Accessibility statement for the NHS Data Model and Dictionary

NHS Digital is committed to making its websites accessible, in accordance with the Public Sector Bodies (Websites and Mobile Applications) (No.NHS England is committed to making its websites accessible, in accordance with the Public Sector Bodies (Websites and Mobile Applications) (No. 2) Accessibility Regulations 2018.

Compliance statement

This website is compliant with Public Sector Bodies (Websites and Mobile Applications) (No. 2) Accessibility Regulations 2018.

Preparation of this accessibility statement

This statement was prepared on 21 July 2020.

This assessment was carried out by NHS Digital, see Make your website or app accessible and publish an accessibility statement.This assessment was carried out by NHS Digital, see Make your website or app accessible and publish an accessibility statement.

Feedback and contact information

Enforcement procedure

If you have a concern you wish to escalate, please contact the Equality Advisory and Support Service (EASS). They will then relay this to the Equality and Human Rights Commission.

Introduction

The Aggregate Contract Monitoring Data Set is to enable the interchange, in a uniform and consistent format, of monthly aggregate Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

Submission of the Aggregate Contract Monitoring Data Set is a contractual requirement and a recognised monthly reconciliation statement. It demonstrates the aggregated cost of commissioned clinical care provided to PATIENTS as well as financial adjustments not attributed directly to clinical care. The totality of expenditure documented in the Aggregate Contract Monitoring Data Set must be equivalent to the monetary value of the invoice raised by the Health Care Provider and presented to the commissioner.

Scope

The scope of the Aggregate Contract Monitoring Data Set is all NHS-funded clinical care provided (including drugs and MEDICAL DEVICES not covered by the National Tariff Payment System) provided to PATIENTS as well as financial adjustments not attributed directly to clinical care, for all commissioners. This covers:

• All NHS and Independent Sector Healthcare Providers, secondary Health Care Providers, (acute, mental health and community services), but not primary care, from whom the NHS commissions healthcare.
• All NHS commissioners (Integrated Care Boards or their equivalents and NHS England)

The Aggregate Contract Monitoring Data Set is an aggregation of the three separate patient-level Contract Monitoring data set flows:

• Patient Level Contract Monitoring (PLCM)
• Drugs Patient Level Contract Monitoring (DrPLCM)
• Devices Patient Level Contract Monitoring (DePLCM).

Submission

The Aggregate Contract Monitoring Data Set is submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Aggregate Contract Monitoring Data Set should be transmitted using the NHS Digital Data Landing Portal (DLP).The completed monthly Aggregate Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Aggregate Contract Monitoring Data Set, see the NHS England website at: Directly commissioned services reporting requirements.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

Introduction

The purpose of the Automatic Identification and Data Capture for Patient Identification Data Set is to support the accurate, timely and, therefore, safer identification of NHS PATIENTS in England, by encoding the key PATIENT identifiers into a GS1 DataMatrix 2D barcode which is printed on the PATIENT identity band.

Implementation of this Information Standard enables subsequent processes involving the PATIENT and care provided to the PATIENT (where these processes are also uniquely identified and barcoded) to be automatically identified using Automatic Identification and Data Capture (AIDC) techniques, e.g. bed management, phlebotomy, theatre management and medications administration.

The Automatic Identification and Data Capture for Patient Identification Data Set provides an agreed national standard for how to encode a GS1 DataMatrix with the key PATIENT identifiers on the identity wristband and covers production, printing and verification rules for the barcode.

Further guidance can be found on the NHS Digital website at: DCB1077: AIDC for Patient Identification.Further guidance can be found on the NHS England website at: DCB1077: AIDC for Patient Identification.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

A Cancer Treatment Period is an ACTIVITY GROUP.

A Cancer Treatment Period is initiated when a Decision To Treat for a cancer condition is made and ends when the PATIENT receives the Planned Cancer Treatment specified in the Cancer Care Plan covering the PATIENTS condition. This is the same as TREATMENT START DATE (CANCER).

The full list of International Classification of Diseases (ICD) diagnosis codes is available on the NHS Digital website at: Cancer Waiting Times.The full list of International Classification of Diseases (ICD) diagnosis codes is available on the NHS England website at: Cancer Waiting Times.

If the PATIENT receives several different types of treatment within the same Cancer Care Plan (e.g. surgery, followed by Chemotherapy, followed by Radiotherapy), then each stage has its own Cancer Treatment Period of 31 days between DECISION TO TREAT DATE (or EARLIEST CLINICALLY APPROPRIATE DATE) and TREATMENT START DATE (CANCER).

CANCER CARE SETTING (TREATMENT) is used to derive whether a waiting time adjustment between CANCER TREATMENT PERIOD START DATE and TREATMENT START DATE (CANCER) may be recorded in WAITING TIME ADJUSTMENT (TREATMENT).

Introduction

CDS V6-2 Type 170 - Admitted Patient Care - Detained and or Long Term Psychiatric Census Commissioning Data Set carries the data for the Psychiatric Census.

The NHS Digital require a record for every PATIENT admitted as at 31 March each year for which the PATIENT is detained or the Episode is part of a Hospital Provider Spell which has lasted longer than one year and for which the majority of time has been spent under the care of a CONSULTANT in one of the psychiatric specialties.NHS England require a record for every PATIENT admitted as at 31 March each year for which the PATIENT is detained or the Episode is part of a Hospital Provider Spell which has lasted longer than one year and for which the majority of time has been spent under the care of a CONSULTANT in one of the psychiatric specialties.

In the case of Organisation Mergers and demergers occurring, where the Hospital Provider Spell would have lasted longer than one year except for the merger / demerger, PATIENTS should be included. The ORGANISATION CODE (CODE OF PROVIDER) will be that of the ORGANISATION in existence as at the 31 March Census Date.

ORGANISATIONS may, by local agreement, make submissions of the Psychiatric Census other than at 31st March each year. Care must be taken to ensure that the CDS ACTIVITY DATE chosen is compatible with the Commissioning Data Set Submission Protocol used.

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats. 

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

For guidance on the XML Schema constraints, see the Commissioning Data Set Version 6-2 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

• International Classification of Diseases (ICD)
• International Classification of Diseases for Oncology (ICD-O)
• National Interim Clinical Imaging Procedure Code Set (NICIP Code Set)
• NHS dictionary of medicines and devices (dm+d)
• OPCS Classification of Interventions and Procedures
• Read Coded Clinical Terms
• SNOMED CT®
• SNOMED CT Refset

Requests for Change:

• Change requests for CLINICAL TERMINOLOGY CODES and CLINICAL CLASSIFICATION CODES released by NHS Digital should be made through the Request Submission Portal on the NHS Digital website at: Welcome to the Request Submission Portal.
• Change requests for CLINICAL TERMINOLOGY CODES and CLINICAL CLASSIFICATION CODES released by NHS England should be made through the Request Submission Portal on the NHS England website at: Welcome to the Request Submission Portal.
• 
  
• Requests for medicines or devices terminologies should be made via the Service Desk at: information.standards@nhs.net.

The Commissioning Data Sets have notation to identify the business and/or processing rules which apply to individual Data Elements.  This notation appears in the Rules column of the Commissioning Data Sets details page. 

Population Validation

All Data Elements are subject to length validation.  Some Data Elements are also subject to format and content validation against a list of permitted values defined in the NHS Data Model and Dictionary. The value lists are held on the Attribute which the Data Element is based on, plus default codes which are held on the Data Element itself.

Business Rules

Some Data Elements are subject to additional Business Rules as indicated below:

• Prefix H = Healthcare Resource Group Business Rules.
• Prefix I = CDS-XML Schema notes, anomalies and issues.
• Prefix N = NHS Data Standards and Policy Rules
• Prefix S = Secondary Uses Service Business Rules

The minimum Commissioning Data Sets information flow requirement to enable Hospital Episode Statistics, 18 Weeks ACTIVITY reporting, and the National Tariff Payment System to be supported by the Secondary Uses Service is shown in the table below.

The Secondary Uses Service supports every CDS Type but only a subset is mandated to flow.

Commissioning Data Sets may flow to the Secondary Uses Service using either Net Change or Bulk Replacement Commissioning Data Set Submission Protocols.  Many Standard NHS Contracts between Health Care Providers and the commissioners of their SERVICES, now specify weekly submission of initially-coded data sets to the Secondary Uses Service.  The use of Net Change Commissioning Data Set Submission Protocols is recommended for submissions of this frequency.

The Commissioning Data Sets (CDS) are maintained and developed by the NHS Digital, in accordance with the needs of the NHS and the Department of Health and Social Care.The Commissioning Data Sets (CDS) are maintained and developed by NHS England, in accordance with the needs of the NHS and the Department of Health and Social Care.

Commissioning Data Sets form the basis of data on ACTIVITY carried out by ORGANISATIONS reported centrally for monitoring and payment purposes. They support the current Healthcare Resource Group (HRG) version for calculation of payment to trusts and monitoring of other initiatives.

Requests for changes to the Commissioning Data Sets should be submitted via email to enquiries@nhsdigital.nhs.uk, stating "Commissioning Data Sets" in the subject line.

For further information on Commissioning Data Sets, see:

• Commissioning Data Sets Overview
• Commissioning Data Set Version 6-2 Type List
• Commissioning Data Set Version 6-3 Type List
• Commissioning Data Set Versions

• Commissioning Data Set Addressing Grid
• Commissioning Data Set Business Rules
• Commissioning Data Set Data Duplication
• Commissioning Data Set Mandated Data Flows
• Commissioning Data Set Notation
• Commissioning Data Set Submission and Organisation Mergers
• Commissioning Data Set Submission Protocol
• Referral To Treatment Clock Stop Administrative Event
• Security Issues and Patient Confidentiality

• CDS XML Schema:
• Commissioning Data Set XML Schema Overview
• Commissioning Data Set XML Schema Design
• Commissioning Data Set XML Schema Version Numbering
• Commissioning Data Set XML Schema Documentation
• XML Schema TRUD Download

• XML Schema Constraints:
• Commissioning Data Set Version 6-2 XML Schema Constraints
• Commissioning Data Set Version 6-2-2 XML Schema Constraints
• Commissioning Data Set Version 6-2-3 XML Schema Constraints
• Commissioning Data Set Version 6-3 XML Schema Constraints

ORGANISATIONS can function as independent senders of Commissioning Data Sets and have service level agreements with Acute, Community or Mental Health ORGANISATIONS for the submission of this data. These agreements usually relate to clinical services that are subcontracted to that Health Care Provider or where clinical services are facilitated on that site but owned by the commissioner of the agreement.

ORGANISATION mergers do not always result in an immediate merger of IT facilities and their often disparate systems to enable a single flow of commissioning data to the Secondary Uses Service. In this case, data flows to the Secondary Uses Service for multiple sites from multiple senders must be very carefully managed in order to avoid inadvertent deletion or duplication of records in the Secondary Uses Service.

For further guidance, see the NHS Digital website at: Secondary Uses Service (SUS) Guidance.For further guidance, see the NHS England website at: Secondary Uses Service (SUS) Guidance.

The Commissioning Data Sets submitted by providers carry information to determine the update method to be used by the Secondary Uses Service in order to update the national database.

These update rules are known as the Commissioning Data Set Submission Protocol and the set of data controls used to indicate this are carried in the Commissioning Data Set Transaction Header Group which must be present and correct in every CDS Type submitted to the Secondary Uses Service.

Net Change:
Net Change processes are managed by specific data settings as defined in the CDS V6-2 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol / CDS V6-3 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol option of the CDS Transaction Header Group. The Secondary Uses Service uses the following data to manage the database:

• CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER)
• CDS UNIQUE IDENTIFIER
• CDS APPLICABLE DATE
• CDS APPLICABLE TIME

Note that CDS SENDER IDENTITY is used for CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set. ORGANISATION IDENTIFIER (CDS SENDER) is used for CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set and CDS Version 6-3 onwards. 

Each CDS Type must have a CDS UNIQUE IDENTIFIER which must be uniquely maintained throughout the life of that Commissioning Data Set record. This is a particular consideration where mergers and/or healthcare systems are changed or upgraded, see Commissioning Data Set Submission and Organisation Mergers. Any change to the CDS UNIQUE IDENTIFIER during the "lifetime" of a Commissioning Data Set record will almost certainly result in a duplicate record being lodged in the Secondary Uses Service database.

A Commissioning Data Set record delete transaction must be sent to the Secondary Uses Service database when any previously sent Commissioning Data Set record requires deletion/removal, for example to reflect Commissioner changes etc. 

Where CDS UPDATE TYPE 1 is required (delete/cancellation), an empty XML element called 'Delete Transaction' can be used instead of submitting he original CDS Type record, after the CDS V6-2 Type 005N - CDS Transaction Header Group - Net Change Protocol/ CDS V6-3 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol. See the CDS V6-2 or CDS V6-3 XML Schema Release Notes which can be downloaded via the XML Schema TRUD Download page.

The CDS APPLICABLE DATE and CDS APPLICABLE TIME must be used to ensure that all Commissioning data is updated in the Secondary Uses Service database in the correct chronological order.

The CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) must not change during the lifetime of the CDS data.  This is particularly significant for multiple and/or merged ORGANISATIONS, and for those services who submit data on behalf of another NHS Trust, NHS Foundation Trust or Independent Sector Healthcare Provider.

Bulk Replacement
Bulk Replacement processes are managed by specific data settings as defined in the CDS V6-2 Type 005B - Commissioning Data Set Transaction Header Group - Bulk Update Protocol/CDS V6-3 Type 005B - Commissioning Data Set Transaction Header Group - Bulk Update Protocol option of the CDS Transaction Header Group. The Secondary Uses Service uses the following data to manage the database:

• CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER)
• CDS BULK REPLACEMENT GROUP CODE
• CDS EXTRACT DATE
• CDS EXTRACT TIME
• CDS REPORT PERIOD START DATE
• CDS REPORT PERIOD END DATE

Note that CDS SENDER IDENTITY is used for CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set. ORGANISATION IDENTIFIER (CDS SENDER) is used for CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set and CDS V6-3 onwards.

Every CDS Type must be submitted using the correct CDS BULK REPLACEMENT GROUP CODE.

The CDS REPORT PERIOD START DATE and the CDS REPORT PERIOD END DATE, (i.e. the effective date period), must be valid and consistent, and reflect the dates relevant to the Commissioning data contained in the interchange.

The CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) must not change during the lifetime of the Commissioning Data Set record. This is particularly significant for multiple and/or merged ORGANISATIONS, and for those services who submit data on behalf of another ORGANISATION.

For submissions of CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set, the CDS PRIME RECIPIENT IDENTITY is Mandatory for submission in the CDS Type 005B (CDS Transaction Header Group - Bulk Update Protocol) and CDS Type 005N (CDS Transaction Header Group - Net Change Protocol). However, it no longer forms part of the key for the process of determining duplicate records within the Secondary Uses Service. Note that the CDS PRIME RECIPIENT IDENTITY continues to be used to determine data access requirements within the Secondary Uses Service for Commissioning Data Set version 6-2 submissions.  For Commissioning Data Set version 6-3 and CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set, data element ORGANISATION IDENTIFIER (CDS RECIPIENT) is used for this purpose.

If it is necessary to change any of this data during the lifetime of a Commissioning Data Set record, then the Secondary Uses Service (SUS) Service Desk should be contacted for advice. See the NHS Digital website at: Secondary Uses Service (SUS). See the NHS England website at: Secondary Uses Service (SUS).

It is strongly advised that users of the Bulk Replacement Mechanism maintain a correctly generated CDS UNIQUE IDENTIFIER within the Commissioning data. This will establish a migration path towards the use of the Net Change Mechanism and will also then minimise the risk of creating duplicate Commissioning Data Set data.

Sub contracting
If a Health Care Provider sub-contracts healthcare provision and its associated Commissioning Data Set submission to a second ORGANISATION (eg a different Health Care Provider or a Shared Services Organisation), arrangements to submit the Commissioning Data Set data must be made locally to ensure that only one ORGANISATION sends the Commissioning Data Set data to the Secondary Uses Service.

If the second ORGANISATION wishes to add other Commissioning data to the Secondary Uses Service database to that already submitted by the first ORGANISATION, both parties need to ensure that a different CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) is used.

Note: Data sent using the same CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) by two different parties will most likely overwrite each other's data in the Secondary Uses Service database. Further advice can be obtained from the Secondary Uses Service (SUS) Service Desk, see the NHS Digital website at: SUS Guidance. Further advice can be obtained from the Secondary Uses Service (SUS) Service Desk, see the NHS England website at: SUS Guidance.

Users should be aware of how the 15 character code of their CDS INTERCHANGE SENDER IDENTITY (also known as the EDI Address) is created. This may depend on how their XML interface solution has been set up. It may not be possible to rely on a change to the ORGANISATION CODE (CODE OF PROVIDER)/ORGANISATION IDENTIFIER (CODE OF PROVIDER) in order to change the CDS INTERCHANGE SENDER IDENTITY should this become necessary.

The use of XML was mandated by the e-Government Interoperability Framework (e-GIF) programme as the standard to be used for messaging by government organisations and accordingly this has been adopted by the NHS.

Note:
e-GIF and the Government Data Standards Catalogue have been archived and are available for reference only.

For the most part, the XML Schema applies the data specifications as authorised by the NHS and documented in the NHS Data Model and Dictionary.

The Issued Documentation
The NHS Digital Data  Architecture Team maintain and issue the following XML Schema documentation:The following XML Schema artifacts are issued:

• The XML Schema Files (generated using ALTOVA XMLSPY ©)
  The XML Schema files consist of a series of interpretable XML/HTML statements which define the data structures and content rules for the use of the message. User systems use the XML Schema to either populate or interpret an 'XML Schema instance' that is the resultant XML formatted message file which carries the data.

The XML Schema therefore represents the 'design' of the message and it may be necessary therefore to interpret and understand the information inherent in the XML Schema file code.

• The XML Schema Documentation (generated using ALTOVA XMLSPY ©)
  These files are generated using XMLSPY software and may be read in any browser, e.g. Microsoft Edge©. The files consist of a 'root' entry HTML formatted file and a (usually) large number of supporting .png graphic files used by the root HTML.

This documentation enables useful "drill down" functions for investigating structures and data items, but these features are not as powerful as when using a full XML Schema editor (see below).

Most browsers will support printing and thus the XML Schema details can be printed as required but users are warned that browser based prints often generate a large number of pages.

The CDS XML Schema generates approximately 450+ pages of details, printing is therefore not advised.

• The XML Schema Release Notes
  This is a pdf document identifying the changes applied to the XML Schema release, from the previous release.
  References to Information Standards Notices and other technical change requirements are detailed.

Reading XML Schema
Whilst XML Schemas can be read as HTML in most browsers, it may be difficult to fully interpret the XML Schema unless the reader has a detailed understanding of HTML.

It is recommended that XML Schemas are read using an XML interpreter (such as ALTOVA XMLSPY ©), many of these are freely available on the internet.

XML Schema technicians may prefer to use such software to examine XML Schemas more deeply as the interactive facilities provided are generally more powerful than browsing the XML/HTML supplied Schema code.

The XML Schema Version numbering format used in the Commissioning Data Sets.

The CDS XML Schema Version Number Format

The use of XML was mandated by the e-Government Interoperability Framework (e-GIF) programme as the standard to be used for messaging by government organisations and was adopted by the NHS.

Note:
e-GIF and the Government Data Standards Catalogue have been archived and are available for reference only.

The CDS XML Schema adopts version numbering techniques in line with published e-GOV best practice guidelines. All schema components are version numbered and date qualified; the following is an example of the adopted format:

CDS XML Message Root:

Example: V6-0-2007-03-01 (Note that dash separators are used).
[Schema Filename] + [Major Version Number] + [Minor Version Number] + [Version Date]

The Major Version Number:

This is incremented when fundamental change has taken place such as:

• Major addition / deletion / change of XML Schema business functionality
• Major change to the technical design of the schema
• Re-alignment of the XML Schema Version Number after cumulative changes

The Minor Version Number:

This is incremented for all XML Schema changes not warranting a Major Version Number increment (as above).
Examples are:

• Minor changes to XML Schema business functionality
• Minor changes to the XML Schema data structures that are not upwardly compatible*
• Addition and/or deletion of data items that are not upwardly compatible*
• Changes to data item facet definitions that are not upwardly compatible*

Version Date:

This may be adjusted as a defined reference point for a no risk XML Schema release to reflect minor changes and corrective releases.
Examples are:

• Minor changes to the XML Schema data structures that are upwardly compatible* for instance the addition of an optional data item.
• Changes to data item facet definitions that are upwardly compatible* for instance the addition (but not the deletion) of code values to a data item enumeration list.
• Interim development versions, released for information only

* Upwardly Compatible:

Minor changes and adjustments to the XML Schema which introduce little or no risk of increased data rejection are deemed upwardly compatible.

For example, corrective adjustments, which align the XML Schema to the authorised NHS Data Standards as published in the NHS Data Model and Dictionary often fall within this category.

The XML Schema Date:

All XML Schema releases have a designated SchemaDate XML Attribute.

XML Schema Version Control - The Schema Root:

The schema root is the single entry point to the XML Schema and XML Attributes for the following are validated:

• SchemaVersion
• SchemaDate

Introduction

The Community Services Data Set (CSDS) is a PATIENT level, output based, secondary uses data set which delivers robust, comprehensive, nationally consistent and comparable person-centred information for people who are in contact with publicly-funded Community Health Services. As a secondary uses data set it aims to re-use clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the Community Services Data Set covers all publicly-funded Community Health Services provided by Health Care Providers in England. This includes all SERVICES listed in the SERVICE OR TEAM TYPE REFERRED TO FOR COMMUNITY CARE within the Community Services Data Set. This includes acute and Independent Sector Healthcare Providers that provide publicly-funded Community Health Services.

The Community Services Data Set is used by the Department of Health and Social Care, commissioners and Health Care Providers of Community Health Services and PATIENTS, as the data set provides:

• National, comparable, standardised data about Community Health Services that are being delivered, which will support intelligent commissioning decisions and SERVICE provision
• Information on the use of resources to improve the operational management of SERVICES
• Information on outcomes, to help to address health inequalities
• Support for current national outcome indicators for Community Health Services
• Traceability and visibility of Community Health Service expenditure, allowing the implementation of new payment approaches for Community Health Services through the development of defined currencies which are underpinned by consistent data
• Information to improve reference costs for Community Health Services, to ensure that these are reported consistently
• Support for a nationally consistent clinical record for all PATIENTS across England, which can be used to support national research projects
• Information for the future development of Community Health Services.

Data Collection

The Community Services Data Set provides the definitions for data to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

Data is expected to be collected from various clinical systems, collated and assembled. This standard is intended to facilitate electronic data recording and reporting but it is not intended to create clinical records for Community Health Services or to enable systems used by Community Health Services to interoperate with other clinical systems.

Submission Information

The Community Services Data Set is submitted via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS Digital using the Community Services Data Set (CSDS) XML Schema.The Community Services Data Set is submitted via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England using the Community Services Data Set (CSDS) XML Schema.

Format Information

Data for submission is formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.

For enquiries regarding the XML Schema, please contact NHS Digital at enquiries@nhsdigital.For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Community Services Data Set (CSDS) submissions are made using the latest MS Access Community Services Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Community Services Data Set Intermediate Database.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net

Further Guidance

Further information and implementation guidance has been produced by NHS Digital and is available at:Further information and implementation guidance has been produced by NHS England and is available at:

• Community Services Data Set
• Community Services Data Set (CSDS) guidance.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• P = Pilot: this data element is for piloting use only.

For guidance on the Data Set constraints, see the Community Services Data Set Constraints.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Intermediate Database (IDB)

For guidance on downloading the Intermediate Database (IDB), see the NHS Digital website at: Intermediate Database (IDB) guidance.For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance.

Useful websites and email addresses.

• NHS Data Model and Dictionary:
  • Website: NHS Data Model and Dictionary Service Web Pages
  • Email: information.standards@nhs.net
  • 
    
• NHS Digital:
  • Website: NHS Digital website
  • Email: enquiries@nhsdigital.nhs.uk
• NHS Digital (now merged with NHS England):
  
  • Website: NHS Digital website
  • Email: enquiries@nhsdigital.nhs.uk
• 
  
• Data Alliance Partnership Board:
  • Website: Data Alliance Partnership Board
    
• NHS England:
  • Website: NHS England website
  • Email: england.contactus@nhs.net
• 
  
• Data Alliance Partnership Board:
  • Website: Data Alliance Partnership Board

• Department of Health and Social Care:
  • Website: Department of Health and Social Care part of the gov.uk website
  • Queries: Contact the Department of Health and Social Care
• 
  
• Organisation Data Service Queries:
  • Website: Organisation Data Service
  • Email: exeter.helpdesk@nhs.net
• 
  
• Postcodes:
  • Office for National Statistics website at:
    • Welcome to the Office for National Statistics
    • Postcode products.
  • Email: info@ons.gsi.gov.uk

Copyright © NHS Digital.Copyright © NHS England.

For more guidance on copyright see Terms and Conditions.

If you have any queries on copyright and crown copyright, please contact the Data Access and Information Sharing team via the Contact Centre at: enquiries@nhsdigital.nhs.uk.If you have any queries on copyright and crown copyright, please contact the Data Access and Information Sharing team at: england.contactus@nhs.net.

Introduction

The Cover of Vaccination Evaluated Rapidly (COVER) Data Set is used to evaluate the routine childhood Immunisation Programme in England for children up to 5 years of age. The aim is to collect and report vaccine uptake data for all children at three months (Tuberculosis (BCG) only), one, two and five years of age on a quarterly and annual basis.

The Cover of Vaccination Evaluated Rapidly (COVER) Data Set is also used to evaluate the neonatal hepatitis B Immunisation Programme in England for babies born to hepatitis B surface antigen (HBsAg) positive mothers.

The information is used:

• to reliably measure vaccine coverage
• to evaluate the success of a vaccination programme
• to identify susceptible populations for further interventions
• and to inform future vaccine policy decisions.

The UK Health Security Agency is mandated to report on vaccine uptake figures for children aged three months (Tuberculosis (BCG) only), one, two and five years for the Local Authority (upper tier) registered population for the Public Health Outcomes Framework (PHOF) indicator Population vaccination coverage.

NHS Digital is mandated to produce the annual Cover of Vaccination Evaluated Rapidly (COVER) statistics.NHS England is mandated to produce the annual Cover of Vaccination Evaluated Rapidly (COVER) statistics. Cover of Vaccination Evaluated Rapidly (COVER) statistics enable the monitoring of the contribution of the routine childhood Immunisation Programme towards protecting and improving the nation’s health and are used to address inequalities.

The UK Health Security Agency and the Department of Health and Social Care also have commitments to report vaccine coverage figures to international organisations such as the World Health Organisation, and the European Centre for Disease Prevention and Control.

Submission

Immunisation records are held in Child Health Information Systems (CHIS). Quarterly and annual returns are transmitted by Child Health Record Departments (who operate local Child Health Information Systems (CHIS)) or other local Health Care Providers to the NHS Digital Strategic Data Collection Service (SDCS). Quarterly and annual returns are transmitted by Child Health Record Departments (who operate local Child Health Information Systems (CHIS)) or other local Health Care Providers to the NHS England Strategic Data Collection Service (SDCS).

Further Guidance

For further guidance see the UK Health Security Agency part of the gov.uk website at Vaccine uptake guidance and the latest coverage data.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present

The Data Alliance Partnership Board is an ORGANISATION.

The Data Alliance Partnership Board (DAPB) replaced the Data Coordination Board (DCB) on 20 November 2020.

Key national ORGANISATIONS that use health and care data were brought together into a Data Alliance Partnership (DAP). The Data Alliance Partnership member ORGANISATIONS, including the Department of Health and Social Care, NHS England, a wide range of Arm’s Length Bodies and other ORGANISATIONS across health and adult social care, are committed to maximising the benefits from utilising and sharing data already held in health and care systems in order to minimise the burden of collecting more data from frontline service providers.

The Data Alliance Partnership Board (DAPB) supports member ORGANISATIONS achieve their goals and:

• Identifies and, wherever possible, reduces duplication of data collections
• Increases the benefits from data already held by making data accessible for legitimate purposes within existing legislation – the principle of collect once, use many times
• Increases transparency by making clear what data the health care and adult social care system holds and how it is used - published as a single list of approved data collections
• Has responsibility for approving Information Standards and Data Collections (including Extractions) (ISCEs) used in health care and adult social care.

Note: The Data Alliance Partnership Board is supported by the two boards which have devolved responsibility for scrutiny and assessment of recommendations made by the Data Standards Assurance Service (DSAS). Both boards review proposals for new and/or changes to existing ISCEs before making a recommendation for approval (or otherwise) to the Data Alliance Partnership Board:

• The Data Alliance Partnership Sub Board (DAPSB) is responsible for health service recommendations for approval
• The Data and Outcomes Board (DOB) is responsible for adult social care recommendations for approval.

For further information on the Data Alliance Partnership Board, see the NHS Digital website at: Data Alliance Partnership Board.For further information on the Data Alliance Partnership Board, see the NHS England website at: Data Alliance Partnership Board.

A Data Dictionary Change Notice (DDCN) is a notice of a change to the NHS Data Model and Dictionary which is not appropriate for Data Alliance Partnership Board publication as an Information Standards Notice, as the change does not relate to an individual standard.

The Data Dictionary Change Notices can be downloaded from: Data Dictionary Change Notices.

Further information on Data Dictionary Change Notices can be found on the NHS Data Model and Dictionary Service part of the NHS Digital website at: Policies: Data Dictionary Change Notice guidance.Further information on Data Dictionary Change Notices can be found on the NHS Data Model and Dictionary Service part of the NHS England website at: Policies: Data Dictionary Change Notice guidance.

The Data Landing Portal (DLP) allows data to be transferred securely between ORGANISATIONS using a centrally managed system.

The Data Landing Portal also facilitates the standardisation of local data transfers nationally.

For further information relating to the submission of data to the Data Landing Portal, see the NHS Digital website at: Data Landing Portal (DLP).For further information relating to the submission of data to the Data Landing Portal, see the NHS England website at: Data Landing Portal (DLP).

The Data Processing Services (DPS) is a secure, highly-scalable system that transforms the way data is used to improve health and care.

The Data Processing Services enables more efficient data collection, processing and distribution and delivers a clearer picture of health and care by providing more timely access to better linked, anonymised data.

For further information on the Data Processing Services, see the NHS Digital website at: Improving our Data Processing Services (DPS).For further information on the Data Processing Services, see the NHS England website at: Improving our Data Processing Services (DPS).

The Data Services for Commissioners (DSfC) is provided by NHS Digital under direction from NHS England.The Data Services for Commissioners (DSfC) is provided by NHS England.

The Data Services for Commissioners is delivered by staff seconded into NHS Digital from Commissioning Support Units.The Data Services for Commissioners is delivered by staff seconded into NHS England from Commissioning Support Units. The seconded staff are based in Data Services for Commissioners Regional Offices.

The Data Services for Commissioners:

• processes data to support local commissioning whilst protecting confidentiality
• receive and process personal confidential data (PCD) on behalf of Commissioning Support Units, Integrated Care Boards and Public Health ORGANISATIONS.

For further information on the Data Services for Commissioners, see the NHS Digital website at: Data Services for Commissioners.For further information on the Data Services for Commissioners, see the NHS England website at: Data Services for Commissioners.

A Data Services for Commissioners Regional Office is an ORGANISATION.

A Data Services for Commissioners Regional Office (DSCRO) is an ORGANISATION within NHS Digital.A Data Services for Commissioners Regional Office (DSCRO) is an ORGANISATION within NHS England.

A Data Services for Commissioners Regional Office is a local office of the Data Services for Commissioners.

For further information on the Data Services for Commissioners Regional Offices, see the NHS Digital website at: Data Services for Commissioners.For further information on the Data Services for Commissioners Regional Offices, see the NHS England website at: Data Services for Commissioners.

Delen is a website created and maintained by NHS Digital.Delen provides operational information to users of terminology and classifications products and services provided by NHS England.

Delen provides operational information to users of terminology and classifications products and services provided by NHS Digital.

For further information, see Delen at: Delen: Home site.

The Department of Health and Social Care is an ORGANISATION.

The Department of Health and Social Care (DHSC) helps people to live more independent, healthier lives for longer. It leads, shapes and funds health and social care in England, making sure people have the support, care and treatment they need, with the compassion, respect and dignity they deserve.

For further information on the Department of Health and Social Care, see the Department of Health and Social Care part of the gov.uk website at:

• About us and
• What we do.

A new health and care system became fully operational from 1 April 2013 to deliver the ambitions set out in the Health and Social Care Act 2012.

To achieve this, the Department of Health and Social Care is supported by a number of agencies and public bodies, including:

• Care Quality Commission
• Health Education England
• Health Research Authority
• Medicines and Healthcare Products Regulatory Agency
• National Institute for Health and Care Excellence
• NHS Digital
• NHS Blood and Transplant
• NHS Business Services Authority
• NHS England
• NHS Business Services Authority
• Public Health England. 
• UK Health Security Agency.

For further information on the Department of Health and Social Care, see the Department of Health and Social Care part of the gov.uk website at:

• About us and
• What we do
• DHSC's agencies and partner organisations.

For further information on the role of the Department of Health and Social Care in the new system, see the Department of Health and Social Care part of the gov.uk website at: The health and care system explained.

Introduction

The purpose of the Devices Patient Level Contract Monitoring Data Set (DePLCM) is to enable the interchange, in a uniform format, of monthly PATIENT level device Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that device Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

The Devices Patient Level Contract Monitoring Data Set is a PATIENT level report containing PATIENT identifiers relating to High Cost Tariff Excluded Devices. Its purpose is to substantiate and provide detail to the information contained within the Aggregate Contract Monitoring Data Set (ACM).

Scope

The scope of the Devices Patient Level Contract Monitoring Data Set is all NHS-funded MEDICAL DEVICES not reimbursed through the National Tariff Payment System, as defined in the NHS England National Tariff Payment System High Cost Devices list and any High Cost Devices not associated with a National Tariff, provided to PATIENTS for all NHS commissioners.

This covers:

• All acute and community NHS and Independent Sector Healthcare Provider secondary Health Care Providers, but not primary care, from whom the NHS commissions healthcare;
• All NHS commissioners (Integrated Care Boards or their equivalents and NHS England).

Note that the totality of expenditure in the Devices Patient Level Contract Monitoring Data Set must be equivalent to the aggregate monetary value shown relating to High Cost Tariff Excluded Devices in the Aggregate Contract Monitoring Data Set.

Submission

The Devices Patient Level Contract Monitoring Data Set is submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Devices Patient Level Contract Monitoring Data Set should be transmitted using the NHS Digital Data Landing Portal (DLP).The completed monthly Devices Patient Level Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Devices Patient Level Contract Monitoring Data Set, see the NHS England website at: Directly commissioned services reporting requirements.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

For guidance on the Data Set constraints, see the Devices Patient Level Contract Monitoring Data Set Constraints.

Introduction

The Diagnostic Imaging Data Set was introduced by ISB 1577 Diagnostic Imaging Data Set, in response to the lack of detailed data on national data on Diagnostic Imaging tests for NHS PATIENTS. The original requirement came from the cancer strategy to improve GP direct access to certain Diagnostic Imaging tests, as a method was required to monitor implementation of this policy.

The Diagnostic Imaging Data Set, however, has many benefits for example, to:

• Provide NHS data on GPs’ direct access to tests, as well as tests requested via other referral sources. Benchmarking data will be fed back to GPs and, where appropriate, used to encourage increased use of tests, leading to earlier diagnosis and hence improved outcomes
• Provide more detailed NHS data than is currently available on test type (modality), body site of test and PATIENT demographics
• Enable analysis of turnaround times for tests
• Enable better analysis of cancer pathways by linking the National Cancer Registration and Analysis Service data to Diagnostic Imaging test data for cancer PATIENTS
• Allow Public Health England (PHE) to calculate more accurate estimates of the distribution of individual radiation dose estimates from medical exposures.

From April 2012 it became a mandatory requirement that all providers of NHS-funded Diagnostic Imaging tests for NHS PATIENTS in England submit the central Diagnostic Imaging Data Set on a monthly basis.

The Diagnostic Imaging Data Set facilitates the collection of clinical data and the sharing of such data to underpin the delivery of effective Diagnostic Imaging. It is structured around the clinical processes of local Radiology Information Systems (RISs) used by NHS Trusts and NHS Foundation Trusts. It records administrative data relating to Diagnostic Imaging test ACTIVITY.

Information is collected relating exclusively to Diagnostic Imaging test ACTIVITY. The Diagnostic Imaging Data Set describes Diagnostic Imaging tests that have taken place as part of a broader PATIENT PATHWAY. This includes PATIENTS referred from within the ORGANISATION, either as an out-patient, in-patient or from Emergency Care Department, or referred directly from their GP or another Health Care Provider.

The Diagnostic Imaging Data Set is collected from NHS funded providers of Diagnostic Imaging test SERVICES and submitted via a portal on the NHS Digital website.The Diagnostic Imaging Data Set is collected from NHS funded providers of Diagnostic Imaging test SERVICES and submitted via a portal on the NHS England website. The submissions are processed and aggregate extracts are produced for provider and commissioner ORGANISATIONS and national groups such as the Department of Health and Social Care and Public Health England. This also allows linkage to the National Cancer Registration and Analysis Service.

Please note that the collection of the Diagnostic Imaging Data Set does not replace any other collection of diagnostic data such as the Diagnostics Waiting Times and Activity Data Set (DM01), which should continue to be collected.

Data Set Order

• The transmission order of the Diagnostic Imaging Data Set is different to the order of the items in the NHS Data Model and Dictionary and XML Schema.
• Please see the "Guidance Notes" at: Diagnostic Imaging Dataset: Guidance for Data Submitters, which contains a full list of Diagnostic Imaging Data Set fields in the order they are submitted.
• Work is planned to amend some of the Diagnostic Imaging Data Set items and when this is approved by the Data Alliance Partnership Board (DAPB), the NHS Data Model and Dictionary will be updated to match.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element.

XML Schema

For guidance on the XML Schema constraints, see the Diagnostic Imaging Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Computer Viruses:

Every reasonable effort has been made to ensure that the information and data that is held on this web site is free from computer viruses or other contamination. However, it is recommended that content downloaded from this site, is additionally checked by your own anti-virus checking system prior to use.

The NHS Digital cannot accept liability for any damage, however caused to computer systems and/or data contained therein by any programs, including viruses, in content downloaded from any NHS Digital website.NHS England cannot accept liability for any damage, however caused to computer systems and/or data contained therein by any programs, including viruses, in content downloaded from any NHS England website.

All links are provided for information and convenience only. We cannot accept responsibility for the sites linked to, or the information found there. A link does not imply an endorsement of a site; likewise, not linking to a particular site does not imply lack of endorsement.

We cannot guarantee uninterrupted access to this website, or the sites to which it links. We accept no responsibility for any damages arising from the loss of use of this information.

While we have taken every care to compile accurate information and to keep it up-to-date, we cannot guarantee its correctness and completeness. The information provided on this site does not constitute business, medical or other professional advice, and is subject to change. We do not accept responsibility for any loss, damage or expense resulting from the use of this information. If you believe that there are errors, or inaccuracies please contact information.standards@nhs.net.

Introduction

The purpose of the Drugs Patient Level Contract Monitoring Data Set (DrPLCM) is to enable the interchange, in a uniform format, of monthly PATIENT level drug Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that drug Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

The Drugs Patient Level Contract Monitoring Data Set is a PATIENT level report containing PATIENT identifiers relating to high cost (National Tariff-excluded) drugs. Its purpose is to substantiate and provide detail to the aggregate information contained within the Aggregate Contract Monitoring Data Set (ACM).

Scope

The scope of the Drugs Patient Level Contract Monitoring Data Set is all NHS-funded PRESCRIBED ITEMS not reimbursed through National Tariff Payment System, as defined by the NHS England National Tariff Payment System High Cost Tariff Excluded Drugs list, provided to PATIENTS for all NHS commissioners.

This covers:

• All acute and community NHS and Independent Sector Healthcare Provider secondary Health Care Providers, but not primary care, from whom the NHS commissions healthcare;
• All NHS commissioners (Integrated Care Boards or their equivalents and NHS England).

Note that the totality of expenditure in the Drugs Patient Level Contract Monitoring Data Set must be equivalent to the aggregate monetary value shown relating to High Cost Tariff Excluded Drugs in the Aggregate Contract Monitoring Data Set.

Submission

The Drugs Patient Level Contract Monitoring Data Set is required to be submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Drugs Patient Level Contract Monitoring Data Set should be transmitted using the NHS Digital Data Landing Portal (DLP).The completed monthly Drugs Patient Level Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Drugs Patient Level Contract Monitoring Data Set, see the NHS England website at: Directly Commissioned Services Reporting Requirements.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

For guidance on the Data Set constraints, see the Drugs Patient Level Contract Monitoring Data Set Constraints.

Introduction

The Electronic Prescribing and Medicines Administration Data Sets are secondary use data sets which aim to re-purpose clinical and operational data concerning the prescribing and administration of medication in Health Care Providers in England who have a live Electronic Prescribing and Medication Administration system.

The utilisation of secondary care PATIENT-level data supports improvements to health outcomes, and the Electronic Prescribing and Medicines Administration Data Sets will be linked to other national data sets to provide enhanced intelligence to support:

• safety and effectiveness
• monitoring uptake of innovative medicine
• pharmacovigilance
• cost-effectiveness (pharmacoeconomics)
• compliance with best practice and policy directives
• antimicrobial stewardship

Data in scope of the Electronic Prescribing and Medicines Administration Data Sets is from the Primary Electronic Prescribing and Medicine Administration system.  Therefore the data should not include activity where a separate system is used, for example for the delivery of certain cancer treatments (such as those covered by the Systemic Anti-Cancer Therapy Data Set), the prescribing and administration of specific medications such as Warfarin, and delivery of medications in specific care settings such as Intensive Care Units.

Care settings in scope of the Electronic Prescribing and Medicines Administration Data Sets are:

• Admitted Patient Setting - on a WARD during a Hospital Provider Spell
• Out-Patient Setting - in an Out-Patient Clinic or Ward Attendance
• Emergency Care Department setting
• Admitted Patient - on Discharge from the Hospital Provider Spell
• Admitted Patient - for Home Leave
• Admitted Patient - existing medication on admission
• Other Medication Administration Setting

Submission Information

Electronic Prescribing and Medicines Administration Data Sets data for submission must be formatted into XML files as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.

The data sets should be extracted from the primary Electronic Prescribing and Medicine Administration system on a weekly basis, covering the previous seven days' ACTIVITY for both prescribing and medicines administration. 

Data submissions are made to NHS Digital using the Message Exchange for Social Care and Health (MESH) portal.Data submissions are made to NHS England using the Message Exchange for Social Care and Health (MESH) portal.

Further Guidance

Further guidance for the Electronic Prescribing and Medicines Administration Data Sets is available at Interoperable Medicines Programme.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element

XML Schema

For guidance on the XML Schema constraints, see the Electronic Prescribing and Medicines Administration Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Introduction

The Female Genital Mutilation Data Set provides essential information in relation to the female genital mutilation population across England.

The Female Genital Mutilation Data Set is used:

• To publish Official Statistics which will inform the Department of Health and Social Care, NHS England, other Government Agencies and the public, about female genital mutilation when it has been identified
• To identify the potential risk of female genital mutilation to young girls and vulnerable women
• For better planning and management of female genital mutilation SERVICES at a local level and across England

Data may be input immediately using an input screen via the NHS Digital Clinical Audit Platform when female genital mutilation is identified, or data extracts for Patients, can be submitted as a bulk upload on a monthly basis for each ORGANISATION.Data for an individual PATIENT can be entered using a direct input screen on the NHS England Clinical Audit Platform, or an ELECTRONIC HEALTH RECORD EXTRACT can be used to submit bulk data uploads on a monthly basis for each ORGANISATION.

CARE CONTACT activities undertaken for female genital mutilation PATIENTS during the REPORTING PERIOD are reported in the data upload.  This includes any attendances at an Out-Patient Clinic led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group Therapy, Ward Attendances; or any other type of direct PATIENT-facing CARE CONTACT, with an exception to Sexual and Reproductive Health Clinics and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set to the NHS Digital.  This includes any attendances at an Out-Patient Clinic led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group Therapy, Ward Attendances; or any other type of direct PATIENT-facing CARE CONTACT, with the exception of Sexual and Reproductive Health Clinics and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set to NHS England.

SNOMED CT Refset:

• Female genital mutilation related findings:
  • Refset FSN: Female genital mutilation related findings simple reference set (foundation metadata concept)
  • Refset Id: 999002041000000103

For further details relating to the SNOMED CT Refset, see the SNOMED CT Browser at: Female genital mutilation related findings simple reference set (foundation metadata concept).

• Female genital mutilation related procedures:
  • Refset FSN: Female genital mutilation related procedures simple reference set (foundation metadata concept)
  • Refset Id: 999002031000000107

For further details relating to the SNOMED CT Refset, see the SNOMED CT Browser at: Female genital mutilation related procedures simple reference set (foundation metadata concept).

Data Extract Specification

Description

The Department of Health and Social Care requires all NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set. This requirement is applicable to all CARE PROFESSIONALS in these ORGANISATIONS whenever it has been identified that a woman or young girl has undergone female genital mutilation.

Time period

Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Format

Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS Digital Clinical Audit Platform.Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS England Clinical Audit Platform. The data elements should be transmitted in the order specified in the Female Genital Mutilation Data Set.

Transmission

Electronic files must be transmitted to NHS Digital via the Clinical Audit Platform which is a secure web portal.Electronic files must be transmitted to NHS England via the Clinical Audit Platform which is a secure web portal.

Connection to the web portal requires registration to the Clinical Audit Platform, which will include the provision of a login account name and password.

Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS Digital website: at Clinical Audit Platform.Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS England website: at Clinical Audit Platform.

Further guidance on the Female Genital Mutilation Data Set can be found on the NHS Digital website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.Further guidance on the Female Genital Mutilation Data Set can be found on the NHS England website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

A GS1 Global Service Relation Number is the GS1 Identification Key used to identify the relationship between a SERVICE provider and a SERVICE recipient. To limit privacy concerns, a GS1 Global Service Relation Number can only identify a business or individual in the context of the SERVICE relation.

For the AIDC for Patient Identification Data Set, the GS1 Global Service Relation Number relates to the recipient of the SERVICE to identify the relationship between a Health Care Provider and a PATIENT, and consists of:

• GS1 UNIQUE ORGANISATION PREFIX NUMBER
• NHS NUMBER
• GS1 GLOBAL SERVICE RELATION NUMBER CHECK DIGIT.

Note that the GS1 Global Service Relation Number may also relate to the provider of a SERVICE, to identify the relationship between an ORGANISATION and providers of healthcare SERVICES, such as Care Workers or other CARE PROFESSIONALS. However this representation is not currently used for any existing NHS data sets.

Further guidance can be found on the NHS Digital website at: DAPB0108 Automatic Identification Data Capture (AIDC).Further guidance can be found on the NHS England website at: DAPB0108 Automatic Identification Data Capture (AIDC).

Developed by the National Casemix Office, Healthcare Resource Groups (HRGs) are standard groupings of clinically similar treatments which use common levels of healthcare resource.

Healthcare Resource Groups offer ORGANISATIONS the ability to understand their ACTIVITY in terms of the types of PATIENTS they care for and the treatments they undertake. They enable the comparison of ACTIVITY within and between different ORGANISATIONS and provide an opportunity to benchmark treatments and services to support trend analysis over time.

Healthcare Resource Groups are currently used as a means of determining fair and equitable reimbursement for care services delivered by Health Care Providers. Their use as consistent 'units of currency' supports standardised healthcare commissioning across the NHS. They improve the flow of finances within - and sometimes beyond - the NHS.

For further information on Healthcare Resource Groups, see the NHS Digital website at: Downloads - Groupers and Tools.For further information on Healthcare Resource Groups, see the NHS England website at: Downloads - Groupers and Tools.

Healthcare Resource Group Unbundled Activity identifies separate elements of cost and ACTIVITY from the core Healthcare Resource Group, and are generated in addition to the core Healthcare Resource Group for an ACTIVITY, episode or spell of care or attendance.

A Healthcare Resource Group Unbundled Activity may be event based and derived from a specific OPCS-4 CODE in the PATIENT record, or duration based. Multiple Healthcare Resource Group Unbundled Activities may be generated in addition to a single core Healthcare Resource Group.

For further information on Healthcare Resource Groups, see the NHS Digital website at: Downloads - Groupers and Tools.For further information on Healthcare Resource Groups, see the NHS England website at: Downloads - Groupers and Tools.

The HES Data Dictionary contains detailed information on the fields from the Admitted Patient Care, Outpatient Care, Accident and Emergency, Adult Critical Care and the Patient Reported Outcome Measures (PROMs) data sets that are collected by Hospital Episode Statistics (HES) . These include the fields submitted directly by data providers and also fields derived and added to the data sets by the HES Data Dictionary team.The HES Data Dictionary contains detailed information on the fields from the Care Professional Admitted Care Episodes, Care Professional Out-Patient Episodes, Emergency Care Attendances, Adult Critical Care and the Patient Reported Outcome Measures (PROMs) data sets that are collected by Hospital Episode Statistics (HES).

For further information on HES Data Dictionary, see the NHS Digital website at: HES data dictionary.These include the fields submitted directly by data providers and also fields derived and added to the data sets by the HES Data Dictionary team.

For further information on HES Data Dictionary, see the NHS England website at: Hospital Episode Statistics Data Dictionary.

Hospital Episode Statistics is a data warehouse containing details of all Admitted Patient Care, Outpatient Attendances and Accident and Emergency Attendances in England.Hospital Episode Statistics is a data warehouse containing details of all Care Professional Admitted Care Episodes, Care Professional Out-Patient Episodes and Emergency Care Attendances in England.

It includes private PATIENTS treated by the NHS, PATIENTS who were resident outside of England and care delivered by treatment centres (including those in the independent sector) funded by the NHS.

For further information on Hospital Episode Statistics, see the NHS Digital website at: Hospital Episode Statistics.For further information on Hospital Episode Statistics, see the NHS England website at: Hospital Episode Statistics.

The Impairment Harmonised Standard describes the types of physical or mental health impairment affecting a PERSON which significantly impacts their ability to undertake particular functions.

An impairment with significant impact lasting 12 months or more is a DISABILITY.

The Impairment Harmonised Standard is consistent with the definitions and guidelines in UK legislation, including the Equality Act 2010 in Great Britain (GB).

The Impairment Harmonised Standard is utilised to enable visibility of Reasonable Adjustments required to enable a PATIENT to access SERVICES within:

• Clinical systems
• Administrative systems
• NHS Spine (accessible via the Summary Care Record application (SCRa) or through future integrated systems).

This is to indicate DISABILITY and impairment in the systems in relation to (but not limited to) the Equality Act 2010 and the approved Information Standard DAPB4019: Flagging of Reasonable Adjustment.This is to indicate DISABILITY and impairment in the systems in relation to (but not limited to) the Equality Act 2010 and the Information Standard DAPB4019: Flagging of Reasonable Adjustment.

For further information on the Reasonable Adjustment Flag functionality on the NHS Spine (utilising Summary Care Record application or future integrated systems), see the NHS Digital website at: Reasonable Adjustment Flag.For further information on the Reasonable Adjustment Flag functionality on the NHS Spine (utilising Summary Care Record application or future integrated systems), see the NHS England website at: Reasonable Adjustment Flag.

For further information on the Impairment Harmonised Standard, see the Government Statistical Service (GSS) website at: Impairment Harmonised Standard website.

The Improving Access to Psychological Therapies Data Set will be in included in a future version of the Mental Health Services Data Set.

Introduction

The Improving Access to Psychological Therapies Data Set (IAPT) has been developed to support the Adult Improving Access to Psychological Therapies Programme through a regular national return of data. This includes for example: supporting commissioning, service improvement and service design.

The Adult Improving Access to Psychological Therapies Programme is an NHS programme in England, which started in 2008, that has transformed treatment of anxiety disorders and depression through the delivery of interventions approved by the National Institute for Health and Care Excellence (NICE).

The Improving Access to Psychological Therapies Data Set is a PATIENT level, output based, secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable information for PATIENTS accessing NHS-funded Improving Access to Psychological Therapies Services located in England.

As a secondary uses data set, the Improving Access to Psychological Therapies Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local information systems. These national definitions allow Health Care Providers to extract data from their local systems in a consistent manner, which supports national and local reporting to be undertaken.

The Improving Access to Psychological Therapies Data Set includes information on:

• PATIENT Demographics: including geographical, gender, age, ethnicity, religion, sexual orientation and DISABILITY
• Care Pathways: referral details, Mental Health Care Cluster details and Presenting Complaints information
• CARE CONTACTS and CARE ACTIVITIES: SESSION details and any clinical, economic and social outcomes recorded relating to the interventions and coded scored assessments provided
• Waiting Time Pauses: ACTIVITY SUSPENSION periods across the PATIENT's care pathway
• Improving Access to Psychological Therapies Patient Experience Questionnaires: Improving Access to Psychological Therapies treatment and assessment questionnaires
• National Tariff Payment System: Additional data items to support the introduction and development of a payment system for Improving Access to Psychological Therapies Services
• Care Personnel: Qualifications of the Care Personnel delivering treatment.

Format Information

Improving Access to Psychological Therapies Data Set submissions are made using the latest MS Access Improving Access to Psychological Therapies Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Improving Access to Psychological Therapies Data Set Intermediate Database.

For guidance on downloading the Intermediate Database (IDB), see the NHS Digital website at: Intermediate Database (IDB) guidance preparing the IDB for making submissions to the SDCS Cloud.For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance preparing the IDB for making submissions to the SDCS Cloud.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net.

Further Guidance

Further guidance relating to the Improving Access to Psychological Therapies Data Set is available on the NHS Digital website: at Improving Access to Psychological Therapies Data Set.Further guidance relating to the Improving Access to Psychological Therapies Data Set is available on the NHS England website: at Improving Access to Psychological Therapies Data Set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• P = Pilot: this data element is for piloting use only.

Data Set Constraints

For guidance on the Data Set constraints, see the Improving Access to Psychological Therapies Data Set Constraints.

NHS DATA MODEL AND DICTIONARY Version 3

Release History: December 2022

	Welcome to the NHS Data Model and Dictionary for England If you would like to view our Frequently Asked Questions, see Frequently Asked Questions. The NHS Data Model and Dictionary provides a reference point for approved Information Standards Notices to support health care activities within the NHS in England. It has been developed for everyone who is actively involved in the collection of data and the management of information in the NHS. The NHS Data Model and Dictionary is maintained and published by the NHS Data Model and Dictionary Service and all changes are governed by the Data Alliance Partnership Board (DAPB) process. Changes are published as Information Standards Notices (ISN) and Data Dictionary Change Notices (DDCN).
	Related Links: Recording activity relating to coronavirus (COVID-19) Frequently Asked Questions Department of Health and Social Care website NHS Digital website Published Information Standards Documentation
	Related Links: Recording activity relating to coronavirus (COVID-19) Frequently Asked Questions Department of Health and Social Care website NHS England website Published Information Standards Documentation

Information Standards and Data Collections (including Extractions) are approved by the Data Alliance Partnership Board (DAPB).

From 20 November 2020, the Data Alliance Partnership Board took over responsibility for the approval of Information Standards and Data Collections (including Extractions) from the Data Coordination Board.

Further information on Information Standards and Data Collections (including Extractions) can be found on the NHS Digital website: at Information standards and data collections (including extractions).Further information on Information Standards and Data Collections (including Extractions) can be found on the NHS England website: at Information standards and data collections (including extractions).

The release of Information Standards Notices is managed by the Data Alliance Partnership Board (DAPB).

An Information Standards Notice was previously known as a Data Set Change Notice (DSCN).

An Information Standards Notice (ISN) is either a notice of an:

• Information Standard approved by the Information Standards Board for Health and Social Care (ISB)
• Information Standard and Data Collection (Including Extractions) (ISCE) accepted by the Standardisation Committee for Care Information (SCCI) for formal approval by the Department of Health and Social Care or NHS England
• Information Standard and Data Collection (Including Extractions) approved by the Data Coordination Board (DCB).
• Information Standard and Data Collection (Including Extractions) approved by the Data Alliance Partnership Board (DAPB).

When a health and social care ORGANISATION in England receives an Information Standards Notice, they ensure that they and their contractors comply with the notice as specified.

Further information on Information Standards Notices, see the NHS Digital website at Information standards and data collections (including extractions).Further information on Information Standards Notices, see the NHS England website at Information Standards and Collections (Including Extractions).

Details of all published Information Standards Notices can be found at the NHS Digital website: at Publications and Notifications.Details of all published Information Standards Notices can be found at the NHS England website: at Publications and Notifications.

International Classification of Diseases (ICD) is the international standard diagnostic classification for all general epidemiological, health management purposes and clinical use. These include the analysis of the general health situation of population groups and monitoring of the incidence and prevalence of diseases and other health problems in relation to other variables such as the characteristics and circumstances of the individuals affected, reimbursement, resource allocation, quality and guidelines.

International Classification of Diseases (ICD) provides systematic analysis, interpretation and comparison of morbidity data collected in different areas and at different times. It is a means of classifying medical terms and is defined as a system of categories to which morbid entries are assigned according to established criteria. It is used to support operational and strategic planning, resource utilisation, performance management, reimbursement, research and epidemiology.

It is published by the World Health Organisation and further information is available from the World Health Organisation website.

The classifications are revised periodically and national Information Standards and Data Collections (including Extractions) requiring International Classification of Diseases (ICD) coding should use the latest mandated version of the International Classification of Diseases (ICD) as given in the table below.

For details on current versions and further information, see the NHS Digital website at: Clinical Classifications.For details on current versions and further information, see the NHS England website at: Clinical Classifications.

A Lower Layer Super Output Area is a GEOGRAPHIC AREA.

Lower Layer Super Output Areas (LSOA) are a geographic hierarchy designed to improve the reporting of small area statistics in England and Wales.

There is a Lower Layer Super Output Area for each POSTCODE in England and Wales. The equivalent in Scotland is ‘Datazone’ and in Northern Ireland is ‘Super Output Area’. A pseudo code is available for the Channel Islands and the Isle of Man.

The Organisation Data Service publish files created on their behalf by the Office for National Statistics, which link POSTCODES to the Lower Layer Super Output Area.

See the Organisation Data Service pages on the NHS Digital website at: Complete Gridlink NHS Postcode for the NHS Postcode Directory User Guide.See the Organisation Data Service pages on the NHS England website at: Complete Gridlink NHS Postcode for the NHS Postcode Directory User Guide.

Introduction

The Maternity Services Data Set (MSDS) is a PATIENT-level data set that captures key information at each stage of the maternity care pathway including mother’s demographics, Antenatal Booking Appointments, admissions and re-admissions, Screening Tests, Labour and Delivery along with baby’s demographics, admissions, diagnoses and Screening Tests.

As a secondary uses data set the Maternity Services Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets extracted or derived from local information systems.

The Maternity Services Data Set is designed to meet requirements that resulted from the National Maternity Review, which led to the publication of the Better Births report in February 2016. Better Births highlighted the need for Maternity Services in England to become safer, more personalised and provide better access to information for pregnant women. The publication of Better Births resulted in the establishment of the Maternity Transformation Programme, and the data set forms part of the ‘Sharing Data and Information’ workstream of the programme.

Data Collection

The Maternity Services Data Set collects information on each stage of care for women as they go through pregnancy.

The Maternity Services Data Set Information Standards Notice (ISN) mandates the central flow of administrative and clinical information for secondary uses purposes. The scope of the data set includes all ACTIVITY carried out by NHS-funded Maternity Services relating to the mother and baby or babies, from the point of the first Antenatal Booking Appointment until the mother and baby are discharged from Maternity Services.

The Maternity Services Data Set provides the definitions for data:

• to be lodged in the central data warehouse regularly and routinely e.g. monthly. Extracts will be taken at prearranged intervals for publication
• to be assembled, compiled and to flow into a secondary uses data warehouse
• to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

The Maternity Services Data Set enables standardised collection of data from various services to be assembled for reporting purposes.

Submission information

The Maternity Services Data Set is submitted centrally via the Data Processing Services (DPS) maintained by NHS Digital.The Maternity Services Data Set is submitted centrally via the Data Processing Services (DPS) maintained by NHS England.

The Maternity Services Data Set is submitted to NHS Digital using the Maternity Services Data Set XML Schema.The Maternity Services Data Set is submitted to NHS England using the Maternity Services Data Set XML Schema.

A conversion tool has also been developed which enables the loading or copying of data into the provided table structure. Once populated, the tool can export the data in the required XML format, ready for submission.

Format information

Data for submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary: DD XML Schemas.

For enquiries regarding the XML Schema, please contact NHS Digital at enquiries@nhsdigital.For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Further guidance

Further guidance has been produced by NHS Digital and is available at Maternity Services Data Set.Further guidance has been produced by NHS England and is available at Maternity Services Data Set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Introduction

The Mental Health Services Data Set (MHSDS) is a PATIENT level, output based secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable person-based information for PATIENTS who are in contact with Mental Health Services.

The Mental Health Services Data Set covers Mental Health Services located in England, or located outside England but treating PATIENTS commissioned by an English Integrated Care Board, NHS England specialised commissioner or an NHS-led Provider Collaborative.

As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct PATIENT care, and defines the data items, definitions and associated value sets to be extracted or derived from local information systems.

All ACTIVITY relating to PATIENTS who receive assessments and treatment from Mental Health Services is within the scope of the Mental Health Services Data Set, where the PATIENT has, or are thought to have:

• A mental health condition and/or
• A need for support with their mental wellbeing and/or
• A Learning Disability and/or
• Autism or any other neurodevelopmental condition.

The scope of the Mental Health Services Data Set requires PATIENT record level data submission from SERVICES as follows:

• For each PATIENT attending a SERVICE located in England:
  • If the care is wholly funded by the NHS: the data submission for that PATIENT is mandatory
  • If the care is partially funded by the NHS: the data submission for that PATIENT is mandatory
  • If the care is wholly funded by any means that is not NHS: the data submission for that PATIENT is optional.
    
    
• For each PATIENT attending a SERVICE located outside England, but commissioned by an English Integrated Care Board or NHS England specialised commissioner, the data submission is optional.

The Mental Health Services Data Set is used across the range of Health Care Providers and ORGANISATIONS that provide Mental Health Services (irrespective of funding arrangements) including:

• NHS Mental Health Trusts
• NHS Learning Disabilities Trusts
• NHS Acute Trusts
• NHS Care Trusts
• Independent Sector Healthcare Providers offering a service model that includes NHS funded and non-NHS funded PATIENTS
• Voluntary sector Health Care Providers
• Any qualified provider offering Mental Health Services
• Community SERVICES offering secondary care to children.

Submission information

The Mental Health Services Data Set is submitted centrally via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS Digital.The Mental Health Services Data Set is submitted centrally via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England.

The Mental Health Services Data Set has historically been submitted using two submission windows, primary and refresh. This has changed to a multiple submission window model which gives submitters the opportunity to resubmit throughout the submission year. Guidance on the new submission model can be found on the NHS Digital website at: How to submit to the MHSDS. Guidance on the new submission model can be found on the NHS England website at: How to submit to the MHSDS.

Further guidance

Further information regarding the structure and submission of the Mental Health Services Data Set can be found on the NHS Digital website at: Mental Health Services Data Set (MHSDS).Further information regarding the structure and submission of the Mental Health Services Data Set can be found on the NHS England website at: Mental Health Services Data Set (MHSDS).

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• P = Pilot: this data element is for piloting use only.

Note: items in the Mandation column which are shown with notation P have not been approved by the Data Alliance Partnership Board and are included to facilitate piloting and testing of future data requirements, prior to formal inclusion in later versions of the Mental Health Services Data Set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

Data Set Constraints

For guidance on the Data Set constraints, see the Mental Health Services Data Set Constraints.

A Middle Layer Super Output Area is a GEOGRAPHIC AREA.

Middle Layer Super Output Areas (MSOA) are a geographic hierarchy designed to improve the reporting of small area statistics in England and Wales.

The Organisation Data Service publish files created on their behalf by the Office for National Statistics, which link POSTCODES to the Middle Layer Super Output Area.

See the Organisation Data Service pages on the NHS Digital website at: Complete Gridlink NHS Postcode for the NHS Postcode Directory User Guide.See the Organisation Data Service pages on the NHS England website at: Complete Gridlink NHS Postcode for the NHS Postcode Directory User Guide.

The National Cancer Registration and Analysis Service is an ORGANISATION.

The National Cancer Registration and Analysis Service (NCRAS) is part of NHS Digital.The National Cancer Registration and Analysis Service (NCRAS) is part of NHS England.

The National Cancer Registration and Analysis Service collects cancer data from all NHS Health Care Providers of cancer care in England.

For further information on the National Cancer Registration and Analysis Service, see: About the National Cancer Registration and Analysis Service.

Introduction

The information in the National Cancer Waiting Times Monitoring Data Set is required to provide details on cancer SERVICES in England. This enables the performance monitoring of Health Care Providers and Integrated Care Boards in order to maintain and increase standards across England.

Cancer Waiting Times data relates to the waiting time requirements outlined in the:

• 'NHS Cancer Plan (2000)'
• 'Cancer Reform Strategy (2007)'
• 'Improving Outcomes: A Strategy for Cancer (2011)' and
• 'Achieving World-Class Cancer Outcomes: Taking the strategy forward (2016)’.

The National Cancer Waiting Times Monitoring Data Set supports waiting times which are defined on the NHS Digital website at: Cancer Waiting Times Data Collection (CWT).The National Cancer Waiting Times Monitoring Data Set supports waiting times which are defined on the NHS England website at: Cancer Waiting Times Data Collection (CWT).

Patient Pathway Scenarios

The Patient Pathway Scenarios for the National Cancer Waiting Times Monitoring Data Set are to be used to manage the collection of data for all PATIENTS suspected of having, or diagnosed with cancer.

Transmission

• Data can be transmitted to the Cancer Waiting Times System through any of three routes:
  • Bulk upload via an XML file
  • Bulk upload via a CSV file
  • Single record entry through the Cancer Waiting Times Submission portal
• The specification for CSV upload file is detailed in the ‘National Cancer Waiting Times User Manual’ available on the NHS Digital website
• The specification for the CSV upload file is detailed in the ‘National Cancer Waiting Times User Manual’ available on the NHS England website
• Data for XML submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary: DD XML Schemas
• Once data is transmitted to the Cancer Waiting Times system it will undergo further validation. Details of this validation is available on the NHS Digital website at: Cancer Waiting Times.
• Once data is transmitted to the Cancer Waiting Times system it will undergo further validation. Details of this validation is available on the NHS England website at: Cancer Waiting Times.

Further guidance

• Further guidance relating to the National Cancer Waiting Times Monitoring Data Set is available on the NHS Digital website at: Cancer Waiting Times.
• Further guidance relating to the National Cancer Waiting Times Monitoring Data Set is available on the NHS England website at: Cancer Waiting Times.
• Queries regarding the National Cancer Waiting Times Monitoring Data Set should be addressed to england.cancerwaitsdata@nhs.net.

See Patient Pathway Scenarios, for the scenarios which show:

• the data items required for a range of health care scenarios and
• information on how records will be validated to ensure these scenarios have been correctly reported.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element.  Required data elements may not be applicable to all PATIENT PATHWAYS, see Patient Pathway Scenarios for further details
• O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

For guidance on the Data Set constraints, see the National Cancer Waiting Times Monitoring Data Set Constraints.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

National Cancer Waiting Times Monitoring Data Set: Concept of Operation and Patient Pathway Scenarios.

The National Cancer Waiting Times Monitoring Data Set is a generic data set designed to support the monitoring of waiting times for a variety of different pathways of cancer care. For the purpose of this data collection cancer is defined using the International Classification of Diseases (ICD) codes. The full list of International Classification of Diseases (ICD) diagnosis codes is available on the NHS Digital website at: Cancer Waiting Times. The full list of International Classification of Diseases (ICD) diagnosis codes is available on the NHS England website at: Cancer Waiting Times.

Collection and submission of the National Cancer Waiting Times Monitoring Data Set is to be managed according to the maximum waiting time and information requirements of the pathway of care for each individual PATIENT. These requirements for providers of cancer SERVICES to return data to the Cancer Waiting Times Database are defined using different scenarios.

• Scenario 1a:
  The Health Care Provider where the PATIENT is first seen following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has not had a Decision To Treat, has not had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. No inter-provider transfers are in progress.
• Scenario 1b:
  The Health Care Provider where the PATIENT is first seen following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has not had a Decision To Treat, has had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. No inter-provider transfers are in progress.
• Scenario 1c:
  The Health Care Provider where the PATIENT is first seen following a direct access diagnostic test result that suggested an urgent suspected cancer referral with PRIORITY TYPE 'Two Week Wait' was required, and where a locally agreed escalation process to secondary care has been followed (as defined in National Cancer Waiting Times Monitoring Data Set - A Guide), where the PATIENT has not had the Decision To Treat, and has not had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. No inter provider transfers are in progress.
• Scenario 1d:
  The Health Care Provider where the PATIENT is first seen following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has had the Decision To Treat, has had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. No inter-provider transfers are in progress.
• Scenario 1e:
  The Health Care Provider where the PATIENT is first seen following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has not had a Decision To Treat, has not had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. The Health Care Provider sends the PATIENT to another Health Care Provider, that is, makes an inter-provider transfer.
• Scenario 1f:
  The Health Care Provider receiving an inter-provider transfer of a PATIENT, where the PATIENT is first seen at a different Health Care Provider, and where the PATIENT has not had a Decision To Treat, has not had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. The Health Care Provider then subsequently sends the PATIENT to another Health Care Provider, that is, makes a further inter-provider transfer.
• Scenario 1g:
  The Health Care Provider where the PATIENT is first seen following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has not had a Decision To Treat, has not had the diagnosis outcome communicated, and the PATIENT has been excluded from the Cancer Faster Diagnosis Pathway. No inter-provider transfers are in progress.
• Scenario 2a:
  The Health Care Provider where the PATIENT receives First Definitive Treatment for cancer following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme, and where the PATIENT has had the Decision To Treat, has had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway. No inter-provider transfers are in progress.
• Scenario 2b:
  The Health Care Provider where the PATIENT receives First Definitive Treatment for cancer following an inter-provider transfer, and where the PATIENT has had the Decision To Treat, and has had the diagnosis outcome communicated, and the PATIENT has not been excluded from the Cancer Faster Diagnosis Pathway.
• Scenario 3:
  The Health Care Provider where the PATIENT receives second or subsequent treatment for cancer following a REFERRAL REQUEST with PRIORITY TYPE 'Two Week Wait', or where an urgent referral is from an NHS Cancer Screening Programme. No inter-provider transfers are in progress.
• Scenario 4:
  The Health Care Provider where the PATIENT receives First Definitive Treatment for cancer following a consultant upgrade onto a 62 day PATIENT PATHWAY. No inter-provider transfers are in progress.
• Scenario 5:
  The Health Care Provider where the PATIENT receives second or subsequent treatment for cancer following a consultant upgrade onto a 62 day PATIENT PATHWAY. No inter-provider transfers are in progress.
• Scenario 6:
  The Health Care Provider where the PATIENT receives First Definitive Treatment for cancer following a REFERRAL REQUEST from another SOURCE OF REFERRAL FOR OUT-PATIENTS or a different PRIORITY TYPE. No inter-provider transfers are in progress.
• Scenario 7:
  The Health Care Provider where the PATIENT receives second or subsequent treatment for cancer following a REFERRAL REQUEST from another SOURCE OF REFERRAL FOR OUT-PATIENTS or a different PRIORITY TYPE. No inter-provider transfers are in progress.

The columns in the table below show which data items are required for a range of health care scenarios:

Data Set Notation:

• M = Mandatory: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis. NHS England require the data to be submitted a number of working days after the end of each month or quarter. This submission schedule is set out on the NHS Digital website at: Cancer Waiting Times Data Collection (CWT).
• M* = Mandatory if applicable: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis, where collection of the item was applicable to them. NHS England require the data to be submitted a number of working days after the end of each month or quarter. This submission schedule is set out on the NHS Digital website at: Cancer Waiting Times Data Collection (CWT).
• M = Mandatory: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis. NHS England require the data to be submitted a number of working days after the end of each month or quarter. This submission schedule is set out on the NHS England website at: Cancer Waiting Times Data Collection (CWT).
• M* = Mandatory if applicable: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis, where collection of the item was applicable to them. NHS England require the data to be submitted a number of working days after the end of each month or quarter. This submission schedule is set out on the NHS England website at: Cancer Waiting Times Data Collection (CWT).
• O = Optional
• O* = Optional if applicable: These optional fields should only be populated if they relate to the PATIENT PATHWAY identified in the scenarios and the conditions required for their use are met.
• N/A = Not Applicable

Note: Inter-Provider Transfers:

• # First transfer involving the Health Care Provider
• ## Second transfer involving the Health Care Provider. There can be up to ten inter-provider transfers involving many ORGANISATIONS, but an individual ORGANISATION can only be involved in two transfers of a PATIENT.

Full details of the validation rules and processes are available on the NHS Digital website at: Cancer Waiting Times.Full details of the validation rules and processes are available on the NHS England website at: Cancer Waiting Times.

The National Casemix Office (NCO) designs and refines classifications that are used by the English NHS to describe healthcare ACTIVITY. These classifications underpin the National Tariff Payment System from costing through to payment, and support local commissioning and performance management.

The National Casemix Office enables the NHS to:

• support ACTIVITY costing: to inform the National Tariff Payment System processes
• report on PATIENT ACTIVITY information: to ensure that providers are paid for the SERVICES they deliver
• provide information: to support epidemiological studies and service planning
• enable providers and commissioners to use HRGs to benchmark and performance manage.

The National Interim Clinical Imaging Procedure Code Set (NICIP Code Set) is a comprehensive national standard set of codes and descriptions for imaging procedures and is maintained by NHS Digital.The National Interim Clinical Imaging Procedure Code Set (NICIP Code Set) is a comprehensive national standard set of codes and descriptions for imaging procedures and is maintained by NHS England.  It is intended for use in all Imaging Department information systems.

The NICIP Code Set was approved by the Information Standards Board for Health and Social Care (ISB) and is mandated for all in-scope use cases. Further detail about the initial information standard and subsequent amendments can be found on the Information Standards Board for Health and Social Care website at: ISB 0148 "Interim Clinical Imaging Procedure Codes".

The NICIP Code Set is released biannually. The release dates are the 1st of April and the 1st of October each year.

All versions of the NICIP Code Set, both with and without SNOMED CT maps, are only available from the Technology Reference Update Distribution (TRUD).

Clinicians and system managers working with the Picture Archiving and Communication Systems (PACS) and Radiology Information Systems (RIS) can make requests for additions to the NICIP Code Set. All requests must first be checked for conformance to the Editorial Principles.

Requests for changes to the NICIP Code Set should be made via the Information Standards Service Desk and clearly marked “Diagnostic Imaging."Requests for changes to the NICIP Code Set should be made through the Request Submission Portal on the NHS England website at: Welcome to the NICIP Submission Portal.

For further information on the National Interim Clinical Imaging Procedure Code Set, see the NHS Digital website at: National Interim Clinical Imaging Procedure (NICIP) Code Set.For further information on the National Interim Clinical Imaging Procedure Code Set, see the NHS England website at: National Interim Clinical Imaging Procedure (NICIP) Code Set.

Introduction

The National Workforce Data Set (NWD) is a reference Data Set comprising standardised definitions to facilitate the capture of nationally consistent information relating to the NHS and wider healthcare workforce.  National Workforce data items and definitions support a variety of workforce based collections. They are also embedded within operational HR/workforce systems including Electronic Staff Record (ESR), and the NHS Jobs web system.

The National Workforce Data Set provides common definitions for those data items that are needed to support workforce planning for the NHS workforce and is intended as a reference with an agreed set of data definitions for people who plan workforce at strategic, national and local level.

The changing nature of the provision of NHS funded care is leading to plurality of supply, and therefore a National Workforce Data Set ensures that all suppliers of NHS care provide workforce information in an agreed and pre-determined format. This provides a practical means for the consistent collection of this information from all providers of NHS funded care to enable comprehensive Healthcare Workforce planning going forwards.

The information captured using the values defined in the National Workforce Data Set will also be used locally within ORGANISATIONS by a range of people in addition to those mentioned above, such as in Training and Development, Workforce Information and Planning and Equality and Diversity.  The accuracy and relevance of the data captured using the National Workforce Data Set values will therefore impact on a number of issues at local level and beyond.

Further guidance has been produced by NHS Digital and is available on their website at: National Workforce Data Set (NWD) and NHS occupation codes.Further guidance has been produced by NHS England and is available on their website at: National Workforce Data Set (NWD) and NHS occupation codes.

Introduction

The Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

The primary purpose of the Neonatal Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within neonatal critical care. The Neonatal Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of neonatal critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Neonatal Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '13 - Neonatal Intensive Care Unit (Neonatal critical care patients predominate)'.

b) All PATIENTS (excluding Mothers) on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code:

• 14 - Facility for Babies on a Neonatal Transitional Care Ward
• 15 - Facility for Babies on a Maternity Ward

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Neonatal Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements. 

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

• CDS V6-2 Type 120 - Admitted Patient Care - Finished Birth Episode Commissioning Data Set
• CDS V6-2 Type 130 - Admitted Patient Care - Finished General Episode Commissioning Data Set
• CDS V6-2 Type 180 - Admitted Patient Care - Unfinished Birth Episode Commissioning Data Set
• CDS V6-2 Type 190 - Admitted Patient Care - Unfinished General Episode Commissioning Data Set 

The Secondary Uses Service groups this data into neonatal critical care Healthcare Resource Groups; these are a mandated currency under the National Tariff Payment System. Further guidance can be found on the NHS Digital website at: SCCI0075. Further guidance can be found on the NHS England website at: SCCI0075.

Introduction

The NHS Breast Screening Programme Central Return Data Set (KC62) provides information to the NHS Breast Screening Programme from Breast Screening Units on the processes and outcomes of the call and recall system. Screening Programmes are supported by the UK National Screening Committee.

The information is used:

• to monitor progress towards achieving the cancer targets
• to ensure that the NHS Breast Screening Programme is monitored and managed effectively.

The NHS Breast Screening Programme Central Return Data Set (KC62) is analysed by NHS Digital and also used by the Public Health Research Unit to evaluate the effectiveness of Breast Screening.The NHS Breast Screening Programme Central Return Data Set (KC62) is analysed by NHS England and also used by the Public Health Research Unit to evaluate the effectiveness of Breast Screening.  It is also used by the Regional Breast Screening Quality Assurance Reference Centres as part of the quality assurance process, and enables on-going monitoring of their individual programmes and comparisons within their regions and with England overall.

Collection

The NHS Breast Screening Programme Central Return Data Set (KC62) requires information on women invited for Breast Screening, the outcome of the Breast Screening and further information on each cancer detected.  It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD to which the data relates.

Women are included in the NHS Breast Screening Programme Central Return Data Set (KC62) only if the test date offered or SCREENING TEST DATE was within the review period.  All Screening Tests taking place within the REPORTING PERIOD are counted.  One woman may not have more than one outcome of cancer in the REPORTING PERIOD.  Women who are referred directly for a Screening Test (rather than an invitation as part of a Screening Programme) are also included if the SCREENING TEST DATE is within the REPORTING PERIOD.

Submission

The NHS Breast Screening Programme Central Return Data Set (KC62) is submitted via the Breast Screening Information System.

Parts One to Five of the NHS Breast Screening Programme Central Return Data Set (KC62) should be reported for Tables A to T.

* INVASIVE BREAST CANCER TOTAL OBSERVED, INVASIVE BREAST CANCER TOTAL EXPECTED and STANDARDISED DETECTION RATIO TOTAL are only appropriate for tables A, B and C1.

Introduction

The NHS Breast Screening Programme Central Return Data Set (KC63) provides information to the NHS Breast Screening Programme from Upper Tier Local Authorities on the Breast Screening history of their residents.  Screening Programmes are supported by the UK National Screening Committee.

The information is used to:

• assess coverage of Breast Screening and monitor standards of the SERVICES provided
• monitor progress towards achieving the Government's objective of reducing the death rate in the population invited for Breast Screening
• provide data for the Public Expenditure Survey (PES) negotiations, resource allocation to the NHS and Departmental accountability
• provide data published annually by the Department of Health and Social Care in the statistical Bulletin 'Breast Screening Programme'.

Collection

Data on Breast Screening should be readily available from the Primary Care Organisation's computerised call and recall system designed for Breast Screening.  A national computer program is provided and maintained by NHS Digital.  A national computer program is provided and maintained by NHS England. 

The NHS Breast Screening Programme Central Return Data Set (KC63) reports information on the Breast Screening history of women who were resident in the Upper Tier Local Authority, including Unitary Local Authorities at 31 March. It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD to which the data relates.

Submission

The NHS Breast Screening Programme Central Return Data Set (KC63) is submitted in csv file format.

Introduction

The NHS Continuing Healthcare Data Set is transmitted at aggregate level to the NHS Digital Strategic Data Collection Service (SDCS) with publication outputs available on the NHS England website at: NHS Continuing Healthcare and NHS-funded Nursing Care.The NHS Continuing Healthcare Data Set is transmitted at aggregate level to the NHS England Strategic Data Collection Service (SDCS) with publication outputs available on the NHS England website at: NHS Continuing Healthcare and NHS-funded Nursing Care. 

The Department of Health and Social Care introduced the National framework for NHS continuing healthcare and NHS-funded nursing care in 2007 to establish a consistent and standardised guide to implementing the delivery of NHS Continuing Healthcare (NHS CHC). This was last revised in March 2018 and replaces the previous 2012 version. The National Framework sets out NHS Continuing Healthcare and assessment processes. The latest version places a strong focus on moving assessments outside of an acute setting.

NHS Continuing Healthcare is a package of ongoing care that is 100% funded solely by the NHS where the PERSON has been found to have a ‘primary health need’ as set out in the National framework for NHS continuing healthcare and NHS funded nursing care. Such care is provided to a PERSON aged 18 or over, to meet needs that have arisen as a result of disability, accident or illness.

In order to monitor the implementation and effectiveness of the Framework, a mandatory collection requires the submission of quarterly figures on NHS Continuing Healthcare and NHS-funded Nursing Care activity.

The collection includes

• PERSONS aged 18 or over eligible for NHS Continuing Healthcare as defined by the National framework for NHS continuing healthcare and NHS-funded nursing care. 
• PERSONS still recognised as eligible under the former Strategic Health Authorities' eligibility criteria.
• PERSONS identified as eligible for NHS Continuing Healthcare following assessment of eligibility for Previously Unassessed Period of Care (PUPoC). This includes Previously Unassessed Periods of Care related to the ‘closedown’ announcement made by the Department of Health and Social Care in 2012 in which deadlines were introduced for requesting assessments of eligibility for past periods of care falling between 1st April 2004 and 31st March 2012. This also includes non-closedown Previously Unassessed Periods of Care relating to assessments of eligibility for past periods of care falling after 31st March 2012.

The collection excludes:

• PERSONS funded through other NHS funding streams which are not NHS Continuing Healthcare or NHS-funded Nursing Care
  PERSONS funded under any section of the Mental Health Act. The exception to this is if an individual is funded under a Mental Health Section and eligible for NHS Continuing Healthcare under the National Framework eligibility criteria. In these instances the activity related to the NHS Continuing Healthcare package is still included but any activity covered by the Mental Health section should be excluded
• Interim Cases - PERSONS receiving temporary NHS Continuing Healthcare funding pending eligibility decision or PERSONS who have ceased being eligible but are still being funded
• PERSONS under 18 years of age. NHS Continuing Healthcare packages are funded for individuals aged 18 and over only therefore only individuals aged 18 years or over are included in this return.

For further information on the NHS Continuing Healthcare Data Set, see the Department of Health and Social Care part of the gov.uk website at: National framework for NHS continuing healthcare and NHS-funded nursing care.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element.

Introduction

The NHS Continuing Healthcare Patient Level Data Set is PATIENT level, output based, secondary user data set. It delivers robust, comprehensive, nationally consistent and comparable PERSON centred information for people who are in receipt of, or whose eligibility is being assessed for, NHS Continuing Healthcare or NHS-funded Nursing Care. The data set does not include information about requests for an independent review of an NHS Continuing Healthcare eligibility decision.

As a secondary uses data set the NHS Continuing Healthcare Patient Level Data Set re-uses operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the NHS Continuing Healthcare Patient Level Data Set covers all NHS Continuing Healthcare and NHS-funded Nursing Care ACTIVITY undertaken by responsible commissioners (or other ORGANISATIONS acting on their behalf), in line with the NHS Continuing Healthcare (National Framework) in England.

The NHS Continuing Healthcare Patient Level Data Set is used by the Department of Health and Social Care, NHS England, commissioners and PATIENTS, as the data set provides:

• National, comparable, standardised data about NHS Continuing Healthcare and NHS-funded Nursing Care, which will support intelligent commissioning decisions and SERVICE provision
• Information on the use of resources to improve the operational management of SERVICES
• Support for current national performance indicators for NHS Continuing Healthcare 
• Information for the future development of NHS Continuing Healthcare and NHS-funded Nursing Care.

Data Collection

The NHS Continuing Healthcare Patient Level Data Set provides the definitions for data to:

• be lodged in the data warehouse regularly and routinely,
• be assembled, compiled and to flow into a secondary uses data warehouse,
• provide timely, pseudonymised PATIENT based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, performance improvement, research, clinical governance.

Data is expected to be extracted and collated by Sub Integrated Care Board Locations from the NHS Continuing Healthcare management systems used by responsible commissioners (Integrated Care Boards) to manage their NHS Continuing Healthcare function.

Data will be reported monthly.

Submission Information

Format Information

Data for submission will be formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.

For enquiries regarding the XML Schema, please contact NHS Digital at enquiries@nhsdigital.For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Further Guidance

Further information and implementation guidance has been produced by NHS Digital and is available at: NHS Continuing Health Care (CHC) Data Set.Further information and implementation guidance has been produced by NHS England and is available at: NHS Continuing Health Care (CHC) Data Set.