Cancer Outcomes and Services Data Set Overview

The Mandatory, Required, Optional or Not included in the COSDS Message (M/R/O/X) column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes
• X = Not included in the COSDS Message: Cancer Registries obtain the data from another source, or the item is submitted under another Standard and is included here for reference only.

For guidance on submission of the data set, see the Cancer Outcomes and Services Data Set Submission Requirements.

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

Ablative Therapy is a CLINICAL INTERVENTION. 

Ablative Therapy (also called Ablation Therapy) is the removal or destruction of a body part, TISSUE or its function and may be performed by surgery, hormones, drugs, radiofrequency, heat, or other methods.

For further information on Ablative Therapy, see the National Cancer Institute website.For further information on Ablative Therapy, see the National Cancer Institute website.

The Cancer Outcomes and Services Data Set provides a standard for secondary uses information required to support implementation and monitoring of Improving Outcomes: a strategy for cancer. It replaced the existing National Cancer Data Set and the Cancer Registration Data Set.

The standard is required by the Department of Health for the purposes of assessing implementation of the Improving Outcomes: a strategy for cancer (IOSC). The standard also supports local and national comparisons of performance and service activity to enable ORGANISATIONS providing Cancer Services to assess their progress towards implementation of Improving Outcomes: a strategy for cancer (IOSC). Additionally the output will support commissioning and service development through provision of relevant information on service delivery and outcomes.The standard:

• is required by the Department of Health for the purposes of assessing implementation of the Improving Outcomes: a strategy for cancer
• also supports local and national comparisons of performance and service activity to enable ORGANISATIONS providing Cancer Services to assess their progress towards implementation of Improving Outcomes: a strategy for cancer.

Additionally the output will support commissioning and service development through provision of relevant information on service delivery and outcomes.

All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary care. It does not apply to general practice ORGANISATIONS.

The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom Association of Cancer Registries (UKACR) document "Mandatory Registerable Conditions (UKACR Library of Recommendations)".

Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set. There is a phased implementation of these monthly returns from January 2013.

For submission information, see the Cancer Outcomes and Services Data Set Submission Requirements.

Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom Association of Cancer Registries.

While the core and site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS message integrates each core and site specific set of data elements. Documentation provided on the Cancer Outcomes and Services Data Set Message Versions page gives full details of the specification.

For all diagnoses not covered by a site specific data set only, the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Intelligence Network User Guidance. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Intelligence Network User Guidance.

Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Intelligence Network at Cancer Outcomes and Services Dataset.

The Cancer Outcomes and Services Data Set is submitted to a Cancer Registry using the COSDS Message.The Cancer Outcomes and Services Data Set is submitted to a Cancer Registry using the COSDS Message.

Supporting documentation for each version of the message is available from the Cancer Outcomes and Services Data Set Message Versions page.

In addition, further guidance for submissions is provided by the National Cancer Intelligence Network at Cancer Outcomes and Services Dataset.

A Cancer Outcomes and Services Data Set submission must only contain data relating to one ORGANISATION CODE (CODE OF PROVIDER) for one REPORTING PERIOD.

COSDS Submission Header

The COSDS Submission Header contains data items which are used by the Cancer Registry to manage data upon receipt.The COSDS Submission Header contains data items which are used by the Cancer Registry to manage data upon receipt.

The Mandatory, Required or Optional (M/R/O) column indicates the requirements for inclusion of data:

• M = Mandatory: this data element is mandatory, the message will be rejected if this data element is absent.

COSDS Record Identifier

Each record within a COSDS submission must contain a unique identifier, to support data management and error reporting within the Cancer Registry system.Each record within a COSDS submission must contain a unique identifier, to support data management and error reporting within the Cancer Registry system.

The Mandatory, Required or Optional (M/R/O) column indicates the requirements for inclusion of data:

• M = Mandatory: this data element is mandatory, the message will be rejected if this data element is absent.

A Care Trust is a type of ORGANISATION in England and Wales.

Care Trusts were introduced in 2002 to provide better-integrated health and social care. They are set up when the NHS and Local Authorities formally agree to work closely together, usually where it is felt that a closer relationship between health and social care is needed or would benefit local care services.

Care Trusts are set up when the NHS and Local Authorities formally agree to work closely together, usually where it is felt that a closer relationship between health and social care is needed or would benefit local care services.

Care Trusts may carry out a range of SERVICES, including social care, mental health services or community services.

For further information on Care Trusts, see the:For further information on Care Trusts, see the legislation.gov.uk website.

• Department of Health website or
• Office of Public Sector Information (OPSI) website.

For guidance on the Commissioning Data Set Layout, see the Commissioning Data Set Redesign Guidance Notes on the NHS Data Model and Dictionary website.For guidance on the Commissioning Data Set Layout, see the Commissioning Data Set Redesign Guidance Notes on the NHS Data Model and Dictionary website.

For guidance on the Commissioning Data Set Layout, see the Commissioning Data Set Redesign Guidance Notes on the NHS Data Model and Dictionary website.For guidance on the Commissioning Data Set Layout, see the Commissioning Data Set Redesign Guidance Notes on the NHS Data Model and Dictionary website.

Contextual Overview

The Maternity and Children’s Data set including Child and Adolescent Mental Health Services has been developed as a key driver to achieving better outcomes of care for mothers, babies and children. The data set will provide comparative, mother and child-centric data that will include information on incidence and care that can be used to improve clinical quality and service efficiency; and to commission services in a way that improves health and reduces inequalities. The Child and Adolescent Mental Health Services element of the data set will for the first time:

• allow maternal and child health data to be linked so that vital information can be used to improve services
• provide comparative data (demographics, equalities, interventions and outcomes from birth through childhood) so that health services can be directed to those with most need
• improve accountability, making it easier for the public to access comparative information to support them in making decisions about type and place of care
• provide activity data on which to base mandatory tariffs for Child and Adolescent Mental Health Services (CAMHS)
• underpin the improvement of local information systems to meet data set standards
• for example in the case of Attention Deficit Hyperactivity Disorder (ADHD), the data set will provide the first opportunity to link data on a PATIENT’s demographics and where they access services, and a clinical assessment of problems with attention and concentration, with information on the prescribing of a methyl phenidate (e.g. Ritalin).

The Child and Adolescent Mental Health Services Secondary Uses Data Set provides the definitions for data:

• to be lodged in the data warehouse regularly and routinely e.g. monthly. Extracts for Hospital Episode Statistics (HES) and other reports will be taken at prearranged intervals for publication as currently with the process for Commissioning Data Sets;

• to be assembled, compiled and to flow into a secondary uses data warehouse;

• to provide timely, pseudonymised patient-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

This standard is intended to facilitate electronic data recording and reporting but it is not intended to create clinical records for Child and Adolescent Mental Health or to enable other systems to interoperate with other clinical systems.

Submission information 

The Child and Adolescent Mental Health Services Secondary Uses Data Set is collected from NHS funded providers of Child and Adolescent Mental Health Services.

The Bureau Service processes submissions and produces local extracts for provider and commissioner ORGANISATIONS and a national pseudonymised extract for the Health and Social Care Information Centre, for analysis and reporting.

Further guidance

Further guidance has been produced by the Health and Social Care Information Centre and is available at Child and Adolescent Mental Health Services (CAMHS) Secondary Uses Data Set.Further guidance has been produced by the Health and Social Care Information Centre and is available at Child and Adolescent Mental Health Services Data Set.

Contextual Overview

The Maternity and Children’s Data Set has been developed as a key driver to achieving better outcomes of care for mothers, babies and children. The data set will provide comparative, mother and child-centric data that will include information on incidence and care that can be used to improve clinical quality and service efficiency; and to commission services in a way that improves health and reduces inequalities. The child health element of the data set covers all stages of the care pathway across primary, secondary and tertiary sectors from birth until the day before the 19th birthday an/or transition into audit services. The child health element of the data set covers all stages of the care pathway across primary, secondary and tertiary sectors from birth until the day before the 19th birthday and/or transition into adult services. The initial data collection will concentrate on the data required to support the Healthy Child Programme and will for the first time:

• allow maternal and child health data to be linked so that vital information can be used to improve services
• provide comparative data (demographics, equalities, interventions and outcomes from pregnancy through childhood) so that health visiting services can be directed to areas with most need
• provide planners, commissioners and managers with reliable information on service delivery, which can be used to inform future planning and service improvements
• improve accountability, making it easier for the public to access comparative information to support them in making decisions about type and place of care
• record outcomes to contribute to clinical risk management and governance to reduce litigation costs
• underpin the improvement of local information systems to meet data set standards.

Data Collection

The Children and Young People's Health Service Secondary Uses Data Set provides the definitions for data:

• to be lodged in the data warehouse regularly and routinely
• to be assembled, compiled and to flow into a secondary uses data warehouse
• to provide timely, pseudonymised patient-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

Data is expected to be collected from various clinical systems, collated and assembled through the compiler. This standard is intended to facilitate electronic data recording and reporting but it is not intended to create clinical records for Children's and Young People's Health Services or to enable other systems to interoperate with other clinical systems.

Submission Information

For submission information, see the Maternity and Childrens Data Sets Submission Requirements.

Further Guidance

Further guidance has been produced by the Health and Social Care Information Centre and is available on their website at: Children's and Young People's Health Services (CYPHS) Secondary Uses Data Set.

** This is not a demonstration, guidance is available on the new Commissioning Data Set Layout.

Please note that the information contained in the demonstrations was correct at the time of publication.

The tables in this section show the relationship between Hospital Episode Statistics data items and Admitted Patient Care Commissioning Data Set data items, indicating from which Commissioning Data Set Type they are extracted.

Hospital Episode Statistics Cross Reference Tables:

• Commissioning Data Sets Menu

• HES - CDS Data items cross referenced by HES Name - Table 1
• HES - CDS Data items cross referenced by HES Item - Table 2

Hospital Episode Statistics Contact Details:

Hospital Episode Statistics Codes, Classifications and Definitions:
Dept SD2HES
Room 430B
Department of Health
Skipton House
80 London Road
London
SE1 6LW
Tel: 020 7972 5563

Hospital Episode Statistics Processing Enquiries:
Hospital Episode Statistics Help Desk
IBM Global Services
Normandy House
Bunnian Place
Basingstoke
Hampshire
RG21 7EJ
Tel: 01256 344186

HES information and publications are available from:
The Department of Health Website

The Department of Health requires summary details from Primary Care Trusts to monitor the implementation and effectiveness of the Human Papillomavirus (HPV) Immunisation Programme.

The Human Papillomavirus Vaccination Programme for England commenced in September 2008, the first TARGET POPULATION being for females born between 1st September 1995 and 31st August 1996. This is the first HEALTH PROGRAMME STAGE for a routine annual Immunisation Programme for all 12-13 year old females.

Details of the routine and catch-up collections for the Human Papillomavirus Immunisation Programme are available at: Department of Health Key Vaccine Information

It is recommended for the vaccine delivery to be in Schools/Colleges but Primary Care Trusts are responsible for implementing the programme according to their local needs.

Each Primary Care Trust will collect and return data on the females in a particular TARGET POPULATION. Primary Care Trusts are recommended to run a Schools-based programme, but some may choose not to. The ANNUAL TARGET DENOMINATOR (HUMAN PAPILLOMAVIRUS VACCINE) will either be Schools based or non-Schools based.

The Human Papillomavirus vaccine requires 3 separate doses to complete a full course. It is recommended that this full course is given within a 6 month period, but it may be given in a period of up to 12 months. However, to allow for those that missed one or more doses in their TARGET POPULATION year, summary data will be collected every year for each TARGET POPULATION until those PERSONS reach 18 years old.

Although data is collected monthly in the HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set, it is recognised that Primary Care Trusts may not be aware of the number of other females they are responsible for at the start of the HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set campaign year. However by the end of the School Year, Primary Care Trusts will have had opportunity to complete vaccinations for any others they are responsible for and these will be included in the HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set together with the HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set.

The HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set requires information on the number of doses administered as well as the administration LOCATION TYPE CODES.

Collection and Submission of the HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set

• The HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set is the School Year end annual return from Primary Care Trusts.
• The return must be submitted within 20 working days after the previous School Year end of 31st August.
• The data is submitted via a web form on the Health Protection Informatics website
• The data is submitted via a web form on the Health Protection Informatics website.

1. Primary Care Trust, HEALTH PROGRAMME STAGE NUMBER (HUMAN PAPILLOMAVIRUS VACCINE), REPORTING PERIOD and ANNUAL TARGET DENOMINATOR (HUMAN PAPILLOMAVIRUS VACCINE)
2. Doses administered (by each of the three doses)
3. Doses administered by LOCATION TYPE CODE.

The Department of Health requires summary details from Primary Care Trusts to monitor the implementation and effectiveness of the Human Papillomavirus (HPV) Immunisation Programme.

The Human Papillomavirus Vaccination Programme for England commenced in September 2008. The first TARGET POPULATION being for females born between 1st September 1995 and 31st August 1996. This is the first HEALTH PROGRAMME STAGE for a routine annual Immunisation Programme for all 12-13 year old females.

Details of the routine and catch-up collections for the Human Papillomavirus Immunisation Programme are available at: Department of Health Key Vaccine Information 

It is recommended for the vaccine delivery to be in Schools/Colleges but Primary Care Trusts are responsible for implementing the programme according to their local needs.

The Department of Health will provide each Primary Care Trust with a monthly denominator for each TARGET POPULATION. The monthly denominator will be fixed for all monthly surveys for the School Year of the TARGET POPULATION and will be notified to the Primary Care Trust in advance. The denominator will not need to be entered each month on the on-line survey form as it will already be held on the Health Protection Informatics website.

The Human Papillomavirus vaccine requires 3 separate doses to complete a full course. It is recommended that this full course is given within a 6 month period, but it may be given in a period of up to 12 months. However, to allow for those that missed one or more doses in their TARGET POPULATION year, summary data will be collected every year for each TARGET POPULATION until those PERSONS reach 18 years old.

The HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set requires the number of doses administered and information on vaccine supply and usage.

Collection and Submission of the HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set

• The HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set is a monthly return from Primary Care Trusts.
• The data will be collected from Primary Care Trusts every month commencing October 2008.
• The return must be submitted within 10 working days for the previous calendar month.
• The data is submitted via a web form on the Health Protection Informatics website.
• The data is submitted via a web form on the Health Protection Informatics website.

1. Primary Care Trust, HEALTH PROGRAMME STAGE NUMBER (HUMAN PAPILLOMAVIRUS VACCINE), REPORTING PERIOD and ANNUAL TARGET DENOMINATOR (HUMAN PAPILLOMAVIRUS VACCINE)
2. Doses administered (by each of the three doses). Monthly figures are cumulative i.e. the data is always the number of vaccinations from 1st September for that School Year.
3. Vaccine supply, usage and stock levels. These figures are not cumulative - they refer to the month in question only.

The Mixed-Sex Accommodation Data Set collects performance information on a monthly basis from Health Care Providers of NHS funded care, including independent sector and social enterprise/voluntary organisations, on the number of occurrences of breaches of the sleeping accommodation guidance. However the count of occurrences of breaches exclude private and self-funded PATIENTS in NHS Health Care Providers.

A breach occurs at the point a PATIENT is admitted to mixed-sex accommodation or moves to mixed-sex accommodation from Same Sex Accommodation.

Breaches of bathroom accommodation, including situations where a PATIENT must pass through opposite gender areas to reach their own facilities, and no provision of women-only lounges in mental health units, must be recorded at organisation level, and plans put in place to deal with the problem. However these types of breaches are not reported in the Mixed-Sex Accommodation Data Set.

Further guidance on the recognising and reporting of breaches is available on the Department of Health Website.Further guidance on the recognising and reporting of breaches is available on the NHS England Website.

Collection and Submission of the Mixed-Sex Accommodation Data Set

• The Mixed-Sex Accommodation Data Set is a monthly provider based return.
• Provider returns must be submitted by the 7th working day for the previous calendar month.
• The data is submitted via Unify2, the Department of Health online data collection system. Health Care Providers enter their data onto Unify2 using an upload facility.

Note: The first provider submission is due by 12 January 2011 for the breaches that occur in the month of December 2010.

Introduction

The Cancer Reform Strategy (2007) introduced new and changed commitments in terms of service standards for cancer PATIENTS that must be met. A Review of Cancer Waiting Times Standards was carried out by the Department of Health and published alongside Improving Outcomes: A Strategy for Cancer (2011). Following this review it was confirmed in Improving Outcomes: A Strategy for Cancer that: A Review of Cancer Waiting Times Standards was carried out by the Department of Health and published alongside Improving Outcomes: A Strategy for Cancer (2011).  Following this review it was confirmed in Improving Outcomes: A Strategy for Cancer that:

“overall, cancer waiting time standards should be retained. Shorter waiting times can help to ease patient anxiety and, at best, can lead to earlier diagnosis, quicker treatment, a lower risk of complications, an enhanced patient experience and improved cancer outcomes. The current cancer waiting times standards will therefore be retained.”

This updated version of the National Cancer Waiting Times Monitoring Data Set therefore supports the continued management and monitoring of the following waiting times:

• A maximum two week wait from an urgent GP referral for suspected cancer to DATE FIRST SEEN by a specialist for all suspected cancers
• A maximum one month (31-day) wait from diagnosis (CANCER TREATMENT PERIOD START DATE) to First Definitive Treatment for all cancers
• A maximum two month (62-day) wait from urgent GP referral for suspected cancer to First Definitive Treatment for all cancers
• A maximum one month (31-day) wait from urgent GP referral for suspected cancer to First Definitive Treatment for children’s cancers, testicular cancers and acute leukaemia
• A maximum 62-day wait from referral from a cancer Screening Programme to first treatment for all cancers
• A maximum 62-day wait from a CONSULTANTS decision to upgrade the urgency of a PATIENT they suspect to have cancer to first treatment for all cancers
• A maximum 31-day wait for all subsequent treatments for new cases of primary and recurrent cancer where an Anti-Cancer Drug Regimen, surgery or Radiotherapy is the chosen CANCER TREATMENT MODALITY;
• A maximum two week wait from referral for breast symptoms (where cancer is not initially suspected) to DATE FIRST SEEN.

Information Standards Notice ISB 0147 Amd 23/2011 revised the National Cancer Waiting Times Monitoring Data Set published in Data Set Change Notice 20/2008, which previously expanded upon and superseded Data Set Change Notice 22/2002, the original data set used by the Cancer Waiting Times Database for central data capture to support performance management and commissioning of cancer services.

Treatment Scenarios

The treatment scenarios listed on the National Cancer Waiting Times Monitoring Data Set (scenarios two to seven) are to be used to manage the collection of data for all PATIENTS with cancer. Cancer for the purpose of this data collection exercise is defined using the International Classification of Diseases (ICD) codes. Data must be collected and transmitted as specified for all PATIENTS with a PRIMARY DIAGNOSIS within the range C00 to C97 or D05, or a secondary or metastatic disease linked to the original PRIMARY DIAGNOSIS (ICD) within this range (excluding categories relating to non-melanoma skin cancer). A full list of the International Classification of Diseases (ICD) diagnosis codes the Cancer Waiting Times Database will accept is available at: Cancer Waiting Times - Useful Documentation and Links.

Data Set Notation:

• M = Mandatory: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis.  The Department of Health require the data to be submitted 25 working days after the end of each month or quarter.
• M* = Mandatory if applicable: the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis, where collection of the item was applicable to them.  The Department of Health require the data to be submitted 25 working days after the end of each month or quarter.
• O = Optional
• O* = Optional if applicable: These optional fields should only be populated if they relate to the PATIENT PATHWAY identified in scenarios 1 to 7 and the conditions required for their use are met.
• N/A = Not Applicable

Reporting

Cancer Waiting Times Database

The existing Cancer Waiting Times Database has been upgraded to support the collection of data outlined in Information Standards Notice ISB 0147 Amd 23/2011. The revision to the National Cancer Waiting Times Monitoring Data Set outlined in Information Standards Notice ISB 0147 Amd 23/2011 increases the level of granularity and transparency around patient choice delays and improve the reporting of cancer treatment.

Patient level information

• The Trust first seeing a PATIENT in a particular month or quarter is responsible for ensuring that the mandated data fields, up to DATE FIRST SEEN, are complete on the database by the national deadline.
• The Trust first treating or giving subsequent treatment to a PATIENT in a particular month or quarter is responsible for ensuring that the mandated data fields on that PATIENT are complete on the database by the national deadline.
• Data to be complete and validated 25 working days after the REPORTING PERIOD END DATE, either month or quarter
• Specified dates are available at: Cancer Waiting Times - Useful Documentation and Links.

How the data set is transmitted

Information can be entered either manually through the Cancer Waiting Times Record screen or via the upload function. The specification for the upload file is detailed in the 'National Cancer Waiting Times User Manual' available at: Cancer Waiting Times - Useful Documentation and Links.

The upload function will retain the current CSV functionality, however the current NHS standard for the transmission of data sets is XML. The ability to transmit the data to the Cancer Waiting Times Database in XML format will be introduced from Autumn 2012 with the current CSV upload function being discontinued from Autumn 2013 by Information Standards Notice ISB 0147 Amd 6/2012.

Security and Confidentiality

Security and confidentiality information to accompany the collection of this information is available at: Cancer Waiting Times - Useful Documentation and Links.

Further guidance

Further guidance has been produced by the Department of Health and is available at: Cancer Waiting Times - Useful Documentation and Links.

Any additional queries regarding the National Cancer Waiting Times Monitoring Data Set should be addressed to CANCER-WAITS@dh.gsi.gov.uk.

The National Health Service Act 2006 received Royal Assent on 8 November 2006 and came into effect on 1 March 2007.

Most health legislation made since 1977 has been summarised within three Acts of Parliament, of which the National Health Service Act 2006 is one.The National Health Service Act 2006 was significantly altered by the Health and Social Care Act 2012.

The Acts are:For further information on the:

• The National Health Service Act 2006;
• The National Health Service (Wales) Act 2006;
• The National Health Service (Consequential Provisions) Act 2006.
• National Health Service Act 2006, see the legislation.gov.uk website
• Health and Social Care Act 2012, see the Department of Health part of the gov.uk website.

The National Health Service Act 2006 contains legislation on areas such as "Private healthcare" etc.

For further information on the National Health Service Act 2006, see the Department of Health website.

The Department of Health introduced the policy document 'The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care' in 2007 to establish a consistent and standardised guide to implementing the delivery of continuing care.

Continuing care is care provided over an extended period of time, to a PERSON aged 18 or over, to meet physical or mental health needs that have arisen as a result of disability, accident or illness.

Further clarification can be found at the Department of Health website: The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care.Further clarification can be found at the Department of Health part of the gov.uk website at: National framework for NHS continuing healthcare and NHS funded nursing care. 

In order to monitor the implementation and effectiveness of the Framework, the Department of Health has introduced a mandatory collection which requires quarterly figures to report the eligibility for and provision of NHS CONTINUING HEALTHCARE during the REPORTING PERIOD.

The NHS Continuing Healthcare Quarterly Central Return Data Set should be submitted centrally via the Omnibus Survey system maintained by the Health and Social Care Information Centre.

Further information can be found on the Health and Social Care Information Centre website.

The collection includes:

• PERSONS aged 18 or over, receiving 100% NHS CONTINUING HEALTHCARE and recognised as eligible to receive NHS CONTINUING HEALTHCARE due to a primary health need under the guidelines of The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care. 
• PERSONS aged 18 or over, receiving 100% NHS CONTINUING HEALTHCARE and recognised as eligible to receive NHS CONTINUING HEALTHCARE due to a primary health need under the guidelines of National framework for NHS continuing healthcare and NHS funded nursing care. 
• PERSONS still recognised as eligible under the former Strategic Health Authorities eligibility criteria. This also includes PERSONS retrospectively identified as having a primary health need under the guidelines of the National Framework, that is for periods of care from October 1st 2007 onwards.
• A PERSON covered by Section 117 of the Mental Health Act 1983, as amended by the Mental Health Act 2007, who is receiving or is recognised as eligible to receive NHS CONTINUING HEALTHCARE for a primary health need that is not related to their mental health condition. Note: PERSONS covered by Sections 2, 3, 17 or 117 of the Mental Health Act 1983, as amended by the Mental Health Act 2007 are excluded.

The collection excludes:

• PERSONS identified retrospectively as having a primary health need for any period of care prior to October 1st 2007.
• PERSONS receiving either 100% or part NHS funding for NHS CONTINUING HEALTHCARE through other NHS funding streams.
• PERSONS receiving temporary 100% NHS funding for NHS CONTINUING HEALTHCARE , pending completion of a decision of eligibility to receive NHS CONTINUING HEALTHCARE.

The Department of Health introduced the policy document 'The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care' in 2007 to establish a consistent and standardised guide to implementing the delivery of continuing care.

Continuing care is care provided over an extended period of time, to a PERSON aged 18 or over, to meet physical or mental health needs that have arisen as a result of disability, accident or illness.

Further clarification can be found at the Department of Health websites:Further clarification can be found at the Department of Health part of the gov.uk website at:

• The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care and
• NHS-funded nursing care practice guide.
• National framework for NHS continuing healthcare and NHS funded nursing care and
• NHS-funded Nursing Care Practice Guide.

In order to monitor the implementation and effectiveness of the Framework, the Department of Health has introduced a mandatory collection which requires an annual figure to report the provision of NHS FUNDED NURSING CARE, at the end of the REPORTING PERIOD.

The NHS Funded Nursing Care Annual Central Return Data Set should be submitted centrally via the Omnibus system maintained by the Health and Social Care Information Centre.

Further information can be found on the Health and Social Care Information Centre website.

Reference Costs are the average cost to the NHS of providing a defined service in a given financial year. NHS Health Care Providers are mandated to provide annual reference cost data (for a wider range of services) to the Department of Health. Reference Costs have been collected annually since 1998.

There are many uses of reference cost data, for example, they are used to underpin the Payment by Results National Tariff, Programme Budgeting analysis and are also used by the NHS to performance manage and benchmark their services.

For further information on Reference Costs, see the Department of Health website.For further information on Reference Costs, see the Department of Health part of the gov.uk website.

Release: September 2013

• CR1348 (1 October 2013) - ISB 1597 Amd 35/2012 Breast Screening Programmes Data Set (KC63 and KC62)
• CR1403 (Immediate) - DDCN 1403/2013 Religious or Other Belief System Affiliation
• CR1384 (Immediate) - DDCN 1384/2013 Health and Social Care Information Centre Rebranding of XML Schemas
• CR1397 (Immediate) - DDCN 1397/2013 Retired Main Specialty Codes

Release: July 2013

• CR1377 (Immediate) - ISB 0105 Retirement of Accident and Emergency Quarterly Monitoring Data Set (QMAE)

Release: May 2013

• CR1363 (Immediate) - ISB 1067 Amd 43/2012 National Workforce Data Set Version 2.6
• CR1382 (Immediate) - DDCN 1382/2013 National Renal Data Set amendment
• CR1381 (Immediate) - DDCN 1381/2013 Healthcare Resource Groups
• CR1235 (1 June 2013) - ISB 1588 Amd 11/2012 Accident and Emergency Clinical Quality Indicators

Release: April 2013

• CR1372 (Immediate) - DDCN 1372/2013 Organisation Update: April 2013
• CR1369 (Immediate) - DDCN 1369/2013 Organisation Codes and Organisation Types
• CR1347 (1 April 2013) - ISB 1521 Amd 40/2012 Updates to the Cancer Outcomes and Services Data Set and XML Schema

Release: March 2013

• CR1364 (Immediate) - DDCN 1364/2013 Operating Theatre
• CR1335 (1 April 2013) - ISB 1593 Amd 27/2012 Venous Thromboembolism Risk Assessment Data Set
• CR1340 (1 April 2013) - ISB 0090 Amd 37/2012 Organisation Data Service - Non-Legislative Organisations
• CR1321 (1 April 2013) - ISB 0011 Amd 25/2012 Mental Health Minimum Data Set version 4.1

Release: February 2013

• CR1336 (Immediate) - DDCN 1336/2013 XML Schema Constraint Pages
• CR1362 (Immediate) - DDCN 1362/2013 Update to Organisations in the NHS Data Model and Dictionary
• CR1246 (Immediate) - DDCN 1246/2013 Guidance for Merging Organisations
• CR1345 (Immediate) - DDCN 1345/2013 e-Government Interoperability Framework (e-GIF) and Government Data Standards Catalogue
• CR1354 (Immediate) - DDCN 1354/2013 Treatment Function Code - Well Babies

Release: December 2012

• CR1155 (Immediate) - ISB 1567 Amd 12/2011 National Joint Registry Data Set Version 5
• CR1324 (1 December 2012) - ISB 1067 Amd 23/2012 Workforce Data Set Version 2.5
• CR1196, CR1287 and CR1195 (1 January 2013) - ISB 1521 Amd 64/2010 Cancer Outcomes and Services Data Set, Cancer Outcomes and Services Data Set Message and Retirement of Cancer Registration Data Set and National Cancer Data Set

The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

• CR1337 (1 April 2013) - ISB 1072 Amd 30/2012 Update to Child and Adolescent Mental Health Services Secondary Uses Data Set

Release: November 2012

• CR1166, CR1167 and CR1306 (1 November 2012) - ISB 0092 Amd-16-2010 Commissioning Data Set Version 6-2, Commissioning Data Set XML Message Version 6-2 and Retirement of CDS 6-0
• CR1305 (1 April 2013) - ISB 0092 Amd 06/2011 Allied Health Professions Referral to Treatment (AHP RTT) Update - CDS 6-2
• CR1286 (1 November 2012) - ISB 0028 Amd 17/2012 Treatment Function Codes Update
• CR1343 (Immediate) - DDCN 1343/2012 Change of name for NHS Commissioning Board Authority
• CR1342 (Immediate) - DDCN 1342/2012 Overseas Visitors Update
• CR1341 (Immediate) - DDCN 1341/2012 Discharge Default Code Descriptions
• CR1323 (Immediate) - National Cancer Waiting Times Monitoring Data Set Update for "Delay Reason To Treatment For Cancer"

CR1323 is a corrigendum to CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set published in the June 2012 release

The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

• CR1231 and CR1288 (1 April 2013) - ISB 1570 Amd 164/2010 HIV and AIDS Reporting Data Set and HIV and AIDS Related Data Set Message

Release: September 2012

• CR1103 (Immediate) - ISB 0066 Amd 43/2010 Renal Data Set - Data Item Addition, Changes and Deletions
• CR1334 (Immediate) - DDCN 1334/2012 Psychology Definitions
• CR1331 (Immediate) - DDCN 1331/2012 Activity Date Time Type
• CR1329 (Immediate) - DDCN 1329/2012 Change of name for "Health and Social Care Information Centre"

Release: August 2012

• CR1326 (Immediate) - DDCN 1326/2012 Health and Care Professions Council
• CR1241 (Immediate) - DDCN 1241/2012 NHS dictionary of medicines and devices
• CR1292 (Immediate) - ISB 1549 Amd 4/2011 and DDCN 1292/2012 Deprecation and withdrawal of version 3.2 of the Acute Myocardial Infarction Data Set and subsequent retiring of the Data Set from the NHS Data Model and Dictionary

Release: June 2012

• CR1314 (Immediate) - DDCN 1314/2012 Reasonable Offer Update
• CR1282 (29 June 2012) - ISB 0090 Amd 36/2011 Independent Sector Healthcare Provider (ISHP) Codes extended for ISHPs and Sites
• CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set

Release: May 2012

• CR1215 (1 June 2012) - ISB 1067 Amd 30/2011 National Workforce Data Set

  The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

• CR1028 (1 April 2013) - ISB 1069 Amd 14/2012 Children and Young People's Health Services Data Set
• CR1029 (1 April 2013) - ISB 1072 Amd 12/2012 Child and Adolescent Mental Health Services (CAMHS) Data Set
• CR1104 (1 April 2013) - ISB 1513 Amd 13/2012 Maternity Secondary Uses Data Set

Release: March 2012

• CR1242 (Immediate) - DDCN 1242/2012 Retirement of Mental Health Minimum Data Set Version 3
• CR1238 and CR1276 (1 April 2012) - ISB 1577 Amd 10/2011 Diagnostic Imaging Data Set and Diagnostic Imaging Data Set Message v 1-0
• CR1290 (Immediate) - DDCN 1290/2012 Data Set Notation
• CR1263 (Immediate) - ISB 0090 Amd 5/2012 Health and Social Care Bill Changes
• CR1255 (31 March 2012) - ISB 1576 Amd 08/2011 Quarterly Bed Availability and Occupancy Data Set
• CR1295 (Immediate) - Retirement of old Commissioning Data Set messages
  The Information Standards Board for Health and Social Care have been involved in the redesign and retirement of the old Commissioning Data Set Pages, however a formal Information Standards Notice (ISN) will not be published as there are no changes to data standards.

Release: January 2012

• CR1285 (Immediate) - DDCN 1285/2012 Elective Admission Type
• CR1252 (Immediate) - DDCN 1252/2011 Geographic Area Changes

Release: November 2011

• CR1264 (Immediate) - ISB 1077 Amd 3/2012 Automatic Identification and Data Capture (AIDC) for Patient Identification Data Set
• CR1274 (Immediate) - DDCN 1274/2011 CDS Prime Recipient Identity Update

  The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

• CR1265 (1 April 2012) - ISB 1520 Amd 29/2011 Changes to the Improving Access to Psychological Therapies Data Set

Release: October 2011

• CR1271 (Immediate) - DDCN 1271/2011 Commissioning Data Set Addressing Grid Update
• CR1268 (Immediate) - DDCN 1268/2011 Sexual Orientation Code

• The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

• CR1158 and CR1260 (1 April 2012) - ISB 1533 Amd 63/2010 Systemic Anti-Cancer Therapy Data Set and Systemic Anti-Cancer Therapy Data Set Message Schema

  The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

• CR1270 (1 July 2012) - ISB 1080 Amd 25/2011 Amendments to NHS Health Check Data Set
• CR1250 (1 July 2012) - ISB 1080 Amd 25/2011 NHS Health Checks Data Set Message Schema Version 2.0.0

Release: August 2011

• CR1232 (Immediate) - ISB 0034 Amd 26/2006 Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT) - NHS Data Model and Dictionary Overview
• CR1222 (1 April 2012) - ISB 0021 Amd 86/2010 Introduction of the International Classification of Diseases Tenth Revision 4th Edition
• CR1190 (1 September 2011) - ISB 1538 Amd 131/2010 Chlamydia Testing Activity Data Set
• CR1188 (Immediate) - Amd 85/2010 Genitourinary Medicine Clinic Activity Data Set (GUMCAD) Extension to include Enhanced Sexual Health Services (ESHS)

The following data set is initially being introduced for local use only. A future Information Standards Notice will be published to notify providers and system suppliers of the requirement to flow the data set nationally:

• CR1105 (1 April 2012) - ISB 1510 Amd 25/2010 Community Information Data Set

Release: July 2011

• CR1249 (Immediate) - DDCN 1249/2011 General Pharmaceutical Council Registration Changes

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

• CR1148 (1 July 2012) - ISB 1080 Amd 129/2010 NHS Health Checks Data Set

Release: June 2011

• CR1256 (Immediate) - DDCN 1256/2011 School Definitions
• CR1117 (26 August 2011) - ISB 0090 Amd 94/2010 Organisation Data Service Identification Codes for Local Authorities in England and Wales
• CR1251 (Immediate) - DDCN 1251/2011 Change to the Format/Length of Weekly Hours Worked
• CR1243 (Immediate) - DDCN 1243/2011 National Interim Clinical Imaging Procedure (NICIP) Code Set

Release: April 2011

• CR1154 (1 April 2011) - ISB 0011 Amd 87/2010 Mental Health Minimum Data Set Version 4.0
• CR1234 (Immediate) - DDCN 1234/2011 Technology Reference Data Update Distribution Service (TRUD)
• CR1168 (Immediate) - ISB 0097 Amd 140/2010 Genitourinary Medicine Access Monthly Monitoring Data Set Amendments - Removal of Human Immunodeficiency Virus data

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

• CR1050 (1 April 2012) - ISB 1520 Amd 51/2010 Improving Access to Psychological Therapies Data Set

Release: March 2011

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1224 (1 April 2011) - ISB 0092 Amd 02/20110 Commissioning Data Set Schema Version 6-1-1
• CR1223 (Immediate) - DDCN 1223/2011 Updates to Family Planning References
• CR1225 (Immediate) - DDCN 1225/2011 Practitioners with Special Interests
• CR1216 (1 April 2011) - ISB 0028 Amd 170/2010 Changes to Treatment Function Codes
• CR1203 (1 April 2011) - ISB 0084 Amd 150/2010 Introduction of OPCS Classification of Interventions and Procedures Version 4.6

Release: January 2011

• CR1116 (1 April 2010) - ISB 0003 Amd 79/2010 Immunisation Programmes Activity Data Set (KC50)
• CR1112 (1 April 2010) - ISB 1511 Amd 26/2010 NHS Continuing Healthcare and NHS Funded Nursing Care
• CR1068 (Immediate) - ISB 0133 Amd 161/2010 Change To Central Return: Human Papillomavirus (HPV) Immunisation Programme - Vaccine Monitoring Minimum Data Set
• CR1211 (Immediate) - DDCN 1211/2010 Commissioning Data Set Addressing Grid / Organisation Code (Code of Commissioner) Update

Release: December 2010

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1175 (1 April 2011) - ISB 1518 Amd 166/2010 Changes to Sexual and Reproductive Health Activity Data Set
• CR1198 (Immediate) - ISB 1067 Amd 165/2010 National Workforce Data Set
• CR1207 (01 December 2010) - ISB 1573 Amd 168/2010 Mixed-Sex Accommodation
• CR1149 (01 January 2011) - ISB 0139 Amd 99/2010 GUMCAD: Change to Genitourinary (GU) Episode Types

Release: November 2010

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1119 (Immediate) - DDCN 1119/2010 Organisation Codes Update 
• CR1192 (Immediate) - DDCN 1192/2010 Change of name for "Health Solution Wales"
• CR1199 (Immediate) - DDCN 1199/2010 General Pharmaceutical Council and Royal Pharmaceutical Society of Great Britain Update
• CR1189 (Immediate) - DDCN 1189/2010 National Institute for Health and Clinical Excellence
• CR1187 (Immediate) - DDCN 1187/2010 Introduction of the Department for Education

Release: September 2010

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1128 (Immediate) - DDCN 1128/2010 Changes to reporting procedures for Overseas Visitors from the European Economic Area and Switzerland
• CR1173 (Immediate) - DDCN 1173/2010 Care Quality Commission Update
• CR1143 (Immediate) - DDCN 1143/2010 General Pharmaceutical Council
• CR1061 (1 October 2010) - ISB 0092/2010 CDS Type 20: Out-patient: Retirement of Default Codes for Out-patient Procedures
• CR1133 (Immediate) - ISB 00289/2010 National Specialty List

Release: August 2010

• The August 2010 Release introduces the NHS Data Model and Dictionary Help Pages.

Release: July 2010

Information Standards Notices and Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1134 (Immediate - ISB 1067/2010 Amd 109/2010 National Workforce Data Set
• CR1082 (Immediate) - ISB 0153/2010 Critical Care Minimum Data Set
• CR1121 (Immediate) - DSCN 17/2010 Retirement of Data Standard KC60 Central Return

Release: May 2010

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR957 (Immediate) - DSCN 19/2010 Central Returns: KA34 Ambulance Services
• CR1069 (Immediate) - Redesign of the Commissioning Data Set Pages
  The Information Standards Board for Health and Social Care have been involved in the redesign of the Commissioning Data Set Pages and are satisfied that it meets the requirements of the service, however a formal Information Standards Notice (ISN) will not be published as there are no changes to data standards.

Release: March 2010

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1123 (1 April 2010) - DSCN 18/2010 Information Standards Notice (ISN)
• CR1139 (Immediate) - DSCN 16/2010 Person Weight
• CR1130 (Immediate) - DSCN 15/2010 Change of name for "The NHS Information Centre for health and social care"
• CR1013 (April 2010) - DSCN 14/2010 Sexual and Reproductive Health Activity Dataset (SRHAD)
• CR1125 (Immediate) - DSCN 13/2010 NHS Data Model and Dictionary Maintenance Update - Policy Definitions
• CR1122 (Immediate) - DSCN 11/2010 Changes to Family Planning References

Release: January 2010

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1115 (Immediate) - DSCN 10/2010 Data Standards: Updating of e-Government Interoperability Framework and Government Data Standards Catalogue References

Release: December 2009

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1100 (Immediate) - DSCN 25/2009 NHS Prescription Services Update
• CR1045 (1 December 2009) - DSCN 17/2009 Referral to Treatment Clock Stop Administrative Event
• CR1003 (1 December 2009) - DSCN 16/2009 Commissioning Data Sets: Mandation of 18 Week Referral To Treatment Data Items

Release: November 2009

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1113 (Immediate) - DSCN 24/2009 Information Standards Board for Health and Social Care Update
• CR1087 (Immediate) - DSCN 23/2009 Health Professions Council Update
• CR1081 (Immediate) - DSCN 22/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
• CR1019 (27 November 2009) - DSCN 21/2009 Data Standards: Organisation Data Service (ODS) - Optical Sites and Optical Headquarters
• CR1034 (27 November 2009) - DSCN 20/2009 Data Standards: Organisation Data Service (ODS) - Care Homes in England and Wales and their Headquarters

Release: September 2009

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1065 (1 October 2009) - DSCN 15/2009 Data Standards: Organisation Data Service, Local Health Boards

Release: June 2009

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1014 (1 June 2009) - DSCN 13/2009 Religious and Other Belief System Affiliation
• CR1074 (Immediate) - DSCN 12/2009 Data Standards: Care Quality Commission
• CR1056 (Immediate) - DSCN 11/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
• CR1072 (1 December 2009) - DSCN 10/2009 Data Standards: National Radiotherapy Data Set
• CR1073 (Immediate) - DSCN 09/2009 Central Returns: Diagnostic Waiting Times and Activity Data Set
• CR1066 (Immediate) - DSCN 08/2009 Data Standards: NHS Prescription Services and NHS Dental Services
• CR1047 (1 April 2011) - DSCN 07/2009 Data Standards: Diabetic Retinopathy Screening Dataset v3.6 
• CR1059 (Immediate) - DSCN 06/2009 Data Standard: National Workforce Data Set v2.1
• CR914 (April 2008 (Retrospective)) - DSCN 05/2009 NHS Stop Smoking Services Quarterly Monitoring Return
• CR899 (Immediate) - DSCN 02/2009 NHS Data Model and Dictionary Maintenance Update

Release: March 2009

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1001 (1 April 2009) - DSCN 03/2009 Introduction of Commissioning Data Set Schema Version 6-1 (2008-04-01) and update to Commissioning Data Set Schema Version 6-0 (2008-01-14)
• CR976 (31 March 2009) - DSCN 26/2008 Subject: KP90 - Admissions, Changes in Status and Detentions under the Mental Health Act
• CR1017 (1 April 2009) - DSCN 25/2008 Critical Care Minimum Data Set
• CR1002 (1 April 2009) - DSCN 24/2008 Data Standards: Introduction of Commissioning Dataset Version 6.1
• CR1016 (Immediate) - DSCN 23/2008 4 Byte Version of the Read Codes - Withdrawal

Release: December 2008

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1022 (1 January 2009) - DSCN 29/2008 Data Standards: 18 Weeks Referral to Treatment (RTT) Time, Performance Sharing
• CR901 (Immediate) - DSCN 28/2008 Removal of references to EDIFACT and the NHS Wide Clearing Service (NWCS) 
• CR843 (1 April 2009) - DSCN 22/2008 Data Standards: National Radiotherapy Data Set
• CR1011 (1 January 2009) - DSCN 20/2008 Data Standards: National Cancer Waiting Times Minimum Data Set 

Release: November 2008

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1026 (3 November 2008) - DSCN 21/2008 Information Standard: Mental Health Act 2007 Mental Category

Release: August 2008

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR1018 (Immediate) - DSCN 19/2008 Data Standards: Change of Name for National Administrative Code Services (NACS) to Organisation Data Service (ODS)
• CR956 (1 September 2008) - DSCN 18/2008 Central Return: Human Papillomavirus (HPV) Immunisation Programme, Vaccine Monitoring Minimum Dataset
• CR861 (Immediate) - DSCN 16/2008 Central Return:  Hospital and Community Services Complaints and General Practice (including Dental) Complaints - KO41(a) and KO 41(b)
• CR964 (Immediate) - DSCN 14/2008 Central Return: 18 Weeks ‘Adjusted’ Referral to Treatment (RTT) Dataset
• CR965 (Immediate) - DSCN 13/2008 Data Standards: Organisation Data Service (ODS) - Change to the Default Codes Set to Support Changes to GMS Contract
• CR879 (Immediate) - DSCN 12/2008 Data Standards: Quarterly Monitoring: Cancelled Operations Data Set (QMCO)

Release: May 2008

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR502 (Immediate) - DSCN 10/2008 Data Standards: National Workforce Data Definitions (v2.0)
• CR910 (1 April 2008) - DSCN 08/2008 Data Standards: National Direct Access Audiology Patient Tracking List (PTL) and Waiting Times (WT) data sets
• CR900 (Immediate) - DSCN 07/2008 Data Standards: Inter-Provider Transfer Administrative Minimum Data Set
• CR934 (1 April 2008) - DSCN 06/2008 Data Standards: Mental Health Minimum Data Set (version 3.0)
• CR935 (Immediate) - DSCN 05/2008 Data Standards: 18 Weeks Rules Suite
• CR925 (1 September 2008) - DSCN 04/2008 Genitourinary Medicine Clinic Activity Data Set Change to an Information Standard
• CR942 (1 June 2008) - DSCN 03/2008 General Practice and General Medical Practitioner (GMP) - changes resulting from the introduction of the General Medical Services (GMS) Contract

Release: February 2008

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR812 (Immediate) - DSCN 01/2008 Central Return: Diagnostics Waiting Times Census Data Set
• CR881 (31 December 2007) - DSCN 42/2007 Central Return: Referral To Treatment Summary Patient Tracking List
• CR904 (Immediate) - DSCN 41/2007 Data Standards: Admission Intended Procedure Update
• CR824 (1 February 2008) - DSCN 39/2007 Data Standards: 48 Hour Genitourinary Medicine Access Monthly Monitoring (GUMAMM)

Release: November 2007

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR919 (Immediate) - DSCN 38/2007 Data Standards: Mental Health Minimum Data Set Schema
• CR814 (1 April 2008) - DSCN 37/2007 Data Standards: Introduction of Mental Health Minimum Data Set version 2.1
• CR930 (31 December 2007) - DSCN 35/2007 Data Standards: A correction to the version 6 Commissioning Data Set schema
• CR834 (Immediate) - DSCN 34/2007 Data Standards: Referral Request Received Date
• CR875 (Immediate) - DSCN 33/2007 Data Standards: National Administrative Codes Service: Introduction of codes for the new Pan SHAs
• CR880 (Immediate) - DSCN 29/2007 Data Standards: Amendments to Doctor Index Number (DIN) Description

Release: August 2007

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR845 (Immediate) - DSCN 28/2007 Data Standards: Treatment Function Code (Referral to Treatment Period)
• CR831 (1 October 2007) - DSCN 27/2007 Data Standards: Update to Commissioning Data Set XML Schema v5
• CR825 (1 October 2007) - DSCN 16/2007 Data Standards: Source of Referral for Outpatients (18 Weeks)

Release: June 2007

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR799 (31 December 2007) - DSCN 18/2007 Data Standards: Introduction of Commissioning Data Set Version 6
• CR833 (Immediate) - DSCN 17/2007 Data Standards: Introduction of Commissioning Data Set validation table
• CR801 (Immediate) - DSCN 15/2007 Data Standards: Cover of Vaccination Evaluated Rapidly (COVER) Return

Release: May 2007

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR800 (31 December 2007) - DSCN 14/2007 Commissioning Data Set Schema Version 6-0
• CR856 (1 October 2007) - DSCN 13/2007 Data Standards: Discharge Ready Date
• CR869 (Immediate) - DSCN 12/2007 Data Standards: Update to Clinical Coding Introduction
• CR827 (1 October 2007) - DSCN 09/2007 Data Standards: Earliest Reasonable Offer Date
• CR817 (1 October 2007) - DSCN 08/2007 Data Standards: Introduction of Age into Commissioning Data Sets
• CR849 (May 2007) - DSCN 07/2007 National Administrative Codes Service: Introduction of new identification codes for Dental Consultants
• CR822 (Immediate) - DSCN 06/2007 Data Standards: Update to Organisation Codes
• CR850 (Immediate) - DSCN 05/2007 National Administrative Codes Service: Amendments to Default Codes
• CR786 (1 April 2007) - DSCN 04/2007 Quarterly Monitoring Accident and Emergency Services (QMAE) Central Return

Release: February 2007

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR811 (Immediate) - DSCN 03/2007 Diagnostic Waiting Times and Activity
• CR826 (1 October 2007) - DSCN 02/2007 Extension of Treatment Function to Support the Measurement of 18 Week Referral to Treatment Periods
• CR813 (1 April 2007) - DSCN 01/2007 Paediatric Critical Care Minimum Data Set
• CR768 (1 January 2007) - DSCN 18/2006 Changes to the NHS Data Dictionary to support the measurement of 18 week referral to treatment periods
• CR798 (6 November 2006) - DSCN 19/2006 Commissioning Data Set (CDS) Version 5 XML Message Schema
• CR776 (1 October 2006) - DSCN 05/2006 Data Standards: Accident and Emergency Enhancements to Investigation and Treatment Codes

Release: September 2006

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR795 (31 October 2006) - DSCN 22/2006 Organisation Codes / Organisation Site Codes
• CR792 (1 April 2007) - DSCN 15/2006 Neonatal Critical Care
• CR719 (1 April 2006) - DSCN 09/2006 Measuring and Recording of Waiting Times
• CR791 (1 April 2007) - DSCN 13/2006 Priority Type
• CR774 (1 September 2006) - DSCN 12/2006 Person Marital Status

Release: May 2006

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR764 (1 April 2006) - DSCN 08/2006 Diagnostics waiting times and activity
• Correction to menu structure to include Critical Care Minimum Data Set

Release: April 2006

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR608 (1 October 2006) - DSCN 07/2006 Introduction of Commissioning Data Set Version 5 and its associated XML schema into the NHS Data Dictionary.
• CR756 (1 September 2005) - DSCN 19/2005 PbR Commissioning for Out of Area Treatments (OATs) and Charge-Exempt Overseas Visitors
• CR724 (1 April 2006) - DSCN 13/2005 Critical Care Minimum Data Set
• CR754 (1 April 2006) - DSCN 17/2005 Treatment Function and Main Specialty Code Revisions
• CR763 (1 April 2006) - DSCN 20/2005 New Treatment Functions for therapy services and anticoagulant service
• CR767 (Immediate) - DSCN 02/2006 Referral Request Received Date
• CR690 (1 September 2005) - DSCN 16/2005 Marital Status

Release: August 2005

Data Set Change Notices incorporated into the NHS Data Model and Dictionary:

• CR555 (1 April 2005) - DSCN 11/2005 Data Standards: COVER - Hepatitis B immunisation for babies
• CR715 (Immediate) - DSCN 10/2005 Data Standards: Treatment Function Codes - correction and clarification of names and descriptions
• CR706 (1 April 2005) - DSCN 09/2005 Data Standards: Cancer Registration Data Set
• CR691 (1 July 2005) - DSCN 06/2005 Data Standards: NSCAG Commissioner Code

For all Information Standards Notices and Data Set Change Notices, see the Information Standards Board for Health and Social Care Website.

NHS CONTINUING HEALTHCARE records whether a PERSON is eligible to receive or is receiving NHS CONTINUING HEALTHCARE.

NHS CONTINUING HEALTHCARE is a package of continuing care that is arranged and funded solely by the NHS. Continuing care is care provided over an extended period of time, to a PERSON aged 18 or over, to meet physical or mental health needs that have arisen as a result of disability, accident or illness.

Further clarification can be found at the Department of Health website: "The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care".Further clarification can be found at the Department of Health part of the gov.uk website at: National framework for NHS continuing healthcare and NHS funded nursing care.

NHS FUNDED NURSING CARE records whether a PERSON is receiving NHS FUNDED NURSING CARE.

NHS FUNDED NURSING CARE is the funding provided by the NHS to Care Homes with nursing care, to support the provision of nursing care by a registered NURSE for those assessed as eligible.

Further clarification can be found at the Department of Health websites: "The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care" and "NHS-funded nursing care practice guide".Further clarification can be found at the Department of Health part of the gov.uk website at::

The status of a PATIENT who is an Overseas Visitor.

Note: PATIENTS charged under the National Health Service (Charges to Overseas Visitors) Regulations 1989 (as amended by Statutory Instrument) are NHS  charged PATIENTS and should not be confused with private PATIENTS. Unlike private PATIENTS, NHS Charged PATIENTS are liable to pay for their healthcare even where an undertaking to pay has not been obtained. Alternatively, the PATIENT can opt to be treated as a private PATIENT.

Health Care Providers should recover the full cost of the healthcare given to a  PATIENT who is an Overseas Visitor.  To calculate the cost, trusts follow Non-Contract Activity guidance, which can be found on the Department of Health website.  To calculate the cost, trusts follow Non-Contract Activity guidance, which can be found on the NHS England website.

The status of an APPOINTMENT SLOT.

An APPOINTMENT SLOT can be booked to one APPOINTMENT or to more than one APPOINTMENT but it should be of one type only. The APPOINTMENT SLOT TYPE indicates the type of slot. This is to allow for a group of PATIENTS to share the same APPOINTMENT SLOT for group related care or therapy.

For a slot which can be booked to more than one APPOINTMENT, the APPOINTMENT SLOT can be allocated to one or more APPOINTMENT OFFER. When an offer is accepted by, or on behalf of a PATIENT the slot becomes booked but still available for booking and allocation for any other offered appointment.

APPOINTMENT SLOT STATUS should be used in conjuction with APPOINTMENT SLOT TYPE and APPOINTMENT OFFER SLOT STATUS to ensure correct allocation and booking of APPOINTMENTS.

Any cancelled APPOINTMENT SLOTS, the APPOINTMENT SLOT STATUS should revert to not booked or no longer available.Any cancelled APPOINTMENT SLOTS, the APPOINTMENT SLOT STATUS should revert to not booked or no longer available.

National Codes:

The sequence of numbers, letters or characters that constitute a COMMUNICATION CONTACT INFORMATION, (eg. '0118 663760', the telephone number of 'Merryfield Primary Care Trust' or 'F.The sequence of numbers, letters or characters that constitute a COMMUNICATION CONTACT INFORMATION, (e.g. '0118 663760', for a telephone number or 'F.Elton@mha.nhs.uk', the e-mail address of 'F.uk' for the e-mail address of 'F. Elton').

Where the neck has been dissected during a Head and Neck Cancer Care Spell, the size of the largest metastasis, measured in 'Millimetres (mm)'.Where the neck has been dissected during a Head and Neck Cancer Care Spell, the size of the largest metastasis, in 'Millimetres (mm)'.

An indication of whether the Lesion diameter is greater than 20mm (millimetres).An indication of whether the Lesion diameter is greater than 20mm (Millimetres).

National Codes:

An indication of whether the Lesion vertical thickness is greater than 2mm (millimetres).An indication of whether the Lesion vertical thickness is greater than 2mm (Millimetres).

National Codes:

The maximum depth of invasion of the Tumour, measured in 'Millimetres (mm)'.The maximum depth of invasion of the Tumour, in 'Millimetres (mm)'.

A classification indicating the circumstances in which overseas visitors are not liable to have to pay to use the National Health Service.A classification indicating the circumstances in which Overseas Visitors are not liable to have to pay to use the National Health Service.

Classification:

Note: * The European Economic Area consists of the European Community member states plus Iceland, Liechtenstein and Norway.

Note: ** For prisoners on remand this exemption applies until 12 months after arrival in the U.K. For convicted prisoners this exemption applies to until 12 months after arrival in the U.K., or 6 months after committal to prison by the courts, whichever is earlier

Note: *** A person living here for a settled purpose for not less than 6 months will be accepted as ordinary resident and therefore not liable to charges under the Regulations. A student enrolled in a course of study, the prescribed duration of which is not less than 6 months, is similarly entitled.

References:
The NHS Treatment of Overseas Visitors, Manual of Guidance, 1988 Appendix M and subsequent updatesThe NHS Treatment of Overseas Visitors, Manual of Guidance, 1988 Appendix M and subsequent updates

The RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION of a PERSON, as specified by a PERSON.

Note: This is the Religious Affiliation of a PERSON, not their Religion.

Where applicable, RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION CODE is aligned with descriptors for religious and other belief system affiliations in SNOMED CT® as follows:

• the SNOMED CT Subset:
  • original ID is 10791000000130 and
  • name is Religious or Other Belief System Affiliation.

National Codes:

Note:

*  Where the PATIENT has been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION but they are unsure what it is: Agnostic should be used

** Where the PATIENT has been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION and it is one that is not listed: Religion (Other Not Listed) should be used

*** Where the PATIENT has not been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION: Patient Religion Unknown should be used

A descriptor of a property of a SUBSTANCE, indicating special care is required with the product.

Classification:

References:
British National Formulary

National Codes:

The size of the Tumour, measured in 'Millimetres (mm)'.The size of the Tumour, in 'Millimetres (mm)'.

The type of waiting time measurement methodology which may be applied during a PATIENT PATHWAY.  The methodology applied may be for one part of a PATIENT PATHWAY, such as the measurement of a REFERRAL TO TREATMENT PERIOD, or other parts of the PATIENT PATHWAY according to Department of Health policy.

The methodology applied may be for one part of a PATIENT PATHWAY, such as the measurement of a REFERRAL TO TREATMENT PERIOD, or other parts of the PATIENT PATHWAY according to Department of Health policy.

National Codes:

Attribute:

Permitted National Codes:

Permitted National Codes:

Permitted National Codes:

Permitted National Codes:

Permitted National Codes:

Note:

• Depending on the length of time this should normally include at least the month and year. The day should also be included if known. If the symptoms have been present for a long time then it may only be possible to record the year.
• In these circumstances the Format/Length will be:
  • DATE (including year, month and day) - CCYY-MM-DD
  • YEAR AND MONTH - YYYY-MM
  • Year only - YYYY.
• In these circumstances the Format/Length will be:
  • DATE (including year, month and day): CCYY-MM-DD
  • YEAR AND MONTH: YYYY-MM
  • Year only: YYYY.

Notes:
CHLAMYDIA TEST RESULT is the same as attribute CHLAMYDIA TEST RESULT.

Notes:
This is the ORGANISATION CODE of the GP Practice from which the referral is made.CODE OF GP PRACTICE (REFERRING PRACTICE) is the same as ORGANISATION CODE.

CODE OF GP PRACTICE (REFERRING PRACTICE) is the ORGANISATION CODE of the GP Practice from which the referral is made.

Notes:
COLD ISCHAEMIC TIME is the elapsed time for the TRANSPLANT ITEM, in hours and minutes between the

• START TIME OF COLD PERFUSION and
• TIME KIDNEY PERFUSED WITH RECIPIENT BLOOD

The time should include any period of cold machine perfusion.

Notes:
CONSULTANT CODE (OPERATING SURGEON) is the same as data element CONSULTANT CODE.

CONSULTANT CODE (OPERATING SURGEON) is the surgeon who operated on the PATIENT.CONSULTANT CODE (OPERATING SURGEON) is the CONSULTANT CODE of the surgeon who operated on the PATIENT.

Notes:
CONSULTANT CODE (RESPONSIBLE CONSULTANT) is the same as data element CONSULTANT CODE.

CONSULTANT CODE (RESPONSIBLE CONSULTANT) is the CONSULTANT in overall charge of the PATIENT.CONSULTANT CODE (RESPONSIBLE CONSULTANT) is the CONSULTANT CODE of the CONSULTANT in overall charge of the PATIENT.

Notes:
This is the same as attribute CONTRACEPTION METHOD POST COITAL.

This allows for the recording of emergency CONTRACEPTION provided to the PATIENT.CONTRACEPTION METHOD POST COITAL allows for the recording of emergency CONTRACEPTION provided to the PATIENT.

Validation Rules:

• If CONTRACEPTION METHOD POST COITAL is recorded as a value 1 or 2 and CONTRACEPTION PRINCIPAL METHOD is blank then CONTRACEPTION METHOD STATUS must be blank.
• If the PATIENT is in receipt of emergency CONTRACEPTION only and it is not in support of a CONTRACEPTION PRINCIPAL METHOD from the Sexual and Reproductive Health Service or emergency CONTRACEPTION is the CONTRACEPTION PRINCIPAL METHOD then this is recorded only in the CONTRACEPTION METHOD POST COITAL field.
• If the emergency CONTRACEPTION is in support of a CONTRACEPTION PRINCIPAL METHOD issued by the Sexual and Reproductive Health Service then CONTRACEPTION PRINCIPAL METHOD and CONTRACEPTION METHOD POST COITAL must be recorded.

Notes:
This is the same as attribute CONTRACEPTION METHOD STATUS.

This records the status of a PATIENT's CONTRACEPTION PRINCIPAL METHOD at the point of intervention.CONTRACEPTION METHOD STATUS records the status of a PATIENT's CONTRACEPTION PRINCIPAL METHOD at the point of intervention. An intervention is where the PATIENT had to attend the Sexual and Reproductive Health Service (or was attended in the home/other location) for the purpose of changing, maintaining, supporting and initiating their method of CONTRACEPTION.

Validation Rules:

• If CONTRACEPTION METHOD STATUS is recorded as a value 1, 2 or 3 then CONTRACEPTION PRINCIPAL METHOD must also record a value between 1 and 13. If the PATIENT is receiving, maintaining or changing a CONTRACEPTION PRINCIPAL METHOD then this must always be recorded at every attendance and conversely if CONTRACEPTION PRINCIPAL METHOD is recorded then CONTRACEPTION METHOD STATUS must be either 1, 2 or 3 at every attendance.

• If CONTRACEPTION METHOD STATUS is recorded as a value 4 then CONTRACEPTION PRINCIPAL METHOD must be left blank. If the PATIENT  is consulting on CONTRACEPTION METHODS or is obtaining advice on methods but has not yet received their method from the Sexual and Reproductive Health Service then CONTRACEPTION PRINCIPAL METHOD should not be recorded.

• If CONTRACEPTION METHOD POST COITAL is recorded as a value 1 or 2 and CONTRACEPTION PRINCIPAL METHOD is blank then CONTRACEPTION METHOD STATUS must be blank. If the PATIENT is in receipt of emergency CONTRACEPTION only and it is not in support of a CONTRACEPTION PRINCIPAL METHOD from the Sexual and Reproductive Health Service or emergency CONTRACEPTION is the CONTRACEPTION PRINCIPAL METHOD then this is recorded only in the CONTRACEPTION METHOD POST COITAL field. If the emergency CONTRACEPTION is in support of a CONTRACEPTION PRINCIPAL METHOD issued by the Sexual and Reproductive Health Service then CONTRACEPTION PRINCIPAL METHOD and CONTRACEPTION METHOD POST COITAL must be recorded.

Notes:
This is the same as attribute CONTRACEPTION METHOD. This refers to a supporting method of CONTRACEPTION provided to the PATIENT in addition to the main method.CONTRACEPTION OTHER METHOD is the same as attribute CONTRACEPTION METHOD.

CONTRACEPTION OTHER METHOD refers to a supporting method of CONTRACEPTION provided to the PATIENT in addition to the main method. For example oral pills may be provided with an Intrauterine Device (IUD) device and condoms.

Validation Rules:

• If CONTRACEPTION OTHER METHOD is recorded as a value between 1 and 13 then CONTRACEPTION PRINCIPAL METHOD must also record a value between 1 and 13 or CONTRACEPTION METHOD POST COITAL must also record a value 1 or 2. 
• If a PATIENT is receiving an auxiliary CONTRACEPTION METHOD to support their CONTRACEPTION PRINCIPAL METHOD therefore the CONTRACEPTION PRINCIPAL METHOD and CONTRACEPTION METHOD STATUS must be recorded or the auxiliary is to support emergency CONTRACEPTION then the CONTRACEPTION METHOD POST COITAL must be recorded.

Notes:
This is the same as attribute CONTRACEPTION METHOD.

This refers to the Principal Method of CONTRACEPTION provided to a PATIENT at every attendance (or the PATIENT is maintaining under the service's care) where an intervention to the Principal Method of CONTRACEPTION occurs.CONTRACEPTION PRINCIPAL METHOD refers to the Principal Method of CONTRACEPTION provided to a PATIENT at every attendance (or the PATIENT is maintaining under the service's care) where an intervention to the Principal Method of CONTRACEPTION occurs.

CORRESPONDENCE ADDRESS will consist of  BUILDING NAME, BUILDING NUMBER, STREET OR ROAD NAME, POST TOWN, POSTAL COUNTY.

For a REFERRAL REQUEST, a contact address is specifically for that referral. This allows any correspondence about the referral to be directed appropriately. The CORRESPONDENCE ADDRESS need not be the initiator's practice address.

For each submission, the COSDS SUBMISSION IDENTIFIER should be incremented by 1.

The COSDS SUBMISSION IDENTIFIER may appear on data quality reports, error reports, and audit logs exchanged between the Cancer Registry and submitting ORGANISATION CODE (CODE OF PROVIDER).

The COSDS SUBMISSION IDENTIFIER must be populated in the COSDS Submission Identifier group within the COSDS Message, by the sender of the data set submission, prior to transmission of the data to the Cancer Registry.The COSDS SUBMISSION IDENTIFIER must be populated in the COSDS Submission Identifier group within the COSDS Message, by the sender of the data set submission, prior to transmission of the data to the Cancer Registry.

The COSDS SUBMISSION RECORD COUNT must be populated in the COSDS Submission Identifier group within the COSDS Message by the sender of the data set submission, prior to transmission of the data to a Cancer Registry.The COSDS SUBMISSION RECORD COUNT must be populated in the COSDS Submission Identifier group within the COSDS Message by the sender of the data set submission, prior to transmission of the data to a Cancer Registry.

The COSDS UNIQUE IDENTIFIER may appear on data quality reports, error reports, and audit logs exchanged between the Cancer Registry and the submitting ORGANISATION CODE (CODE OF PROVIDER).

The COSDS UNIQUE IDENTIFIER must be populated for each record, in the COSDS Record Identifier group within the COSDS Message, by the sender of the data set submission prior to transmission of the data to a Cancer Registry.The COSDS UNIQUE IDENTIFIER must be populated for each record, in the COSDS Record Identifier group within the COSDS Message, by the sender of the data set submission prior to transmission of the data to a Cancer Registry.

DECIDED TO ADMIT DATE may be the same as the date of admission (e.g. most emergency admissions). Alternatively, a decision can be made to admit at a future date. This decision denotes that the PATIENT is intended to be admitted to a Hospital Bed, either immediately or subsequently in the future. It records the event that a clinical DECISION TO ADMIT a PATIENT to a Hospital Bed has been made by or on behalf of someone, who has the right of admission to a Hospital Provider.