Introduction

The Female Genital Mutilation Data Set provides essential information in relation to the female genital mutilation population across England.

The Female Genital Mutilation Data Set is used:

• To publish Official Statistics which will inform the Department of Health and Social Care, NHS England and NHS Improvement, other Government Agencies and the public, about female genital mutilation when it has been identified
• To identify the potential risk of female genital mutilation to young girls and vulnerable women
• For better planning and management of female genital mutilation SERVICES at a local level and across England

Data may be input immediately using an input screen via the NHS Digital Clinical Audit Platform when female genital mutilation is identified, or data extracts for Patients, can be submitted as a bulk upload on a monthly basis for each ORGANISATION.

CARE CONTACT activities undertaken for female genital mutilation PATIENTS during the REPORTING PERIOD are reported in the data upload.  This includes any attendances at an Out-Patient Clinic led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group Therapy, Ward Attendances; or any other type of direct PATIENT-facing CARE CONTACT, with an exception to Sexual and Reproductive Health Clinics and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set to the NHS Digital.

SNOMED CT Refset Metadata:

• Female genital mutilation related findings:
  • Refset FSN: Female genital mutilation related findings simple reference set (foundation metadata concept)
  • Refset Id: 999002041000000103

For further details relating to the SNOMED CT Refset Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related findings.

• Female genital mutilation related procedures:
  • Refset FSN: Female genital mutilation related procedures simple reference set (foundation metadata concept)
  • Refset Id: 999002031000000107

For further details relating to the SNOMED CT Refset Metadata, see the Data Dictionary for Care (DD4C) website at: Female genital mutilation related procedures.

Data Extract Specification

Description

The Department of Health and Social Care requires all NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set. This requirement is applicable to all CARE PROFESSIONALS in these ORGANISATIONS whenever it has been identified that a woman or young girl has undergone female genital mutilation.

Time period

Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Format

Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS Digital Clinical Audit Platform. The data elements should be transmitted in the order specified in the Female Genital Mutilation Data Set.

Transmission

Electronic files must be transmitted to NHS Digital via the Clinical Audit Platform which is a secure web portal.

Connection to the web portal requires registration to the Clinical Audit Platform, which will include the provision of a login account name and password.

Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS Digital website: at Clinical Audit Platform.

Further guidance on the Female Genital Mutilation Data Set can be found on the on the NHS Digital website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.Further guidance on the Female Genital Mutilation Data Set can be found on the NHS Digital website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

• M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
• R = Required: NHS business processes cannot be delivered without this data element
• O = Optional: the inclusion of this data element is optional as required for local purposes.

The basis of how a PATIENT DIAGNOSIS relating to cancer was identified.

Notes:

• National Code headings have been removed. The explanation of the National Code headings are:
  • National Codes 0 - 4: Non-microscopic
  • National Codes 5 - 9: Microscopic 

National Codes:

The type of childhood immunisation given to a child on the IMMUNISATION DATE.

Note:

• National Codes ending in "0" are at a high level. Either the higher level national code or the lower level code national code should be reported as required by the Data Set.

National Codes:

The type of LOCATION:

• At which a PERSON died or
• The preferred LOCATION of death of the PATIENT, as stated by the PATIENT, Patient Proxy or Carer.

Note that ORGANISATIONS may choose to collect the DEATH LOCATION TYPE CODE codes at the high level (National Codes ending in "0") or at the more detailed level below each high-level code.

National Codes:

The reason that the PATIENT was discharged from an Improving Access to Psychological Therapies Service.

Notes:

• National Code headings have been removed. The explanation of the National Code headings are:
  • National Code 50: Referred but not seen
  • National Codes 10, 11, 12, 13, 14, 16, 17, 95: Seen but not taken on for a course of treatment
  • National Codes 46, 47, 48, 49, 96: Seen and taken on for a course of treatment

National Codes:

The type of Multidisciplinary Team Meeting at which the PATIENT's Cancer Care Plan was discussed.

Note: the National Codes at the high level (ending in "0") are Tumour groups and the items below each high-level code are Multidisciplinary Teams. ORGANISATIONS will only use the high-level code if the Multidisciplinary Team is not listed.

National Codes:

The type of Patient Procedure performed on a PATIENT during Primary Knee Replacement Surgery.

National Codes:

Note: The National Codes have been listed in logical sequence rather than alphanumeric order.

This item has been retired from the NHS Data Model and Dictionary as it is no longer required for the National Joint Registry Data Set.This item has been retired from the NHS Data Model and Dictionary as it is no longer required for the National Joint Registry Data Set.

See National Joint Registry Data Set for the latest version of the data set.

The last live version of this item is available in the November 2012 release of the NHS Data Model and Dictionary.

Access to this version can be obtained by emailing information.standards@nhs.net with "NHS Data Model and Dictionary - Archive Request" in the email subject line.

The relationship of the second PERSON to the first PERSON (the PATIENT) as used in the Community Services Data Set.

This is used to identify, for example, with whom the Child or Young Person is living in a permanent context or the relationship with the main Carer etc.

Note that ORGANISATIONS may choose to collect the RELATIONSHIP TO PERSON FOR CHILDREN AND YOUNG PEOPLE codes at the high level (ending in "X") or at the more detailed level below each high-level code.

This item is not referenced in a data set in the NHS Data Model and Dictionary. It has been retained as the item is used by the Healthy Child Programme.

National Codes:

The relationship of the second PERSON to the first PERSON (the PATIENT) as used in the Community Services Data Set.

Note that ORGANISATIONS may choose to collect the RELATIONSHIP TO PERSON FOR COMMUNITY codes at the high level (ending in "X") or at the more detailed level below each high-level code.

National Codes:

The RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION of a PERSON, as specified by a PERSON.

Note: This is the Religious Affiliation of a PERSON, not their Religion.

Where applicable, RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION CODE is aligned with descriptors for "Religious and Other Belief System Affiliation" in SNOMED CT® as follows:

SNOMED CT Refset Metadata:

• Refset FSN: Religious or other belief system affiliation simple reference set (foundation metadata concept)
• Refset Id: 999000531000000100

For further details relating to the SNOMED CT Refset Metadata, see the Data Dictionary for Care (DD4C) website at: Religious or Other Belief System Affiliation.

This item is not referenced in a data set in the NHS Data Model and Dictionary. It has been retained to ensure the modelling is consistent.

Notes:

• Where the PATIENT has been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION but they are unsure what it is: National Code 'KI Agnostic' should be used
• Where the PATIENT has been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION and it is one that is not listed: National Code 'K20 Religion (Other Not Listed)' should be used
• Where the PATIENT has not been asked for their RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION: National Code 'N1 PATIENT Religion Unknown' should be used

National Codes:

The medical condition or reason for a Sexual Health and HIV Episode.

National Codes:The following codes are used within the data set:

ADULT MENTAL HEALTH CARE CLUSTER ASSESSMENT STATUS END DATE is the End Date of the ADULT MENTAL HEALTH CARE CLUSTER ASSESSMENT STATUS for a PATIENT.

ADULT MENTAL HEALTH CARE CLUSTER ASSESSMENT STATUS START DATE is the Start Date of the ADULT MENTAL HEALTH CARE CLUSTER ASSESSMENT STATUS for a PATIENT.

METHOD OF ADMISSION (HOSPITAL PROVIDER SPELL) is used by the Secondary Uses Service to derive the Healthcare Resource Group 4. Failure to correctly populate this data element is likely to result in an incorrect Healthcare Resource Group, usually associated with lower levels of healthcare resource.

For further information, please refer to the NHS Digital website at: Payment by Results Guidance.

ADMISSION METHOD CODE (HOSPITAL PROVIDER SPELL) will be replaced with METHOD OF ADMISSION (HOSPITAL PROVIDER SPELL), which is the most recent approved national information standard to describe the required definition.

Permitted National Codes:

METHOD OF DISCHARGE (HOSPITAL PROVIDER SPELL) is used by the Secondary Uses Service to derive the Healthcare Resource Group 4. Failure to correctly populate this data element is likely to result in an incorrect Healthcare Resource Group, usually associated with lower levels of healthcare resource.

For further information, please refer to the NHS Digital website at: Payment by Results Guidance.

DISCHARGE METHOD CODE (HOSPITAL PROVIDER SPELL) will be replaced with METHOD OF DISCHARGE (HOSPITAL PROVIDER SPELL), which is the most recent approved national information standard to describe the required definition.

Permitted National Codes:

This item has been retired from the NHS Data Model and Dictionary as it is no longer required for the National Joint Registry Data Set.This item has been retired from the NHS Data Model and Dictionary as it is no longer required for the National Joint Registry Data Set.

See National Joint Registry Data Set for the latest version of the data set.

The last live version of this item is available in the November 2012 release of the NHS Data Model and Dictionary.

Access to this version can be obtained by emailing information.standards@nhs.net with "NHS Data Model and Dictionary - Archive Request" in the email subject line.