Following the issue of DSCN 07/2004 'Data Standards: Meta Model', the NHS Data Model and Dictionary was changed to reflect and be based upon a more generic logical data model which better supports the strategic way forward.Following the issue of DSCN 07/2004 'Data Standards: Meta Model', the NHS Data Model and Dictionary was changed to reflect and be based upon a more generic logical data model which better supports the strategic way forward. This NHS Data Model and Dictionary was published as the NHS Data Model and Dictionary Version 3.

There was extensive quality assurance of Version 3 including involvement of the Data Definition Group. All Version 3 contents were cross mapped and checked to ensure consistency with the Version 2 contents but the underlying structure was genericised. No changes were made to NHS Business Definitions. Version 3 superseded Version 2 on 1st May 2005.

The NHS Data Dictionary Version 2 has been frozen and made available for archive information purposes only and has been watermarked accordingly.The NHS Data Dictionary Version 2 has been frozen and made available for archive information purposes only and has been watermarked accordingly.

Summary of main changes and enhancements incorporated within Version 3

• Introduction of the capability of holding Retired Items
• Introduction of NHS Business Definitions, which allow specific business areas to be defined in a more flexible manner
• New ‘All Items Index’ which lists all the contents held within the NHS Data Model and Dictionary
• Reduction in the number of data model diagrams making them more comprehensible
• Introduction of Domains, which are conceptual logical modelling objects which identify the logical format, length and value set attributable to one or more attribute(s)
• 'Where Used' list expanded to include a description of usage column
• Creation of a separate Meta Model area within the publication

The introduction of Version 3 had no impact on current information standards or system suppliers.

About the Generic Model

Version 3 introduced a new Generic Model which is 'PERSON based' rather than 'ORGANISATION based'. The model has been developed around generic 'CARE ACTIVITIES' for a PATIENT, with each event transaction being recorded.

The Generic Model supports all the messages, data sets and central returns which the model supported but the underlying structure has been genericised. This involved grouping many of the old classes into generic classes like ACTIVITY GROUP. However, none of the detail was lost and most of the old class definitions can be found under 'NHS Business Definitions'. The number of diagrams has been greatly reduced and they now describe coherent areas of the model which is a far more useful approach for data modellers.

The model is aimed at enabling all 'CARE ACTIVITIES' related to the same condition for the same PATIENT to be recorded and linked across ORGANISATIONS. The different states of the same 'CARE ACTIVITY' are recorded as event transactions e.g. requested, intended, scheduled, provided, cancelled, etc. These different state events also drive the scheduling and capacity planning of resources (people, equipment, facilities, etc.) to deliver the care.

Although this may seem complicated, it is necessary both to form a coherent logical model and to relate physical information such as that which flows on the Data Sets to the logical model. Every physical item should be represented logically in the NHS Data Model and Dictionary. However, the scope of the logical model is greater than the physical information it holds and therefore not all logical information has a physical existence.

Contact us for more information: information.standards@nhs.net.

Accessible Information is information which is able to be read or received and understood by the individual or group for which it is intended.

The Equality Act 2010 places a duty on all service providers to take steps or make reasonable adjustments in order to avoid putting a disabled PERSON at a substantial disadvantage when compared to a PERSON who is not disabled.

SCCI 1605 Accessible Information requires that Health and Social Care ORGANISATIONS identify and record the information and communication support needs of PATIENTS and service users (and where appropriate their carers), where these needs relate to or are caused by a DISABILITY, impairment or sensory loss.DCB1605: Accessible Information requires that Health and Social Care ORGANISATIONS identify and record the information and communication support needs of PATIENTS and service users (and where appropriate their carers), where these needs relate to or are caused by a DISABILITY, impairment or sensory loss. These ORGANISATIONS are also required to take action to ensure that these needs are met.

The information and communication support needs cover four areas:

• communication support
• requires specific contact method
• requires communication professional
• requires specific information format

For further information on Accessible Information, see the NHS England website at: Accessible Information Standard.

Note: This NHS Business Definition is referenced by the approved Information Standard DCB1605: Accessible Information.

An Allied Health Professional Referral To Treatment Measurement is a REFERRAL TO TREATMENT PERIOD.

In 2008, the Department of Health and Social Care published 'Framing the Contribution of Allied Health Professionals', which sets out three key aspects for improving the SERVICES which ALLIED HEALTH PROFESSIONALS in NHS Allied Health Professional Services (Referral To Treatment Measurement) provide.

These are:

• To mandate the collection of Referral To Treatment information for ALLIED HEALTH PROFESSIONALS and support SERVICE redesign to improve SERVICES for PATIENTS
• To promote the benefits of self-referral to Physiotherapy SERVICES
• To improve the quality of SERVICES delivered

The Department of Health and Social Care introduced voluntary collection of ALLIED HEALTH PROFESSIONAL REFERRAL TO TREATMENT PERIOD waiting time information from April 2010, and mandatory collection from April 2011.  The Community Services Data Set and the Commissioning Data Sets (version 6-2 onwards) include the facility to report the ALLIED HEALTH PROFESSIONAL REFERRAL TO TREATMENT PERIOD waiting time data elements which are used for waiting time measurement.

The ALLIED HEALTH PROFESSIONALS mandated to collect and flow Referral To Treatment data are:

• Art Therapists, Music Therapists and Dramatherapists (Arts Therapists)
• Chiropodists/Podiatrists
• Dietitians
• Occupational Therapists
• Orthoptists
• Physiotherapists
• Prosthetists and Orthotists
• Radiographers (Diagnostic and Therapeutic)
• Speech and Language Therapists

There is no maximum waiting time target attached to an ALLIED HEALTH PROFESSIONAL REFERRAL TO TREATMENT PERIOD, so no adjustments can be applied to the calculated waiting time between the REFERRAL TO TREATMENT PERIOD START DATE and the REFERRAL TO TREATMENT PERIOD END DATE.  However, locally the EARLIEST CLINICALLY APPROPRIATE DATE and the EARLIEST REASONABLE OFFER DATE can be used by Health Care Providers and their Commissioners to analyse unexpectedly long waits for First Definitive Treatment.

ALLIED HEALTH PROFESSIONALS working as part of a Consultant Led Service in secondary care are excluded.

Further guidance relating to the Allied Health Professional Referral To Treatment initiative can be found on the Department of Health and Social Care at: Allied Health Professional (AHP) Referral to Treatment (RTT) guide.Further guidance relating to the Allied Health Professional Referral To Treatment initiative can be found on the Department of Health and Social Care at: Allied Health Professional (AHP) Referral to Treatment (RTT) guide.

The American Joint Committee on Cancer is an ORGANISATION.

The American Joint Committee on Cancer (AJCC) defines and publishes CANCER STAGING systems, such as the TNM Staging System.

For further information on the American Joint Committee on Cancer, see the American Joint Committee on Cancer website.For further information on the American Joint Committee on Cancer, see the American Joint Committee on Cancer website.

Antiretroviral Therapy is a CLINICAL INTERVENTION.

Antiretroviral Therapy (ART) is the treatment of people infected with human immunodeficiency virus (HIV) using antiretroviral drugs.

For further information on Antiretroviral Therapy, see the World Health Organisation website at: Clinical Guidelines: Antiretroviral Therapy.For further information on Antiretroviral Therapy, see the World Health Organisation website at: Consolidated guidelines on the use of antiretroviral drugs for treating and preventing HIV infection .

Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

Introduction

The Cancer Outcomes and Services Data Set is a compiled data set which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national and international level), as well as other national cancer audit programmes.

The standard and XML Schema consists of:

• a set of individual data items, with their definitions
• the assemblage of data items into discrete data sets
• the means of flowing the data items
• compilation of the data items into a reconciled and verified data set.

Additionally, the output supports commissioning and service development through provision of relevant information on service delivery and outcomes.

All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary care. It does not apply to general practice ORGANISATIONS.

The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.

Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom and Ireland Association of Cancer Registries.

Submission Information

Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set.

The Cancer Outcomes and Services Data Set is submitted to the National Cancer Registration and Analysis Service (NCRAS) using the COSDS XML Schema.

While the core and cancer site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS XML Schema integrates each core and cancer site specific set of data elements. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas gives full details of the specification. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas gives full details of the specification.

For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide.

Pathology

From January 2016 Pathology Laboratories across England were mandated through SCCI1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.From January 2016 Pathology Laboratories across England were mandated through DCB1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.

This replaced the current reporting to the National Cancer Registration and Analysis Service of electronic pathology reports which were then transcribed by the National Cancer Registration and Analysis Service into the Cancer Registration Reports. This also prevented Cancer Service teams, for example, Multidisciplinary Teams, Pathway Co-ordinators, duplicating the work, which had been happening as part of their data collection process.

From April 2020, the pathology data can only be collected and submitted using the separate Pathology Data Set and Pathology XML Schema. Pathology data items have been removed from the main Cancer Outcomes and Services Data Set.

This allows the Cancer Service teams to concentrate on collecting and reporting all the other clinical data required for the Cancer Outcomes and Services Data Set and the Pathologists to collect and report the pathology items. This will reduce the burden of data collection for the Cancer Service teams and allow for more accurate pathology reporting to be submitted to the National Cancer Registration and Analysis Service.

There will be no requirement for Pathology Laboratories to double report. Once their Laboratory Information Management Systems (LIMS) are updated to report in the COSDS XML Schema, all other pathology reporting can cease.

Further Guidance

Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Registration and Analysis Service at Cancer Outcomes and Services Dataset.Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Registration and Analysis Service at Cancer Outcomes and Services Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

A Care Home is an ORGANISATION SITE.

A Care Home is a place where personal care and accommodation are provided together.

People may live in a Care Home for short or long periods. For many people, it is their sole place of residence and so it becomes their home, although they do not legally own or rent it. Both the care that people receive and the premises are regulated by the Care Quality Commission.

There are two types of Care Homes:

• Care Home With Nursing
• Care Home Without Nursing.
• Care Home Without Nursing

Any establishment in which treatment or nursing (or both) are provided for PERSONS liable to be detained under the Mental Health Act 1983 cannot be a Care Home and is either a NHS hospital or must be registered as an independent hospital.

A Care Home Stay is an ACTIVITY GROUP.

A Care Home Stay is a period of time a PATIENT is accommodated at a Care Home.

A Care Home Stay may be a Care Home Stay (Consultant Care), Care Home Stay (Nursing Care), Care Home Stay (Midwife Care) or Care Home Stay (Residential) depending on responsibility of care.

Information recorded for a Care Home Stay includes:

A Clinical Finding is a CLINICAL INVESTIGATION RESULT ITEM.

A Clinical Finding represents the PATIENT DIAGNOSIS and symptoms of the PATIENT.

For example:

• Asthma (disorder)
• Headache (Finding)
• Normal breath sounds (Finding)
• Tired all the time (Finding).

For further information on Clinical Findings, see the: SNOMED CT Fact Sheet.For further information on Clinical Findings, see the: SNOMED CT Fact Sheet.

A Clinical Situation is a qualified PATIENT DIAGNOSIS, Clinical Investigation or Patient Procedure.

A Clinical Situation represents a concept in which the clinical context is specified as part of the definition of the concept itself.

These include presence or absence of a condition, whether a Clinical Finding is current, in the past or relates to someone other than the subject of the record.

For example:

• History of drug dependency
• Family history: Myocardial infarction
• Medication review done by Pharmacist.

For further information on Clinical Situations, see the: SNOMED CT Fact Sheet.For further information on Clinical Situations, see the: SNOMED CT Fact Sheet.

The Commissioning Data Sets have notation to identify the business and/or processing rules which apply to individual Data Elements.  This notation appears in the Rules column of the Commissioning Data Sets details page. 

Population Validation

All Data Elements are subject to length validation.  Some Data Elements are also subject to format and content validation against a list of permitted values defined in the NHS Data Model and Dictionary. The value lists are held on the Attribute which the Data Element is based on, plus default codes which are held on the Data Element itself.

Business Rules

Some Data Elements are subject to additional Business Rules as indicated below:

• Prefix H = Healthcare Resource Group Business Rules.
• Prefix I = CDS-XML Schema notes, anomalies and issues.
• Prefix N = NHS Data Standards and Policy Rules
• Prefix S = Secondary Uses Service Business Rules

The minimum Commissioning Data Sets information flow requirement to enable Hospital Episode Statistics, 18 Weeks ACTIVITY reporting, and the National Tariff Payment System to be supported by the Secondary Uses Service is shown in the table below.

The Secondary Uses Service supports every CDS Type but only a subset is mandated to flow.

Commissioning Data Sets may flow to the Secondary Uses Service using either Net Change or Bulk Replacement Commissioning Data Set Submission Protocols.  Many Standard NHS Contracts between Health Care Providers and the commissioners of their SERVICES, now specify weekly submission of initially-coded data sets to the Secondary Uses Service.  The use of Net Change Commissioning Data Set Submission Protocols is recommended for submissions of this frequency.

The Commissioning Data Sets submitted by providers carry information to determine the update method to be used by the Secondary Uses Service in order to update the national database.

These update rules are known as the Commissioning Data Set Submission Protocol and the set of data controls used to indicate this are carried in the Commissioning Data Set Transaction Header Group which must be present and correct in every CDS Type submitted to the Secondary Uses Service.

Net Change:
Net Change processes are managed by specific data settings as defined in the CDS V6-2 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol / CDS V6-3 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol option of the CDS Transaction Header Group. The Secondary Uses Service uses the following data to manage the database:

• CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER)
• CDS UNIQUE IDENTIFIER
• CDS APPLICABLE DATE
• CDS APPLICABLE TIME

Note that CDS SENDER IDENTITY is used for CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set. ORGANISATION IDENTIFIER (CDS SENDER) is used for CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set and CDS Version 6-3 onwards. 

Each CDS Type must have a CDS UNIQUE IDENTIFIER which must be uniquely maintained throughout the life of that Commissioning Data Set record. This is a particular consideration where mergers and/or healthcare systems are changed or upgraded, see Commissioning Data Set Submission and Organisation Mergers. Any change to the CDS UNIQUE IDENTIFIER during the "lifetime" of a Commissioning Data Set record will almost certainly result in a duplicate record being lodged in the Secondary Uses Service database.

A Commissioning Data Set record delete transaction must be sent to the Secondary Uses Service database when any previously sent Commissioning Data Set record requires deletion/removal, for example to reflect Commissioner changes etc. 

Where CDS UPDATE TYPE 1 is required (delete/cancellation), an empty XML element called 'Delete Transaction' can be used instead of submitting he original CDS Type record, after the CDS V6-2 Type 005N - CDS Transaction Header Group - Net Change Protocol/ CDS V6-3 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol. See the CDS V6-2 or CDS V6-3 XML Schema Release Notes which can be downloaded via the XML Schema TRUD Download page.

The CDS APPLICABLE DATE and CDS APPLICABLE TIME must be used to ensure that all Commissioning data is updated in the Secondary Uses Service database in the correct chronological order.

The CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) must not change during the lifetime of the CDS data.  This is particularly significant for multiple and/or merged ORGANISATIONS, and for those services who submit data on behalf of another NHS Trust, NHS Foundation Trust or Independent Sector Healthcare Provider.

Bulk Replacement
Bulk Replacement processes are managed by specific data settings as defined in the CDS V6-2 Type 005B - Commissioning Data Set Transaction Header Group - Bulk Update Protocol/CDS V6-3 Type 005B - Commissioning Data Set Transaction Header Group - Bulk Update Protocol option of the CDS Transaction Header Group. The Secondary Uses Service uses the following data to manage the database:

• CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER)
• CDS BULK REPLACEMENT GROUP CODE
• CDS EXTRACT DATE
• CDS EXTRACT TIME
• CDS REPORT PERIOD START DATE
• CDS REPORT PERIOD END DATE

Note that CDS SENDER IDENTITY is used for CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set. ORGANISATION IDENTIFIER (CDS SENDER) is used for CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set and CDS V6-3 onwards.

Every CDS Type must be submitted using the correct CDS BULK REPLACEMENT GROUP CODE.

The CDS REPORT PERIOD START DATE and the CDS REPORT PERIOD END DATE, (i.e. the effective date period), must be valid and consistent, and reflect the dates relevant to the Commissioning data contained in the interchange.

The CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) must not change during the lifetime of the Commissioning Data Set record. This is particularly significant for multiple and/or merged ORGANISATIONS, and for those services who submit data on behalf of another ORGANISATION.

For submissions of CDS V6-2 and CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set, the CDS PRIME RECIPIENT IDENTITY is Mandatory for submission in the CDS Type 005B (CDS Transaction Header Group - Bulk Update Protocol) and CDS Type 005N (CDS Transaction Header Group - Net Change Protocol). However, it no longer forms part of the key for the process of determining duplicate records within the Secondary Uses Service. Note that the CDS PRIME RECIPIENT IDENTITY continues to be used to determine data access requirements within the Secondary Uses Service for Commissioning Data Set version 6-2 submissions.  For Commissioning Data Set version 6-3 and CDS V6-2-3 Type 011 - Emergency Care Commissioning Data Set, data element ORGANISATION IDENTIFIER (CDS RECIPIENT) is used for this purpose.

If it is necessary to change any of this data during the lifetime of a Commissioning Data Set record, then the Secondary Uses Service (SUS) Service Desk should be contacted for advice. See the NHS England website at: Secondary Uses Service (SUS).

It is strongly advised that users of the Bulk Replacement Mechanism maintain a correctly generated CDS UNIQUE IDENTIFIER within the Commissioning data. This will establish a migration path towards the use of the Net Change Mechanism and will also then minimise the risk of creating duplicate Commissioning Data Set data.

Sub contracting
If a Health Care Provider sub-contracts healthcare provision and its associated Commissioning Data Set submission to a second ORGANISATION (eg a different Health Care Provider or a Shared Services Organisation), arrangements to submit the Commissioning Data Set data must be made locally to ensure that only one ORGANISATION sends the Commissioning Data Set data to the Secondary Uses Service.

If the second ORGANISATION wishes to add other Commissioning data to the Secondary Uses Service database to that already submitted by the first ORGANISATION, both parties need to ensure that a different CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) is used.

Note: Data sent using the same CDS SENDER IDENTITY/ORGANISATION IDENTIFIER (CDS SENDER) by two different parties will most likely overwrite each other's data in the Secondary Uses Service database. Further advice can be obtained from the Secondary Uses Service (SUS) Service Desk, see the NHS England website at: SUS Guidance. Further advice can be obtained from the Secondary Uses Service (SUS) Service Desk, see the NHS England website at: Secondary Uses Service (SUS) Guidance.

Users should be aware of how the 15 character code of their CDS INTERCHANGE SENDER IDENTITY (also known as the EDI Address) is created. This may depend on how their XML interface solution has been set up. It may not be possible to rely on a change to the ORGANISATION CODE (CODE OF PROVIDER)/ORGANISATION IDENTIFIER (CODE OF PROVIDER) in order to change the CDS INTERCHANGE SENDER IDENTITY should this become necessary.

The Commissioning Data Set versions since 2001.

Current versions:

• April 2021: CDS Version 6-2-3
• April 2022: CDS Version 6-3 Type List

Retired versions:

• November 2012 to 1 March 2023: CDS Version 6-2-2
• October 2017 to April 2022: CDS Version 6-2-1
• November 2008 to June 2015: CDS Version 6-1 Type List
• December 2007 to November 2012: CDS Version 6-0
• April 2005 to March 2008: CDS Version NHS005 Type List
• April 2001 to March 2005: CDS Version NHS003 and 4 Type List

The XML Schemas and supporting information can be downloaded from Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary: DD XML Schemas.The XML Schemas and supporting information can be downloaded from Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary XML Schemas.

Introduction

The Community Services Data Set (CSDS) is a PATIENT level, output based, secondary uses data set which delivers robust, comprehensive, nationally consistent and comparable person-centred information for people who are in contact with publicly-funded Community Health Services. As a secondary uses data set it aims to re-use clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the Community Services Data Set covers all publicly-funded Community Health Services provided by Health Care Providers in England. This includes all SERVICES listed in the SERVICE OR TEAM TYPE REFERRED TO FOR COMMUNITY CARE within the Community Services Data Set. This includes acute and Independent Sector Healthcare Providers that provide publicly-funded Community Health Services.

The Community Services Data Set is used by the Department of Health and Social Care, commissioners and Health Care Providers of Community Health Services and PATIENTS, as the data set provides:

• National, comparable, standardised data about Community Health Services that are being delivered, which will support intelligent commissioning decisions and SERVICE provision
• Information on the use of resources to improve the operational management of SERVICES
• Information on outcomes, to help to address health inequalities
• Support for current national outcome indicators for Community Health Services
• Traceability and visibility of Community Health Service expenditure, allowing the implementation of new payment approaches for Community Health Services through the development of defined currencies which are underpinned by consistent data
• Information to improve reference costs for Community Health Services, to ensure that these are reported consistently
• Support for a nationally consistent clinical record for all PATIENTS across England, which can be used to support national research projects
• Information for the future development of Community Health Services.

Data Collection

The Community Services Data Set provides the definitions for data to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

Data is expected to be collected from various clinical systems, collated and assembled. This standard is intended to facilitate electronic data recording and reporting but it is not intended to create clinical records for Community Health Services or to enable systems used by Community Health Services to interoperate with other clinical systems.

Submission Information

The Community Services Data Set is submitted via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England using the Community Services Data Set (CSDS) XML Schema.

Format Information

Data for submission is formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.Data for submission is formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas.

For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Community Services Data Set (CSDS) submissions are made using the latest MS Access Community Services Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Community Services Data Set Intermediate Database.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net

Further Guidance

Further information and implementation guidance has been produced by NHS England and is available at:

• Community Services Data Set
• Community Services Data Set (CSDS) guidance.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• P = Pilot: this data element is for piloting use only.

For guidance on the Data Set constraints, see the Community Services Data Set Constraints.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Intermediate Database (IDB)

For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance.

The Data Services for Commissioners (DSfC) is provided by NHS England.

The Data Services for Commissioners is delivered by staff seconded into NHS England from Commissioning Support Units. The seconded staff are based in Data Services for Commissioners Regional Offices.

The Data Services for Commissioners:

• processes data to support local commissioning whilst protecting confidentiality
• receive and process personal confidential data (PCD) on behalf of Commissioning Support Units, Integrated Care Boards and Public Health ORGANISATIONS.

For further information on the Data Services for Commissioners, see the NHS England website at: Data Services for Commissioners.For further information on the Data Services for Commissioners, see the NHS England website at: Data Services for Commissioners (DSfC).

A Data Services for Commissioners Regional Office is an ORGANISATION.

A Data Services for Commissioners Regional Office (DSCRO) is an ORGANISATION within NHS England.

A Data Services for Commissioners Regional Office is a local office of the Data Services for Commissioners.

For further information on the Data Services for Commissioners Regional Offices, see the NHS England website at: Data Services for Commissioners.For further information on the Data Services for Commissioners Regional Offices, see the NHS England website at: Data Services for Commissioners (DSfC).

Delen provides operational information to users of terminology and classifications products and services provided by NHS England.

For further information, see Delen at: Delen: Home site.For further information, see Delen at: Delen: Home.

The Department of Health and Social Care is an ORGANISATION.

The Department of Health and Social Care (DHSC) helps people to live more independent, healthier lives for longer. It leads, shapes and funds health and social care in England, making sure people have the support, care and treatment they need, with the compassion, respect and dignity they deserve.

A new health and care system became fully operational from 1 April 2013 to deliver the ambitions set out in the Health and Social Care Act 2012.

To achieve this, the Department of Health and Social Care is supported by a number of agencies and public bodies, including:

• Care Quality Commission
• Health Research Authority
• Medicines and Healthcare Products Regulatory Agency
• National Institute for Health and Care Excellence
• NHS Blood and Transplant
• NHS Business Services Authority
• NHS England
• UK Health Security Agency.
• UK Health Security Agency

For further information on the Department of Health and Social Care, see the Department of Health and Social Care part of the gov.uk website at:

• About us and
• What we do
• DHSC's agencies and partner organisations.

For further information on the role of the Department of Health and Social Care in the new system, see the Department of Health and Social Care part of the gov.uk website at: The health and care system explained.

Introduction

The Diagnostic Imaging Data Set was introduced by ISB 1577 Diagnostic Imaging Data Set, in response to the lack of detailed data on national data on Diagnostic Imaging tests for NHS PATIENTS.The Diagnostic Imaging Data Set was introduced by ISB 1577 Diagnostic Imaging Data Set, in response to the lack of detailed data on national data on Diagnostic Imaging tests for NHS PATIENTS. The original requirement came from the cancer strategy to improve GP direct access to certain Diagnostic Imaging tests, as a method was required to monitor implementation of this policy.

The Diagnostic Imaging Data Set, however, has many benefits for example, to:

• Provide NHS data on GPs’ direct access to tests, as well as tests requested via other referral sources. Benchmarking data will be fed back to GPs and, where appropriate, used to encourage increased use of tests, leading to earlier diagnosis and hence improved outcomes
• Provide more detailed NHS data than is currently available on test type (modality), body site of test and PATIENT demographics
• Enable analysis of turnaround times for tests
• Enable better analysis of cancer pathways by linking the National Cancer Registration and Analysis Service data to Diagnostic Imaging test data for cancer PATIENTS
• Allow Public Health England (PHE) to calculate more accurate estimates of the distribution of individual radiation dose estimates from medical exposures.

From April 2012 it became a mandatory requirement that all providers of NHS-funded Diagnostic Imaging tests for NHS PATIENTS in England submit the central Diagnostic Imaging Data Set on a monthly basis.

The Diagnostic Imaging Data Set facilitates the collection of clinical data and the sharing of such data to underpin the delivery of effective Diagnostic Imaging. It is structured around the clinical processes of local Radiology Information Systems (RISs) used by NHS Trusts and NHS Foundation Trusts. It records administrative data relating to Diagnostic Imaging test ACTIVITY.

Information is collected relating exclusively to Diagnostic Imaging test ACTIVITY. The Diagnostic Imaging Data Set describes Diagnostic Imaging tests that have taken place as part of a broader PATIENT PATHWAY. This includes PATIENTS referred from within the ORGANISATION, either as an out-patient, in-patient or from Emergency Care Department, or referred directly from their GP or another Health Care Provider.

The Diagnostic Imaging Data Set is collected from NHS funded providers of Diagnostic Imaging test SERVICES and submitted via a portal on the NHS England website. The submissions are processed and aggregate extracts are produced for provider and commissioner ORGANISATIONS and national groups such as the Department of Health and Social Care and Public Health England. This also allows linkage to the National Cancer Registration and Analysis Service.

Please note that the collection of the Diagnostic Imaging Data Set does not replace any other collection of diagnostic data such as the Diagnostics Waiting Times and Activity Data Set (DM01), which should continue to be collected.

Data Set Order

• The transmission order of the Diagnostic Imaging Data Set is different to the order of the items in the NHS Data Model and Dictionary and XML Schema.
• Please see the "Guidance Notes" at: Diagnostic Imaging Dataset: Guidance for Data Submitters, which contains a full list of Diagnostic Imaging Data Set fields in the order they are submitted.
• Work is planned to amend some of the Diagnostic Imaging Data Set items and when this is approved by the Data Alliance Partnership Board (DAPB), the NHS Data Model and Dictionary will be updated to match.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element.

XML Schema

For guidance on the XML Schema constraints, see the Diagnostic Imaging Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

The e-Government Interoperability Framework has been archived and is still available for reference only.

The e-Government Interoperability Framework (e-GIF):

• defined the technical policies and specifications governing information flows across government and the public sector
• covered interconnectivity, data integration, e-services access and content management.

The archived e-Government Interoperability Framework can be found on the archived Cabinet Office website.The archived e-Government Interoperability Framework can be found on the archived Cabinet Office website.

Introduction

The Electronic Prescribing and Medicines Administration Data Sets are secondary use data sets which aim to re-purpose clinical and operational data concerning the prescribing and administration of medication in Health Care Providers in England who have a live Electronic Prescribing and Medication Administration system.

The utilisation of secondary care PATIENT-level data supports improvements to health outcomes, and the Electronic Prescribing and Medicines Administration Data Sets will be linked to other national data sets to provide enhanced intelligence to support:

• safety and effectiveness
• monitoring uptake of innovative medicine
• pharmacovigilance
• cost-effectiveness (pharmacoeconomics)
• compliance with best practice and policy directives
• antimicrobial stewardship

Data in scope of the Electronic Prescribing and Medicines Administration Data Sets is from the Primary Electronic Prescribing and Medicine Administration system.  Therefore the data should not include activity where a separate system is used, for example for the delivery of certain cancer treatments (such as those covered by the Systemic Anti-Cancer Therapy Data Set), the prescribing and administration of specific medications such as Warfarin, and delivery of medications in specific care settings such as Intensive Care Units.

Care settings in scope of the Electronic Prescribing and Medicines Administration Data Sets are:

• Admitted Patient Setting - on a WARD during a Hospital Provider Spell
• Out-Patient Setting - in an Out-Patient Clinic or Ward Attendance
• Emergency Care Department setting
• Admitted Patient - on Discharge from the Hospital Provider Spell
• Admitted Patient - for Home Leave
• Admitted Patient - existing medication on admission
• Other Medication Administration Setting

Submission Information

Electronic Prescribing and Medicines Administration Data Sets data for submission must be formatted into XML files as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.Electronic Prescribing and Medicines Administration Data Sets data for submission must be formatted into XML files as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas.

The data sets should be extracted from the primary Electronic Prescribing and Medicine Administration system on a weekly basis, covering the previous seven days' ACTIVITY for both prescribing and medicines administration. 

Data submissions are made to NHS England using the Message Exchange for Social Care and Health (MESH) portal.

Further Guidance

Further guidance for the Electronic Prescribing and Medicines Administration Data Sets is available at Interoperable Medicines Programme.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element

XML Schema

For guidance on the XML Schema constraints, see the Electronic Prescribing and Medicines Administration Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

The Esophageal Complications Consensus Group is an ORGANISATION.

The Esophageal Complications Consensus Group (ECCG) provides a standardised format for documenting complications associated with esophagectomy.

For further information on the Esophageal Complications Consensus Group, see The European Society for Diseases of the Esophagus.For further information on the Esophageal Complications Consensus Group, see The European Society for Diseases of the Esophagus.

The Government Data Standards Catalogue has been archived and is still available for reference only.

The Government Data Standards Catalogue:

• set out the rationale, approach and rules for setting and agreeing the set of Government Data Standards (GDS) to be used in the schemas and other interchange processes
• contained the standards agreed to date.

The archived Government Data Standards Catalogue can be found on the archived Cabinet Office website.The archived Government Data Standards Catalogue can be found on the archived Cabinet Office website.

A Gynaecologist is a CARE PROFESSIONAL.

A Gynaecologist is a doctor who deals in the care of women with problems of the female reproductive system (ovaries, fallopian tubes, womb, cervix, vagina).

Some Gynaecologists specialise in urogynaecology (bladder incontinence), reproductive medicine (fertility problems and recurrent miscarriage), colposcopy (dealing with abnormal smears), gynae-oncology (cancer of the uterus, fallopian tubes and ovaries), contraception and menopause.

For further information on Gynaecologists, see the Royal College of Obstetricians and Gynaecologists website at: What’s the difference between an obstetrician and a gynaecologist?.For further information on Gynaecologists, see the Royal College of Obstetricians and Gynaecologists website at: A to Z of medical terms.

Haemodialysis is a CLINICAL INTERVENTION.

Haemodialysis is a form of Renal Dialysis which removes waste products from the blood by passing it out of the body through a filtering system (dialyser) and returning it, cleaned, to the body.

For further information on Haemodialysis, see Kidney Patient Guide - Haemodialysis.For further information on Haemodialysis, see Kidney Patient Guide - Haemodialysis.

Introduction

The scope of the HIV and AIDS Reporting Data Set is all PATIENTS who are diagnosed with Human Immunodeficiency Virus (HIV) and receive HIV care from Health Care Providers.

NHS Health Care Providers are required to generate the HIV and AIDS Reporting Data Set.

The HIV and AIDS Reporting Data Set is used to:

• Identify the groups at risk of HIV infection in England
• Monitor the short and long term clinical outcomes of people living with HIV infection
• Monitor the effectiveness of the national policies and guidance
• Adapt and refine interventions, as appropriate.

Secondary analyses of aggregate outputs from the HIV and AIDS Reporting Data Set will be used to:

• Support the commissioning of HIV Services through collation of data to inform the national HIV outpatient tariff for the National Tariff Payment System
• Conduct performance management at the Local Authority and national level.

For further information on Acquired Immune Deficiency Syndrome (AIDS) and Human Immunodeficiency Virus (HIV), see the Public Health England part of the gov.uk website.

Time period

The extract covers one calendar quarter.

Frequency:

The HIV and AIDS Reporting Data Set is attendance based and should be submitted quarterly, 2 weeks after the end of the quarter.

Format

Data for submission will be formatted into an xml file as per the HIV and AIDS Reporting Data Set XML Schema.

Transmission

Submissions should be transmitted to Public Health England through a secure web portal on the Public Health England (PHE) website, using the HARS Data Set XML Schema.

The web portal enables ORGANISATIONS to submit data files in a secure manner to the HIV and STI Department of Public Health England across the internet and can be found at HIV & STI web portal.The web portal enables ORGANISATIONS to submit data files in a secure manner to the HIV and STI Department of Public Health England across the internet and can be found at HIV & STI Web Portal.

For further information on the HIV and AIDS Reporting Data Set, see the Public Health England part of the gov.uk website at: HIV surveillance systems.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on the XML Schema constraints, see the HIV and AIDS Reporting Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

The Human Tissue Authority is an ORGANISATION.

The Human Tissue Authority (HTA) is an executive agency of the Department of Health and Social Care.

The Human Tissue Authority is the regulator for human TISSUE and organs.

For further information on the Human Tissue Authority, see the Human Tissue Authority website at: About the HTA.For further information on the Human Tissue Authority, see the Human Tissue Authority website at: About the HTA.

The Improving Access to Psychological Therapies Data Set will be in included in a future version of the Mental Health Services Data Set.

IntroductionImproving Access to Psychological Therapies Services are being renamed as NHS Talking Therapies for Anxiety and Depression, see NHS Talking Therapies, for anxiety and depression.

Introduction

The Improving Access to Psychological Therapies Data Set (IAPT) has been developed to support the Adult Improving Access to Psychological Therapies Programme through a regular national return of data. This includes for example: supporting commissioning, service improvement and service design.

The Adult Improving Access to Psychological Therapies Programme is an NHS programme in England, which started in 2008, that has transformed treatment of anxiety disorders and depression through the delivery of interventions approved by the National Institute for Health and Care Excellence (NICE).

The Improving Access to Psychological Therapies Data Set is a PATIENT level, output based, secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable information for PATIENTS accessing NHS-funded Improving Access to Psychological Therapies Services located in England.

As a secondary uses data set, the Improving Access to Psychological Therapies Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local information systems. These national definitions allow Health Care Providers to extract data from their local systems in a consistent manner, which supports national and local reporting to be undertaken.

The Improving Access to Psychological Therapies Data Set includes information on:

• PATIENT Demographics: including geographical, gender, age, ethnicity, religion, sexual orientation and DISABILITY
• Care Pathways: referral details, Mental Health Care Cluster details and Presenting Complaints information
• CARE CONTACTS and CARE ACTIVITIES: SESSION details and any clinical, economic and social outcomes recorded relating to the interventions and coded scored assessments provided
• Waiting Time Pauses: ACTIVITY SUSPENSION periods across the PATIENT's care pathway
• Improving Access to Psychological Therapies Patient Experience Questionnaires: Improving Access to Psychological Therapies treatment and assessment questionnaires
• National Tariff Payment System: Additional data items to support the introduction and development of a payment system for Improving Access to Psychological Therapies Services
• Care Personnel: Qualifications of the Care Personnel delivering treatment.

Format Information

Improving Access to Psychological Therapies Data Set submissions are made using the latest MS Access Improving Access to Psychological Therapies Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Improving Access to Psychological Therapies Data Set Intermediate Database.

For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance preparing the IDB for making submissions to the SDCS Cloud.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net.

Further Guidance

Further guidance relating to the Improving Access to Psychological Therapies Data Set is available on the NHS England website: at Improving Access to Psychological Therapies Data Set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• P = Pilot: this data element is for piloting use only.

Data Set Constraints

For guidance on the Data Set constraints, see the Improving Access to Psychological Therapies Data Set Constraints.

A Learning Difficulty is a PERSON PROPERTY. 

A Learning Difficulty is a type of Special Education Needs, which affects areas of learning, such as reading, writing, spelling, mathematics etc.

There are several levels of Learning Difficulties, such as:

• Specific Learning Difficulty - a particular difficulty in learning to read, write, spell etc
• Moderate Learning Difficulty - achievements well below expected levels in all or most areas of the curriculum, despite appropriate interventions
• Severe Learning Difficulty - significant intellectual or cognitive impairments
• Profound and Multiple Learning Difficulty - multiple Learning Difficulties have severe and complex learning needs, in addition they have other significant difficulties, such as physical disabilities or a sensory impairment.

For further information on Learning Difficulties, see the mentalhealth.For further information on Learning Difficulties, see the learningdisabilities.org.uk website at: Learning difficulties.uk website at: Learning difficulties.

Note: a Learning Disability usually has a significant impact on a PERSON's life. A PERSON with a Learning Disability finds it harder than others to learn, understand and communicate.

Guidance Notes relating to MAIN SPECIALTY CODE and TREATMENT FUNCTION CODE.

For further information regarding the definition and use of MAIN SPECIALTY see the attribute MAIN SPECIALTY CODE.

For further information regarding the definition and use of TREATMENT FUNCTION see the attribute TREATMENT FUNCTION CODE.

Note:

• New National Codes for MAIN SPECIALTY CODE and TREATMENT FUNCTION CODE were introduced from 2 April 2020 as part of the update to the DCB0028: Treatment Function and Main Specialty Standard. Submission of these codes for the Commissioning Data Sets is only possible where the healthcare provider has updated their CDS-XML schema version to CDS-XML version 6-2-0. Users of the original CDS-XML schema version 6-2 will be unable to submit the new codes introduced in the release of DCB0028: Treatment Function and Main Specialty Standard in April 2020 or the addendum to DCB0028 released in January 2021 to add a new TREATMENT FUNCTION CODE to represent Post-COVID-19 Syndrome Services.

Table 1 Main Specialty codes

Table 2 Treatment Function codes

Notes:

Introduction

The Maternity Services Data Set (MSDS) is a PATIENT-level data set that captures key information at each stage of the maternity care pathway including mother’s demographics, Antenatal Booking Appointments, admissions and re-admissions, Screening Tests, Labour and Delivery along with baby’s demographics, admissions, diagnoses and Screening Tests.

As a secondary uses data set the Maternity Services Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets extracted or derived from local information systems.

The Maternity Services Data Set is designed to meet requirements that resulted from the National Maternity Review, which led to the publication of the Better Births report in February 2016. Better Births highlighted the need for Maternity Services in England to become safer, more personalised and provide better access to information for pregnant women. The publication of Better Births resulted in the establishment of the Maternity Transformation Programme, and the data set forms part of the ‘Sharing Data and Information’ workstream of the programme.

Data Collection

The Maternity Services Data Set collects information on each stage of care for women as they go through pregnancy.

The Maternity Services Data Set Information Standards Notice (ISN) mandates the central flow of administrative and clinical information for secondary uses purposes. The scope of the data set includes all ACTIVITY carried out by NHS-funded Maternity Services relating to the mother and baby or babies, from the point of the first Antenatal Booking Appointment until the mother and baby are discharged from Maternity Services.

The Maternity Services Data Set provides the definitions for data:

• to be lodged in the central data warehouse regularly and routinely e.g. monthly. Extracts will be taken at prearranged intervals for publication
• to be assembled, compiled and to flow into a secondary uses data warehouse
• to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

The Maternity Services Data Set enables standardised collection of data from various services to be assembled for reporting purposes.

Submission information

The Maternity Services Data Set is submitted centrally via the Data Processing Services (DPS) maintained by NHS England.

The Maternity Services Data Set is submitted to NHS England using the Maternity Services Data Set XML Schema.

A conversion tool has also been developed which enables the loading or copying of data into the provided table structure. Once populated, the tool can export the data in the required XML format, ready for submission.

Format information

Data for submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary: DD XML Schemas.Data for submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary XML Schemas.

For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Further guidance

Further guidance has been produced by NHS England and is available at Maternity Services Data Set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Introduction

The information in the National Cancer Waiting Times Monitoring Data Set is required to provide details on cancer SERVICES in England. This enables the performance monitoring of Health Care Providers and Integrated Care Boards in order to maintain and increase standards across England.

Cancer Waiting Times data relates to the waiting time requirements outlined in the:

• 'NHS Cancer Plan (2000)'
• 'Cancer Reform Strategy (2007)'
• 'NHS Cancer Plan (2000)'
• 'Cancer Reform Strategy (2007)'
• 'Improving Outcomes: A Strategy for Cancer (2011)' and
• 'Achieving World-Class Cancer Outcomes: Taking the strategy forward (2016)’.

The National Cancer Waiting Times Monitoring Data Set supports waiting times which are defined on the NHS England website at: Cancer Waiting Times Data Collection (CWT).

Patient Pathway Scenarios

The Patient Pathway Scenarios for the National Cancer Waiting Times Monitoring Data Set are to be used to manage the collection of data for all PATIENTS suspected of having, or diagnosed with cancer.

Transmission

• Data can be transmitted to the Cancer Waiting Times System through any of three routes:
  • Bulk upload via an XML file
  • Bulk upload via a CSV file
  • Single record entry through the Cancer Waiting Times Submission portal
• The specification for the CSV upload file is detailed in the ‘National Cancer Waiting Times User Manual’ available on the NHS England website
• Data for XML submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary: DD XML Schemas
• Data for XML submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary XML Schemas
• Once data is transmitted to the Cancer Waiting Times system it will undergo further validation. Details of this validation is available on the NHS England website at: Cancer Waiting Times.

Further guidance

• Further guidance relating to the National Cancer Waiting Times Monitoring Data Set is available on the NHS England website at: Cancer Waiting Times.
• Queries regarding the National Cancer Waiting Times Monitoring Data Set should be addressed to england.cancerwaitsdata@nhs.net.

See Patient Pathway Scenarios, for the scenarios which show:

• the data items required for a range of health care scenarios and
• information on how records will be validated to ensure these scenarios have been correctly reported.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element.  Required data elements may not be applicable to all PATIENT PATHWAYS, see Patient Pathway Scenarios for further details
• O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

For guidance on the Data Set constraints, see the National Cancer Waiting Times Monitoring Data Set Constraints.

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

The National Institute for Health and Care Excellence is an ORGANISATION.

The National Institute for Health and Care Excellence (NICE) provides national guidance and advice to improve health and social care.

The National Institute for Health and Care Excellence's role is to improve outcomes for people using the NHS and other public health and social care services. This is achieved by:

• Producing evidence-based guidance and advice for health, public health and social care practitioners
• Developing quality standards and performance metrics for those providing and commissioning health, public health and social care services
• Providing a range of information services for commissioners, practitioners and managers across the spectrum of health and social care.

Further information on the National Institute for Health and Care Excellence, see the National Institute for Health and Care Excellence website.Further information on the National Institute for Health and Care Excellence, see the National Institute for Health and Care Excellence website.

The National Interim Clinical Imaging Procedure Code Set (NICIP Code Set) is a comprehensive national standard set of codes and descriptions for imaging procedures and is maintained by NHS England.  It is intended for use in all Imaging Department information systems.

The NICIP Code Set was approved by the Information Standards Board for Health and Social Care (ISB) and is mandated for all in-scope use cases. Further detail about the initial information standard and subsequent amendments can be found on the Information Standards Board for Health and Social Care website at: ISB 0148 "Interim Clinical Imaging Procedure Codes". Further detail about the initial information standard and subsequent amendments can be found on the Information Standards Board for Health and Social Care website at: ISB 0148 "Interim Clinical Imaging Procedure Codes".

The NICIP Code Set is released biannually. The release dates are the 1st of April and the 1st of October each year.

All versions of the NICIP Code Set, both with and without SNOMED CT maps, are only available from the Technology Reference Update Distribution (TRUD).

Clinicians and system managers working with the Picture Archiving and Communication Systems (PACS) and Radiology Information Systems (RIS) can make requests for additions to the NICIP Code Set. All requests must first be checked for conformance to the Editorial Principles. All requests must first be checked for conformance to the Editorial Principles.

Requests for changes to the NICIP Code Set should be made through the Request Submission Portal on the NHS England website at: Welcome to the NICIP Submission Portal.

For further information on the National Interim Clinical Imaging Procedure Code Set, see the NHS England website at: National Interim Clinical Imaging Procedure (NICIP) Code Set.For further information on the National Interim Clinical Imaging Procedure Code Set, see the NHS England website at: National Interim Clinical Imaging Procedure (NICIP) Code Set.

The National Joint Registry is an ORGANISATION.

The National Joint Registry (NJR) is managed by the Healthcare Quality Improvement Partnership (HQIP).

The National Joint Registry for England, Wales and Northern Ireland collects information on Joint Replacement Surgery and monitors the performance of joint replacement Implants.

For further information on the National Joint Registry, see the National Joint Registry website at: About the NJR.For further information on the National Joint Registry, see the National Joint Registry website at: About the NJR.

Introduction

The National Joint Registry Data Set collects information on primary Joint Replacement Surgery and revision Joint Replacement Surgery.

The majority of National Joint Registry Data Set items relate to the PATIENT's operation details and are collected in the OPERATING THEATRE.

The National Codes for National Joint Registry items match the National Joint Registry bulk upload codes / system generated codes.

PATIENTS must give their consent for this data to be recorded on the National Joint Registry Data Entry System (the electronic system for collection and transfer of data). 

Note: the consent is for data in the 'Patient Identifiers' group. Where consent is not given, the 'Patient Details' group and the operation details are still recorded.

Operations included in the National Joint Registry database

• Primary Ankle Replacement Surgery
• Revision Ankle Replacement Surgery
• Primary Elbow Replacement Surgery
• Revision Elbow Replacement Surgery
• Primary Hip Replacement Surgery
• Revision Hip Replacement Surgery
• Primary Knee Replacement Surgery
• Revision Knee Replacement Surgery
• Primary Shoulder Replacement Surgery
• Revision Shoulder Replacement Surgery

Further Guidance

Further guidance can be found:Further guidance can be found on the National Joint Registry website at: About the NJR.

• For background to the National Joint Registry on the:
  • Healthcare Quality Improvement Partnership website at: About the NJR
  • National Joint Registry website at: Welcome from the National Joint Registry of England, Wales and Northern Ireland.
    
• Relating to the data set on the National Joint Registry website at: NJR data set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory
• Optional: this data element is optional.

Introduction

The NHS Continuing Healthcare Patient Level Data Set is PATIENT level, output based, secondary user data set. It delivers robust, comprehensive, nationally consistent and comparable PERSON centred information for people who are in receipt of, or whose eligibility is being assessed for, NHS Continuing Healthcare or NHS-funded Nursing Care. The data set does not include information about requests for an independent review of an NHS Continuing Healthcare eligibility decision.

As a secondary uses data set the NHS Continuing Healthcare Patient Level Data Set re-uses operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the NHS Continuing Healthcare Patient Level Data Set covers all NHS Continuing Healthcare and NHS-funded Nursing Care ACTIVITY undertaken by responsible commissioners (or other ORGANISATIONS acting on their behalf), in line with the NHS Continuing Healthcare (National Framework) in England.

The NHS Continuing Healthcare Patient Level Data Set is used by the Department of Health and Social Care, NHS England, commissioners and PATIENTS, as the data set provides:

• National, comparable, standardised data about NHS Continuing Healthcare and NHS-funded Nursing Care, which will support intelligent commissioning decisions and SERVICE provision
• Information on the use of resources to improve the operational management of SERVICES
• Support for current national performance indicators for NHS Continuing Healthcare 
• Information for the future development of NHS Continuing Healthcare and NHS-funded Nursing Care.

Data Collection

The NHS Continuing Healthcare Patient Level Data Set provides the definitions for data to:

• be lodged in the data warehouse regularly and routinely,
• be assembled, compiled and to flow into a secondary uses data warehouse,
• provide timely, pseudonymised PATIENT based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, performance improvement, research, clinical governance.

Data is expected to be extracted and collated by Sub Integrated Care Board Locations from the NHS Continuing Healthcare management systems used by responsible commissioners (Integrated Care Boards) to manage their NHS Continuing Healthcare function.

Data will be reported monthly.

Submission Information

Format Information

Data for submission will be formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.Data for submission will be formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas.

For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Further Guidance

Further information and implementation guidance has been produced by NHS England and is available at: NHS Continuing Health Care (CHC) Data Set.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

An Observable Entity is a CLINICAL INTERVENTION.

An Observable Entity represents a question or assessment which can produce an answer or result.

For example:

• SYSTOLIC BLOOD PRESSURE
• Colour of urine
• Glomerular filtration rate.

For further information on Observable Entities, see the see the: SNOMED CT Fact Sheet.For further information on Observable Entities, see the see the: SNOMED CT Fact Sheet.

An Obstetrician is a CARE PROFESSIONAL.

An Obstetrician is a doctor who deals with problems that arise in maternity care, treating any complications of pregnancy and childbirth and any that arise after the Birth.

Obstetricians:

• work alongside MIDWIVES, whose speciality is usually normal pregnancy and Delivery
• may see some women before conception to plan their pregnancy.

• Royal College of Obstetricians and Gynaecologists website at: A to Z of medical terms
• NHS.uk website at: Antenatal support: meet the team - Obstetrician.

This guidance explains the circumstances under which Hospital Provider Spells should close and reopen as a result of a merger or demerger, in terms of NHS Information Standards.

It specifies which ORGANISATION CODES / ORGANISATION IDENTIFIERS should be used for Hospital Provider Spells which must be closed and reopened for:

• DISCHARGE DESTINATION etc, for the closing Hospital Provider Spell and
• SOURCE OF ADMISSION etc, for the new Hospital Provider Spell.

• A Hospital Provider Spell is provided by one ORGANISATION acting as a Health Care Provider. This means that the Hospital Provider Spell is linked to the ORGANISATION CODE / ORGANISATION IDENTIFIER of the Health Care Provider.
• If the ORGANISATION CODE / ORGANISATION IDENTIFIER changes, the spell must end and another begin with the new ORGANISATION CODE / ORGANISATION IDENTIFIER.
• If the Hospital Provider Spell does end, the Care Professional Admitted Care Episode within the Hospital Provider Spell must also end.

  The following scenarios explain what this means in terms of ORGANISATION mergers or demergers. Note that these assume that nothing changes other than the fact that the ORGANISATIONS merge or demerge, e.g. the CONSULTANT stays the same, etc.

• Trust A merges with Trust B to produce Trust C, which has a new ORGANISATION CODE / ORGANISATION IDENTIFIER.
  • The ORGANISATION CODE / ORGANISATION IDENTIFIER will change for both Trust A and B.
  • Therefore Hospital Provider Spells in both Trust A and B should close, and new Hospital Provider Spells should be opened using the new ORGANISATION CODE / ORGANISATION IDENTIFIER for Trust C.
• Trust A merges with Trust B to produce an ORGANISATION which uses Trust A's ORGANISATION CODE / ORGANISATION IDENTIFIER.
  • For those Hospital Provider Spells in Trust A, the ORGANISATION CODE will not change. Therefore Trust A's Hospital Provider Spells should not be closed just as a result of the merger. However, for Trust B the ORGANISATION CODE / ORGANISATION IDENTIFIER will change.
  • Therefore Hospital Provider Spells in Trust B should close, and new Hospital Provider Spells should be opened using the new ORGANISATION CODE / ORGANISATION IDENTIFIER for Trust A.

• Trust A splits into Trust B and Trust C, both of which have a new ORGANISATION CODE / ORGANISATION IDENTIFIER.
  • The ORGANISATION CODE / ORGANISATION IDENTIFIER will change for both Trust B and C.
  • Therefore all Hospital Provider Spells in Trust A should close, and new Hospital Provider Spells should be opened in Trust B and C using the new ORGANISATION CODES / ORGANISATION IDENTIFIERS for each.
• Trust A splits into Trust B and C. Trust B retains Trust A's ORGANISATION CODE / ORGANISATION IDENTIFIER and Trust C is issued with a new one.
  • The ORGANISATION CODE / ORGANISATION IDENTIFIER for Hospital Provider Spells in Trust A which are taken over by Trust B will not change.
  • Therefore they should not be closed just as a result of the merger.
  • However, Trust A's Hospital Provider Spells which are taken over by Trust C should close, and new Hospital Provider Spells should be opened using the new ORGANISATION CODE / ORGANISATION IDENTIFIER for Trust C.

If Hospital Provider Spells are to be closed and reopened only as a result of Organisation Mergers or demergers, for most cases the codes below should be used.

• The CLOSED Hospital Provider Spell

DESTINATION OF DISCHARGE

This depends on the type of WARD the PATIENT is in, but will be either:

• 51     NHS other Hospital Provider - WARD for general PATIENTS or the younger physically disabled
• 52     NHS other Hospital Provider - WARD for maternity PATIENTS or Neonates
• 53     NHS other Hospital Provider - WARD for PATIENTS who are mentally ill or have Learning Disabilities

METHOD OF DISCHARGE

• 1   PATIENT discharged on clinical advice or with clinical consent

• The REOPENED Hospital Provider Spell

METHOD OF ADMISSION

• 81     Transfer of any admitted PATIENT from other Hospital Provider other than in an emergency

Note that this ADMISSION METHOD is classed under "Other Admission". It is not elective and the PATIENT does therefore not have an entry on an Elective Admission List.

ADMISSION SOURCE

Again, this depends on the type of WARD the PATIENT is in, but will be either:

• 51     NHS other Hospital Provider - WARD for general PATIENTS or the younger physically disabled or Emergency Care Department
• 52     NHS other Hospital Provider - WARD for maternity PATIENTS or Neonates
• 53     NHS other Hospital Provider - WARD for PATIENTS who are mentally ill or have Learning Disabilities

REFERRER CODE

This will be the referrer to the Hospital Provider Spell within which the PATIENT was receiving care before the merger, i.e. the "original" Hospital Provider Spell.

Guidance for Merging Organisations to support Sending of Commissioning Data Sets to the Secondary Uses Service

• The Secondary Uses Service have published information regarding issues that may affect the approach to submitting data to the Secondary Uses Service.
• The guidance is available on the NHS England website at: SUS Guidance: "How do I send data to SUS?".
• The guidance is available on the NHS England website at: Secondary Uses Service (SUS) Guidance: Sending data.

The Oxford Orthopaedic Questionnaire is an ASSESSMENT TOOL.

The Oxford Orthopaedic Questionnaire is a 12 item questionnaire.

The Oxford Orthopaedic Questionnaire measures outcomes before and after:

• Primary Hip Replacement Surgery
• Revision Hip Replacement Surgery
• Primary Knee Replacement Surgery
• Revision Knee Replacement Surgery
• Primary Shoulder Replacement Surgery
• Revision Shoulder Replacement Surgery
• treatment for shoulder instability problems.

For further information on the Oxford Orthopaedic Questionnaires, see the Patient-Reported Outcomes Measurement Group website.For further information on the Oxford Orthopaedic Questionnaires, see the Orthopaedic Scores website.

A Patient Procedure is a CLINICAL INTERVENTION.

A Patient Procedure is a procedure performed on a PATIENT by a CARE PROFESSIONAL.

A Patient Procedure may be carried out:

• for the prevention, cure, relief or diagnosis of disease
• during pregnancy
• during childbirth.

A Patient Procedure may be carried out as part of a Clinical Investigation, where it is both diagnostic and therapeutic, for example, certain endoscopic procedures.

For further information on Patient Procedures, see the: SNOMED CT Fact Sheet.For further information on Patient Procedures, see the: SNOMED CT Fact Sheet.

The Personal Demographics Service (PDS) is the national electronic database of NHS patient demographic details such as name, ADDRESS, date of birth and NHS NUMBER.

For further information on the Personal Demographics Service, see the NHS England website at: Demographics.For further information on the Personal Demographics Service, see the NHS England website at: Demographics.

Introduction

The Radiotherapy Data Set (RTDS) allows for the routine collection of clinically and managerially relevant ACTIVITY data from Radiotherapy centres to provide operational data to enable bench marking and to support enhancing clinical practice, in addition to commissioning or monitoring Radiotherapy Services in an evidence-based manner.

Radiotherapy is a major modality in the treatment of cancer and also represents a significant sector within the NHS, in terms of both workforce and capital investment.

All NHS funded facilities in England providing Radiotherapy Services are required to return data to Public Health England (PHE) for all ACTIVITY undertaken on External Beam Radiotherapy (Teletherapy) and Brachytherapy MACHINES, or with radioisotopes not contained within an External Beam Radiotherapy (Teletherapy) or Brachytherapy MACHINE.

The Radiotherapy Data Set accompanies the Out-Patient Commissioning Data Set for PATIENTS attending for Radiotherapy.

Where admitted PATIENTS attend for Radiotherapy, a Radiotherapy Attendance record should be submitted to Public Health England along with the Out-Patient Commissioning Data Set for the In-Patient Attendance.

Data Submission

The Radiotherapy Data Set should be submitted to Public Health England by the 20th working day of each month. The extracts should include all Radiotherapy Attendance records for the previous calendar month.

Data should be submitted using the National Cancer Registration and Analysis Service (NCRAS) upload portal at: NCRAS Login.

Further Guidance

Further guidance for submission of the Radiotherapy Data Set is provided by the National Disease Registration Service at: National Radiotherapy Data Set (RTDS).Further guidance for submission of the Radiotherapy Data Set is provided by the National Disease Registration Service at: National Radiotherapy Data Set (RTDS).

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

DSCN 18/2006 published in December 2006, defined essential new data items required to support the measurement of 18 week REFERRAL TO TREATMENT PERIODS (monitoring of DH PSA target 13 - "By 2008, no one will have to wait longer than 18 weeks from GP referral to hospital treatment").DSCN 18/2006 published in December 2006, defined essential new data items required to support the measurement of 18 week REFERRAL TO TREATMENT PERIODS (monitoring of DH PSA target 13 - "By 2008, no one will have to wait longer than 18 weeks from GP referral to hospital treatment").

In particular, DSCN 18/2006 introduced the following new data items.In particular, DSCN 18/2006 introduced the following new data items.

• PATIENT PATHWAY IDENTIFIER
• REFERRAL TO TREATMENT PERIOD START DATE
• REFERRAL TO TREATMENT PERIOD END DATE

Strategic reporting of 18 weeks will be undertaken by the Secondary Uses Service using data obtained via the Commissioning Data Sets. The data items defined in DSCN 18/2006 are enabled to flow in Commissioning Data Set. The data items defined in DSCN 18/2006 are enabled to flow in Commissioning Data Set.

However, an event which results in an update to the REFERRAL TO TREATMENT PERIOD STATUS may occur outside the events that are defined in the Commissioning Data Sets (typically Outpatient or Inpatient encounters) and will therefore not flow to the Secondary Uses Service. These types of events have been termed as "administrative events". They can be defined as any communication event between the Health Care Provider and the PATIENT that occurs outside of an outpatient attendance or inpatient admission and that results in the PATIENT's REFERRAL TO TREATMENT PERIOD STATUS being changed to stop the 18 week clock. These events are not face to face consultations and do not necessarily involve clinical staff.

These Referral To Treatment Clock Stop Administrative Events may be carried using the Commissioning Data Set Type 020 Outpatient record type. They are differentiated from PATIENT contact ACTIVITY by the FIRST ATTENDANCE value carried within them. FIRST ATTENDANCE national code 5 "Referral to treatment clock stop administrative event" signifies that an ACTIVITY has taken place which has ended the REFERRAL TO TREATMENT PERIOD and changed the REFERRAL TO TREATMENT PERIOD STATUS to one of the following:

• 30 Start of First Definitive Treatment
• 31 Start of Active Monitoring initiated by the PATIENT
• 32 Start of Active Monitoring initiated by the CARE PROFESSIONAL
• 34 Decision not to treat - decision not to treat made or no further contact required
• 35 PATIENT declined offered treatment
• 36 PATIENT died before treatment

When to Use Referral To Treatment Clock Stop Administrative Events

These events may happen because:

• The ACTIVITY ending the event does not qualify as a "patient contact" between a clinician and PATIENT, or
• The ACTIVITY occurred in a setting where IT systems cannot produce REFERRAL TO TREATMENT PERIOD data items, or
• The ACTIVITY would be carried in a Commissioning Data Set record type not currently processed by the Secondary Uses Service

Secondary Uses Service Processing

The Secondary Uses Service currently processes the following Commissioning Data Set record types in order to build Referral To Treatment pathways.

• CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set
• CDS V6-2 Type 130 - Admitted Patient Care - Finished General Episode Commissioning Data Set/CDS V6-3 Type 130 - Admitted Patient Care - Finished General Episode Commissioning Data Set
• CDS V6-2 Type 190 - Admitted Patient Care - Unfinished General Episode Commissioning Data Set/CDS V6-3 Type 190 - Admitted Patient Care - Unfinished General Episode Commissioning Data Set

All other types are not currently processed and so if they carry the REFERRAL TO TREATMENT PERIOD END DATE for a REFERRAL TO TREATMENT PERIOD, a Referral To Treatment Clock Stop Administrative Event must also be sent in order to inform the Secondary Uses Service of the clock stop.

CDS V6-2 Type 120 - Admitted Patient Care - Finished Birth Episode Commissioning Data Set

• CDS V6-2 Type 140 - Admitted Patient Care - Finished Delivery Episode Commissioning Data Set
• CDS V6-2 Type 150 - Admitted Patient Care - Other Birth Event Commissioning Data Set
• CDS V6-2 Type 160 - Admitted Patient Care - Other Delivery Event Commissioning Data Set
• CDS V6-2 Type 180 - Admitted Patient Care - Unfinished Birth Episode Commissioning Data Set
• CDS V6-2 Type 200 - Admitted Patient Care - Unfinished Delivery Episode Commissioning Data Set

This is because a Referral To Treatment Clock Stop Administrative Event occurring in the scenarios where these record types are generated, would be rare. However this will be reviewed as part of the ongoing maintenance of the Referral To Treatment Clock Stop Administrative Event, and the requirements for the Secondary Uses Service.

When NOT to Use a Referral To Treatment Clock Stop Administrative Event

The Referral To Treatment Clock Stop Administrative Event should NOT be used to correct previously submitted records where a REFERRAL TO TREATMENT PERIOD END DATE was submitted incorrectly to the Secondary Uses Service.

For example, if an Out-Patient Appointment took place where First Definitive Treatment was started, but the REFERRAL TO TREATMENT PERIOD END DATE was not sent in the corresponding CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set record as it was not entered on the Patient Administration System until later; then the CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set record should be resubmitted with the correct data. A Referral To Treatment Clock Stop Administrative Event should NOT be used.

Where an ORGANISATION's Patient Administration System supports the submission of cancelled and Did Not Attend appointments in the CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set, the Referral To Treatment Clock Stop Administrative Event should NOT be used when a PATIENT has a booked Out-Patient Appointment, which is then cancelled because, for example, the PATIENT dies. In these cases the CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set can carry the details of a cancelled CARE ACTIVITY, including the REFERRAL TO TREATMENT PERIOD END DATE and update to the REFERRAL TO TREATMENT PERIOD STATUS. (Note - not all Patient Administration Systems provide functionality to create and submit Commissioning Data Set records for cancellations/Did Not Attend's as this is not yet mandated - you should contact your Patient Administration System support team to ascertain whether your Patient Administration System supports this. If not, then it is permissible to send a Referral To Treatment Clock Stop Administrative Event in order to stop the clock in the Secondary Uses Service instead).

Referral To Treatment Clock Stop Administrative Events only require a sub-set of the data elements contained in the CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set record, to be submitted to the Secondary Uses Service. All other data elements not listed should be omitted from the XML submission of the CDS V6-2 Type 020 - Outpatient Commissioning Data Set/CDS V6-3 Type 020 - Outpatient Commissioning Data Set record to the Secondary Uses Service. The submission of a Referral To Treatment Clock Stop Administrative Event is not reliant on the use of the Net Change Commissioning Data Set Submission Protocol to the Secondary Uses Service

The required data elements making up a Referral To Treatment Clock Stop Administrative Event are:

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

March 2023

• CR1867 (1 April 2023) - DAPB0084 Introduction of OPCS-4.10
• CR1879 (1 March 2023) - DDCN 1879/2023 Retirement of CDS V6-2-2 Type 011 - Emergency Care Commissioning Data Set
• CR1884 (1 April 2023) - DDCN 1884/2023 Health Education England merger with NHS England

January 2023

• CR1878 (31 January 2023) - DDCN 1878/2023 NHS Digital merger with NHS England
• CR1878 (1 February 2023) - DDCN 1878/2023 NHS Digital merger with NHS England

December 2022

• CR1844 (1 January 2023) - DAPB1069 Community Services Data Set Version 1.6

November 2022

• CR1738 (1 December 2022) - DAPB1595 Neonatal Data Set
• CR1873 (Immediate) - DAPB3085 NHS Continuing Healthcare Patient Level Data Set Second Corrigendum

July 2022

• CR1847 (1 July 2022) - DAPB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Version 2.3
• CR1846 (1 July 2022) - DAPB0090 Health and Care Bill: Organisational impact
• CR1864 (Immediate) - DAPB0092 Commissioning Data Sets Version 6-3 Corrigendum
• CR1853 (31 July 2022) - DAPB1067 National Workforce Data Set v3.3

The following has been incorporated early before release of the Information Standards Notice. Formal notification of implementation will be provided by the Data Alliance Partnership Board.

• CR1831 (14 July 2022) - DAPB4005 Electronic Prescribing and Medicines Administration Data Sets

April 2022

• CR1855 (Immedite) - DAPB0108 Automatic Identification and Data Capture (AIDC)

March 2022

• CR1736 (1 April 2022) - DAPB0111 Radiotherapy Data Set Version 6
• CR1818 (1 April 2022) - DAPB1520 Improving Access to Psychological Therapies Data Set Version 2.1
• CR1856 (1 February 2022) - DCB0011 Mental Health Services Data Set Version 5.0 Corrigendum
• CR1851 (Immediate) - DDCN 1851/2022 GUMCAD Code Description Amendment
• CR1857 (Immediate) - DDCN 1857/2022 NHSX merger with NHS England and NHS Improvement
• CR1861 (1 April 2022) - DDCN 1861/2022 Retirement of Commissioning Data Set V6-2-1 Type 011 - Emergency Care Commissioning Data Set

November 2021

• CR1850 (Immediate) - DDCN 1850/2021 Public Health England (PHE) and UK Health Security Agency (UKHSA)
• CR1848 (Immediate) - DDCN 1848/2021 National Cancer Registration and Analysis Service (NCRAS) Update

September 2021

• CR1768 (1 October 2021) - DCB0011 Mental Health Services Data Set Version 5.0
• CR1817 (6 September 2021) - DAPB4000 and DAPB4001 Patient Level Information Costing System (PLICS) Integrated Data Set
• CR1829 (Immediate) - DCB3085 NHS Continuing Healthcare Patient Level Data Set
• CR1833 (Immediate) - DDCN 1833/2021 Supporting Definition for Impairment Harmonised Standard
• CR1843 (Immediate) - DDCN 1843/2021 Care Quality Commission Update

August 2021

• CR1814 (1 September 2021) - DCB2050, DCB3003, DCB3002 and DCB2212 Contract Monitoring Data Sets Version 3

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2022:

• CR1764 (1 April 2022) - DAPB0092 Commissioning Data Sets Version 6-3

June 2021

• CR1806 (30 June 2021) - DCB1067 National Workforce Data Set v3.2
• CR1822 (Immediate) - DDCN 1822/2021 Introduction of Digital Health and Care Wales
• CR1805 (Immediate) - DDCN 1805/2021 Introduction of the Data Alliance Partnership Board
• CR1828 (Immediate) - DDCN 1828/2021 NHS England and NHS Improvement

March 2021

• CR1815 (1 April 2021) - DDCN 1815/2021 Commissioning Data Set XML Schema Version 6-2-0
• 
  
• The March 2021 Release introduces the NHS Data Model and Dictionary Demonstrations, which can be found at: Demonstrations.

February 2021

• CR1808 (Immediate) - DDCN 1808/2021 Correction of Format/Length Data Elements

January 2021

• CR1774 (11 January 2021) - DCB2123-02 Patient Level Information Costing System (PLICS) Ambulance Data Set
• CR1797 (11 January 2021) - DCB2123-03 Patient Level Information Costing System (PLICS) - Mental Health Admitted Patient Care Data Set and Patient Level Information Costing System (PLICS) - Mental Health Care Contacts Data Set
• CR1778 (11 January 2021) - DCB2123-04 Patient Level Information Costing System (PLICS) Improving Access to Psychological Therapies Data Set
• CR1807 (Immediate) - DCB0028 Corrigendum to DCB0028 Amd 45/2019 Treatment Function and Main Specialty Standard
• CR1811 (Immediate) - DCB0028 Addendum to add Treatment Function Code - Post-COVID-19 Syndrome Service

November 2020

• CR1790 (1 April 2021) - DDCN 1790/2020 NHS Continuing Healthcare Patient Level Data Set
• CR1798 (Immediate) - DDCN 1798/2020 Commissioning Data Set change to weekly submission
• CR1803 (Immediate) - DDCN 1803/2020 Emergency Care Department Update

October 2020

• CR1740 (1 November 2020) - DCB0092-2062 Update to Commissioning Data Set Type 011 Emergency Care

September 2020

• CR1716 (1 October 2020) - DCB0147 National Cancer Waiting Times Monitoring Data Set Version 2.1
• CR1779 (Immediate) - DDCN 1779/2020 Retirement of Information Sharing to Tackle Violence Minimum Data Set

August 2020

• CR1759 (7 September 2020) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set Update

June 2020

• CR1773 (Immediate) - DDCN 1773/2020 Retirement of PDS Birth Notification Data Sets

May 2020

• CR1770 (23 April 2020) - DDCN 1770/2020 Job Role Code

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2021:

• CR1751 (1 April 2021) - DCB3085 NHS Continuing Healthcare Patient Level Data Set

April 2020

• CR1667 (Immediate) - DCB1077 AIDC for Patient Identification Data Set Update
• CR1760 (1 April 2021) - DCB0028 Main Specialty Code and Treatment Function Code Updates
• Note: New National Codes were introduced from 2 April 2020 and should not be reported nationally until the functionality to do so becomes available in the next release of the affected data sets. A note has been added to the affected items to provide further guidance.

March 2020

• CR1690 (1 April 2020) - DCB1069 Community Services Data Set Version 1.5
• CR1714 (1 April 2020) - DCB1521 Cancer Outcomes and Services Data Set Version 9
• CR1719 (1 April 2020) - DCB1520 Improving Access to Psychological Therapies Data Set Version 2
• CR1732 (1 April 2020) - DCB0011 Mental Health Services Data Set Version 4.1
• CR1723 (1 April 2020) - DCB0084 Introduction of OPCS-4.9
• CR1743 (1 April 2020) - DCB1533 Aggregate Contract Monitoring Data Set Update
• CR1744 (1 April 2020) - DCB1533 Patient Level Contract Monitoring Data Set Update
• CR1753 (1 April 2020) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update
• CR1757 (1 April 2020) - DDCN 1757/2020 Organisation Data Service Information Update
• CR1752 (Immediate) - DDCN 1752/2020 Practitioners with a Special Interest Name Change

Release: December 2019

• CR1746 (Immediate) - DCB0039 GUMCAD Sexually Transmitted Infection Surveillance System Data Set
• CR1747 (Immediate) - DCB2212 Drugs Patient Level Contract Monitoring Data Set Update
• CR1724 (1 January 2020) - DCB1533 National Workforce Data Set Version 3.1
• CR1756 (Immediate) - DDCN 1756/2019 Social Work England
• CR1703 (Immediate) - DDCN 1703/2019 Update to GP Default Code V81998 Definition
• CR1741 (Immediate) - DDCN 1741/2019 Critical Care Minimum Data Set

Release: October 2019

• CR1668 (Immediate) - DDCN 1668/2019 Retirement of National Renal Data Set

Release: August 2019

• CR1661 (1 September 2019) - DCB1533 Systemic Anti-Cancer Therapy Data Set Version 3
• CR1734 (Immediate) - DDCN 1734/2019 Consultation Medium Used Update
• CR1731 (Immediate) - DDCN 1731/2019 Retirement of Quarterly Bed Availability and Occupancy Data Set (KH03)
• CR1735 (Immediate) - DDCN 1735/2019 Retirement of Mixed Sex Accommodation Data Set
• CR1641 (Immediate) - DDCN 1641/2019 Retirement of Emergency Care Weekly Situation Report Data Set

Release: July 2019

• CR1634 (Immediate) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set
• CR1696 (Immediate) - DDCN 1696/2019 SNOMED CT Subsets
• CR1722 (Immediate) - DDCN 1722/2019 GUMCAD Sexually Transmitted Infection Surveillance System Data Set

Release: May 2019

• CR1611 (Immediate) - DCB2050 Introduction of the Aggregate Contract Monitoring Data Set
• CR1613 (Immediate) - DCB3003 Introduction of Patient Level Contract Monitoring Data Set
• CR1612 (Immediate) - DCB3002 Introduction of Devices Patient Level Contract Monitoring Data Set
• CR1615 (Immediate) - DCB2212 Introduction of Drugs Patient Level Contract Monitoring Data Set
• CR1713 (Immediate) - DCB1593 Venous Thromboembolism Risk Assessment Data Set Update
• CR1730 (Immediate) - DDCN 1730/2019 Retirement of Diagnostics Waiting Times and Activity Data Set
• CR1729 (Immediate) - DDCN 1729/2019 Retirement of Diagnostics Waiting Times Census Data Set
• CR1728 (Immediate) - DDCN 1728/2019 Retirement of Referral To Treatment Data Set
• CR1727 (Immediate) - DDCN 1727/2019 Retirement of National Direct Access Audiology Data Set
• CR1725 (Immediate) - DDCN 1725/2019 Retirement of Quarterly Monitoring Cancelled Operations Data Set (QMCO)

Release: April 2019

• CR1704 (1 April 2019) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update
• CR1708 (Immediate) - DDCN 1708/2019 Retirement of KC50: Immunisation Programmes Activity Data Set (KC50)
• CR1700 (Immediate) - DDCN 1700/2019 Retirement of KC65: Colposcopy Clinics: Referrals, Treatments and Outcomes
• CR1699 (Immediate) - DDCN 1699/2019 Retirement of KC53: Adult Screening Programmes - Cervical Screening
• CR1698 (Immediate) - DDCN 1698/2019 Retirement of Edifact Items
• CR1568 (Immediate) - DDCN 1568/2019 Retirement of KC61: Pathology Laboratories: Cervical Screening and Outcome of Referrals
• CR1536 (Immediate) - DDCN 1536/2019 Retirement of KH12: Imaging and Radiological Examinations or Tests in any Part of a Hospital
• CR1499 (Immediate) - DDCN 1499/2019 Retirement of NHS Health Checks Data Set

Release: March 2019

• CR1550 (1 April 2019) - DCB1513 Maternity Services Data Set Version 2
• CR1648 (1 April 2019) - DCB0011 Mental Health Services Data Set Version 4 
• CR1654 (1 April 2019) - DCB0092-2062 Update to Commissioning Data Set Type 011 Emergency Care
• CR1715 (1 April 2019) - DCB0092-2062 Corrigendum to Commissioning Data Set V6-2-2 Type 011 Emergency Care
• CR1717 (1 April 2019) - DCB0092-2062 Corrigendum to Commissioning Data Set V6-2-1 Type 011 Emergency Care
• CR1695 (Immediate) - DDCN 1695/2019 Emergency Care Department Type - Urgent Treatment Centres
• CR1704 (1 April 2019) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update

Release: December 2018

• CR1650 (1 January 2018) - DCB1067 National Workforce Data Set v3.0

Release: November 2018

• CR1631 (Immediate) - DCB3017 Overseas Visitor Charging Category

Release: October 2018

• CR1618 (1 October 2018) - DCB0039 GUMCAD Sexually Transmitted Infection Surveillance System Data Set
• CR1666 (Immediate) - DDCN 1666/2018 Stop Smoking Services Quarterly Data Set

Release: September 2018

• CR1656 (Immediate) - DDCN 1656/2018 NHS Data Model Update
• CR1665 (Immediate) - DDCN 1665/2018 Person Marital Status
• CR1645 (Immediate) - DDCN 1645/2018 Specialised Commissioning: Removal of Default Code YDD82

Release: July 2018

• CR1639 (1 April 2018) - DCB2117 NHS Continuing Healthcare Data Set Update
• CR1630 (4 June 2018) - DCB1567 National Joint Registry Data Set Version 7
• CR1658 (Immediate) - DDCN 1658/2018 Young Offender Institution

Release: May 2018

• CR1653 (Immediate) - DDCN 1653/2018 HIV and AIDS Reporting Data Set Update
• CR1647 (Immediate) - DDCN 1647/2018 Terminology and Classifications Update

Release: April 2018

• CR1636 (Immediate) - DDCN 1636/2018 Department of Health: Change of name
• CR1638 (30 April 2018) - DCB0090 Health and Social Care Organisation Reference Data: Introducing an Application Programming Interface (API)

Release: March 2018

• CR1588 (1 April 2018) - DCB1521 Cancer Outcomes and Services Data Set Version 8
• CR1589 (1 April 2018) - DCB0147 National Cancer Waiting Times Monitoring Data Set Version 2.0
• CR1610 (1 April 2018) - DCB0011 Mental Health Services Data Set Version 3.0
• CR1610 (1 April 2018) - DCB0011 Mental Health Services Data Set Version 3.0
• CR1642 (Immediate) - DDCN 1642/2018 Youth Offenders Institute: Change of name
• CR1635 (Immediate) - DDCN 1635/2018 Edubase: Change of name

Release: January 2018

• CR1633 (Immediate) - DDCN 1633/2017 Introduction of Strategic Data Collection Service (SDCS) and Data Services Platform (DSP)

Release: November 2017

• CR1623 (Immediate) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set
• CR1623 (Immediate) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set
• CR1628 (Immediate) - DDCN 1628/2017 Employment Status

Release: October 2017

• CR1619 (1 October 2017) - DCB1067 National Workforce Data Set Version 2.9
• CR1595 (Immediate) - DCB0155 Stop Smoking Services Quarterly Data Set
• CR1572 (Immediate) - DCB2094 Sexual Orientation
• The October 2017 Release updates the NHS Data Model and Dictionary Help Pages and Demonstrations to reflect the new organisation structure.

Release: September 2017

• CR1587 (1 October 2017) - SCCI1069 Community Services Data Set (CSDS) Version 1.0

Release: July 2017

• CR1555 (Immediate) - SCCI1518 Sexual and Reproductive Health Activity Data Set Changes
• CR1606 (Immediate) - SCCI0011 Mental Health Services Data Set Version 2 Corrigendum

Release: June 2017

• CR1607 (Immediate) - DDCN 1607/2017 Renaming of NHS Commissioning Board Commissioning Region and NHS England Region (Geography)
• CR1604 (Immediate) - DDCN 1604/2017 Introduction of the Data Coordination Board

Release: April 2017

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 October 2017:

• CR1598 (1 October 2017) - SCCI0092-2062 Commissioning Data Set Type 011 Emergency Care

Release: March 2017

• CR1605 (Immediate) - DDCN 1605/2017 NHS Number Status Indicator Code
• CR1594 (Immediate) - DDCN 1594/2017 Technology Reference Data Update Distribution (TRUD)
• CR1564 (01 April 2017) - SCCI1521 Cancer Outcomes and Services Data Set Version 7
• CR1563 (01 April 2017) - SCCI0011 Mental Health Services Data Set Version 2.0
• CR1577 (01 April 2017) - SCCI0084 Introduction of OPCS-4.8

Release: December 2016

• CR1601 (Immediate) - DDCN 1601/2016 Organisation Identifier Data Elements
• CR1600 (Immediate) - DDCN 1600/2016 HES Data Dictionary

Release: November 2016

• CR1442 (01 November 2016) - SCCI1570 Amd 20/2015 HIV and AIDS Reporting Data Set and XML Schema Version 3
• CR1531 (Immediate) - DDCN 1531/2016 Clinical Terminology Update

Release: October 2016

• CR1578 (Immediate) - DDCN 1578/2016 Religious or Other Belief System Affiliation Groups SNOMED CT Subset
• CR1569 (Immediate) - DDCN 1569/2016 NHS Improvement

Release: September 2016

• CR1545 (Immediate) - SCCI0075 and SCCI0076 Updates to the Neonatal Critical Care and Paediatric Critical Care Minimum Data Sets

Release: August 2016

• CR1532 (Immediate) - SCCI0090 Health and Social Care Organisation Reference Data
• CR1583 (Immediate) - DDCN 1583/2016 Introduction of NHS Digital
• CR1575 (Immediate) - DDCN 1575/2016 Introduction of the National Cancer Registration and Analysis Service (NCRAS)
• CR1570 (Immediate) - DDCN 1570/2016 Update to COVER Central Return Data Set

Release: July 2016

• CR1565 (Immediate) - ISB 1561 Retirement of Diabetes Summary Core Data Set ISB 1561

Release: March 2016

• CR1300 (1 April 2016) - SCCI01477 Updates to the National Cancer Waiting Times Monitoring Data Set and introduction of the XML Schema
• CR1412 (1 April 2016) - SCCI0021 Introduction of the International Classification of Diseases (ICD) 10th Revision 5th Edition
• CR1544 (1 April 2016) - SCCI1111 Radiotherapy Data Set - Change of data flow
• CR1549 (1 April 2016) - SCCII0011 Mental Health Services Data Set Version 1.1

Release: February 2016

• CR1517 (1 January 2016) - SCCI1067 Workforce Data Set Version 2.8
• CR1559 (Immediate) - DDCN 1559/2016 Lower Layer Super Output Area (Residence) and ONS Local Government Geography Code (Local Authority District)

Release: December 2015

• CR1514 (1 January 2016) - SCCI0011 Mental Health Services Data Set
• CR1515 (1 January 2016) - SCCI0011 Retirement of Mental Health Standards
• CR1560 (Immediate) - DDCN 1560/2015 Retirement of Data Management and Integration Centre

Release: November 2015

• CR1558 (Immediate) - DDCN 1558/2015 Children and Young People’s Health Services Data Set and Community Information Data Set Inconsistencies
• CR1554 (1 October 2015) - SCCI2026 Corrigendum to CR1494 Female Genital Mutilation Data Set

Release: October 2015

• CR1534 (Immediate) - DDCN 1534/2015 Retirement of Hospital Episode Statistics Cross Reference Tables

Release: September 2015

• CR1521 (Immediate) - SCCI1580 Palliative Care Co-ordination: Core content (Formerly End of Life Care)
• CR1522 (Immediate) - DDCN 1522/2015 Update General Dental Council Registration Number
• CR1530 (Immediate) - ISB 0158 Retirement of Ambulance Services (KA34) Central Return Data Set
• CR1528 (Immediate) - ISB 1568 Retirement of KO41 (A) Hospital and Community Health Service Complaints and KO41 (B) General Practice (including Dental) Complaints Central Return Forms
• CR1551 (Immediate) - ISB 0133 Retirement of HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set and HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set

Release: August 2015

• CR1374 (1 September 2015) - SCCI1510 Community Information Data Set Update
• CR1356 (1 September 2015) - SCCI1069 Children and Young People’s Health Services Data Set Update and XML Schema
• CR1529 (Immediate) - DDCN 1529/2015 Change to the Mechanism for XML Schema Publication and Download
• CR1543 (Immediate) - DDCN 1543/2015 Treatment Function Code: 840 Audiology

Release: July 2015

• CR1475 (Immediate) - SCCI1605 Accessible Information

Release: June 2015

• CR1518 (Immediate) - ISB 092 CDS 6-1 Retirement
• CR1525 (Immediate) - DDCN 1525/2015 Burden Advice and Assessment Service (BAAS)
• CR1524 (Immediate) - DDCN 1524/2015 Updating of Activity Location Type and Source of Admission Attributes
• CR1505 (Immediate) - DDCN 1505/2015 Death Cause Information