUP FOR THE IMMUNOLOGICAL CLASSIFICATION OF LEUKAEMIA SCORING SYSTEM SCORE
OR
CHOICE 2 - ACUTE MYELOID LEUKAEMIA (AML)
To carry diagnostic Acute Myeloid Leukaemia (AML) details for Haematological cancer.
One occurrence of this group is required per Core Diagnosis if selected as the choice.
M/RData Set Data Elements
RFRENCH AMERICAN BRITISH CLASSIFICATION (ACUTE MYELOID LEUKAEMIA)
RCYTOGENETIC RISK GROUP (PAEDIATRIC MOLECULAR GENETIC ABNORMALITIES)
RACUTE MYELOID LEUKAEMIA RISK FACTORS (AT DIAGNOSIS)
OR
CHOICE 3 - PAEDIATRIC MYELODYSPLASIA
To carry diagnostic Paediatric Myelodysplasia details for Haematological cancer.
One occurrence of this group is required per Core Diagnosis if selected as the choice.
M/RData Set Data Elements
RPAEDIATRIC MYELODYSPLASIA CLINICAL FINDINGS (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
RUNDERLYING DISEASE ASSOCIATED WITH MYELODYSPLASIA (AT DIAGNOSIS)
Multiple occurrences of this item are permitted
RCONGENITAL ANOMALIES COMMENT
ROTHER MYELODYSPLASIA SYMPTOMS AT DIAGNOSIS
Multiple occurrences of this item are permitted

ACUTE LEUKAEMIAS - HAEMATOLOGICAL

To carry treatment details for Acute Leukaemias for Haematological cancer.
One occurrence of this group is permitted per Core Treatment.
M/RData Set Data Elements
RPRIMARY INDUCTION CHEMOTHERAPY FAILURE INDICATOR

MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED THERAPY: NON HODGKIN LYMPHOMA - HAEMATOLOGICAL

To carry Molecular and Biomarkers Result details for Non Hodgkin Lymphoma (NML) for Haematological cancer.
One occurrence of this group is permitted per Core Molecular and Biomarkers - Somatic Testing for Targeted Therapy and Personalised Medicine.
M/RData Set Data Elements
MALK GENE FUSION STATUS (ANAPLASTIC LARGE CELL LYMPHOMA)

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CANCER OUTCOMES AND SERVICES DATA SET - HEAD AND NECK

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Head and Neck.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

TREATMENT: SURGERY - HEAD AND NECK

To carry surgery details for Head and Neck cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RSURGICAL ACCESS TYPE (HEAD AND NECK CANCER)
ROTHER SURGICAL ACCESS TYPE (HEAD AND NECK CANCER)

PRE TREATMENT ASSESSMENT - HEAD AND NECK

To carry pre treatment assessment details for Head and Neck cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RCANCER DENTAL ASSESSMENT DATE
RCARE CONTACT DATE (DIETITIAN INITIAL)
RCARE CONTACT DATE (SPEECH AND LANGUAGE THERAPIST INITIAL)

POST TREATMENT ASSESSMENT - HEAD AND NECK

To carry post treatment assessment details for Head and Neck cancer.
Multiple occurrences of this group are permitted.
M/RData Set Data Elements
RCLINICAL STATUS ASSESSMENT DATE (CANCER)
RPRIMARY TUMOUR STATUS
RNODAL STATUS
RMETASTATIC STATUS
RSPEECH AND LANGUAGE ASSESSMENT DATE

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CANCER OUTCOMES AND SERVICES DATA SET - LIVER

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Liver.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

DIAGNOSIS - LIVER

To carry diagnostic details for Liver cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RLIVER CANCER SURVEILLANCE SCAN INDICATOR
RLIVER CIRRHOSIS TYPE
RLIVER CIRRHOSIS CAUSE TYPE
Multiple occurrences of this item are permitted

DIAGNOSIS: CHOLANGIOCARCINOMA - LIVER

To carry diagnostic details for Cholangiocarcinoma for Liver cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
MCHOLANGIOCARCINOMA PRESENCE CATEGORY

SITE SPECIFIC STAGING - LIVER

To carry site specific staging details for Liver cancer.
One occurrence of this group is permitted per Core Site Specific Staging.
M/RData Set Data Elements
MBARCELONA CLINIC LIVER CANCER STAGE

TREATMENT AND PROGNOSTIC INDICATORS - LIVER

To carry treatment and prognostic details for Liver cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RPORTAL VEIN INVASION INDICATION CODE
RUNITED KINGDOM MODEL FOR END-STAGE LIVER DISEASE SCORE
RCHILD PUGH SCORE

TREATMENT - LIVER

To carry other procedure details for Liver Metastasis and Liver Hepatocellular Carcinoma (HCC) for Liver cancer.
One occurrence of this group is permitted per Core Treatment.
M/RData Set Data Elements
RABLATIVE THERAPY TYPE
RLIVER TRANSARTERIAL EMBOLISATION MATERIAL INJECTION TYPE

TRANSPLANTATION - LIVER

To carry liver transplantation details for Liver cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RLIVER TRANSPLANT WAITING LIST INDICATOR

TREATMENT: SURGERY - LIVER

To carry surgery details for Liver cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RLIVER SURGERY PERFORMED TYPE

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CANCER OUTCOMES AND SERVICES DATA SET - LUNG

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Lung.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

DIAGNOSTIC PROCEDURES CHOICE - LUNG

One of the following may be provided per Diagnostic Procedure
CHOICE 1 - TRANSTHORACIC ECHOCARDIOGRAM
To carry Transthoracic Echocardiogram details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer.
One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice.
M/RData Set Data Elements
MTRANSTHORACIC ECHOCARDIOGRAM TEST RESULT
OR
CHOICE 2 - DIFFUSION CAPACITY
To carry Diffusion Capacity details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer.
One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice.
M/RData Set Data Elements
MDIFFUSION CAPACITY TEST RESULT
OR
CHOICE 3 - FEV1
To carry FEV1 details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer.
One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice.
M/RData Set Data Elements
RFORCED EXPIRATORY VOLUME IN 1 SECOND (PERCENTAGE)
RFORCED EXPIRATORY VOLUME IN 1 SECOND (ABSOLUTE AMOUNT)
OR
CHOICE 4 - CARDIOPULMONARY TEST
To carry Cardiopulmonary Test details required for the National Lung Cancer Audit (NLCA) for Lung cancer.
One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice.
M/RData Set Data Elements
RCARDIOPULMONARY EXERCISE TEST TYPE
RCARDIOPULMONARY EXERCISE TEST RESULT
OR
CHOICE 5 - BRONCHOSCOPY
To carry bronchoscopy details for Lung cancer.
One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice.
M/RData Set Data Elements
MBRONCHOSCOPY PERFORMED TYPE

MEDIASTINAL SAMPLING - LUNG

To carry Mediastinal Sampling details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer.
One occurrence of this group is permitted.
M/RData Set Data Elements
RMEDIASTINAL SAMPLING INDICATOR

MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED MEDICINE - LUNG

To carry Molecular details for Lung cancer.
One occurrence of this group is permitted per Core - Molecular and Biomarkers - Somatic Testing for Targeted Therapy and Personalised Medicine.
M/RData Set Data Elements
REPIDERMAL GROWTH FACTOR RECEPTOR MUTATIONAL STATUS
RALK GENE FUSION STATUS (LUNG CANCER)
RROS1 FUSION STATUS
RPD-L1 EXPRESSION PERCENTAGE

TREATMENT - SURGERY: LUNG CANCER CONSULTANT OUTCOME PUBLICATION (LCCOP) - LUNG

To carry surgery details for the Lung Cancer Consultant Outcome Publication (LCCOP) for Lung cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RREGIONAL ANAESTHETIC TECHNIQUE (CANCER)

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CANCER OUTCOMES AND SERVICES DATA SET - PATHOLOGY

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Pathology.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory, Required or Optional (M/R/O) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

SUBMISSION HEADER

To carry the submission header details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MCOSDS SUBMISSION IDENTIFIER
MORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
MCOSDS SUBMISSION RECORD COUNT
MREPORTING PERIOD START DATE
MREPORTING PERIOD END DATE
MDATE AND TIME DATA SET CREATED

RECORD IDENTIFIER

To carry the record identifier details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MCOSDS UNIQUE IDENTIFIER

LINKAGE IDENTIFIER CHOICE - CORE - PATHOLOGY

One of the following Core Linkage sections MUST be provided
CHOICE 1 - NHS NUMBER
To carry patient identity details for linkage.
One occurrence of this group is required.
M/R/OData Set Data Elements
MNHS NUMBER
OR
CHOICE 2 - LOCAL PATIENT IDENTIFIER
To carry patient identity details for linkage.
One occurrence of this group is required.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)

LINKAGE IDENTIFIER - CORE - PATHOLOGY

To carry patient identity details for linkage.
One occurrence of this group is required.
M/R/OData Set Data Elements
MNHS NUMBER STATUS INDICATOR CODE
MPERSON BIRTH DATE
MORGANISATION IDENTIFIER (CODE OF PROVIDER)

DEMOGRAPHICS - CORE - PATHOLOGY

To carry patient demographic details.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RPERSON FAMILY NAME
RPERSON GIVEN NAME
RPATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED
or
PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS UNSTRUCTURED
RPOSTCODE OF USUAL ADDRESS (AT DIAGNOSIS)
RPERSON STATED GENDER CODE

PATHOLOGY DETAILS - CORE - PATHOLOGY
PATHOLOGY DETAILS PART 1 - CORE - PATHOLOGY
 
To carry pathology details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
MINVESTIGATION RESULT DATE
MSERVICE REPORT IDENTIFIER
RPATHOLOGY OBSERVATION REPORT IDENTIFIER
RSERVICE REPORT STATUS
MPROFESSIONAL REGISTRATION ISSUER CODE (PATHOLOGY TEST REQUESTED BY)
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (PATHOLOGY TEST REQUESTED BY)
RORGANISATION SITE IDENTIFIER (OF PATHOLOGY TEST REQUEST)
RSAMPLE COLLECTION DATE
RSAMPLE RECEIPT DATE
RORGANISATION IDENTIFIER (OF AUTHORISING PATHOLOGIST)
MPROFESSIONAL REGISTRATION ISSUER CODE (PATHOLOGY REPORT AUTHORISED BY)
MPROFESSIONAL REGISTRATION ENTRY IDENTIFIER (PATHOLOGY REPORT AUTHORISED BY)
RCANCER SPECIMEN NATURE

TOPOGRAPHY/MORPHOLOGY - CORE - PATHOLOGY

To carry Topography/Morphology SNOMED pathology details.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
MSNOMED VERSION (PATHOLOGY)

TOPOGRAPHY/MORPHOLOGY CHOICE - CORE - PATHOLOGY

One of the following MUST be provided
CHOICE 1 - TOPOGRAPHY SNOMED
To carry pathology Topography SNOMED details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MTOPOGRAPHY (SNOMED PATHOLOGY)
Multiple occurrences of this item are permitted
OR
CHOICE 2 - MORPHOLOGY SNOMED
To carry pathology Morphology SNOMED details.
One occurrence of this group is required.
M/R/OData Set Data Elements
MMORPHOLOGY (SNOMED PATHOLOGY)
Multiple occurrences of this item are permitted

PATHOLOGY DETAILS - CORE - PATHOLOGY
PATHOLOGY DETAILS PART 2 CORE - PATHOLOGY

To carry pathology details.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
RDIAGNOSIS (ICD PATHOLOGICAL)
Multiple occurrences of this item are permitted
RTUMOUR LATERALITY (PATHOLOGICAL)
RPATHOLOGY INVESTIGATION TYPE
RPATHOLOGY REPORT TEXT
RLESION SIZE (PATHOLOGICAL)
RGRADE OF DIFFERENTIATION (PATHOLOGICAL)
RCANCER VASCULAR OR LYMPHATIC INVASION
REXCISION MARGIN INDICATION CODE
RSYNCHRONOUS TUMOUR INDICATOR
RNUMBER OF NODES EXAMINED
RNUMBER OF NODES POSITIVE
RTNM CODING EDITION
RTNM VERSION NUMBER (PATHOLOGICAL)
RT CATEGORY (PATHOLOGICAL)
RN CATEGORY (PATHOLOGICAL)
RM CATEGORY (PATHOLOGICAL)
RTNM STAGE GROUPING (PATHOLOGICAL)
RNEOADJUVANT THERAPY INDICATOR
RKI-67 STAINING PERFORMED INDICATION CODE
RKI-67 PERCENTAGE RESULT
RMLH1 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE
RPMS2 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE
RMSH2 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE
RMSH6 IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE
RMICROSATELLITE INSTABILITY TESTING RESULT

BREAST - PATHOLOGY

To carry pathology details for Breast cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RMULTIFOCAL TUMOUR INDICATOR (BREAST)
RDUCTAL CARCINOMA IN SITU GRADE
RNON INVASIVE TUMOUR SIZE
RWHOLE TUMOUR SIZE
RMETASTASIS EXTENT CODE
RDISTANCE TO MARGIN
OALLRED SCORE (ESTROGEN RECEPTOR)
RESTROGEN RECEPTOR STATUS
OALLRED SCORE (PROGESTERONE RECEPTOR)
OBREAST PROGESTERONE RECEPTOR STATUS
RHUMAN EPIDERMAL GROWTH FACTOR RECEPTOR STATUS (BREAST)
RHUMAN EPIDERMAL GROWTH FACTOR IN SITU HYBRIDISATION RECEPTOR STATUS (BREAST)
RCYTOLOGY RESULT CODE (BREAST)
RCYTOLOGY RESULT CODE (NODE)
RNEEDLE CORE BIOPSY RESULT CODE (BREAST)
RNEEDLE CORE BIOPSY RESULT CODE (AXILLARY LYMPH NODE)

CENTRAL NERVOUS SYSTEM (CNS) - PATHOLOGY

To carry pathology details for Central Nervous System (CNS) cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RMOLECULAR DIAGNOSTIC CODE
Multiple occurrences of this item are permitted
RHORMONE EXPRESSION TYPE
Multiple occurrences of this item are permitted

COLORECTAL - PATHOLOGY

To carry pathology details for Colorectal cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RMARGIN INVOLVED INDICATION CODE (COLORECTAL PROXIMAL OR DISTAL RESECTION MARGIN)
RDISTANCE TO CLOSEST NON PERITONEALISED RESECTION MARGIN
RPLANE OF SURGICAL EXCISION INDICATOR
RDISTANCE FROM DENTATE LINE
RDISTANCE BEYOND MUSCULARIS PROPRIA
RPREOPERATIVE THERAPY RESPONSE TYPE
RMARGIN INVOLVED INDICATION CODE (CIRCUMFERENTIAL MARGIN)

CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA): RENAL PATHOLOGY (PAEDIATRIC KIDNEY) - PATHOLOGY

To carry renal (paediatric kidney) pathology details for Children, Teenagers, and Young Adults (CTYA) cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RTUMOUR RUPTURE INDICATOR (PATHOLOGICAL)
RANAPLASTIC NEPHROBLASTOMA TYPE
RTUMOUR INVASION INDICATOR (PERIRENAL FAT)
RTUMOUR INVASION INDICATOR (RENAL SINUS)
RRENAL VEIN TUMOUR INDICATOR (PAEDIATRIC KIDNEY)
RVIABLE TUMOUR EVIDENCE AT RESECTION MARGIN
RINTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY TUMOUR LOCAL STAGE

GYNAECOLOGICAL - PATHOLOGY

To carry pathology details for Gynaecological cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RMICROSCOPIC INVOLVEMENT INDICATION CODE (FALLOPIAN TUBE)
RMICROSCOPIC INVOLVEMENT INDICATION CODE (OVARIAN)
RMICROSCOPIC INVOLVEMENT INDICATION CODE (UTERINE SEROSA)
ROMENTUM INVOLVEMENT INDICATION CODE

GYNAECOLOGICAL: FALLOPIAN TUBE, OVARIAN EPITHELIAL AND PRIMARY PERITONEAL - PATHOLOGY

To carry pathology details for Gynaecological cancer for Fallopian Tube, Ovarian Epithelial and Primary Peritoneal.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RGYNAECOLOGICIAL CAPSULE STATUS
ROVARY SURFACE INVOLVEMENT INDICATOR
RPERITONEAL CYTOLOGY RESULT CODE
RPERITONEAL INVOLVEMENT INDICATION CODE

GYNAECOLOGICAL: ENDOMETRIAL - PATHOLOGY

To carry pathology details for Gynaecological cancer for Endometrial.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RMICROSCOPIC INVOLVEMENT INDICATOR (CERVICAL STROMA)
RMYOMETRIAL INVASION IDENTIFICATION CODE
RMICROSCOPIC INVOLVEMENT INDICATOR (PARAMETRIUM)
RPERITONEAL WASHINGS IDENTIFIED
RPERITONEAL INVOLVEMENT INDICATOR (ENDOMETRIAL CANCER)
RGYNAECOLOGICIAL CANCER SITE OF PERITONEAL INVOLVEMENT

GYNAECOLOGICAL: CERVICAL - PATHOLOGY

To carry pathology details for Gynaecological cancer for Cervical.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RCERVICAL GLANDULAR INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE
RCERVICAL INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE
RSMILE INDICATION CODE
RRESECTION MARGIN INVOLVEMENT INDICATOR
RPARACERVICAL OR PARAMETRIAL INVOLVEMENT INDICATOR
RUNINVOLVED CERVICAL STROMA THICKNESS
RMICROSCOPIC INVOLVEMENT INDICATOR (VAGINAL)
RINVASIVE THICKNESS

GYNAECOLOGICAL: NODES - PATHOLOGY

To carry pathology details for Gynaecological cancer for Nodes.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RNUMBER OF NODES EXAMINED (PARA-AORTIC)
RNUMBER OF NODES POSITIVE (PARA-AORTIC)
RNUMBER OF NODES EXAMINED (PELVIC)
RNUMBER OF NODES POSITIVE (PELVIC)
RNUMBER OF NODES EXAMINED (INGUINO-FEMORAL)
RNUMBER OF NODES POSITIVE (INGUINO-FEMORAL)
REXTRANODAL SPREAD INDICATOR

HEAD AND NECK: VARIOUS - PATHOLOGY

To carry pathology details for various Head and Neck cancers.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RMAXIMUM DEPTH OF INVASION
RBONE INVASION INDICATION CODE
RCARTILAGE INVASION INDICATION CODE
RANATOMICAL SIDE (NECK DISSECTION)

HEAD AND NECK: SALIVARY - PATHOLOGY

To carry salivary pathology details for Head and Neck cancer.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
MMACROSCOPIC EXTRAGLANDULAR EXTENSION INDICATION CODE

HEAD AND NECK: GENERAL AND SALIVARY - PATHOLOGY

To carry general and salivary pathology details for Head and Neck cancer.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RANATOMICAL SIDE (POSITIVE NODES)
RLARGEST METASTASIS (LEFT NECK)
RLARGEST METASTASIS (RIGHT NECK)
REXTRACAPSULAR SPREAD INDICATION CODE

HEAD AND NECK: HUMAN PAPILLOMAVIRUS (HPV) - PATHOLOGY

To carry human papilloma virus pathology details for Head and Neck cancer.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RP16 IMMUNOHISTOCHEMISTRY TEST RESULT
RHUMAN PAPILLOMAVIRUS IN SITU HYBRIDISATION TEST RESULT

LUNG - PATHOLOGY

To carry pathology details for Lung cancer.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
REXTENT OF ATELECTASIS
REXTENT OF PLEURAL INVASION
RTUMOUR INVASION INDICATOR (PERICARDIUM)
RTUMOUR INVASION INDICATOR (DIAPHRAGM)
RTUMOUR INVASION INDICATOR (GREAT VESSELS)
RTUMOUR INVASION INDICATOR (HEART)
RMALIGNANT PLEURAL EFFUSION INDICATOR
RTUMOUR INVASION INDICATOR (MEDIASTINUM) 
RSATELLITE TUMOUR NODULES LOCATION

SARCOMA: BONE AND SOFT TISSUE - PATHOLOGY

To carry pathology details for Sarcoma for Bone and Soft Tissue.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RGENETIC CONFIRMATION INDICATOR

SARCOMA: BONE - PATHOLOGY

To carry pathology details for Sarcoma for Bone.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RSARCOMA TUMOUR BREACH IDENTIFIER
RTUMOUR NECROSIS PERCENTAGE

SARCOMA: SOFT TISSUE - PATHOLOGY

To carry pathology details for Sarcoma for Soft Tissue.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RSARCOMA TUMOUR DEPTH
RMITOTIC RATE (SARCOMA)

SKIN: BASAL CELL CARCINOMAS (BCC) - PATHOLOGY

To carry pathology details for Basal Cell Carcinoma (BCC) for skin cancer.
One occurrence of this group is required.
M/R/OData Set Data Elements
RSKIN CANCER LESION SPECIMEN IDENTIFIER
RPERINEURAL INVASION INDICATOR (SKIN)  
RLESION DIAMETER GREATER THAN 20MM INDICATION CODE

SKIN: SQUAMOUS CELL CARCINOMA (SCC) - PATHOLOGY

To carry pathology details for Squamous Cell Carcinoma (SCC) for skin cancer.
One occurrence of this group is required.
M/R/OData Set Data Elements
RSKIN CANCER LESION SPECIMEN IDENTIFIER
RPERINEURAL INVASION INDICATOR (SKIN)  
RLESION DIAMETER GREATER THAN 20MM INDICATION CODE
RCLARKS LEVEL IV INDICATION CODE
RLESION VERTICAL THICKNESS GREATER THAN 2MM INDICATION CODE

SKIN: MALIGNANT MELANOMA (MM) - PATHOLOGY

To carry pathology details for Malignant Melanoma (MM) for skin cancer.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RSKIN CANCER LESION SPECIMEN IDENTIFIER
RSKIN ULCERATION INDICATION CODE
RMITOTIC RATE (SKIN)
RMICROSATELLITE OR IN-TRANSIT METASTASIS INDICATION CODE
RTUMOUR REGRESSION INDICATION CODE (SKIN)
RBRESLOW THICKNESS
RTUMOUR INFILTRATING LYMPHOCYTE TYPE
RNUMBER OF SENTINEL NODES SAMPLED
RNUMBER OF SENTINEL NODES POSITIVE
RNUMBER OF NODES SAMPLED (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY)
RNUMBER OF NODES POSITIVE (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY)

UPPER GASTROINTESTINAL (GI): VARIOUS - PATHOLOGY

To carry pathology details for various Upper Gastrointestinal (GI) cancers.
One occurrence of this data group is permitted.
M/R/OData Set Data Elements
RNUMBER OF COLORECTAL METASTASES IN LIVER
RMARGIN INVOLVED INDICATION CODE (PROXIMAL OR DISTAL RESECTION MARGIN)
RMARGIN INVOLVED INDICATION CODE (CIRCUMFERENTIAL MARGIN)

UROLOGICAL: BLADDER - PATHOLOGY

To carry pathology details for Urological cancer for the bladder.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RDETRUSOR MUSCLE PRESENCE INDICATION CODE
RTUMOUR GRADE (UROLOGY)

UROLOGICAL: KIDNEY - PATHOLOGY

To carry pathology details for Urological cancer for the kidney.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RTUMOUR NECROSIS INDICATION CODE
RTUMOUR INVASION INDICATOR (PERINEPHRIC FAT)
RTUMOUR INVASION INDICATION CODE (DIRECT ADRENAL)
RRENAL VEIN TUMOUR THROMBUS INDICATION CODE (UROLOGICAL)
RTUMOUR INVASION INDICATOR (GEROTAS FASCIA)

UROLOGICAL: PENIS - PATHOLOGY

To carry pathology details for Urological cancer for the penis.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RTUMOUR INVASION INDICATOR (CORPUS SPONGIOSUM)
RTUMOUR INVASION INDICATOR (CORPUS CAVERNOSUM)
RTUMOUR INVASION INDICATOR (URETHRA OR PROSTATE)

UROLOGICAL: PROSTATE - PATHOLOGY

To carry pathology details for Urological cancer for prostate.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
RGLEASON GRADE (PRIMARY)
RGLEASON GRADE (SECONDARY)
RGLEASON GRADE (TERTIARY)
RPERINEURAL INVASION INDICATOR (UROLOGICAL)
RTURP TUMOUR PERCENTAGE

UROLOGICAL: TESTICULAR - PATHOLOGY

To carry pathology details for Urological cancer for testicular.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
MTUMOUR INVASION INDICATOR (RETE TESTIS)

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CANCER OUTCOMES AND SERVICES DATA SET - SARCOMA

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Sarcoma.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

DIAGNOSIS - SARCOMA

To carry diagnostic details for Bone and Soft Tissue for Sarcoma cancer.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RSARCOMA TUMOUR SITE (BONE)
RSARCOMA TUMOUR SUBSITE (BONE)
RSARCOMA TUMOUR SITE (SOFT TISSUE)
RSARCOMA TUMOUR SUBSITE (SOFT TISSUE)
RMULTIFOCAL OR SYNCHRONOUS TUMOUR INDICATOR

DIAGNOSIS CHOICE - SARCOMA

One of the following can be provided per Core Diagnosis
CHOICE 1 - RHABDOMYOSARCOMA AND OTHER SOFT TISSUE SARCOMAS
To carry diagnostic Rhabdomyosarcoma and other Soft Tissue Sarcoma details for Sarcoma cancer.
One occurrence of this group is required per Core Diagnosis if selected as the choice.
M/RData Set Data Elements
RINTERGROUP RHABDOMYOSARCOMA STUDY POST SURGICAL GROUP
RINTERGROUP RHABDOMYOSARCOMA STUDY POST SURGICAL GROUP DATE
RRHABDOMYOSARCOMA SITE PROGNOSIS CODE
OR
CHOICE 2 - EWINGS
To carry diagnostic Ewings details for Sarcoma cancer.
One occurrence of this group is required per Core Diagnosis if selected as the choice.
M/RData Set Data Elements
MTUMOUR VOLUME AT DIAGNOSIS CODE

LABORATORY RESULTS CHOICE - SARCOMA

One of the following can be provided per Core Laboratory Results
CHOICE 1 - RHABDOMYOSARCOMA AND OTHER SOFT TISSUE SARCOMAS
To carry Rhabdomyosarcoma and other Soft Tissue Sarcoma laboratory result details for Sarcoma cancer.
One occurrence of this group is required per Core Laboratory Results
if selected as the choice.
M/RData Set Data Elements
MCYTOGENETIC PRESENCE TYPE (RHABDOMYOSARCOMA)
OR
CHOICE 2 - EWINGS
To carry Ewings laboratory result details for Sarcoma cancer.
One occurrence of this group is required per Core Laboratory Results
if selected as the choice.
M/RData Set Data Elements
MCYTOGENETIC ANALYSIS CODE

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CANCER OUTCOMES AND SERVICES DATA SET - SKIN

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Skin.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

TREATMENT - SURGERY: BASAL CELL CARCINOMAS (BCC), SQUAMOUS CELL CARCINOMA (SCC), MALIGNANT MELANOMA (MM) - SKIN

To carry surgery details for Basal Cell Carcinoma (BCC), Squamous Cell Carcinoma (SCC) and Malignant Melanoma (MM) for Skin cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RCARE PROFESSIONAL OPERATING SURGEON TYPE (CANCER)
RMEMBER OF SPECIALIST MULTIDISCIPLINARY TEAM INDICATOR

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CANCER OUTCOMES AND SERVICES DATA SET - UPPER GASTROINTESTINAL

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Upper Gastrointestinal.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

TREATMENT - SURGERY: GENERAL - UPPER GASTROINTESTINAL (GI)

To carry surgery details for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
MPALLIATIVE TREATMENT REASON (UPPER GASTROINTESTINAL)

TREATMENT - SURGERY: OESO-GASTRIC - UPPER GASTROINTESTINAL (GI)

To carry surgery details for Oeso-Gastric for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
MPOST OPERATIVE TUMOUR SITE (UPPER GASTROINTESTINAL)

TREATMENT - SURGERY: ESODATA - UPPER GASTROINTESTINAL (GI)

To carry surgery details for the Esophageal Database (ESODATA) for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RINTERNATIONAL ESOPHAGEAL DATABASE SURGICAL COMPLICATIONS
Multiple occurrences of this item are permitted
ROESOPHAGOENTERIC LEAK SEVERITY TYPE
ROESOPHAGECTOMY OESOPHAGEAL CONDUIT NECROSIS FAILURE TYPE
RRECURRENT LARYNGEAL NERVE INJURY INVOLVEMENT TYPE
RCHYLE LEAK SEVERITY TYPE
RCALVIEN-DINDO CLASSIFICATION OF SURGICAL CLASSIFICATIONS
RADDITIONAL INTERNATIONAL ESOPHAGEAL DATABASE SURGICAL COMPLICATIONS
Multiple occurrences of this item are permitted

TREATMENT - SURGERY: OUTCOME MEASURES - UPPER GASTROINTESTINAL (GI)

To carry surgery outcome measures for the Esophageal Database (ESODATA) for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
RESCALATION IN LEVEL OF PATIENT CARE FOLLOWING OESOPHAGECTOMY INDICATOR
RBLOOD PRODUCTS REQUIRED FOLLOWING OESOPHAGECTOMY INDICATION CODE
RUNITS OF BLOOD TRANSFUSED FOLLOWING OESOPHAGECTOMY

TREATMENT - SURGERY: OESOPHAGECTOMY - UPPER GASTROINTESTINAL (GI)

To carry surgery details for the Oesophagectomy for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
ROESOPHAGECTOMY SURGICAL APPROACH TYPE
ROPEN OESOPHAGECTOMY SURGICAL APPROACH TYPE
RMINIMALLY INVASIVE OESOPHAGECTOMY SURGICAL APPROACH TYPE
ROESOPHAGECTOMY ANASTOMOSIS TYPE
ROESOPHAGECTOMY OESOPHAGEAL CONDUIT TYPE
ROESOPHAGECTOMY NECK DISSECTION INDICATOR

TREATMENT - SURGERY: LIVER CHOLANGIOCARCINOMA AND PANCREATIC - UPPER GASTROINTESTINAL (GI)

To carry surgery details for Liver Cholangiocarcinoma and Pancreatic for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
MSURGICAL PALLIATION TYPE

TREATMENT - SURGERY: ENDOSCOPIC OR RADIOLOGICAL PROCEDURES (PANCREATIC AND OESO-GASTRIC) - UPPER GASTROINTESTINAL (GI)

To carry surgery details for endoscopic and radiological procedures for Pancreatic and Oeso-Gastric for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
MENDOSCOPIC PROCEDURE TYPE
Multiple occurrences of this item are permitted

TREATMENT - SURGERY: ENDOSCOPIC OR RADIOLOGICAL PROCEDURES (MAIN) - UPPER GASTROINTESTINAL (GI)

To carry surgery details for endoscopic and radiological procedures for Upper Gastrointestinal (GI) cancer.
One occurrence of this group is permitted per Core Treatment Surgery.
M/RData Set Data Elements
MENDOSCOPIC OR RADIOLOGICAL COMPLICATION TYPE
Multiple occurrences of this item are permitted

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CANCER OUTCOMES AND SERVICES DATA SET - UROLOGICAL

Change to Data Set: Changed Description

Cancer Outcomes and Services Data Set Overview

Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

For further information please contact: COSD@phe.gov.uk.

For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Urological.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button. 

The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

DIAGNOSTIC PROCEDURES: PROSTATE - UROLOGICAL

To carry cancer diagnostic procedure details for Urological cancer for the prostate.
One occurrence of this group is permitted per Core Diagnostic Procedures.
M/RData Set Data Elements
MPRETREATMENT PROSTATE BIOPSY TECHNIQUE TYPE
MBIOPSY ANAESTHETIC TYPE

DIAGNOSIS: PROSTATE - UROLOGICAL

To carry the diagnosis details for Urological cancer for the prostate.
One occurrence of this group is permitted per Core Diagnosis.
M/RData Set Data Elements
RMULTIPARAMETRIC MRI SCAN INDICATOR
RMRI ULTRASOUND FUSION GUIDED BIOPSY INDICATOR
RPROSTATE SPECIFIC ANTIGEN (DIAGNOSIS)

CANCER CARE PLAN - UROLOGICAL

To carry cancer care plan details for Urological cancer.
One occurrence of this group is permitted per Core Cancer Care Plan.
M/RData Set Data Elements
RESTIMATED GLOMERULAR FILTRATION RATE
RHYDRONEPHROSIS CODE
RS CATEGORY CODE

LABORATORY RESULTS - UROLOGICAL

To carry Laboratory Result details for Urological cancer.
One occurrence of this group is permitted per Core Laboratory Results.
M/RData Set Data Elements
RS CATEGORY (ALPHA FETOPROTEIN)
RS CATEGORY (HUMAN CHORIONIC GONADOTROPIN)
RS CATEGORY (LACTATE DEHYDROGENASE)
RLACTATE DEHYDROGENASE LEVEL (NORMAL UPPER LIMIT)

STAGING: TESTICULAR - UROLOGICAL

To carry staging details for Urological cancer for testicular.
One occurrence of this group is permitted per Core Site Specific Staging
.
M/RData Set Data Elements
RSTAGE GROUPING (TESTICULAR CANCER)
REXTENT OF METASTATIC SPREAD
Multiple occurrences of this item are permitted
RLUNG METASTASES SUB-STAGE GROUPING

TREATMENT: BLADDER CHOICE - UROLOGICAL

One of the following can be provided per Urological Treatment
CHOICE 1 - INTRAVESICAL CHEMOTHERAPY
To carry treatment details for Urological cancer for the bladder.
One occurrence of this group is required per Core Treatment if selected as the choice.
M/RData Set Data Elements
MINTRAVESICAL CHEMOTHERAPY RECEIVED INDICATOR
OR
CHOICE 2 - INTRAVESICAL IMMUNOTHERAPY
To carry treatment details for Urological cancer for the bladder.
One occurrence of this group is required per Core Treatment if selected as the choice.
M/RData Set Data Elements
MINTRAVESICAL IMMUNOTHERAPY RECEIVED INDICATOR

TREATMENT: PROSTATE - UROLOGICAL

To carry cancer treatment details for Urological cancer for the prostate.
One occurrence of this group is required per Core Treatment.
M/RData Set Data Elements
RPROSTATE NERVE SPARING SURGERY TYPE
RRADICAL PROSTATECTOMY MARGIN STATUS

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COMMUNITY SERVICES DATA SET

Change to Data Set: Changed Description

Community Services Data Set Overview

Due to the rapidly changing situation with Covid-19 for both providers and NHS Digital, the transition from Community Services Data Set v1.Due to Covid-19, the transition from Community Services Data Set v1.0 to v1.5 has been postponed until 1 July 2020.5 was postponed until 1 July 2020.

July 2020 data will start being submitted from 1 August 2020

For further information please contact: enquiries@nhsdigital.nhs.uk.

For a "Full Screen" view, click Community Services Data Set.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc.) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

For guidance on the Data Set constraints, see the Community Services Data Set Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

SUBMISSION IDENTIFIER

M/R/OData Set Data Elements
MDATA SET VERSION NUMBER
MORGANISATION IDENTIFIER (CODE OF PROVIDER)
MORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
MPRIMARY DATA COLLECTION SYSTEM IN USE
MREPORTING PERIOD START DATE
MREPORTING PERIOD END DATE
MDATE AND TIME DATA SET CREATED

PATIENT DEMOGRAPHICS

Master Patient Index and Risk Indicators:
To carry the personal details of the patient and the associated mother's NHS number (where applicable).
One occurrence of this group is required for each patient.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER)
RORGANISATION IDENTIFIER (RESIDENCE RESPONSIBILITY)
RORGANISATION IDENTIFIER (EDUCATIONAL ESTABLISHMENT)
RNHS NUMBER
RNHS NUMBER STATUS INDICATOR CODE
RPERSON BIRTH DATE
RPOSTCODE OF USUAL ADDRESS
RPERSON STATED GENDER CODE
RETHNIC CATEGORY
RLANGUAGE CODE (PREFERRED)
RPERSON RELATIONSHIP (MAIN CARER)
RHEALTH VISITOR FIRST ANTENATAL VISIT DATE
RLOOKED AFTER CHILD INDICATOR
RSAFEGUARDING VULNERABILITY FACTORS INDICATOR
RCONSTANT SUPERVISION AND CARE REQUIRED DUE TO DISABILITY INDICATOR
REDUCATIONAL ASSESSMENT OUTCOME
RPREFERRED DEATH LOCATION DISCUSSED INDICATOR
RPERSON AT RISK OF UNEXPECTED DEATH INDICATOR
RDEATH LOCATION TYPE CODE (PREFERRED)
RPERSON DEATH DATE
RDEATH LOCATION TYPE CODE (ACTUAL)
RDEATH NOT AT PREFERRED LOCATION REASON
RNHS NUMBER (MOTHER)
RNHS NUMBER STATUS INDICATOR CODE (MOTHER)

GP Practice Registration:
To carry details of the GP Practice Registration of the patient.
One occurrence of this group is required for each change of GP Practice Registration.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MGENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION)
RSTART DATE (GMP PATIENT REGISTRATION)
REND DATE (GMP PATIENT REGISTRATION)
RORGANISATION IDENTIFIER (GP PRACTICE RESPONSIBILITY)

Accommodation Type:
To carry details of the type of accommodation for the patient.
One occurrence of this group is permitted for each accommodation status.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MACCOMMODATION STATUS CODE
RACCOMMODATION STATUS RECORDED DATE

Care Plan Type:
To carry details of Care Plans created for a patient by the organisation.
One occurrence of this group is permitted for each Care Plan created for the patient.
M/R/OData Set Data Elements
MCARE PLAN IDENTIFIER
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MCARE PLAN TYPE (COMMUNITY CARE)
MCARE PLAN CREATION DATE
RCARE PLAN CREATION TIME
RCARE PLAN LAST UPDATED DATE
RCARE PLAN LAST UPDATED TIME
RCARE PLAN IMPLEMENTATION DATE

Care Plan Agreement:
To carry details of any agreements to a Care Plan by a patient, team or organisation.
One occurrence of this group is permitted for each agreement of a Care Plan.
M/R/OData Set Data Elements
MCARE PLAN IDENTIFIER
MCARE PLAN AGREED BY
RCARE PLAN AGREED DATE
RCARE PLAN AGREED TIME

Social and Personal Circumstances:
To carry details of social and personal circumstances of a patient.
One occurrence of this group is permitted for each social and personal circumstance recorded.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSOCIAL AND PERSONAL CIRCUMSTANCE (SNOMED CT)
MSOCIAL AND PERSONAL CIRCUMSTANCE RECORDED DATE

Employment Status:
To carry details of the employment status of the patient.
One occurrence of this group is permitted for each employment status.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MEMPLOYMENT STATUS
REMPLOYMENT STATUS RECORDED DATE
RWEEKLY HOURS WORKED

REFERRALS

Service or Team Referral:
To carry details of the Service or Team referral that the patient is subject to.
One occurrence of this group is permitted for each referral.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
MREFERRAL REQUEST RECEIVED DATE
RREFERRAL REQUEST RECEIVED TIME
ONHS SERVICE AGREEMENT LINE NUMBER
RSOURCE OF REFERRAL FOR COMMUNITY
RORGANISATION IDENTIFIER (REFERRING)
RREFERRING CARE PROFESSIONAL STAFF GROUP (MENTAL HEALTH AND COMMUNITY CARE)
RPRIORITY TYPE CODE
RPRIMARY REASON FOR REFERRAL (COMMUNITY CARE)
RSERVICE DISCHARGE DATE
RDISCHARGE LETTER ISSUED DATE (MENTAL HEALTH AND COMMUNITY CARE)

Service or Team Type Referred To:
To carry details of the Service or Team that the patient has been referred to.
One occurrence of this group is permitted for each service or team that a patient has been referred to.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
RCARE PROFESSIONAL TEAM LOCAL IDENTIFIER
MSERVICE OR TEAM TYPE REFERRED TO (COMMUNITY CARE)
RREFERRAL CLOSURE DATE
RREFERRAL REJECTION DATE
RREFERRAL CLOSURE REASON
RREFERRAL REJECTION REASON

Other Reason for Referral:
To carry details of additional reasons why a patient has been referred to a specific service.
One occurrence of this group is permitted for each additional referral reason.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MOTHER REASON FOR REFERRAL (COMMUNITY CARE)

Referral To Treatment (RTT):
To carry Referral to Treatment details for the patient referral.
One occurrence of this group is permitted for each change in Referral To Treatment Period Status.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
RUNIQUE BOOKING REFERENCE NUMBER (CONVERTED)
RPATIENT PATHWAY IDENTIFIER
RORGANISATION IDENTIFIER (PATIENT PATHWAY IDENTIFIER ISSUER)
RWAITING TIME MEASUREMENT TYPE
RREFERRAL TO TREATMENT PERIOD START DATE
RREFERRAL TO TREATMENT PERIOD START TIME
RREFERRAL TO TREATMENT PERIOD END DATE
RREFERRAL TO TREATMENT PERIOD END TIME
RREFERRAL TO TREATMENT PERIOD STATUS

Onward Referral:
To carry details of any onward referral of the patient which has taken place.
One occurrence of this group is permitted for each onward referral.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MONWARD REFERRAL DATE
RONWARD REFERRAL REASON
RORGANISATION IDENTIFIER (RECEIVING)

CARE CONTACT AND ACTIVITIES

Care Contact:
To carry details of any contacts with a patient which have taken place as result of a referral.
One occurrence of this group is permitted for each Care Contact.
M/R/OData Set Data Elements
MCARE CONTACT IDENTIFIER
MSERVICE REQUEST IDENTIFIER
RCARE PROFESSIONAL TEAM LOCAL IDENTIFIER
MCARE CONTACT DATE
RCARE CONTACT TIME
RORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
RADMINISTRATIVE CATEGORY CODE
RCLINICAL CONTACT DURATION OF CARE CONTACT
RCONSULTATION TYPE
RCARE CONTACT SUBJECT
RCONSULTATION MEDIUM USED
RACTIVITY LOCATION TYPE CODE
RORGANISATION SITE IDENTIFIER (OF TREATMENT)
RGROUP THERAPY INDICATOR
RATTENDED OR DID NOT ATTEND CODE
REARLIEST REASONABLE OFFER DATE
REARLIEST CLINICALLY APPROPRIATE DATE
RCARE CONTACT CANCELLATION DATE
RCARE CONTACT CANCELLATION REASON
RREPLACEMENT APPOINTMENT DATE OFFERED
RREPLACEMENT APPOINTMENT BOOKED DATE

Care Activity:
To carry details of any activities which have taken place as part of a contact with a patient.
One occurrence of this group is permitted for each Care Activity.
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCARE CONTACT IDENTIFIER
MCOMMUNITY CARE ACTIVITY TYPE
RCARE PROFESSIONAL LOCAL IDENTIFIER
RCLINICAL CONTACT DURATION OF CARE ACTIVITY
RPROCEDURE SCHEME IN USE
RCODED PROCEDURE (CLINICAL TERMINOLOGY)
RFINDING SCHEME IN USE
RCODED FINDING (CODED CLINICAL ENTRY)
ROBSERVATION SCHEME IN USE
RCODED OBSERVATION (CLINICAL TERMINOLOGY)
ROBSERVATION VALUE
RUCUM UNIT OF MEASUREMENT

GROUP SESSIONS

Group Session:
To carry details of any group sessions which have been provided to a group of people during the reporting period.
One occurrence of this group is permitted for each Group Session activity.
M/R/OData Set Data Elements
MGROUP SESSION IDENTIFIER
MGROUP SESSION DATE
MORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
RCLINICAL CONTACT DURATION OF GROUP SESSION
RGROUP SESSION TYPE (COMMUNITY CARE)
RNUMBER OF GROUP SESSION PARTICIPANTS
OACTIVITY LOCATION TYPE CODE
RORGANISATION SITE IDENTIFIER (OF TREATMENT)
RCARE PROFESSIONAL LOCAL IDENTIFIER
ONHS SERVICE AGREEMENT LINE NUMBER

SOCIAL CIRCUMSTANCES

Special Educational Need Identified:
To carry details of the child's or young person's Special Educational Need.
One occurrence of this group is permitted for each Special Educational Need identified.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSPECIAL EDUCATIONAL NEED TYPE

Safeguarding Vulnerability Factor:
To carry details when the child's or young person is subject to any safeguarding concerns.
One occurrence of this group is permitted for each safeguarding concern.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSAFEGUARDING VULNERABILITY FACTORS TYPE

Child Protection Plan:
To carry details when the child or young person is subject to a child protection plan.
One occurrence of this group is permitted for each child protection plan.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MCHILD PROTECTION PLAN REASON CODE
MCHILD PROTECTION PLAN START DATE
RCHILD PROTECTION PLAN END DATE

Assistive Technology to Support Disability Type:
To carry details when assistive technology is used to help support a disabled child or young person.
One occurrence of this group is permitted for each assistive technology type.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MASSISTIVE TECHNOLOGY FINDING (SNOMED CT)
RPRESCRIPTION DATE (ASSISTIVE TECHNOLOGY)

IMMUNISATIONS

Coded Immunisation:
To carry details of coded immunisation activity for a patient.
One occurrence of this group is permitted for each coded immunisation activity.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MIMMUNISATION DATE
MPROCEDURE SCHEME IN USE
MIMMUNISATION PROCEDURE (CLINICAL TERMINOLOGY)
RORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION)

Immunisation:
To carry details of immunisation activity for a child or young person.
One occurrence of this group is permitted for each immunisation activity.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MIMMUNISATION DATE
MCHILDHOOD IMMUNISATION TYPE (CHILDREN AND YOUNG PEOPLE'S HEALTH SERVICES)
RORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION)

DIAGNOSES, TESTS AND OBSERVATIONS

Medical History (Previous Diagnosis):
To carry details of any previous diagnoses for a patient, which are stated by the patient or patient proxy or recorded in medical notes.
These do not have to have been diagnosed by the organisation submitting the data.
One occurrence of this group is permitted for each previous diagnosis.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MDIAGNOSIS SCHEME IN USE
MPREVIOUS DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Disability Type:
To carry details of the type of disability affecting a patient, based on their perception or the perception of a patient proxy.
One occurrence of this group is permitted for each disability identified.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MDISABILITY CODE
RDISABILITY IMPACT PERCEPTION

Newborn Hearing Screening Audiology Referral:
To carry details of how concerns following Newborn Hearing Screening are followed up.
One occurrence of this group is permitted for each newborn hearing audiology test.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
RNEWBORN HEARING SCREENING OUTCOME
RSERVICE REQUEST DATE (NEWBORN HEARING AUDIOLOGY)
RPROCEDURE DATE (NEWBORN HEARING AUDIOLOGY)
RNEWBORN HEARING AUDIOLOGY OUTCOME

Blood Spot Result:
To carry details of the results of newborn blood spot tests.
One occurrence of this group is permitted for each newborn blood spot test.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
RBLOOD SPOT CARD COMPLETION DATE
RNEWBORN BLOOD SPOT TEST RESULT RECEIVED DATE
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (PHENYLKETONURIA)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (SICKLE CELL DISEASE)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CYSTIC FIBROSIS)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CONGENITAL HYPOTHYROIDISM)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MEDIUM CHAIN ACYL-COA DEHYDROGENASE DEFICIENCY)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (HOMOCYSTINURIA)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MAPLE SYRUP URINE DISEASE)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (GLUTARIC ACIDURIA TYPE 1)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (ISOVALERIC ACIDURIA)

Infant Physical Examination (General Medical Practitioner Delivered):
To carry details of the Infant Physical Examination carried out by the General Medical Practitioner.
One occurrence of this group is permitted for each Infant Physical Examination.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MINFANT PHYSICAL EXAMINATION DATE
RINFANT PHYSICAL EXAMINATION RESULT (HIPS)
RINFANT PHYSICAL EXAMINATION RESULT (HEART)
RINFANT PHYSICAL EXAMINATION RESULT (EYES)
RINFANT PHYSICAL EXAMINATION RESULT (TESTES)

Provisional Diagnosis:
To carry details of a provisional diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for each provisional diagnosis.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE
MPROVISIONAL DIAGNOSIS (CODED CLINICAL ENTRY)
RPROVISIONAL DIAGNOSIS DATE

Primary Diagnosis:
To carry details of the primary diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for the primary diagnosis. The primary diagnosis can change during a reporting period.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE
MPRIMARY DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Secondary Diagnosis:
To carry details of a secondary diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for each secondary diagnosis.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE
MSECONDARY DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Coded Scored Assessment (Referral):
To carry details of scored assessments that are issued and completed as part of a referral period where a specific service or team is responsible for the patient, but do not take place at a specific contact.
One occurrence of this group is permitted for each coded scored assessment question or dimension captured outside of a contact.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE
RASSESSMENT TOOL COMPLETION DATE

Breastfeeding Status:
To carry details of a child's breastfeeding status as recorded at a contact.
One occurrence of this group is permitted containing the most recently recorded breastfeeding status.
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MBREASTFEEDING STATUS

Observation:
To carry details of observations of a patient which take place at a contact.
One occurrence of this group is permitted containing the most recently recorded observation(s).
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
RPERSON WEIGHT
RPERSON HEIGHT IN METRES
RPERSON LENGTH IN CENTIMETRES

Coded Scored Assessment (Contact):
To carry details of scored assessments that are issued and completed as part of a specific contact.
One occurrence of this group is permitted for each coded scored assessment question or dimension.
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE

ANONYMOUS SELF-ASSESSMENT

Anonymous Self-Assessment:
To carry details of anonymous assessments that are issued by the Community Health Service.
One occurrence of this group is permitted when an anonymous self-assessment is received from a patient.
M/R/OData Set Data Elements
MASSESSMENT TOOL COMPLETION DATE
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE
RACTIVITY LOCATION TYPE CODE
RORGANISATION IDENTIFIER (CODE OF COMMISSIONER)

STAFF DETAILS

Staff Details:
To carry details of the staff involved in the treatment of a patient.
One occurrence of this group is permitted for each staff member.
M/R/OData Set Data Elements
MCARE PROFESSIONAL LOCAL IDENTIFIER
RPROFESSIONAL REGISTRATION BODY CODE
RPROFESSIONAL REGISTRATION ENTRY IDENTIFIER
RCARE PROFESSIONAL STAFF GROUP (COMMUNITY CARE)
ROCCUPATION CODE
RCARE PROFESSIONAL (JOB ROLE CODE)

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IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES DATA SET

Change to Data Set: Changed Description

The Improving Access to Psychological Therapies Data Set will be in included in a future version of the Mental Health Services Data Set.

Improving Access to Psychological Therapies Data Set Overview

Due to the rapidly changing situation with Covid-19 for both providers and NHS Digital, the transition from Improving Access to Psychological Therapies (IAPT) Data Set v1.5 to v2.0 has been postponed until 1 August 2020.0 has been postponed until 1 September 2020.

August 2020 data will start being submitted from 1 September 2020.September 2020 data will start being submitted from 1 October 2020.

For further information please contact: enquiries@nhsdigital.nhs.uk.

Version 1.5 of the data set can be found at: IAPT Data Set.

For a "Full Screen" view, click Improving Access to Psychological Therapies Data Set.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory or Required (M/R/O) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc.) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

For guidance on the Data Set constraints, see the Improving Access to Psychological Therapies Data Set Constraints.

HEADER

Header:
To carry header details for the submission.
One occurrence of this group is required.
M/R/OData Set Data Elements
MDATA SET VERSION NUMBER
MORGANISATION IDENTIFIER (CODE OF PROVIDER)
MORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
MPRIMARY DATA COLLECTION SYSTEM IN USE
MREPORTING PERIOD START DATE
MREPORTING PERIOD END DATE
MDATE AND TIME DATA SET CREATED

PATIENT DEMOGRAPHICS

Master Patient Index:
To carry personal details of the patient.
One occurrence of this group is required.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER)
RORGANISATION IDENTIFIER (RESIDENCE RESPONSIBILITY)
RNHS NUMBER
RNHS NUMBER STATUS INDICATOR CODE
RPERSON BIRTH DATE
RPOSTCODE OF USUAL ADDRESS
RPERSON STATED GENDER CODE
RETHNIC CATEGORY
REX-BRITISH ARMED FORCES INDICATOR
RLANGUAGE CODE (PREFERRED)
REDUCATIONAL ESTABLISHMENT TYPE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)

GP Practice Registration:
To carry details of the GP Practice Registration of the patient.
One occurrence of this group is required for each change of GP Practice Registration.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MGENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION)
RSTART DATE (GMP PATIENT REGISTRATION)
REND DATE (GMP PATIENT REGISTRATION)
RORGANISATION IDENTIFIER (GP PRACTICE RESPONSIBILITY)

Employment Status:
To carry details of the employment status of the patient.
One occurrence of this group is permitted for each employment status.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MEMPLOYMENT STATUS
REMPLOYMENT STATUS RECORDED DATE
RWEEKLY HOURS WORKED
RSELF EMPLOYED INDICATOR
RSICKNESS ABSENCE INDICATOR
RSTATUTORY SICK PAY RECEIPT INDICATOR
RBENEFIT RECEIPT INDICATOR (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)
RJOBSEEKERS ALLOWANCE RECEIPT INDICATOR
REMPLOYMENT AND SUPPORT ALLOWANCE RECEIPT INDICATOR
RUNIVERSAL CREDIT RECEIPT INDICATOR
RPERSONAL INDEPENDENCE PAYMENT RECEIPT INDICATOR
ROTHER BENEFITS RECEIPT INDICATOR (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)
REMPLOYMENT SUPPORT SUITABILITY INDICATOR
REMPLOYMENT SUPPORT REFERRAL DATE

Disability Type:
To carry details of the type of disability affecting a patient, based on formal diagnoses, the patient’s perception or the perception of a patient proxy.
One occurrence of this group is permitted for each disability identified.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MDISABILITY CODE

Social and Personal Circumstances
To carry details of social and personal circumstances of a patient.
One occurrence of this group is permitted for each social and personal circumstance recorded.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSOCIAL AND PERSONAL CIRCUMSTANCE (SNOMED CT)
RSOCIAL AND PERSONAL CIRCUMSTANCE RECORDED DATE

Overseas Visitor Charging Category
To carry details of the Overseas Visitor Charging Category of the patient.
Multiple occurrences of this group are permitted, one for each Overseas Visitor Charging Category recorded for the patient.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MOVERSEAS VISITOR CHARGING CATEGORY
ROVERSEAS VISITOR CHARGING CATEGORY APPLICABLE DATE

REFERRALS

Service or Team Referral:
To carry details of the Service or Team referral that the patient is subject to.
One occurrence of this group is required for each referral.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
MREFERRAL REQUEST RECEIVED DATE
RSOURCE OF REFERRAL FOR MENTAL HEALTH
RYEAR AND MONTH OF SYMPTOMS ONSET (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)
RPREVIOUS DIAGNOSED CONDITION INDICATOR
RDISCHARGE FROM IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES SERVICE REASON
RSERVICE DISCHARGE DATE

Onward Referral:
To carry details of any onward referral of the patient which has taken place.
One occurrence of this group is permitted for each onward referral.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MONWARD REFERRAL DATE
RONWARD REFERRAL TIME
RONWARD REFERRAL REASON
RORGANISATION IDENTIFIER (RECEIVING)

WAITING TIME PAUSES

Waiting Time Pauses:
To carry details of the Waiting Time Pauses.
One occurrence is permitted for each Waiting Time Pause.
M/RData Set Data Elements
MIMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES ACTIVITY SUSPENSION IDENTIFIER
MSERVICE REQUEST IDENTIFIER
MACTIVITY SUSPENSION START DATE
RACTIVITY SUSPENSION END DATE
RIMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES ACTIVITY SUSPENSION REASON

CARE CONTACT, CARE ACTIVITIES AND INDIRECT ACTIVITIES

Care Contact:
To carry details of any contacts with a patient which have taken place as part of a referral.
One occurrence of this group is permitted for each Care Contact.
M/R/OData Set Data Elements
MCARE CONTACT IDENTIFIER
MSERVICE REQUEST IDENTIFIER
MCARE CONTACT DATE
RCARE CONTACT TIME
RORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
RPLANNED CARE CONTACT INDICATOR
RATTENDED OR DID NOT ATTEND CODE
RAPPOINTMENT SLOT SHORT NOTICE CANCELLATION INDICATOR
RCLINICAL CONTACT DURATION OF CARE CONTACT
MINTEGRATED IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES LONG TERM CONDITION SERVICE INDICATOR
MAPPOINTMENT TYPE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)
RCONSULTATION MEDIUM USED
RINTERNET ENABLED THERAPY PROGRAMME
RCARE CONTACT PATIENT THERAPY MODE
RNUMBER OF GROUP THERAPY PARTICIPANTS
RNUMBER OF GROUP THERAPY FACILITATORS
RPSYCHOTROPIC MEDICATION USAGE INDICATION CODE
RACTIVITY LOCATION TYPE CODE
RORGANISATION SITE IDENTIFIER (OF TREATMENT)
RLANGUAGE CODE (TREATMENT)
RINTERPRETER PRESENT AT CARE CONTACT INDICATION CODE

Care Activity:
To carry details of any activities which have taken place as part of a Care Contact.
One occurrence of this group is permitted for each Care Activity.
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCARE CONTACT IDENTIFIER
RCARE PERSONNEL LOCAL IDENTIFIER
RCLINICAL CONTACT DURATION OF CARE ACTIVITY
RCODED PROCEDURE AND PROCEDURE STATUS (SNOMED CT)
RFINDING SCHEME IN USE
RCODED FINDING (CODED CLINICAL ENTRY)
RCODED OBSERVATION (SNOMED CT)
ROBSERVATION VALUE
RUCUM UNIT OF MEASUREMENT

Internet Enabled Therapy Care Professional Activity Log:
To carry details of the summarised activity during a specified time period for the Care Professional supporting Internet Enabled Therapy for a patient.
One occurrence this group is permitted for each activity log.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MSTART DATE (INTERNET ENABLED THERAPY ACTIVITY LOG)
MEND DATE (INTERNET ENABLED THERAPY ACTIVITY LOG)
MINTERNET ENABLED THERAPY PROGRAMME
MDURATION OF INTERNET ENABLED THERAPY IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES CARE PROFESSIONAL CLINICAL TIME
RCARE PERSONNEL LOCAL IDENTIFIER
RINTERNET ENABLED THERAPY INTEGRATED SOFTWARE ENGINE USED INDICATOR

CLINICALLY CODED TERMINOLOGY

Long Term Physical Health Condition:
To carry details of any Long Term Physical Health Conditions for a patient which are stated by the patient or recorded in medical notes
One occurrence of this group is permitted for each Long Term Physical Health Condition.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MFINDING SCHEME IN USE
MLONG TERM PHYSICAL HEALTH CONDITION (CODED CLINICAL ENTRY)

Presenting Complaints:
To carry details of the primary and any secondary presenting complaints recorded for a patient, made by the service that the patient was referred or admitted to.
One occurrence of this group is permitted for each presenting complaint.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MFINDING SCHEME IN USE
MPRESENTING COMPLAINT (CODED CLINICAL ENTRY)
RPRESENTING COMPLAINT CODING SIGNIFICANCE
RPRESENTING COMPLAINT RECORDED DATE

Coded Scored Assessment (Referral):
To carry details of scored assessments that are issued and completed as part of a Service Request, but do not take place at a specific contact.
One occurrence of this group is permitted for each coded scored assessment question or dimension captured outside of a Care Contact.
M/R/OData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE
MASSESSMENT TOOL COMPLETION DATE
RASSESSMENT TOOL COMPLETION TIME

Coded Scored Assessment (Care Activity):
To carry details of scored assessments that are issued and completed as part of a specific Care Activity.
One occurrence of this group is permitted for each coded scored assessment question or dimension captured as part of a specific Care Activity.
M/R/OData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE

CARE CLUSTERS

Care Cluster:
To carry details of the Care Cluster resulting from a clustering tool assessment.
One occurrence of this group is permitted for each period of time that a patient was allocated to a Care Cluster.
M/R/OData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MADULT MENTAL HEALTH CARE CLUSTER CODE (FINAL)
MSTART DATE (CARE CLUSTER ASSIGNMENT PERIOD)
RSTART TIME (CARE CLUSTER ASSIGNMENT PERIOD)
REND DATE (CARE CLUSTER ASSIGNMENT PERIOD)
REND TIME (CARE CLUSTER ASSIGNMENT PERIOD)

CARE PERSONNEL QUALIFICATION

Care Personnel:
To carry details of each qualification attained or planned to be attained by the Care Personnel.
One occurrence of this group is permitted for each qualification.
M/R/OData Set Data Elements
MCARE PERSONNEL LOCAL IDENTIFIER
MQUALIFICATION ATTAINMENT LEVEL (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES)
REMPLOYEE QUALIFICATION AWARDED DATE
REMPLOYEE QUALIFICATION PLANNED COMPLETION DATE

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NATIONAL JOINT REGISTRY DATA SET - ANKLE

Change to Data Set: Changed Description

National Joint Registry Data Set Overview

Click National Joint Registry Data Set - Ankle for a "Full Screen" view.

In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.

The Mandatory or Optional (M/O) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory
  • O = Optional: this data element is optional.
ANKLE PRIMARY

M/OAnkle Primary Procedure Details:
One occurrence of this group is required.
MANATOMICAL SIDE (NATIONAL JOINT REGISTRY)
MPATIENT DIAGNOSIS INDICATION (PRIMARY ANKLE REPLACEMENT)
MPREVIOUS FRACTURE OF INDEX JOINT INDICATOR (ANKLE REPLACEMENT)
MPREVIOUS INDEX JOINT SURGERY TYPE (ANKLE REPLACEMENT)
MPREVIOUS BONY INFECTION INDICATOR (ANKLE REPLACEMENT TIBIA OR HINDFOOT)
MTIBIA-HINDFOOT ALIGNMENT CODE (PRIMARY ANKLE REPLACEMENT)
MANKLE DORSIFLEXION CODE (PRIMARY ANKLE REPLACEMENT)
MANKLE PLANTARFLEXION CODE (PRIMARY ANKLE REPLACEMENT)
MSUBTALAR JOINT MOVEMENT CODE (PRIMARY ANKLE REPLACEMENT)

M/OSurgical Approach:
One occurrence of this group is required.
MPATIENT PROCEDURE TYPE (PRIMARY ANKLE REPLACEMENT)
MSURGICAL APPROACH (PRIMARY OR REVISION ANKLE REPLACEMENT)
MASSOCIATED PROCEDURE TYPE (ANKLE REPLACEMENT)
MCOMPUTER GUIDED SURGERY INDICATOR (JOINT REPLACEMENT)

M/OThromboprophylaxis:
One occurrence of this group is required.
MCHEMICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT)
MMECHANICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT)

M/OBone Graft Used:
One occurrence of this group is required.
MBONE GRAFT INDICATOR (TIBIAL)
MBONE GRAFT STRUCTURE (TIBIAL)
MBONE GRAFT SOURCE (TIBIAL)
MBONE GRAFT INDICATOR (TALAR)
MBONE GRAFT STRUCTURE (TALAR)
MBONE GRAFT SOURCE (TALAR)
MBONE GRAFT INDICATOR (FIBULAR)
MBONE GRAFT STRUCTURE (FIBULAR)
MBONE GRAFT SOURCE (FIBULAR)

M/OSurgeon Notes:
One occurrence of this group is required.
OSURGEON NOTES

M/OIntraoperative Event:
One occurrence of this group is required.
MUNTOWARD INTRAOPERATIVE EVENT CODE (ANKLE REPLACEMENT)

M/OComponents:
One occurrence of this group is required.
MIMPLANT CATALOGUE NUMBER
MIMPLANT BATCH OR LOT NUMBER

ANKLE REVISION

M/OAnkle Revision Procedure Details:
One occurrence of this group is required.
MREVISION PROCEDURE TYPE (ANKLE REPLACEMENT)
MARTHROPLASTY REVISION TYPE (HIP KNEE AND ANKLE REPLACEMENT)
MANATOMICAL SIDE (NATIONAL JOINT REGISTRY)
MJOINT REPLACEMENT REVISION REASON CODE (ANKLE)

M/OPrimary Operation Details:
One occurrence of this group is required.
MPROCEDURE DATE (PRIMARY JOINT REPLACEMENT)
MORGANISATION SITE IDENTIFIER (OF TREATMENT)
If the information is not available, select 'Not Available'

M/OComponents Removed:
One occurrence of this group is required.
MCOMPONENT REMOVAL INDICATOR (TIBIAL)
MCOMPONENT REMOVAL INDICATOR (TALAR)
MCOMPONENT REMOVAL INDICATOR (MENISCAL)

M/OSurgical Approach:
One occurrence of this group is required.
MPATIENT PROCEDURE TYPE (REVISION ANKLE REPLACEMENT)
MSURGICAL APPROACH (PRIMARY OR REVISION ANKLE REPLACEMENT)
MASSOCIATED PROCEDURE TYPE (ANKLE REPLACEMENT)

M/OThromboprophylaxis:
One occurrence of this group is required.
MCHEMICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT)
MMECHANICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT)

M/OBone Graft Used:
One occurrence of this group is required.
MBONE GRAFT INDICATOR (TIBIAL)
MBONE GRAFT STRUCTURE (TIBIAL)
MBONE GRAFT SOURCE (TIBIAL)
MBONE GRAFT SOURCE (TALAR)
MBONE GRAFT INDICATOR (TALAR)
MBONE GRAFT STRUCTURE (TALAR)
MBONE GRAFT SOURCE (TALAR)
MBONE GRAFT SOURCE (FIBULAR)
MBONE GRAFT INDICATOR (FIBULAR)
MBONE GRAFT STRUCTURE (FIBULAR)
MBONE GRAFT SOURCE (FIBULAR)

M/OSurgeon Notes:
One occurrence of this group is required.
OSURGEON NOTES

M/OIntraoperative Event:
One occurrence of this group is required.
MUNTOWARD INTRAOPERATIVE EVENT CODE (ANKLE REPLACEMENT)

M/OComponents:
One occurrence of this group is required.
MIMPLANT CATALOGUE NUMBER
MIMPLANT BATCH OR LOT NUMBER

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NATIONAL NEONATAL DATA SET - EPISODIC AND DAILY CARE

Change to Data Set: Changed Description

National Neonatal Data Set Overview

The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.The Mandatory, Required, Optional or Pilot (M/R/O/P) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Note: items in the M/R/O column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.Note: items in the M/R/O/P column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.  These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

DEMOGRAPHICS AND BIRTH INFORMATION (BABY)

One of the following Baby Demographics Data Group Structures must be used:

Baby Demographics (Standard):
To carry the Baby's demographic details where anonymisation of the record is NOT required.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RNHS NUMBER (BABY)
MNHS NUMBER STATUS INDICATOR CODE (BABY)
RCOMMUNITY HEALTH INDEX NUMBER (BABY)
RHEALTH AND CARE NUMBER (BABY)
MBABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET)
RDATE TIME OF BIRTH (BABY)
MSITE CODE (OF ACTUAL PLACE OF DELIVERY)
or
ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY)
RBIRTH WEIGHT
OBIRTH LENGTH
OBIRTH HEAD CIRCUMFERENCE
OGESTATION LENGTH (AT DELIVERY)
OGESTATION LENGTH (REMAINING DAYS AT DELIVERY)
RPERSON PHENOTYPIC SEX
PPERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)
OBLOOD GROUP (BABY)
ORHESUS GROUP (BABY)
RBASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH)

OR

Baby Demographics (Withheld):
To carry the Baby's demographic details where anonymisation of the record IS required.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MNHS NUMBER STATUS INDICATOR CODE (BABY)
MBABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET)
RYEAR AND MONTH OF BIRTH (BABY)
MSITE CODE (OF ACTUAL PLACE OF DELIVERY)
or
ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY)
RBIRTH WEIGHT
OBIRTH LENGTH
OBIRTH HEAD CIRCUMFERENCE
OGESTATION LENGTH (AT DELIVERY)
OGESTATION LENGTH (REMAINING DAYS AT DELIVERY)
RPERSON PHENOTYPIC SEX
PPERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)
OBLOOD GROUP (BABY)
ORHESUS GROUP (BABY)
RBASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH)

PARENTS

One of the following Parent's Demographics Data Group Structures should be used:

Parents Demographics (Standard):
To carry the Parent's demographic details where anonymisation of the record is NOT required.
One occurrence of this group is permitted.
RNHS NUMBER (MOTHER)
MNHS NUMBER STATUS INDICATOR CODE (MOTHER)
RCOMMUNITY HEALTH INDEX NUMBER (MOTHER)
RHEALTH AND CARE NUMBER (MOTHER)
RYEAR OF BIRTH (MOTHER)
MPOSTCODE OF USUAL ADDRESS (MOTHER)
PQUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET)
OOCCUPATION MOTHER (SNOMED CT)
RETHNIC CATEGORY (MOTHER)
RGENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER))
RYEAR OF BIRTH (FATHER)
RETHNIC CATEGORY (FATHER)
RPARENTS CONSANGUINEOUS INDICATOR

OR

Parents Demographics (Withheld):
To carry the Parent's demographic details where anonymisation of the record IS required.
One occurrence of this group is permitted.
MNHS NUMBER STATUS INDICATOR CODE (MOTHER)
RYEAR OF BIRTH (MOTHER)
PQUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET)
OOCCUPATION MOTHER (SNOMED CT)
RETHNIC CATEGORY (MOTHER)
RGENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER))
RYEAR OF BIRTH (FATHER)
RETHNIC CATEGORY (FATHER)
RPARENTS CONSANGUINEOUS INDICATOR

ANTENATAL

Pregnancy Details:
To carry details of the pregnancy.
One occurrence of this group is required
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PMOTHER ANTENATALLY BOOKED INDICATOR
MSITE CODE (OF INTENDED PLACE OF DELIVERY)
or
ORGANISATION CODE (OF INTENDED PLACE OF DELIVERY)
RPREGNANCY TOTAL PREVIOUS PREGNANCIES
RMATERNITY COMPLICATING MEDICAL DIAGNOSIS TYPE (NATIONAL NEONATAL DATA SET)
Multiple occurrences of this item are permitted
PMATERNITY OBSTETRIC DIAGNOSIS TYPE (CURRENT PREGNANCY)
Multiple occurrences of this item are permitted
RMATERNITY MEDICAL DIAGNOSIS TYPE (CURRENT PREGNANCY)
Multiple occurrences of this item are permitted
RBLOOD GROUP (MOTHER)
RRHESUS GROUP (MOTHER)
OHAEMOGLOBINOPATHY INVESTIGATION RESULT CODE FOR NATIONAL NEONATAL DATA SET (MOTHER)
RMOTHER CURRENT SMOKER AT BOOKING INDICATOR
OCIGARETTES PER DAY (MOTHER AT BOOKING)
RSTEROIDS GIVEN DURING PREGNANCY TO MATURE FETAL LUNGS INDICATOR
RANTENATAL STEROID COURSE COMPLETION STATUS
OSTEROID TYPE GIVEN TO MOTHER (SNOMED CT DM+D)
OINVESTIGATION RESULT CODE (MOTHER RUBELLA SCREENING)
RLAST MENSTRUAL PERIOD DATE
or
LAST MENSTRUAL PERIOD YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
MESTIMATED DATE OF DELIVERY (AGREED)
or
ESTIMATED DATE OF DELIVERY (AGREED) YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RMETHOD OF ESTIMATED DATE OF DELIVERY (AGREED)

LABOUR AND DELIVERY

Labour and Delivery Details:
To carry details of the labour and delivery.
One occurrence of this group is required
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RLABOUR OR DELIVERY ONSET METHOD CODE (NATIONAL NEONATAL DATA SET)
OMECONIUM PRESENT IN LIQUOR INDICATOR
OMEDICATION GIVEN DURING LABOUR (SNOMED CT DM+D)
Multiple occurrences of this item are permitted
RRUPTURE OF MEMBRANES DATE TIME
or
RUPTURE OF MEMBRANES YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
OSIGNIFICANT MATERNAL PYREXIA IN LABOUR INDICATOR
OINTRAPARTUM ANTIBIOTICS GIVEN INDICATOR
RPRESENTATION AT DELIVERY
MMODE OF DELIVERY
PIN LABOUR BEFORE CAESARIAN SECTION INDICATOR
PDELIVERY INSTRUMENT TYPE
Multiple occurrences of this item are permitted
RBIRTH ORDER (MATERNITY SERVICES)
RNUMBER OF FETUSES (NOTED DURING PREGNANCY EPISODE)
OTIME BETWEEN DELIVERY AND SPONTANEOUS RESPIRATION CODE
RAPGAR SCORE (1 MINUTE)
RAPGAR SCORE (5 MINUTES)
RAPGAR SCORE (10 MINUTES)
RNEONATAL RESUSCITATION METHOD (NATIONAL NEONATAL DATA SET)
ONEONATAL RESUSCITATION DRUG (SNOMED CT DM+D)
Multiple occurrences of this item are permitted
PUMBILICAL CORD CLAMPED IMMEDIATELY AFTER BIRTH INDICATOR
PTIME BETWEEN DELIVERY AND UMBILICAL CORD CLAMPING
PUMBILICAL CORD MILKING PERFORMED INDICATOR
OUMBILICAL CORD BLOOD PH LEVEL (ARTERIAL)
OUMBILICAL CORD BLOOD PH LEVEL (VENOUS)
OUMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (ARTERIAL)
OUMBILICAL CORD BLOOD PARTIAL PRESSURE CARBON DIOXIDE (VENOUS)
OUMBILICAL CORD BLOOD LACTATE LEVEL
RUMBILICAL CORD BLOOD BASE EXCESS CONCENTRATION (ARTERIAL)
RUMBILICAL CORD BLOOD BASE EXCESS CONCENTRATION (VENOUS)
RSURFACTANT GIVEN INDICATOR (DURING RESUSCITATION)

ADMISSION TO NEONATAL CRITICAL CARE

Admission Details:
To carry details of the admission to Neonatal Critical Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MCRITICAL CARE START DATE AND TIME
or
CRITICAL CARE START YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
MSITE CODE (OF ADMITTING NEONATAL UNIT)
or
ORGANISATION CODE (OF ADMITTING NEONATAL UNIT)
REPISODE NUMBER (NEONATAL CRITICAL CARE SPELL)
RSITE CODE (ADMITTED FROM TO NEONATAL UNIT)
or
ORGANISATION CODE (ADMITTED FROM TO NEONATAL UNIT)
OLOCATION IN HOSPITAL TYPE (BABY ADMITTED FROM)
RPRIMARY CATEGORY OF CARE REQUIRED ON ADMISSION TO NEONATAL CRITICAL CARE
MTEMPERATURE RECORDED AFTER ADMISSION TO NEONATAL CRITICAL CARE INDICATOR
MTEMPERATURE (ON ADMISSION TO NEONATAL CRITICAL CARE)
ROBSERVATION DATE AND TIME (TEMPERATURE)
or
OBSERVATION YEAR AND MONTH (TEMPERATURE)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RMEAN ARTERIAL BLOOD PRESSURE (ON ADMISSION TO NEONATAL CRITICAL CARE)
RHEART RATE (ON ADMISSION TO NEONATAL CRITICAL CARE)
ORESPIRATORY RATE (ON ADMISSION TO NEONATAL CRITICAL CARE)
OOXYGEN SATURATION (ON ADMISSION TO NEONATAL CRITICAL CARE)
OBLOOD GLUCOSE CONCENTRATION (ON ADMISSION TO NEONATAL CRITICAL CARE)
RDIAGNOSIS (ICD ON ADMISSION TO NEONATAL CRITICAL CARE)
Multiple occurrences of this item are permitted
and/or
DIAGNOSIS (SNOMED CT ON ADMISSION TO NEONATAL CRITICAL CARE)
Multiple occurrences of this item are permitted
OPARENTAL CONSENT TO ADMINISTER VITAMIN K INDICATOR
OVITAMIN K ADMINISTERED INDICATOR
OVITAMIN K ROUTE OF ADMINISTRATION
OCARE PROFESSIONAL JOB ROLE CODE (COMPLETING NEONATAL INTENSIVE CARE UNIT ADMISSION FORM)
MPARENTS SEEN BY SENIOR STAFF MEMBER WITHIN 24 HOURS OF ADMISSION INDICATOR
MPARENTS SEEN BY SENIOR STAFF MEMBER DATE AND TIME
or
PARENTS SEEN BY SENIOR STAFF MEMBER YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)

DISCHARGE FROM NEONATAL CRITICAL CARE UNIT

Discharge Details:
To carry details of the discharge from the Neonatal Intensive Care Unit.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MCRITICAL CARE DISCHARGE DATE AND TIME
or
CRITICAL CARE DISCHARGE YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
MDESTINATION ON DISCHARGE FROM NEONATAL CRITICAL CARE
RTRANSFERRED FOR FURTHER CARE TYPE (NATIONAL NEONATAL DATA SET)
OWARD TYPE DISCHARGED TO (NATIONAL NEONATAL DATA SET)
RSITE CODE (RECEIVING)
or
ORGANISATION CODE (RECEIVING)
RPERSON DEATH DATE AND TIME (DURING NEONATAL CRITICAL CARE PERIOD)
or
PERSON DEATH YEAR AND MONTH (DURING NEONATAL CRITICAL CARE PERIOD)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RDEATH CAUSE ICD CODE (DURING NEONATAL CRITICAL CARE PERIOD)
Multiple occurrences of this item are permitted
OPOST MORTEM CARRIED OUT INDICATOR
OPARENTAL CONSENT TO POST MORTEM INDICATOR
OPOST MORTEM CONFIRMED NECROTISING ENTEROCOLITIS DIAGNOSIS INDICATOR
ORECEIVING OXYGEN THERAPY ON DISCHARGE INDICATOR
OSITE CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT RESPONSIBILITY)
or
ORGANISATION CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT RESPONSIBILITY)
RDIAGNOSIS (ICD RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE)
Multiple occurrences of this item are permitted
and/or
DIAGNOSIS (SNOMED CT RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE)
Multiple occurrences of this item are permitted

Procedures Recorded At Discharge:
To carry details of procedures recorded at discharge.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPROCEDURE (OPCS RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE)
and/or
PROCEDURE (SNOMED CT RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE)
RPROCEDURE DATE AND TIME (DURING NEONATAL CRITICAL CARE PERIOD)
or
PROCEDURE YEAR AND MONTH (DURING NEONATAL CRITICAL CARE PERIOD)
and
NUMBER OF MINUTES (BIRTH TO EVENT)

CLINICAL TRIALS (EPISODIC)

Clinical Trials Details:
To carry details of Clinical Trial enrolment at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
OCLINICAL TRIAL NAME
OCLINICAL TRIAL MEDICATION ADMINISTERED NAME
Multiple occurrences of this item are permitted

INFECTION CULTURES (EPISODIC)

Infection Culture Indicators:
To carry indicators relating to Infection Cultures undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PINFECTION CULTURE TEST INDICATOR (BLOOD)
PINFECTION CULTURE TEST INDICATOR (CEREBROSPINAL FLUID)
PINFECTION CULTURE TEST INDICATOR (URINE)

Infection Cultures:
To carry information relating to Infection Cultures at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RSAMPLE COLLECTION DATE AND TIME
or
SAMPLE COLLECTION YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RSAMPLE TYPE (NATIONAL NEONATAL DATA SET)
RCLINICAL SIGN OBSERVED AT SAMPLE COLLECTION
Multiple occurrences of this item are permitted
RSAMPLE TEST RESULT ORGANISM TYPE (SNOMED CT)
Multiple occurrences of this item are permitted
OSAMPLE ANTIBIOTIC SENSITIVITY RESULT (SNOMED CT DM+D)
Multiple occurrences of this item are permitted

ABDOMINAL X-RAYS (EPISODIC)

Abdominal X-Ray Indicator:
To carry an indicator relating to Abdominal X-Rays undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PABDOMINAL X-RAY PERFORMED INDICATOR

Abdominal X-Rays:
To carry information relating to Abdominal X-Rays at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPROCEDURE DATE AND TIME (ABDOMINAL X-RAY)
or
PROCEDURE YEAR AND MONTH (ABDOMINAL X-RAY)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RABDOMINAL X-RAY PERFORMED TO INVESTIGATE ABDOMINAL SIGNS INDICATOR
RCONDITION SEEN IN ABDOMEN DURING X-RAY
Multiple occurrences of this item are permitted
RABDOMINAL X-RAY PERFORMED REASON
Multiple occurrences of this item are permitted
RTRANSFERRED FROM NEONATAL INTENSIVE CARE UNIT FOR NECROTISING ENTEROCOLITIS MANAGEMENT INDICATOR
RLAPAROTOMY FOR NECROTISING ENTEROCOLITIS INDICATION CODE
RVISUAL INSPECTION CONFIRMED NECROTISING ENTEROCOLITIS DURING LAPAROTOMY INDICATOR
RHISTOLOGY CONFIRMED NECROTISING ENTEROCOLITIS FOLLOWING LAPAROTOMY INDICATOR
RPERITONEAL DRAIN INSERTED FOLLOWING ABDOMINAL X-RAY INDICATOR

RETINOPATHY OF PREMATURITY SCREENING (EPISODIC)

Retinopathy of Prematurity Screening Indicator:
To carry an indicator relating to Retinopathy of Prematurity Screening undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MRETINOPATHY OF PREMATURITY SCREENING PERFORMED INDICATOR

Retinopathy of Prematurity Screening:
To carry information relating to Retinopathy of Prematurity Screening at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPROCEDURE DATE AND TIME (RETINOPATHY OF PREMATURITY SCREENING)
or
PROCEDURE YEAR AND MONTH (RETINOPATHY OF PREMATURITY SCREENING)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RSITE CODE (OF RETINOPATHY OF PREMATURITY SCREENING)
or
ORGANISATION CODE (OF RETINOPATHY OF PREMATURITY SCREENING)
RRETINOPATHY OF PREMATURITY STAGE (LEFT EYE)
RRETINOPATHY OF PREMATURITY STAGE (RIGHT EYE)
RRETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (LEFT EYE)
RRETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE (RIGHT EYE)
RRETINOPATHY OF PREMATURITY MAXIMUM ZONE (LEFT EYE)
RRETINOPATHY OF PREMATURITY MAXIMUM ZONE (RIGHT EYE)
RRETINOPATHY OF PREMATURITY PLUS DISEASE STATUS (LEFT EYE)
RRETINOPATHY OF PREMATURITY PLUS DISEASE STATUS (RIGHT EYE)
RRETINOPATHY OF PREMATURITY SCREENING OUTCOME STATUS CODE

CRANIAL ULTRASOUND SCANS (EPISODIC)

Cranial Ultrasound Scan Indicator:
To carry an indicator relating to Cranial Ultrasound Scans undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PCRANIAL ULTRASOUND SCAN PERFORMED INDICATOR

Cranial Ultrasound Scan:
To carry information relating to Cranial Ultrasound Scans at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPROCEDURE DATE AND TIME (CRANIAL ULTRASOUND SCAN)
or
PROCEDURE YEAR AND MONTH (CRANIAL ULTRASOUND SCAN)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
OINTRAVENTRICULAR HAEMORRHAGE GRADE (LEFT SIDE)
OPORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE)
OVENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE)
OINTRAVENTRICULAR HAEMORRHAGE GRADE (RIGHT SIDE)
OPORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE)
OVENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE)
OCYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR
OPOST HAEMORRHAGIC HYDROCEPHALUS OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR

NEWBORN BLOOD SPOT BIOCHEMICAL SCREENING (EPISODIC)

Newborn Blood Spot Test Indicator:
To carry an indicator relating to Newborn Blood Spot Tests undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MNEWBORN BLOOD SPOT TEST PERFORMED INDICATOR

Newborn Blood Spot Screening:
To carry details of Newborn Blood Spot Biochemical Screening undertaken at any time in the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBLOOD SPOT CARD COMPLETION DATE
or
BLOOD SPOT CARD COMPLETION YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)

NEWBORN HEARING SCREENING (EPISODIC)

Newborn Hearing Screening Indicator:
To carry an indicator relating to Newborn Hearing Screening undertaken at any time during the Neonatal Critical Care Period.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PNEWBORN HEARING SCREENING PERFORMED INDICATOR

Newborn Hearing Screening:
To carry information relating to Newborn Hearing Screening at any time during the Neonatal Critical Care Period.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPROCEDURE DATE AND TIME (NEWBORN HEARING SCREENING)
or
PROCEDURE YEAR AND MONTH (NEWBORN HEARING SCREENING)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
ONEWBORN HEARING SCREENING OUTCOME LEFT EAR (NATIONAL NEONATAL DATA SET)
ONEWBORN HEARING SCREENING OUTCOME RIGHT EAR (NATIONAL NEONATAL DATA SET)
ONEWBORN HEARING SCREENING TEST TYPE

DAILY CARE INFORMATION

Daily Care General Information:
To carry General Information relating to Daily Care.
Multiple occurrences of this group are permitted (at least one occurrence is required).
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MNEONATAL CRITICAL CARE DAILY CARE DATE
or
NEONATAL CRITICAL CARE DAILY CARE YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RPERSON WEIGHT IN GRAMS
OHEAD CIRCUMFERENCE IN CENTIMETRES
OPERSON LENGTH IN CENTIMETRES
RLOCATION OF HIGHEST LEVEL OF CARE
RPATIENT RECEIVING ONE TO ONE NURSING CARE INDICATOR
RCARER RESIDENT INDICATION CODE (NATIONAL NEONATAL DATA SET)
RDIAGNOSIS (ICD ON NEONATAL CRITICAL CARE DAILY CARE DATE)
Multiple occurrences of this item are permitted
and/or
DIAGNOSIS (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE)
Multiple occurrences of this item are permitted
RPROCEDURE (OPCS ON NEONATAL CRITICAL CARE DAILY CARE DATE)
Multiple occurrences of this item are permitted
and/or
PROCEDURE (SNOMED CT ON NEONATAL CRITICAL CARE DAILY CARE DATE)
Multiple occurrences of this item are permitted
RPERSON ACCOMPANYING TRANSPORTED PATIENT
Multiple occurrences of this item are permitted

Daily Care Respiratory:
To carry Respiratory information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PRESPIRATORY SUPPORT DEVICE TYPE (NATIONAL NEONATAL DATA SET)
Multiple occurrences of this item are permitted
PRESPIRATORY SUPPORT MODE (NATIONAL NEONATAL DATA SET)
Multiple occurrences of this item are permitted
RNITRIC OXIDE GIVEN INDICATOR
RCHEST DRAIN IN SITU INDICATOR
RTRACHEOSTOMY TUBE IN SITU INDICATOR
RREPLOGLE TUBE IN SITU INDICATOR
RSURFACTANT GIVEN INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE)
PFRACTION OF INSPIRED OXYGEN PERCENTAGE

Daily Care Cardiovascular:
To carry Cardiovascular information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RCONTINUOUS INFUSION OF PULMONARY VASODILATOR RECEIVED INDICATOR
RINOTROPE INFUSION RECEIVED INDICATOR
RPROSTAGLANDIN INFUSION RECEIVED INDICATOR
RTREATMENT TYPE FOR PATENT DUCTUS ARTERIOSUS
Multiple occurrences of this item are permitted

Daily Care Gastrointestinal:
To carry Gastrointestinal information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPERITONEAL DIALYSIS RECEIVED INDICATOR
RHAEMOFILTRATION RECEIVED INDICATOR
RTREATMENT TYPE FOR NECROTISING ENTEROCOLITIS
RMORE THAN THREE RECTAL WASHOUTS RECEIVED INDICATOR
RSTOMA PRESENT INDICATOR

Daily Care Blood Transfusion:
To carry Blood Transfusion information relating to Daily Care.
Multiple occurrences of this group are permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBLOOD TRANSFUSION TYPE
RBLOOD TRANSFUSION PRODUCT TYPE
Multiple occurrences of this item are permitted

Daily Care Neurology:
To carry Neurology information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RCENTRAL TONE STATUS
RNEONATAL CONSCIOUSNESS STATUS
RSEIZURE OCCURRED INDICATOR
RNEONATAL ABSTINENCE SYNDROME OBSERVED INDICATOR
RBRAIN ACTIVITY SCAN PERFORMED INDICATOR
RTHERAPEUTIC HYPOTHERMIA INDUCED INDICATOR
RHYPOXIC ISCHEMIC ENCEPHALOPATHY GRADE (HIGHEST ON NEONATAL CRITICAL CARE DAILY CARE DATE)

Daily Care Retinopathy of Prematurity Screening:
To carry Retinopathy of Prematurity information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RRETINOPATHY OF PREMATURITY SCREENING PERFORMED INDICATOR

Daily Care Fluids and Feeding:
To carry Fluids and Feeding information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RVASCULAR LINE TYPE IN SITU
Multiple occurrences of this item are permitted
RPARENTERAL NUTRITION RECEIVED INDICATOR
RINTRAVENOUS INFUSION OF GLUCOSE AND ELECTROLYTE SOLUTION RECEIVED INDICATOR
RENTERAL FEED TYPE GIVEN
Multiple occurrences of this item are permitted
RFORMULA MILK OR MILK FORTIFIER TYPE
Multiple occurrences of this item are permitted
or
FORMULA MILK OR MILK FORTIFIER TYPE (SNOMED CT DM+D)
Multiple occurrences of this item are permitted
RTOTAL VOLUME OF MILK RECEIVED
OENTERAL FEEDING METHOD
Multiple occurrences of this item are permitted

Daily Care Infections:
To carry Infection information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RSEPSIS SUSPECTED INDICATOR

Daily Care Jaundice:
To carry Jaundice information relating to Daily Care.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPHOTOTHERAPY RECEIVED INDICATOR

Daily Care Medication:
To carry Medication Administered information relating to Daily Care.
One occurrence of this group is permitted.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RMEDICATION GIVEN DURING NEONATAL CRITICAL CARE DAILY CARE DATE (SNOMED CT DM+D)
Multiple occurrences of this item are permitted

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NATIONAL NEONATAL DATA SET - TWO YEAR NEONATAL OUTCOMES ASSESSMENT

Change to Data Set: Changed Description

National Neonatal Data Set Overview

The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.The Mandatory, Required or Optional (M/R/O/P) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.
  • O = Optional: the inclusion of this data element is optional as required for local purposes
    • P = Pilot: this data element is for piloting use only.

Note: items in the M/R/O column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.Note: items in the M/R/O/P column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.  These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

TWO YEAR NEONATAL OUTCOMES ASSESSMENT

One of the following Child Demographics Data Group Structures must be used:

Child Demographics (Standard):
To carry the Child's demographic details where anonymisation of the record is NOT required.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RNHS NUMBER
MNHS NUMBER STATUS INDICATOR CODE
RCOMMUNITY HEALTH INDEX NUMBER
RHEALTH AND CARE NUMBER
MBABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET)
RDATE TIME OF BIRTH
MSITE CODE (OF ACTUAL PLACE OF DELIVERY)
or
ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY)
OGESTATION LENGTH (AT DELIVERY)
OGESTATION LENGTH (REMAINING DAYS AT DELIVERY)
RPERSON PHENOTYPIC SEX
or
PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)

OR

Child's Demographics (Withheld):
To carry the Child's demographic details where anonymisation of the record IS required.
One occurrence of this group is required.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MNHS NUMBER STATUS INDICATOR CODE
MBABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET)
RYEAR AND MONTH OF BIRTH
MSITE CODE (OF ACTUAL PLACE OF DELIVERY)
or
ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY)
OGESTATION LENGTH (AT DELIVERY)
OGESTATION LENGTH (REMAINING DAYS AT DELIVERY)
RPERSON PHENOTYPIC SEX
or
PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET)


One of the following Two Year Assessment Administration Data Group Structures must be used:

Two Year Assessment Administration (Standard):
To carry administrative information relating to the Two Year Neonatal Outcomes Assessment where anonymisation of the record is NOT required.
One occurrence of this group is required
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
MTWO YEAR NEONATAL OUTCOMES ASSESSMENT DATE
OCARE PROFESSIONAL JOB ROLE CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
RPOSTCODE OF USUAL ADDRESS (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
MSITE CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
or
ORGANISATION CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
RTWO YEAR NEONATAL OUTCOMES ASSESSMENT NOT CARRIED OUT REASON
RPERSON DEATH DATE (POST DISCHARGE FROM NEONATAL CRITICAL CARE)

OR

Two Year Administration (Withheld):
To carry administrative information relating to the Two Year Neonatal Outcomes Assessment where anonymisation of the record IS required.
One occurrence of this group is required
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTWO YEAR NEONATAL OUTCOMES ASSESSMENT YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
OCARE PROFESSIONAL JOB ROLE CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
RSITE CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
or
ORGANISATION CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
RTWO YEAR NEONATAL OUTCOMES ASSESSMENT NOT CARRIED OUT REASON
RPERSON DEATH YEAR AND MONTH (POST DISCHARGE FROM NEONATAL CRITICAL CARE)
and
NUMBER OF MINUTES (BIRTH TO EVENT)

Two Year TPRG-SEND - Neuromotor:
To carry information relating to TPRG-SEND Neuromotor at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION C)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION D)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION E)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION F)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION G)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION H)

Two Year TPRG-SEND - Malformations:
To carry information relating to TPRG-SEND Malformations at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (MALFORMATIONS QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (MALFORMATIONS QUESTION B)

Two Year TPRG-SEND - Respiratory and Cardiovascular:
To carry information relating to TPRG-SEND Respiratory and Cardiovascular System at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RESPIRATORY AND CARDIOVASCULAR SYSTEM QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RESPIRATORY AND CARDIOVASCULAR SYSTEM QUESTION B)

Two Year TPRG-SEND - Gastrointestinal Tract:
To carry information relating to TPRG-SEND Gastrointestinal Tract at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION A)
RSPECIAL DIET DESCRIPTION
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION C)

Two Year TPRG-SEND - Renal:
To carry information relating to TPRG-SEND Renal at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION C)

Two Year TPRG-SEND - Neurology:
To carry information relating to TPRG-SEND Neurology at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION C)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION D)

Two Year TPRG-SEND - Growth:
To carry information relating to TPRG-SEND Growth at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPERSON WEIGHT (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
POBSERVATION DATE (WEIGHT)
or
OBSERVATION YEAR AND MONTH (WEIGHT)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RPERSON HEIGHT IN CENTIMETRES (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
POBSERVATION DATE (HEIGHT)
or
OBSERVATION YEAR AND MONTH (HEIGHT)
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RHEAD CIRCUMFERENCE IN CENTIMETRES (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT)
POBSERVATION DATE (HEAD CIRCUMFERENCE)
or
OBSERVATION YEAR AND MONTH (HEAD CIRCUMFERENCE)
and
NUMBER OF MINUTES (BIRTH TO EVENT)

Two Year TPRG-SEND - Development:
To carry information relating to TPRG-SEND Development at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT ADDITIONAL QUESTION FOR NATIONAL NEONATAL DATA SET)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION C)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION D)
RNEURODEVELOPMENTAL ASSESSMENT ALREADY TAKEN INDICATOR
RNEURODEVELOPMENTAL ASSESSMENT TEST NAME

Two Year TPRG-SEND - Neurosensory:
To carry information relating to TPRG-SEND Neurosensory at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION C)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION D)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION E)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION F)

Two Year TPRG-SEND - Communication:
To carry information relating to TPRG-SEND Communication at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION B)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION C)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION D)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION E)

Two Year TPRG-SEND - Special Questions:
To carry information relating to TPRG-SEND Special Questions at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (SPECIAL QUESTIONS QUESTION A)
RTPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (SPECIAL QUESTIONS QUESTION B)
RCHILD DIFFICULT TO TEST REASON CODE
Multiple occurrences of this item are permitted

Two Year TPRG-SEND - Neurological Diagnosis:
To carry information relating to TPRG-SEND Neurological Diagnosis at the Two Year Neonatal Outcomes Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RPATIENT DIAGNOSIS INDICATOR (CEREBRAL PALSY)
RCEREBRAL PALSY TYPE CODE (NATIONAL NEONATAL DATA SET)
RDIAGNOSIS (ICD NEUROLOGICAL)
Multiple occurrences of this item are permitted

Two Year Bayley III Assessment:
To carry information relating to the Bayley III Assessment.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PASSESSMENT TOOL COMPLETION DATE
or
ASSESSMENT TOOL COMPLETION YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)

Two Year Bayley III - Cognitive:
To carry information relating to the Bayley III Cognitive sub-scale.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBAYLEY III COGNITIVE TOTAL RAW SCORE
RBAYLEY III COGNITIVE SCALE SCORE
RBAYLEY III COGNITIVE DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III COGNITIVE COMPOSITE SCORE

Two Year Bayley III - Communication:
To carry information relating to the Bayley III Communication sub-scales.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) TOTAL RAW SCORE
RBAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) SCALE SCORE
RBAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) COMPOSITE SCORE
RBAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) TOTAL RAW SCORE
RBAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) SCALE SCORE
RBAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) COMPOSITE SCORE
RBAYLEY III COMMUNICATION SUM TOTAL RAW SCORE
RBAYLEY III COMMUNICATION SUM TOTAL SCALE SCORE
RBAYLEY III COMMUNICATION SUM TOTAL DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III COMMUNICATION SUM TOTAL COMPOSITE SCORE

Two Year Bayley III - Neuromotor:
To carry information relating to the Bayley III Neuromotor sub-scales.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBAYLEY III NEUROMOTOR (FINE MOTOR) TOTAL RAW SCORE
RBAYLEY III NEUROMOTOR (FINE MOTOR) SCALE SCORE
RBAYLEY III NEUROMOTOR (FINE MOTOR) DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III NEUROMOTOR (FINE MOTOR) COMPOSITE SCORE
RBAYLEY III NEUROMOTOR (GROSS MOTOR) TOTAL RAW SCORE
RBAYLEY III NEUROMOTOR (GROSS MOTOR) SCALE SCORE
RBAYLEY III NEUROMOTOR (GROSS MOTOR) DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III NEUROMOTOR (GROSS MOTOR) COMPOSITE SCORE
RBAYLEY III NEUROMOTOR SUM TOTAL RAW SCORE
RBAYLEY III NEUROMOTOR SUM TOTAL SCALE SCORE
RBAYLEY III NEUROMOTOR SUM TOTAL DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III NEUROMOTOR SUM TOTAL COMPOSITE SCORE

Two Year Bayley III - Social-Emotional:
To carry information relating to the Bayley III Social-Emotional sub-scale.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBAYLEY III SOCIAL-EMOTIONAL TOTAL RAW SCORE
RBAYLEY III SOCIAL-EMOTIONAL SCALE SCORE
RBAYLEY III SOCIAL-EMOTIONAL DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III SOCIAL-EMOTIONAL COMPOSITE SCORE

Two Year Bayley III - Adaptive Behaviour:
To carry information relating to the Bayley III Adaptive Behaviour sub-scales.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
RBAYLEY III ADAPTIVE BEHAVIOUR (COMMUNICATION) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (COMMUNICATION) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (COMMUNITY USE) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (COMMUNITY USE) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (FUNCTIONAL PRE-ACADEMICS) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (FUNCTIONAL PRE-ACADEMICS) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (HOME LIVING) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (HOME LIVING) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (HEALTH AND SAFETY) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (HEALTH AND SAFETY) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (LEISURE) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (LEISURE) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SELF-CARE) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SELF-CARE) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SELF-DIRECTION) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SELF-DIRECTION) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SOCIAL) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (SOCIAL) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (MOTOR) TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR (MOTOR) SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR SUM TOTAL RAW SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR SUM TOTAL SCALE SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR SUM TOTAL DEVELOPMENTAL AGE EQUIVALENT SCORE
RBAYLEY III ADAPTIVE BEHAVIOUR SUM TOTAL COMPOSITE SCORE

Two Year Griffiths:
To carry information relating to Griffiths Scale of Infant Development.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PASSESSMENT TOOL COMPLETION DATE
or
ASSESSMENT TOOL COMPLETION YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RGRIFFITHS LOCOMOTOR SCALE SCORE
RGRIFFITHS PERSONAL-SOCIAL SCALE SCORE
RGRIFFITHS LANGUAGE SCALE SCORE
RGRIFFITHS EYE AND HAND CO-ORDINATION SCALE SCORE
RGRIFFITHS PERFORMANCE SCALE SCORE
RGRIFFITHS PRACTICAL REASONING SCALE SCORE

Two Year Schedule of Growing:
To carry information relating to Schedule of Growing Skills.
One occurrence of this group is permitted
.
M/R/OData Set Data Elements
M/R/O/PData Set Data Elements
PASSESSMENT TOOL COMPLETION DATE
or
ASSESSMENT TOOL COMPLETION YEAR AND MONTH
and
NUMBER OF MINUTES (BIRTH TO EVENT)
RSCHEDULE OF GROWING SKILLS (PASSIVE POSTURE) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (ACTIVE POSTURE) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (LOCOMOTOR) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (MANIPULATIVE) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (VISUAL) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (HEARING AND LANGUAGE) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (SPEECH AND LANGUAGE) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (INTERACTIVE SOCIAL) SCALE SCORE
RSCHEDULE OF GROWING SKILLS (SELF-CARE SOCIAL) SCALE SCORE

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ACCESSIBILITY

Change to Supporting Information: Changed Description

Accessibility statement for the NHS Data Model and Dictionary

NHS Digital is committed to making its websites accessible, in accordance with the Public Sector Bodies (Websites and Mobile Applications) (No. 2) Accessibility Regulations 2018.

Compliance statement

This website is non-compliant with Public Sector Bodies (Websites and Mobile Applications) (No.This website is compliant with Public Sector Bodies (Websites and Mobile Applications) (No. 2) Accessibility Regulations 2018.

Non accessible content

The content of this website has not yet been tested against the existing accessibility standards. This means that certain assistive technologies may not work for this service or that users with other accessibility needs may not be able to successfully navigate this service.

Assistive technologies that may not work for this service include:

  • voice recognition software
  • screen readers
  • screen enlargement applications

Preparation of this accessibility statement

This statement was prepared on 9 September 2019. It was last updated on 16 September 2019.This statement was prepared on 21 July 2020.

This assessment was carried out by NHS Digital.This assessment was carried out by NHS Digital, see Make your website or app accessible and publish an accessibility statement.

Feedback and contact information

Please contact information.standards@nhs.net or phone the Information Standards Service Desk on 0300 303 4777 to provide feedback or to request any further information about this statement.

Enforcement procedure

If you have a concern you wish to escalate, please contact the Equality Advisory and Support Service (EASS).If you have a concern you wish to escalate, please contact the Equality Advisory and Support Service (EASS). They will then relay this to the Equality and Human Rights Commission.

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ORGANISATION CODING FRAMES

Change to Supporting Information: New Supporting Information

For further information, see the attribute ORGANISATION CODE.

ORGANISATION CODING FRAMES

  • All NHS ORGANISATIONS are coded using coding frames, as shown in the tables below:

Character
Position

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame

 

Organisation
Type Identifier

 

Organisation Identifier

 
   

B Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

C Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

D Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

E Frame

 

Organisation Identifier

 
       

F Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

G Frame

 

Organisation Type Identifier

 

Practice Identifier

 
  

H Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

I Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

K Frame

 

Organisation Identifier

 
     

 L Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Organisation Type Identifier

 
   

M Frame

 

Organisation and Organisation Type Identifier

 
     

N Frame

 

Organisation Type Identifier

 

Organisation Identifier

 


A Frame:

Example
Non NHS Organisation (Independent Provider) e.g. 8HA03

  • 8 = Organisation Type Identifier
  • Remainder = Organisation Identifier

B Frame:

Example
Local Service Provider e.g. LSP01

  • LSP = Organisation Type Identifier
  • 01 = Organisation Identifier

Also:

Application Service Providere.g. YGM01
Education Establishmente.g. YDF01
NHS Support Agencye.g. YDD01



C Frame:

Example
School e.g. EE134290

  • EE = Organisation Type Identifier
  • Remainder = Organisation Identifier

D Frame:

Example
Care Trust e.g. TAK

  • T = Organisation Type Identifier
  • AK = Organisation Identifier

Also:

Commissioning Support Unit (CSU) / 
Data Services for Commissioners Regional Office (DSCRO)
e.g. 0AA
High Level Health Geography, e.g. Sustainability and Transformation Partnershipe.g. QJK
Local Health Board (Wales)e.g. 7A1
NHS Truste.g. RH8
Justice Organisatione.g. VAA



E Frame:

Example
Government Office Region (GOR) e.g. K

  • K = Organisation Identifier

Note: Government Office Region (GOR) is identified by a one character code; no other one character code exists.


F Frame:

Example
Pharmacy Headquarters e.g. P001

  • P = Organisation Type Identifier
  • 001 = Organisation Identifier

Also:

Care Home Headquarterse.g.CA0A
Optical Headquarters e.g.T1A1



G Frame:

Example
GP Practices in England and Wales e.g. Y00001

  • Y = Organisation Type Identifier
  • 00001 = Practice Identifier

Also:

Dental Practicee.g.V20052



H Frame:

Example
Cancer Network e.g. N01

  • N0 (where the 2nd character is numeric and not alpha) = Organisation Type Identifier
  • 1 = Organisation Identifier

Also:

Booking Management System (BMS) Call Centre Establishmente.g. YF1
Government Departmente.g. XDA
Independent Sector Healthcare Provider (ISHP) (where the 2nd character is alpha)e.g. NV7
National Application Service Providere.g. YEA
Other Statutory Authority (OSA)e.g. X16



I Frame:

Example
Special Health Authority (SpHA) e.g. T1150

  • T1 = Organisation Type Identifier
  • 150 = Organisation Identifier

K Frame:

Example
NHS Wales Informatics Service e.g. W00

  • W00 = Organisation Identifier

L Frame:

Example
Northern Ireland Local Commissioning Group e.g. ZC010

  • Characters 1-3 (ZC0) AND character 5 (0) = Organisation Type Identifier
  • Character 4 = Organisation Identifier

Note: this is a 5 character method of displaying Northern Ireland Local Commissioning Group identifiers.
Characters 3 and 5 are ‘fillers’. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory) zeros can be omitted, e.g. ZC1.
The 3 character method of displaying the Northern Ireland Local Commissioning Group identifiers fit under the H Frame.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009.


M Frame:

Example
Clinical Commissioning Group (CCG) e.g. 12A

  • 12A = Organisation and Organisation Type Identifier

Also:

Local Authoritye.g.000



N Frame:

Example
GP Abeyance and Dispersal GP Practice e.g. G7817414

  • G78 = Organisation Type Identifier
  • 17414 = Organisation Identifier

The structure and format of ORGANISATION CODES maintained by the Organisation Data Service, NHS Prescription Services, NHS Dental Services and other agencies are detailed in the tables below.

ORGANISATION CODES TABLES

Table 1: CODING FORMATS FOR ORGANISATIONS IN ENGLAND AND WALES

Organisation Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 
  

Application Service Provider

 

B

 

Y

 

G

 

M

 

A-9

 

A-9

 
   

ODS 

 

e.g. YGM01

 

Booking Management System (BMS) Call Centre Establishment

 

H

 

Y

 

F

 

A-9

 
     

ODS

 

e.g. YF1

 

Cancer Network

 

H

 

N

 

0-9

 

A-9

 
     

ODS

 

e.g. N01

 

Cancer Registry

A

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. Y0401

All Cancer Registries in England are now part of the National Cancer Registration and Analysis Service

Care Home Headquarters

 

F

 

A, C or D

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. CA0A

 

Care Trust (CT)

 

D

 

T

 

A-Y

 

A-Y

 
     

ODS

 

e.g. TAK

 

Clinical Commissioning Group (CCG

M

 

0-9

 

0-9

 

A-Y

 
     

ODS

 

e.g. 12A

 

Clinical Network

B

 

Y

 

D

 

G

 

A-9

 

A-9

 
   

ODS

 

e.g. YDG01

 

Commissioning Support Unit (CSU) / Data Services for Commissioners Regional Office (DSCRO)

D

 

0

 

A-Y

 

A-Y

 
     

ODS

 

e.g. 0AA

 

Dental Practice - England and Wales

 

G

 

V

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Dental Services

 

e.g. V20052

 

Education Establishment

 

B

 

Y

 

D

 

F

 

A-9

 

A-9

 
   

ODS

 

e.g. YDF01

 

Executive Agency

 

N/A

See Note 1 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X09

 

Executive Agency Programme

 

N/A

See Note 1 

X

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

ODS

 

First three characters denote Executive Agency

e.g. X09001

 

Government Department

 

H

 

X

 

A-Y

 

A-Y

 
     

ODS

 

e.g. XDA

 

Government Office Region (GOR)

 

E

A-Y

 
       

ONS

 

e.g. K

Government Office Regions (GORs) closed 31 March 2011 - from 1 April 2011 referred to as Regions

 

GP Abeyance and Dispersal GP Practice

 

N

G

 

7

 

8

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

ODS

 

e.g. G7817414

 

GP Practices in England and Wales

G

 

A-H,
J-N,
P,
W &
Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Prescription Services

 

Char 1 = W for Welsh GP Practice.

All other values represent GP Practices in England.

Note: from 2003, ALL newly allocated Practice Codes in England begin with a Y

e.g. Y00001

 
Justice Organisation

D

 

V or W

 

A-Y

 

A-9

 

 

 

 

 

 

 

 

 

 

 

ODS

 

e.g. VAA

 

High Level Health Geography, e.g. Sustainability and Transformation Partnership 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. QJK

 

Independent Sector Healthcare Provider (ISHP)

H

 

A, B, D, G, I, K, L, M , N, O, S, U, V, W

 

A-Y

 

A-Y, 0-9

 
     

ODS

 

e.g. NV7

 

Local Authority (LA)

 

M

 

0-9

 

0-9

 

0-9

 
     

ODS

 

e.g. 000

 

Local Health Board (Wales)

 

B

 

7

 

A-9

 

A-9

 
     

ODS 

 

e.g. 7A1 

 

Local Service Provider (LSP)

 

B

 

L

 

S

 

P

 

0-9

 

0-9

 
   

ODS

 

e.g. LSP01

 

Military Hospital

B

 

X

 

M

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g.XMDA1

 

National Application Service Provider

H

 

Y

 

E

 

A-9

 
     

ODS

 

e.g. YEA

 

National Groupings (England) 

H

Y

 

5

 

0-9

 
     

ODS

 

e.g. Y51

 

NHS Support Agency 

B

 

Y

 

D

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g. YDD01

 

NHS Trust

 

D

 

R

 

A-9

 

A-9

 
     

ODS

 

e.g. RH8

 

NHS Wales Informatics Service (NWIS)

 

K

 

W

 

0

 

0

 
     

ODS

 

Only one organisation of this type exists for Wales

e.g. W00

 

Non NHS Organisation (Independent Provider)

 

A

 

8

 

A-Y

 

A-9

 

0-9

 

0-9

 
   

ODS

 

e.g. 8HA03

 

Northern Ireland Health & Social Care Board

N/A

 

Z

 

B

 

0

 

0

 

1

 
   

ODS

 

e.g. ZB001

 

Northern Ireland Health & Social Care Trust

 

I

 

Z

 

T

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. ZT001

 

Northern Ireland Local Commissioning Group

 

L

 

Z

 

C

 

0

 

0-9

 

0

 
   

Department for Health, Social Services and Public Safety (DHSSPS), Northern Ireland

 

e.g. ZC010

Note that characters 3 and 5 are ‘fillers’ to create a 5 character code. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory), zeros can be omitted and fits under the H frame: e.g. ZC1.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009. 

 

Optical Headquarters

 

 

 

0-9

 

A-9

 

A-9

 
    

ODS 

 

e.g. T1A1 

 

Other Statutory Authority (OSA)

 

H

 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X16

 

Pharmacy

 

A

 

F

 

A-Y

 

A-9

 

A-9

 

A-9

 
   

ODS

 

e.g. FA002

 

Pharmacy Headquarters

 

F

 

P

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. P001

 

Primary Care Trust (PCT)

 

D

 

5

 

A-9

 

A-9

 
     

ODS

 

e.g. 5CT

All Primary Care Trusts closed 31 March 2013

Prison Health Service

B

 

Y

 

D

 

E

 

A-9

 

A-9

 
   

ODS

 

e.g. YDE01

 

School

 

C

 

E

 

E

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

Department for Education and ODS

 

e.g. EE134290

 

Special Health Authority (SpHA)

 

I

 

T

 

1

 

0-9

 

0-9

 

0

 
   

ODS

 

e.g. T1150

 

Strategic Health Authority (SHA)

 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. Q30

All Strategic Health Authorities in England closed 31 March 2013

Welsh Assembly

 

D

 

W

 

0-9

 

0-9

 

 

 

 
   

ODS

 

e.g. W01

 

Welsh Health Commission 

A

 

W

 

0-9

 

0-9

 

A-Y

 

A-Y

 
   

ODS

 

e.g. W01HC

 


Notes:

  • Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.

Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.

Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).

 

Table 2: CODING FORMATS FOR ORGANISATIONS IN SCOTLAND

Scottish ORGANISATION CODES are supplied by the Information Standards Directorate (ISD) from NHS Scotland and published by the Organisation Data Service.

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Scotland 

S

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS

 
 

Scottish GP Fundholder

 

S

 

A-Z

 

B

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the GPFH reports to.
3rd character (always B) shows GPFH status.

 

Scottish Health Agency

 

S

 

D

 

0-9

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character (D) identifies Scottish Office agencies

 

Scottish Health Board

 

S

 

A-Z

 

9

 

9

 

9

 
 

 ISD, Scotland

 

 

Scottish Provider

 

S

 

A-Z

 

A,C,D

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the organisation reports to.
3rd character identifies the organisation type:
A= Health Unit
C = Hospital Trust
D = Nursing Home

 


Table 3: CODING FORMATS for ORGANISATIONS in OTHER HOME COUNTRIES

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Alderney

 

A

 

L

 

D

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Guernsey

 

G

 

U

 

E

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Isle of Man (IOM)

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Jersey

 

J

 

E

 

R

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

Primary Healthcare Directorate (Isle of Man)

 

Y

 

K

 

A-9

 
   

ODS

 

e.g. YK1

 


Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).

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ORGANISATION SITE CODING FRAMES

Change to Supporting Information: New Supporting Information

For further information, see the attribute ORGANISATION SITE CODE.

ORGANISATION SITE CODING FRAMES

Character
Position

1

2

3

4

5

6

7

8

9

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
  

B Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
    

C Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Site or Sub-Division Identifier

 
    

D Frame

 

Organisation Type
Identifier

 

Practice Identifier

 

Branch Surgery Identifier

 

F Frame

 

Organisation Type
Identifier

 

Organisation Identifier

 
    

H Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

I Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

J Frame

 

Organisation Type Identifier

Organisation Identifier

    

K Frame

 

Organisation and Organisation Type Identifier

Organisation Site Identifier

    

L Frame

 

Organisation Type Identifier and
Site or Sub-Division Identifier

    

A Frame:

Example
Local Service Provider Site e.g. LSP0101

  • LSP = Org Type Identifier
  • 01 = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

B Frame:

Example
Care Trust Site e.g. TAK01

  • T = Organisation Type Identifier
  • AK = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

Also:

Government Department Sitee.g. XDA01
Local Authority Sitee.g. 000AA
Local Health Board (Wales) Sitee.g. 7A101 
NHS Trust Sitee.g. RH802 
Other Statutory Authority (OSA) Site e.g. X1601 
 e.g. Q3001

C Frame:

Example
Independent Sector Healthcare Provider (ISHP) Site e.g. NV701

  • NV = Organisation Site Type Identifier
  • 7 = Organisation Identifier
  • 01 = Site or Sub-Division Identifier

D Frame

Example
GP Practice Branch Surgery: e.g. H81010002

  • H (and length of code) = Organisation Identifier
  • 81010 = Organisation Identifier (parent GP Practice)
  • 002 = Branch Surgery Identifier

F Frame

Example
Commissioning Support Unit Site: e.g. 0AA01

  • 0 = Organisation Type Identifier
  • AA01 = Organisation Identifier

H Frame

Example
Prison: e.g. YDE01

  • YDE = Organisation Type Identifier
  • 01 = Site or Sub-Division Identifier

I Frame

Example
Optical Site: e.g. TP01A

  • TP = Organisation Type Identifier
  • 01A = Site or Sub-Division Identifier

J Frame

Example
Care Home Site: e.g. VN01A

  • VN = Organisation Type Identifier
  • 01A = Site or Sub-Division Identifier

Also:

Health Observatorye.g. XP001
Primary Healthcare Directorate (Isle of Man) Sitee.g. YK101



K Frame

Example
Clinical Commissioning Group (CCG) Site e.g. 11AAA - 99YZZ

  • 11A = Organisation and Organisation Type Identifier
  • AA = Organisation Site Identifier

L Frame

Example
Special Health Authority (SpHA) Site: e.g. T115A

  • T115A – Organisation Type Identifier and Site or Sub-Division Identifier

The structure and format of ORGANISATION SITE CODES maintained by the Organisation Data Service, NHS Prescription Services and other agencies are detailed in the tables below.

NHS ORGANISATION SITE CODES TABLES

Coding Formats

Table 1: CODING FORMATS FOR ORGANISATION SITES IN ENGLAND AND WALES

Organisation Site Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

9

 
  

Care Home Site

 

J

 

V

 

L, M or N

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. VN01A, VM01A, VL01A

 

Care Trust Site

 

B

 

T

 

A-Y

 

A-Y

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning Care Trust

e.g. TAK01

 
Clinical Commissioning Group (CCG) Site  

K

 

0-9

 

0-9

 

A-Y

 

A-Y

 

A-Y

 
    

ODS

 

First three characters denote owning Clinical Commissioning Group

e.g. 11AAA - 99YZZ

 

Commissioning Support Unit (CSU) Site

 

F

 

0

 

A-Y

 

A-Y

 

A-9

 

A-9

 
    

ODS

 

e.g. 0AA01

 

Executive Agency Site

 

N/A

See Note

 

X

 

0-9

 

0-9

 

0-9

 

0-9

 
    

ODS

 

First three characters denote Executive Agency

e.g. X0901

 

Government Department Site

 

B

 

X

 

A-Y

 

A-Y

 

0-9

 

0-9

 
    

ODS

 

First three characters denote Government Department

e.g. XDA01

 

GP Practice Branch Surgery - England and Wales

 

D

 

A-H,
J-N,
P,
W &
Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

ODS

 

First 6 characters denote parent practice. Char 1 = W for Welsh GP Practice.

All other values represent English GP Practices

e.g. H81010002

 
Health Observatory

X

P

 

0-9

 

0-9

 

0-9

 
    

ODS

 

e.g. XP001

 

Care Trust Site

 

B

 

Q

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. TAK01

 

Independent Sector Healthcare Provider (ISHP) Site

 

C

 

A, B, D, G, I, K, L, M , N, O, S, U, V, W

 

A-Y

 

A-Y, 0-9

 

A-Y, 0-9

 

A-Y, 0-9

 
    

ODS

 

First three characters denote owning Independent Sector Healthcare Provider (ISHP)

e.g. NV701

Note: The A-Y range includes all letters except Z

 

Local Authority (LA) Site

 

B

 

0-9

 

0-9

 

0-9

 

A-Z

 

A-Z

 
    

ODS

 

First three characters denote parent Local Authority

e.g. 000AA

 
Local Health Board (Wales) Site

B

 

7

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning NHS Trust

e.g. 7A101

 

Local Service Provider Site

 

A

 

L

 

S

 

P

 

0-9

 

0-9

 

0-9

 

0-9

 
  

ODS

 

First five characters denote owning Local Service Provider

e.g. LSP0101

 

NHS Trust Site

 

B

 

R

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning NHS Trust

e.g. RH802

 

Optical Site

 

I

 

T

 

P or Q

 

0-9

 

A-9

 

A-9

 
    

ODS

 

e.g. TP01A, TQ01A

 

Other Statutory Authority (OSA) Site

 

B

 

X

 

0-9

 

0-9

 

0-9

 

0-9

 
    

ODS

 

First three characters denote owning Other Statutory Authority

e.g. X1601 

 

Primary Care Trust (PCT) Site

 

B

 

5

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning Primary Care Trust

e.g. 5CT49

All Primary Care Trusts closed 31 March 2013

Special Health Authority (SpHA) Site

 

L

 

T

 

1

 

0-9

 

0-9

 

A-Y, 1-9

 
    

ODS

 

The characters do NOT denote any ownership.

e.g. T115A

Strategic Health Authority (SHA) Site

 

B

 

Q

 

A-9

 

A-9

 

A-9

 

A-9

 
    

ODS

 

First three characters denote owning SHA Trust

e.g. Q3001

All Strategic Health Authorities closed 31 March 2013 - from 1 April 2013 referred to as High Level Health Geography Site

Note: Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.

Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.

Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).


Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity). This applies to all ORGANISATION SITE CODES in the Coding Format Table above except Independent Sector Healthcare Provider (ISHP) sites.

  

Table 2: CODING FORMATS FOR ORGANISATION SITES IN OTHER HOME COUNTRIES

Organisation Site Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

9

 
  

Primary Healthcare Directorate (Isle of Man) Site

J

 

Y

 

K

 

A-9

 

A-9

 

A-9

 
  

 

 
 

ODS

 

e.g. YK101

 

Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).

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SUPPORTING DEFINITIONS MENU

Change to Supporting Information: Changed Description


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URGENT TREATMENT CENTRE

Change to Supporting Information: Changed Description

An Urgent Treatment Centre is an Emergency Care Department.

Urgent Treatment Centres  (UTC) are Community and Primary Care facilities providing access to urgent care for a local population.

All Urgent Treatment Centres are classed as EMERGENCY CARE DEPARTMENT TYPE National Code 'Other type of A&E/minor injury ACTIVITY with designated accommodation for the reception of accident and emergency PATIENTS. The department may be doctor led or NURSE led and treats at least minor injuries and illnesses and can be routinely accessed without APPOINTMENT. A SERVICE mainly or entirely APPOINTMENT based (for example a GP Practice or Out-Patient Clinic) is excluded even though it may treat a number of PATIENTS with minor illness or injury.All Urgent Treatment Centres are classed as EMERGENCY CARE DEPARTMENT TYPE National Code 'Other type of A&E/minor injury ACTIVITY with designated accommodation for the reception of accident and emergency PATIENTS. The department may be doctor led or NURSE led and treats at least minor injuries and illnesses and can be routinely accessed without APPOINTMENT. A SERVICE mainly or entirely APPOINTMENT based (for example a GP Practice or Out-Patient Clinic) is excluded even though it may treat a number of PATIENTS with minor illness or injury. Excludes NHS walk-in centres'.

For further information on Urgent Treatment Centres see the NHS England website at: Urgent Treatment Centres.

 

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ACTIVITY GROUP

Change to Class: Changed Attributes

Attributes of this Class are:
A and E PATIENT GROUP
ACTIVITY GROUP TYPE
ADJUSTED LENGTH OF STAY FOR PATIENT LEVEL INFORMATION COSTING
ADMISSION METHOD
CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS
CANCER TRANSFER REASON FOR INTER PROVIDER TRANSFER
CANCER TREATMENT INTENT
CARE PACKAGE IDENTIFIER FOR NHS CONTINUING HEALTHCARE
CARE PACKAGE REVIEW ELIGIBILITY OUTCOME FOR NHS CONTINUING HEALTHCARE
CARE PACKAGE REVIEW OUTCOME CODE FOR NHS CONTINUING HEALTHCARE
CARE PACKAGE REVIEW TYPE FOR NHS CONTINUING HEALTHCARE
CARER RESIDENT INDICATION CODE FOR NATIONAL NEONATAL DATA SET
CHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY
CLINICAL COMMISSIONING GROUP ELIGIBILITY DECISION OUTCOME FOR NHS CONTINUING HEALTHCARE
COMMUNITY TREATMENT ORDER END REASON
CONSULTANT EPISODE COMPLETION STATUS FOR PATIENT LEVEL INFORMATION COSTING
CONTINUITY OF CARER PATHWAY INDICATOR
DAUGHTER BORN AT THIS ENCOUNTER INDICATOR
DELIVERY PLACE CHANGE REASON
DISCHARGE DESTINATION
DISCHARGED TO HOSPITAL AT HOME SERVICE INDICATOR
DISCHARGE FROM IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES SERVICE REASON
DISCHARGE METHOD
DISCHARGE REASON FOR MOTHER MATERNITY SERVICES
ESTIMATED DATE OF DELIVERY
FIRST REGULAR DAY OR NIGHT ADMISSION
FITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER INDICATOR
HOLISTIC NEEDS ASSESSMENT POINT OF PATHWAY FOR CANCER
LAST EPISODE IN SPELL INDICATOR CODE
LENGTH OF STAY ADJUSTMENT
LENGTH OF STAY ADJUSTMENT REASON
MATERNAL CRITICAL INCIDENT INDICATOR
MENTAL HEALTH ABSOLUTE DISCHARGE RESPONSIBILITY
MENTAL HEALTH ADMITTED PATIENT CLASSIFICATION
MENTAL HEALTH CONDITIONAL DISCHARGE END REASON
MENTAL HEALTH DELAYED DISCHARGE ATTRIBUTABLE TO INDICATION CODE
MENTAL HEALTH DELAYED DISCHARGE REASON
MULTIDISCIPLINARY TEAM RECOMMENDATION FOR NHS CONTINUING HEALTHCARE STANDARD
NEONATAL CRITICAL INCIDENT INDICATOR
NEONATAL LEVEL OF CARE
NHS CONTINUING HEALTHCARE ACTIVITY TYPE
NHS CONTINUING HEALTHCARE COMMISSIONED SERVICES INDICATOR
NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE DECISION OUTCOME
NHS CONTINUING HEALTHCARE REFERRAL EXCEEDING 28 DAYS TIME BAND CATEGORY
NHS CONTINUING HEALTHCARE TYPE
NON SMOKING CONFIRMATION STATUS AT 4 WEEKS
OPERATION FUNDING FOR NATIONAL JOINT REGISTRY
OUTCOME AT 4 WEEK FOLLOW UP FOR STOP SMOKING
PALLIATIVE CARE SPECIALIST SEEN INDICATOR
PALLIATIVE TREATMENT REASON FOR UPPER GASTROINTESTINAL
PATIENT ATTENDANCE SYMPTOMATIC INDICATOR FOR SEXUAL HEALTH SERVICE
PATIENT CLASSIFICATION
PATIENT RECEIVING ONE TO ONE NURSING CARE INDICATOR
PERSONALISED CARE AND SUPPORT PLANNING POINT OF CANCER PATHWAY
PHARMACOTHERAPY STOP SMOKING AID RECEIVED
PLANNED DELIVERY SETTING CHANGE REASON
PREGNANCY OUTCOME
PREGNANCY OUTCOME CODE
PSYCHIATRIC PATIENT STATUS
SOURCE OF ADMISSION

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CLINICAL INVESTIGATION RESULT ITEM

Change to Class: Changed Attributes

Attributes of this Class are:
KINVESTIGATION RESULT DATE
ABNORMALITY DETECTED INDICATOR
ACUTE MYELOID LEUKAEMIA RISK FACTORS
ALK GENE FUSION STATUS
ANKLE DORSIFLEXION CODE FOR PRIMARY ANKLE REPLACEMENT
ANKLE PLANTARFLEXION CODE FOR PRIMARY ANKLE REPLACEMENT
BLOOD PRODUCTS REQUIRED FOLLOWING OESOPHAGECTOMY INDICATION CODE
BREAST BIOPSY REFERRAL OUTCOME
BREAST CANCER HISTOLOGICAL TYPE
BREAST PROGESTERONE RECEPTOR STATUS
BREAST SCREENING MAMMOGRAPHY OUTCOME CODE
BRONCHOSCOPY PERFORMED TYPE
CANCER SPECIMEN NATURE
CANCER SURGICAL ADMISSION TYPE
CANCER VASCULAR OR LYMPHATIC INVASION
CENTRAL TONE STATUS
CERVICAL GLANDULAR INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE
CHLAMYDIA TEST RESULT
CLINICAL FRAILTY SCALE POINT
CLINICAL INVESTIGATION ITEM TYPE
CLINICAL INVESTIGATION RESULT ANALYSED DATE
CLINICAL INVESTIGATION RESULT RECEIVED DATE
CLINICAL INVESTIGATION RESULT VALUE
CONDITION SEEN IN ABDOMEN DURING XRAY
CYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR
CYTOGENETIC ABNORMALITY RISK GROUP
CYTOGENETIC ANALYSIS CODE
CYTOGENETIC PRESENCE TYPE FOR RHABDOMYOSARCOMA
CYTOGENETIC RISK GROUP FOR PAEDIATRIC MOLECULAR GENETIC ABNORMALITIES
DEGREES OF FIXED FLEXION DEFORMITY FOR PRIMARY KNEE REPLACEMENT
DEGREES OF FLEXION RANGE FOR PRIMARY KNEE REPLACEMENT
DETRUSOR MUSCLE PRESENCE INDICATION CODE
EPIDERMAL GROWTH FACTOR RECEPTOR MUTATIONAL STATUS
ESTROGEN RECEPTOR STATUS
EUROPEAN LEUKAEMIA NET GENETIC RISK CODE
EXCISION MARGIN INDICATION CODE
FINDING SCHEME IN USE
GENETIC CONFIRMATION INDICATOR
GRADE OF DIFFERENTIATION
GYNAECOLOGICIAL CANCER SITE OF PERITONEAL INVOLVEMENT
HAEMOGLOBINOPATHY INVESTIGATION RESULT CODE FOR NATIONAL NEONATAL DATA SET
HEPATITIS B INFECTION INDICATION CODE
HEPATITIS C INFECTION INDICATION CODE
HORMONE EXPRESSION TYPE
HUMAN EPIDERMAL GROWTH FACTOR IN SITU HYBRIDISATION RECEPTOR STATUS FOR BREAST
HUMAN EPIDERMAL GROWTH FACTOR RECEPTOR STATUS FOR BREAST
HUMAN PAPILLOMAVIRUS IN SITU HYBRIDISATION TEST RESULT
IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE
INTRAVENTRICULAR HAEMORRHAGE GRADE
INVASIVE CANCER SPECIAL TYPE INDICATOR
INVESTIGATION EXAMINATION RESULT
INVESTIGATION RUBELLA RESULT INDICATOR
LEUKAEMIC CELLS PRESENT POST MINIMAL RESIDUAL DISEASE INDUCTION PERCENTAGE
LYMPH NODE STATUS
METASTASIS EXTENT CODE
MICROSATELLITE INSTABILITY TESTING RESULT
MICROSCOPIC INVOLVEMENT INDICATION CODE FOR FALLOPIAN TUBE OR OVARIAN CANCER
MICROSCOPIC INVOLVEMENT INDICATION CODE FOR UTERINE SEROSA
MICROSCOPIC INVOLVEMENT INDICATOR FOR PARAMETRIUM OR CERVICAL STROMA
MICROSCOPIC INVOLVEMENT INDICATOR FOR VAGINAL
NEWBORN BLOOD SPOT TEST OUTCOME STATUS
NEWBORN HEARING AUDIOLOGY OUTCOME
NEWBORN HEARING SCREENING OUTCOME
NEWBORN HEARING SCREENING OUTCOME FOR NATIONAL NEONATAL DATA SET
NUMBER OF FETUSES
OBSERVATION VALUE
OESOPHAGECTOMY OESOPHAGEAL CONDUIT NECROSIS FAILURE TYPE
OESOPHAGOENTERIC LEAK SEVERITY TYPE
OTHER NON BREAST LOCALLY ADVANCED METASTATIC MALIGNANCY INDICATOR
P16 IMMUNOHISTOCHEMISTRY TEST RESULT
PAEDIATRIC MYELODYSPLASIA CLINICAL FINDINGS
PATHOLOGICAL RISK CLASSIFICATION CODE AFTER NEPHRECTOMY
PATHOLOGICAL RISK CLASSIFICATION CODE AFTER PREOPERATIVE CHEMOTHERAPY
PD L1 EXPRESSION PERCENTAGE
PERINEURAL INVASION INDICATOR FOR SKIN
PERINEURAL INVASION INDICATOR FOR UROLOGICAL
PERITONEAL INVOLVEMENT INDICATION CODE
PERSON BLOOD GROUP
PERSON GENOTYPIC SEX FOR NATIONAL NEONATAL DATA SET
PERSON RHESUS FACTOR
PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR
PREOPERATIVE THERAPY RESPONSE TYPE
RECURRENT LARYNGEAL NERVE INJURY INVOLVEMENT TYPE
RENAL VEIN TUMOUR INDICATOR FOR PAEDIATRIC KIDNEY
RENAL VEIN TUMOUR THROMBUS INDICATION CODE FOR UROLOGICAL
RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE
RETINOPATHY OF PREMATURITY MAXIMUM ZONE
RETINOPATHY OF PREMATURITY PLUS DISEASE STATUS
RETINOPATHY OF PREMATURITY STAGE
ROS1 FUSION STATUS
S CATEGORY CODE
SENTINEL LYMPH NODE BIOPSY OUTCOME
SITUATION SCHEME IN USE
SPLENOMEGALY INDICATOR
SUBTALAR JOINT MOVEMENT CODE FOR PRIMARY ANKLE REPLACEMENT
TIBIA HINDFOOT ALIGNMENT CODE FOR PRIMARY ANKLE REPLACEMENT
TUMOUR NECROSIS
TUMOUR NECROSIS INDICATION CODE
UNIT OF MEASURE
VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR
VIABLE TUMOUR EVIDENCE AT RESECTION MARGIN
VISUAL ACUITY OR FIELD TEST RESULT

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MEDICAL DEVICE

Change to Class: Changed Description

Any instrument, apparatus, appliance, software, material or other article, whether used alone or in combination, including the software intended by its manufacturer to be used specifically for diagnostic and/or therapeutic purposes and necessary for its proper application, intended by the manufacturer to be used for human beings for the purpose of:Any instrument, apparatus, appliance, software, material or other article, whether used alone or in combination, including the software intended by its manufacturer to be used specifically for diagnostic and/or therapeutic purposes and necessary for its proper application.

A MEDICAL DEVICE is intended by the manufacturer to be used for human beings for the purpose of:

  • diagnosis, prevention, monitoring, treatment or alleviation of disease
  • diagnosis, monitoring, treatment, alleviation of or compensation for an injury or handicap
  • investigation, replacement or modification of the anatomy or of a physiological process
  • control of conception

and which does not achieve its principal intended action in or on the human body by pharmacological, immunological or metabolic means, but which may be assisted in its function by such means.

For further information on MEDICAL DEVICES, see the Medicines and Healthcare Products Regulatory Agency (MHRA) website at: Medical devices regulation and safety

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SERVICE PROVIDED UNDER AGREEMENT

Change to Class: Changed Attributes
Attributes of this Class are:
BEST PRACTICE TARIFF CODE
CARE PRODUCT TYPE FOR NHS CONTINUING HEALTHCARE
COMMISSIONED SERVICE CATEGORY CODE
CONTRACT UNIT FREQUENCY CODE FOR NHS CONTINUING HEALTHCARE
COST CENTRE CODE FOR NHS CONTINUING HEALTHCARE
HEALTHCARE RESOURCE GROUP CODE
LOCAL POINT OF DELIVERY DESCRIPTION
NUMBER OF COMMISSIONED WEEKLY HOURS OF CARE FOR NHS CONTINUING HEALTHCARE
PERSONAL HEALTH BUDGET TYPE
POINT OF DELIVERY CODE
POINT OF DELIVERY CODE FOR PATIENT LEVEL INFORMATION COSTING
POINT OF DELIVERY FURTHER DETAIL CODE
POINT OF DELIVERY FURTHER DETAIL DESCRIPTION
PROVIDER REFERENCE NUMBER
SERVICE PROVIDED UNDER AGREEMENT TEXT STRING
SPECIALISED MENTAL HEALTH SERVICE CATEGORY CODE
SPECIALISED SERVICE CODE
SPECIALIST SERVICES FLAG
SUBJECTIVE CODE FOR NHS CONTINUING HEALTHCARE
UNBUNDLED ACTIVITY CURRENCY SCHEME IN USE
UNBUNDLED CARE ACTIVITY TYPE FOR PATIENT LEVEL INFORMATION COSTING
UNBUNDLED CURRENCY CODE
UNBUNDLED EPISODE INDICATOR

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CANCER SURGICAL ADMISSION TYPE

Change to Attribute: Changed Description

The type of surgical admission during a Cancer Care Spell.

CANCER SURGICAL ADMISSION TYPE is derived from ADMISSION METHOD.

National Code:National Codes:

1Elective admission
2Emergency admission
 

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IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE

Change to Attribute: Changed Description

An indication of whether the immunohistochemistry nuclear expression is intact during a Cancer Care Spell.

National Codes:

YYes - the immunohistochemistry nuclear expression is intact
NNo - the immunohistochemistry nuclear expression is not intact
EEquivocal - it is not clear if the immunohistochemistry nuclear expression is intact
FTest failed - the test could not be performed
 

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ORGANISATION CODE

Change to Attribute: Changed Description

An ORGANISATION CODE is a code which identifies an ORGANISATION uniquely.

ORGANISATION CODES are managed by:

Notes:

ORGANISATION CODING FRAMES

  • All NHS ORGANISATIONS are coded using coding frames, as shown in the tables below:

Character
Position

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame

 

Organisation
Type Identifier

 

Organisation Identifier

 
   

B Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

C Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

D Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

E Frame

 

Organisation Identifier

 
       

F Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
    

G Frame

 

Organisation Type Identifier

 

Practice Identifier

 
  

H Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
     

I Frame

 

Organisation Type Identifier

 

Organisation Identifier

 
   

K Frame

 

Organisation Identifier

 
     

 L Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

Organisation Type Identifier

 
   

M Frame

 

Organisation and Organisation Type Identifier

 
     

N Frame

 

Organisation Type Identifier

 

Organisation Identifier

 

A Frame:

Example
Non NHS Organisation (Independent Provider) e.g. 8HA03

  • 8 = Organisation Type Identifier
  • Remainder = Organisation Identifier

B Frame:

Example
Local Service Provider e.g. LSP01

  • LSP = Organisation Type Identifier
  • 01 = Organisation Identifier

Also:

Application Service Providere.g. YGM01
Education Establishmente.g. YDF01
NHS Support Agencye.g. YDD01

C Frame:

Example
School e.g. EE134290

  • EE = Organisation Type Identifier
  • Remainder = Organisation Identifier

D Frame:

Example
Care Trust e.g. TAK

  • T = Organisation Type Identifier
  • AK = Organisation Identifier

Also:

Commissioning Support Unit (CSU) / 
Data Services for Commissioners Regional Office (DSCRO)
e.g. 0AA
High Level Health Geography, e.g. Sustainability and Transformation Partnershipe.g. QJK
Local Health Board (Wales)e.g. 7A1
NHS Truste.g. RH8
Justice Organisatione.g. VAA

E Frame:

Example
Government Office Region (GOR) e.g. K

  • K = Organisation Identifier
Note: Government Office Region (GOR) is identified by a one character code; no other one character code exists.

F Frame:

Example
Pharmacy Headquarters e.g. P001

  • P = Organisation Type Identifier
  • 001 = Organisation Identifier

Also:

Care Home Headquarterse.g.CA0A
Optical Headquarters e.g.T1A1

G Frame:

Example
GP Practices in England and Wales e.g. Y00001

  • Y = Organisation Type Identifier
  • 00001 = Practice Identifier

Also:

Dental Practicee.g.V20052

H Frame:

Example
Cancer Network e.g. N01

  • N0 (where the 2nd character is numeric and not alpha) = Organisation Type Identifier
  • 1 = Organisation Identifier

Also:

Booking Management System (BMS) Call Centre Establishmente.g. YF1
Government Departmente.g. XDA
Independent Sector Healthcare Provider (ISHP) (where the 2nd character is alpha)e.g. NV7
National Application Service Providere.g. YEA
Other Statutory Authority (OSA)e.g. X16

I Frame:

Example
Special Health Authority (SpHA) e.g. T1150

  • T1 = Organisation Type Identifier
  • 150 = Organisation Identifier

K Frame:

Example
NHS Wales Informatics Service e.g. W00

  • W00 = Organisation Identifier

L Frame:

Example
Northern Ireland Local Commissioning Group e.g. ZC010

  • Characters 1-3 (ZC0) AND character 5 (0) = Organisation Type Identifier
  • Character 4 = Organisation Identifier

Note: this is a 5 character method of displaying Northern Ireland Local Commissioning Group identifiers.
Characters 3 and 5 are ‘fillers’. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory) zeros can be omitted, e.g. ZC1.
The 3 character method of displaying the Northern Ireland Local Commissioning Group identifiers fit under the H Frame.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009.


M Frame:

Example
Clinical Commissioning Group (CCG) e.g. 12A

  • 12A = Organisation and Organisation Type Identifier

Also:

Local Authoritye.g.000


N Frame:

Example
GP Abeyance and Dispersal GP Practice e.g. G7817414

  • G78 = Organisation Type Identifier
  • 17414 = Organisation Identifier

The structure and format of ORGANISATION CODES maintained by the Organisation Data Service, NHS Prescription Services, NHS Dental Services and other agencies are detailed in the tables below.

ORGANISATION CODES TABLES

Table 1: CODING FORMATS FOR ORGANISATIONS IN ENGLAND AND WALES

Organisation Type

Frame Type

Character Position

Code allocated by:

Notes/Comments

 

See Coding Frames Table

 

1

 

2

 

3

 

4

 

5

 

6

 

7

 

8

 
  

Application Service Provider

 

B

 

Y

 

G

 

M

 

A-9

 

A-9

 
   

ODS 

 

e.g. YGM01

 

Booking Management System (BMS) Call Centre Establishment

 

H

 

Y

 

F

 

A-9

 
     

ODS

 

e.g. YF1

 

Cancer Network

 

H

 

N

 

0-9

 

A-9

 
     

ODS

 

e.g. N01

 

Cancer Registry

A

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. Y0401

All Cancer Registries in England are now part of the National Cancer Registration and Analysis Service

Care Home Headquarters

 

F

 

A, C or D

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. CA0A

 

Care Trust (CT)

 

D

 

T

 

A-Y

 

A-Y

 
     

ODS

 

e.g. TAK

 

Clinical Commissioning Group (CCG

M

 

0-9

 

0-9

 

A-Y

 
     

ODS

 

e.g. 12A

 

Clinical Network

B

 

Y

 

D

 

G

 

A-9

 

A-9

 
   

ODS

 

e.g. YDG01

 

Commissioning Support Unit (CSU) / Data Services for Commissioners Regional Office (DSCRO)

D

 

0

 

A-Y

 

A-Y

 
     

ODS

 

e.g. 0AA

 

Dental Practice - England and Wales

 

G

 

V

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Dental Services

 

e.g. V20052

 

Education Establishment

 

B

 

Y

 

D

 

F

 

A-9

 

A-9

 
   

ODS

 

e.g. YDF01

 

Executive Agency

 

N/A

See Note 1 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X09

 

Executive Agency Programme

 

N/A

See Note 1 

X

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

ODS

 

First three characters denote Executive Agency

e.g. X09001

 

Government Department

 

H

 

X

 

A-Y

 

A-Y

 
     

ODS

 

e.g. XDA

 

Government Office Region (GOR)

 

E

A-Y

 
       

ONS

 

e.g. K

Government Office Regions (GORs) closed 31 March 2011 - from 1 April 2011 referred to as Regions

 

GP Abeyance and Dispersal GP Practice

 

N

G

 

7

 

8

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

ODS

 

e.g. G7817414

 

GP Practices in England and Wales

G

 

A-H,
J-N,
P,
W &
Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 
  

NHS Prescription Services

 

Char 1 = W for Welsh GP Practice.

All other values represent GP Practices in England.

Note: from 2003, ALL newly allocated Practice Codes in England begin with a Y

e.g. Y00001

 
Justice Organisation

D

 

V or W

 

A-Y

 

A-9

 

 

 

 

 

 

 

 

 

 

 

ODS

 

e.g. VAA

 

High Level Health Geography, e.g. Sustainability and Transformation Partnership 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. QJK

 

Independent Sector Healthcare Provider (ISHP)

H

 

A, B, D, G, I, K, L, M , N, O, S, U, V, W

 

A-Y

 

A-Y, 0-9

 
     

ODS

 

e.g. NV7

 

Local Authority (LA)

 

M

 

0-9

 

0-9

 

0-9

 
     

ODS

 

e.g. 000

 

Local Health Board (Wales)

 

B

 

7

 

A-9

 

A-9

 
     

ODS 

 

e.g. 7A1 

 

Local Service Provider (LSP)

 

B

 

L

 

S

 

P

 

0-9

 

0-9

 
   

ODS

 

e.g. LSP01

 

Military Hospital

B

 

X

 

M

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g.XMDA1

 

National Application Service Provider

H

 

Y

 

E

 

A-9

 
     

ODS

 

e.g. YEA

 

National Groupings (England) 

H

Y

 

5

 

0-9

 
     

ODS

 

e.g. Y51

 

NHS Support Agency 

B

 

Y

 

D

 

D

 

A-9

 

A-9

 
   

ODS

 

e.g. YDD01

 

NHS Trust

 

D

 

R

 

A-9

 

A-9

 
     

ODS

 

e.g. RH8

 

NHS Wales Informatics Service (NWIS)

 

K

 

W

 

0

 

0

 
     

ODS

 

Only one organisation of this type exists for Wales

e.g. W00

 

Non NHS Organisation (Independent Provider)

 

A

 

8

 

A-Y

 

A-9

 

0-9

 

0-9

 
   

ODS

 

e.g. 8HA03

 

Northern Ireland Health & Social Care Board

N/A

 

Z

 

B

 

0

 

0

 

1

 
   

ODS

 

e.g. ZB001

 

Northern Ireland Health & Social Care Trust

 

I

 

Z

 

T

 

0-9

 

0-9

 

0-9

 
   

ODS

 

e.g. ZT001

 

Northern Ireland Local Commissioning Group

 

L

 

Z

 

C

 

0

 

0-9

 

0

 
   

Department for Health, Social Services and Public Safety (DHSSPS), Northern Ireland

 

e.g. ZC010

Note that characters 3 and 5 are ‘fillers’ to create a 5 character code. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory), zeros can be omitted and fits under the H frame: e.g. ZC1.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009. 

 

Optical Headquarters

 

 

 

0-9

 

A-9

 

A-9

 
    

ODS 

 

e.g. T1A1 

 

Other Statutory Authority (OSA)

 

H

 

X

 

0-9

 

0-9

 
     

ODS

 

e.g. X16

 

Pharmacy

 

A

 

F

 

A-Y

 

A-9

 

A-9

 

A-9

 
   

ODS

 

e.g. FA002

 

Pharmacy Headquarters

 

F

 

P

 

A-9

 

A-9

 

A-9

 
    

ODS

 

e.g. P001

 

Primary Care Trust (PCT)

 

D

 

5

 

A-9

 

A-9

 
     

ODS

 

e.g. 5CT

All Primary Care Trusts closed 31 March 2013

Prison Health Service

B

 

Y

 

D

 

E

 

A-9

 

A-9

 
   

ODS

 

e.g. YDE01

 

School

 

C

 

E

 

E

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

A-9

 

Department for Education and ODS

 

e.g. EE134290

 

Special Health Authority (SpHA)

 

I

 

T

 

1

 

0-9

 

0-9

 

0

 
   

ODS

 

e.g. T1150

 

Strategic Health Authority (SHA)

 

D

 

Q

 

A-9

 

A-9

 
     

ODS

 

e.g. Q30

All Strategic Health Authorities in England closed 31 March 2013

Welsh Assembly

 

D

 

W

 

0-9

 

0-9

 

 

 

 
   

ODS

 

e.g. W01

 

Welsh Health Commission 

A

 

W

 

0-9

 

0-9

 

A-Y

 

A-Y

 
   

ODS

 

e.g. W01HC

 

Notes:

  • Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.

Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.

Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).

All NHS ORGANISATIONS are coded using coding frames, as shown in the tables at: Organisation Coding Frames. 

Table 2: CODING FORMATS FOR ORGANISATIONS IN SCOTLAND

Scottish ORGANISATION CODES are supplied by the Information Standards Directorate (ISD) from NHS Scotland and published by the Organisation Data Service.

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Scotland 

S

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS

 
 

Scottish GP Fundholder

 

S

 

A-Z

 

B

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the GPFH reports to.
3rd character (always B) shows GPFH status.

 

Scottish Health Agency

 

S

 

D

 

0-9

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character (D) identifies Scottish Office agencies

 

Scottish Health Board

 

S

 

A-Z

 

9

 

9

 

9

 
 

 ISD, Scotland

 

 

Scottish Provider

 

S

 

A-Z

 

A,C,D

 

0-9

 

0-9

 
 

ISD, Scotland

 

2nd character identifies the Health Board the organisation reports to.
3rd character identifies the organisation type:
A= Health Unit
C = Hospital Trust
D = Nursing Home

 

Table 3: CODING FORMATS for ORGANISATIONS in OTHER HOME COUNTRIES

Organisation Type

Character Position

Code allocated by:

Notes/Comments

 123456  

GP Practice - Alderney

 

A

 

L

 

D

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Guernsey

 

G

 

U

 

E

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Isle of Man (IOM)

 

Y

 

0-9

 

0-9

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

GP Practice - Jersey

 

J

 

E

 

R

 

0-9

 

0-9

 

0-9

 

NHS Prescription Services

 
 

Primary Healthcare Directorate (Isle of Man)

 

Y

 

K

 

A-9

 
   

ODS

 

e.g. YK1

 

Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).

 

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ORGANISATION SITE CODE

Change to Attribute: Changed Description

An ORGANISATION SITE CODE is a code which identifies an ORGANISATION SITE uniquely.

Note: Only ORGANISATION SITE CODES which have been notified to and issued by the Organisation Data Service may be used.

Notes:

ORGANISATION SITE CODING FRAMES

Character
Position

1

2

3

4

5

6

7

8

9

Format

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

a/n

 

A Frame