| Type: | Patch |
| Reference: | 1780 |
| Version No: | 1.0 |
| Subject: | August 2020 Release Patch |
| Effective Date: | Immediate |
| Reason for Change: | Patch |
| Publication Date: | 17 August 2020 |
Background:
This patch updates the NHS Data Model and Dictionary in preparation for the new release and includes:
- What's New amended to include Change Requests incorporated since the last version of the NHS Data Model and Dictionary was published
- Missing hyperlinks added
- Spelling mistakes corrected
- Website links updated
- HTML format corrected
- Updates to / retirement of items in preparation for the new version of the dictionary.
To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: https://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.
Note: if the web page does not open, please copy the link and paste into the web browser.
Summary of changes:
| Date: | 17 August 2020 |
| Sponsor: | Nicholas Oughtibridge, Head of Clinical Data Architecture, NHS Digital |
Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.
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Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Breast.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| TRIPLE DIAGNOSTIC ASSESSMENT - BREAST |
|---|
| To carry diagnostic details for Breast cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| M | BREAST TRIPLE DIAGNOSTIC ASSESSMENT INDICATOR |
| PROGNOSTIC INDEX - BREAST |
|---|
| To carry prognostic details for Breast cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| M | NOTTINGHAM PROGNOSTIC INDEX SCORE |
| CLINICAL NURSE SPECIALIST AND RISK FACTOR ASSESSMENT: NATIONAL AUDIT OF BREAST CANCER IN OLDER PATIENTS (NABCOP) - BREAST |
|---|
| To carry National Audit of Breast Cancer in Older Patients assessment details for Breast cancer. One occurrence of this group is permitted per Core Clinical Nurse Specialist and Risk Factor Assessment. | |
| M/R | Data Set Data Elements |
| R | FITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER INDICATOR |
| R | FITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER COMPLETED DATE |
| R | CLINICAL FRAILTY SCALE POINT |
| R | ABBREVIATED MENTAL TEST SCORE |
| R | SEVERE CARDIORESPIRATORY DISEASE INDICATOR |
| R | OTHER NON BREAST LOCALLY ADVANCED METASTATIC MALIGNANCY INDICATOR |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Central Nervous System.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| IMAGING - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry imaging details for Central Nervous System (CNS) cancer. One occurrence of this group is permitted per Core Imaging. | |
| M/R | Data Set Data Elements |
| R | LESION LOCATION (RADIOLOGICAL) |
| R | NUMBER OF LESIONS (RADIOLOGICAL) |
| R | LESION SIZE (RADIOLOGICAL) |
| R | PRINCIPAL DIAGNOSTIC IMAGING TYPE |
| CANCER CARE PLAN - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry cancer care plan details for Central Nervous System (CNS) cancer. One occurrence of this group is permitted Core Cancer Care Plan. | |
| M/R | Data Set Data Elements |
| R | PROVISIONAL DIAGNOSIS (ICD) |
| SURGERY - TREATMENT - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry surgery details for Central Nervous System (CNS) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | TUMOUR LOCATION (SURGICAL) |
| R | BIOPSY TYPE (CENTRAL NERVOUS SYSTEM TUMOURS) |
| R | EXCISION TYPE (CENTRAL NERVOUS SYSTEM TUMOURS) |
| SURGERY - TREATMENT: CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry surgery details for Children, Teenagers and Young Adults (CTYA) for Central Nervous System (CNS) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | RESECTION STATUS |
| DIAGNOSIS: LOW GRADE GLIOMA - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry diagnostic Low Grade Glioma details for Central Nervous System (CNS) cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | VISUAL ACUITY TEST RESULT (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | VISUAL FIELD TEST RESULT (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| SITE SPECIFIC STAGING: CEREBROSPINAL FLUID (CSF) - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| To carry site specific staging Cerebrospinal Fluid (CSF) details for Central Nervous System (CNS) cancer. One occurrence of this group is required per Core Site Specific Staging. | |
| M/R | Data Set Data Elements |
| M | CHANG STAGING SYSTEM STAGE |
| LABORATORY RESULTS: GERM CELL CENTRAL NERVOUS SYSTEM (CNS) TUMOURS CHOICE - CENTRAL NERVOUS SYSTEM (CNS) |
|---|
| One occurrence of this group is permitted per Core Laboratory Results One of the following Germ Cell Central Nervous System (CNS) tumour laboratory result details MUST be provided per Core Laboratory Results | |
| CHOICE 1 - ALPHA FETOPROTEIN | |
| To carry Germ Cell Central Nervous System (CNS) tumour laboratory result details. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | ALPHA FETOPROTEIN (CEREBROSPINAL FLUID) |
| CHOICE 2 - BETA HUMAN CHORIONIC GONADOTROPIN | |
| To carry Germ Cell Central Nervous System (CNS) tumour laboratory result details. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | BETA HUMAN CHORIONIC GONADOTROPIN (CEREBROSPINAL FLUID) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Children, Teenagers and Young Adults.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| REFERRALS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry referral details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted per Core Referrals and First Stage of Patient Pathway. | |
| M/R | Data Set Data Elements |
| R | CARE PROFESSIONAL MAIN SPECIALTY CODE (CANCER REFERRAL) |
| DIAGNOSIS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry diagnostic details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | CARE PROFESSIONAL MAIN SPECIALTY CODE (DIAGNOSIS) |
| R | CHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY (CONSULTANT AT DIAGNOSIS) |
| DIAGNOSIS: NEUROBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry diagnostic Neuroblastoma details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | LIFE THREATENING SYMPTOMS AT DIAGNOSIS INDICATOR (NEUROBLASTOMA) |
| SITE SPECIFIC STAGING CHOICE - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| One of the following Site Specific Staging Sections MUST be provided per Core Site Specific Staging | |
| CHOICE 1 - WILMS | |
| To carry staging renal tumour details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Site Specific Staging group if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | WILMS TUMOUR STAGE |
| CHOICE 2 - INTERNATIONAL NEUROBLASTOMA RISK GROUP | |
| To carry staging Neuroblastoma details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Site Specific Staging group if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | INTERNATIONAL NEUROBLASTOMA RISK GROUP STAGING SYSTEM STAGE |
| CHOICE 3 - INTERNATIONAL NEUROBLASTOMA RISK GROUP | |
| To carry staging Hepatoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Site Specific Staging group if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | PRETEXT STAGING SYSTEM STAGE |
| M | PRETEXT STAGING SYSTEM STAGE ANNOTATION FACTORS |
| CHOICE 4 - RETINOBLASTOMA | |
| To carry staging Retinoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Site Specific Staging group if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | INTERNATIONAL STAGING SYSTEM STAGE (RETINOBLASTOMA) |
| TREATMENT: PRINCIPAL TREATMENT CENTRE CHOICE - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| One of the following Principal Treatment Centre Sections MUST be provided per Core Treatment | |
| CHOICE 1 - CHILDREN | |
| To carry Treatment details for the nominated children's Principal Treatment Centre for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Treatment if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | ORGANISATION IDENTIFIER (CHILDRENS NOMINATED PRINCIPAL TREATMENT CENTRE) Multiple occurrences of this item are permitted |
| CHOICE 2 - TEENAGE YOUNG ADULT (TYA) | |
| To carry Treatment details for the nominated Teenage Young Adult's (TYA) Principal Treatment Centre for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is required per Core Treatment if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | ORGANISATION IDENTIFIER (TEENAGE YOUNG ADULTS NOMINATED PRINCIPAL TREATMENT CENTRE) Multiple occurrences of this item are permitted |
| TREATMENT: CHILDREN'S CANCER AND LEUKAEMIA GROUP (CCLG) - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry treatment details for the Children's Cancer and Leukaemia Group (CCLG) guidelines for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted per Core Treatment. | |
| M/R | Data Set Data Elements |
| R | PATIENT TREATED TO CHILDRENS CANCER AND LEUKAEMIA GROUP GUIDELINES INDICATOR |
| R | CHILDRENS CANCER AND LEUKAEMIA GROUP GUIDELINE NAME |
| LABORATORY RESULTS: NEUROBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry Neuroblastoma laboratory result details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted per Core Laboratory Results. | |
| M/R | Data Set Data Elements |
| R | URINE VANILLYLMANDELIC ACID CREATININE RATIO |
| RENAL TUMOURS - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry renal tumour details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | PATHOLOGICAL RISK CLASSIFICATION CODE (AFTER NEPHRECTOMY) |
| R | PATHOLOGICAL RISK CLASSIFICATION CODE (AFTER PREOPERATIVE CHEMOTHERAPY) |
| RETINOBLASTOMA - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry Retinoblastoma details for Children, Teenagers and Young Adults (CTYA) cancer. Multiple occurrences of this group are permitted. | |
| M/R | Data Set Data Elements |
| R | RETINOBLASTOMA ASSESSMENT LATERALITY |
| R | INTERNATIONAL CLASSIFICATION FOR INTRAOCULAR RETINOBLASTOMA |
| CHEMOTHERAPY - CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA) |
|---|
| To carry chemotherapy details for Children, Teenagers and Young Adults (CTYA) cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | CHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY (CONSULTANT PRESCRIBING CHEMOTHERAPY) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Colorectal.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| DIAGNOSIS - COLORECTAL |
|---|
| To carry diagnostic details for Colorectal cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | SYNCHRONOUS TUMOUR COLON LOCATION (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | TUMOUR HEIGHT ABOVE ANAL VERGE |
| CLINICAL NURSE SPECIALIST - COLORECTAL |
|---|
| To carry details of the Clinical Nurse Specialist. Multiple occurrences of this group are permitted per Core Clinical Nurse Specialist and Risk Factor. | |
| M/R | Data Set Data Elements |
| R | CLINICAL NURSE SPECIALIST TYPE |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Core.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory, Required or Optional (M/R/O) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
- O = Optional: the inclusion of this data element is optional as required for local purposes.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| SUBMISSION HEADER |
|---|
| To carry the submission header details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | COSDS SUBMISSION IDENTIFIER |
| M | ORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION) |
| M | COSDS SUBMISSION RECORD COUNT |
| M | REPORTING PERIOD START DATE |
| M | REPORTING PERIOD END DATE |
| M | DATE AND TIME DATA SET CREATED |
| RECORD IDENTIFIER |
|---|
| To carry the record identifier details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | COSDS UNIQUE IDENTIFIER |
| LINKAGE: IDENTIFIER CHOICE - CORE |
|---|
| One of the following Core Linkage Identifier sections MUST be provided | |
| CHOICE 1 - NHS NUMBER | |
| To carry patient identity details for linkage. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | NHS NUMBER |
| CHOICE 2 - LOCAL PATIENT IDENTIFIER | |
| To carry patient identity details for linkage. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| LINKAGE: PATIENT IDENTITY DETAILS - CORE |
|---|
| To carry patient identity details for linkage. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | NHS NUMBER STATUS INDICATOR CODE |
| M | PERSON BIRTH DATE |
| M | ORGANISATION IDENTIFIER (CODE OF PROVIDER) |
| DIAGNOSTIC: CANCER PATHWAY CHOICE - CORE |
|---|
| One of the following Cancer Pathway sections MUST be provided | |
| CHOICE 1 - PRIMARY CANCER PATHWAY | |
| To carry diagnostic details for linkage. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | PRIMARY DIAGNOSIS (ICD) |
| M | TUMOUR LATERALITY |
| M | DATE OF PRIMARY CANCER DIAGNOSIS (CLINICALLY AGREED) |
| CHOICE 2 - NON PRIMARY CANCER PATHWAY | |
| To carry diagnostic details for linkage. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | DATE OF NON PRIMARY CANCER DIAGNOSIS (CLINICALLY AGREED) |
| DIAGNOSTIC: NON PRIMARY CANCER PATHWAY - CORE |
|---|
| One of the following Core Diagnosis sections MUST be provided per Non Primary Cancer Pathway | |
| CHOICE 1 - CANCER RECURRENCE | |
| To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Recurrence. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| R | PRIMARY DIAGNOSIS (ICD ORIGINAL) |
| M | CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
| M | METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | PALLIATIVE CARE SPECIALIST SEEN INDICATOR (CANCER RECURRENCE) |
| R | RELAPSE METHOD DETECTION TYPE Multiple occurrences of this item are permitted |
| CHOICE 2 - CANCER PROGRESSION | |
| To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Progression. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | CANCER PROGRESSION (ICD ORIGINAL) |
| M | CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
| M | METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| CHOICE 3 - CANCER TRANSFORMATION | |
| To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation. One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| R | MORPHOLOGY (ICD-O CANCER TRANSFORMATION ORIGINAL) |
| R | MORPHOLOGY (SNOMED CANCER TRANSFORMATION ORIGINAL) |
| DIAGNOSTIC: NON PRIMARY CANCER PATHWAY: TRANSFORMATION CURRENT MORPHOLOGY CHOICE - CORE |
|---|
| At least one of the following MUST be provided per Cancer Transformation | |
| CHOICE 1 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY ICD | |
| To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (ICD). One occurrence of this group is required if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | MORPHOLOGY (ICD-O CANCER TRANSFORMATION) |
| CHOICE 2 - CANCER TRANSFORMATION: CURRENT MORPHOLOGY SNOMED | |
| To carry patient pathway details required to define the Non Primary Cancer Pathway for Cancer Transformation Current Morphology (SNOMED). One occurrence of this group is permitted if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | MORPHOLOGY (SNOMED CANCER TRANSFORMATION) |
| M | SNOMED VERSION (CANCER TRANSFORMATION) |
| DEMOGRAPHICS - CORE |
|---|
| To carry patient demographic details. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | PERSON FAMILY NAME |
| R | PERSON GIVEN NAME |
| R | PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED or PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS UNSTRUCTURED |
| R | POSTCODE OF USUAL ADDRESS (AT DIAGNOSIS) |
| R | PERSON STATED GENDER CODE |
| R | PERSON STATED SEXUAL ORIENTATION CODE (AT DIAGNOSIS)` |
| R | GENERAL MEDICAL PRACTITIONER (SPECIFIED) |
| R | GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION) |
| R | PERSON FAMILY NAME (AT BIRTH) |
| R | ETHNIC CATEGORY |
| REFERRALS AND FIRST STAGE OF PATIENT PATHWAY - CORE |
|---|
| To carry patient referral details to the trust that receives the first referral. These details include information relating to the first stage of the Patient Pathway. One occurrence of this group is permitted per Primary Cancer Pathway. | |
| M/R/O | Data Set Data Elements |
| R | SOURCE OF REFERRAL FOR OUT-PATIENTS |
| R | DATE FIRST SEEN |
| M | PROFESSIONAL REGISTRATION ISSUER CODE (CANCER FIRST SEEN) |
| M | PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (CANCER FIRST SEEN) |
| R | ORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST SEEN) |
| R | DATE FIRST SEEN (CANCER SPECIALIST) |
| R | ORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST CANCER SPECIALIST) |
| R | CANCER SYMPTOMS FIRST NOTED DATE |
| NON PRIMARY CANCER PATHWAY: REFERRAL - CORE |
|---|
| To carry non primary cancer pathway details. One occurrence of this group is permitted per Non Primary Cancer Pathway. | |
| M/R/O | Data Set Data Elements |
| R | SOURCE OF REFERRAL FOR OUT-PATIENTS (NON PRIMARY CANCER PATHWAY) |
| R | DATE FIRST SEEN (NON CANCER PRIMARY PATHWAY) |
| R | ORGANISATION SITE IDENTIFIER (OF PROVIDER FIRST SEEN NON PRIMARY CANCER PATHWAY) |
| IMAGING - CORE |
|---|
| To carry imaging details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| M | ORGANISATION SITE IDENTIFIER (OF IMAGING) |
| M | PROCEDURE DATE (CANCER IMAGING) |
| R | CANCER IMAGING OUTCOME |
| IMAGING: CANCER SITE LOCATION CHOICE - CORE |
|---|
| One of the following Core Imaging data items or sections can be provided per Core Imaging | |
| CHOICE 1 - NICIP | |
| To carry imaging NICIP details. Multiple occurrences of this group are permitted per Core Imaging. | |
| M/R/O | Data Set Data Elements |
| M | IMAGING CODE (NICIP) |
| CHOICE 2 - SNOMED CT | |
| To carry imaging SNOMED CT details. Multiple occurrences of this group are permitted per Core Imaging. | |
| M/R/O | Data Set Data Elements |
| M | IMAGING CODE (SNOMED CT) |
| CHOICE 3 - CANCER SITE IMAGING LOCATION GROUP | |
| To carry imaging details. Multiple occurrences of this group are permitted per Core Imaging. | |
| M/R/O | Data Set Data Elements |
| M | CANCER IMAGING MODALITY |
| R | IMAGING ANATOMICAL SITE |
| R | ANATOMICAL SIDE (IMAGING) |
| To carry imaging details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | IMAGING REPORT TEXT |
| R | LESION SIZE (RADIOLOGICAL) |
| DIAGNOSTIC PROCEDURES - CORE |
|---|
| To carry diagnostic procedure details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| M | ORGANISATION SITE IDENTIFIER (OF DIAGNOSTIC PROCEDURE) |
| M | PROCEDURE DATE (DIAGNOSTIC PROCEDURE) |
| DIAGNOSTIC PROCEDURES: CHOICE - CORE |
|---|
| One of the following Core Diagnostic procedures data items MUST be provided per Core Diagnostic Procedures | |
| CHOICE 1 - OPCS | |
| To carry OPCS diagnostic procedure details. Multiple occurrences of this group are permitted per Core Diagnostic Procedures. | |
| M/R/O | Data Set Data Elements |
| M | DIAGNOSTIC PROCEDURE (OPCS) |
| CHOICE 2 - SNOMED CT | |
| To carry SNOMED CT diagnostic procedure details. Multiple occurrences of this group are permitted per Core Diagnostic Procedures. | |
| M/R/O | Data Set Data Elements |
| M | DIAGNOSTIC PROCEDURE (SNOMED CT) |
| DIAGNOSTIC PROCEDURES: SENTINEL NODE BIOPSY - CORE |
|---|
| To carry diagnostic details for Sentinel Node Biopsy. One occurrence of this group is permitted per Core Diagnostic Procedures. | |
| M/R/O | Data Set Data Elements |
| R | SENTINEL LYMPH NODE BIOPSY OUTCOME |
| DIAGNOSIS - CORE |
|---|
| To carry diagnostic details for the Primary Diagnosis. One occurrence of this group is permitted per Primary Cancer Pathway. | |
| M/R/O | Data Set Data Elements |
| R | ORGANISATION SITE IDENTIFIER (OF DIAGNOSIS) |
| R | BASIS OF DIAGNOSIS (CANCER) |
| R | MORPHOLOGY (ICD-O DIAGNOSIS) |
| M | MORPHOLOGY (SNOMED DIAGNOSIS) |
| M | SNOMED VERSION (DIAGNOSIS) |
| R | TOPOGRAPHY (ICD-O) |
| R | GRADE OF DIFFERENTIATION (AT DIAGNOSIS) |
| R | PERFORMANCE STATUS (ADULT) |
| R | DIAGNOSIS (SNOMED CT) |
| M | CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
| M | METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| DIAGNOSIS: ADDITIONAL ITEMS - CORE |
|---|
| To carry additional diagnostic details. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R/O | Data Set Data Elements |
| R | PRIMARY DIAGNOSIS (CANCER COMMENT) |
| R | SECONDARY DIAGNOSIS (ICD) Multiple occurrences of this item are permitted |
| R | SECONDARY DIAGNOSIS (CANCER COMMENT) |
| R | FAMILIAL CANCER SYNDROME INDICATOR |
| R | FAMILIAL CANCER SYNDROME COMMENT |
| DIAGNOSIS: CANCER PROGRESSION - CORE |
|---|
| To carry additional diagnostic details for Cancer Progression. May be multiple occurrences per Core Diagnosis. | |
| M/R/O | Data Set Data Elements |
| M | CANCER METASTATIC DISEASE TYPE Multiple occurrences of this item are permitted |
| M | METASTATIC SITE (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| M | CANCER PROGRESSION AGREED DATE (PRIMARY CANCER PATHWAY) |
| DIAGNOSIS: CANCER TRANSFORMATION - CORE |
|---|
| To carry additional diagnostic details for Cancer Transformation. May be multiple occurrences per Core Diagnosis. | |
| M/R/O | Data Set Data Elements |
| M | CANCER TRANSFORMATION AGREED DATE (PRIMARY CANCER PATHWAY) |
| DIAGNOSIS: CANCER TRANSFORMATION CHOICE - CORE |
|---|
| At least one of the following MUST be provided per Cancer Transformation | |
| CHOICE 1 - ICD | |
| To carry ICD additional diagnostic details for Cancer Transformation. One occurrence of this group is required per Core Diagnosis Cancer Transformation. | |
| M/R/O | Data Set Data Elements |
| M | MORPHOLOGY (ICD-O CANCER TRANSFORMATION) |
| CHOICE 2 - SNOMED | |
| To carry additional diagnostic details for Cancer Transformation. One occurrence of this group is required per Core Diagnosis Cancer Transformation. | |
| M/R/O | Data Set Data Elements |
| M | MORPHOLOGY (SNOMED CANCER TRANSFORMATION) |
| M | SNOMED VERSION (CANCER TRANSFORMATION) |
| DIAGNOSIS: BANKED TISSUE - CORE |
|---|
| To carry Banked Tissue details. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R/O | Data Set Data Elements |
| R | PATIENT CONSENT FOR TISSUE BANKED AT DIAGNOSIS INDICATION CODE |
| R | TISSUE TYPE BANKED AT DIAGNOSIS (CANCER) Multiple occurrences of this item are permitted |
| PERSON OBSERVATION - CORE |
|---|
| To carry person observation details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | PERSON HEIGHT IN METRES |
| R | PERSON WEIGHT |
| R | BODY MASS INDEX |
| M | OBSERVATION DATE |
| CLINICAL NURSE SPECIALIST AND RISK FACTOR ASSESSMENT - CORE |
|---|
| To carry Clinical Nurse Specialist and risk factor assessment details. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | CLINICAL NURSE SPECIALIST INDICATION CODE |
| R | SMOKING STATUS (CANCER) |
| R | TOBACCO SMOKING CESSATION TREATMENT INDICATION CODE |
| R | ALCOHOL HISTORY (CANCER IN LAST THREE MONTHS) |
| R | ALCOHOL HISTORY (CANCER BEFORE LAST THREE MONTHS) |
| R | PATIENT DIAGNOSIS INDICATOR (DIABETES) |
| R | MENOPAUSAL STATUS (AT DIAGNOSIS) |
| R | PHYSICAL ACTIVITY VITAL SIGN LEVEL (CURRENT) |
| CLINICAL NURSE SPECIALIST: HOLISTIC NEEDS ASSESSMENT (HNA) - CORE |
|---|
| To carry details of Clinical Nurse Specialist, Holistic Needs Assessments. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | OFFER STATUS (HOLISTIC NEEDS ASSESSMENT) |
| R | HOLISTIC NEEDS ASSESSMENT COMPLETED DATE |
| R | HOLISTIC NEEDS ASSESSMENT POINT OF PATHWAY (CANCER) |
| R | STAFF ROLE CARRYING OUT HOLISTIC NEEDS ASSESSMENT |
| CLINICAL NURSE SPECIALIST: PERSONALISED CARE AND SUPPORT PLANNING - CORE |
|---|
| To carry details of Clinical Nurse Specialist, Personalised Care and Supportive Planning Assessments. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | OFFER STATUS (PERSONALISED CARE AND SUPPORT PLANNING) |
| R | PERSONALISED CARE AND SUPPORT PLANNING COMPLETED DATE |
| R | PERSONALISED CARE AND SUPPORT PLANNING POINT OF CANCER PATHWAY |
| R | STAFF ROLE CARRYING OUT PERSONALISED CARE AND SUPPORT PLANNING |
| MULTIDISCIPLINARY TEAM MEETINGS CHOICE - CORE |
|---|
| One of the following Core Multidisciplinary Team Meeting data items MUST be provided per Core Multidisciplinary Team Meeting | |
| CHOICE 1 - NOT DISCUSSED | |
| To carry details of all multidisciplinary team meetings where the patient was not discussed. One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | MULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN NOT DISCUSSED INDICATION CODE |
| CHOICE 2 - DISCUSSED | |
| To carry details of all multidisciplinary team meetings where the patient was discussed. One occurrence of this group is required per Core Multidisciplinary Team Meetings if selected as the choice. | |
| M/R/O | Data Set Data Elements |
| M | MULTIDISCIPLINARY TEAM MEETING CANCER CARE PLAN DISCUSSION TYPE |
| M | MULTIDISCIPLINARY TEAM MEETING DATE (CANCER) |
| M | ORGANISATION SITE IDENTIFIER (OF MULTIDISCIPLINARY TEAM MEETING) |
| M | MULTIDISCIPLINARY TEAM MEETING TYPE (CANCER) |
| R | MULTIDISCIPLINARY TEAM MEETING TYPE COMMENT (CANCER) |
| CANCER CARE PLAN - CORE |
|---|
| To carry cancer care plan details. One occurrence of this group is permitted per Primary Cancer Pathway. | |
| M/R/O | Data Set Data Elements |
| R | MULTIDISCIPLINARY TEAM DISCUSSION DATE (CANCER) |
| M | PROFESSIONAL REGISTRATION ISSUER CODE (MULTIDISCIPLINARY TEAM LEAD) |
| M | PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (MULTIDISCIPLINARY TEAM LEAD) |
| R | CANCER CARE PLAN INTENT |
| R | PLANNED CANCER TREATMENT TYPE Multiple occurrences of this item are permitted |
| R | NO CANCER TREATMENT REASON |
| O | ADULT COMORBIDITY EVALUATION - 27 SCORE |
| MOLECULAR AND BIOMARKERS - GERMLINE TESTING FOR CANCER PREDISPOSITION - CORE |
|---|
| To carry Molecular and Biomarkers (Germline Testing for Cancer Predisposition) details for a patient. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | OFFER STATUS (GERMLINE GENETIC TEST) |
| R | GERMLINE GENETIC TEST TYPE OFFERED Multiple occurrences of this item are permitted |
| R | OTHER GERMLINE GENETIC TEST TYPE OFFERED COMMENT Multiple occurrences of this item are permitted |
| R | ACTIVITY OFFER DATE (GERMLINE GENETIC TEST) |
| R | ORGANISATION IDENTIFIER (REPORTING LABORATORY) |
| R | OFFER STATUS (REFERRAL TO REGIONAL CLINICAL GENETICS SERVICE) |
| MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED MEDICINE - CORE |
|---|
| To carry Molecular and Biomarkers (Somatic Testing for Targeted Therapy and Personalised Medicine) details for a patient, where these have been performed by the clinical teams. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | GENE OR STRATIFICATION BIOMARKER TYPE ANALYSED Multiple occurrences of this item are permitted |
| R | OTHER GENE OR STRATIFICATION BIOMARKER TYPE ANALYSED COMMENT Multiple occurrences of this item are permitted |
| R | GENE OR STRATIFICATION BIOMARKER REPORTED DATE |
| R | ORGANISATION IDENTIFIER (REPORTING LABORATORY) |
| CLINICAL TRIALS - CORE |
|---|
| To carry details for a patient who is eligible for a cancer clinical trial. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | PATIENT TRIAL STATUS (CANCER) |
| R | CLINICAL TRIAL DECISION DATE |
| R | CLINICAL TRIAL START DATE |
| R | CANCER CLINICAL TRIAL TREATMENT TYPE |
| STAGING - CORE |
|---|
| To carry the staging details at the time that the first cancer care plan is agreed. One occurrence of this group is permitted per Primary Cancer Pathway. | |
| M/R/O | Data Set Data Elements |
| R | T CATEGORY (FINAL PRETREATMENT) |
| R | N CATEGORY (FINAL PRETREATMENT) |
| R | M CATEGORY (FINAL PRETREATMENT) |
| R | TNM STAGE GROUPING (FINAL PRETREATMENT) |
| R | ORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING FINAL PRETREATMENT) |
| R | TNM STAGE GROUPING DATE (FINAL PRETREATMENT) |
| R | T CATEGORY (INTEGRATED STAGE) |
| R | N CATEGORY (INTEGRATED STAGE) |
| R | M CATEGORY (INTEGRATED STAGE) |
| R | TNM STAGE GROUPING (INTEGRATED) |
| R | ORGANISATION SITE IDENTIFIER (OF TNM STAGE GROUPING INTEGRATED) |
| R | TNM STAGE GROUPING DATE (INTEGRATED) |
| M | TNM CODING EDITION |
| M | TNM VERSION NUMBER (STAGING) |
| SITE SPECIFIC STAGING - CORE |
|---|
| To carry the site specific cancer staging details. These fields are only required where there is a site specific stage recorded for a patient and will not be applicable to every cancer. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| M | ORGANISATION SITE IDENTIFIER (OF CANCER SITE SPECIFIC STAGE) |
| M | STAGE DATE (CANCER SITE SPECIFIC STAGE) |
| TREATMENT - CORE |
|---|
| To carry the cancer treatment details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | ADJUNCTIVE THERAPY TYPE |
| R | CANCER TREATMENT INTENT |
| M | TREATMENT START DATE (CANCER) |
| M | CANCER TREATMENT MODALITY (REGISTRATION) |
| M | ORGANISATION SITE IDENTIFIER (OF PROVIDER CANCER TREATMENT START DATE) |
| M | PROFESSIONAL REGISTRATION ISSUER CODE (TREATMENT) |
| M | PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (TREATMENT) |
| O | CANCER END OF TREATMENT SUMMARY PLAN COMPLETION DATE Multiple occurrences of this item are permitted |
| R | DISCHARGE DATE (HOSPITAL PROVIDER SPELL) |
| R | DISCHARGE DESTINATION CODE (HOSPITAL PROVIDER SPELL) |
| TREATMENT: SURGERY - CORE |
|---|
| To carry the surgery details. One occurrence of this group is permitted per Core Treatment. | |
| M/R/O | Data Set Data Elements |
| M | PROCEDURE DATE |
| R | CANCER SURGICAL ADMISSION TYPE |
| M | PROFESSIONAL REGISTRATION ISSUER CODE (RESPONSIBLE SURGEON) Multiple occurrences of this item are permitted |
| M | PROFESSIONAL REGISTRATION ENTRY IDENTIFIER (RESPONSIBLE SURGEON) Multiple occurrences of this item are permitted |
| R | PRIMARY PROCEDURE (OPCS) |
| R | PRIMARY PROCEDURE (SNOMED CT) |
| R | PROCEDURE (OPCS) Multiple occurrences of this item are permitted |
| R | PROCEDURE (SNOMED CT) Multiple occurrences of this item are permitted |
| R | ADDITIONAL UNPLANNED PROCEDURE REQUIRED INDICATOR |
| R | ASA PHYSICAL STATUS CLASSIFICATION SYSTEM CODE |
| R | SURGICAL ACCESS TYPE |
| TREATMENT: STEM CELL TRANSPLANTATION - CORE |
|---|
| To carry surgery Stem Cell Transplantation details. One occurrence of this group is permitted per Core Treatment. | |
| M/R/O | Data Set Data Elements |
| R | STEM CELL INFUSION SOURCE CODE |
| R | STEM CELL INFUSION DONOR TYPE |
| R | STEM CELL TRANSPLANT CONDITIONING REGIMEN |
| ACUTE ONCOLOGY - CORE |
|---|
| To carry Acute Oncology details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| R | ACUTE ONCOLOGY ASSESSMENT COMPLETED DATE |
| R | ORGANISATION SITE IDENTIFIER (OF ACUTE ONCOLOGY ASSESSMENT) |
| R | ACUTE ONCOLOGY ASSESSMENT LOCATION |
| R | ACUTE ONCOLOGY ASSESSMENT PATIENT PRESENTATION TYPE Multiple occurrences of this item are permitted |
| R | ACUTE ONCOLOGY EPISODE OUTCOME |
| LABORATORY RESULTS - CORE |
|---|
| To carry laboratory result details. Multiple occurrences of this group are permitted. | |
| M/R/O | Data Set Data Elements |
| M | LABORATORY RESULT AUTHORISED DATE |
| M | ORGANISATION IDENTIFIER (OF LABORATORY RESULT) |
| LABORATORY RESULTS: GENERAL - CORE |
|---|
| To carry general laboratory result details. One occurrence of this group is permitted per Core Laboratory Results. | |
| M/R/O | Data Set Data Elements |
| R | LACTATE DEHYDROGENASE LEVEL (PEAK AT DIAGNOSIS) |
| R | BETA HUMAN CHORIONIC GONADOTROPIN (MAXIMUM AT DIAGNOSIS) |
| R | ALPHA FETOPROTEIN (MAXIMUM AT DIAGNOSIS) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Gynaecological.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| SITE SPECIFIC STAGING - GYNAECOLOGICAL |
|---|
| To carry staging details for Gynaecological cancer. One occurrence of this group is permitted per Core Site Specific Staging. | |
| M/R | Data Set Data Elements |
| M | FINAL FIGO STAGE |
| TREATMENT: SURGERY - GYNAECOLOGICAL |
|---|
| To carry surgery details for Gynaecological cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | CARE PROFESSIONAL SENIOR OPERATING SURGEON GRADE (CANCER) |
| R | RESIDUAL DISEASE SIZE (GYNAECOLOGICAL CANCER) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Haematological.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| CANCER CARE PLAN CHOICE - HAEMATOLOGICAL |
|---|
| One of the following Cancer Care Plan Sections MUST be provided per Core Cancer Care Plan | |
| CHOICE 1 - CHRONIC MYELOID LEUKAEMIA (CML) | |
| To carry cancer care plan details specific to Chronic Myeloid Leukaemia (CML) for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | CHRONIC MYELOID LEUKAEMIA INDEX SCORE (SOKAL) |
| CHOICE 2 - MYELODYSPLASIA | |
| To carry cancer care plan details specific to Myelodysplasia for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | REVISED INTERNATIONAL PROGNOSTIC SCORING SYSTEM SCORE |
| CHOICE 3 - CHRONIC LYMPHOID LEUKAEMIA (CLL) | |
| To carry cancer care plan details specific to Chronic Lymphoid Leukaemia (CLL) for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | SPLENOMEGALY INDICATOR |
| CHOICE 4 - FOLLICULAR LYMPHOMA | |
| To carry cancer care plan details specific to Follicular Lymphoma for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | NUMBER OF ABNORMAL NODAL AREAS |
| R | FOLLICULAR LYMPHOMA INTERNATIONAL PROGNOSTIC INDEX 2 SCORE |
| CHOICE 5 - DIFFUSE LARGE B-CELL LYMPHOMA (DLBCL) | |
| To carry cancer care plan details specific to Diffuse Large B-Cell Lymphoma (DLBCL) for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | NUMBER OF ABNORMAL NODAL AREAS |
| R | PRIMARY EXTRANODAL CANCER SITE |
| R | NUMBER OF EXTRANODAL SITES CODE |
| R | REVISED INTERNATIONAL PROGNOSTIC INDEX SCORE |
| CHOICE 6 - HODGKIN LYMPHOMA | |
| To carry cancer care plan details specific to Hodgkin Lymphoma for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | NUMBER OF ABNORMAL NODAL AREAS |
| R | PRIMARY EXTRANODAL CANCER SITE |
| R | HASENCLEVER INDEX SCORE |
| CHOICE 7 - ACUTE LYMPHOBLASTIC LEUKAEMIA (ALL) | |
| To carry cancer care plan details specific to Acute Lymphoblastic Leukaemia (ALL) for Haematological cancer. One occurrence of this group is required per Core Cancer Care Plan if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | EXTRAMEDULLARY DISEASE SITE Multiple occurrences of this item are permitted |
| SITE SPECIFIC STAGING - HAEMATOLOGICAL |
|---|
| One of the following Site Specific Staging Sections MUST be provided per Core Site Specific Staging | |
| CHOICE 1 - ANN ARBOR | |
| To carry Ann Arbor site specific staging details for various haematological diseases for Haematological cancer. One occurrence of this group is required per Core Site Specific Staging if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | ANN ARBOR STAGE |
| CHOICE 2 - CHRONIC LYMPHOID LEUKAEMIA (CLL) | |
| To carry Chronic Lymphoid Leukaemia (CLL) staging details for Haematological cancer. One occurrence of this group is required per Core Site Specific Staging if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | BINET STAGE |
| CHOICE 3 - MYELOMA | |
| To carry Myeloma staging details for Haematological cancer. One occurrence of this group is permitted per Core Site Specific Staging if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | REVISED INTERNATIONAL STAGING SYSTEM STAGE FOR MULTIPLE MYELOMA |
| CHOICE 4 - NON HODGKIN LYMPHOMA (NHL) | |
| To carry Non Hodgkin Lymphoma (NHL) staging details for Haematological cancer. One occurrence of this group is required per Core Site Specific Staging if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | MURPHY ST JUDE STAGE |
| ANN ARBOR: EXTENSIONS - HAEMATOLOGICAL |
|---|
| To carry supporting Ann Arbor staging details for various haematological diseases as specified. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | ANN ARBOR SYMPTOMS INDICATION CODE |
| R | ANN ARBOR EXTRANODALITY INDICATION CODE |
| R | ANN ARBOR BULKY DISEASE INDICATION CODE |
| R | ANN ARBOR SPLENIC INDICATION CODE |
| LABORATORY RESULTS CHOICE - HAEMATOLOGICAL |
|---|
| One occurrence of this group is required per Core Laboratory Results One of the following Laboratory Results MUST be provided per Core Laboratory Results | |
| CHOICE 1 - VARIOUS HAEMATOLOGICAL DISEASES | |
| To carry laboratory results for various haematological diseases for Haematological cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | EUROPEAN LEUKAEMIA NET GENETIC RISK CODE |
| R | WHITE BLOOD CELL COUNT (HIGHEST PRETREATMENT) |
| CHOICE 2 - VARIOUS HAEMATOLOGICAL DISEASES: CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA). | |
| To carry laboratory results for various haematological diseases for Children Teenagers and Young Adults (CTYA) Haematological cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | BONE MARROW BLAST CELLS PERCENTAGE |
| R | CYTOGENETIC FINDINGS COMMENT |
| CHOICE 3 - PAEDIATRIC MYELODYSPLASIA | |
| To carry Paediatric Myelodysplasia laboratory result details for Haematological cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | CELLULARITY PERCENTAGE |
| R | DIEPOXYBUTANE TEST RESULT |
| R | DYSPLASTIC HAEMOPOIESIS TYPE |
| CHOICE 4 - ACUTE LYMPHOBLASTIC LEUKAEMIA (ALL) - RESPONSE | |
| To carry Acute Lymphoblastic Leukaemia (ALL) Response laboratory result details for Haematological cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | LEUKAEMIC CELLS PRESENT POST MINIMAL RESIDUAL DISEASE INDUCTION PERCENTAGE |
| DIAGNOSIS CHOICE - HAEMATOLOGICAL |
|---|
| One of the following can be provided per Core Diagnosis | |
| CHOICE 1 - MIXED PHENOTYPE ACUTE LEUKAEMIA (MPAL) | |
| To carry diagnostic Mixed Phenotype Acute Leukaemia (MPAL) details for Haematological cancer. One occurrence of this group is required per Core Diagnosis if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | MIXED PHENOTYPE ACUTE LEUKAEMIA SYMPTOMS (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | EUROPEAN GROUP FOR THE IMMUNOLOGICAL CLASSIFICATION OF LEUKAEMIA SCORING SYSTEM SCORE |
| CHOICE 2 - ACUTE MYELOID LEUKAEMIA (AML) | |
| To carry diagnostic Acute Myeloid Leukaemia (AML) details for Haematological cancer. One occurrence of this group is required per Core Diagnosis if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | FRENCH AMERICAN BRITISH CLASSIFICATION (ACUTE MYELOID LEUKAEMIA) |
| R | CYTOGENETIC RISK GROUP (PAEDIATRIC MOLECULAR GENETIC ABNORMALITIES) |
| R | ACUTE MYELOID LEUKAEMIA RISK FACTORS (AT DIAGNOSIS) |
| CHOICE 3 - PAEDIATRIC MYELODYSPLASIA | |
| To carry diagnostic Paediatric Myelodysplasia details for Haematological cancer. One occurrence of this group is required per Core Diagnosis if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | PAEDIATRIC MYELODYSPLASIA CLINICAL FINDINGS (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | UNDERLYING DISEASE ASSOCIATED WITH MYELODYSPLASIA (AT DIAGNOSIS) Multiple occurrences of this item are permitted |
| R | CONGENITAL ANOMALIES COMMENT |
| R | OTHER MYELODYSPLASIA SYMPTOMS AT DIAGNOSIS Multiple occurrences of this item are permitted |
| ACUTE LEUKAEMIAS - HAEMATOLOGICAL |
|---|
| To carry treatment details for Acute Leukaemias for Haematological cancer. One occurrence of this group is permitted per Core Treatment. | |
| M/R | Data Set Data Elements |
| R | PRIMARY INDUCTION CHEMOTHERAPY FAILURE INDICATOR |
| MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED THERAPY: NON HODGKIN LYMPHOMA - HAEMATOLOGICAL |
|---|
| To carry Molecular and Biomarkers Result details for Non Hodgkin Lymphoma (NML) for Haematological cancer. One occurrence of this group is permitted per Core Molecular and Biomarkers - Somatic Testing for Targeted Therapy and Personalised Medicine. | |
| M/R | Data Set Data Elements |
| M | ALK GENE FUSION STATUS (ANAPLASTIC LARGE CELL LYMPHOMA) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Head and Neck.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| TREATMENT: SURGERY - HEAD AND NECK |
|---|
| To carry surgery details for Head and Neck cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | SURGICAL ACCESS TYPE (HEAD AND NECK CANCER) |
| R | OTHER SURGICAL ACCESS TYPE (HEAD AND NECK CANCER) |
| PRE TREATMENT ASSESSMENT - HEAD AND NECK |
|---|
| To carry pre treatment assessment details for Head and Neck cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | CANCER DENTAL ASSESSMENT DATE |
| R | CARE CONTACT DATE (DIETITIAN INITIAL) |
| R | CARE CONTACT DATE (SPEECH AND LANGUAGE THERAPIST INITIAL) |
| POST TREATMENT ASSESSMENT - HEAD AND NECK |
|---|
| To carry post treatment assessment details for Head and Neck cancer. Multiple occurrences of this group are permitted. | |
| M/R | Data Set Data Elements |
| R | CLINICAL STATUS ASSESSMENT DATE (CANCER) |
| R | PRIMARY TUMOUR STATUS |
| R | NODAL STATUS |
| R | METASTATIC STATUS |
| R | SPEECH AND LANGUAGE ASSESSMENT DATE |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Liver.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| DIAGNOSIS - LIVER |
|---|
| To carry diagnostic details for Liver cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | LIVER CANCER SURVEILLANCE SCAN INDICATOR |
| R | LIVER CIRRHOSIS TYPE |
| R | LIVER CIRRHOSIS CAUSE TYPE Multiple occurrences of this item are permitted |
| DIAGNOSIS: CHOLANGIOCARCINOMA - LIVER |
|---|
| To carry diagnostic details for Cholangiocarcinoma for Liver cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| M | CHOLANGIOCARCINOMA PRESENCE CATEGORY |
| SITE SPECIFIC STAGING - LIVER |
|---|
| To carry site specific staging details for Liver cancer. One occurrence of this group is permitted per Core Site Specific Staging. | |
| M/R | Data Set Data Elements |
| M | BARCELONA CLINIC LIVER CANCER STAGE |
| TREATMENT AND PROGNOSTIC INDICATORS - LIVER |
|---|
| To carry treatment and prognostic details for Liver cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | PORTAL VEIN INVASION INDICATION CODE |
| R | UNITED KINGDOM MODEL FOR END-STAGE LIVER DISEASE SCORE |
| R | CHILD PUGH SCORE |
| TREATMENT - LIVER |
|---|
| To carry other procedure details for Liver Metastasis and Liver Hepatocellular Carcinoma (HCC) for Liver cancer. One occurrence of this group is permitted per Core Treatment. | |
| M/R | Data Set Data Elements |
| R | ABLATIVE THERAPY TYPE |
| R | LIVER TRANSARTERIAL EMBOLISATION MATERIAL INJECTION TYPE |
| TRANSPLANTATION - LIVER |
|---|
| To carry liver transplantation details for Liver cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | LIVER TRANSPLANT WAITING LIST INDICATOR |
| TREATMENT: SURGERY - LIVER |
|---|
| To carry surgery details for Liver cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | LIVER SURGERY PERFORMED TYPE |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Lung.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| DIAGNOSTIC PROCEDURES CHOICE - LUNG |
|---|
| One of the following may be provided per Diagnostic Procedure | |
| CHOICE 1 - TRANSTHORACIC ECHOCARDIOGRAM | |
| To carry Transthoracic Echocardiogram details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer. One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | TRANSTHORACIC ECHOCARDIOGRAM TEST RESULT |
| CHOICE 2 - DIFFUSION CAPACITY | |
| To carry Diffusion Capacity details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer. One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | DIFFUSION CAPACITY TEST RESULT |
| CHOICE 3 - FEV1 | |
| To carry FEV1 details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer. One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | FORCED EXPIRATORY VOLUME IN 1 SECOND (PERCENTAGE) |
| R | FORCED EXPIRATORY VOLUME IN 1 SECOND (ABSOLUTE AMOUNT) |
| CHOICE 4 - CARDIOPULMONARY TEST | |
| To carry Cardiopulmonary Test details required for the National Lung Cancer Audit (NLCA) for Lung cancer. One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | CARDIOPULMONARY EXERCISE TEST TYPE |
| R | CARDIOPULMONARY EXERCISE TEST RESULT |
| CHOICE 5 - BRONCHOSCOPY | |
| To carry bronchoscopy details for Lung cancer. One occurrence of this group is required per Core Diagnostic Procedures if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | BRONCHOSCOPY PERFORMED TYPE |
| MEDIASTINAL SAMPLING - LUNG |
|---|
| To carry Mediastinal Sampling details for the National Lung Cancer Audit (NLCA), to be captured once only for each care pathway for Lung cancer. One occurrence of this group is permitted. | |
| M/R | Data Set Data Elements |
| R | MEDIASTINAL SAMPLING INDICATOR |
| MOLECULAR AND BIOMARKERS - SOMATIC TESTING FOR TARGETED THERAPY AND PERSONALISED MEDICINE - LUNG |
|---|
| To carry Molecular details for Lung cancer. One occurrence of this group is permitted per Core - Molecular and Biomarkers - Somatic Testing for Targeted Therapy and Personalised Medicine. | |
| M/R | Data Set Data Elements |
| R | EPIDERMAL GROWTH FACTOR RECEPTOR MUTATIONAL STATUS |
| R | ALK GENE FUSION STATUS (LUNG CANCER) |
| R | ROS1 FUSION STATUS |
| R | PD-L1 EXPRESSION PERCENTAGE |
| TREATMENT - SURGERY: LUNG CANCER CONSULTANT OUTCOME PUBLICATION (LCCOP) - LUNG |
|---|
| To carry surgery details for the Lung Cancer Consultant Outcome Publication (LCCOP) for Lung cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | REGIONAL ANAESTHETIC TECHNIQUE (CANCER) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Pathology.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory, Required or Optional (M/R/O) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
- O = Optional: the inclusion of this data element is optional as required for local purposes.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| SUBMISSION HEADER |
|---|
| To carry the submission header details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | COSDS SUBMISSION IDENTIFIER |
| M | ORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION) |
| M | COSDS SUBMISSION RECORD COUNT |
| M | REPORTING PERIOD START DATE |
| M | REPORTING PERIOD END DATE |
| M | DATE AND TIME DATA SET CREATED |
| RECORD IDENTIFIER |
|---|
| To carry the record identifier details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | COSDS UNIQUE IDENTIFIER |
| LINKAGE IDENTIFIER CHOICE - CORE - PATHOLOGY |
|---|
| One of the following Core Linkage sections MUST be provided | |
| CHOICE 1 - NHS NUMBER | |
| To carry patient identity details for linkage. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | NHS NUMBER |
| CHOICE 2 - LOCAL PATIENT IDENTIFIER | |
| To carry patient identity details for linkage. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| LINKAGE IDENTIFIER - CORE - PATHOLOGY |
|---|
| To carry patient identity details for linkage. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | NHS NUMBER STATUS INDICATOR CODE |
| M | PERSON BIRTH DATE |
| M | ORGANISATION IDENTIFIER (CODE OF PROVIDER) |
| DEMOGRAPHICS - CORE - PATHOLOGY |
|---|
| To carry patient demographic details. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | PERSON FAMILY NAME |
| R | PERSON GIVEN NAME |
| R | PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS STRUCTURED or PATIENT USUAL ADDRESS (AT DIAGNOSIS) - ADDRESS UNSTRUCTURED |
| R | POSTCODE OF USUAL ADDRESS (AT DIAGNOSIS) |
| R | PERSON STATED GENDER CODE |
| PATHOLOGY DETAILS PART 1 - CORE - PATHOLOGY |
|---|
| TOPOGRAPHY/MORPHOLOGY - CORE - PATHOLOGY |
|---|
| To carry Topography/Morphology SNOMED pathology details. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| M | SNOMED VERSION (PATHOLOGY) |
| TOPOGRAPHY/MORPHOLOGY CHOICE - CORE - PATHOLOGY |
|---|
| One of the following MUST be provided | |
| CHOICE 1 - TOPOGRAPHY SNOMED | |
| To carry pathology Topography SNOMED details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | TOPOGRAPHY (SNOMED PATHOLOGY) Multiple occurrences of this item are permitted |
| CHOICE 2 - MORPHOLOGY SNOMED | |
| To carry pathology Morphology SNOMED details. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| M | MORPHOLOGY (SNOMED PATHOLOGY) Multiple occurrences of this item are permitted |
| PATHOLOGY DETAILS PART 2 CORE - PATHOLOGY |
|---|
| BREAST - PATHOLOGY |
|---|
| CENTRAL NERVOUS SYSTEM (CNS) - PATHOLOGY |
|---|
| To carry pathology details for Central Nervous System (CNS) cancer. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | MOLECULAR DIAGNOSTIC CODE Multiple occurrences of this item are permitted |
| R | HORMONE EXPRESSION TYPE Multiple occurrences of this item are permitted |
| COLORECTAL - PATHOLOGY |
|---|
| To carry pathology details for Colorectal cancer. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | MARGIN INVOLVED INDICATION CODE (COLORECTAL PROXIMAL OR DISTAL RESECTION MARGIN) |
| R | DISTANCE TO CLOSEST NON PERITONEALISED RESECTION MARGIN |
| R | PLANE OF SURGICAL EXCISION INDICATOR |
| R | DISTANCE FROM DENTATE LINE |
| R | DISTANCE BEYOND MUSCULARIS PROPRIA |
| R | PREOPERATIVE THERAPY RESPONSE TYPE |
| R | MARGIN INVOLVED INDICATION CODE (CIRCUMFERENTIAL MARGIN) |
| CHILDREN, TEENAGERS AND YOUNG ADULTS (CTYA): RENAL PATHOLOGY (PAEDIATRIC KIDNEY) - PATHOLOGY |
|---|
| To carry renal (paediatric kidney) pathology details for Children, Teenagers, and Young Adults (CTYA) cancer. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | TUMOUR RUPTURE INDICATOR (PATHOLOGICAL) |
| R | ANAPLASTIC NEPHROBLASTOMA TYPE |
| R | TUMOUR INVASION INDICATOR (PERIRENAL FAT) |
| R | TUMOUR INVASION INDICATOR (RENAL SINUS) |
| R | RENAL VEIN TUMOUR INDICATOR (PAEDIATRIC KIDNEY) |
| R | VIABLE TUMOUR EVIDENCE AT RESECTION MARGIN |
| R | INTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY TUMOUR LOCAL STAGE |
| GYNAECOLOGICAL - PATHOLOGY |
|---|
| To carry pathology details for Gynaecological cancer. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | MICROSCOPIC INVOLVEMENT INDICATION CODE (FALLOPIAN TUBE) |
| R | MICROSCOPIC INVOLVEMENT INDICATION CODE (OVARIAN) |
| R | MICROSCOPIC INVOLVEMENT INDICATION CODE (UTERINE SEROSA) |
| R | OMENTUM INVOLVEMENT INDICATION CODE |
| GYNAECOLOGICAL: FALLOPIAN TUBE, OVARIAN EPITHELIAL AND PRIMARY PERITONEAL - PATHOLOGY |
|---|
| To carry pathology details for Gynaecological cancer for Fallopian Tube, Ovarian Epithelial and Primary Peritoneal. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | GYNAECOLOGICIAL CAPSULE STATUS |
| R | OVARY SURFACE INVOLVEMENT INDICATOR |
| R | PERITONEAL CYTOLOGY RESULT CODE |
| R | PERITONEAL INVOLVEMENT INDICATION CODE |
| GYNAECOLOGICAL: ENDOMETRIAL - PATHOLOGY |
|---|
| To carry pathology details for Gynaecological cancer for Endometrial. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | MICROSCOPIC INVOLVEMENT INDICATOR (CERVICAL STROMA) |
| R | MYOMETRIAL INVASION IDENTIFICATION CODE |
| R | MICROSCOPIC INVOLVEMENT INDICATOR (PARAMETRIUM) |
| R | PERITONEAL WASHINGS IDENTIFIED |
| R | PERITONEAL INVOLVEMENT INDICATOR (ENDOMETRIAL CANCER) |
| R | GYNAECOLOGICIAL CANCER SITE OF PERITONEAL INVOLVEMENT |
| GYNAECOLOGICAL: CERVICAL - PATHOLOGY |
|---|
| To carry pathology details for Gynaecological cancer for Cervical. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | CERVICAL GLANDULAR INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE |
| R | CERVICAL INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE |
| R | SMILE INDICATION CODE |
| R | RESECTION MARGIN INVOLVEMENT INDICATOR |
| R | PARACERVICAL OR PARAMETRIAL INVOLVEMENT INDICATOR |
| R | UNINVOLVED CERVICAL STROMA THICKNESS |
| R | MICROSCOPIC INVOLVEMENT INDICATOR (VAGINAL) |
| R | INVASIVE THICKNESS |
| GYNAECOLOGICAL: NODES - PATHOLOGY |
|---|
| To carry pathology details for Gynaecological cancer for Nodes. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | NUMBER OF NODES EXAMINED (PARA-AORTIC) |
| R | NUMBER OF NODES POSITIVE (PARA-AORTIC) |
| R | NUMBER OF NODES EXAMINED (PELVIC) |
| R | NUMBER OF NODES POSITIVE (PELVIC) |
| R | NUMBER OF NODES EXAMINED (INGUINO-FEMORAL) |
| R | NUMBER OF NODES POSITIVE (INGUINO-FEMORAL) |
| R | EXTRANODAL SPREAD INDICATOR |
| HEAD AND NECK: VARIOUS - PATHOLOGY |
|---|
| To carry pathology details for various Head and Neck cancers. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | MAXIMUM DEPTH OF INVASION |
| R | BONE INVASION INDICATION CODE |
| R | CARTILAGE INVASION INDICATION CODE |
| R | ANATOMICAL SIDE (NECK DISSECTION) |
| HEAD AND NECK: SALIVARY - PATHOLOGY |
|---|
| To carry salivary pathology details for Head and Neck cancer. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| M | MACROSCOPIC EXTRAGLANDULAR EXTENSION INDICATION CODE |
| HEAD AND NECK: GENERAL AND SALIVARY - PATHOLOGY |
|---|
| To carry general and salivary pathology details for Head and Neck cancer. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | ANATOMICAL SIDE (POSITIVE NODES) |
| R | LARGEST METASTASIS (LEFT NECK) |
| R | LARGEST METASTASIS (RIGHT NECK) |
| R | EXTRACAPSULAR SPREAD INDICATION CODE |
| HEAD AND NECK: HUMAN PAPILLOMAVIRUS (HPV) - PATHOLOGY |
|---|
| To carry human papilloma virus pathology details for Head and Neck cancer. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | P16 IMMUNOHISTOCHEMISTRY TEST RESULT |
| R | HUMAN PAPILLOMAVIRUS IN SITU HYBRIDISATION TEST RESULT |
| LUNG - PATHOLOGY |
|---|
| To carry pathology details for Lung cancer. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | EXTENT OF ATELECTASIS |
| R | EXTENT OF PLEURAL INVASION |
| R | TUMOUR INVASION INDICATOR (PERICARDIUM) |
| R | TUMOUR INVASION INDICATOR (DIAPHRAGM) |
| R | TUMOUR INVASION INDICATOR (GREAT VESSELS) |
| R | TUMOUR INVASION INDICATOR (HEART) |
| R | MALIGNANT PLEURAL EFFUSION INDICATOR |
| R | TUMOUR INVASION INDICATOR (MEDIASTINUM) |
| R | SATELLITE TUMOUR NODULES LOCATION |
| SARCOMA: BONE AND SOFT TISSUE - PATHOLOGY |
|---|
| To carry pathology details for Sarcoma for Bone and Soft Tissue. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | GENETIC CONFIRMATION INDICATOR |
| SARCOMA: BONE - PATHOLOGY |
|---|
| To carry pathology details for Sarcoma for Bone. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | SARCOMA TUMOUR BREACH IDENTIFIER |
| R | TUMOUR NECROSIS PERCENTAGE |
| SARCOMA: SOFT TISSUE - PATHOLOGY |
|---|
| To carry pathology details for Sarcoma for Soft Tissue. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | SARCOMA TUMOUR DEPTH |
| R | MITOTIC RATE (SARCOMA) |
| SKIN: BASAL CELL CARCINOMAS (BCC) - PATHOLOGY |
|---|
| To carry pathology details for Basal Cell Carcinoma (BCC) for skin cancer. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| R | SKIN CANCER LESION SPECIMEN IDENTIFIER |
| R | PERINEURAL INVASION INDICATOR (SKIN) |
| R | LESION DIAMETER GREATER THAN 20MM INDICATION CODE |
| SKIN: SQUAMOUS CELL CARCINOMA (SCC) - PATHOLOGY |
|---|
| To carry pathology details for Squamous Cell Carcinoma (SCC) for skin cancer. One occurrence of this group is required. | |
| M/R/O | Data Set Data Elements |
| R | SKIN CANCER LESION SPECIMEN IDENTIFIER |
| R | PERINEURAL INVASION INDICATOR (SKIN) |
| R | LESION DIAMETER GREATER THAN 20MM INDICATION CODE |
| R | CLARKS LEVEL IV INDICATION CODE |
| R | LESION VERTICAL THICKNESS GREATER THAN 2MM INDICATION CODE |
| SKIN: MALIGNANT MELANOMA (MM) - PATHOLOGY |
|---|
| To carry pathology details for Malignant Melanoma (MM) for skin cancer. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | SKIN CANCER LESION SPECIMEN IDENTIFIER |
| R | SKIN ULCERATION INDICATION CODE |
| R | MITOTIC RATE (SKIN) |
| R | MICROSATELLITE OR IN-TRANSIT METASTASIS INDICATION CODE |
| R | TUMOUR REGRESSION INDICATION CODE (SKIN) |
| R | BRESLOW THICKNESS |
| R | TUMOUR INFILTRATING LYMPHOCYTE TYPE |
| R | NUMBER OF SENTINEL NODES SAMPLED |
| R | NUMBER OF SENTINEL NODES POSITIVE |
| R | NUMBER OF NODES SAMPLED (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY) |
| R | NUMBER OF NODES POSITIVE (POST SENTINEL NODE COMPLETION LYMPHADENECTOMY) |
| UPPER GASTROINTESTINAL (GI): VARIOUS - PATHOLOGY |
|---|
| To carry pathology details for various Upper Gastrointestinal (GI) cancers. One occurrence of this data group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | NUMBER OF COLORECTAL METASTASES IN LIVER |
| R | MARGIN INVOLVED INDICATION CODE (PROXIMAL OR DISTAL RESECTION MARGIN) |
| R | MARGIN INVOLVED INDICATION CODE (CIRCUMFERENTIAL MARGIN) |
| UROLOGICAL: BLADDER - PATHOLOGY |
|---|
| To carry pathology details for Urological cancer for the bladder. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | DETRUSOR MUSCLE PRESENCE INDICATION CODE |
| R | TUMOUR GRADE (UROLOGY) |
| UROLOGICAL: KIDNEY - PATHOLOGY |
|---|
| To carry pathology details for Urological cancer for the kidney. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | TUMOUR NECROSIS INDICATION CODE |
| R | TUMOUR INVASION INDICATOR (PERINEPHRIC FAT) |
| R | TUMOUR INVASION INDICATION CODE (DIRECT ADRENAL) |
| R | RENAL VEIN TUMOUR THROMBUS INDICATION CODE (UROLOGICAL) |
| R | TUMOUR INVASION INDICATOR (GEROTAS FASCIA) |
| UROLOGICAL: PENIS - PATHOLOGY |
|---|
| To carry pathology details for Urological cancer for the penis. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | TUMOUR INVASION INDICATOR (CORPUS SPONGIOSUM) |
| R | TUMOUR INVASION INDICATOR (CORPUS CAVERNOSUM) |
| R | TUMOUR INVASION INDICATOR (URETHRA OR PROSTATE) |
| UROLOGICAL: PROSTATE - PATHOLOGY |
|---|
| To carry pathology details for Urological cancer for prostate. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| R | GLEASON GRADE (PRIMARY) |
| R | GLEASON GRADE (SECONDARY) |
| R | GLEASON GRADE (TERTIARY) |
| R | PERINEURAL INVASION INDICATOR (UROLOGICAL) |
| R | TURP TUMOUR PERCENTAGE |
| UROLOGICAL: TESTICULAR - PATHOLOGY |
|---|
| To carry pathology details for Urological cancer for testicular. One occurrence of this group is permitted. | |
| M/R/O | Data Set Data Elements |
| M | TUMOUR INVASION INDICATOR (RETE TESTIS) |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Sarcoma.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| DIAGNOSIS - SARCOMA |
|---|
| To carry diagnostic details for Bone and Soft Tissue for Sarcoma cancer. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | SARCOMA TUMOUR SITE (BONE) |
| R | SARCOMA TUMOUR SUBSITE (BONE) |
| R | SARCOMA TUMOUR SITE (SOFT TISSUE) |
| R | SARCOMA TUMOUR SUBSITE (SOFT TISSUE) |
| R | MULTIFOCAL OR SYNCHRONOUS TUMOUR INDICATOR |
| DIAGNOSIS CHOICE - SARCOMA |
|---|
| One of the following can be provided per Core Diagnosis | |
| CHOICE 1 - RHABDOMYOSARCOMA AND OTHER SOFT TISSUE SARCOMAS | |
| To carry diagnostic Rhabdomyosarcoma and other Soft Tissue Sarcoma details for Sarcoma cancer. One occurrence of this group is required per Core Diagnosis if selected as the choice. | |
| M/R | Data Set Data Elements |
| R | INTERGROUP RHABDOMYOSARCOMA STUDY POST SURGICAL GROUP |
| R | INTERGROUP RHABDOMYOSARCOMA STUDY POST SURGICAL GROUP DATE |
| R | RHABDOMYOSARCOMA SITE PROGNOSIS CODE |
| CHOICE 2 - EWINGS | |
| To carry diagnostic Ewings details for Sarcoma cancer. One occurrence of this group is required per Core Diagnosis if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | TUMOUR VOLUME AT DIAGNOSIS CODE |
| LABORATORY RESULTS CHOICE - SARCOMA |
|---|
| One of the following can be provided per Core Laboratory Results | |
| CHOICE 1 - RHABDOMYOSARCOMA AND OTHER SOFT TISSUE SARCOMAS | |
| To carry Rhabdomyosarcoma and other Soft Tissue Sarcoma laboratory result details for Sarcoma cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | CYTOGENETIC PRESENCE TYPE (RHABDOMYOSARCOMA) |
| CHOICE 2 - EWINGS | |
| To carry Ewings laboratory result details for Sarcoma cancer. One occurrence of this group is required per Core Laboratory Results if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | CYTOGENETIC ANALYSIS CODE |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Skin.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| TREATMENT - SURGERY: BASAL CELL CARCINOMAS (BCC), SQUAMOUS CELL CARCINOMA (SCC), MALIGNANT MELANOMA (MM) - SKIN |
|---|
| To carry surgery details for Basal Cell Carcinoma (BCC), Squamous Cell Carcinoma (SCC) and Malignant Melanoma (MM) for Skin cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | CARE PROFESSIONAL OPERATING SURGEON TYPE (CANCER) |
| R | MEMBER OF SPECIALIST MULTIDISCIPLINARY TEAM INDICATOR |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Upper Gastrointestinal.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| TREATMENT - SURGERY: GENERAL - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| M | PALLIATIVE TREATMENT REASON (UPPER GASTROINTESTINAL) |
| TREATMENT - SURGERY: OESO-GASTRIC - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for Oeso-Gastric for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| M | POST OPERATIVE TUMOUR SITE (UPPER GASTROINTESTINAL) |
| TREATMENT - SURGERY: ESODATA - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for the Esophageal Database (ESODATA) for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | INTERNATIONAL ESOPHAGEAL DATABASE SURGICAL COMPLICATIONS Multiple occurrences of this item are permitted |
| R | OESOPHAGOENTERIC LEAK SEVERITY TYPE |
| R | OESOPHAGECTOMY OESOPHAGEAL CONDUIT NECROSIS FAILURE TYPE |
| R | RECURRENT LARYNGEAL NERVE INJURY INVOLVEMENT TYPE |
| R | CHYLE LEAK SEVERITY TYPE |
| R | CALVIEN-DINDO CLASSIFICATION OF SURGICAL CLASSIFICATIONS |
| R | ADDITIONAL INTERNATIONAL ESOPHAGEAL DATABASE SURGICAL COMPLICATIONS Multiple occurrences of this item are permitted |
| TREATMENT - SURGERY: OUTCOME MEASURES - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery outcome measures for the Esophageal Database (ESODATA) for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | ESCALATION IN LEVEL OF PATIENT CARE FOLLOWING OESOPHAGECTOMY INDICATOR |
| R | BLOOD PRODUCTS REQUIRED FOLLOWING OESOPHAGECTOMY INDICATION CODE |
| R | UNITS OF BLOOD TRANSFUSED FOLLOWING OESOPHAGECTOMY |
| TREATMENT - SURGERY: OESOPHAGECTOMY - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for the Oesophagectomy for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| R | OESOPHAGECTOMY SURGICAL APPROACH TYPE |
| R | OPEN OESOPHAGECTOMY SURGICAL APPROACH TYPE |
| R | MINIMALLY INVASIVE OESOPHAGECTOMY SURGICAL APPROACH TYPE |
| R | OESOPHAGECTOMY ANASTOMOSIS TYPE |
| R | OESOPHAGECTOMY OESOPHAGEAL CONDUIT TYPE |
| R | OESOPHAGECTOMY NECK DISSECTION INDICATOR |
| TREATMENT - SURGERY: LIVER CHOLANGIOCARCINOMA AND PANCREATIC - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for Liver Cholangiocarcinoma and Pancreatic for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| M | SURGICAL PALLIATION TYPE |
| TREATMENT - SURGERY: ENDOSCOPIC OR RADIOLOGICAL PROCEDURES (PANCREATIC AND OESO-GASTRIC) - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for endoscopic and radiological procedures for Pancreatic and Oeso-Gastric for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| M | ENDOSCOPIC PROCEDURE TYPE Multiple occurrences of this item are permitted |
| TREATMENT - SURGERY: ENDOSCOPIC OR RADIOLOGICAL PROCEDURES (MAIN) - UPPER GASTROINTESTINAL (GI) |
|---|
| To carry surgery details for endoscopic and radiological procedures for Upper Gastrointestinal (GI) cancer. One occurrence of this group is permitted per Core Treatment Surgery. | |
| M/R | Data Set Data Elements |
| M | ENDOSCOPIC OR RADIOLOGICAL COMPLICATION TYPE Multiple occurrences of this item are permitted |
Change to Data Set: Changed Description
Cancer Outcomes and Services Data Set Overview
Due to the rapidly changing situation with Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) has been deferred until 1 July 2020.Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.
For further information please contact: COSD@phe.gov.uk.
For a "Full Screen" view, click Cancer Outcomes and Services Data Set: Urological.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R) column in the COSDS XML Schema indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc..) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.
| DIAGNOSTIC PROCEDURES: PROSTATE - UROLOGICAL |
|---|
| To carry cancer diagnostic procedure details for Urological cancer for the prostate. One occurrence of this group is permitted per Core Diagnostic Procedures. | |
| M/R | Data Set Data Elements |
| M | PRETREATMENT PROSTATE BIOPSY TECHNIQUE TYPE |
| M | BIOPSY ANAESTHETIC TYPE |
| DIAGNOSIS: PROSTATE - UROLOGICAL |
|---|
| To carry the diagnosis details for Urological cancer for the prostate. One occurrence of this group is permitted per Core Diagnosis. | |
| M/R | Data Set Data Elements |
| R | MULTIPARAMETRIC MRI SCAN INDICATOR |
| R | MRI ULTRASOUND FUSION GUIDED BIOPSY INDICATOR |
| R | PROSTATE SPECIFIC ANTIGEN (DIAGNOSIS) |
| CANCER CARE PLAN - UROLOGICAL |
|---|
| To carry cancer care plan details for Urological cancer. One occurrence of this group is permitted per Core Cancer Care Plan. | |
| M/R | Data Set Data Elements |
| R | ESTIMATED GLOMERULAR FILTRATION RATE |
| R | HYDRONEPHROSIS CODE |
| R | S CATEGORY CODE |
| LABORATORY RESULTS - UROLOGICAL |
|---|
| To carry Laboratory Result details for Urological cancer. One occurrence of this group is permitted per Core Laboratory Results. | |
| M/R | Data Set Data Elements |
| R | S CATEGORY (ALPHA FETOPROTEIN) |
| R | S CATEGORY (HUMAN CHORIONIC GONADOTROPIN) |
| R | S CATEGORY (LACTATE DEHYDROGENASE) |
| R | LACTATE DEHYDROGENASE LEVEL (NORMAL UPPER LIMIT) |
| STAGING: TESTICULAR - UROLOGICAL |
|---|
| To carry staging details for Urological cancer for testicular. One occurrence of this group is permitted per Core Site Specific Staging. | |
| M/R | Data Set Data Elements |
| R | STAGE GROUPING (TESTICULAR CANCER) |
| R | EXTENT OF METASTATIC SPREAD Multiple occurrences of this item are permitted |
| R | LUNG METASTASES SUB-STAGE GROUPING |
| TREATMENT: BLADDER CHOICE - UROLOGICAL |
|---|
| One of the following can be provided per Urological Treatment | |
| CHOICE 1 - INTRAVESICAL CHEMOTHERAPY | |
| To carry treatment details for Urological cancer for the bladder. One occurrence of this group is required per Core Treatment if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | INTRAVESICAL CHEMOTHERAPY RECEIVED INDICATOR |
| CHOICE 2 - INTRAVESICAL IMMUNOTHERAPY | |
| To carry treatment details for Urological cancer for the bladder. One occurrence of this group is required per Core Treatment if selected as the choice. | |
| M/R | Data Set Data Elements |
| M | INTRAVESICAL IMMUNOTHERAPY RECEIVED INDICATOR |
| TREATMENT: PROSTATE - UROLOGICAL |
|---|
| To carry cancer treatment details for Urological cancer for the prostate. One occurrence of this group is required per Core Treatment. | |
| M/R | Data Set Data Elements |
| R | PROSTATE NERVE SPARING SURGERY TYPE |
| R | RADICAL PROSTATECTOMY MARGIN STATUS |
Change to Data Set: Changed Description
Community Services Data Set Overview
July 2020 data will start being submitted from 1 August 2020
For further information please contact: enquiries@nhsdigital.nhs.uk.
For a "Full Screen" view, click Community Services Data Set.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc.) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
- O = Optional: the inclusion of this data element is optional as required for local purposes.
For guidance on the Data Set constraints, see the Community Services Data Set Constraints.
For guidance on downloading the XML Schema, see XML Schema TRUD Download.
| SUBMISSION IDENTIFIER |
|---|
| PATIENT DEMOGRAPHICS |
|---|
| GP Practice Registration: To carry details of the GP Practice Registration of the patient. One occurrence of this group is required for each change of GP Practice Registration. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION) |
| R | START DATE (GMP PATIENT REGISTRATION) |
| R | END DATE (GMP PATIENT REGISTRATION) |
| R | ORGANISATION IDENTIFIER (GP PRACTICE RESPONSIBILITY) |
| Accommodation Type: To carry details of the type of accommodation for the patient. One occurrence of this group is permitted for each accommodation status. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ACCOMMODATION STATUS CODE |
| R | ACCOMMODATION STATUS RECORDED DATE |
| Care Plan Type: To carry details of Care Plans created for a patient by the organisation. One occurrence of this group is permitted for each Care Plan created for the patient. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE PLAN IDENTIFIER |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | CARE PLAN TYPE (COMMUNITY CARE) |
| M | CARE PLAN CREATION DATE |
| R | CARE PLAN CREATION TIME |
| R | CARE PLAN LAST UPDATED DATE |
| R | CARE PLAN LAST UPDATED TIME |
| R | CARE PLAN IMPLEMENTATION DATE |
| Care Plan Agreement: To carry details of any agreements to a Care Plan by a patient, team or organisation. One occurrence of this group is permitted for each agreement of a Care Plan. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE PLAN IDENTIFIER |
| M | CARE PLAN AGREED BY |
| R | CARE PLAN AGREED DATE |
| R | CARE PLAN AGREED TIME |
| Social and Personal Circumstances: To carry details of social and personal circumstances of a patient. One occurrence of this group is permitted for each social and personal circumstance recorded. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | SOCIAL AND PERSONAL CIRCUMSTANCE (SNOMED CT) |
| M | SOCIAL AND PERSONAL CIRCUMSTANCE RECORDED DATE |
| Employment Status: To carry details of the employment status of the patient. One occurrence of this group is permitted for each employment status. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | EMPLOYMENT STATUS |
| R | EMPLOYMENT STATUS RECORDED DATE |
| R | WEEKLY HOURS WORKED |
| REFERRALS |
|---|
| Service or Team Referral: To carry details of the Service or Team referral that the patient is subject to. One occurrence of this group is permitted for each referral. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) |
| M | REFERRAL REQUEST RECEIVED DATE |
| R | REFERRAL REQUEST RECEIVED TIME |
| O | NHS SERVICE AGREEMENT LINE NUMBER |
| R | SOURCE OF REFERRAL FOR COMMUNITY |
| R | ORGANISATION IDENTIFIER (REFERRING) |
| R | REFERRING CARE PROFESSIONAL STAFF GROUP (MENTAL HEALTH AND COMMUNITY CARE) |
| R | PRIORITY TYPE CODE |
| R | PRIMARY REASON FOR REFERRAL (COMMUNITY CARE) |
| R | SERVICE DISCHARGE DATE |
| R | DISCHARGE LETTER ISSUED DATE (MENTAL HEALTH AND COMMUNITY CARE) |
| Service or Team Type Referred To: To carry details of the Service or Team that the patient has been referred to. One occurrence of this group is permitted for each service or team that a patient has been referred to. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| R | CARE PROFESSIONAL TEAM LOCAL IDENTIFIER |
| M | SERVICE OR TEAM TYPE REFERRED TO (COMMUNITY CARE) |
| R | REFERRAL CLOSURE DATE |
| R | REFERRAL REJECTION DATE |
| R | REFERRAL CLOSURE REASON |
| R | REFERRAL REJECTION REASON |
| Other Reason for Referral: To carry details of additional reasons why a patient has been referred to a specific service. One occurrence of this group is permitted for each additional referral reason. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | OTHER REASON FOR REFERRAL (COMMUNITY CARE) |
| Referral To Treatment (RTT): To carry Referral to Treatment details for the patient referral. One occurrence of this group is permitted for each change in Referral To Treatment Period Status. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| R | UNIQUE BOOKING REFERENCE NUMBER (CONVERTED) |
| R | PATIENT PATHWAY IDENTIFIER |
| R | ORGANISATION IDENTIFIER (PATIENT PATHWAY IDENTIFIER ISSUER) |
| R | WAITING TIME MEASUREMENT TYPE |
| R | REFERRAL TO TREATMENT PERIOD START DATE |
| R | REFERRAL TO TREATMENT PERIOD START TIME |
| R | REFERRAL TO TREATMENT PERIOD END DATE |
| R | REFERRAL TO TREATMENT PERIOD END TIME |
| R | REFERRAL TO TREATMENT PERIOD STATUS |
| Onward Referral: To carry details of any onward referral of the patient which has taken place. One occurrence of this group is permitted for each onward referral. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | ONWARD REFERRAL DATE |
| R | ONWARD REFERRAL REASON |
| R | ORGANISATION IDENTIFIER (RECEIVING) |
| CARE CONTACT AND ACTIVITIES |
|---|
| Care Contact: To carry details of any contacts with a patient which have taken place as result of a referral. One occurrence of this group is permitted for each Care Contact. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE CONTACT IDENTIFIER |
| M | SERVICE REQUEST IDENTIFIER |
| R | CARE PROFESSIONAL TEAM LOCAL IDENTIFIER |
| M | CARE CONTACT DATE |
| R | CARE CONTACT TIME |
| R | ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) |
| R | ADMINISTRATIVE CATEGORY CODE |
| R | CLINICAL CONTACT DURATION OF CARE CONTACT |
| R | CONSULTATION TYPE |
| R | CARE CONTACT SUBJECT |
| R | CONSULTATION MEDIUM USED |
| R | ACTIVITY LOCATION TYPE CODE |
| R | ORGANISATION SITE IDENTIFIER (OF TREATMENT) |
| R | GROUP THERAPY INDICATOR |
| R | ATTENDED OR DID NOT ATTEND CODE |
| R | EARLIEST REASONABLE OFFER DATE |
| R | EARLIEST CLINICALLY APPROPRIATE DATE |
| R | CARE CONTACT CANCELLATION DATE |
| R | CARE CONTACT CANCELLATION REASON |
| R | REPLACEMENT APPOINTMENT DATE OFFERED |
| R | REPLACEMENT APPOINTMENT BOOKED DATE |
| Care Activity: To carry details of any activities which have taken place as part of a contact with a patient. One occurrence of this group is permitted for each Care Activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| M | CARE CONTACT IDENTIFIER |
| M | COMMUNITY CARE ACTIVITY TYPE |
| R | CARE PROFESSIONAL LOCAL IDENTIFIER |
| R | CLINICAL CONTACT DURATION OF CARE ACTIVITY |
| R | PROCEDURE SCHEME IN USE |
| R | CODED PROCEDURE (CLINICAL TERMINOLOGY) |
| R | FINDING SCHEME IN USE |
| R | CODED FINDING (CODED CLINICAL ENTRY) |
| R | OBSERVATION SCHEME IN USE |
| R | CODED OBSERVATION (CLINICAL TERMINOLOGY) |
| R | OBSERVATION VALUE |
| R | UCUM UNIT OF MEASUREMENT |
| GROUP SESSIONS |
|---|
| Group Session: To carry details of any group sessions which have been provided to a group of people during the reporting period. One occurrence of this group is permitted for each Group Session activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | GROUP SESSION IDENTIFIER |
| M | GROUP SESSION DATE |
| M | ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) |
| R | CLINICAL CONTACT DURATION OF GROUP SESSION |
| R | GROUP SESSION TYPE (COMMUNITY CARE) |
| R | NUMBER OF GROUP SESSION PARTICIPANTS |
| O | ACTIVITY LOCATION TYPE CODE |
| R | ORGANISATION SITE IDENTIFIER (OF TREATMENT) |
| R | CARE PROFESSIONAL LOCAL IDENTIFIER |
| O | NHS SERVICE AGREEMENT LINE NUMBER |
| SOCIAL CIRCUMSTANCES |
|---|
| Special Educational Need Identified: To carry details of the child's or young person's Special Educational Need. One occurrence of this group is permitted for each Special Educational Need identified. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | SPECIAL EDUCATIONAL NEED TYPE |
| Safeguarding Vulnerability Factor: To carry details when the child's or young person is subject to any safeguarding concerns. One occurrence of this group is permitted for each safeguarding concern. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | SAFEGUARDING VULNERABILITY FACTORS TYPE |
| Child Protection Plan: To carry details when the child or young person is subject to a child protection plan. One occurrence of this group is permitted for each child protection plan. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | CHILD PROTECTION PLAN REASON CODE |
| M | CHILD PROTECTION PLAN START DATE |
| R | CHILD PROTECTION PLAN END DATE |
| Assistive Technology to Support Disability Type: To carry details when assistive technology is used to help support a disabled child or young person. One occurrence of this group is permitted for each assistive technology type. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ASSISTIVE TECHNOLOGY FINDING (SNOMED CT) |
| R | PRESCRIPTION DATE (ASSISTIVE TECHNOLOGY) |
| IMMUNISATIONS |
|---|
| Coded Immunisation: To carry details of coded immunisation activity for a patient. One occurrence of this group is permitted for each coded immunisation activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | IMMUNISATION DATE |
| M | PROCEDURE SCHEME IN USE |
| M | IMMUNISATION PROCEDURE (CLINICAL TERMINOLOGY) |
| R | ORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION) |
| Immunisation: To carry details of immunisation activity for a child or young person. One occurrence of this group is permitted for each immunisation activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | IMMUNISATION DATE |
| M | CHILDHOOD IMMUNISATION TYPE (CHILDREN AND YOUNG PEOPLE'S HEALTH SERVICES) |
| R | ORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION) |
| DIAGNOSES, TESTS AND OBSERVATIONS |
|---|
| Medical History (Previous Diagnosis): To carry details of any previous diagnoses for a patient, which are stated by the patient or patient proxy or recorded in medical notes. These do not have to have been diagnosed by the organisation submitting the data. One occurrence of this group is permitted for each previous diagnosis. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | DIAGNOSIS SCHEME IN USE |
| M | PREVIOUS DIAGNOSIS (CODED CLINICAL ENTRY) |
| R | DIAGNOSIS DATE |
| Disability Type: To carry details of the type of disability affecting a patient, based on their perception or the perception of a patient proxy. One occurrence of this group is permitted for each disability identified. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | DISABILITY CODE |
| R | DISABILITY IMPACT PERCEPTION |
| Newborn Hearing Screening Audiology Referral: To carry details of how concerns following Newborn Hearing Screening are followed up. One occurrence of this group is permitted for each newborn hearing audiology test. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| R | NEWBORN HEARING SCREENING OUTCOME |
| R | SERVICE REQUEST DATE (NEWBORN HEARING AUDIOLOGY) |
| R | PROCEDURE DATE (NEWBORN HEARING AUDIOLOGY) |
| R | NEWBORN HEARING AUDIOLOGY OUTCOME |
| Blood Spot Result: To carry details of the results of newborn blood spot tests. One occurrence of this group is permitted for each newborn blood spot test. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| R | BLOOD SPOT CARD COMPLETION DATE |
| R | NEWBORN BLOOD SPOT TEST RESULT RECEIVED DATE |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (PHENYLKETONURIA) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (SICKLE CELL DISEASE) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CYSTIC FIBROSIS) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CONGENITAL HYPOTHYROIDISM) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MEDIUM CHAIN ACYL-COA DEHYDROGENASE DEFICIENCY) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (HOMOCYSTINURIA) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MAPLE SYRUP URINE DISEASE) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (GLUTARIC ACIDURIA TYPE 1) |
| R | NEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (ISOVALERIC ACIDURIA) |
| Infant Physical Examination (General Medical Practitioner Delivered): To carry details of the Infant Physical Examination carried out by the General Medical Practitioner. One occurrence of this group is permitted for each Infant Physical Examination. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | INFANT PHYSICAL EXAMINATION DATE |
| R | INFANT PHYSICAL EXAMINATION RESULT (HIPS) |
| R | INFANT PHYSICAL EXAMINATION RESULT (HEART) |
| R | INFANT PHYSICAL EXAMINATION RESULT (EYES) |
| R | INFANT PHYSICAL EXAMINATION RESULT (TESTES) |
| Provisional Diagnosis: To carry details of a provisional diagnosis for a patient made by the service that the patient was referred to. One occurrence of this group is permitted for each provisional diagnosis. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | DIAGNOSIS SCHEME IN USE |
| M | PROVISIONAL DIAGNOSIS (CODED CLINICAL ENTRY) |
| R | PROVISIONAL DIAGNOSIS DATE |
| Primary Diagnosis: To carry details of the primary diagnosis for a patient made by the service that the patient was referred to. One occurrence of this group is permitted for the primary diagnosis. The primary diagnosis can change during a reporting period. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | DIAGNOSIS SCHEME IN USE |
| M | PRIMARY DIAGNOSIS (CODED CLINICAL ENTRY) |
| R | DIAGNOSIS DATE |
| Secondary Diagnosis: To carry details of a secondary diagnosis for a patient made by the service that the patient was referred to. One occurrence of this group is permitted for each secondary diagnosis. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | DIAGNOSIS SCHEME IN USE |
| M | SECONDARY DIAGNOSIS (CODED CLINICAL ENTRY) |
| R | DIAGNOSIS DATE |
| Coded Scored Assessment (Referral): To carry details of scored assessments that are issued and completed as part of a referral period where a specific service or team is responsible for the patient, but do not take place at a specific contact. One occurrence of this group is permitted for each coded scored assessment question or dimension captured outside of a contact. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
| M | PERSON SCORE |
| R | ASSESSMENT TOOL COMPLETION DATE |
| Breastfeeding Status: To carry details of a child's breastfeeding status as recorded at a contact. One occurrence of this group is permitted containing the most recently recorded breastfeeding status. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| M | BREASTFEEDING STATUS |
| Observation: To carry details of observations of a patient which take place at a contact. One occurrence of this group is permitted containing the most recently recorded observation(s). | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| R | PERSON WEIGHT |
| R | PERSON HEIGHT IN METRES |
| R | PERSON LENGTH IN CENTIMETRES |
| Coded Scored Assessment (Contact): To carry details of scored assessments that are issued and completed as part of a specific contact. One occurrence of this group is permitted for each coded scored assessment question or dimension. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| M | CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
| M | PERSON SCORE |
| ANONYMOUS SELF-ASSESSMENT |
|---|
| Anonymous Self-Assessment: To carry details of anonymous assessments that are issued by the Community Health Service. One occurrence of this group is permitted when an anonymous self-assessment is received from a patient. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | ASSESSMENT TOOL COMPLETION DATE |
| M | CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
| M | PERSON SCORE |
| R | ACTIVITY LOCATION TYPE CODE |
| R | ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) |
| STAFF DETAILS |
|---|
| Staff Details: To carry details of the staff involved in the treatment of a patient. One occurrence of this group is permitted for each staff member. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE PROFESSIONAL LOCAL IDENTIFIER |
| R | PROFESSIONAL REGISTRATION BODY CODE |
| R | PROFESSIONAL REGISTRATION ENTRY IDENTIFIER |
| R | CARE PROFESSIONAL STAFF GROUP (COMMUNITY CARE) |
| R | OCCUPATION CODE |
| R | CARE PROFESSIONAL (JOB ROLE CODE) |
Change to Data Set: Changed Description
The Improving Access to Psychological Therapies Data Set will be in included in a future version of the Mental Health Services Data Set.
Improving Access to Psychological Therapies Data Set Overview
Due to the rapidly changing situation with Covid-19 for both providers and NHS Digital, the transition from Improving Access to Psychological Therapies (IAPT) Data Set v1.5 to v2.0 has been postponed until 1 August 2020.0 has been postponed until 1 September 2020.
August 2020 data will start being submitted from 1 September 2020.September 2020 data will start being submitted from 1 October 2020.
For further information please contact: enquiries@nhsdigital.nhs.uk.
Version 1.5 of the data set can be found at: IAPT Data Set.
For a "Full Screen" view, click Improving Access to Psychological Therapies Data Set.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Required (M/R/O) column indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc.) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
- O = Optional: the inclusion of this data element is optional as required for local purposes.
For guidance on the Data Set constraints, see the Improving Access to Psychological Therapies Data Set Constraints.
| HEADER |
|---|
| Header: To carry header details for the submission. One occurrence of this group is required. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | DATA SET VERSION NUMBER |
| M | ORGANISATION IDENTIFIER (CODE OF PROVIDER) |
| M | ORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION) |
| M | PRIMARY DATA COLLECTION SYSTEM IN USE |
| M | REPORTING PERIOD START DATE |
| M | REPORTING PERIOD END DATE |
| M | DATE AND TIME DATA SET CREATED |
| PATIENT DEMOGRAPHICS |
|---|
| Master Patient Index: To carry personal details of the patient. One occurrence of this group is required. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER) |
| R | ORGANISATION IDENTIFIER (RESIDENCE RESPONSIBILITY) |
| R | NHS NUMBER |
| R | NHS NUMBER STATUS INDICATOR CODE |
| R | PERSON BIRTH DATE |
| R | POSTCODE OF USUAL ADDRESS |
| R | PERSON STATED GENDER CODE |
| R | ETHNIC CATEGORY |
| R | EX-BRITISH ARMED FORCES INDICATOR |
| R | LANGUAGE CODE (PREFERRED) |
| R | EDUCATIONAL ESTABLISHMENT TYPE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) |
| GP Practice Registration: To carry details of the GP Practice Registration of the patient. One occurrence of this group is required for each change of GP Practice Registration. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION) |
| R | START DATE (GMP PATIENT REGISTRATION) |
| R | END DATE (GMP PATIENT REGISTRATION) |
| R | ORGANISATION IDENTIFIER (GP PRACTICE RESPONSIBILITY) |
| Employment Status: To carry details of the employment status of the patient. One occurrence of this group is permitted for each employment status. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | EMPLOYMENT STATUS |
| R | EMPLOYMENT STATUS RECORDED DATE |
| R | WEEKLY HOURS WORKED |
| R | SELF EMPLOYED INDICATOR |
| R | SICKNESS ABSENCE INDICATOR |
| R | STATUTORY SICK PAY RECEIPT INDICATOR |
| R | BENEFIT RECEIPT INDICATOR (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) |
| R | JOBSEEKERS ALLOWANCE RECEIPT INDICATOR |
| R | EMPLOYMENT AND SUPPORT ALLOWANCE RECEIPT INDICATOR |
| R | UNIVERSAL CREDIT RECEIPT INDICATOR |
| R | PERSONAL INDEPENDENCE PAYMENT RECEIPT INDICATOR |
| R | OTHER BENEFITS RECEIPT INDICATOR (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) |
| R | EMPLOYMENT SUPPORT SUITABILITY INDICATOR |
| R | EMPLOYMENT SUPPORT REFERRAL DATE |
| Disability Type: To carry details of the type of disability affecting a patient, based on formal diagnoses, the patient’s perception or the perception of a patient proxy. One occurrence of this group is permitted for each disability identified. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | DISABILITY CODE |
| Social and Personal Circumstances To carry details of social and personal circumstances of a patient. One occurrence of this group is permitted for each social and personal circumstance recorded. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | SOCIAL AND PERSONAL CIRCUMSTANCE (SNOMED CT) |
| R | SOCIAL AND PERSONAL CIRCUMSTANCE RECORDED DATE |
| Overseas Visitor Charging Category To carry details of the Overseas Visitor Charging Category of the patient. Multiple occurrences of this group are permitted, one for each Overseas Visitor Charging Category recorded for the patient. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | OVERSEAS VISITOR CHARGING CATEGORY |
| R | OVERSEAS VISITOR CHARGING CATEGORY APPLICABLE DATE |
| REFERRALS |
|---|
| Service or Team Referral: To carry details of the Service or Team referral that the patient is subject to. One occurrence of this group is required for each referral. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) |
| M | REFERRAL REQUEST RECEIVED DATE |
| R | SOURCE OF REFERRAL FOR MENTAL HEALTH |
| R | YEAR AND MONTH OF SYMPTOMS ONSET (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) |
| R | PREVIOUS DIAGNOSED CONDITION INDICATOR |
| R | DISCHARGE FROM IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES SERVICE REASON |
| R | SERVICE DISCHARGE DATE |
| Onward Referral: To carry details of any onward referral of the patient which has taken place. One occurrence of this group is permitted for each onward referral. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | ONWARD REFERRAL DATE |
| R | ONWARD REFERRAL TIME |
| R | ONWARD REFERRAL REASON |
| R | ORGANISATION IDENTIFIER (RECEIVING) |
| WAITING TIME PAUSES |
|---|
| Waiting Time Pauses: To carry details of the Waiting Time Pauses. One occurrence is permitted for each Waiting Time Pause. | |
|---|---|
| M/R | Data Set Data Elements |
| M | IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES ACTIVITY SUSPENSION IDENTIFIER |
| M | SERVICE REQUEST IDENTIFIER |
| M | ACTIVITY SUSPENSION START DATE |
| R | ACTIVITY SUSPENSION END DATE |
| R | IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES ACTIVITY SUSPENSION REASON |
| CARE CONTACT, CARE ACTIVITIES AND INDIRECT ACTIVITIES |
|---|
| Care Activity: To carry details of any activities which have taken place as part of a Care Contact. One occurrence of this group is permitted for each Care Activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| M | CARE CONTACT IDENTIFIER |
| R | CARE PERSONNEL LOCAL IDENTIFIER |
| R | CLINICAL CONTACT DURATION OF CARE ACTIVITY |
| R | CODED PROCEDURE AND PROCEDURE STATUS (SNOMED CT) |
| R | FINDING SCHEME IN USE |
| R | CODED FINDING (CODED CLINICAL ENTRY) |
| R | CODED OBSERVATION (SNOMED CT) |
| R | OBSERVATION VALUE |
| R | UCUM UNIT OF MEASUREMENT |
| Internet Enabled Therapy Care Professional Activity Log: To carry details of the summarised activity during a specified time period for the Care Professional supporting Internet Enabled Therapy for a patient. One occurrence this group is permitted for each activity log. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | START DATE (INTERNET ENABLED THERAPY ACTIVITY LOG) |
| M | END DATE (INTERNET ENABLED THERAPY ACTIVITY LOG) |
| M | INTERNET ENABLED THERAPY PROGRAMME |
| M | DURATION OF INTERNET ENABLED THERAPY IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES CARE PROFESSIONAL CLINICAL TIME |
| R | CARE PERSONNEL LOCAL IDENTIFIER |
| R | INTERNET ENABLED THERAPY INTEGRATED SOFTWARE ENGINE USED INDICATOR |
| CLINICALLY CODED TERMINOLOGY |
|---|
| Long Term Physical Health Condition: To carry details of any Long Term Physical Health Conditions for a patient which are stated by the patient or recorded in medical notes One occurrence of this group is permitted for each Long Term Physical Health Condition. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | FINDING SCHEME IN USE |
| M | LONG TERM PHYSICAL HEALTH CONDITION (CODED CLINICAL ENTRY) |
| Presenting Complaints: To carry details of the primary and any secondary presenting complaints recorded for a patient, made by the service that the patient was referred or admitted to. One occurrence of this group is permitted for each presenting complaint. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | FINDING SCHEME IN USE |
| M | PRESENTING COMPLAINT (CODED CLINICAL ENTRY) |
| R | PRESENTING COMPLAINT CODING SIGNIFICANCE |
| R | PRESENTING COMPLAINT RECORDED DATE |
| Coded Scored Assessment (Referral): To carry details of scored assessments that are issued and completed as part of a Service Request, but do not take place at a specific contact. One occurrence of this group is permitted for each coded scored assessment question or dimension captured outside of a Care Contact. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | SERVICE REQUEST IDENTIFIER |
| M | CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
| M | PERSON SCORE |
| M | ASSESSMENT TOOL COMPLETION DATE |
| R | ASSESSMENT TOOL COMPLETION TIME |
| Coded Scored Assessment (Care Activity): To carry details of scored assessments that are issued and completed as part of a specific Care Activity. One occurrence of this group is permitted for each coded scored assessment question or dimension captured as part of a specific Care Activity. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE ACTIVITY IDENTIFIER |
| M | CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
| M | PERSON SCORE |
| CARE CLUSTERS |
|---|
| Care Cluster: To carry details of the Care Cluster resulting from a clustering tool assessment. One occurrence of this group is permitted for each period of time that a patient was allocated to a Care Cluster. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | LOCAL PATIENT IDENTIFIER (EXTENDED) |
| M | ADULT MENTAL HEALTH CARE CLUSTER CODE (FINAL) |
| M | START DATE (CARE CLUSTER ASSIGNMENT PERIOD) |
| R | START TIME (CARE CLUSTER ASSIGNMENT PERIOD) |
| R | END DATE (CARE CLUSTER ASSIGNMENT PERIOD) |
| R | END TIME (CARE CLUSTER ASSIGNMENT PERIOD) |
| CARE PERSONNEL QUALIFICATION |
|---|
| Care Personnel: To carry details of each qualification attained or planned to be attained by the Care Personnel. One occurrence of this group is permitted for each qualification. | |
|---|---|
| M/R/O | Data Set Data Elements |
| M | CARE PERSONNEL LOCAL IDENTIFIER |
| M | QUALIFICATION ATTAINMENT LEVEL (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) |
| R | EMPLOYEE QUALIFICATION AWARDED DATE |
| R | EMPLOYEE QUALIFICATION PLANNED COMPLETION DATE |
Change to Data Set: Changed Description
National Joint Registry Data Set Overview
Click National Joint Registry Data Set - Ankle for a "Full Screen" view.
In the "Full Screen" view, to return to the "Data Set" view, click the browser "back" button.
The Mandatory or Optional (M/O) column indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory
- O = Optional: this data element is optional.
| ANKLE PRIMARY |
|---|
| M/O | Surgical Approach: One occurrence of this group is required. |
| M | PATIENT PROCEDURE TYPE (PRIMARY ANKLE REPLACEMENT) |
| M | SURGICAL APPROACH (PRIMARY OR REVISION ANKLE REPLACEMENT) |
| M | ASSOCIATED PROCEDURE TYPE (ANKLE REPLACEMENT) |
| M | COMPUTER GUIDED SURGERY INDICATOR (JOINT REPLACEMENT) |
| M/O | Thromboprophylaxis: One occurrence of this group is required. |
| M | CHEMICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT) |
| M | MECHANICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT) |
| M/O | Bone Graft Used: One occurrence of this group is required. |
| M | BONE GRAFT INDICATOR (TIBIAL) |
| M | BONE GRAFT STRUCTURE (TIBIAL) |
| M | BONE GRAFT SOURCE (TIBIAL) |
| M | BONE GRAFT INDICATOR (TALAR) |
| M | BONE GRAFT STRUCTURE (TALAR) |
| M | BONE GRAFT SOURCE (TALAR) |
| M | BONE GRAFT INDICATOR (FIBULAR) |
| M | BONE GRAFT STRUCTURE (FIBULAR) |
| M | BONE GRAFT SOURCE (FIBULAR) |
| M/O | Surgeon Notes: One occurrence of this group is required. |
| O | SURGEON NOTES |
| M/O | Intraoperative Event: One occurrence of this group is required. |
| M | UNTOWARD INTRAOPERATIVE EVENT CODE (ANKLE REPLACEMENT) |
| M/O | Components: One occurrence of this group is required. |
| M | IMPLANT CATALOGUE NUMBER |
| M | IMPLANT BATCH OR LOT NUMBER |
| ANKLE REVISION |
|---|
| M/O | Ankle Revision Procedure Details: One occurrence of this group is required. |
| M | REVISION PROCEDURE TYPE (ANKLE REPLACEMENT) |
| M | ARTHROPLASTY REVISION TYPE (HIP KNEE AND ANKLE REPLACEMENT) |
| M | ANATOMICAL SIDE (NATIONAL JOINT REGISTRY) |
| M | JOINT REPLACEMENT REVISION REASON CODE (ANKLE) |
| M/O | Primary Operation Details: One occurrence of this group is required. |
| M | PROCEDURE DATE (PRIMARY JOINT REPLACEMENT) |
| M | ORGANISATION SITE IDENTIFIER (OF TREATMENT) If the information is not available, select 'Not Available' |
| M/O | Components Removed: One occurrence of this group is required. |
| M | COMPONENT REMOVAL INDICATOR (TIBIAL) |
| M | COMPONENT REMOVAL INDICATOR (TALAR) |
| M | COMPONENT REMOVAL INDICATOR (MENISCAL) |
| M/O | Surgical Approach: One occurrence of this group is required. |
| M | PATIENT PROCEDURE TYPE (REVISION ANKLE REPLACEMENT) |
| M | SURGICAL APPROACH (PRIMARY OR REVISION ANKLE REPLACEMENT) |
| M | ASSOCIATED PROCEDURE TYPE (ANKLE REPLACEMENT) |
| M/O | Thromboprophylaxis: One occurrence of this group is required. |
| M | CHEMICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT) |
| M | MECHANICAL THROMBOPROPHYLAXIS REGIME TYPE (JOINT REPLACEMENT) |
| M/O | Surgeon Notes: One occurrence of this group is required. |
| O | SURGEON NOTES |
| M/O | Intraoperative Event: One occurrence of this group is required. |
| M | UNTOWARD INTRAOPERATIVE EVENT CODE (ANKLE REPLACEMENT) |
| M/O | Components: One occurrence of this group is required. |
| M | IMPLANT CATALOGUE NUMBER |
| M | IMPLANT BATCH OR LOT NUMBER |
Change to Data Set: Changed Description
National Neonatal Data Set Overview
The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.The Mandatory, Required, Optional or Pilot (M/R/O/P) column indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
- O = Optional: the inclusion of this data element is optional as required for local purposes
- P = Pilot: this data element is for piloting use only.
Note: items in the M/R/O column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.Note: items in the M/R/O/P column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.
| DEMOGRAPHICS AND BIRTH INFORMATION (BABY) |
|---|
One of the following Baby Demographics Data Group Structures must be used:
| Baby Demographics (Standard): To carry the Baby's demographic details where anonymisation of the record is NOT required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | NHS NUMBER (BABY) |
| M | NHS NUMBER STATUS INDICATOR CODE (BABY) |
| R | COMMUNITY HEALTH INDEX NUMBER (BABY) |
| R | HEALTH AND CARE NUMBER (BABY) |
| M | BABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET) |
| R | DATE TIME OF BIRTH (BABY) |
| M | SITE CODE (OF ACTUAL PLACE OF DELIVERY) or ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY) |
| R | BIRTH WEIGHT |
| O | BIRTH LENGTH |
| O | BIRTH HEAD CIRCUMFERENCE |
| O | GESTATION LENGTH (AT DELIVERY) |
| O | GESTATION LENGTH (REMAINING DAYS AT DELIVERY) |
| R | PERSON PHENOTYPIC SEX |
| P | PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET) |
| O | BLOOD GROUP (BABY) |
| O | RHESUS GROUP (BABY) |
| R | BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH) |
OR
| Baby Demographics (Withheld): To carry the Baby's demographic details where anonymisation of the record IS required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| M | NHS NUMBER STATUS INDICATOR CODE (BABY) |
| M | BABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET) |
| R | YEAR AND MONTH OF BIRTH (BABY) |
| M | SITE CODE (OF ACTUAL PLACE OF DELIVERY) or ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY) |
| R | BIRTH WEIGHT |
| O | BIRTH LENGTH |
| O | BIRTH HEAD CIRCUMFERENCE |
| O | GESTATION LENGTH (AT DELIVERY) |
| O | GESTATION LENGTH (REMAINING DAYS AT DELIVERY) |
| R | PERSON PHENOTYPIC SEX |
| P | PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET) |
| O | BLOOD GROUP (BABY) |
| O | RHESUS GROUP (BABY) |
| R | BASE DEFICIT CONCENTRATION (WORST WITHIN 12 HOURS AFTER BIRTH) |
| PARENTS |
|---|
One of the following Parent's Demographics Data Group Structures should be used:
| Parents Demographics (Standard): To carry the Parent's demographic details where anonymisation of the record is NOT required. One occurrence of this group is permitted. | |
| R | NHS NUMBER (MOTHER) |
| M | NHS NUMBER STATUS INDICATOR CODE (MOTHER) |
| R | COMMUNITY HEALTH INDEX NUMBER (MOTHER) |
| R | HEALTH AND CARE NUMBER (MOTHER) |
| R | YEAR OF BIRTH (MOTHER) |
| M | POSTCODE OF USUAL ADDRESS (MOTHER) |
| P | QUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET) |
| O | OCCUPATION MOTHER (SNOMED CT) |
| R | ETHNIC CATEGORY (MOTHER) |
| R | GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER)) |
| R | YEAR OF BIRTH (FATHER) |
| R | ETHNIC CATEGORY (FATHER) |
| R | PARENTS CONSANGUINEOUS INDICATOR |
OR
| Parents Demographics (Withheld): To carry the Parent's demographic details where anonymisation of the record IS required. One occurrence of this group is permitted. | |
| M | NHS NUMBER STATUS INDICATOR CODE (MOTHER) |
| R | YEAR OF BIRTH (MOTHER) |
| P | QUALIFICATION ATTAINMENT LEVEL MOTHER (NATIONAL NEONATAL DATA SET) |
| O | OCCUPATION MOTHER (SNOMED CT) |
| R | ETHNIC CATEGORY (MOTHER) |
| R | GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION (MOTHER)) |
| R | YEAR OF BIRTH (FATHER) |
| R | ETHNIC CATEGORY (FATHER) |
| R | PARENTS CONSANGUINEOUS INDICATOR |
| ANTENATAL |
|---|
| LABOUR AND DELIVERY |
|---|
| ADMISSION TO NEONATAL CRITICAL CARE |
|---|
| DISCHARGE FROM NEONATAL CRITICAL CARE UNIT |
|---|
| Procedures Recorded At Discharge: To carry details of procedures recorded at discharge. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PROCEDURE (OPCS RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE) and/or PROCEDURE (SNOMED CT RECORDED ON DISCHARGE FROM NEONATAL CRITICAL CARE) |
| R | PROCEDURE DATE AND TIME (DURING NEONATAL CRITICAL CARE PERIOD) or PROCEDURE YEAR AND MONTH (DURING NEONATAL CRITICAL CARE PERIOD) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| CLINICAL TRIALS (EPISODIC) |
|---|
| Clinical Trials Details: To carry details of Clinical Trial enrolment at any time during the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| O | CLINICAL TRIAL NAME |
| O | CLINICAL TRIAL MEDICATION ADMINISTERED NAME Multiple occurrences of this item are permitted |
| INFECTION CULTURES (EPISODIC) |
|---|
| Infection Culture Indicators: To carry indicators relating to Infection Cultures undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | INFECTION CULTURE TEST INDICATOR (BLOOD) |
| P | INFECTION CULTURE TEST INDICATOR (CEREBROSPINAL FLUID) |
| P | INFECTION CULTURE TEST INDICATOR (URINE) |
| Infection Cultures: To carry information relating to Infection Cultures at any time during the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | SAMPLE COLLECTION DATE AND TIME or SAMPLE COLLECTION YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | SAMPLE TYPE (NATIONAL NEONATAL DATA SET) |
| R | CLINICAL SIGN OBSERVED AT SAMPLE COLLECTION Multiple occurrences of this item are permitted |
| R | SAMPLE TEST RESULT ORGANISM TYPE (SNOMED CT) Multiple occurrences of this item are permitted |
| O | SAMPLE ANTIBIOTIC SENSITIVITY RESULT (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
| ABDOMINAL X-RAYS (EPISODIC) |
|---|
| Abdominal X-Ray Indicator: To carry an indicator relating to Abdominal X-Rays undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | ABDOMINAL X-RAY PERFORMED INDICATOR |
| Abdominal X-Rays: To carry information relating to Abdominal X-Rays at any time during the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PROCEDURE DATE AND TIME (ABDOMINAL X-RAY) or PROCEDURE YEAR AND MONTH (ABDOMINAL X-RAY) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | ABDOMINAL X-RAY PERFORMED TO INVESTIGATE ABDOMINAL SIGNS INDICATOR |
| R | CONDITION SEEN IN ABDOMEN DURING X-RAY Multiple occurrences of this item are permitted |
| R | ABDOMINAL X-RAY PERFORMED REASON Multiple occurrences of this item are permitted |
| R | TRANSFERRED FROM NEONATAL INTENSIVE CARE UNIT FOR NECROTISING ENTEROCOLITIS MANAGEMENT INDICATOR |
| R | LAPAROTOMY FOR NECROTISING ENTEROCOLITIS INDICATION CODE |
| R | VISUAL INSPECTION CONFIRMED NECROTISING ENTEROCOLITIS DURING LAPAROTOMY INDICATOR |
| R | HISTOLOGY CONFIRMED NECROTISING ENTEROCOLITIS FOLLOWING LAPAROTOMY INDICATOR |
| R | PERITONEAL DRAIN INSERTED FOLLOWING ABDOMINAL X-RAY INDICATOR |
| RETINOPATHY OF PREMATURITY SCREENING (EPISODIC) |
|---|
| Retinopathy of Prematurity Screening Indicator: To carry an indicator relating to Retinopathy of Prematurity Screening undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| M | RETINOPATHY OF PREMATURITY SCREENING PERFORMED INDICATOR |
| CRANIAL ULTRASOUND SCANS (EPISODIC) |
|---|
| Cranial Ultrasound Scan Indicator: To carry an indicator relating to Cranial Ultrasound Scans undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | CRANIAL ULTRASOUND SCAN PERFORMED INDICATOR |
| Cranial Ultrasound Scan: To carry information relating to Cranial Ultrasound Scans at any time during the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PROCEDURE DATE AND TIME (CRANIAL ULTRASOUND SCAN) or PROCEDURE YEAR AND MONTH (CRANIAL ULTRASOUND SCAN) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| O | INTRAVENTRICULAR HAEMORRHAGE GRADE (LEFT SIDE) |
| O | PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE) |
| O | VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (LEFT SIDE) |
| O | INTRAVENTRICULAR HAEMORRHAGE GRADE (RIGHT SIDE) |
| O | PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE) |
| O | VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR (RIGHT SIDE) |
| O | CYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR |
| O | POST HAEMORRHAGIC HYDROCEPHALUS OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR |
| NEWBORN BLOOD SPOT BIOCHEMICAL SCREENING (EPISODIC) |
|---|
| Newborn Blood Spot Test Indicator: To carry an indicator relating to Newborn Blood Spot Tests undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| M | NEWBORN BLOOD SPOT TEST PERFORMED INDICATOR |
| Newborn Blood Spot Screening: To carry details of Newborn Blood Spot Biochemical Screening undertaken at any time in the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BLOOD SPOT CARD COMPLETION DATE or BLOOD SPOT CARD COMPLETION YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| NEWBORN HEARING SCREENING (EPISODIC) |
|---|
| Newborn Hearing Screening Indicator: To carry an indicator relating to Newborn Hearing Screening undertaken at any time during the Neonatal Critical Care Period. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | NEWBORN HEARING SCREENING PERFORMED INDICATOR |
| Newborn Hearing Screening: To carry information relating to Newborn Hearing Screening at any time during the Neonatal Critical Care Period. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PROCEDURE DATE AND TIME (NEWBORN HEARING SCREENING) or PROCEDURE YEAR AND MONTH (NEWBORN HEARING SCREENING) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| O | NEWBORN HEARING SCREENING OUTCOME LEFT EAR (NATIONAL NEONATAL DATA SET) |
| O | NEWBORN HEARING SCREENING OUTCOME RIGHT EAR (NATIONAL NEONATAL DATA SET) |
| O | NEWBORN HEARING SCREENING TEST TYPE |
| DAILY CARE INFORMATION |
|---|
| Daily Care Respiratory: To carry Respiratory information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| P | RESPIRATORY SUPPORT DEVICE TYPE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
| P | RESPIRATORY SUPPORT MODE (NATIONAL NEONATAL DATA SET) Multiple occurrences of this item are permitted |
| R | NITRIC OXIDE GIVEN INDICATOR |
| R | CHEST DRAIN IN SITU INDICATOR |
| R | TRACHEOSTOMY TUBE IN SITU INDICATOR |
| R | REPLOGLE TUBE IN SITU INDICATOR |
| R | SURFACTANT GIVEN INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
| P | FRACTION OF INSPIRED OXYGEN PERCENTAGE |
| Daily Care Cardiovascular: To carry Cardiovascular information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | CONTINUOUS INFUSION OF PULMONARY VASODILATOR RECEIVED INDICATOR |
| R | INOTROPE INFUSION RECEIVED INDICATOR |
| R | PROSTAGLANDIN INFUSION RECEIVED INDICATOR |
| R | TREATMENT TYPE FOR PATENT DUCTUS ARTERIOSUS Multiple occurrences of this item are permitted |
| Daily Care Gastrointestinal: To carry Gastrointestinal information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | PERITONEAL DIALYSIS RECEIVED INDICATOR |
| R | HAEMOFILTRATION RECEIVED INDICATOR |
| R | TREATMENT TYPE FOR NECROTISING ENTEROCOLITIS |
| R | MORE THAN THREE RECTAL WASHOUTS RECEIVED INDICATOR |
| R | STOMA PRESENT INDICATOR |
| Daily Care Blood Transfusion: To carry Blood Transfusion information relating to Daily Care. Multiple occurrences of this group are permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BLOOD TRANSFUSION TYPE |
| R | BLOOD TRANSFUSION PRODUCT TYPE Multiple occurrences of this item are permitted |
| Daily Care Neurology: To carry Neurology information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | CENTRAL TONE STATUS |
| R | NEONATAL CONSCIOUSNESS STATUS |
| R | SEIZURE OCCURRED INDICATOR |
| R | NEONATAL ABSTINENCE SYNDROME OBSERVED INDICATOR |
| R | BRAIN ACTIVITY SCAN PERFORMED INDICATOR |
| R | THERAPEUTIC HYPOTHERMIA INDUCED INDICATOR |
| R | HYPOXIC ISCHEMIC ENCEPHALOPATHY GRADE (HIGHEST ON NEONATAL CRITICAL CARE DAILY CARE DATE) |
| Daily Care Retinopathy of Prematurity Screening: To carry Retinopathy of Prematurity information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | RETINOPATHY OF PREMATURITY SCREENING PERFORMED INDICATOR |
| Daily Care Fluids and Feeding: To carry Fluids and Feeding information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | VASCULAR LINE TYPE IN SITU Multiple occurrences of this item are permitted |
| R | PARENTERAL NUTRITION RECEIVED INDICATOR |
| R | INTRAVENOUS INFUSION OF GLUCOSE AND ELECTROLYTE SOLUTION RECEIVED INDICATOR |
| R | ENTERAL FEED TYPE GIVEN Multiple occurrences of this item are permitted |
| R | FORMULA MILK OR MILK FORTIFIER TYPE Multiple occurrences of this item are permitted or FORMULA MILK OR MILK FORTIFIER TYPE (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
| R | TOTAL VOLUME OF MILK RECEIVED |
| O | ENTERAL FEEDING METHOD Multiple occurrences of this item are permitted |
| Daily Care Infections: To carry Infection information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | SEPSIS SUSPECTED INDICATOR |
| Daily Care Jaundice: To carry Jaundice information relating to Daily Care. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | PHOTOTHERAPY RECEIVED INDICATOR |
| Daily Care Medication: To carry Medication Administered information relating to Daily Care. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | MEDICATION GIVEN DURING NEONATAL CRITICAL CARE DAILY CARE DATE (SNOMED CT DM+D) Multiple occurrences of this item are permitted |
Change to Data Set: Changed Description
National Neonatal Data Set Overview
The Mandatory, Required or Optional (M/R/O) column indicates the recommendation for the inclusion of data.The Mandatory, Required or Optional (M/R/O/P) column indicates the recommendation for the inclusion of data.
- M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
- R = Required: NHS business processes cannot be delivered without this data element
O = Optional: the inclusion of this data element is optional as required for local purposes.- O = Optional: the inclusion of this data element is optional as required for local purposes
- P = Pilot: this data element is for piloting use only.
Note: items in the M/R/O column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.Note: items in the M/R/O/P column which are shown with notation P have not been approved by the Information Standards Board for Health and Social Care and are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.
| TWO YEAR NEONATAL OUTCOMES ASSESSMENT |
|---|
One of the following Child Demographics Data Group Structures must be used:
| Child Demographics (Standard): To carry the Child's demographic details where anonymisation of the record is NOT required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | NHS NUMBER |
| M | NHS NUMBER STATUS INDICATOR CODE |
| R | COMMUNITY HEALTH INDEX NUMBER |
| R | HEALTH AND CARE NUMBER |
| M | BABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET) |
| R | DATE TIME OF BIRTH |
| M | SITE CODE (OF ACTUAL PLACE OF DELIVERY) or ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY) |
| O | GESTATION LENGTH (AT DELIVERY) |
| O | GESTATION LENGTH (REMAINING DAYS AT DELIVERY) |
| R | PERSON PHENOTYPIC SEX or PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET) |
OR
| Child's Demographics (Withheld): To carry the Child's demographic details where anonymisation of the record IS required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| M | NHS NUMBER STATUS INDICATOR CODE |
| M | BABY LOCAL PATIENT IDENTIFIER (NATIONAL NEONATAL DATA SET) |
| R | YEAR AND MONTH OF BIRTH |
| M | SITE CODE (OF ACTUAL PLACE OF DELIVERY) or ORGANISATION CODE (OF ACTUAL PLACE OF DELIVERY) |
| O | GESTATION LENGTH (AT DELIVERY) |
| O | GESTATION LENGTH (REMAINING DAYS AT DELIVERY) |
| R | PERSON PHENOTYPIC SEX or PERSON GENOTYPIC SEX (NATIONAL NEONATAL DATA SET) |
One of the following Two Year Assessment Administration Data Group Structures must be used:
| Two Year Assessment Administration (Standard): To carry administrative information relating to the Two Year Neonatal Outcomes Assessment where anonymisation of the record is NOT required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| M | TWO YEAR NEONATAL OUTCOMES ASSESSMENT DATE |
| O | CARE PROFESSIONAL JOB ROLE CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| R | POSTCODE OF USUAL ADDRESS (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| M | SITE CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT) or ORGANISATION CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| R | TWO YEAR NEONATAL OUTCOMES ASSESSMENT NOT CARRIED OUT REASON |
| R | PERSON DEATH DATE (POST DISCHARGE FROM NEONATAL CRITICAL CARE) |
OR
| Two Year Administration (Withheld): To carry administrative information relating to the Two Year Neonatal Outcomes Assessment where anonymisation of the record IS required. One occurrence of this group is required. | |
| M/R/O/P | Data Set Data Elements |
| R | TWO YEAR NEONATAL OUTCOMES ASSESSMENT YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| O | CARE PROFESSIONAL JOB ROLE CODE (TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| R | SITE CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT) or ORGANISATION CODE (OF TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| R | TWO YEAR NEONATAL OUTCOMES ASSESSMENT NOT CARRIED OUT REASON |
| R | PERSON DEATH YEAR AND MONTH (POST DISCHARGE FROM NEONATAL CRITICAL CARE) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| Two Year TPRG-SEND - Neuromotor: To carry information relating to TPRG-SEND Neuromotor at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION C) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION D) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION E) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION F) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION G) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROMOTOR QUESTION H) |
| Two Year TPRG-SEND - Malformations: To carry information relating to TPRG-SEND Malformations at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (MALFORMATIONS QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (MALFORMATIONS QUESTION B) |
| Two Year TPRG-SEND - Respiratory and Cardiovascular: To carry information relating to TPRG-SEND Respiratory and Cardiovascular System at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RESPIRATORY AND CARDIOVASCULAR SYSTEM QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RESPIRATORY AND CARDIOVASCULAR SYSTEM QUESTION B) |
| Two Year TPRG-SEND - Gastrointestinal Tract: To carry information relating to TPRG-SEND Gastrointestinal Tract at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION A) |
| R | SPECIAL DIET DESCRIPTION |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (GASTRO-INTESTINAL TRACT QUESTION C) |
| Two Year TPRG-SEND - Renal: To carry information relating to TPRG-SEND Renal at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (RENAL QUESTION C) |
| Two Year TPRG-SEND - Neurology: To carry information relating to TPRG-SEND Neurology at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION C) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROLOGY QUESTION D) |
| Two Year TPRG-SEND - Growth: To carry information relating to TPRG-SEND Growth at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PERSON WEIGHT (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| P | OBSERVATION DATE (WEIGHT) or OBSERVATION YEAR AND MONTH (WEIGHT) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | PERSON HEIGHT IN CENTIMETRES (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| P | OBSERVATION DATE (HEIGHT) or OBSERVATION YEAR AND MONTH (HEIGHT) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | HEAD CIRCUMFERENCE IN CENTIMETRES (AT TWO YEAR NEONATAL OUTCOMES ASSESSMENT) |
| P | OBSERVATION DATE (HEAD CIRCUMFERENCE) or OBSERVATION YEAR AND MONTH (HEAD CIRCUMFERENCE) and NUMBER OF MINUTES (BIRTH TO EVENT) |
| Two Year TPRG-SEND - Development: To carry information relating to TPRG-SEND Development at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT ADDITIONAL QUESTION FOR NATIONAL NEONATAL DATA SET) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION C) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (DEVELOPMENT QUESTION D) |
| R | NEURODEVELOPMENTAL ASSESSMENT ALREADY TAKEN INDICATOR |
| R | NEURODEVELOPMENTAL ASSESSMENT TEST NAME |
| Two Year TPRG-SEND - Neurosensory: To carry information relating to TPRG-SEND Neurosensory at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION C) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION D) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION E) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (NEUROSENSORY QUESTION F) |
| Two Year TPRG-SEND - Communication: To carry information relating to TPRG-SEND Communication at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION B) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION C) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION D) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (COMMUNICATION QUESTION E) |
| Two Year TPRG-SEND - Special Questions: To carry information relating to TPRG-SEND Special Questions at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (SPECIAL QUESTIONS QUESTION A) |
| R | TPRG-SEND TWO YEAR CORRECTED AGE OUTCOME ASSESSMENT SCORE (SPECIAL QUESTIONS QUESTION B) |
| R | CHILD DIFFICULT TO TEST REASON CODE Multiple occurrences of this item are permitted |
| Two Year TPRG-SEND - Neurological Diagnosis: To carry information relating to TPRG-SEND Neurological Diagnosis at the Two Year Neonatal Outcomes Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | PATIENT DIAGNOSIS INDICATOR (CEREBRAL PALSY) |
| R | CEREBRAL PALSY TYPE CODE (NATIONAL NEONATAL DATA SET) |
| R | DIAGNOSIS (ICD NEUROLOGICAL) Multiple occurrences of this item are permitted |
| Two Year Bayley III Assessment: To carry information relating to the Bayley III Assessment. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | ASSESSMENT TOOL COMPLETION DATE or ASSESSMENT TOOL COMPLETION YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| Two Year Bayley III - Cognitive: To carry information relating to the Bayley III Cognitive sub-scale. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BAYLEY III COGNITIVE TOTAL RAW SCORE |
| R | BAYLEY III COGNITIVE SCALE SCORE |
| R | BAYLEY III COGNITIVE DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III COGNITIVE COMPOSITE SCORE |
| Two Year Bayley III - Communication: To carry information relating to the Bayley III Communication sub-scales. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) TOTAL RAW SCORE |
| R | BAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) SCALE SCORE |
| R | BAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III COMMUNICATION (RECEPTIVE COMMUNICATION) COMPOSITE SCORE |
| R | BAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) TOTAL RAW SCORE |
| R | BAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) SCALE SCORE |
| R | BAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III COMMUNICATION (EXPRESSIVE COMMUNICATION) COMPOSITE SCORE |
| R | BAYLEY III COMMUNICATION SUM TOTAL RAW SCORE |
| R | BAYLEY III COMMUNICATION SUM TOTAL SCALE SCORE |
| R | BAYLEY III COMMUNICATION SUM TOTAL DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III COMMUNICATION SUM TOTAL COMPOSITE SCORE |
| Two Year Bayley III - Neuromotor: To carry information relating to the Bayley III Neuromotor sub-scales. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BAYLEY III NEUROMOTOR (FINE MOTOR) TOTAL RAW SCORE |
| R | BAYLEY III NEUROMOTOR (FINE MOTOR) SCALE SCORE |
| R | BAYLEY III NEUROMOTOR (FINE MOTOR) DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III NEUROMOTOR (FINE MOTOR) COMPOSITE SCORE |
| R | BAYLEY III NEUROMOTOR (GROSS MOTOR) TOTAL RAW SCORE |
| R | BAYLEY III NEUROMOTOR (GROSS MOTOR) SCALE SCORE |
| R | BAYLEY III NEUROMOTOR (GROSS MOTOR) DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III NEUROMOTOR (GROSS MOTOR) COMPOSITE SCORE |
| R | BAYLEY III NEUROMOTOR SUM TOTAL RAW SCORE |
| R | BAYLEY III NEUROMOTOR SUM TOTAL SCALE SCORE |
| R | BAYLEY III NEUROMOTOR SUM TOTAL DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III NEUROMOTOR SUM TOTAL COMPOSITE SCORE |
| Two Year Bayley III - Social-Emotional: To carry information relating to the Bayley III Social-Emotional sub-scale. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| R | BAYLEY III SOCIAL-EMOTIONAL TOTAL RAW SCORE |
| R | BAYLEY III SOCIAL-EMOTIONAL SCALE SCORE |
| R | BAYLEY III SOCIAL-EMOTIONAL DEVELOPMENTAL AGE EQUIVALENT SCORE |
| R | BAYLEY III SOCIAL-EMOTIONAL COMPOSITE SCORE |
| Two Year Griffiths: To carry information relating to Griffiths Scale of Infant Development. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | ASSESSMENT TOOL COMPLETION DATE or ASSESSMENT TOOL COMPLETION YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | GRIFFITHS LOCOMOTOR SCALE SCORE |
| R | GRIFFITHS PERSONAL-SOCIAL SCALE SCORE |
| R | GRIFFITHS LANGUAGE SCALE SCORE |
| R | GRIFFITHS EYE AND HAND CO-ORDINATION SCALE SCORE |
| R | GRIFFITHS PERFORMANCE SCALE SCORE |
| R | GRIFFITHS PRACTICAL REASONING SCALE SCORE |
| Two Year Schedule of Growing: To carry information relating to Schedule of Growing Skills. One occurrence of this group is permitted. | |
| M/R/O/P | Data Set Data Elements |
| P | ASSESSMENT TOOL COMPLETION DATE or ASSESSMENT TOOL COMPLETION YEAR AND MONTH and NUMBER OF MINUTES (BIRTH TO EVENT) |
| R | SCHEDULE OF GROWING SKILLS (PASSIVE POSTURE) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (ACTIVE POSTURE) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (LOCOMOTOR) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (MANIPULATIVE) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (VISUAL) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (HEARING AND LANGUAGE) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (SPEECH AND LANGUAGE) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (INTERACTIVE SOCIAL) SCALE SCORE |
| R | SCHEDULE OF GROWING SKILLS (SELF-CARE SOCIAL) SCALE SCORE |
Change to Supporting Information: Changed Description
Accessibility statement for the NHS Data Model and Dictionary
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Compliance statement
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Preparation of this accessibility statement
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Enforcement procedure
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Change to Supporting Information: New Supporting Information
For further information, see the attribute ORGANISATION CODE.
ORGANISATION CODING FRAMES
- All NHS ORGANISATIONS are coded using coding frames, as shown in the tables below:
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | |
Format | a/n | a/n | a/n | a/n | a/n | a/n | a/n | a/n |
A Frame | Organisation | Organisation Identifier | ||||||
B Frame | Organisation Type Identifier | Organisation Identifier | ||||||
C Frame | Organisation Type Identifier | Organisation Identifier | ||||||
D Frame | Organisation Type Identifier | Organisation Identifier | ||||||
E Frame | Organisation Identifier | |||||||
F Frame | Organisation Type Identifier | Organisation Identifier | ||||||
G Frame | Organisation Type Identifier | Practice Identifier | ||||||
H Frame | Organisation Type Identifier | Organisation Identifier | ||||||
I Frame | Organisation Type Identifier | Organisation Identifier | ||||||
K Frame | Organisation Identifier | |||||||
L Frame | Organisation Type Identifier | Organisation Identifier | Organisation Type Identifier | |||||
M Frame | Organisation and Organisation Type Identifier | |||||||
N Frame | Organisation Type Identifier | Organisation Identifier | ||||||
A Frame:
Example
Non NHS Organisation (Independent Provider) e.g. 8HA03
- 8 = Organisation Type Identifier
- Remainder = Organisation Identifier
B Frame:
Example
Local Service Provider e.g. LSP01
- LSP = Organisation Type Identifier
- 01 = Organisation Identifier
Also:
| Application Service Provider | e.g. YGM01 |
| Education Establishment | e.g. YDF01 |
| NHS Support Agency | e.g. YDD01 |
C Frame:
Example
School e.g. EE134290
- EE = Organisation Type Identifier
- Remainder = Organisation Identifier
D Frame:
Example
Care Trust e.g. TAK
- T = Organisation Type Identifier
- AK = Organisation Identifier
Also:
| Commissioning Support Unit (CSU) / Data Services for Commissioners Regional Office (DSCRO) | e.g. 0AA |
| High Level Health Geography, e.g. Sustainability and Transformation Partnership | e.g. QJK |
| Local Health Board (Wales) | e.g. 7A1 |
| NHS Trust | e.g. RH8 |
| Justice Organisation | e.g. VAA |
E Frame:
Example
Government Office Region (GOR) e.g. K
- K = Organisation Identifier
Note: Government Office Region (GOR) is identified by a one character code; no other one character code exists.
F Frame:
Example
Pharmacy Headquarters e.g. P001
- P = Organisation Type Identifier
- 001 = Organisation Identifier
Also:
| Care Home Headquarters | e.g.CA0A |
| Optical Headquarters | e.g.T1A1 |
G Frame:
Example
GP Practices in England and Wales e.g. Y00001
- Y = Organisation Type Identifier
- 00001 = Practice Identifier
Also:
| Dental Practice | e.g.V20052 |
H Frame:
Example
Cancer Network e.g. N01
- N0 (where the 2nd character is numeric and not alpha) = Organisation Type Identifier
- 1 = Organisation Identifier
Also:
| Booking Management System (BMS) Call Centre Establishment | e.g. YF1 |
| Government Department | e.g. XDA |
| Independent Sector Healthcare Provider (ISHP) (where the 2nd character is alpha) | e.g. NV7 |
| National Application Service Provider | e.g. YEA |
| Other Statutory Authority (OSA) | e.g. X16 |
I Frame:
Example
Special Health Authority (SpHA) e.g. T1150
- T1 = Organisation Type Identifier
- 150 = Organisation Identifier
K Frame:
Example
NHS Wales Informatics Service e.g. W00
- W00 = Organisation Identifier
L Frame:
Example
Northern Ireland Local Commissioning Group e.g. ZC010
- Characters 1-3 (ZC0) AND character 5 (0) = Organisation Type Identifier
- Character 4 = Organisation Identifier
Note: this is a 5 character method of displaying Northern Ireland Local Commissioning Group identifiers.
Characters 3 and 5 are ‘fillers’. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory) zeros can be omitted, e.g. ZC1.
The 3 character method of displaying the Northern Ireland Local Commissioning Group identifiers fit under the H Frame.
Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009.
M Frame:
Example
Clinical Commissioning Group (CCG) e.g. 12A
- 12A = Organisation and Organisation Type Identifier
Also:
| Local Authority | e.g.000 |
N Frame:
Example
GP Abeyance and Dispersal GP Practice e.g. G7817414
- G78 = Organisation Type Identifier
- 17414 = Organisation Identifier
The structure and format of ORGANISATION CODES maintained by the Organisation Data Service, NHS Prescription Services, NHS Dental Services and other agencies are detailed in the tables below.
ORGANISATION CODES TABLES
Table 1: CODING FORMATS FOR ORGANISATIONS IN ENGLAND AND WALES
Organisation Type | Frame Type | Character Position | Code allocated by: | Notes/Comments | |||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | ||||
Application Service Provider | B | Y | G | M | A-9 | A-9 | e.g. YGM01 | ||||
Booking Management System (BMS) Call Centre Establishment | H | Y | F | A-9 | e.g. YF1 | ||||||
Cancer Network | H | N | 0-9 | A-9 | e.g. N01 | ||||||
Cancer Registry | A | Y | 0-9 | 0-9 | 0-9 | 0-9 | e.g. Y0401 All Cancer Registries in England are now part of the National Cancer Registration and Analysis Service | ||||
Care Home Headquarters | F | A, C or D | A-9 | A-9 | A-9 | e.g. CA0A | |||||
Care Trust (CT) | D | T | A-Y | A-Y | e.g. TAK | ||||||
M | 0-9 | 0-9 | A-Y | e.g. 12A | |||||||
Clinical Network | B | Y | D | G | A-9 | A-9 | e.g. YDG01 | ||||
Commissioning Support Unit (CSU) / Data Services for Commissioners Regional Office (DSCRO) | D | 0 | A-Y | A-Y | e.g. 0AA | ||||||
Dental Practice - England and Wales | G | V | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | e.g. V20052 | |||
B | Y | D | F | A-9 | A-9 | e.g. YDF01 | |||||
Executive Agency | N/A See Note 1 | X | 0-9 | 0-9 | e.g. X09 | ||||||
Executive Agency Programme | N/A See Note 1 | X | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | First three characters denote Executive Agency e.g. X09001 | |||
Government Department | H | X | A-Y | A-Y | e.g. XDA | ||||||
E | A-Y | e.g. K Government Office Regions (GORs) closed 31 March 2011 - from 1 April 2011 referred to as Regions | |||||||||
GP Abeyance and Dispersal GP Practice | N | G | 7 | 8 | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | e.g. G7817414 | |
GP Practices in England and Wales | G | A-H, | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | Char 1 = W for Welsh GP Practice. All other values represent GP Practices in England. Note: from 2003, ALL newly allocated Practice Codes in England begin with a Y e.g. Y00001 | |||
| Justice Organisation | D | V or W | A-Y | A-9 |
|
|
|
|
| e.g. VAA | |
High Level Health Geography, e.g. Sustainability and Transformation Partnership | D | Q | A-9 | A-9 | e.g. QJK | ||||||
H | A, B, D, G, I, K, L, M , N, O, S, U, V, W | A-Y | A-Y, 0-9 | e.g. NV7 | |||||||
| M | 0-9 | 0-9 | 0-9 | e.g. 000 | ||||||
B | 7 | A-9 | A-9 | e.g. 7A1 | |||||||
Local Service Provider (LSP) | B | L | S | P | 0-9 | 0-9 | e.g. LSP01 | ||||
Military Hospital | B | X | M | D | A-9 | A-9 | e.g.XMDA1 | ||||
National Application Service Provider | H | Y | E | A-9 | e.g. YEA | ||||||
National Groupings (England) | H | Y | 5 | 0-9 | e.g. Y51 | ||||||
NHS Support Agency | B | Y | D | D | A-9 | A-9 | e.g. YDD01 | ||||
D | R | A-9 | A-9 | e.g. RH8 | |||||||
K | W | 0 | 0 | Only one organisation of this type exists for Wales e.g. W00 | |||||||
Non NHS Organisation (Independent Provider) | A | 8 | A-Y | A-9 | 0-9 | 0-9 | e.g. 8HA03 | ||||
Northern Ireland Health & Social Care Board | N/A | Z | B | 0 | 0 | 1 | e.g. ZB001 | ||||
Northern Ireland Health & Social Care Trust
| I | Z | T | 0-9 | 0-9 | 0-9 | e.g. ZT001 | ||||
L | Z | C | 0 | 0-9 | 0 | Department for Health, Social Services and Public Safety (DHSSPS), Northern Ireland | e.g. ZC010 Note that characters 3 and 5 are ‘fillers’ to create a 5 character code. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory), zeros can be omitted and fits under the H frame: e.g. ZC1. | ||||
F | T | 0-9 | A-9 | A-9 | e.g. T1A1 | ||||||
H | X | 0-9 | 0-9 | e.g. X16 | |||||||
A | F | A-Y | A-9 | A-9 | A-9 | e.g. FA002 | |||||
Pharmacy Headquarters | F | P | A-9 | A-9 | A-9 | e.g. P001 | |||||
D | 5 | A-9 | A-9 | e.g. 5CT All Primary Care Trusts closed 31 March 2013 | |||||||
Prison Health Service | B | Y | D | E | A-9 | A-9 | e.g. YDE01 | ||||
C | E | E | A-9 | A-9 | A-9 | A-9 | A-9 | A-9 | e.g. EE134290 | ||
I | T | 1 | 0-9 | 0-9 | 0 | e.g. T1150 | |||||
D | Q | A-9 | A-9 | e.g. Q30 All Strategic Health Authorities in England closed 31 March 2013 | |||||||
Welsh Assembly | D | W | 0-9 | 0-9 |
|
| e.g. W01 | ||||
Welsh Health Commission | A | W | 0-9 | 0-9 | A-Y | A-Y | e.g. W01HC | ||||
- Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.
Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.
Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).
- A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity). This applies to all ORGANISATION CODES in the Coding Format Table above except Independent Sector Healthcare Providers (ISHP).
Table 2: CODING FORMATS FOR ORGANISATIONS IN SCOTLAND
Scottish ORGANISATION CODES are supplied by the Information Standards Directorate (ISD) from NHS Scotland and published by the Organisation Data Service.
Organisation Type | Character Position | Code allocated by: | Notes/Comments | |||||
|---|---|---|---|---|---|---|---|---|
| 1 | 2 | 3 | 4 | 5 | 6 | |||
GP Practice - Scotland | S | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | NHS | |
Scottish GP Fundholder | S | A-Z | B | 0-9 | 0-9 | ISD, Scotland | 2nd character identifies the Health Board the GPFH reports to. | |
Scottish Health Agency | S | D | 0-9 | 0-9 | 0-9 | ISD, Scotland
| 2nd character (D) identifies Scottish Office agencies | |
Scottish Health Board | S | A-Z | 9 | 9 | 9 | ISD, Scotland
| ||
Scottish Provider | S | A-Z | A,C,D | 0-9 | 0-9 | ISD, Scotland
| 2nd character identifies the Health Board the organisation reports to. | |
Table 3: CODING FORMATS for ORGANISATIONS in OTHER HOME COUNTRIES
Organisation Type | Character Position | Code allocated by: | Notes/Comments | |||||
|---|---|---|---|---|---|---|---|---|
| 1 | 2 | 3 | 4 | 5 | 6 | |||
GP Practice - Alderney | A | L | D | 0-9 | 0-9 | 0-9 | ||
GP Practice - Guernsey | G | U | E | 0-9 | 0-9 | 0-9 | ||
GP Practice - Isle of Man (IOM) | Y | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | ||
GP Practice - Jersey | J | E | R | 0-9 | 0-9 | 0-9 | ||
Y | K | A-9 | e.g. YK1 | |||||
Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).
Change to Supporting Information: New Supporting Information
For further information, see the attribute ORGANISATION SITE CODE.
ORGANISATION SITE CODING FRAMES
- All NHS ORGANISATION SITES are coded using coding frames, as shown in the tables below:
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | |
|---|---|---|---|---|---|---|---|---|---|
Format | a/n | a/n | a/n | a/n | a/n | a/n | a/n | a/n | a/n |
A Frame | Organisation Type Identifier | Organisation Identifier | Site or Sub-Division Identifier | ||||||
B Frame | Organisation Type Identifier | Organisation Identifier | Site or Sub-Division Identifier | ||||||
C Frame | Organisation Type Identifier | Organisation Identifier | Site or Sub-Division Identifier | ||||||
D Frame | Organisation Type | Practice Identifier | Branch Surgery Identifier | ||||||
F Frame | Organisation Type | Organisation Identifier | |||||||
H Frame | Organisation Type Identifier | Organisation Identifier | |||||||
I Frame | Organisation Type Identifier | Organisation Identifier | |||||||
J Frame | Organisation Type Identifier | Organisation Identifier | |||||||
K Frame | Organisation and Organisation Type Identifier | Organisation Site Identifier | |||||||
L Frame | Organisation Type Identifier and | ||||||||
A Frame:
Example
Local Service Provider Site e.g. LSP0101
- LSP = Org Type Identifier
- 01 = Organisation Identifier
- 01 = Site or Sub-Division Identifier
B Frame:
Example
Care Trust Site e.g. TAK01
- T = Organisation Type Identifier
- AK = Organisation Identifier
- 01 = Site or Sub-Division Identifier
Also:
| Government Department Site | e.g. XDA01 |
| Local Authority Site | e.g. 000AA |
| Local Health Board (Wales) Site | e.g. 7A101 |
| NHS Trust Site | e.g. RH802 |
| Other Statutory Authority (OSA) Site | e.g. X1601 |
| e.g. Q3001 |
C Frame:
Example
Independent Sector Healthcare Provider (ISHP) Site e.g. NV701
- NV = Organisation Site Type Identifier
- 7 = Organisation Identifier
- 01 = Site or Sub-Division Identifier
D Frame
Example
GP Practice Branch Surgery: e.g. H81010002
- H (and length of code) = Organisation Identifier
- 81010 = Organisation Identifier (parent GP Practice)
- 002 = Branch Surgery Identifier
F Frame
Example
Commissioning Support Unit Site: e.g. 0AA01
- 0 = Organisation Type Identifier
- AA01 = Organisation Identifier
H Frame
Example
Prison: e.g. YDE01
- YDE = Organisation Type Identifier
- 01 = Site or Sub-Division Identifier
I Frame
Example
Optical Site: e.g. TP01A
- TP = Organisation Type Identifier
- 01A = Site or Sub-Division Identifier
J Frame
Example
Care Home Site: e.g. VN01A
- VN = Organisation Type Identifier
- 01A = Site or Sub-Division Identifier
Also:
| Health Observatory | e.g. XP001 |
| Primary Healthcare Directorate (Isle of Man) Site | e.g. YK101 |
K Frame
Example
Clinical Commissioning Group (CCG) Site e.g. 11AAA - 99YZZ
- 11A = Organisation and Organisation Type Identifier
- AA = Organisation Site Identifier
L Frame
Example
Special Health Authority (SpHA) Site: e.g. T115A
- T115A – Organisation Type Identifier and Site or Sub-Division Identifier
The structure and format of ORGANISATION SITE CODES maintained by the Organisation Data Service, NHS Prescription Services and other agencies are detailed in the tables below.
NHS ORGANISATION SITE CODES TABLES
Coding Formats
Table 1: CODING FORMATS FOR ORGANISATION SITES IN ENGLAND AND WALES
Organisation Site Type | Frame Type | Character Position | Code allocated by: | Notes/Comments | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | ||||
Care Home Site | J | V | L, M or N | A-9 | A-9 | A-9 | e.g. VN01A, VM01A, VL01A | |||||
Care Trust Site | B | T | A-Y | A-Y | A-9 | A-9 | First three characters denote owning Care Trust e.g. TAK01 | |||||
| Clinical Commissioning Group (CCG) Site | K | 0-9 | 0-9 | A-Y | A-Y | A-Y | First three characters denote owning Clinical Commissioning Group e.g. 11AAA - 99YZZ | |||||
Commissioning Support Unit (CSU) Site | F | 0 | A-Y | A-Y | A-9 | A-9 | e.g. 0AA01 | |||||
Executive Agency Site | N/A | X | 0-9 | 0-9 | 0-9 | 0-9 | First three characters denote Executive Agency e.g. X0901 | |||||
Government Department Site | B | X | A-Y | A-Y | 0-9 | 0-9 | First three characters denote Government Department e.g. XDA01 | |||||
GP Practice Branch Surgery - England and Wales | D | A-H, | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | 0-9 | First 6 characters denote parent practice. Char 1 = W for Welsh GP Practice. All other values represent English GP Practices e.g. H81010002 | |
| Health Observatory | J | X | P | 0-9 | 0-9 | 0-9 | e.g. XP001 | |||||
Care Trust Site
| B | Q | A-9 | A-9 | A-9 | A-9 | e.g. TAK01 | |||||
C | A, B, D, G, I, K, L, M , N, O, S, U, V, W | A-Y | A-Y, 0-9 | A-Y, 0-9 | A-Y, 0-9 | First three characters denote owning Independent Sector Healthcare Provider (ISHP) e.g. NV701 Note: The A-Y range includes all letters except Z | ||||||
Local Authority (LA) Site | B | 0-9 | 0-9 | 0-9 | A-Z | A-Z | First three characters denote parent Local Authority e.g. 000AA | |||||
| Local Health Board (Wales) Site | B | 7 | A-9 | A-9 | A-9 | A-9 | First three characters denote owning NHS Trust e.g. 7A101 | |||||
Local Service Provider Site | A | L | S | P | 0-9 | 0-9 | 0-9 | 0-9 | First five characters denote owning Local Service Provider e.g. LSP0101 | |||
NHS Trust Site | B | R | A-9 | A-9 | A-9 | A-9 | First three characters denote owning NHS Trust e.g. RH802 | |||||
I | T | P or Q | 0-9 | A-9 | A-9 | e.g. TP01A, TQ01A | ||||||
Other Statutory Authority (OSA) Site | B | X | 0-9 | 0-9 | 0-9 | 0-9 | First three characters denote owning Other Statutory Authority e.g. X1601 | |||||
Primary Care Trust (PCT) Site | B | 5 | A-9 | A-9 | A-9 | A-9 | First three characters denote owning Primary Care Trust e.g. 5CT49 All Primary Care Trusts closed 31 March 2013 | |||||
Special Health Authority (SpHA) Site | L | T | 1 | 0-9 | 0-9 | A-Y, 1-9 | The characters do NOT denote any ownership. e.g. T115A | |||||
Strategic Health Authority (SHA) Site | B | Q | A-9 | A-9 | A-9 | A-9 | First three characters denote owning SHA Trust e.g. Q3001 All Strategic Health Authorities closed 31 March 2013 - from 1 April 2013 referred to as High Level Health Geography Site | |||||
Note: Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.
Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency. Executive Agency codes are three characters long. Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.
Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters). Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).
Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity). This applies to all ORGANISATION SITE CODES in the Coding Format Table above except Independent Sector Healthcare Provider (ISHP) sites.
Table 2: CODING FORMATS FOR ORGANISATION SITES IN OTHER HOME COUNTRIES
Organisation Site Type | Frame Type | Character Position | Code allocated by: | Notes/Comments | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | ||||
J | Y | K | A-9 | A-9 | A-9 |
| e.g. YK101 | |||||
Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).
Change to Supporting Information: Changed Description
Patient Level Information Costing System Acute Data Set Overview
Introduction to the sections within the Patient Level Costing Acute Data Set
- Patient Level Information Costing System Data Set - Reconciliation
- Patient Level Information Costing System Acute Data Set - Emergency Care
- Patient Level Information Costing System Acute Data Set - Out-Patient Care
- Patient Level Information Costing System Acute Data Set - Specialist Ward Care
- Patient Level Information Costing System Acute Data Set - Supplementary Information
Change to Supporting Information: Changed Description
- Supporting Definitions:
- 18 Weeks
- Accessible Information
- Assistive Technology
- Automatic Identification and Data Capture
- Care Programme Approach
- Children's Nursing
- Children Act 2004
- Choose and Book
- Community Treatment Order
- Community Treatment Order Recall
- Contract Monitoring
- Data Dictionary for Care
- Data Landing Portal
- Data Processing Services
- Data Services for Commissioners
- Delen
- Department
- Department for Work and Pensions Overseas Healthcare Team
- Discharge After Patient Did Not Attend
- e-Government Interoperability Framework
- Elective Admission
- Electronic Staff Record
- Electronic Staff Record Data Warehouse
- European Economic Area
- Fever Nursing
- Government Data Standards Catalogue
- GS1 Application Identifier (Global)
- GS1 Application Identifier (Internal)
- GS1 Global Service Relation Number
- Healthcare Resource Group
- HES Data Dictionary
- Information Standard and Collection (including Extraction)
- Information Standards Board for Health and Social Care
- Information Standards Notice
- Integrated Care System
- International Esophageal Database
- Internet Enabled Therapy Activity Log
- Laboratory
- Learning Disabilities Nursing
- Market Forces Factor
- Mental Health Care Cluster Super Class
- Mental Health Nursing
- National Casemix Office
- National Health Service (Overseas Visitors Hospital Charging Regulations)
- National Health Service Act 2006
- National Tariff Payment System
- Neonatal Critical Care Unit
- Neonatal Unit
- NHS Continuing Healthcare Local Appeal
- NHS Continuing Healthcare Local Resolution
- NHS Data Model and Dictionary Service
- NHS England (Region)
- NHS Standard Contract
- Non-Contract Activity
- Organisation Data Service
- Overseas Visitor Treatment Portal
- Patient Level Information Costing
- Personal Demographics Service
- Point of Delivery
- Primary Care Network
Provisional Replacement Certificate- Reciprocal Healthcare Agreement
- Rupture of Membranes
- S2
- Secondary Uses Service
- Special Education Needs
- Standardisation Committee for Care Information
- Strategic Data Collection Service
- Strategic Data Collection Service in the Cloud
- Sustainability and Transformation Partnership
- Technology Reference Data Update Distribution (TRUD)
- Terminology and Classifications Delivery Service
Change to Supporting Information: Changed Description
Supporting Information provides information to help users understand and use the NHS Data Model and Dictionary.
Use the links below to access more detailed information: |
For more information on Supporting Information, see | Coding and Classifications: | Organisation Information: |
| NHS Data Model and Dictionary Information: | Contacts / Links: |
Archived Publications |
Change to Supporting Information: Changed Description
- Coding and Classifications
- Activity Location Type Codes
- Clinical Coding
- Main Specialty and Treatment Function Codes
- Organisation Information
- Health and Social Care Organisation Reference Data
NHS Postcode Directory- Organisation Coding Frames
- Organisation Site Coding Frames
- ODS Default Codes
- NHS Postcode Directory
- Organisation Mergers
- NHS Data Model and Dictionary Information
- About Version 3
- Change Request Log
- Disclaimer
- Glossary of Terms
- Meta Model
- Contacts/ Links
- Contact Details
- Published Information Standards Documentation
- NHS Data Model and Dictionary Service Web Pages
- Archived Publications
- NHS Data Model and Dictionary Version 2.0
Change to Supporting Information: Changed Description
An Urgent Treatment Centre is an Emergency Care Department.
Urgent Treatment Centres (UTC) are Community and Primary Care facilities providing access to urgent care for a local population.
All Urgent Treatment Centres are classed as EMERGENCY CARE DEPARTMENT TYPE National Code 'Other type of A&E/minor injury ACTIVITY with designated accommodation for the reception of accident and emergency PATIENTS. The department may be doctor led or NURSE led and treats at least minor injuries and illnesses and can be routinely accessed without APPOINTMENT. A SERVICE mainly or entirely APPOINTMENT based (for example a GP Practice or Out-Patient Clinic) is excluded even though it may treat a number of PATIENTS with minor illness or injury.All Urgent Treatment Centres are classed as EMERGENCY CARE DEPARTMENT TYPE National Code 'Other type of A&E/minor injury ACTIVITY with designated accommodation for the reception of accident and emergency PATIENTS. The department may be doctor led or NURSE led and treats at least minor injuries and illnesses and can be routinely accessed without APPOINTMENT. A SERVICE mainly or entirely APPOINTMENT based (for example a GP Practice or Out-Patient Clinic) is excluded even though it may treat a number of PATIENTS with minor illness or injury. Excludes NHS walk-in centres'.
For further information on Urgent Treatment Centres see the NHS England website at: Urgent Treatment Centres.
Change to Class: Changed Attributes
| A and E PATIENT GROUP | ||
| ACTIVITY GROUP TYPE | ||
| ADJUSTED LENGTH OF STAY FOR PATIENT LEVEL INFORMATION COSTING | ||
| ADMISSION METHOD | ||
| CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS | ||
| CANCER TRANSFER REASON FOR INTER PROVIDER TRANSFER | ||
| CANCER TREATMENT INTENT | ||
| CARE PACKAGE IDENTIFIER FOR NHS CONTINUING HEALTHCARE | ||
| CARE PACKAGE REVIEW ELIGIBILITY OUTCOME FOR NHS CONTINUING HEALTHCARE | ||
| CARE PACKAGE REVIEW OUTCOME CODE FOR NHS CONTINUING HEALTHCARE | ||
| CARE PACKAGE REVIEW TYPE FOR NHS CONTINUING HEALTHCARE | ||
| CARER RESIDENT INDICATION CODE FOR NATIONAL NEONATAL DATA SET | ||
| CHILDREN TEENAGERS AND YOUNG ADULTS AGE CATEGORY | ||
| CLINICAL COMMISSIONING GROUP ELIGIBILITY DECISION OUTCOME FOR NHS CONTINUING HEALTHCARE | ||
| COMMUNITY TREATMENT ORDER END REASON | ||
| CONSULTANT EPISODE COMPLETION STATUS FOR PATIENT LEVEL INFORMATION COSTING | ||
| CONTINUITY OF CARER PATHWAY INDICATOR | ||
| DAUGHTER BORN AT THIS ENCOUNTER INDICATOR | ||
| DELIVERY PLACE CHANGE REASON | ||
| DISCHARGE DESTINATION | ||
| DISCHARGED TO HOSPITAL AT HOME SERVICE INDICATOR | ||
| DISCHARGE FROM IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES SERVICE REASON | ||
| DISCHARGE METHOD | ||
| DISCHARGE REASON FOR MOTHER MATERNITY SERVICES | ||
| ESTIMATED DATE OF DELIVERY | ||
| FIRST REGULAR DAY OR NIGHT ADMISSION | ||
| FITNESS ASSESSMENT FOR OLDER PATIENTS WITH BREAST CANCER INDICATOR | ||
| HOLISTIC NEEDS ASSESSMENT POINT OF PATHWAY FOR CANCER | ||
| LAST EPISODE IN SPELL INDICATOR CODE | ||
| LENGTH OF STAY ADJUSTMENT | ||
| LENGTH OF STAY ADJUSTMENT REASON | ||
| MATERNAL CRITICAL INCIDENT INDICATOR | ||
| MENTAL HEALTH ABSOLUTE DISCHARGE RESPONSIBILITY | ||
| MENTAL HEALTH ADMITTED PATIENT CLASSIFICATION | ||
| MENTAL HEALTH CONDITIONAL DISCHARGE END REASON | ||
| MENTAL HEALTH DELAYED DISCHARGE ATTRIBUTABLE TO INDICATION CODE | ||
| MENTAL HEALTH DELAYED DISCHARGE REASON | ||
| MULTIDISCIPLINARY TEAM RECOMMENDATION FOR NHS CONTINUING HEALTHCARE STANDARD | ||
| NEONATAL CRITICAL INCIDENT INDICATOR | ||
| NEONATAL LEVEL OF CARE | ||
| NHS CONTINUING HEALTHCARE ACTIVITY TYPE | ||
| NHS CONTINUING HEALTHCARE COMMISSIONED SERVICES INDICATOR | ||
| NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE DECISION OUTCOME | ||
| NHS CONTINUING HEALTHCARE REFERRAL EXCEEDING 28 DAYS TIME BAND CATEGORY | ||
| NHS CONTINUING HEALTHCARE TYPE | ||
| NON SMOKING CONFIRMATION STATUS AT 4 WEEKS | ||
| OPERATION FUNDING FOR NATIONAL JOINT REGISTRY | ||
| OUTCOME AT 4 WEEK FOLLOW UP FOR STOP SMOKING | ||
| PALLIATIVE CARE SPECIALIST SEEN INDICATOR | ||
| PALLIATIVE TREATMENT REASON FOR UPPER GASTROINTESTINAL | ||
| PATIENT ATTENDANCE SYMPTOMATIC INDICATOR FOR SEXUAL HEALTH SERVICE | ||
| PATIENT CLASSIFICATION | ||
| PATIENT RECEIVING ONE TO ONE NURSING CARE INDICATOR | ||
| PERSONALISED CARE AND SUPPORT PLANNING POINT OF CANCER PATHWAY | ||
| PHARMACOTHERAPY STOP SMOKING AID RECEIVED | ||
| PLANNED DELIVERY SETTING CHANGE REASON | ||
| PREGNANCY OUTCOME | ||
| PSYCHIATRIC PATIENT STATUS | ||
| SOURCE OF ADMISSION |
Change to Class: Changed Attributes
| K | INVESTIGATION RESULT DATE | |
| ABNORMALITY DETECTED INDICATOR | ||
| ACUTE MYELOID LEUKAEMIA RISK FACTORS | ||
| ALK GENE FUSION STATUS | ||
| ANKLE DORSIFLEXION CODE FOR PRIMARY ANKLE REPLACEMENT | ||
| ANKLE PLANTARFLEXION CODE FOR PRIMARY ANKLE REPLACEMENT | ||
| BLOOD PRODUCTS REQUIRED FOLLOWING OESOPHAGECTOMY INDICATION CODE | ||
| BREAST BIOPSY REFERRAL OUTCOME | ||
| BREAST CANCER HISTOLOGICAL TYPE | ||
| BREAST PROGESTERONE RECEPTOR STATUS | ||
| BREAST SCREENING MAMMOGRAPHY OUTCOME CODE | ||
| BRONCHOSCOPY PERFORMED TYPE | ||
| CANCER SPECIMEN NATURE | ||
| CANCER SURGICAL ADMISSION TYPE | ||
| CANCER VASCULAR OR LYMPHATIC INVASION | ||
| CENTRAL TONE STATUS | ||
| CERVICAL GLANDULAR INTRAEPITHELIAL NEOPLASIA PRESENCE AND GRADE | ||
| CHLAMYDIA TEST RESULT | ||
| CLINICAL FRAILTY SCALE POINT | ||
| CLINICAL INVESTIGATION ITEM TYPE | ||
| CLINICAL INVESTIGATION RESULT ANALYSED DATE | ||
| CLINICAL INVESTIGATION RESULT RECEIVED DATE | ||
| CLINICAL INVESTIGATION RESULT VALUE | ||
| CONDITION SEEN IN ABDOMEN DURING XRAY | ||
| CYSTIC PERIVENTRICULAR LEUKOMALACIA OBSERVED DURING CRANIAL ULTRASOUND SCAN INDICATOR | ||
| CYTOGENETIC ABNORMALITY RISK GROUP | ||
| CYTOGENETIC ANALYSIS CODE | ||
| CYTOGENETIC PRESENCE TYPE FOR RHABDOMYOSARCOMA | ||
| CYTOGENETIC RISK GROUP FOR PAEDIATRIC MOLECULAR GENETIC ABNORMALITIES | ||
| DEGREES OF FIXED FLEXION DEFORMITY FOR PRIMARY KNEE REPLACEMENT | ||
| DEGREES OF FLEXION RANGE FOR PRIMARY KNEE REPLACEMENT | ||
| DETRUSOR MUSCLE PRESENCE INDICATION CODE | ||
| EPIDERMAL GROWTH FACTOR RECEPTOR MUTATIONAL STATUS | ||
| ESTROGEN RECEPTOR STATUS | ||
| EUROPEAN LEUKAEMIA NET GENETIC RISK CODE | ||
| EXCISION MARGIN INDICATION CODE | ||
| FINDING SCHEME IN USE | ||
| GENETIC CONFIRMATION INDICATOR | ||
| GRADE OF DIFFERENTIATION | ||
| GYNAECOLOGICIAL CANCER SITE OF PERITONEAL INVOLVEMENT | ||
| HAEMOGLOBINOPATHY INVESTIGATION RESULT CODE FOR NATIONAL NEONATAL DATA SET | ||
| HEPATITIS B INFECTION INDICATION CODE | ||
| HEPATITIS C INFECTION INDICATION CODE | ||
| HORMONE EXPRESSION TYPE | ||
| HUMAN EPIDERMAL GROWTH FACTOR IN SITU HYBRIDISATION RECEPTOR STATUS FOR BREAST | ||
| HUMAN EPIDERMAL GROWTH FACTOR RECEPTOR STATUS FOR BREAST | ||
| HUMAN PAPILLOMAVIRUS IN SITU HYBRIDISATION TEST RESULT | ||
| IMMUNOHISTOCHEMISTRY NUCLEAR EXPRESSION INTACT INDICATION CODE | ||
| INTRAVENTRICULAR HAEMORRHAGE GRADE | ||
| INVASIVE CANCER SPECIAL TYPE INDICATOR | ||
| INVESTIGATION EXAMINATION RESULT | ||
| INVESTIGATION RUBELLA RESULT INDICATOR | ||
| LEUKAEMIC CELLS PRESENT POST MINIMAL RESIDUAL DISEASE INDUCTION PERCENTAGE | ||
| LYMPH NODE STATUS | ||
| METASTASIS EXTENT CODE | ||
| MICROSATELLITE INSTABILITY TESTING RESULT | ||
| MICROSCOPIC INVOLVEMENT INDICATION CODE FOR FALLOPIAN TUBE OR OVARIAN CANCER | ||
| MICROSCOPIC INVOLVEMENT INDICATION CODE FOR UTERINE SEROSA | ||
| MICROSCOPIC INVOLVEMENT INDICATOR FOR PARAMETRIUM OR CERVICAL STROMA | ||
| MICROSCOPIC INVOLVEMENT INDICATOR FOR VAGINAL | ||
| NEWBORN BLOOD SPOT TEST OUTCOME STATUS | ||
| NEWBORN HEARING AUDIOLOGY OUTCOME | ||
| NEWBORN HEARING SCREENING OUTCOME | ||
| NEWBORN HEARING SCREENING OUTCOME FOR NATIONAL NEONATAL DATA SET | ||
| NUMBER OF FETUSES | ||
| OBSERVATION VALUE | ||
| OESOPHAGECTOMY OESOPHAGEAL CONDUIT NECROSIS FAILURE TYPE | ||
| OESOPHAGOENTERIC LEAK SEVERITY TYPE | ||
| OTHER NON BREAST LOCALLY ADVANCED METASTATIC MALIGNANCY INDICATOR | ||
| P16 IMMUNOHISTOCHEMISTRY TEST RESULT | ||
| PAEDIATRIC MYELODYSPLASIA CLINICAL FINDINGS | ||
| PATHOLOGICAL RISK CLASSIFICATION CODE AFTER NEPHRECTOMY | ||
| PATHOLOGICAL RISK CLASSIFICATION CODE AFTER PREOPERATIVE CHEMOTHERAPY | ||
| PD L1 EXPRESSION PERCENTAGE | ||
| PERINEURAL INVASION INDICATOR FOR SKIN | ||
| PERINEURAL INVASION INDICATOR FOR UROLOGICAL | ||
| PERITONEAL INVOLVEMENT INDICATION CODE | ||
| PERSON BLOOD GROUP | ||
| PERSON GENOTYPIC SEX FOR NATIONAL NEONATAL DATA SET | ||
| PERSON RHESUS FACTOR | ||
| PORENCEPHALIC CYST VISIBLE DURING CRANIAL ULTRASOUND SCAN INDICATOR | ||
| PREOPERATIVE THERAPY RESPONSE TYPE | ||
| RECURRENT LARYNGEAL NERVE INJURY INVOLVEMENT TYPE | ||
| RENAL VEIN TUMOUR INDICATOR FOR PAEDIATRIC KIDNEY | ||
| RENAL VEIN TUMOUR THROMBUS INDICATION CODE FOR UROLOGICAL | ||
| RETINOPATHY OF PREMATURITY CLOCK HOURS MAXIMUM STAGE | ||
| RETINOPATHY OF PREMATURITY MAXIMUM ZONE | ||
| RETINOPATHY OF PREMATURITY PLUS DISEASE STATUS | ||
| RETINOPATHY OF PREMATURITY STAGE | ||
| ROS1 FUSION STATUS | ||
| S CATEGORY CODE | ||
| SENTINEL LYMPH NODE BIOPSY OUTCOME | ||
| SITUATION SCHEME IN USE | ||
| SPLENOMEGALY INDICATOR | ||
| SUBTALAR JOINT MOVEMENT CODE FOR PRIMARY ANKLE REPLACEMENT | ||
| TIBIA HINDFOOT ALIGNMENT CODE FOR PRIMARY ANKLE REPLACEMENT | ||
| TUMOUR NECROSIS | ||
| TUMOUR NECROSIS INDICATION CODE | ||
| UNIT OF MEASURE | ||
| VENTRICULAR DILATION DIAGNOSED DURING CRANIAL ULTRASOUND SCAN INDICATOR | ||
| VIABLE TUMOUR EVIDENCE AT RESECTION MARGIN | ||
| VISUAL ACUITY OR FIELD TEST RESULT |
Change to Class: Changed Description
Any instrument, apparatus, appliance, software, material or other article, whether used alone or in combination, including the software intended by its manufacturer to be used specifically for diagnostic and/or therapeutic purposes and necessary for its proper application, intended by the manufacturer to be used for human beings for the purpose of:Any instrument, apparatus, appliance, software, material or other article, whether used alone or in combination, including the software intended by its manufacturer to be used specifically for diagnostic and/or therapeutic purposes and necessary for its proper application.
A MEDICAL DEVICE is intended by the manufacturer to be used for human beings for the purpose of:
- diagnosis, prevention, monitoring, treatment or alleviation of disease
- diagnosis, monitoring, treatment, alleviation of or compensation for an injury or handicap
- investigation, replacement or modification of the anatomy or of a physiological process
- control of conception
and which does not achieve its principal intended action in or on the human body by pharmacological, immunological or metabolic means, but which may be assisted in its function by such means.
For further information on MEDICAL DEVICES, see the Medicines and Healthcare Products Regulatory Agency (MHRA) website at: Medical devices regulation and safety.Change to Class: Changed Attributes
| BEST PRACTICE TARIFF CODE | ||
| CARE PRODUCT TYPE FOR NHS CONTINUING HEALTHCARE | ||
| COMMISSIONED SERVICE CATEGORY CODE | ||
| CONTRACT UNIT FREQUENCY CODE FOR NHS CONTINUING HEALTHCARE | ||
| COST CENTRE CODE FOR NHS CONTINUING HEALTHCARE | ||
| HEALTHCARE RESOURCE GROUP CODE | ||
| LOCAL POINT OF DELIVERY DESCRIPTION | ||
| NUMBER OF COMMISSIONED WEEKLY HOURS OF CARE FOR NHS CONTINUING HEALTHCARE | ||
| PERSONAL HEALTH BUDGET TYPE | ||
| POINT OF DELIVERY CODE | ||
| POINT OF DELIVERY CODE FOR PATIENT LEVEL INFORMATION COSTING | ||
| POINT OF DELIVERY FURTHER DETAIL CODE | ||
| POINT OF DELIVERY FURTHER DETAIL DESCRIPTION | ||
| PROVIDER REFERENCE NUMBER | ||
| SERVICE PROVIDED UNDER AGREEMENT TEXT STRING | ||
| SPECIALISED MENTAL HEALTH SERVICE CATEGORY CODE | ||
| SPECIALISED SERVICE CODE | ||
| SPECIALIST SERVICES FLAG | ||
| SUBJECTIVE CODE FOR NHS CONTINUING HEALTHCARE | ||
| UNBUNDLED ACTIVITY CURRENCY SCHEME IN USE | ||
| UNBUNDLED CARE ACTIVITY TYPE FOR PATIENT LEVEL INFORMATION COSTING | ||
| UNBUNDLED CURRENCY CODE | ||
| UNBUNDLED EPISODE INDICATOR |
Change to Attribute: Changed Description
The type of surgical admission during a Cancer Care Spell.
CANCER SURGICAL ADMISSION TYPE is derived from ADMISSION METHOD.
- CANCER SURGICAL ADMISSION TYPE is National Code 'Elective Admission' where ADMISSION METHOD is: National Code 'Waiting list', 'Booked' or 'Planned'
- CANCER SURGICAL ADMISSION TYPE is National Code 'Emergency Admission' where ADMISSION METHOD is: National Code 'Accident and emergency or dental casualty department of the Health Care Provider', 'GENERAL PRACTITIONER: after a request for immediate admission has been made direct to a Hospital Provider, i.e. not through a Bed bureau, by a GENERAL PRACTITIONER or deputy', ' Bed bureau', ' Consultant Clinic, of this or another Health Care Provider', ' Admission via Mental Health Crisis Resolution Team', ' Accident and Emergency Department of another provider where the PATIENT had not been admitted', 'Transfer of an admitted PATIENT from another Hospital Provider in an emergency', ' Other emergency admission' or ' Other means'.
National Code:National Codes:
| 1 | Elective admission |
| 2 | Emergency admission |
Change to Attribute: Changed Description
An indication of whether the immunohistochemistry nuclear expression is intact during a Cancer Care Spell.
National Codes:
| Y | Yes - the immunohistochemistry nuclear expression is intact |
| N | No - the immunohistochemistry nuclear expression is not intact |
| E | Equivocal - it is not clear if the immunohistochemistry nuclear expression is intact |
| F | Test failed - the test could not be performed |
Change to Attribute: Changed Description
An ORGANISATION CODE is a code which identifies an ORGANISATION uniquely.
ORGANISATION CODES are managed by:
Notes:
- Organisation Data Service codes can be downloaded from Technology Reference Data Update Distribution (TRUD)
- Organisation Data Service contact details can be found at Contact Details.
ORGANISATION CODING FRAMES
All NHSORGANISATIONSare coded using coding frames, as shown in the tables below:
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A Frame:
ExampleNon NHS Organisation (Independent Provider) e.g. 8HA03
8 = Organisation Type IdentifierRemainder = Organisation Identifier
B Frame:
ExampleLocal Service Provider e.g. LSP01
LSP = Organisation Type Identifier01 = Organisation Identifier
Also:
C Frame:
ExampleSchool e.g. EE134290
EE = Organisation Type IdentifierRemainder = Organisation Identifier
D Frame:
ExampleCare Trust e.g. TAK
T = Organisation Type IdentifierAK = Organisation Identifier
Also:
E Frame:
ExampleGovernment Office Region (GOR) e.g. K
K = Organisation Identifier
F Frame:
ExamplePharmacy Headquarters e.g. P001
P = Organisation Type Identifier001 = Organisation Identifier
Also:
G Frame:
ExampleGP Practices in England and Wales e.g. Y00001
Y = Organisation Type Identifier00001 = Practice Identifier
Also:
H Frame:
ExampleCancer Network e.g. N01
N0 (where the 2nd character is numeric and not alpha) = Organisation Type Identifier1 = Organisation Identifier
Also:
I Frame:
ExampleSpecial Health Authority (SpHA) e.g. T1150
T1 = Organisation Type Identifier150 = Organisation Identifier
K Frame:
ExampleNHS Wales Informatics Service e.g. W00
W00 = Organisation Identifier
L Frame:
ExampleNorthern Ireland Local Commissioning Group e.g. ZC010
Characters 1-3 (ZC0) AND character 5 (0) = Organisation Type IdentifierCharacter 4 = Organisation Identifier
Note: this is a 5 character method of displaying Northern Ireland Local Commissioning Group identifiers.Characters 3 and 5 are ‘fillers’. If a 3 character code is required (as used by the Office for National Statistics in the NHS Postcode Directory) zeros can be omitted, e.g. ZC1.The 3 character method of displaying the Northern Ireland Local Commissioning Group identifiers fit under the H Frame.Guidance on the use of Northern Ireland codes can be found in Data Set Change Notice 19/2009.
M Frame:
ExampleClinical Commissioning Group (CCG) e.g. 12A
12A = Organisation and Organisation Type Identifier
Also:
N Frame:
ExampleGP Abeyance and Dispersal GP Practice e.g. G7817414
G78 = Organisation Type Identifier17414 = Organisation Identifier
The structure and format of ORGANISATION CODES maintained by the Organisation Data Service, NHS Prescription Services, NHS Dental Services and other agencies are detailed in the tables below.
ORGANISATION CODES TABLES
Table 1: CODING FORMATS FOR ORGANISATIONS IN ENGLAND AND WALES
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Codes for Executive Agency, Executive Agency Programme, Executive Agency Site and Executive Agency Programme Department do not easily fit into the coding frames as shown above and are therefore not included. This is due to their unusual structure in that there are more hierarchical 'tiers' than with other organisations.
Executive Agency and Executive Agency Programme are both considered Organisation level entities, although each Programme does have a relationship to an Executive Agency.Executive Agency codes are three characters long.Executive Agency Programme codes are six, and their first three characters are the same as the Executive Agency they are associated to.
Department codes of eight characters long can then be allocated underneath a Programme code (sharing the first six characters).Executive Agency Site codes of five characters long can be allocated under an Executive Agency code (and share the first three characters).
A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity). This applies to allORGANISATION CODESin the Coding Format Table above exceptIndependent Sector Healthcare Providers(ISHP).
All NHS ORGANISATIONS are coded using coding frames, as shown in the tables at: Organisation Coding Frames.
Table 2: CODING FORMATS FOR ORGANISATIONS IN SCOTLAND
Scottish ORGANISATION CODES are supplied by the Information Standards Directorate (ISD) from NHS Scotland and published by the Organisation Data Service.
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Table 3: CODING FORMATS for ORGANISATIONS in OTHER HOME COUNTRIES
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Note: A-9 indicates that characters A-Z and 0-9 are valid: except B, I, O, S, U and Z (to avoid ambiguity).
Change to Attribute: Changed Description
An ORGANISATION SITE CODE is a code which identifies an ORGANISATION SITE uniquely.
Note: Only ORGANISATION SITE CODES which have been notified to and issued by the Organisation Data Service may be used.
Notes:
- Organisation Data Service codes can be downloaded from Technology Reference Data Update Distribution (TRUD)
- Organisation Data Service contact details can be found at Contact Details.
ORGANISATION SITE CODING FRAMES
All NHSORGANISATION SITESare coded using coding frames, as shown in the tables below:
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