| Type: | Patch |
| Reference: | 1692 |
| Version No: | 1.0 |
| Subject: | Cancer Outcomes and Services Data Set Attributes |
| Effective Date: | Immediate |
| Reason for Change: | Patch |
| Publication Date: | 26 November 2018 |
Background:
It has been identified that some of the attributes in the Cancer Outcomes and Services Data Set have three columns and these are causing a problem for conversion to the new version of the dictionary.
This patch removes the extra column and ensures that the items match the Cancer Outcomes and Services Data Set specification at: http://www.ncin.org.uk/collecting_and_using_data/data_collection/cosd_downloads_v8.
To view a demonstration on "How to Read an NHS Data Model and Dictionary Change Request", visit the NHS Data Model and Dictionary help pages at: http://www.datadictionary.nhs.uk/Flash_Files/changerequest.htm.
Note: if the web page does not open, please copy the link and paste into the web browser.
Summary of changes:
| Attribute Definitions | |
| ANN ARBOR STAGE | Changed Description |
| ANN ARBOR SYMPTOMS INDICATION CODE | Changed Description |
| BINET STAGE | Changed Description |
| INTERGROUP RHABDOMYOSARCOMA STUDY POST SURGICAL GROUP | Changed Description |
| INTERNATIONAL NEUROBLASTOMA RISK GROUP STAGING SYSTEM STAGE | Changed Description |
| INTERNATIONAL STAGING SYSTEM STAGE FOR RETINOBLASTOMA | Changed Description |
| MURPHY ST JUDE STAGE | Changed Description |
| MYELOMA INTERNATIONAL STAGING SYSTEM STAGE | Changed Description |
| PATHOLOGICAL RISK CLASSIFICATION CODE AFTER NEPHRECTOMY | Changed Description |
| PATHOLOGICAL RISK CLASSIFICATION CODE AFTER PREOPERATIVE CHEMOTHERAPY | Changed Description |
| PRETEXT STAGING SYSTEM STAGE | Changed Description |
| RHABDOMYOSARCOMA SITE PROGNOSIS CODE | Changed Description |
| S CATEGORY CODE | Changed Description |
| WILMS TUMOUR STAGE | Changed Description |
| Date: | 26 November 2018 |
| Sponsor: | Alex Elias, Information Representation Services Director, NHS Digital |
Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.
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Change to Attribute: Changed Description
The Ann Arbor Staging System stage based on the location and extent of the detected disease for a PATIENT during a Haematological Cancer Care Spell.
National Codes:
| 1 | Stage l: One region of lymph nodes, or spleen or thymus or Waldeyer's ring enlarged | |
| 2 | Stage ll: 2 regions of lymph nodes enlarged, on same side of diaphragm | |
| 3 | Stage lll: lymph nodes enlarged on both sides of diaphragm | |
| 4 | Stage lV: disease outside lymph nodes e.g. liver, bone marrow excluding 'E' |
Change to Attribute: Changed Description
An indication of the additional Ann Arbor Staging System stage designation based on presence or absence of specific symptoms.
National Codes:
| A | No Symptoms | |
| B | Presence of any of the following: unexplained persistent or recurrent fever (greater than 38°C / 101.5°F), drenching night sweats, unexplained weight loss of 10% or more within the last 6 months |
Change to Attribute: Changed Description
The Binet Classification stage.
National Codes:
| A | Stage A: if PLATELETS COUNT greater than 99 and HAEMOGLOBIN CONCENTRATION (GRAMS PER LITRE) greater than 99 and 0, 1 or 2 areas of organ enlargement (number of lymph node groups plus score 1 for hepatomegaly, 1 for splenomegaly) | |
| B | Stage B: if PLATELETS COUNT greater than 99 and HAEMOGLOBIN CONCENTRATION (GRAMS PER LITRE) greater than 99 and 3, 4 or 5 areas of organ enlargement | |
| C | Stage C: if HAEMOGLOBIN CONCENTRATION (GRAMS PER LITRE) less than 100 or PLATELETS COUNT less than 100 |
Change to Attribute: Changed Description
The Intergroup Rhabdomyosarcoma Study Post Surgical Grouping System post-surgical disease group at PATIENT DIAGNOSIS for a PATIENT during a Sarcoma Cancer Care Spell.
National Codes:
| 1 | Group 1: Primary complete resection | |
| 2 | Group 2: Microscopic residual disease or primary complete resection with (completely resected) lymph node involvement | |
| 3 | Group 3: Macroscopic residual disease | |
| 4 | Group 4: Distant metastases |
Change to Attribute: Changed Description
The International Neuroblastoma Risk Group Staging System stage for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| L1 | Stage L1: The Tumour is located only in the area where it started; no Image-Defined Risk Factors (IDFSs) are found on imaging scans, such as CT or MRI | |
| L2 | Stage L2: The Tumour has not spread beyond the area where it started and the nearby TISSUE; Image-Defined Risk Factors (IDFSs) are found on imaging scans, such as CT or MRI | |
| M | Stage M: The Tumour has spread to other parts of the body (except stage MS) | |
| MS | Stage MS: The Tumour has spread to only the skin, liver, and/or bone marrow (less than 10% marrow involvement) in PATIENTS less than 18 months |
Change to Attribute: Changed Description
The International Retinoblastoma Staging System stage for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| 0 | Stage 0: PATIENTS treated conservatively, grouped according to intraocular classification | |
| 1 | Stage I: Eye enucleated, completely resected histologically | |
| 2 | Stage II: Eye enucleated, microscopic residual Tumour | |
| 3 | Stage III: Regional extension a) Overt orbital disease b) Pre-auricular or cervical Lymph Node extension | |
| 4 | Stage IV: Metastatic disease a) Haematogenous metastasis 1. Single lesion 2. Multiple lesions b) CNS (Central Nervous System) extension 1. Prechiasmatic lesion 2. CNS mass 3. Leptomeningeal disease |
Change to Attribute: Changed Description
The St Jude System (Murphy Staging System) stage for a PATIENT during a Haematological Cancer Care Spell.
National Codes:
| 1 | Stage 1: disease is limited to a single Tumour or to one lymph node group (e.g., neck, axilla, groin, etc.) outside of the abdomen or mediastinum | |
| 2 | Stage 2: disease is limited to one Tumour with local lymph node involvement; or to two or more Tumours or lymph node groups on the same side of the diaphragm; or to a completely resected primary Tumour of the gastrointestinal tract with/without involvement of local lymph nodes | |
| 3 | Stage 3: disease includes Tumours or lymph node groups involved on both sides of the diaphragm; or any primary intrathoracic Tumour (mediastinal, pleural or thymic disease); or extensive Non-Hodgkin lymphoma (NHL) within the abdomen; or any paraspinal or epidural Tumours | |
| 4 | Stage 4: disease involves the bone marrow and / or central nervous system (CNS), with/without other sites of involvement. Bone marrow involvement in NHL is defined as >5% - <25% malignant CELLS in an otherwise normal bone marrow. (> 25% malignant CELLS in the bone marrow is defined as leukaemia) |
Change to Attribute: Changed Description
The International Staging System (ISS) stage.
For PATIENTS with myeloma this is derived from:
National Codes:
| 1 | Stage 1: BETA2 MICROGLOBULIN LEVEL less than 3.5 and ALBUMIN LEVEL greater than 34 | |
| 2 | Stage 2: BETA2 MICROGLOBULIN LEVEL less than 3.5 and ALBUMIN LEVEL less than 35 OR BETA2 MICROGLOBULIN LEVEL 3.5 - 5.5 | |
| 3 | Stage 3: BETA2 MICROGLOBULIN LEVEL greater than 5.5 |
Change to Attribute: Changed Description
A classification to determine the histological risk, after an immediate nephrectomy (the surgical procedure of removing a kidney or section of a kidney) for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| | ||
| F | Favourable: Non-anaplastic Wilms Tumour (all subtypes); cystic partially differentiated nephroblastoma; mesoblastic nephroma; diffuse nephroblastomatosis | |
| U | Unfavourable: Anaplastic Wilms Tumour (focal and diffuse); malignant rhabdoid Tumour of kidney; clear cell sarcoma of the kidney; renal cell carcinoma |
Change to Attribute: Changed Description
A classification to determine the histological risk, after preoperative Chemotherapy, for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| L | Low: Cystic partially differentiated nephroblastoma; completely necrotic nephroblastoma; mesoblastic nephroma; diffuse nephroblastomatosis | |
| I | Intermediate: Nephroblastoma type - epithelial; stromal; mixed; regressive; focal anaplasia | |
| H | High: Nephroblastoma blastemal type; nephroblastoma with anaplasia; malignant rhabdoid Tumour of the kidney; clear cell sarcoma of the kidney; renal cell carcinoma |
Change to Attribute: Changed Description
The Pretext Staging System stage relating to the sectors of the liver involved for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| 1 | Stage 1: Tumour involves only 1 quadrant | |
| 2 | Stage 2: Tumour involves 2 adjoining quadrants; 2 adjoining sections free | |
| 3 | Stage 3: Tumour involves 3 adjoining quadrants; only 1 quadrant free or 2 non-adjoining quadrants free | |
| 4 | Stage 3: Tumour involves all 4 quadrants |
Change to Attribute: Changed Description
The PATIENT's prognosis code for the site for Rhabdomyosarcoma during a Sarcoma Cancer Care Spell.
National Codes:
| F | Favourable: Orbit; genitourinary Non Bladder Prostate; Non Parameningeal Head and Neck | |
| U | Unfavourable: All other sites of disease |
Change to Attribute: Changed Description
The code to identify the serum Tumour markers (measurable biochemicals associated with a malignancy of Tumour CELLS) for testicular cancer only.
This is derived following recording of the biochemistry test items:National Codes:
| SX | LDH - Marker studies not available or not performed; HCG - Marker studies not available or not performed; AFP - Marker studies not available or not performed |
| S0 | LDH - Normal; HCG - Normal; AFP - Normal |
| S1 | LDH - Less than 1.5 x normal; HCG - Less than 5,000; AFP - Less than 1,000 |
| S2 | LDH - 1.5-10 x normal; HCG - 5,000-50,000 AFP - 1,000-10,000 |
| S3 | LDH - Greater than 10 x normal; HCG - Greater than 50,000; AFP - Greater than 10,000 |
S CATEGORY CODE is derived following recording of the biochemistry test items:
- S CATEGORY (LACTATE DEHYDROGENASE) (LDH)
- S CATEGORY (HUMAN CHORIONIC GONADOTROPIN) (HCG)
- S CATEGORY (ALPHA FETOPROTEIN) (AFP)
National Codes:
| CODE | LDH (UNITS/LITRE) | HCG (MILLIUNITS/MILLILITRE) | AFP (NANOGRAMS/MILLILITRE) |
| SX | Marker studies not available or not performed | Marker studies not available or not performed | Marker studies not available or not performed |
| S0 | Normal | Normal | Normal |
| S1 | Less than 1.5 x normal | Less than 5,000 | Less than 1,000 |
| S2 | 1.5-10 x normal | 5,000-50,000 | 1,000-10,000 |
| S3 | Greater than 10 x normal | Greater than 50,000 | Greater than 10,000 |
Change to Attribute: Changed Description
The Wilms Tumour Stage determined by the results of the imaging studies and both the surgical and pathologic findings at nephrectomy (kidney removal) for a PATIENT during a Children Teenagers and Young Adults Cancer Care Spell.
National Codes:
| 1 | Stage 1: Tumour is limited to the kidney and completely resected | |
| 2 | Stage 2: Tumour is completely resected, and there is no evidence of Tumour at or beyond the margins of resection but the Tumour extends beyond the kidney (penetration of capsule, invasion of blood vessels outside renal parenchyma) | |
| 3 | Stage 3: There is residual Tumour following surgery that is confined to the abdomen | |
| 4 | Stage 4: There are distant metastases (lung, liver, bone, brain), or lymph node metastases outside the abdominopelvic region | |
| 5 | Stage 5: Involvement of both kidneys is present at diagnosis |
For enquiries about this Change Request, please email information.standards@nhs.net
