NHS Data Model and DictionaryNHS Digital
Type:Patch
Reference:1886
Version No:1.0
Subject:January 2023 release
Effective Date:Immediate
Reason for Change:Patch
Publication Date:10 January 2023

Background:

This patch updates the NHS Data Model and Dictionary in preparation for the new release and includes:

A short demonstration is available which describes "How to Read an NHS Data Model and Dictionary Change Request", in an easy to understand screen capture including a voice over and readable captions. This demonstration can be viewed at: https://datadictionary.nhs.uk/elearning/change_request/index.html.

Note: if the web page does not open, please copy the link and paste into the web browser. A guide to how to use the demonstration can be found at: Demonstrations.

Summary of changes:

Data Set
COMMUNITY SERVICES DATA SET   Changed Description
 
Supporting Information
CANCER OUTCOMES AND SERVICES DATA SET OVERVIEW   Changed Description
PERSONALISED CARE AND SUPPORT PLANNING   Changed Description
RELEASE HISTORY: JANUARY 2023 renamed from RELEASE HISTORY: DECEMBER 2022   Changed Description, Name
UNITED KINGDOM AND IRELAND ASSOCIATION OF CANCER REGISTRIES   Changed Description
 
Class Definitions
CHILDHOOD IMMUNISATION STATUS   Changed Attributes
ELECTRONIC HEALTH RECORD   Changed Attributes
 
Attribute Definitions
ANN ARBOR BULKY DISEASE INDICATION CODE   Changed Description
CHILDHOOD IMMUNISATION TYPE FOR COVER   New Attribute
GS1 APPLICATION IDENTIFIER FOR GLOBAL renamed from GS1 APPLICATION IDENTIFIER (GLOBAL)   Changed Name
GS1 APPLICATION IDENTIFIER FOR INTERNAL renamed from GS1 APPLICATION IDENTIFIER (INTERNAL)   Changed Description, Name
 
Data Elements
CHILDHOOD IMMUNISATION TYPE (COVER)   Changed Description, linked Attribute
SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT)   Changed Description
SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE)   Changed Description
 

Date:10 January 2023
Sponsor:Alex Elias, Associate Director for Information Standards and Information Representation Services, NHS Digital

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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COMMUNITY SERVICES DATA SET

Change to Data Set: Changed Description


HEADER

Header:
To carry submission header details.
One occurrence of this group is required.
M/R/O/PData Set Data Elements

M/R/O/PData Set Data Elements
MDATA SET VERSION NUMBER
MORGANISATION IDENTIFIER (CODE OF PROVIDER)
MORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
MPRIMARY DATA COLLECTION SYSTEM IN USE
MREPORTING PERIOD START DATE
MREPORTING PERIOD END DATE
MDATE AND TIME DATA SET CREATED

PATIENT DEMOGRAPHICS

Master Patient Index and Risk Indicators:
To carry the personal details of the patient and the associated mother's NHS number (where applicable).
One occurrence of this group is required for each patient.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER)
RORGANISATION IDENTIFIER (EDUCATIONAL ESTABLISHMENT)
RNHS NUMBER
RNHS NUMBER STATUS INDICATOR CODE
RPERSON BIRTH DATE
RPOSTCODE OF USUAL ADDRESS
RPERSON STATED GENDER CODE
RETHNIC CATEGORY
PETHNIC CATEGORY 2021
RLANGUAGE CODE (PREFERRED)
RPERSON RELATIONSHIP (MAIN CARER)
RHEALTH VISITOR FIRST ANTENATAL VISIT DATE
RLOOKED AFTER CHILD INDICATOR
RSAFEGUARDING VULNERABILITY FACTORS INDICATOR
RCONSTANT SUPERVISION AND CARE REQUIRED DUE TO DISABILITY INDICATOR
REDUCATIONAL ASSESSMENT OUTCOME
RPREFERRED DEATH LOCATION DISCUSSED INDICATOR
RPERSON AT RISK OF UNEXPECTED DEATH INDICATOR
RDEATH LOCATION TYPE CODE (PREFERRED)
RPERSON DEATH DATE
RDEATH LOCATION TYPE CODE (ACTUAL)
RDEATH NOT AT PREFERRED LOCATION REASON
RNHS NUMBER (MOTHER)
RNHS NUMBER STATUS INDICATOR CODE (MOTHER)

GP Practice Registration:
To carry details of the GP Practice Registration of the patient.
One occurrence of this group is required for each change of GP Practice Registration.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MGENERAL MEDICAL PRACTICE (PATIENT REGISTRATION)
RSTART DATE (GMP PATIENT REGISTRATION)
REND DATE (GMP PATIENT REGISTRATION)

Accommodation Type:
To carry details of the type of accommodation for the patient.
One occurrence of this group is permitted for each accommodation status.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MACCOMMODATION STATUS CODE
RACCOMMODATION STATUS RECORDED DATE

Care Plan Type:
To carry details of Care Plans created for a patient by the organisation.
One occurrence of this group is permitted for each Care Plan created for the patient.
M/R/O/PData Set Data Elements
MCARE PLAN IDENTIFIER
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MCARE PLAN TYPE (COMMUNITY CARE)
MCARE PLAN CREATION DATE
RCARE PLAN CREATION TIME
RCARE PLAN LAST UPDATED DATE
RCARE PLAN LAST UPDATED TIME
RCARE PLAN IMPLEMENTATION DATE

Care Plan Agreement:
To carry details of any agreements to a Care Plan by a patient, team or organisation.
One occurrence of this group is permitted for each agreement of a Care Plan.
M/R/O/PData Set Data Elements
MCARE PLAN IDENTIFIER
MCARE PLAN CONTENT AGREED BY
RCARE PLAN CONTENT AGREED DATE
RCARE PLAN CONTENT AGREED TIME

Social and Personal Circumstances:
To carry details of social and personal circumstances of a patient.
One occurrence of this group is permitted for each social and personal circumstance recorded.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSOCIAL AND PERSONAL CIRCUMSTANCE (SNOMED CT)
MSOCIAL AND PERSONAL CIRCUMSTANCE RECORDED DATE

Employment Status:
To carry details of the employment status of the patient.
One occurrence of this group is permitted for each employment status.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MEMPLOYMENT STATUS
REMPLOYMENT STATUS RECORDED DATE
RWEEKLY HOURS WORKED

Overseas Visitor Charging Category:
To carry details of the Overseas Visitor Charging Category of the patient.
Multiple occurrences of this group are permitted, one for each Overseas Visitor Charging Category recorded for the patient.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MOVERSEAS VISITOR CHARGING CATEGORY
ROVERSEAS VISITOR CHARGING CATEGORY APPLICABLE FROM DATE
ROVERSEAS VISITOR CHARGING CATEGORY APPLICABLE END DATE

REFERRALS

Service or Team Referral:
To carry details of the Service or Team referral that the patient is subject to.
One occurrence of this group is permitted for each referral.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
MREFERRAL REQUEST RECEIVED DATE
RREFERRAL REQUEST RECEIVED TIME
RNHS SERVICE AGREEMENT LINE IDENTIFIER
RSOURCE OF REFERRAL FOR COMMUNITY
RORGANISATION IDENTIFIER (REFERRING ORGANISATION)
RREFERRING CARE PROFESSIONAL STAFF GROUP (COMMUNITY CARE)
RPRIORITY TYPE CODE
RPRIMARY REASON FOR REFERRAL (COMMUNITY CARE)
RSERVICE DISCHARGE DATE
RDISCHARGE LETTER ISSUED DATE (COMMUNITY CARE)

Service or Team Type Referred To:
To carry details of the Service or Team that the patient has been referred to.
One occurrence of this group is permitted for each service or team that a patient has been referred to.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
RCARE PROFESSIONAL TEAM LOCAL IDENTIFIER
MSERVICE OR TEAM TYPE REFERRED TO (COMMUNITY CARE)
RREFERRAL CLOSURE DATE
RREFERRAL REJECTION DATE
RREFERRAL CLOSURE REASON
RREFERRAL REJECTION REASON

Other Reason for Referral:
To carry details of additional reasons why a patient has been referred to a specific service.
One occurrence of this group is permitted for each additional referral reason.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MOTHER REASON FOR REFERRAL (COMMUNITY CARE)

Referral To Treatment (RTT):
To carry Referral to Treatment details for the patient referral.
One occurrence of this group is permitted for each change in Referral To Treatment Period Status.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
RUNIQUE BOOKING REFERENCE NUMBER (CONVERTED)
RPATIENT PATHWAY IDENTIFIER
RORGANISATION IDENTIFIER (PATIENT PATHWAY IDENTIFIER ISSUER)
RWAITING TIME MEASUREMENT TYPE (COMMUNITY CARE)
RREFERRAL TO TREATMENT PERIOD START DATE
RREFERRAL TO TREATMENT PERIOD START TIME
RREFERRAL TO TREATMENT PERIOD END DATE
RREFERRAL TO TREATMENT PERIOD END TIME
RREFERRAL TO TREATMENT PERIOD STATUS

Onward Referral:
To carry details of any onward referral of the patient which has taken place.
One occurrence of this group is permitted for each onward referral.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MONWARD REFERRAL DATE
RONWARD REFERRAL REASON (COMMUNITY CARE)
RORGANISATION IDENTIFIER (RECEIVING ORGANISATION)

CARE CONTACT AND ACTIVITIES

Care Contact:
To carry details of any contacts with a patient which have taken place as result of a referral.
One occurrence of this group is permitted for each Care Contact.
M/R/O/PData Set Data Elements
MCARE CONTACT IDENTIFIER
MSERVICE REQUEST IDENTIFIER
RCARE PROFESSIONAL TEAM LOCAL IDENTIFIER
MCARE CONTACT DATE
RCARE CONTACT TIME
RORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
RADMINISTRATIVE CATEGORY CODE
RCLINICAL CONTACT DURATION OF CARE CONTACT
RCONSULTATION TYPE
RCARE CONTACT SUBJECT
RCONSULTATION MECHANISM (COMMUNITY CARE)
RACTIVITY LOCATION TYPE CODE
RORGANISATION SITE IDENTIFIER (OF TREATMENT)
RGROUP THERAPY INDICATOR
RATTENDANCE STATUS
REARLIEST REASONABLE OFFER DATE
REARLIEST CLINICALLY APPROPRIATE DATE
RCARE CONTACT CANCELLATION DATE
RCARE CONTACT CANCELLATION REASON
RREPLACEMENT APPOINTMENT DATE OFFERED
RREPLACEMENT APPOINTMENT BOOKED DATE

Care Activity:
To carry details of any activities which have taken place as part of a contact with a patient.
One occurrence of this group is permitted for each Care Activity.
M/R/O/PData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCARE CONTACT IDENTIFIER
MCOMMUNITY CARE ACTIVITY TYPE
RCARE PROFESSIONAL LOCAL IDENTIFIER
RCLINICAL CONTACT DURATION OF CARE ACTIVITY
RPROCEDURE SCHEME IN USE (COMMUNITY CARE)
RCODED PROCEDURE (CLINICAL TERMINOLOGY)
RFINDING SCHEME IN USE (COMMUNITY CARE)
RCODED FINDING (CODED CLINICAL ENTRY)
ROBSERVATION SCHEME IN USE (COMMUNITY CARE)
RCODED OBSERVATION (CLINICAL TERMINOLOGY)
ROBSERVATION VALUE
RUCUM UNIT OF MEASUREMENT

GROUP SESSIONS

Group Session:
To carry details of any group sessions which have been provided to a group of people during the reporting period.
One occurrence of this group is permitted for each Group Session activity.
M/R/O/PData Set Data Elements
MGROUP SESSION IDENTIFIER
MGROUP SESSION DATE
MORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
RCLINICAL CONTACT DURATION OF GROUP SESSION
RGROUP SESSION TYPE (COMMUNITY CARE)
RNUMBER OF GROUP SESSION PARTICIPANTS
OACTIVITY LOCATION TYPE CODE
RORGANISATION SITE IDENTIFIER (OF TREATMENT)
RCARE PROFESSIONAL LOCAL IDENTIFIER
RNHS SERVICE AGREEMENT LINE IDENTIFIER

SOCIAL CIRCUMSTANCES

Special Educational Need Identified:
To carry details of the child's or young person's Special Educational Need.
One occurrence of this group is permitted for each Special Educational Need identified.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSPECIAL EDUCATIONAL NEED TYPE

Safeguarding Vulnerability Factor:
To carry details when the child or young person is subject to any safeguarding concerns.
One occurrence of this group is permitted for each safeguarding concern.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MSAFEGUARDING VULNERABILITY FACTORS TYPE

Child Protection Plan:
To carry details of when the child or young person is subject to a child protection plan.
One occurrence of this group is permitted for each child protection plan.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MCHILD PROTECTION PLAN REASON CODE
MCHILD PROTECTION PLAN START DATE
RCHILD PROTECTION PLAN END DATE

Assistive Technology to Support Disability Type:
To carry details of when assistive technology is used to help support a disabled patient.
One occurrence of this group is permitted for each assistive technology type.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MASSISTIVE TECHNOLOGY FINDING (SNOMED CT)
RPRESCRIPTION DATE (ASSISTIVE TECHNOLOGY)

IMMUNISATIONS

Coded Immunisation:
To carry details of coded immunisation activity for a patient.
One occurrence of this group is permitted for each coded immunisation activity.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MIMMUNISATION DATE
MPROCEDURE SCHEME IN USE (COMMUNITY CARE)
MIMMUNISATION PROCEDURE (CLINICAL TERMINOLOGY)
RORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION)

Immunisation:
To carry details of immunisation activity for a child or young person.
One occurrence of this group is permitted for each immunisation activity.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MIMMUNISATION DATE
MCHILDHOOD IMMUNISATION TYPE (CHILDREN AND YOUNG PEOPLE'S HEALTH SERVICES)
RORGANISATION IDENTIFIER (IMMUNISATION RESPONSIBLE ORGANISATION)

DIAGNOSES, TESTS AND OBSERVATIONS

Medical History (Previous Diagnosis):
To carry details of any previous diagnoses for a patient, which are stated by the patient or patient proxy or recorded in medical notes.
These do not have to have been diagnosed by the organisation submitting the data.
One occurrence of this group is permitted for each previous diagnosis.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MDIAGNOSIS SCHEME IN USE (COMMUNITY CARE)
MPREVIOUS DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Disability Type:
To carry details of the type of disability affecting a patient, based on their perception or the perception of a patient proxy.
One occurrence of this group is permitted for each disability identified.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MDISABILITY CODE
RDISABILITY IMPACT PERCEPTION

Newborn Hearing Screening Audiology Referral:
To carry details of how concerns following Newborn Hearing Screening are followed up.
One occurrence of this group is permitted for each newborn hearing audiology test.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
RNEWBORN HEARING SCREENING OUTCOME
RSERVICE REQUEST DATE (NEWBORN HEARING AUDIOLOGY)
RPROCEDURE DATE (NEWBORN HEARING AUDIOLOGY)
RNEWBORN HEARING AUDIOLOGY OUTCOME

Blood Spot Result:
To carry details of the results of newborn blood spot tests.
One occurrence of this group is permitted for each newborn blood spot test.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
RBLOOD SPOT CARD COMPLETION DATE
RNEWBORN BLOOD SPOT TEST RESULT RECEIVED DATE
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (PHENYLKETONURIA)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (SICKLE CELL DISEASE)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CYSTIC FIBROSIS)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (CONGENITAL HYPOTHYROIDISM)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MEDIUM CHAIN ACYL-COA DEHYDROGENASE DEFICIENCY)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (HOMOCYSTINURIA)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (MAPLE SYRUP URINE DISEASE)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (GLUTARIC ACIDURIA TYPE 1)
RNEWBORN BLOOD SPOT TEST OUTCOME STATUS CODE (ISOVALERIC ACIDURIA)

Infant Physical Examination (General Medical Practitioner Delivered):
To carry details of the Infant Physical Examination carried out by the General Medical Practitioner.
One occurrence of this group is permitted for each Infant Physical Examination.
M/R/O/PData Set Data Elements
MLOCAL PATIENT IDENTIFIER (EXTENDED)
MINFANT PHYSICAL EXAMINATION DATE
RINFANT PHYSICAL EXAMINATION RESULT (HIPS)
RINFANT PHYSICAL EXAMINATION RESULT (HEART)
RINFANT PHYSICAL EXAMINATION RESULT (EYES)
RINFANT PHYSICAL EXAMINATION RESULT (TESTES)

Provisional Diagnosis:
To carry details of a provisional diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for each provisional diagnosis.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE (COMMUNITY CARE)
MPROVISIONAL DIAGNOSIS (CODED CLINICAL ENTRY)
RPROVISIONAL DIAGNOSIS DATE

Primary Diagnosis:
To carry details of the primary diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for the primary diagnosis. The primary diagnosis can change during a reporting period.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE (COMMUNITY CARE)
MPRIMARY DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Secondary Diagnosis:
To carry details of a secondary diagnosis for a patient made by the service that the patient was referred to.
One occurrence of this group is permitted for each secondary diagnosis.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MDIAGNOSIS SCHEME IN USE (COMMUNITY CARE)
MSECONDARY DIAGNOSIS (CODED CLINICAL ENTRY)
RDIAGNOSIS DATE

Coded Scored Assessment (Referral):
To carry details of scored assessments that are issued and completed as part of a referral period where a specific service or team is responsible for the patient, but do not take place at a specific contact.
One occurrence of this group is permitted for each coded scored assessment question or dimension captured outside of a contact.
M/R/O/PData Set Data Elements
MSERVICE REQUEST IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE
RASSESSMENT TOOL COMPLETION DATE

Breastfeeding Status:
To carry details of a child's breastfeeding status as recorded at a contact.
One occurrence of this group is permitted containing the most recently recorded breastfeeding status.
M/R/O/PData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MBREASTFEEDING STATUS

Observation:
To carry details of observations of a patient which take place at a contact.
One occurrence of this group is permitted containing the most recently recorded observation(s).
M/R/O/PData Set Data Elements
MCARE ACTIVITY IDENTIFIER
RPERSON WEIGHT
RPERSON HEIGHT IN METRES
RPERSON LENGTH IN CENTIMETRES

Coded Scored Assessment (Contact):
To carry details of scored assessments that are issued and completed as part of a specific contact.
One occurrence of this group is permitted for each coded scored assessment question or dimension.
M/R/O/PData Set Data Elements
MCARE ACTIVITY IDENTIFIER
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE

ANONYMOUS SELF-ASSESSMENT

Anonymous Self-Assessment:
To carry details of anonymous assessments that are issued by the Community Health Service.
One occurrence of this group is permitted when an anonymous self-assessment is received from a patient.
M/R/O/PData Set Data Elements
MASSESSMENT TOOL COMPLETION DATE
MCODED ASSESSMENT TOOL TYPE (SNOMED CT)
MPERSON SCORE
RACTIVITY LOCATION TYPE CODE
RORGANISATION IDENTIFIER (CODE OF COMMISSIONER)

STAFF DETAILS

Staff Details:
To carry details of the staff involved in the treatment of a patient.
One occurrence of this group is permitted for each staff member.
M/R/O/PData Set Data Elements
MCARE PROFESSIONAL LOCAL IDENTIFIER
RPROFESSIONAL REGISTRATION BODY CODE
RPROFESSIONAL REGISTRATION ENTRY IDENTIFIER
RCARE PROFESSIONAL STAFF GROUP (COMMUNITY CARE)
ROCCUPATION CODE
RCARE PROFESSIONAL (JOB ROLE CODE)

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CANCER OUTCOMES AND SERVICES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Due to Covid-19, the implementation date of the Cancer Outcomes and Services Data Set (COSDS) version 9 was deferred until 1 July 2020.

Introduction

The Cancer Outcomes and Services Data Set is a compiled data set which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national and international level), as well as other national cancer audit programmes.

The standard and XML Schema consists of:

  • a set of individual data items, with their definitions
  • the assemblage of data items into discrete data sets
  • the means of flowing the data items
  • compilation of the data items into a reconciled and verified data set.

Additionally, the output supports commissioning and service development through provision of relevant information on service delivery and outcomes.

All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary care. It does not apply to general practice ORGANISATIONS.

The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the User Guide at Appendix A and B.

Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom and Ireland Association of Cancer Registries.

Submission Information

Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set.

The Cancer Outcomes and Services Data Set is submitted to the National Cancer Registration and Analysis Service (NCRAS) using the COSDS XML Schema.

While the core and cancer site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS XML Schema integrates each core and cancer site specific set of data elements. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas gives full details of the specification.

For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide. A full list of diagnoses mapped to the appropriate data set is provided in the National Cancer Registration and Analysis Service User Guide.

Pathology

From January 2016 Pathology Laboratories across England were mandated through SCCI1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.

This replaced the current reporting to the National Cancer Registration and Analysis Service of electronic pathology reports which were then transcribed by the National Cancer Registration and Analysis Service into the Cancer Registration Reports. This also prevented Cancer Service teams, for example, Multidisciplinary Teams, Pathway Co-ordinators, duplicating the work, which had been happening as part of their data collection process.

From April 2020, the pathology data can only be collected and submitted using the separate Pathology Data Set and Pathology XML Schema. Pathology data items have been removed from the main Cancer Outcomes and Services Data Set.

This allows the Cancer Service teams to concentrate on collecting and reporting all the other clinical data required for the Cancer Outcomes and Services Data Set and the Pathologists to collect and report the pathology items. This will reduce the burden of data collection for the Cancer Service teams and allow for more accurate pathology reporting to be submitted to the National Cancer Registration and Analysis Service.

There will be no requirement for Pathology Laboratories to double report. Once their Laboratory Information Management Systems (LIMS) are updated to report in the COSDS XML Schema, all other pathology reporting can cease.

Further Guidance

Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Cancer Registration and Analysis Service at Cancer Outcomes and Services Dataset.

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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PERSONALISED CARE AND SUPPORT PLANNING

Change to Supporting Information: Changed Description

Personalised Care and Support Planning is an ACTIVITY GROUP.

Personalised Care and Support Planning is a series of facilitated conversations in which the PATIENT, or those who know them well, actively participates to explore the management of their health and well-being within the context of their whole life and family situation.

For further information on Personalised Care and Support Planning, see the NHS England website at: Personalised care and support planning.For further information on Personalised Care and Support Planning, see the NHS England website at: Personalised care and support planning.

 

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RELEASE HISTORY: JANUARY 2023  renamed from RELEASE HISTORY: DECEMBER 2022

Change to Supporting Information: Changed Description, Name

Information Standards Notices and Data Dictionary Change Notices incorporated into the NHS Data Model and Dictionary:

January 2023

  • CR1878 (31 January 2023) - DDCN 1878/2023 NHS Digital merger with NHS England

December 2022

  • CR1844 (1 January 2023) - DAPB1069 Community Services Data Set Version 1.6

November 2022

  • CR1738 (1 December 2022) - DAPB1595 Neonatal Data Set
  • CR1873 (Immediate) - DAPB3085 NHS Continuing Healthcare Patient Level Data Set Second Corrigendum

July 2022

  • CR1847 (1 July 2022) - DAPB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Version 2.3
  • CR1846 (1 July 2022) - DAPB0090 Health and Care Bill: Organisational impact
  • CR1864 (Immediate) - DAPB0092 Commissioning Data Sets Version 6-3 Corrigendum
  • CR1853 (31 July 2022) - DAPB1067 National Workforce Data Set v3.3

The following has been incorporated early before release of the Information Standards Notice. Formal notification of implementation will be provided by the Data Alliance Partnership Board.

  • CR1831 (14 July 2022) - DAPB4005 Electronic Prescribing and Medicines Administration Data Sets

April 2022

  • CR1855 (Immedite) - DAPB0108 Automatic Identification and Data Capture (AIDC)

March 2022

  • CR1736 (1 April 2022) - DAPB0111 Radiotherapy Data Set Version 6
  • CR1818 (1 April 2022) - DAPB1520 Improving Access to Psychological Therapies Data Set Version 2.1
  • CR1856 (1 February 2022) - DCB0011 Mental Health Services Data Set Version 5.0 Corrigendum
  • CR1851 (Immediate) - DDCN 1851/2022 GUMCAD Code Description Amendment
  • CR1857 (Immediate) - DDCN 1857/2022 NHSX merger with NHS England and NHS Improvement
  • CR1861 (1 April 2022) - DDCN 1861/2022 Retirement of Commissioning Data Set V6-2-1 Type 011 - Emergency Care Commissioning Data Set

November 2021

  • CR1850 (Immediate) - DDCN 1850/2021 Public Health England (PHE) and UK Health Security Agency (UKHSA)
  • CR1848 (Immediate) - DDCN 1848/2021 National Cancer Registration and Analysis Service (NCRAS) Update

September 2021

  • CR1768 (1 October 2021) - DCB0011 Mental Health Services Data Set Version 5.0
  • CR1817 (6 September 2021) - DAPB4000 and DAPB4001 Patient Level Information Costing System (PLICS) Integrated Data Set
  • CR1829 (Immediate) - DCB3085 NHS Continuing Healthcare Patient Level Data Set
  • CR1833 (Immediate) - DDCN 1833/2021 Supporting Definition for Impairment Harmonised Standard
  • CR1843 (Immediate) - DDCN 1843/2021 Care Quality Commission Update

August 2021

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2022:

  • CR1764 (1 April 2022) - DAPB0092 Commissioning Data Sets Version 6-3

June 2021

  • CR1806 (30 June 2021) - DCB1067 National Workforce Data Set v3.2
  • CR1822 (Immediate) - DDCN 1822/2021 Introduction of Digital Health and Care Wales
  • CR1805 (Immediate) - DDCN 1805/2021 Introduction of the Data Alliance Partnership Board
  • CR1828 (Immediate) - DDCN 1828/2021 NHS England and NHS Improvement

March 2021

  • CR1815 (1 April 2021) - DDCN 1815/2021 Commissioning Data Set XML Schema Version 6-2-0

  • The March 2021 Release introduces the NHS Data Model and Dictionary Demonstrations, which can be found at: Demonstrations.

February 2021

  • CR1808 (Immediate) - DDCN 1808/2021 Correction of Format/Length Data Elements

January 2021

  • CR1774 (11 January 2021) - DCB2123-02 Patient Level Information Costing System (PLICS) Ambulance Data Set
  • CR1797 (11 January 2021) - DCB2123-03 Patient Level Information Costing System (PLICS) - Mental Health Admitted Patient Care Data Set and Patient Level Information Costing System (PLICS) - Mental Health Care Contacts Data Set
  • CR1778 (11 January 2021) - DCB2123-04 Patient Level Information Costing System (PLICS) Improving Access to Psychological Therapies Data Set
  • CR1807 (Immediate) - DCB0028 Corrigendum to DCB0028 Amd 45/2019 Treatment Function and Main Specialty Standard
  • CR1811 (Immediate) - DCB0028 Addendum to add Treatment Function Code - Post-COVID-19 Syndrome Service

November 2020

  • CR1790 (1 April 2021) - DDCN 1790/2020 NHS Continuing Healthcare Patient Level Data Set
  • CR1798 (Immediate) - DDCN 1798/2020 Commissioning Data Set change to weekly submission
  • CR1803 (Immediate) - DDCN 1803/2020 Emergency Care Department Update

October 2020

  • CR1740 (1 November 2020) - DCB0092-2062 Update to Commissioning Data Set Type 011 Emergency Care

September 2020

  • CR1716 (1 October 2020) - DCB0147 National Cancer Waiting Times Monitoring Data Set Version 2.1
  • CR1779 (Immediate) - DDCN 1779/2020 Retirement of Information Sharing to Tackle Violence Minimum Data Set

August 2020

  • CR1759 (7 September 2020) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set Update
  • CR1759 (7 September 2020) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set Update

June 2020

  • CR1773 (Immediate) - DDCN 1773/2020 Retirement of PDS Birth Notification Data Sets

May 2020

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2021:

  • CR1751 (1 April 2021) - DCB3085 NHS Continuing Healthcare Patient Level Data Set

April 2020

  • CR1667 (Immediate) - DCB1077 AIDC for Patient Identification Data Set Update
  • CR1760 (1 April 2021) - DCB0028 Main Specialty Code and Treatment Function Code Updates
  • Note: New National Codes were introduced from 2 April 2020 and should not be reported nationally until the functionality to do so becomes available in the next release of the affected data sets. A note has been added to the affected items to provide further guidance.

March 2020

  • CR1690 (1 April 2020) - DCB1069 Community Services Data Set Version 1.5
  • CR1714 (1 April 2020) - DCB1521 Cancer Outcomes and Services Data Set Version 9
  • CR1719 (1 April 2020) - DCB1520 Improving Access to Psychological Therapies Data Set Version 2
  • CR1732 (1 April 2020) - DCB0011 Mental Health Services Data Set Version 4.1
  • CR1723 (1 April 2020) - DCB0084 Introduction of OPCS-4.9
  • CR1743 (1 April 2020) - DCB1533 Aggregate Contract Monitoring Data Set Update
  • CR1744 (1 April 2020) - DCB1533 Patient Level Contract Monitoring Data Set Update
  • CR1753 (1 April 2020) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update
  • CR1757 (1 April 2020) - DDCN 1757/2020 Organisation Data Service Information Update
  • CR1752 (Immediate) - DDCN 1752/2020 Practitioners with a Special Interest Name Change

Release: December 2019

  • CR1746 (Immediate) - DCB0039 GUMCAD Sexually Transmitted Infection Surveillance System Data Set
  • CR1747 (Immediate) - DCB2212 Drugs Patient Level Contract Monitoring Data Set Update
  • CR1724 (1 January 2020) - DCB1533 National Workforce Data Set Version 3.1
  • CR1756 (Immediate) - DDCN 1756/2019 Social Work England
  • CR1703 (Immediate) - DDCN 1703/2019 Update to GP Default Code V81998 Definition
  • CR1741 (Immediate) - DDCN 1741/2019 Critical Care Minimum Data Set

Release: October 2019

  • CR1668 (Immediate) - DDCN 1668/2019 Retirement of National Renal Data Set

Release: August 2019

  • CR1661 (1 September 2019) - DCB1533 Systemic Anti-Cancer Therapy Data Set Version 3
  • CR1734 (Immediate) - DDCN 1734/2019 Consultation Medium Used Update
  • CR1731 (Immediate) - DDCN 1731/2019 Retirement of Quarterly Bed Availability and Occupancy Data Set (KH03)
  • CR1735 (Immediate) - DDCN 1735/2019 Retirement of Mixed Sex Accommodation Data Set
  • CR1641 (Immediate) - DDCN 1641/2019 Retirement of Emergency Care Weekly Situation Report Data Set

Release: July 2019

  • CR1634 (Immediate) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set
  • CR1634 (Immediate) - DCB2123 Patient Level Information Costing System (PLICS) Acute Data Set
  • CR1696 (Immediate) - DDCN 1696/2019 SNOMED CT Subsets
  • CR1722 (Immediate) - DDCN 1722/2019 GUMCAD Sexually Transmitted Infection Surveillance System Data Set

Release: May 2019

  • CR1611 (Immediate) - DCB2050 Introduction of the Aggregate Contract Monitoring Data Set
  • CR1613 (Immediate) - DCB3003 Introduction of Patient Level Contract Monitoring Data Set
  • CR1612 (Immediate) - DCB3002 Introduction of Devices Patient Level Contract Monitoring Data Set
  • CR1615 (Immediate) - DCB2212 Introduction of Drugs Patient Level Contract Monitoring Data Set
  • CR1713 (Immediate) - DCB1593 Venous Thromboembolism Risk Assessment Data Set Update
  • CR1730 (Immediate) - DDCN 1730/2019 Retirement of Diagnostics Waiting Times and Activity Data Set
  • CR1729 (Immediate) - DDCN 1729/2019 Retirement of Diagnostics Waiting Times Census Data Set
  • CR1728 (Immediate) - DDCN 1728/2019 Retirement of Referral To Treatment Data Set
  • CR1727 (Immediate) - DDCN 1727/2019 Retirement of National Direct Access Audiology Data Set
  • CR1725 (Immediate) - DDCN 1725/2019 Retirement of Quarterly Monitoring Cancelled Operations Data Set (QMCO)

Release: April 2019

  • CR1704 (1 April 2019) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update
  • CR1708 (Immediate) - DDCN 1708/2019 Retirement of KC50: Immunisation Programmes Activity Data Set (KC50)
  • CR1700 (Immediate) - DDCN 1700/2019 Retirement of KC65: Colposcopy Clinics: Referrals, Treatments and Outcomes
  • CR1699 (Immediate) - DDCN 1699/2019 Retirement of KC53: Adult Screening Programmes - Cervical Screening
  • CR1698 (Immediate) - DDCN 1698/2019 Retirement of Edifact Items
  • CR1568 (Immediate) - DDCN 1568/2019 Retirement of KC61: Pathology Laboratories: Cervical Screening and Outcome of Referrals
  • CR1536 (Immediate) - DDCN 1536/2019 Retirement of KH12: Imaging and Radiological Examinations or Tests in any Part of a Hospital
  • CR1499 (Immediate) - DDCN 1499/2019 Retirement of NHS Health Checks Data Set

Release: March 2019

  • CR1550 (1 April 2019) - DCB1513 Maternity Services Data Set Version 2
  • CR1648 (1 April 2019) - DCB0011 Mental Health Services Data Set Version 4 
  • CR1654 (1 April 2019) - DCB0092-2062 Update to Commissioning Data Set Type 011 Emergency Care
  • CR1715 (1 April 2019) - DCB0092-2062 Corrigendum to Commissioning Data Set V6-2-2 Type 011 Emergency Care
  • CR1717 (1 April 2019) - DCB0092-2062 Corrigendum to Commissioning Data Set V6-2-1 Type 011 Emergency Care
  • CR1695 (Immediate) - DDCN 1695/2019 Emergency Care Department Type - Urgent Treatment Centres
  • CR1704 (1 April 2019) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set Update

Release: December 2018

  • CR1650 (1 January 2018) - DCB1067 National Workforce Data Set v3.0

Release: November 2018

  • CR1631 (Immediate) - DCB3017 Overseas Visitor Charging Category

Release: October 2018

  • CR1618 (1 October 2018) - DCB0039 GUMCAD Sexually Transmitted Infection Surveillance System Data Set
  • CR1666 (Immediate) - DDCN 1666/2018 Stop Smoking Services Quarterly Data Set

Release: September 2018

Release: July 2018

  • CR1639 (1 April 2018) - DCB2117 NHS Continuing Healthcare Data Set Update
  • CR1630 (4 June 2018) - DCB1567 National Joint Registry Data Set Version 7
  • CR1658 (Immediate) - DDCN 1658/2018 Young Offender Institution

Release: May 2018

  • CR1653 (Immediate) - DDCN 1653/2018 HIV and AIDS Reporting Data Set Update
  • CR1647 (Immediate) - DDCN 1647/2018 Terminology and Classifications Update

Release: April 2018

  • CR1636 (Immediate) - DDCN 1636/2018 Department of Health: Change of name
  • CR1638 (30 April 2018) - DCB0090 Health and Social Care Organisation Reference Data: Introducing an Application Programming Interface (API)

Release: March 2018

  • CR1588 (1 April 2018) - DCB1521 Cancer Outcomes and Services Data Set Version 8
  • CR1589 (1 April 2018) - DCB0147 National Cancer Waiting Times Monitoring Data Set Version 2.0
  • CR1610 (1 April 2018) - DCB0011 Mental Health Services Data Set Version 3.0
  • CR1642 (Immediate) - DDCN 1642/2018 Youth Offenders Institute: Change of name
  • CR1635 (Immediate) - DDCN 1635/2018 Edubase: Change of name

Release: January 2018

  • CR1633 (Immediate) - DDCN 1633/2017 Introduction of Strategic Data Collection Service (SDCS) and Data Services Platform (DSP)

Release: November 2017

  • CR1623 (Immediate) - DCB0089 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set
  • CR1628 (Immediate) - DDCN 1628/2017 Employment Status

Release: October 2017

  • CR1619 (1 October 2017) - DCB1067 National Workforce Data Set Version 2.9
  • CR1595 (Immediate) - DCB0155 Stop Smoking Services Quarterly Data Set
  • CR1572 (Immediate) - DCB2094 Sexual Orientation
  • The October 2017 Release updates the NHS Data Model and Dictionary Help Pages and Demonstrations to reflect the new organisation structure.

Release: September 2017

  • CR1587 (1 October 2017) - SCCI1069 Community Services Data Set (CSDS) Version 1.0

Release: July 2017

  • CR1555 (Immediate) - SCCI1518 Sexual and Reproductive Health Activity Data Set Changes
  • CR1606 (Immediate) - SCCI0011 Mental Health Services Data Set Version 2 Corrigendum

Release: June 2017

  • CR1607 (Immediate) - DDCN 1607/2017 Renaming of NHS Commissioning Board Commissioning Region and NHS England Region (Geography)
  • CR1604 (Immediate) - DDCN 1604/2017 Introduction of the Data Coordination Board

Release: April 2017

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 October 2017:

  • CR1598 (1 October 2017) - SCCI0092-2062 Commissioning Data Set Type 011 Emergency Care

Release: March 2017

  • CR1605 (Immediate) - DDCN 1605/2017 NHS Number Status Indicator Code
  • CR1594 (Immediate) - DDCN 1594/2017 Technology Reference Data Update Distribution (TRUD)
  • CR1564 (01 April 2017) - SCCI1521 Cancer Outcomes and Services Data Set Version 7
  • CR1563 (01 April 2017) - SCCI0011 Mental Health Services Data Set Version 2.0
  • CR1577 (01 April 2017) - SCCI0084 Introduction of OPCS-4.8

Release: December 2016

Release: November 2016

Release: October 2016

  • CR1578 (Immediate) - DDCN 1578/2016 Religious or Other Belief System Affiliation Groups SNOMED CT Subset
  • CR1569 (Immediate) - DDCN 1569/2016 NHS Improvement

Release: September 2016

  • CR1545 (Immediate) - SCCI0075 and SCCI0076 Updates to the Neonatal Critical Care and Paediatric Critical Care Minimum Data Sets

Release: August 2016

  • CR1532 (Immediate) - SCCI0090 Health and Social Care Organisation Reference Data
  • CR1583 (Immediate) - DDCN 1583/2016 Introduction of NHS Digital
  • CR1575 (Immediate) - DDCN 1575/2016 Introduction of the National Cancer Registration and Analysis Service (NCRAS)
  • CR1570 (Immediate) - DDCN 1570/2016 Update to COVER Central Return Data Set

Release: July 2016

  • CR1565 (Immediate) - ISB 1561 Retirement of Diabetes Summary Core Data Set ISB 1561

Release: March 2016

  • CR1300 (1 April 2016) - SCCI01477 Updates to the National Cancer Waiting Times Monitoring Data Set and introduction of the XML Schema
  • CR1412 (1 April 2016) - SCCI0021 Introduction of the International Classification of Diseases (ICD) 10th Revision 5th Edition
  • CR1544 (1 April 2016) - SCCI1111 Radiotherapy Data Set - Change of data flow
  • CR1549 (1 April 2016) - SCCII0011 Mental Health Services Data Set Version 1.1

Release: February 2016

  • CR1517 (1 January 2016) - SCCI1067 Workforce Data Set Version 2.8
  • CR1559 (Immediate) - DDCN 1559/2016 Lower Layer Super Output Area (Residence) and ONS Local Government Geography Code (Local Authority District)

Release: December 2015

  • CR1514 (1 January 2016) - SCCI0011 Mental Health Services Data Set
  • CR1515 (1 January 2016) - SCCI0011 Retirement of Mental Health Standards
  • CR1560 (Immediate) - DDCN 1560/2015 Retirement of Data Management and Integration Centre

Release: November 2015

  • CR1558 (Immediate) - DDCN 1558/2015 Children and Young People’s Health Services Data Set and Community Information Data Set Inconsistencies
  • CR1554 (1 October 2015) - SCCI2026 Corrigendum to CR1494 Female Genital Mutilation Data Set

Release: October 2015

  • CR1534 (Immediate) - DDCN 1534/2015 Retirement of Hospital Episode Statistics Cross Reference Tables

Release: September 2015

  • CR1521 (Immediate) - SCCI1580 Palliative Care Co-ordination: Core content (Formerly End of Life Care)
  • CR1522 (Immediate) - DDCN 1522/2015 Update General Dental Council Registration Number
  • CR1530 (Immediate) - ISB 0158 Retirement of Ambulance Services (KA34) Central Return Data Set
  • CR1528 (Immediate) - ISB 1568 Retirement of KO41 (A) Hospital and Community Health Service Complaints and KO41 (B) General Practice (including Dental) Complaints Central Return Forms
  • CR1551 (Immediate) - ISB 0133 Retirement of HPV Immunisation Programme Vaccine Monitoring Monthly Minimum Data Set and HPV Immunisation Programme Vaccine Monitoring Annual Minimum Data Set

Release: August 2015

  • CR1374 (1 September 2015) - SCCI1510 Community Information Data Set Update
  • CR1356 (1 September 2015) - SCCI1069 Children and Young People’s Health Services Data Set Update and XML Schema
  • CR1529 (Immediate) - DDCN 1529/2015 Change to the Mechanism for XML Schema Publication and Download
  • CR1543 (Immediate) - DDCN 1543/2015 Treatment Function Code: 840 Audiology

Release: July 2015

  • CR1475 (Immediate) - SCCI1605 Accessible Information

Release: June 2015

  • CR1518 (Immediate) - ISB 092 CDS 6-1 Retirement
  • CR1525 (Immediate) - DDCN 1525/2015 Burden Advice and Assessment Service (BAAS)
  • CR1524 (Immediate) - DDCN 1524/2015 Updating of Activity Location Type and Source of Admission Attributes
  • CR1505 (Immediate) - DDCN 1505/2015 Death Cause Information

Release: May 2015

  • CR1507 (Immediate) - DDCN 1507/2015 To add SUS CDS business rule H4 text

Release: April 2015

  • CR 1494 and CR 1506 (1 April 2015) - SCCI2026 Amd 12/2014 Female Genital Mutilation Data Set and Retirement of Female Genital Mutilation Prevalence Data Set
  • CR1513 (27 April 2015) - DDCN 1513/2015 Introduction of NHS England Region (Geography)
  • CR1509 (1 April 2015) - ISB 1513 Maternity Services Data Set

  • CR1509 is a corrigendum to CR1355 (1 November 2014) - ISB 1513 Amd 45/2012 Maternity Services Data Set Update and XML Schema published in the October 2014 release

Release: March 2015

  • CR1492 (1 April 2015) - SCCI1521 Amd 17/2014 Updates to the Cancer Outcomes and Services Data Set and XML Schema

Release: February 2015

  • CR1486 (27 February 2015) - ISB 0090 Amd 9/2014 Organisation Data Service – Health and Justice Organisation Identifiers

Due to a delay in the Organisation Data Service (ODS) February release, the implementation date is now 6 March 2015.

Release: January 2015

Release: December 2014

  • CR1396 (31 October 2014) - ISB 1567 Amd 15/2014 National Joint Registry Data Set Version 6

    The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 October 2015:

  • CR1487 (1 October 2015) - ISB 0089 Amd 8/2014 Cover of Vaccination Evaluated Rapidly (COVER) Central Return Data Set

Release: November 2014

  • CR1420 (Immediate) - ISB 0139 Amd 29/2013 Genitourinary Medicine Clinic Activity Data Set (GUMCAD) Update
  • CR1421 (Immediate) - ISB 1518 Amd 30/2013 Sexual and Reproductive Health Activity Data Set (SRHAD) Update
  • CR1422 (Immediate) - ISB 1518 Amd 30/2013 Retirement of Central Return Form KT31 Cross Sector Services

Release: October 2014

Release: September 2014

  • CR1484 (Immediate) - DDCN 1484/2014 Female Genital Mutilation SNOMED CT Subsets

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 31 July 2015:

  • CR1344 (31 July 2015) - ISB 1594 Amd 31/2012 Information Sharing to Tackle Violence Minimum Data Set

Release: August 2014

  • CR1360 (1 September 2014) - ISB 0011 Amd 5/2014 Mental Health and Learning Disabilities Data Set

Release: July 2014

  • CR1351 (1 July 2014) - ISB 1520 Amd 02/2013 Improving Access to Psychological Therapies Data Set Version 1.5
  • CR1482 (Immediate) - DDCN 1482/2014 Source of Referral for Mental Health
  • CR1480 (Immediate) - DDCN 1480/2014 Mental Health Care Cluster 9
  • CR1477 (Immediate) - DDCN 1477/2014 Payment by Results

  • Note: CR1383 (31 December 2014) - ISB 1555 Amd 10/2012 Personal Demographics Service Birth Notification Data Sets

At the Standardisation Committee for Care Information meeting on 28th May 2014, an amendment to the implementation date of the ISB information standard was approved. The implementation date is now 31 December 2014.

  • The July 2014 Release updates the NHS Data Model and Dictionary Help Pages to reflect the new organisation structure.

Release: June 2014

  • CR1465 (Immediate) - DDCN 1465/2014 Primary Care Trusts and NHS Trusts
  • CR1461 (Immediate) - DDCN 1461/2014 New Standardisation Committee for Care Information (SCCI) Process
  • CR1383 (30 June 2014) - ISB 1555 Amd 10/2012 Personal Demographics Service Birth Notification Data Sets

Release: May 2014

Release: April 2014

Release: March 2014

  • CR1388 (1 April 2014) - ISB 1521 Amd 23/2013 Updates to the Cancer Outcomes and Services Data Set and XML Schema
  • CR1370 (1 April 2014) - ISB 1533 Amd 24/2013 Updates to the Systemic Anti-Cancer Therapy Data Set and XML Schema
  • CR1322 (1 April 2014) - ISB 0111 Amd 26/2012 Changes to the Radiotherapy Data Set
  • CR1387 (1 April 2014) - ISB 0084 Amd 10/2013 Introduction of OPCS-4.7
  • CR1376 (1 April 2014) - ISB 1607 Amd 26/2013 Emergency Care Weekly Situation Report Data Set
  • CR1433 (Immediate) - DDCN 1433/2014 Data Services for Commissioners
  • CR1467 (1 April 2014) - DDCN 1467/2014 Retirement of Standards
  • CR1464 (1 April 2014) - DDCN 1464/2014 Retirement of Standards - Domains and Diagrams
  • CR1458 (1 April 2014) - DDCN 1458/2014 Retirement of Standards - DSCNs - 11/97/P05, 12/97/P06, 15/97/P09, 18/97/P12, 22/96/P19, 32/96/P27, 49/97/P35, 62/95/P51, 07/2007, 08/2009, 17/92, 20/2001, 22/2006 and 38/2002
  • CR1444 (1 April 2014) - DDCN 1444/2014 Retirement of Standards
  • CR1436 (1 April 2014) - DDCN 1436/2014 Retirement of Standards
  • CR1435 (1 April 2014) - DDCN 1435/2014 Retirement of Standards - DSCNs 22/95/P21, 20/91, 21/93, 40/95/P34, 09/94/P04, 93/95/P76, 23/94/A04, 8/92 and 17/93
  • CR1432 (1 April 2014) - DDCN 1432/2014 Retirement of Standards - DSCN 3/92, DSCN 12/96/P11, DSCN 50/94/P36, DSCN 66/96/W09 and DSCN 16/93
  • CR1429 (1 April 2014) - DDCN 1429/2014 Retirement of Standards - DSCN 07/96/P06
  • CR1425 (1 April 2014) - DDCN 1425/2014 Retirement of Standards
  • CR1423 (1 April 2014) - DDCN 1423/2014 Retirement of Standards - DSCNs 37/98/A09, 14/97/P08, 12/2002, 37/2003, 14/2004 and 27/2001
  • CR1419 (1 April 2014) - DDCN 1419/2014 Retirement of Standards - DSCNs 39/98/A11, 09/99/P06, 11/99/P07, 13/2003, 38/2001, 22/2001, 19/98/A02, 40/96/P34, 29/94/P19, 49/94/P35, 34/95/P29, 53/96/P44 and 96/95/P79
  • CR1418 (1 April 2014) - DDCN 1418/2014 Retirement of Standards
  • CR1417 (1 April 2014) - DDCN 1417/2014 Retirement of Standards - DSCNs 13/95/P12, 44/2001, 29/2004, 18/98/W02 and 24/98/F01
  • CR1416 (1 April 2014) - DDCN 1416/2014 Retirement of Standards - KC64 - DSCNs 05/98/P05 and 26/95/W02
  • CR1414 (1 April 2014) - DDCN 1414/2014 Retirement of Standards - DSCNs 03/99/P03, 10/2002, 12/99/A04, 20/98/A03, 30/98/P21, 35/99/P25, 37/97/P24 and 43/97/P29
  • CR1413 (1 April 2014) - DDCN 1413/2014 Retirement of Standards - DSCNs 13/97/P07, 15/96/P14, 17/2001, 20/2004, 21/2001, 21/2003, 28/98/P20, 33/2003 and 43/2002
  • CR1409 (1 April 2014) - DDCN 1409/2014 Retirement of Standards - DSCN's 46/97/P32, 01/2004, 04/2004, 11/2005, 27/2002, 31/2002, 53/2002 and 54/2002

Release: February 2014

  • CR1460 (Immediate) - DDCN 1460/2014 NHS Dental Services Update
  • CR1459 (Immediate) - DDCN 1459/2014 General Medical Practitioner (Specified), Doctor Index Number and General Medical Practitioner PPD Code Update
  • CR1446 (Immediate) - DDCN 1446/2014 Health and Social Care Information Centre Update
  • CR1404 (Immediate) - DDCN 1404/2014 Retirement of e-Gif definitions
  • CR1395 (28 February 2014) - ISB 0090 Amd 17/2013 Organisation Data Service – NHS Postcode Directory

Release: January 2014

  • CR1386 (31 January 2014) - ISB 0090 Amd 9/2013 Special Health Authority (SpHA) Code Structure Change
  • CR1443 (Immediate) - DDCN 1443/2014 Change of name of the National Institute for Health and Clinical Excellence
  • CR1441 (Immediate) - DDCN 1441/2014 Retirement of Review of Central Returns (ROCR) - Central Return Form KH03A
  • CR1440 (Immediate) - DDCN 1440/2014 Retirement of Review of Central Returns (ROCR) - Genitourinary Medicine Access Monthly Monitoring Data Set
  • CR1439 (Immediate) - DDCN 1439/2013 Retirement of Review of Central Returns (ROCR) Returns
  • CR1405 (Immediate) - DDCN 1405/2013 Overseas Visitors
  • CR1393 (Immediate) - DDCN 1393/2013 Amendment to Inter-Provider Transfer Administrative Minimum Data Set Overview
  • CR1392 (Immediate) - DDCN 1392/2013 Review of Central Returns (ROCR) Discontinuations - Referral to Treatment Performance Sharing Data Set
  • CR1391 (Immediate) - DDCN 1391/2013 Review of Central Returns (ROCR) Discontinuations - Referral to Treatment (RTT) Summary Patient Tracking List Data Set

The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 June 2014:

Release: November 2013

  • CR1424 (Immediate) - DDCN 1424/2013 Application Identifier (GS1)
  • CR1367 (29 November 2013) - ISB 0090 Amd 5/2013 Organisation Data Service - Introduction of New Sub Type Identifier for Private Dental Practices
  • CR1359 (29 November 2013) - ISB 0090 Amd 47/2012 Organisation Data Service - Identification Codes for Local Authorities
  • CR1407 (Immediate) - DDCN 1407/2013 Clinical Investigations
  • CR1415 (Immediate) - DDCN 1415/2013 Area Teams
  • CR1411 (Immediate) - DDCN 1411/2013 Update to Supporting Information: SNOMED CT®

Release: September 2013

  • CR1348 (1 October 2013) - ISB 1597 Amd 35/2012 Breast Screening Programmes Data Set (KC63 and KC62)
  • CR1403 (Immediate) - DDCN 1403/2013 Religious or Other Belief System Affiliation
  • CR1384 (Immediate) - DDCN 1384/2013 Health and Social Care Information Centre Rebranding of XML Schemas
  • CR1397 (Immediate) - DDCN 1397/2013 Retired Main Specialty Codes

Release: July 2013

  • CR1377 (Immediate) - ISB 0105 Retirement of Accident and Emergency Quarterly Monitoring Data Set (QMAE)

Release: May 2013

Release: April 2013

  • CR1372 (Immediate) - DDCN 1372/2013 Organisation Update: April 2013
  • CR1369 (Immediate) - DDCN 1369/2013 Organisation Codes and Organisation Types
  • CR1347 (1 April 2013) - ISB 1521 Amd 40/2012 Updates to the Cancer Outcomes and Services Data Set and XML Schema

Release: March 2013

Release: February 2013

  • CR1336 (Immediate) - DDCN 1336/2013 XML Schema Constraint Pages
  • CR1362 (Immediate) - DDCN 1362/2013 Update to Organisations in the NHS Data Model and Dictionary
  • CR1246 (Immediate) - DDCN 1246/2013 Guidance for Merging Organisations
  • CR1345 (Immediate) - DDCN 1345/2013 e-Government Interoperability Framework (e-GIF) and Government Data Standards Catalogue
  • CR1354 (Immediate) - DDCN 1354/2013 Treatment Function Code - Well Babies

Release: December 2012

  • CR1155 (Immediate) - ISB 1567 Amd 12/2011 National Joint Registry Data Set Version 5
  • CR1324 (1 December 2012) - ISB 1067 Amd 23/2012 Workforce Data Set Version 2.5
  • CR1196, CR1287 and CR1195 (1 January 2013) - ISB 1521 Amd 64/2010 Cancer Outcomes and Services Data Set, Cancer Outcomes and Services Data Set Message and Retirement of Cancer Registration Data Set and National Cancer Data Set

The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

  • CR1337 (1 April 2013) - ISB 1072 Amd 30/2012 Update to Child and Adolescent Mental Health Services Secondary Uses Data Set

Release: November 2012

  • CR1166, CR1167 and CR1306 (1 November 2012) - ISB 0092 Amd-16-2010 Commissioning Data Set Version 6-2, Commissioning Data Set XML Message Version 6-2 and Retirement of CDS 6-0
  • CR1305 (1 April 2013) - ISB 0092 Amd 06/2011 Allied Health Professions Referral to Treatment (AHP RTT) Update - CDS 6-2
  • CR1286 (1 November 2012) - ISB 0028 Amd 17/2012 Treatment Function Codes Update
  • CR1343 (Immediate) - DDCN 1343/2012 Change of name for NHS Commissioning Board Authority
  • CR1342 (Immediate) - DDCN 1342/2012 Overseas Visitors Update
  • CR1341 (Immediate) - DDCN 1341/2012 Discharge Default Code Descriptions
  • CR1323 (Immediate) - National Cancer Waiting Times Monitoring Data Set Update for "Delay Reason To Treatment For Cancer"

CR1323 is a corrigendum to CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set published in the June 2012 release

The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

CR1231 and CR1288 (1 April 2013) - ISB 1570 Amd 164/2010 HIV and AIDS Reporting Data Set and HIV and AIDS Related Data Set Message

Release: September 2012

  • CR1103 (Immediate) - ISB 0066 Amd 43/2010 Renal Data Set - Data Item Addition, Changes and Deletions
  • CR1334 (Immediate) - DDCN 1334/2012 Psychology Definitions
  • CR1331 (Immediate) - DDCN 1331/2012 Activity Date Time Type
  • CR1329 (Immediate) - DDCN 1329/2012 Change of name for "Health and Social Care Information Centre"

Release: August 2012

  • CR1326 (Immediate) - DDCN 1326/2012 Health and Care Professions Council
  • CR1241 (Immediate) - DDCN 1241/2012 NHS dictionary of medicines and devices
  • CR1292 (Immediate) - ISB 1549 Amd 4/2011 and DDCN 1292/2012 Deprecation and withdrawal of version 3.2 of the Acute Myocardial Infarction Data Set and subsequent retiring of the Data Set from the NHS Data Model and Dictionary

Release: June 2012

  • CR1314 (Immediate) - DDCN 1314/2012 Reasonable Offer Update
  • CR1282 (29 June 2012) - ISB 0090 Amd 36/2011 Independent Sector Healthcare Provider (ISHP) Codes extended for ISHPs and Sites
  • CR1258 (1 July 2012) - ISB 0147 Amd 23/2011 Changes to the National Cancer Waiting Times Monitoring Data Set

Release: May 2012

  • CR1215 (1 June 2012) - ISB 1067 Amd 30/2011 National Workforce Data Set

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2013:

  • CR1028 (1 April 2013) - ISB 1069 Amd 14/2012 Children and Young People's Health Services Data Set
  • CR1029 (1 April 2013) - ISB 1072 Amd 12/2012 Child and Adolescent Mental Health Services (CAMHS) Data Set
  • CR1104 (1 April 2013) - ISB 1513 Amd 13/2012 Maternity Secondary Uses Data Set

Release: March 2012

Release: January 2012

Release: November 2011

  • CR1264 (Immediate) - ISB 1077 Amd 3/2012 Automatic Identification and Data Capture (AIDC) for Patient Identification Data Set
  • CR1274 (Immediate) - DDCN 1274/2011 CDS Prime Recipient Identity Update

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

CR1265 (1 April 2012) - ISB 1520 Amd 29/2011 Changes to the Improving Access to Psychological Therapies Data Set

Release: October 2011

  • CR1271 (Immediate) - DDCN 1271/2011 Commissioning Data Set Addressing Grid Update
  • CR1268 (Immediate) - DDCN 1268/2011 Sexual Orientation Code
  • The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

  • CR1158 and CR1260 (1 April 2012) - ISB 1533 Amd 63/2010 Systemic Anti-Cancer Therapy Data Set and Systemic Anti-Cancer Therapy Data Set Message Schema

    The following have been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

  • CR1270 (1 July 2012) - ISB 1080 Amd 25/2011 Amendments to NHS Health Check Data Set
  • CR1250 (1 July 2012) - ISB 1080 Amd 25/2011 NHS Health Checks Data Set Message Schema Version 2.0.0

Release: August 2011

  • CR1232 (Immediate) - ISB 0034 Amd 26/2006 Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT) - NHS Data Model and Dictionary Overview
  • CR1222 (1 April 2012) - ISB 0021 Amd 86/2010 Introduction of the International Classification of Diseases Tenth Revision 4th Edition
  • CR1190 (1 September 2011) - ISB 1538 Amd 131/2010 Chlamydia Testing Activity Data Set
  • CR1188 (Immediate) - ISB 0139 Amd 85/2010 Genitourinary Medicine Clinic Activity Data Set (GUMCAD) Extension to include Enhanced Sexual Health Services (ESHS)

The following data set is initially being introduced for local use only. A future Information Standards Notice will be published to notify providers and system suppliers of the requirement to flow the data set nationally:

Release: July 2011

  • CR1249 (Immediate) - DDCN 1249/2011 General Pharmaceutical Council Registration Changes

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 July 2012:

Release: June 2011

  • CR1256 (Immediate) - DDCN 1256/2011 School Definitions
  • CR1117 (26 August 2011) - ISB 0090 Amd 94/2010 Organisation Data Service Identification Codes for Local Authorities in England and Wales
  • CR1251 (Immediate) - DDCN 1251/2011 Change to the Format/Length of Weekly Hours Worked
  • CR1243 (Immediate) - DDCN 1243/2011 National Interim Clinical Imaging Procedure (NICIP) Code Set

Release: April 2011

  • CR1154 (1 April 2011) - ISB 0011 Amd 87/2010 Mental Health Minimum Data Set Version 4.0
  • CR1234 (Immediate) - DDCN 1234/2011 Technology Reference Data Update Distribution Service (TRUD)
  • CR1168 (Immediate) - ISB 0097 Amd 140/2010 Genitourinary Medicine Access Monthly Monitoring Data Set Amendments - Removal of Human Immunodeficiency Virus data

The following has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2012:

Release: March 2011

Release: January 2011

  • CR1116 (1 April 2010) - ISB 0003 Amd 79/2010 Immunisation Programmes Activity Data Set (KC50)
  • CR1112 (1 April 2010) - ISB 1511 Amd 26/2010 NHS Continuing Healthcare and NHS Funded Nursing Care
  • CR1068 (Immediate) - ISB 0133 Amd 161/2010 Change To Central Return: Human Papillomavirus (HPV) Immunisation Programme - Vaccine Monitoring Minimum Data Set
  • CR1211 (Immediate) - DDCN 1211/2010 Commissioning Data Set Addressing Grid / Organisation Code (Code of Commissioner) Update

Release: December 2010

Release: November 2010

  • CR1119 (Immediate) - DDCN 1119/2010 Organisation Codes Update
  • CR1192 (Immediate) - DDCN 1192/2010 Change of name for "Health Solution Wales"
  • CR1199 (Immediate) - DDCN 1199/2010 General Pharmaceutical Council and Royal Pharmaceutical Society of Great Britain Update
  • CR1189 (Immediate) - DDCN 1189/2010 National Institute for Health and Clinical Excellence
  • CR1187 (Immediate) - DDCN 1187/2010 Introduction of the Department for Education

Release: September 2010

  • CR1128 (Immediate) - DDCN 1128/2010 Changes to reporting procedures for Overseas Visitors from the European Economic Area and Switzerland
  • CR1173 (Immediate) - DDCN 1173/2010 Care Quality Commission Update
  • CR1143 (Immediate) - DDCN 1143/2010 General Pharmaceutical Council
  • CR1061 (1 October 2010) - ISB 0092/2010 CDS Type 20: Out-patient: Retirement of Default Codes for Out-patient Procedures
  • CR1133 (Immediate) - ISB 00289/2010 National Specialty List

Release: August 2010

  • The August 2010 Release introduces the NHS Data Model and Dictionary Help Pages.

Release: July 2010

Release: May 2010

Release: March 2010

  • CR1123 (1 April 2010) - DSCN 18/2010 Information Standards Notice (ISN)
  • CR1139 (Immediate) - DSCN 16/2010 Person Weight
  • CR1130 (Immediate) - DSCN 15/2010 Change of name for "The NHS Information Centre for health and social care"
  • CR1013 (April 2010) - DSCN 14/2010 Sexual and Reproductive Health Activity Dataset (SRHAD)
  • CR1125 (Immediate) - DSCN 13/2010 NHS Data Model and Dictionary Maintenance Update - Policy Definitions
  • CR1122 (Immediate) - DSCN 11/2010 Changes to Family Planning References

Release: January 2010

  • CR1115 (Immediate) - DSCN 10/2010 Data Standards: Updating of e-Government Interoperability Framework and Government Data Standards Catalogue References

Release: December 2009

  • CR1100 (Immediate) - DSCN 25/2009 NHS Prescription Services Update
  • CR1045 (1 December 2009) - DSCN 17/2009 Referral to Treatment Clock Stop Administrative Event
  • CR1003 (1 December 2009) - DSCN 16/2009 Commissioning Data Sets: Mandation of 18 Week Referral To Treatment Data Items

Release: November 2009

  • CR1113 (Immediate) - DSCN 24/2009 Information Standards Board for Health and Social Care Update
  • CR1087 (Immediate) - DSCN 23/2009 Health Professions Council Update
  • CR1081 (Immediate) - DSCN 22/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
  • CR1019 (27 November 2009) - DSCN 21/2009 Data Standards: Organisation Data Service (ODS) - Optical Sites and Optical Headquarters
  • CR1034 (27 November 2009) - DSCN 20/2009 Data Standards: Organisation Data Service (ODS) - Care Homes in England and Wales and their Headquarters

Release: September 2009

  • CR1065 (1 October 2009) - DSCN 15/2009 Data Standards: Organisation Data Service, Local Health Boards

Release: June 2009

  • CR1014 (1 June 2009) - DSCN 13/2009 Religious and Other Belief System Affiliation
  • CR1074 (Immediate) - DSCN 12/2009 Data Standards: Care Quality Commission
  • CR1056 (Immediate) - DSCN 11/2009 Data Standards: NHS Data Model and Dictionary Maintenance Update
  • CR1072 (1 December 2009) - DSCN 10/2009 Data Standards: National Radiotherapy Data Set
  • CR1073 (Immediate) - DSCN 09/2009 Central Returns: Diagnostic Waiting Times and Activity Data Set
  • CR1066 (Immediate) - DSCN 08/2009 Data Standards: NHS Prescription Services and NHS Dental Services
  • CR1047 (1 April 2009) - DSCN 07/2009 Data Standards: Diabetic Retinopathy Screening Dataset v3.6
  • CR1059 (Immediate) - DSCN 06/2009 Data Standard: National Workforce Data Set v2.1
  • CR914 (April 2008 (Retrospective)) - DSCN 05/2009 NHS Stop Smoking Services Quarterly Monitoring Return
  • CR899 (Immediate) - DSCN 02/2009 NHS Data Model and Dictionary Maintenance Update

Release: March 2009

  • CR1001 (1 April 2009) - DSCN 03/2009 Introduction of Commissioning Data Set Schema Version 6-1 (2008-04-01) and update to Commissioning Data Set Schema Version 6-0 (2008-01-14)
  • CR976 (31 March 2009) - DSCN 26/2008 Subject: KP90 - Admissions, Changes in Status and Detentions under the Mental Health Act
  • CR1017 (1 April 2009) - DSCN 25/2008 Critical Care Minimum Data Set
  • CR1002 (1 April 2009) - DSCN 24/2008 Data Standards: Introduction of Commissioning Dataset Version 6.1
  • CR1016 (Immediate) - DSCN 23/2008 4 Byte Version of the Read Codes - Withdrawal

Release: December 2008

  • CR1022 (1 January 2009) - DSCN 29/2008 Data Standards: 18 Weeks Referral to Treatment (RTT) Time, Performance Sharing
  • CR901 (Immediate) - DSCN 28/2008 Removal of references to EDIFACT and the NHS Wide Clearing Service (NWCS)
  • CR843 (1 April 2009) - DSCN 22/2008 Data Standards: National Radiotherapy Data Set
  • CR1011 (1 January 2009) - DSCN 20/2008 Data Standards: National Cancer Waiting Times Minimum Data Set

Release: November 2008

  • CR1026 (3 November 2008) - DSCN 21/2008 Information Standard: Mental Health Act 2007 Mental Category

Release: August 2008

  • CR1018 (Immediate) - DSCN 19/2008 Data Standards: Change of Name for National Administrative Code Services (NACS) to Organisation Data Service (ODS)
  • CR956 (1 September 2008) - DSCN 18/2008 Central Return: Human Papillomavirus (HPV) Immunisation Programme, Vaccine Monitoring Minimum Dataset
  • CR861 (Immediate) - DSCN 16/2008 Central Return: Hospital and Community Services Complaints and General Practice (including Dental) Complaints - KO41(a) and KO 41(b)
  • CR964 (Immediate) - DSCN 14/2008 Central Return: 18 Weeks ‘Adjusted’ Referral to Treatment (RTT) Dataset
  • CR965 (Immediate) - DSCN 13/2008 Data Standards: Organisation Data Service (ODS) - Change to the Default Codes Set to Support Changes to GMS Contract
  • CR879 (Immediate) - DSCN 12/2008 Data Standards: Quarterly Monitoring: Cancelled Operations Data Set (QMCO)

Release: May 2008

  • CR502 (Immediate) - DSCN 10/2008 Data Standards: National Workforce Data Definitions (v2.0)
  • CR910 (1 April 2008) - DSCN 08/2008 Data Standards: National Direct Access Audiology Patient Tracking List (PTL) and Waiting Times (WT) data sets
  • CR900 (Immediate) - DSCN 07/2008 Data Standards: Inter-Provider Transfer Administrative Minimum Data Set
  • CR934 (1 April 2008) - DSCN 06/2008 Data Standards: Mental Health Minimum Data Set (version 3.0)
  • CR935 (Immediate) - DSCN 05/2008 Data Standards: 18 Weeks Rules Suite
  • CR925 (1 September 2008) - DSCN 04/2008 Genitourinary Medicine Clinic Activity Data Set Change to an Information Standard
  • CR942 (1 June 2008) - DSCN 03/2008 General Practice and General Medical Practitioner (GMP) - changes resulting from the introduction of the General Medical Services (GMS) Contract

Release: February 2008

  • CR812 (Immediate) - DSCN 01/2008 Central Return: Diagnostics Waiting Times Census Data Set
  • CR881 (31 December 2007) - DSCN 42/2007 Central Return: Referral To Treatment Summary Patient Tracking List
  • CR904 (Immediate) - DSCN 41/2007 Data Standards: Admission Intended Procedure Update
  • CR824 (1 February 2008) - DSCN 39/2007 Data Standards: 48 Hour Genitourinary Medicine Access Monthly Monitoring (GUMAMM)

Release: November 2007

  • CR919 (Immediate) - DSCN 38/2007 Data Standards: Mental Health Minimum Data Set Schema
  • CR814 (1 April 2008) - DSCN 37/2007 Data Standards: Introduction of Mental Health Minimum Data Set version 2.1
  • CR930 (31 December 2007) - DSCN 35/2007 Data Standards: A correction to the version 6 Commissioning Data Set schema
  • CR834 (Immediate) - DSCN 34/2007 Data Standards: Referral Request Received Date
  • CR875 (Immediate) - DSCN 33/2007 Data Standards: National Administrative Codes Service: Introduction of codes for the new Pan SHAs
  • CR880 (Immediate) - DSCN 29/2007 Data Standards: Amendments to Doctor Index Number (DIN) Description

Release: August 2007

  • CR845 (Immediate) - DSCN 28/2007 Data Standards: Treatment Function Code (Referral to Treatment Period)
  • CR831 (1 October 2007) - DSCN 27/2007 Data Standards: Update to Commissioning Data Set XML Schema v5
  • CR825 (1 October 2007) - DSCN 16/2007 Data Standards: Source of Referral for Outpatients (18 Weeks)

Release: June 2007

  • CR799 (31 December 2007) - DSCN 18/2007 Data Standards: Introduction of Commissioning Data Set Version 6
  • CR833 (Immediate) - DSCN 17/2007 Data Standards: Introduction of Commissioning Data Set validation table
  • CR801 (Immediate) - DSCN 15/2007 Data Standards: Cover of Vaccination Evaluated Rapidly (COVER) Return

Release: May 2007

  • CR800 (31 December 2007) - DSCN 14/2007 Commissioning Data Set Schema Version 6-0
  • CR856 (1 October 2007) - DSCN 13/2007 Data Standards: Discharge Ready Date
  • CR869 (Immediate) - DSCN 12/2007 Data Standards: Update to Clinical Coding Introduction
  • CR827 (1 October 2007) - DSCN 09/2007 Data Standards: Earliest Reasonable Offer Date
  • CR817 (1 October 2007) - DSCN 08/2007 Data Standards: Introduction of Age into Commissioning Data Sets
  • CR849 (May 2007) - DSCN 07/2007 National Administrative Codes Service: Introduction of new identification codes for Dental Consultants
  • CR822 (Immediate) - DSCN 06/2007 Data Standards: Update to Organisation Codes
  • CR850 (Immediate) - DSCN 05/2007 National Administrative Codes Service: Amendments to Default Codes
  • CR786 (1 April 2007) - DSCN 04/2007 Quarterly Monitoring Accident and Emergency Services (QMAE) Central Return

Release: February 2007

  • CR811 (Immediate) - DSCN 03/2007 Diagnostic Waiting Times and Activity
  • CR826 (1 October 2007) - DSCN 02/2007 Extension of Treatment Function to Support the Measurement of 18 Week Referral to Treatment Periods
  • CR813 (1 April 2007) - DSCN 01/2007 Paediatric Critical Care Minimum Data Set
  • CR768 (1 January 2007) - DSCN 18/2006 Changes to the NHS Data Dictionary to support the measurement of 18 week referral to treatment periods
  • CR798 (6 November 2006) - DSCN 19/2006 Commissioning Data Set (CDS) Version 5 XML Message Schema
  • CR776 (1 October 2006) - DSCN 05/2006 Data Standards: Accident and Emergency Enhancements to Investigation and Treatment Codes

Release: September 2006

  • CR795 (31 October 2006) - DSCN 22/2006 Organisation Codes / Organisation Site Codes
  • CR792 (1 April 2007) - DSCN 15/2006 Neonatal Critical Care
  • CR719 (1 April 2006) - DSCN 09/2006 Measuring and Recording of Waiting Times
  • CR791 (1 April 2007) - DSCN 13/2006 Priority Type
  • CR774 (1 September 2006) - DSCN 12/2006 Person Marital Status

Release: May 2006

  • CR764 (1 April 2006) - DSCN 08/2006 Diagnostics waiting times and activity
  • Correction to menu structure to include Critical Care Minimum Data Set

Release: April 2006

  • CR608 (1 October 2006) - DSCN 07/2006 Introduction of Commissioning Data Set Version 5 and its associated XML schema into the NHS Data Dictionary.
  • CR756 (1 September 2005) - DSCN 19/2005 PbR Commissioning for Out of Area Treatments (OATs) and Charge-Exempt Overseas Visitors
  • CR724 (1 April 2006) - DSCN 13/2005 Critical Care Minimum Data Set
  • CR754 (1 April 2006) - DSCN 17/2005 Treatment Function and Main Specialty Code Revisions
  • CR763 (1 April 2006) - DSCN 20/2005 New Treatment Functions for therapy services and anticoagulant service
  • CR767 (Immediate) - DSCN 02/2006 Referral Request Received Date
  • CR690 (1 September 2005) - DSCN 16/2005 Marital Status

Release: August 2005

  • CR555 (1 April 2005) - DSCN 11/2005 Data Standards: COVER - Hepatitis B immunisation for babies
  • CR715 (Immediate) - DSCN 10/2005 Data Standards: Treatment Function Codes - correction and clarification of names and descriptions
  • CR706 (1 April 2005) - DSCN 09/2005 Data Standards: Cancer Registration Data Set
  • CR691 (1 July 2005) - DSCN 06/2005 Data Standards: NSCAG Commissioner Code

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UNITED KINGDOM AND IRELAND ASSOCIATION OF CANCER REGISTRIES

Change to Supporting Information: Changed Description

The United Kingdom and Ireland Association of Cancer Registries is an ORGANISATION.

The United Kingdom and Ireland Association of Cancer Registries (UKIACR) brings together ORGANISATIONS with an interest in developing cancer registration as a resource for studying and controlling cancer in England, Wales, Scotland and Northern Ireland.

For further information on the United Kingdom and Ireland Association of Cancer Registries, see the United Kingdom and Ireland Association of Cancer Registries website at: About us.For further information on the United Kingdom and Ireland Association of Cancer Registries, see the United Kingdom and Ireland Association of Cancer Registries website at: About us.

 

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CHILDHOOD IMMUNISATION STATUS

Change to Class: Changed Attributes

Attributes of this Class are:
CHILDHOOD IMMUNISATION TYPE
CHILDHOOD IMMUNISATION TYPE COMBINED
CHILDHOOD IMMUNISATION TYPE FOR COVER

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ELECTRONIC HEALTH RECORD

Change to Class: Changed Attributes

Attributes of this Class are:
GS1 APPLICATION IDENTIFIER GLOBAL
GS1 APPLICATION IDENTIFIER FOR GLOBAL
GS1 APPLICATION IDENTIFIER INTERNAL
GS1 APPLICATION IDENTIFIER FOR INTERNAL

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ANN ARBOR BULKY DISEASE INDICATION CODE

Change to Attribute: Changed Description

An indication of the Ann Arbor Staging System stage designation based on the presence of a bulky disease.

National Codes:

X“Bulky” disease present
0No “bulky” disease present
XBulky disease present
0No bulky disease present
 

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CHILDHOOD IMMUNISATION TYPE FOR COVER

Change to Attribute: New Attribute

The type of childhood immunisation given to a child on the IMMUNISATION DATE for the Cover of Vaccination Evaluated Rapidly (COVER) Data Set.

National Codes:

011D3 - Diphtheria
012D4 - Diphtheria booster
021aP3 - Pertussis
022aP4 - Pertussis booster
031T3 - Tetanus
032T4 - Tetanus booster
041Po3 - Polio
042Po4 - Polio booster
051Hib3 - Haemophilus influenzae type b
061MMR1 - Measles, Mumps, Rubella 1
062MMR2 - Measles, Mumps, Rubella 2
080Haemophilus influenzae type b and Meningococcal C (booster) (Hib/MenC (booster))
091PCV2 - Pneumococcal (Retired 01 July 2022)
092PCV (booster) - Pneumococcal (booster)
093PCV1 - Pneumococcal
120Rotavirus
131Hepatitis B (Hep B3) - Routine
132Hepatitis B (Hep B) - Selective (Retired 01 July 2022)
140Tuberculosis (BCG) (Retired 01 July 2022)
151MenB2 - Meningococcal serogroup B
152MenB (booster) - Meningococcal serogroup B (booster)
 

This attribute is also known by these names:
ContextAlias
pluralCHILDHOOD IMMUNISATION TYPES FOR COVER

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CHILDHOOD IMMUNISATION TYPE FOR COVER

Change to Attribute: New Attribute

CHILDHOOD IMMUNISATION TYPE FOR COVER
 
Data Elements:
CHILDHOOD IMMUNISATION TYPE (COVER)

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GS1 APPLICATION IDENTIFIER FOR GLOBAL  renamed from GS1 APPLICATION IDENTIFIER (GLOBAL)

Change to Attribute: Changed Name
  • Changed Name from Data_Dictionary.Attributes.G.Gr.GS1_APPLICATION_IDENTIFIER_(GLOBAL) to Data_Dictionary.Attributes.G.Gr.GS1_APPLICATION_IDENTIFIER_FOR_GLOBAL

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GS1 APPLICATION IDENTIFIER FOR INTERNAL  renamed from GS1 APPLICATION IDENTIFIER (INTERNAL)

Change to Attribute: Changed Description, Name

A number used to identify the meaning (or status) of the data which immediately follows the GS1 Application Identifier (Internal).

Notes:

The explanation of the National Code descriptions are:

National Codes:

91Hospital Identifiers: identifies that the data immediately following the GS1 Application Identifier (Internal) relates to local hospital identifiers, typically ORGANISATION IDENTIFIER (CODE OF PROVIDER), LOCAL PATIENT IDENTIFIER (EXTENDED) and the ORGANISATION GS1 GLOBAL LOCATION NUMBER.
92Baby Details: identifies that the data immediately following the GS1 Application Identifier (Internal) relates to baby details, typically NUMBER OF BABIES IDENTIFICATION CODE (PATIENT IDENTIFICATION), PERSON FAMILY NAME (MOTHER OF BABY) and PERSON GIVEN NAME (MOTHER OF BABY)
93PATIENT Descriptive Data: identifies that the data immediately following the GS1 Application Identifier (Internal) relates to PATIENT descriptive data, typically PERSON FAMILY NAME, PERSON GIVEN NAME, DATE OF BIRTH (PATIENT IDENTIFICATION) and TIME OF BIRTH (PATIENT IDENTIFICATION).
91Hospital Identifiers
92Baby Details
93PATIENT Descriptive Data
94General Data: identifies that the data immediately following the GS1 Application Identifier (Internal) is the 2 character code '00' followed by a PATIENT GS1 Global Service Relation Number. Note this Code is NOT valid for the AIDC for Patient Identification Data Set. All other uses of GS1 Application Identifier (Internal) '94' are reserved for future use.
94General Data

Notes:
Codes 95-97 have been reserved for national use only, and are not to be allocated by the NHS locally. Codes 98 and 99 can be allocated by the NHS for local use.

Further guidance can be found on the NHS England website at: DCB1077: AIDC for Patient Identification.

 

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GS1 APPLICATION IDENTIFIER FOR INTERNAL  renamed from GS1 APPLICATION IDENTIFIER (INTERNAL)

Change to Attribute: Changed Description, Name
  • Changed Description
  • Changed Name from Data_Dictionary.Attributes.G.Gr.GS1_APPLICATION_IDENTIFIER_(INTERNAL) to Data_Dictionary.Attributes.G.Gr.GS1_APPLICATION_IDENTIFIER_FOR_INTERNAL

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CHILDHOOD IMMUNISATION TYPE (COVER)

Change to Data Element: Changed Description, linked Attribute

Format/Length:an3
National Codes: 
National Codes:See CHILDHOOD IMMUNISATION TYPE FOR COVER
Default Codes: 

Notes:
CHILDHOOD IMMUNISATION TYPE (COVER) is the same as attribute CHILDHOOD IMMUNISATION TYPE for the Cover of Vaccination Evaluated Rapidly (COVER) Data Set.

Permitted National Codes:

011D3 - Diphtheria
012D4 - Diphtheria booster
021aP3 - Pertussis
022aP4 - Pertussis booster
031T3 - Tetanus
032T4 - Tetanus booster
041Po3 - Polio
042Po4 - Polio booster
051Hib3 - Haemophilus influenzae type b
061MMR1 - Measles, Mumps, Rubella 1
062MMR2 - Measles, Mumps, Rubella 2
080Haemophilus influenzae type b and Meningococcal C (booster) (Hib/MenC (booster))
091PCV2 - Pneumococcal (Retired 01 July 2022)
092PCV (booster) - Pneumococcal (booster)
093PCV1 - Pneumococcal
120Rotavirus
131Hepatitis B (Hep B3) - Routine
132Hepatitis B (Hep B) - Selective (Retired 01 July 2022)
140Tuberculosis (BCG) (Retired 01 July 2022)
151MenB2 - Meningococcal serogroup B
152MenB (booster) - Meningococcal serogroup B (booster)
CHILDHOOD IMMUNISATION TYPE (COVER) is the same as attribute CHILDHOOD IMMUNISATION TYPE FOR COVER. 

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CHILDHOOD IMMUNISATION TYPE (COVER)

Change to Data Element: Changed Description, linked Attribute

CHILDHOOD IMMUNISATION TYPE (COVER)
 
Attribute:
CHILDHOOD IMMUNISATION TYPE
CHILDHOOD IMMUNISATION TYPE FOR COVER

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SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT)

Change to Data Element: Changed Description

Format/Length:an1
National Codes:See SURFACTANT ADMINISTERED INDICATOR
Default Codes:9 - Not known if surfactant was administered during initial management at birth
Default Codes:9 - Not known if surfactant was administered

Notes:
SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT) is the same as attribute SURFACTANT ADMINISTERED INDICATOR.

For the National Neonatal Data Set - Episodic and Daily Care, SURFACTANT ADMINISTERED INDICATOR (DURING INITIAL MANAGEMENT) indicates either whether surfactant was administered to a baby during initial management at birth.

 

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SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE)

Change to Data Element: Changed Description

Format/Length:an1
National Codes:See SURFACTANT ADMINISTERED INDICATOR
Default Codes:9 - Not known if surfactant was administered on the Neonatal Critical Care Daily Care Date
Default Codes:9 - Not known if surfactant was administered

Notes:
SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) is the same as attribute SURFACTANT ADMINISTERED INDICATOR.

For the National Neonatal Data Set - Episodic and Daily Care, SURFACTANT ADMINISTERED INDICATOR (ON NEONATAL CRITICAL CARE DAILY CARE DATE) indicates whether surfactant was administered to a baby on the Neonatal Critical Care Daily Care Date.

 

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For enquiries about this Change Request, please email information.standards@nhs.net

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