Neonatal Critical Care Minimum Data Set Overview

Introduction

The Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

The primary purpose of the Neonatal Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within neonatal critical care. The Neonatal Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of neonatal critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

The scope of the Neonatal Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '13 - Neonatal Intensive Care Unit (Neonatal critical care patients predominate)'.

b) All PATIENTS (excluding Mothers) on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code:

  • 14 - Facility for Babies on a Neonatal Transitional Care Ward
  • 15 - Facility for Babies on a Maternity Ward

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:

01Respiratory support via a tracheal tube (Respiratory support via a tracheal tube provided)
02Nasal Continuous Positive Airway Pressure (nCPAP) (PATIENT receiving nCPAP for any part of the day)
04Exchange Transfusion (PATIENT received exchange transfusion)
05Peritoneal Dialysis (PATIENT received Peritoneal Dialysis)
06Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
07Parenteral Nutrition (PATIENT receiving Parenteral Nutrition (amino acids +/- lipids))
08Convulsions (PATIENT having convulsions requiring treatment)
09Oxygen Therapy (PATIENT receiving additional oxygen)
10Neonatal abstinence syndrome (PATIENT receiving drug treatment for neonatal abstinence (withdrawal) syndrome)
11Care of an intra-arterial catheter or chest drain (PATIENT receiving care of an intra-arterial catheter or chest drain)
12Dilution Exchange Transfusion (PATIENT received Dilution Exchange Transfusion)
13Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
14Tracheostomy cared for by external Carer (PATIENT receiving care of tracheostomy cared for by an external Carer (e.g. parent) not by a NURSE)
15Recurrent apnoea (PATIENT has recurrent apnoea needing frequent intervention, i.e. over 5 stimulations in 8 hours, or resuscitation with IPPV two or more times in 24 hours)
16Haemofiltration (PATIENT received Haemofiltration)
22Continuous monitoring (PATIENT requiring continuous monitoring (by mechanical monitoring equipment) of respiration or heart rate, or by transcutaneous transducers or by Saturation Monitors. Note: apnoea alarms and monitors are excluded as forms of continuous monitoring)
23Intravenous glucose and electrolyte solutions (PATIENT being given intravenous glucose and electrolyte solutions)
24Tube-fed (PATIENT being tube-fed)
25Barrier nursed (PATIENT being barrier nursed)
26Phototherapy (PATIENT receiving phototherapy)
27Special monitoring (PATIENT receiving special monitoring of blood glucose or serum bilirubin measurement at a minimum frequency of more than one per calendar day)
28Observations at regular intervals (PATIENT requiring recorded observations for temperature, heart rate, respiratory rate, blood pressure or scoring for neonatal abstinence syndrome. Recorded observations must be at a minimum frequency of 4 hourly)
29Intravenous medication (PATIENT receiving intravenous medication)
80Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
81Presence of an umbilical venous line
82Continuous infusion of insulin (PATIENT receiving a continuous infusion of insulin)
83Therapeutic hypothermia (PATIENT receiving therapeutic hypothermia)
84PATIENT has a Replogle tube in situ
85PATIENT has an epidural catheter in situ
86PATIENT has an abdominal silo
87Administration of intravenous (IV) blood products
88PATIENT has a central venous or long line (Peripherally Inserted Central Catheter line) in situ
89PATIENT has an indwelling urinary or suprapubic catheter in situ
90PATIENT has a trans-anastomotic tube in situ following oesophageal atresia repair
91PATIENT has confirmed clinical seizure(s) today and/or continuous cerebral function monitoring (CFM)
92PATIENT has a ventricular tap via needle or reservoir today
93PATIENT has a stoma

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Neonatal Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements. 

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

The Secondary Uses Service groups this data into neonatal critical care Healthcare Resource Groups; these are a mandated currency under the National Tariff Payment System. Further guidance can be found on the NHS Digital website at: SCCI0075.