Female Genital Mutilation Data Set Overview

Introduction

The Female Genital Mutilation Data Set provides essential information in relation to the female genital mutilation population across England.

The Female Genital Mutilation Data Set is used:

Data may be input immediately using an input screen via the NHS Digital Clinical Audit Platform when female genital mutilation is identified, or data extracts for Patients, can be submitted as a bulk upload on a monthly basis for each ORGANISATION.

CARE CONTACT activities undertaken for female genital mutilation PATIENTS during the REPORTING PERIOD are reported in the data upload.  This includes any attendances at an Out-Patient Clinic led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group TherapyWard Attendances; or any other type of direct PATIENT-facing CARE CONTACT, with an exception to Sexual and Reproductive Health Clinics and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set to the NHS Digital.



SNOMED CT Refset Metadata:

For further details relating to the SNOMED CT Refset Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related findings.

For further details relating to the SNOMED CT Refset Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related procedures.

Data Extract Specification

Description

The Department of Health and Social Care requires all NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set. This requirement is applicable to all CARE PROFESSIONALS in these ORGANISATIONS whenever it has been identified that a woman or young girl has undergone female genital mutilation.

Further information is available on the NHS Digital website at: Female Genital Mutilation Datasets.

Time period

Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Format

Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS Digital Clinical Audit Platform. The data elements should be transmitted in the order specified in the Female Genital Mutilation Data Set.

Transmission

Electronic files must be transmitted to NHS Digital via the Clinical Audit Platform which is a secure web portal.

Connection to the web portal requires registration to the Clinical Audit Platform, which will include the provision of a login account name and password.

Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS Digital website: at Clinical Audit Platform.

Further guidance on the Female Genital Mutilation Data Set can be found on the on the NHS Digital website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

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