NHS Data Model and DictionaryNHS Digital
Type:Patch
Reference:1941
Version No:1.0
Subject:Headings Patch: Data Sets
Effective Date:Immediate
Reason for Change:Patch
Publication Date:10 June 2025

Background:

The Accessibility Monitoring Team at the Government Digital Service have identified the NHS Data Model and Dictionary as having web accessibility issues that must be resolved to comply with current Web Content Accessibility Guidelines (2.2).

This Patch adds headings html to the Data Sets, other than Commissioning Data Sets, to comply with current Web Content Accessibility Guidelines.

A short demonstration is available which describes "How to Read an NHS Data Model and Dictionary Change Request", in an easy to understand screen capture including a voice over and readable captions. This demonstration can be viewed at: https://datadictionary.nhs.uk/elearning/change_request/index.html.

Note: if the web page does not open, please copy the link and paste into the web browser. A guide to how to use the demonstration can be found at: Demonstrations.

Summary of changes:

Supporting Information
AGGREGATE CONTRACT MONITORING DATA SET OVERVIEW   Changed Description
AIDC FOR PATIENT IDENTIFICATION DATA SET OVERVIEW   Changed Description
CANCER OUTCOMES AND SERVICES DATA SET OVERVIEW   Changed Description
CHLAMYDIA TESTING ACTIVITY DATA SET OVERVIEW   Changed Description
COMMUNITY SERVICES DATA SET OVERVIEW   Changed Description
COVER OF VACCINATION EVALUATED RAPIDLY (COVER) DATA SET OVERVIEW   Changed Description
CRITICAL CARE MINIMUM DATA SET OVERVIEW   Changed Description
DEVICES PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW   Changed Description
DIAGNOSTIC IMAGING DATA SET OVERVIEW   Changed Description
DRUGS PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW   Changed Description
ECDS V4 TYPE 001 - CDS INTERCHANGE HEADER OVERVIEW   Changed Description
ECDS V4 TYPE 002 - CDS INTERCHANGE TRAILER OVERVIEW   Changed Description
ECDS V4 TYPE 003 - CDS MESSAGE HEADER OVERVIEW   Changed Description
ECDS V4 TYPE 004 - CDS MESSAGE TRAILER OVERVIEW   Changed Description
ECDS V4 TYPE 005B - CDS TRANSACTION HEADER GROUP - BULK UPDATE PROTOCOL OVERVIEW   Changed Description
ECDS V4 TYPE 005N - CDS TRANSACTION HEADER GROUP - NET CHANGE PROTOCOL OVERVIEW   Changed Description
ELECTRONIC PRESCRIBING AND MEDICINES ADMINISTRATION DATA SETS OVERVIEW   Changed Description
EMERGENCY CARE DATA SET VERSION 4 OVERVIEW   Changed Description
FEMALE GENITAL MUTILATION DATA SET OVERVIEW   Changed Description
GUMCAD SEXUALLY TRANSMITTED INFECTION SURVEILLANCE SYSTEM DATA SET OVERVIEW   Changed Description
HEALTHCARE OPERATIONAL DATA FLOWS (ACUTE) DATA SET OVERVIEW   Changed Description
HIV AND AIDS REPORTING DATA SET OVERVIEW   Changed Description
IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES DATA SET OVERVIEW   Changed Description
INTER-PROVIDER TRANSFER ADMINISTRATIVE MINIMUM DATA SET OVERVIEW   Changed Description
MATERNITY SERVICES DATA SET OVERVIEW   Changed Description
MENTAL HEALTH SERVICES DATA SET OVERVIEW   Changed Description
NATIONAL CANCER WAITING TIMES MONITORING DATA SET OVERVIEW   Changed Description
NATIONAL JOINT REGISTRY DATA SET OVERVIEW   Changed Description
NATIONAL NEONATAL DATA SET OVERVIEW   Changed Description
NATIONAL WORKFORCE DATA SET OVERVIEW   Changed Description
NEONATAL CRITICAL CARE MINIMUM DATA SET OVERVIEW   Changed Description
NHS BREAST SCREENING PROGRAMME CENTRAL RETURN DATA SET (KC62) OVERVIEW   Changed Description
NHS BREAST SCREENING PROGRAMME CENTRAL RETURN DATA SET (KC63) OVERVIEW   Changed Description
PAEDIATRIC CRITICAL CARE MINIMUM DATA SET OVERVIEW   Changed Description
PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW   Changed Description
RADIOTHERAPY DATA SET OVERVIEW   Changed Description
SEXUAL AND REPRODUCTIVE HEALTH ACTIVITY DATA SET OVERVIEW   Changed Description
STOP SMOKING SERVICE QUARTERLY DATA SET OVERVIEW   Changed Description
SYSTEMIC ANTI-CANCER THERAPY DATA SET OVERVIEW   Changed Description
 

Date:10 June 2025
Sponsor:Tomas Sanchez Lopez, Director Technology and Data Integration, Data and Analytics, NHS England

Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.

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AGGREGATE CONTRACT MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Aggregate Contract Monitoring Data Set is to enable the interchange, in a uniform and consistent format, of monthly aggregate Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

Submission of the Aggregate Contract Monitoring Data Set is a contractual requirement and a recognised monthly reconciliation statement. It demonstrates the aggregated cost of commissioned clinical care provided to PATIENTS as well as financial adjustments not attributed directly to clinical care. The totality of expenditure documented in the Aggregate Contract Monitoring Data Set must be equivalent to the monetary value of the invoice raised by the Health Care Provider and presented to the commissioner.

Scope

Scope

The scope of the Aggregate Contract Monitoring Data Set is all NHS-funded clinical care provided (including drugs and MEDICAL DEVICES not covered by the National Tariff Payment System) provided to PATIENTS as well as financial adjustments not attributed directly to clinical care, for all commissioners. This covers:

The Aggregate Contract Monitoring Data Set is an aggregation of the three separate patient-level Contract Monitoring data set flows:

Submission

Submission

The Aggregate Contract Monitoring Data Set is submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Aggregate Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Aggregate Contract Monitoring Data Set, see the NHS England website at: Directly commissioned services reporting requirements.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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AIDC FOR PATIENT IDENTIFICATION DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The purpose of the Automatic Identification and Data Capture for Patient Identification Data Set is to support the accurate, timely and, therefore, safer identification of NHS PATIENTS in England, by encoding the key PATIENT identifiers into a GS1 DataMatrix 2D barcode which is printed on the PATIENT identity band.

Implementation of this Information Standard enables subsequent processes involving the PATIENT and care provided to the PATIENT (where these processes are also uniquely identified and barcoded) to be automatically identified using Automatic Identification and Data Capture (AIDC) techniques, e.g. bed management, phlebotomy, theatre management and medications administration.

The Automatic Identification and Data Capture for Patient Identification Data Set provides an agreed national standard for how to encode a GS1 DataMatrix with the key PATIENT identifiers on the identity wristband and covers production, printing and verification rules for the barcode.

Further guidance can be found on the NHS England website at: DCB1077: AIDC for Patient Identification.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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CANCER OUTCOMES AND SERVICES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

Please note that the data items which are included in the Pathology Sets in this version of the Cancer Outcomes and Services Data Set (v5 of the Pathology Data Sets), do NOT meet the Data Design Principles of NHS England and the NHS Data Model and Dictionary.  They have been included as part of this release of the Cancer Outcomes and Services Data Sets (v10) but data items which align to the Royal College of Pathologists data set but which do not meet the required standards, have been clearly marked as requiring an update at a later version, and should NOT be used in any other data collection or Information Standard until this has been completed.

The Cancer Outcomes and Services Data Set is a compiled data set which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national and international level), as well as other national cancer audit programmes.

The standard and XML Schema consists of:

  • a set of individual data items, with their definitions
  • the assemblage of data items into discrete data sets
  • the means of flowing the data items
  • compilation of the data items into a reconciled and verified data set.

Additionally, the output supports commissioning and service development through provision of relevant information on service delivery and outcomes.

All PATIENTS diagnosed with or receiving cancer treatment in or funded by the NHS in England are covered by the standard. This includes adult and paediatric cancer PATIENTS. The standard applies to all ORGANISATIONS providing Cancer Services within secondary acute care. It does not apply to general practice ORGANISATIONS.

The Cancer Outcomes and Services Data Set covers diseases as defined by the United Kingdom and Ireland Association of Cancer Registries (UKIACR) as described in the Cancer Outcomes and Services Data Set User Guide at Appendix A and B.

Unless otherwise specified, the term cancer is used throughout the standard and related documents to cover all conditions registerable by the United Kingdom and Ireland Association of Cancer Registries.

Submission Information

Submission Information

Providers of Cancer Services are required to provide a monthly return on all cancer PATIENTS using the Cancer Outcomes and Services Data Set.

The Cancer Outcomes and Services Data Set is submitted to the National Disease Registration Service (NDRS) using the COSDS XML Schema.

While the core and cancer site specific data sets are shown as separate data sets within the NHS Data Model and Dictionary, the COSDS XML Schema integrates each core and cancer site specific set of data elements. Documentation provided on the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas gives full details of the specification.

For all diagnoses not covered by a cancer site specific data set, only the Core Data Set should be completed. A full list of diagnoses mapped to the appropriate data set is provided in the National Disease Registration Service: Cancer Outcomes and Services Data Set User Guide.

Pathology

Pathology

From January 2016 Pathology Laboratories across England were mandated through SCCI1521 17/2014, to collect and return structured pathology using the COSDS XML Schema.

This replaced the current reporting to the National Disease Registration Service of electronic pathology reports which were then transcribed by the National Cancer Registration and Analysis Service into the Cancer Registration Reports. This also prevented Cancer Service teams, for example, Multidisciplinary Teams, Pathway Co-ordinators, duplicating the work, which had been happening as part of their data collection process.

From April 2020, the pathology data can only be collected and submitted using the separate Pathology Core Data Set and Pathology XML Schema. Pathology data items have been removed from the main Cancer Outcomes and Services Data Set.

This allows the Cancer Service teams to concentrate on collecting and reporting all the other clinical data required for the Cancer Outcomes and Services Data Set and the Pathologists to collect and report the pathology items. This will reduce the burden of data collection for the Cancer Service teams and allow for more accurate pathology reporting to be submitted to the National Disease Registration Service.

There will be no requirement for Pathology Laboratories to double report. Once their Laboratory Information Management Systems (LIMS) are updated to report in the COSDS XML Schema, all other pathology reporting can cease.

Further Guidance

Further Guidance

Further guidance for submission of the Cancer Outcomes and Services Data Set is provided by the National Disease Registration Service at: Cancer Outcomes and Services Data Set User Guide.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Cancer Outcomes and Services Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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CHLAMYDIA TESTING ACTIVITY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Chlamydia Testing Activity Data Set collects information on all chlamydia testing commissioned by the NHS and carried out in all Laboratory settings in England. It includes results taken from all PATIENTS tested for Chlamydia in all NHS settings, or in non-healthcare settings and as part of the NHS National Chlamydia Screening Programme in England.

Public Health England (PHE) is required to monitor and evaluate the NHS National Chlamydia Screening Programme (NCSP) through the reporting of data.

Data Extract Specification

Data Extract Specification

Description: Each Laboratory will be required to generate a quarterly disaggregated data extract of all chlamydia tests carried out using Nucleic Acid Amplification Testing (NAAT).

Time period: The extract will cover one calendar quarter, based on the date the SAMPLE is received at the Laboratory.

Frequency: Extracts will run quarterly, 6 weeks after the end of the quarter.

Format: Data returned should be formatted to a comma separated variable (CSV) or MS Excel file.

Transmission: Electronic files will be transmitted to Public Health England through the secure Microbiology and Epidemiology of STI's and HIV (MESH) Departments web portal. Connection to the portal requires a login account name and password which are available from Public Health England.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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COMMUNITY SERVICES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Community Services Data Set (CSDS) is a PATIENT level, output based, secondary uses data set which delivers robust, comprehensive, nationally consistent and comparable person-centred information for people who are in contact with publicly-funded Community Health Services. As a secondary uses data set it aims to re-use clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the Community Services Data Set covers all publicly-funded Community Health Services provided by Health Care Providers in England. This includes all SERVICES listed in the SERVICE OR TEAM TYPE REFERRED TO FOR COMMUNITY CARE within the Community Services Data Set. This includes acute and Independent Sector Healthcare Providers that provide publicly-funded Community Health Services.

The Community Services Data Set is used by the Department of Health and Social Care, commissioners and Health Care Providers of Community Health Services and PATIENTS, as the data set provides:

  • National, comparable, standardised data about Community Health Services that are being delivered, which will support intelligent commissioning decisions and SERVICE provision
  • Information on the use of resources to improve the operational management of SERVICES
  • Information on outcomes, to help to address health inequalities
  • Support for current national outcome indicators for Community Health Services
  • Traceability and visibility of Community Health Service expenditure, allowing the implementation of new payment approaches for Community Health Services through the development of defined currencies which are underpinned by consistent data
  • Information to improve reference costs for Community Health Services, to ensure that these are reported consistently
  • Support for a nationally consistent clinical record for all PATIENTS across England, which can be used to support national research projects
  • Information for the future development of Community Health Services.

Data Collection

Data Collection

The Community Services Data Set provides the definitions for data to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

Data is expected to be collected from various clinical systems, collated and assembled. This standard is intended to facilitate electronic data recording and reporting but it is not intended to create clinical records for Community Health Services or to enable systems used by Community Health Services to interoperate with other clinical systems.

Submission Information

Submission Information

The Community Services Data Set is submitted via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England using the Community Services Data Set (CSDS) XML Schema.

Format Information

Format Information

Data for submission is formatted into an XML file as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas.

For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Community Services Data Set (CSDS) submissions are made using the latest MS Access Community Services Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Community Services Data Set Intermediate Database.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net

Further Guidance

Further Guidance

Further information and implementation guidance has been produced by NHS England and is available at:

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Community Services Data Set Constraints.

XML Schema

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Intermediate Database (IDB)

Intermediate Database (IDB)

For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance.

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COVER OF VACCINATION EVALUATED RAPIDLY (COVER) DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Cover of Vaccination Evaluated Rapidly (COVER) Data Set is used to evaluate the routine childhood Immunisation Programme in England for children up to 5 years of age. The aim is to collect and report vaccine uptake data for all children at three months (Tuberculosis (BCG) only), one, two and five years of age on a quarterly and annual basis.

The Cover of Vaccination Evaluated Rapidly (COVER) Data Set is also used to evaluate the neonatal hepatitis B Immunisation Programme in England for babies born to hepatitis B surface antigen (HBsAg) positive mothers.

The information is used:

  • to reliably measure vaccine coverage
  • to evaluate the success of a vaccination programme
  • to identify susceptible populations for further interventions
  • and to inform future vaccine policy decisions.

The UK Health Security Agency is mandated to report on vaccine uptake figures for children aged three months (Tuberculosis (BCG) only), one, two and five years for the Local Authority (upper tier) registered population for the Public Health Outcomes Framework (PHOF) indicator Population vaccination coverage.

NHS England is mandated to produce the annual Cover of Vaccination Evaluated Rapidly (COVER) statistics. Cover of Vaccination Evaluated Rapidly (COVER) statistics enable the monitoring of the contribution of the routine childhood Immunisation Programme towards protecting and improving the nation’s health and are used to address inequalities.

The UK Health Security Agency and the Department of Health and Social Care also have commitments to report vaccine coverage figures to international organisations such as the World Health Organisation, and the European Centre for Disease Prevention and Control.

Submission

Submission

Immunisation records are held in Child Health Information Systems (CHIS). Quarterly and annual returns are transmitted by Child Health Record Departments (who operate local Child Health Information Systems (CHIS)) or other local Health Care Providers to the NHS England Strategic Data Collection Service (SDCS).

Further Guidance

Further Guidance

For further guidance see the UK Health Security Agency part of the gov.uk website at Vaccine uptake guidance and the latest coverage data.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present

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CRITICAL CARE MINIMUM DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Critical Care Minimum Data Set was developed by the Critical Care Information Advisory Group (CCIAG) and endorsed by the Intensive Care Society.

The Critical Care Minimum Data Set contains a subset of mandatory items for the generation of Critical Care Healthcare Resource Groups (HRGs). The Critical Care HRG subset replaced the Augmented Care Period data elements in the Commissioning Data Sets.

The purpose of the Critical Care Minimum Data Set is to provide a standardised set of data to support National Tariff Payment System, Healthcare Resource Groups, Resource Management, Commissioning and national policy analysis. The full Critical Care Minimum Data Set has been incorporated into and is consistent with the ICNARC (Intensive Care National Audit and Research Centre) data collection.

The Critical Care Minimum Data Set has been developed to be used in all units where Critical Care is provided. That is where the CRITICAL CARE LEVEL is National Code:

  • 02 Patients requiring more detailed observation or intervention including support for a single failing organ system or post-operative care and those 'stepping down' from higher levels of care
or
  • 03 Patients requiring advanced respiratory support alone or monitoring and support for two or more organ systems. This level includes all complex patients requiring support for multi-organ failure.

Neonates are excluded from the data set. The recording of Critical Care Minimum Data Set for older babies (over 28 days) on Neonatal and Paediatric Intensive Care Units is optional. However, the activity for children treated on adult critical care units should be recorded.

A subset of this minimum data set is used to derive Adult Critical Care HRGs. The subset is sent in the following Commissioning Data Set messages:

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DEVICES PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The purpose of the Devices Patient Level Contract Monitoring Data Set (DePLCM) is to enable the interchange, in a uniform format, of monthly PATIENT level device Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that device Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

The Devices Patient Level Contract Monitoring Data Set is a PATIENT level report containing PATIENT identifiers relating to High Cost Tariff Excluded Devices. Its purpose is to substantiate and provide detail to the information contained within the Aggregate Contract Monitoring Data Set (ACM).

Scope

Scope

The scope of the Devices Patient Level Contract Monitoring Data Set is all NHS-funded MEDICAL DEVICES not reimbursed through the National Tariff Payment System, as defined in the NHS England National Tariff Payment System High Cost Devices list and any High Cost Devices not associated with a National Tariff, provided to PATIENTS for all NHS commissioners.

This covers:

Note that the totality of expenditure in the Devices Patient Level Contract Monitoring Data Set must be equivalent to the aggregate monetary value shown relating to High Cost Tariff Excluded Devices in the Aggregate Contract Monitoring Data Set.

Submission

Submission

The Devices Patient Level Contract Monitoring Data Set is submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Devices Patient Level Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Devices Patient Level Contract Monitoring Data Set, see the NHS England website at: Directly commissioned services reporting requirements.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Devices Patient Level Contract Monitoring Data Set Constraints.

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DIAGNOSTIC IMAGING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Diagnostic Imaging Data Set was introduced by ISB 1577 Diagnostic Imaging Data Set, in response to the lack of detailed data on national data on Diagnostic Imaging tests for NHS PATIENTS. The original requirement came from the cancer strategy to improve GP direct access to certain Diagnostic Imaging tests, as a method was required to monitor implementation of this policy.

The Diagnostic Imaging Data Set, however, has many benefits for example, to:

  • Provide NHS data on GPs’ direct access to tests, as well as tests requested via other referral sources. Benchmarking data will be fed back to GPs and, where appropriate, used to encourage increased use of tests, leading to earlier diagnosis and hence improved outcomes
  • Provide more detailed NHS data than is currently available on test type (modality), body site of test and PATIENT demographics
  • Enable analysis of turnaround times for tests
  • Enable better analysis of cancer pathways by linking the National Cancer Registration and Analysis Service data to Diagnostic Imaging test data for cancer PATIENTS
  • Allow Public Health England (PHE) to calculate more accurate estimates of the distribution of individual radiation dose estimates from medical exposures.

From April 2012 it became a mandatory requirement that all providers of NHS-funded Diagnostic Imaging tests for NHS PATIENTS in England submit the central Diagnostic Imaging Data Set on a monthly basis.

The Diagnostic Imaging Data Set facilitates the collection of clinical data and the sharing of such data to underpin the delivery of effective Diagnostic Imaging. It is structured around the clinical processes of local Radiology Information Systems (RISs) used by NHS Trusts and NHS Foundation Trusts. It records administrative data relating to Diagnostic Imaging test ACTIVITY.

Information is collected relating exclusively to Diagnostic Imaging test ACTIVITY. The Diagnostic Imaging Data Set describes Diagnostic Imaging tests that have taken place as part of a broader PATIENT PATHWAY. This includes PATIENTS referred from within the ORGANISATION, either as an out-patient, in-patient or from Emergency Care Department, or referred directly from their GP or another Health Care Provider.

The Diagnostic Imaging Data Set is collected from NHS funded providers of Diagnostic Imaging test SERVICES and submitted via a portal on the NHS England website. The submissions are processed and aggregate extracts are produced for provider and commissioner ORGANISATIONS and national groups such as the Department of Health and Social Care and Public Health England. This also allows linkage to the National Cancer Registration and Analysis Service.

Please note that the collection of the Diagnostic Imaging Data Set does not replace any other collection of diagnostic data such as the Diagnostics Waiting Times and Activity Data Set (DM01), which should continue to be collected.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Diagnostic Imaging Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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DRUGS PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The purpose of the Drugs Patient Level Contract Monitoring Data Set (DrPLCM) is to enable the interchange, in a uniform format, of monthly PATIENT level drug Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that drug Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

The Drugs Patient Level Contract Monitoring Data Set is a PATIENT level report containing PATIENT identifiers relating to high cost (National Tariff-excluded) drugs. Its purpose is to substantiate and provide detail to the aggregate information contained within the Aggregate Contract Monitoring Data Set (ACM).

Scope

Scope

The scope of the Drugs Patient Level Contract Monitoring Data Set is all NHS-funded PRESCRIBED ITEMS not reimbursed through National Tariff Payment System, as defined by the NHS England National Tariff Payment System High Cost Tariff Excluded Drugs list, provided to PATIENTS for all NHS commissioners.

This covers:

Note that the totality of expenditure in the Drugs Patient Level Contract Monitoring Data Set must be equivalent to the aggregate monetary value shown relating to High Cost Tariff Excluded Drugs in the Aggregate Contract Monitoring Data Set.

Submission

Submission

The Drugs Patient Level Contract Monitoring Data Set is required to be submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Drugs Patient Level Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Drugs Patient Level Contract Monitoring Data Set, see the NHS England website at: Directly Commissioned Services Reporting Requirements.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Drugs Patient Level Contract Monitoring Data Set Constraints.

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ECDS V4 TYPE 001 - CDS INTERCHANGE HEADER OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 001 - Commissioning Data Set Interchange Header carries mandatory controls for a Commissioning Data Set Interchange and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set Interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ECDS V4 TYPE 002 - CDS INTERCHANGE TRAILER OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 002 - Commissioning Data Set Interchange Trailer carries mandatory controls for a Commissioning Data Set Interchange and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set Interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ECDS V4 TYPE 003 - CDS MESSAGE HEADER OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 003 - Commissioning Data Set Message Header carries mandatory controls for a Commissioning Data Set Message and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set Interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ECDS V4 TYPE 004 - CDS MESSAGE TRAILER OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 004 - Commissioning Data Set Message Trailer carries mandatory controls for a Commissioning Data Set Message and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set Interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ECDS V4 TYPE 005B - CDS TRANSACTION HEADER GROUP - BULK UPDATE PROTOCOL OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 005B - Commissioning Data Set Transaction Header Group - Bulk Update Protocol carries mandatory controls for a Commissioning Data Set Type and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set Interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows. All CDS Types using the Commissioning Data Set Bulk Replacement Update Mechanism of the Commissioning Data Set Submission Protocol must begin with this Mandatory Data Group.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ECDS V4 TYPE 005N - CDS TRANSACTION HEADER GROUP - NET CHANGE PROTOCOL OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Emergency Care Data Set V4 Type 005N - Commissioning Data Set Transaction Header Group - Net Change Protocol carries mandatory controls for a Commissioning Data Set Type and is only used by inclusion in other CDS Types.

Commissioning Data Set Interchanges containing Commissioning Data Set Messages submitted to the Secondary Uses Service must use the required Commissioning Data Set interchange and Message Header and Trailer Controls to provide the correct addressing and identification for the data flows. All CDS Types using the Commissioning Data Set Net Change Update Mechanism of the Commissioning Data Set Submission Protocol must begin with this Mandatory Data Group.

Multiple Commissioning Data Set messages are usually sent in a single Commissioning Data Set Interchange which consists of:

Dependent upon the Commissioning Data Set Submission Protocol being used, one of the following must be used:

Followed by:

  • The CDS Type - As required to carry the specific Commissioning Data Set data records

Each Commissioning Data Set message ends with:

Each Commissioning Data Set Interchange ends with:

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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ELECTRONIC PRESCRIBING AND MEDICINES ADMINISTRATION DATA SETS OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Electronic Prescribing and Medicines Administration Data Sets are secondary use data sets which aim to re-purpose clinical and operational data concerning the prescribing and administration of medication in Health Care Providers in England who have a live Electronic Prescribing and Medication Administration system.

The utilisation of secondary care PATIENT-level data supports improvements to health outcomes, and the Electronic Prescribing and Medicines Administration Data Sets will be linked to other national data sets to provide enhanced intelligence to support:

  • safety and effectiveness
  • monitoring uptake of innovative medicine
  • pharmacovigilance
  • cost-effectiveness (pharmacoeconomics)
  • compliance with best practice and policy directives
  • antimicrobial stewardship

Data in scope of the Electronic Prescribing and Medicines Administration Data Sets is from the Primary Electronic Prescribing and Medicine Administration system.  Therefore the data should not include activity where a separate system is used, for example for the delivery of certain cancer treatments (such as those covered by the Systemic Anti-Cancer Therapy Data Set), the prescribing and administration of specific medications such as Warfarin, and delivery of medications in specific care settings such as Intensive Care Units.

Care settings in scope of the Electronic Prescribing and Medicines Administration Data Sets are:

Submission Information

Submission Information

Electronic Prescribing and Medicines Administration Data Sets data for submission must be formatted into XML files as per the Technology Reference Update Distribution (TRUD) page at: NHS Data Model and Dictionary XML Schemas.

The data sets should be extracted from the primary Electronic Prescribing and Medicine Administration system on a weekly basis, covering the previous seven days' ACTIVITY for both prescribing and medicines administration. 

Data submissions are made to NHS England using the Message Exchange for Social Care and Health (MESH) portal.

Further Guidance

Further Guidance

Further guidance for the Electronic Prescribing and Medicines Administration Data Sets is available at Interoperable Medicines Programme.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Electronic Prescribing and Medicines Administration Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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EMERGENCY CARE DATA SET VERSION 4 OVERVIEW

Change to Supporting Information: Changed Description

Introduction

The Emergency Care Data Set Version 4 (ECDS V4) collects information about why people attend Emergency Care Departments and the treatment they receive to improve PATIENT care through better and more consistent information; allow better planning of healthcare SERVICES; improve communication between CARE PROFESSIONALS.

The Emergency Care Data Set Version 4 carries the data for Urgent and Emergency Care Activity.

Note that Emergency Care Data Set Version 4 is a Commissioning Data Set, see CDS Type.

Previous versions of Emergency Care Data Set can be found at: CDS V6-2-3 Type 011 - Emergency Care CDS

To access more detailed information on the Commissioning Data Sets, see the Commissioning Data Sets Introduction.

Notation

Notation

See Commissioning Data Set Notation for an explanation of Group Status and Group Repeats.

Business Rules

Business Rules

See Commissioning Data Set Business Rules for an explanation of the business and/or processing rules which apply to individual Data Elements.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the Emergency Care Data Set Version 4 XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

Further guidance

For further information regarding the Emergency Care Data Set Version 4, see the NHS England website at: Emergency Care Data Set (ECDS).

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FEMALE GENITAL MUTILATION DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Female Genital Mutilation Data Set provides essential information in relation to the female genital mutilation population across England.

The Female Genital Mutilation Data Set is used:

  • To publish Official Statistics which will inform the Department of Health and Social Care, NHS England, other Government Agencies and the public, about female genital mutilation when it has been identified
  • To identify the potential risk of female genital mutilation to young girls and vulnerable women
  • For better planning and management of female genital mutilation SERVICES at a local level and across England

Data for an individual PATIENT can be entered using a direct input screen on the NHS England Clinical Audit Platform, or an ELECTRONIC HEALTH RECORD EXTRACT can be used to submit bulk data uploads on a monthly basis for each ORGANISATION.

CARE CONTACT activities undertaken for female genital mutilation PATIENTS during the REPORTING PERIOD are reported in the data upload.  This includes any attendances at an Out-Patient Clinic led by any type of CARE PROFESSIONAL, Hospital Provider Spells, Emergency Care Attendances, Group TherapyWard Attendances; or any other type of direct PATIENT-facing CARE CONTACT, with the exception of Sexual and Reproductive Health Clinics and Genitourinary Medicine (GUM) clinics, who are not required to submit the Female Genital Mutilation Data Set to NHS England.

SNOMED CT Refset:

  • Female genital mutilation related findings:
    • Refset FSN: Female genital mutilation related findings simple reference set (foundation metadata concept)
    • Refset Id: 999002041000000103

For further details relating to the SNOMED CT Refset, see the SNOMED CT Browser at: Female genital mutilation related findings simple reference set (foundation metadata concept).

  • Female genital mutilation related procedures:
    • Refset FSN: Female genital mutilation related procedures simple reference set (foundation metadata concept)
    • Refset Id: 999002031000000107

For further details relating to the SNOMED CT Refset, see the SNOMED CT Browser at: Female genital mutilation related procedures simple reference set (foundation metadata concept).

Data Extract Specification

Data Extract Specification

Description

The Department of Health and Social Care requires all NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set.Description: The Department of Health and Social Care requires all NHS Trusts, NHS Foundation Trusts and GENERAL MEDICAL PRACTITIONERS to generate and provide a data extract in accordance with the Female Genital Mutilation Data Set. This requirement is applicable to all CARE PROFESSIONALS in these ORGANISATIONS whenever it has been identified that a woman or young girl has undergone female genital mutilation.

Further information is available on the NHS England website at: Female Genital Mutilation Datasets.

Time periodTime period: Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Data extracted from systems can be submitted as a bulk upload on a quarterly basis for each ORGANISATION.

Format

Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS England Clinical Audit Platform.Format: Data submitted by the bulk upload facility must be formatted in 3 separate comma separated variable (csv) files (i.e. Patient, Attendance or Female Genital Mutilation), which are used to populate the NHS England Clinical Audit Platform. The data elements should be transmitted in the order specified in the Female Genital Mutilation Data Set.

TransmissionTransmission: Electronic files must be transmitted to NHS England via the Clinical Audit Platform which is a secure web portal.

Electronic files must be transmitted to NHS England via the Clinical Audit Platform which is a secure web portal.

Connection to the web portal requires registration to the Clinical Audit Platform, which will include the provision of a login account name and password.

Further information about the Clinical Audit Platform and the data upload facility can be found on the NHS England website: at Clinical Audit Platform.

Further guidance on the Female Genital Mutilation Data Set can be found on the NHS England website at: SCCI2026: Female Genital Mutilation Enhanced Dataset.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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GUMCAD SEXUALLY TRANSMITTED INFECTION SURVEILLANCE SYSTEM DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The GUMCAD Sexually Transmitted Infection Surveillance System Data Set provides essential public health information about Sexually Transmitted Infection (STI) diagnoses, treatments and SERVICES provided by Level 3 Genitourinary Medicine Services and commissioned Level 2 Sexual Health Services.

The GUMCAD Sexually Transmitted Infection Surveillance System Data Set is used:

  • To inform public health response and policy formulation for England
  • To monitor the effectiveness of the policies introduced as part of the National Strategy for Sexual Health and Human Immunodeficiency Virus (HIV)
  • For performance management at local and national level to ensure delivery of the national Public Service Agreement target on Sexual Health Services
  • For better planning and management of Sexual Health Services at local level
  • To adapt and refine clinical interventions, as appropriate

Data Extract Specification

Data Extract Specification

Description:

Public Health England require Sexual Health Services to generate and provide a data extract in accordance with the GUMCAD Sexually Transmitted Infection Surveillance System Data Set.Description: Public Health England require Sexual Health Services to generate and provide a data extract in accordance with the GUMCAD Sexually Transmitted Infection Surveillance System Data Set. These SERVICES include:

  • NHS providers of specialised Level 3 Genitourinary Medicine Services, where the primary function of the specialist clinical multidisciplinary team is concerned with the provision of screening, diagnosis and management of Sexually Transmitted Infections and related genital medical conditions.
  • All Level 2 Sexual Health Services commissioned by the NHS who offer testing, diagnostic and/or treatment of Sexually Transmitted Infections.

It should be noted that General Practitioners with Extended Roles (GPwERs) will only be included if they operate from a General Medical Practitioner Practice that has been commissioned to provide a Level 2 Sexual Health Service.

Time period: The extract must cover one calendar quarter.

Frequency: Reports must be run quarterly, 6 weeks after the end of the quarter.

Format: Data returned must be formatted into a single comma separated variable (csv) file. The data elements should be transmitted in the order specified in the GUMCAD Sexually Transmitted Infection Surveillance System Data Set.

Transmission: Electronic files must be transmitted to Public Health England through a secure web portal on the Public Health England website. This web portal enables ORGANISATIONS to submit data files in a secure manner to the HIV and STI Department of Public Health England.  The web portal can be found at HIV & STI web portal.

Connection to the web portal requires a login account name and password at Public Health England. Please contact gumcad@phe.org.uk for access or more information.

Further guidance on the GUMCAD Sexually Transmitted Infection Surveillance System Data Set can be found on the Public Health England part of the gov.uk website at: STI Surveillance, data, screening and management.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element

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HEALTHCARE OPERATIONAL DATA FLOWS (ACUTE) DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Healthcare Operational Data Flows (Acute) Data Set has been established by the Faster Data Flows Programme to provide the data definitions for an automated PATIENT-based daily data collection.

The Healthcare Operational Data Flows (Acute) Data Set supports NHS delivery plans for the recovery of elective care and urgent and emergency care in relation to NHS waiting lists, care co-ordination, and the improvement of managing PATIENT flows through the health and social care system.

Scope

Scope

All NHS commissioned ACTIVITY provided by NHS Trusts and NHS Foundation Trusts commissioned to provide acute services should be submitted in these 4 collections:

Acute services includes secondary care ACTIVITY undertaken by any NHS Trust or NHS Foundation Trust in England including overseas PATIENTS, but not including PATIENTS receiving private treatment within an NHS Trust or NHS Foundation Trust (i.e. within a Private Patient Unit (PPU)).

Where possible the definitions of data items collected in the Healthcare Operational Data Flows (Acute) Data Set are aligned with those collected in Commissioning Data Set V6.Where possible the definitions of data items collected in the Healthcare Operational Data Flows (Acute) Data Set are aligned with those collected in Commissioning Data Set V6.3.

Submission Information

Submission Information

The Healthcare Operational Data Flows (Acute) Data Set is submitted via the Faster Data Flows Application Programme Interface as one CSV file for each collection.

    • Minimum requirement: All new admissions in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission
    • Best practice: All new and all newly recorded or changed admissions in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission
    • All current bed occupants at 08:00:00 on the day of submission
    • Minimum requirement: All new discharges in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission
    • Best practice: All new and all newly recorded or changed discharges in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission
    • Minimum requirement: All out-patient appointments in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission
    • Best practice: All new and all newly recorded or changed out-patient appointments in a 24 hour period 00:00:00 to 23:59:59 prior to the day of submission

NHS commissioned ACTIVITY submitted in the Healthcare Operational Data Flows (Acute) Data Set should include:

Further Guidance

Further Guidance

Implementation guidance and Frequently Asked Questions have been produced by NHS England and can be found on Faster Data Flows (FDF) - National Reporting - FutureNHS Collaboration Platform at FutureNHS for You.

For enquiries regarding the Healthcare Operational Data Flows (Acute) Data Set, please contact england.fdf@nhs.net.

Mandation

Mandation

The Mandatory or Required (M/R/O) column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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HIV AND AIDS REPORTING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The scope of the HIV and AIDS Reporting Data Set is all PATIENTS who are diagnosed with Human Immunodeficiency Virus (HIV) and receive HIV care from Health Care Providers.

NHS Health Care Providers are required to generate the HIV and AIDS Reporting Data Set.

The HIV and AIDS Reporting Data Set is used to:

  • Identify the groups at risk of HIV infection in England
  • Monitor the short and long term clinical outcomes of people living with HIV infection
  • Monitor the effectiveness of the national policies and guidance
  • Adapt and refine interventions, as appropriate.

Secondary analyses of aggregate outputs from the HIV and AIDS Reporting Data Set will be used to:

For further information on Acquired Immune Deficiency Syndrome (AIDS) and Human Immunodeficiency Virus (HIV), see the Public Health England part of the gov.uk website.

Time period

Time period

The extract covers one calendar quarter.

Frequency

Frequency:

The HIV and AIDS Reporting Data Set is attendance based and should be submitted quarterly, 2 weeks after the end of the quarter.

Format

Data for submission will be formatted into an xml file as per the HIV and AIDS Reporting Data Set XML Schema.

Transmission

Transmission

Submissions should be transmitted to Public Health England through a secure web portal on the Public Health England (PHE) website, using the HARS Data Set XML Schema.

The web portal enables ORGANISATIONS to submit data files in a secure manner to the HIV and STI Department of Public Health England across the internet and can be found at HIV & STI Web Portal.

For further information on the HIV and AIDS Reporting Data Set, see the Public Health England part of the gov.uk website at: HIV surveillance systems.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

XML Schema

For guidance on the XML Schema constraints, see the HIV and AIDS Reporting Data Set XML Schema Constraints.

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

The Improving Access to Psychological Therapies Data Set will be in included in a future version of the Mental Health Services Data Set.

Improving Access to Psychological Therapies Services are being renamed as NHS Talking Therapies for Anxiety and Depression, see NHS Talking Therapies, for anxiety and depression.

Introduction

Introduction

The Improving Access to Psychological Therapies Data Set (IAPT) has been developed to support the Adult Improving Access to Psychological Therapies Programme through a regular national return of data. This includes for example: supporting commissioning, service improvement and service design.

The Adult Improving Access to Psychological Therapies Programme is an NHS programme in England, which started in 2008, that has transformed treatment of anxiety disorders and depression through the delivery of interventions approved by the National Institute for Health and Care Excellence (NICE).

The Improving Access to Psychological Therapies Data Set is a PATIENT level, output based, secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable information for PATIENTS accessing NHS-funded Improving Access to Psychological Therapies Services located in England.

As a secondary uses data set, the Improving Access to Psychological Therapies Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local information systems. These national definitions allow Health Care Providers to extract data from their local systems in a consistent manner, which supports national and local reporting to be undertaken.

The Improving Access to Psychological Therapies Data Set includes information on:

Submission Information

Submission Information

The Improving Access to Psychological Therapies Data Set is submitted centrally on a monthly basis via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England.

Format Information

Format Information

Improving Access to Psychological Therapies Data Set submissions are made using the latest MS Access Improving Access to Psychological Therapies Data Set Intermediate Database (IDB) which is available for download from the Technology Reference Update Distribution (TRUD) page at: Improving Access to Psychological Therapies Data Set Intermediate Database.

For guidance on downloading the Intermediate Database (IDB), see the NHS England website at: Intermediate Database (IDB) guidance preparing the IDB for making submissions to the SDCS Cloud.

For enquiries regarding technical support for the Intermediate Database (IDB) files, please contact the National Service Desk at: ssd.nationalservicedesk@nhs.net.

Further Guidance

Further Guidance

Further guidance relating to the Improving Access to Psychological Therapies Data Set is available on the NHS England website: at Improving Access to Psychological Therapies Data Set.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Note: items in the Mandation column which are shown with notation P have not been approved by the Data Assurance Board and are included to facilitate piloting and testing of future data requirements, prior to formal inclusion in later versions of the Improving Access to Psychological Therapies Data Set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Improving Access to Psychological Therapies Data Set Constraints.

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INTER-PROVIDER TRANSFER ADMINISTRATIVE MINIMUM DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

This Inter-Provider Transfer Administrative Minimum Data Set specifies the data necessary to permit the receiving Health Care Provider to be able to report the PATIENT's progress along their PATIENT PATHWAY and, in particular, their REFERRAL TO TREATMENT PERIOD.

The NHS need to measure and monitor the REFERRAL TO TREATMENT PERIOD within PATIENT PATHWAYS to ensure that they are progressing as planned to achieve the 18 weeks target.

In an estimated 10% to 20% of cases, responsibility for the PATIENT PATHWAY will be transferred between Health Care Providers. The receiving Health Care Provider would be unable to report on the 18 weeks target for these cases unless the referring Health Care Provider supplied the PATIENT PATHWAY information at the time of transfer.

Scope and Collection

Scope and Collection

Where the Inter-Provider Transfer Administrative Minimum Data Set is sent WITH the clinical referral letter it is considered to be complete if the following key data items are included:

Where the Inter-Provider Transfer Administrative Minimum Data Set is sent independently of the clinical referral letter, ALL mandated Inter-Provider Transfer Administrative Minimum Data Set data items must be completed.

Further Guidance

Further Guidance

Further guidance on the data set can be found in 'The Inter-Provider Transfer Administrative Data Set Operational Information Standard' and in DSCN 30/2007.

Further guidance and definitions on REFERRAL TO TREATMENT PERIODS and those PATIENT PATHWAYS included within the Consultant-Led Referral to Treatment Waiting Times can be found on the NHS England website at: Consultant-led Referral to Treatment Waiting Times.

Mandation

Mandation

The Mandation column indicates the NHS recommendation for the inclusion of data:

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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MATERNITY SERVICES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Maternity Services Data Set (MSDS) is a PATIENT-level data set that captures key information at each stage of the maternity care pathway including mother’s demographics, Antenatal Booking Appointments, admissions and re-admissions, Screening Tests, Labour and Delivery along with baby’s demographics, admissions, diagnoses and Screening Tests.

As a secondary uses data set the Maternity Services Data Set re-uses clinical and operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets extracted or derived from local information systems.

The Maternity Services Data Set is designed to meet requirements that resulted from the National Maternity Review, which led to the publication of the Better Births report in February 2016. Better Births highlighted the need for Maternity Services in England to become safer, more personalised and provide better access to information for pregnant women. The publication of Better Births resulted in the establishment of the Maternity Transformation Programme, and the data set forms part of the ‘Sharing Data and Information’ workstream of the programme.

Data Collection

Data Collection

The Maternity Services Data Set collects information on each stage of care for women as they go through pregnancy.

The Maternity Services Data Set Information Standards Notice (ISN) mandates the central flow of administrative and clinical information for secondary uses purposes. The scope of the data set includes all ACTIVITY carried out by NHS-funded Maternity Services relating to the mother and baby or babies, from the point of the first Antenatal Booking Appointment until the mother and baby are discharged from Maternity Services.

The Maternity Services Data Set provides the definitions for data:

  • to be lodged in the central data warehouse regularly and routinely e.g. monthly. Extracts will be taken at prearranged intervals for publication
  • to be assembled, compiled and to flow into a secondary uses data warehouse
  • to provide timely, pseudonymised PATIENT-based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, clinical audit, performance improvement, research, clinical governance.

The Maternity Services Data Set enables standardised collection of data from various services to be assembled for reporting purposes.

Submission information

Submission information

The Maternity Services Data Set is submitted centrally via the Data Processing Services (DPS) maintained by NHS England.

The Maternity Services Data Set is submitted to NHS England using the Maternity Services Data Set XML Schema.

A conversion tool has also been developed which enables the loading or copying of data into the provided table structure. Once populated, the tool can export the data in the required XML format, ready for submission.

Format information

Format information

Data for submission will be formatted into an XML file as per Technology Reference Update Distribution (TRUD) at: NHS Data Model and Dictionary XML Schemas.

For enquiries regarding the XML Schema, please contact NHS England at enquiries@nhsdigital.nhs.uk.

Further guidance

Further guidance

Further guidance has been produced by NHS England and is available at Maternity Services Data Set.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

XML Schema

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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MENTAL HEALTH SERVICES DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Mental Health Services Data Set (MHSDS) is a PATIENT level, output based secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable person-based information for PATIENTS who are in contact with Mental Health Services.

The Mental Health Services Data Set covers Mental Health Services located in England, or located outside England but treating PATIENTS commissioned by an English Integrated Care BoardNHS England specialised commissioner or an NHS-led Provider Collaborative.

As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct PATIENT care, and defines the data items, definitions and associated value sets to be extracted or derived from local information systems.

All ACTIVITY relating to PATIENTS who receive assessments and treatment from Mental Health Services is within the scope of the Mental Health Services Data Set, where the PATIENT has, or are thought to have:

  • A mental health condition and/or
  • A need for support with their mental wellbeing and/or
  • Autism or any other neurodevelopmental condition.

The scope of the Mental Health Services Data Set requires PATIENT record level data submission from SERVICES as follows:

  • For each PATIENT attending a SERVICE located in England:
    • If the care is wholly funded by the NHS: the data submission for that PATIENT is mandatory
    • If the care is partially funded by the NHS: the data submission for that PATIENT is mandatory
    • If the care is wholly funded by any means that is not NHS: the data submission for that PATIENT is optional.

  • For each PATIENT attending a SERVICE located outside England, but commissioned by an English Integrated Care Board or NHS England specialised commissioner, the data submission is optional but may be a requirement of the commissioning arrangements.

The Mental Health Services Data Set is used across the range of Health Care Providers and ORGANISATIONS that provide Mental Health Services (irrespective of funding arrangements) including:

Submission information

Submission information

The Mental Health Services Data Set is submitted centrally via the Strategic Data Collection Service in the Cloud (SDCS Cloud) maintained by NHS England.

A multiple submission window model for the Mental Health Services Data Set has been available to submitters since 1 April 2020. This allows submitters to resubmit data for each full financial year, rather than by the previous primary and refresh methods of submissions.

Guidance on the submission model can be found on the NHS England website at:

Further guidance

Further guidance

Further information regarding the structure and submission of the Mental Health Services Data Set can be found on the NHS England website at: Mental Health Services Data Set (MHSDS).

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Note: items in the Mandation column which are shown with notation P have not been approved by the Data Assurance Board and are included to facilitate piloting and testing of future data requirements, prior to formal inclusion in later versions of the Mental Health Services Data Set. These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Mental Health Services Data Set Constraints.

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NATIONAL CANCER WAITING TIMES MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The information in the National Cancer Waiting Times Monitoring Data Set is required to provide details on cancer SERVICES in England. This enables the performance monitoring of Health Care Providers and Integrated Care Boards in order to maintain and increase standards across England.

Cancer Waiting Times data relates to the waiting time requirements outlined in the:

The National Cancer Waiting Times Monitoring Data Set supports waiting times which are defined on the NHS England website at: Cancer Waiting Times Data Collection (CWT).

Patient Pathway Scenarios

Patient Pathway Scenarios

The Patient Pathway Scenarios for the National Cancer Waiting Times Monitoring Data Set are to be used to manage the collection of data for all PATIENTS suspected of having, or diagnosed with cancer.

Transmission

Transmission

Further guidance

Further guidance

See Patient Pathway Scenarios, for the scenarios which show:

  • the data items required for a range of health care scenarios and
  • information on how records will be validated to ensure these scenarios have been correctly reported.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.  Required data elements may not be applicable to all PATIENT PATHWAYS, see Patient Pathway Scenarios for further details
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the National Cancer Waiting Times Monitoring Data Set Constraints.

XML Schema

XML Schema

For guidance on downloading the XML Schema, see XML Schema TRUD Download.

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NATIONAL JOINT REGISTRY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The National Joint Registry Data Set collects information on primary Joint Replacement Surgery and revision Joint Replacement Surgery.

The majority of National Joint Registry Data Set items relate to the PATIENT's operation details and are collected in the OPERATING THEATRE.

The National Codes for National Joint Registry items match the National Joint Registry bulk upload codes / system generated codes.

PATIENTS must give their consent for this data to be recorded on the National Joint Registry Data Entry System (the electronic system for collection and transfer of data). 

Note: the consent is for data in the 'Patient Identifiers' group. Where consent is not given, the 'Patient Details' group and the operation details are still recorded.

Operations included in the National Joint Registry database

Operations included in the National Joint Registry database

Further Guidance

Further Guidance

Further guidance can be found on the National Joint Registry website at: About the NJR.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory
  • Optional: this data element is optional.

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NATIONAL NEONATAL DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff on all admissions to NHS Neonatal Units in England, Wales and Scotland.

The National Neonatal Data Set is in two parts:

The two neonatal data sets comprise data items relating to PATIENT demographics, CLINICAL INTERVENTIONS, outcomes, and PATIENT DIAGNOSES. Each data item is mapped or in the process of being mapped where possible to existing Information Standards and Data Collections (including Extractions) (such as the Neonatal Critical Care Minimum Data Set and Maternity Services Data Set) as well as to SNOMED CT and ICD codes.

The National Neonatal Data Set consists of a defined list of data items that are extracted from electronic clinical records created by clinical staff relating to all admissions to a Neonatal Unit in England, Wales and Scotland. The Neonatal Data Analysis Unit has established a database, the National Neonatal Research Database, to hold data comprising the National Neonatal Data Set, as a national resource, to serve a variety of needs, so avoiding duplicate data collections for different purposes, minimising the burden placed upon clinical teams, and promoting data quality and completeness.

Submission Information

Submission Information

Identifiable information (i.e. PERSON IDENTIFIERS, such as NHS NUMBER) is pseudonymised by the System Supplier before being submitted to the Neonatal Data Analysis Unit.  These pseudonymised data items are listed alongside their identifiable counterparts in the National Neonatal Data Set. Only data from PATIENTS whose parents have not opted-out of secondary uses of their babies data will flow to the Neonatal Data Analysis Unit.

Where anonymisation is required, the dates and times of events carried throughout the data set (such as CODED PROCEDURE TIMESTAMP (SAMPLE COLLECTION), CODED PROCEDURE TIMESTAMP (ABDOMINAL X-RAY) should be replaced with the specific relevant year and month of the event and the NUMBER OF MINUTES (BIRTH TO EVENT).

Further Guidance

Further Guidance

Further guidance has been produced by the Neonatal Data Analysis Unit and is available on their website at: Neonatal Data Analysis Unit.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Note: items in the Mandation column which are shown with notation P are included to facilitate piloting and testing of future Neonatal Data Analysis Unit data requirements, prior to formal inclusion in later versions of the data set.  These items have been included in the data set layout in order to provide advance notice to data providers and system suppliers of the intention to require these items at a later date. Unless ORGANISATIONS are engaged in piloting activities relating to these items, they should NOT submit any data item marked P.

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NATIONAL WORKFORCE DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The National Workforce Data Set (NWD) is a reference Data Set comprising standardised definitions to facilitate the capture of nationally consistent information relating to the NHS and wider healthcare workforce.  National Workforce data items and definitions support a variety of workforce based collections. They are also embedded within operational HR/workforce systems including Electronic Staff Record (ESR), and the NHS Jobs web system.

The National Workforce Data Set provides common definitions for those data items that are needed to support workforce planning for the NHS workforce and is intended as a reference with an agreed set of data definitions for people who plan workforce at strategic, national and local level.

The changing nature of the provision of NHS funded care is leading to plurality of supply, and therefore a National Workforce Data Set ensures that all suppliers of NHS care provide workforce information in an agreed and pre-determined format. This provides a practical means for the consistent collection of this information from all providers of NHS funded care to enable comprehensive Healthcare Workforce planning going forwards.

The information captured using the values defined in the National Workforce Data Set will also be used locally within ORGANISATIONS by a range of people in addition to those mentioned above, such as in Training and Development, Workforce Information and Planning and Equality and Diversity.  The accuracy and relevance of the data captured using the National Workforce Data Set values will therefore impact on a number of issues at local level and beyond.

Further guidance has been produced by NHS England and is available on their website at: National Workforce Data Set (NWD) and NHS occupation codes.

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NEONATAL CRITICAL CARE MINIMUM DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Neonatal Critical Care Minimum Data Set (NCCMDS) provides a record of what happens to a PATIENT when they receive Neonatal Critical Care in a Neonatal Intensive Care Unit, Maternity WARD, or Neonatal Transitional Care WARD.

The primary purpose of the Neonatal Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within neonatal critical care. The Neonatal Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of neonatal critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

Scope and Uses

The scope of the Neonatal Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '13 - Neonatal Intensive Care Unit (Neonatal critical care patients predominate)'.

b) All PATIENTS (excluding Mothers) on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code:

  • 14 - Facility for Babies on a Neonatal Transitional Care Ward
  • 15 - Facility for Babies on a Maternity Ward

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours:

01Respiratory support via a tracheal tube (Respiratory support via a tracheal tube provided)
02Nasal Continuous Positive Airway Pressure (nCPAP) (PATIENT receiving nCPAP for any part of the day)
04Exchange Transfusion (PATIENT received exchange transfusion)
05Peritoneal Dialysis (PATIENT received Peritoneal Dialysis)
06Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
07Parenteral Nutrition (PATIENT receiving Parenteral Nutrition (amino acids +/- lipids))
08Convulsions (PATIENT having convulsions requiring treatment)
09Oxygen Therapy (PATIENT receiving additional oxygen)
10Neonatal abstinence syndrome (PATIENT receiving drug treatment for neonatal abstinence (withdrawal) syndrome)
11Care of an intra-arterial catheter or chest drain (PATIENT receiving care of an intra-arterial catheter or chest drain)
12Dilution Exchange Transfusion (PATIENT received Dilution Exchange Transfusion)
13Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
14Tracheostomy cared for by external Carer (PATIENT receiving care of tracheostomy cared for by an external Carer (e.g. parent) not by a NURSE)
15Recurrent apnoea (PATIENT has recurrent apnoea needing frequent intervention, i.e. over 5 stimulations in 8 hours, or resuscitation with IPPV two or more times in 24 hours)
16Haemofiltration (PATIENT received Haemofiltration)
22Continuous monitoring (PATIENT requiring continuous monitoring (by mechanical monitoring equipment) of respiration or heart rate, or by transcutaneous transducers or by Saturation Monitors. Note: apnoea alarms and monitors are excluded as forms of continuous monitoring)
23Intravenous glucose and electrolyte solutions (PATIENT being given intravenous glucose and electrolyte solutions)
24Tube-fed (PATIENT being tube-fed)
25Barrier nursed (PATIENT being barrier nursed)
26Phototherapy (PATIENT receiving phototherapy)
27Special monitoring (PATIENT receiving special monitoring of blood glucose or serum bilirubin measurement at a minimum frequency of more than one per calendar day)
28Observations at regular intervals (PATIENT requiring recorded observations for temperature, heart rate, respiratory rate, blood pressure or scoring for neonatal abstinence syndrome. Recorded observations must be at a minimum frequency of 4 hourly)
29Intravenous medication (PATIENT receiving intravenous medication)
80Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
81Presence of an umbilical venous line
82Continuous infusion of insulin (PATIENT receiving a continuous infusion of insulin)
83Therapeutic hypothermia (PATIENT receiving therapeutic hypothermia)
84PATIENT has a Replogle tube in situ
85PATIENT has an epidural catheter in situ
86PATIENT has an abdominal silo
87Administration of intravenous (IV) blood products
88PATIENT has a central venous or long line (Peripherally Inserted Central Catheter line) in situ
89PATIENT has an indwelling urinary or suprapubic catheter in situ
90PATIENT has a trans-anastomotic tube in situ following oesophageal atresia repair
91PATIENT has confirmed clinical seizure(s) today and/or continuous cerebral function monitoring (CFM)
92PATIENT has a ventricular tap via needle or reservoir today
93PATIENT has a stoma

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Neonatal Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements. 

Commissioning Data Set Transmission

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints, the Neonatal Critical Care Minimum Data Set is carried into the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, see SCCI0075:

The Secondary Uses Service groups this data into neonatal critical care Healthcare Resource Groups; these are a mandated currency under the National Tariff Payment System. Further guidance can be found on the NHS England website at: SCCI0075.

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NHS BREAST SCREENING PROGRAMME CENTRAL RETURN DATA SET (KC62) OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The NHS Breast Screening Programme Central Return Data Set (KC62) provides information to the NHS Breast Screening Programme from Breast Screening Units on the processes and outcomes of the call and recall system. Screening Programmes are supported by the UK National Screening Committee.

The information is used:

The NHS Breast Screening Programme Central Return Data Set (KC62) is analysed by NHS England and also used by the Public Health Research Unit to evaluate the effectiveness of Breast Screening.  It is also used by the Regional Breast Screening Quality Assurance Reference Centres as part of the quality assurance process, and enables on-going monitoring of their individual programmes and comparisons within their regions and with England overall.

Collection

Collection

The NHS Breast Screening Programme Central Return Data Set (KC62) requires information on women invited for Breast Screening, the outcome of the Breast Screening and further information on each cancer detected.  It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD to which the data relates.

Women are included in the NHS Breast Screening Programme Central Return Data Set (KC62) only if the test date offered or SCREENING TEST DATE was within the review period.  All Screening Tests taking place within the REPORTING PERIOD are counted.  One woman may not have more than one outcome of cancer in the REPORTING PERIOD.  Women who are referred directly for a Screening Test (rather than an invitation as part of a Screening Programme) are also included if the SCREENING TEST DATE is within the REPORTING PERIOD.

Submission

Submission

The NHS Breast Screening Programme Central Return Data Set (KC62) is submitted via the Breast Screening Information System.

Parts One to Five of the NHS Breast Screening Programme Central Return Data Set (KC62) should be reported for Tables A to T.

TABLEDESCRIPTION
A*First invitation for routine screening
B*Routine invitation to previous non-attenders
C1*Return invitation to previous attenders (last screen within 5 years)
C2Return invitation to previous attenders (last screen more than 5 years)
DShort term recall
ESelf/GP referrals of women not previously screened
F1Self/GP referrals of women previously screened (last screen within 5 years)
F2Self/GP referrals of women previously screened (last screen more than 5 years previously)
TAll invitations and screenings: Sum of Tables A - F2

* INVASIVE BREAST CANCER TOTAL OBSERVED, INVASIVE BREAST CANCER TOTAL EXPECTED and STANDARDISED DETECTION RATIO TOTAL are only appropriate for tables A, B and C1.

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NHS BREAST SCREENING PROGRAMME CENTRAL RETURN DATA SET (KC63) OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The NHS Breast Screening Programme Central Return Data Set (KC63) provides information to the NHS Breast Screening Programme from Upper Tier Local Authorities on the Breast Screening history of their residents.  Screening Programmes are supported by the UK National Screening Committee.

The information is used to:

  • assess coverage of Breast Screening and monitor standards of the SERVICES provided
  • monitor progress towards achieving the Government's objective of reducing the death rate in the population invited for Breast Screening
  • provide data for the Public Expenditure Survey (PES) negotiations, resource allocation to the NHS and Departmental accountability
  • provide data published annually by the Department of Health and Social Care in the statistical Bulletin 'Breast Screening Programme'.

Collection

Collection

Data on Breast Screening should be readily available from the Primary Care Organisation's computerised call and recall system designed for Breast Screening.  A national computer program is provided and maintained by NHS England

The NHS Breast Screening Programme Central Return Data Set (KC63) reports information on the Breast Screening history of women who were resident in the Upper Tier Local Authority, including Unitary Local Authorities at 31 March. It is completed annually and submitted by the end of the October following the end of the REPORTING PERIOD to which the data relates.

Submission

Submission

The NHS Breast Screening Programme Central Return Data Set (KC63) is submitted in csv file format.

The NHS Breast Screening Programme Central Return Data Set (KC63) is submitted in csv file format.

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PAEDIATRIC CRITICAL CARE MINIMUM DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Paediatric Critical Care Minimum Data Set (PCCMDS) provides a record of what happens to a PATIENT when they receive Paediatric Critical Care in a Paediatric Intensive Care Unit, or other critical care setting suitable for children.

The primary purpose of the Paediatric Critical Care Minimum Data Set is to allow the operation of the National Tariff Payment System within paediatric critical care. The Paediatric Critical Care Minimum Data Set supports the National Tariff Payment System by capturing the data needed to generate a Healthcare Resource Group (HRG) for each calendar day (or part thereof) of a period of paediatric critical care; these Healthcare Resource Groups are then used to inform the annual aggregate costing exercise, NHS Reference Costs.

Scope and Uses

Scope and Uses

The scope of the Paediatric Critical Care Minimum Data Set is:

a) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code '04 - Paediatric Intensive Care Unit (Paediatric critical care patients predominate)'

b) All PATIENTS on a WARD with a CRITICAL CARE UNIT FUNCTION of National Code of either:

  • 16 - Ward for children and young people
  • 17 - High Dependency Unit for children and young people
  • 18 - Renal Unit for children and young people
  • 19 - Burns Unit for children and young people
  • 92 - Non standard location using the operating department for children and young people

to whom one or more of the following CRITICAL CARE ACTIVITY CODES applies for a period greater than 4 hours: 

04Exchange Transfusion (PATIENT received exchange transfusion)
05Peritoneal dialysis (acute PATIENTS only i.e. excluding chronic) *
06Continuous infusion of inotrope, pulmonary vasodilator or prostaglandin (PATIENT received a continuous infusion of an inotrope, vasodilator (includes pulmonary vasodilators) or prostaglandin)
09Oxygen Therapy (supplementary Oxygen Therapy, irrespective of ventilatory state) **
13Tracheostomy cared for by nursing staff (PATIENT receiving care of tracheostomy cared for by nursing staff not by an external Carer (e.g. parent))
16Haemofiltration (PATIENT received Haemofiltration)
50Continuous electrocardiogram monitoring
51Invasive ventilation via endotracheal tube
52Invasive ventilation via tracheostomy tube
53Non-invasive ventilatory support
55Nasopharyngeal airway
56Advanced ventilatory support (Jet or Oscillatory ventilation)
57Upper airway obstruction requiring nebulised Epinephrine/ Adrenaline
58Apnoea requiring intervention
59Acute severe asthma requiring intravenous bronchodilator therapy or continuous nebuliser
60Arterial line monitoring
61Cardiac pacing via an external box (pacing wires or external pads or oesophageal pacing)
62Central venous pressure monitoring
63Bolus intravenous fluids (> 80 ml/kg/day) in addition to maintenance intravenous fluids
64Cardio-pulmonary resuscitation (CPR)
65Extracorporeal membrane oxygenation (ECMO) or Ventricular Assist Device (VAD) or aortic balloon pump
66Haemodialysis (acute PATIENTS only i.e. excluding chronic)
67Plasma filtration or Plasma exchange
68ICP-intracranial pressure monitoring
69Intraventricular catheter or external ventricular drain
70Diabetic ketoacidosis (DKA) requiring continuous infusion of insulin
71Intravenous infusion of thrombolytic agent (limited to tissue plasminogen activator [tPA] and streptokinase)
72Extracorporeal liver support using Molecular Absorbent Liver Recirculating System (MARS)
73Continuous pulse oximetry
74PATIENT nursed in single occupancy cubicle
80Heated Humidified High Flow Therapy (HHHFT) (PATIENT receiving HHHFT)
85PATIENT has an epidural catheter in situ
94PATIENT has arrhythmia requiring intravenous anti-arrhythmic therapy
95PATIENT has reduced conscious level (Glasgow Coma Score 12 or below) and hourly (or more frequent) Glasgow Coma Score monitoring
96Intravenous infusion of sedative agent (PATIENT receiving continuous intravenous infusion of sedative agent)
97PATIENT has status epilepticus requiring treatment with continuous intravenous infusion

Notes:

  • * National Code 05 applies as an inclusion criterion for acute PATIENTS only: it does not apply with chronic PATIENTS.
  • ** National Code 09 applies as an inclusion criterion when the PATIENT receives supplementary Oxygen Therapy, irrespective of their ventilatory state.

This data is captured and recorded locally and may be used for the purposes of direct care, clinical audit, Reference Costs, and other local uses. Any transmission of the Paediatric Critical Care Minimum Data Set must be covered by fair processing arrangements in accordance with information governance criteria and appropriate local arrangements.

Commissioning Data Set Transmission

Commissioning Data Set Transmission

Subject to the Commissioning Data Set Version 6-2 XML Schema Constraints and Commissioning Data Set Version 6-3 XML Schema Constraints, the Paediatric Critical Care Minimum Data Set is sent to the Secondary Uses Service (SUS) as a part of the following Commissioning Data Set messages, SCCI0076:

The Secondary Uses Service groups this data into paediatric critical care Healthcare Resource Groups. Further guidance can be found on the NHS England website at: SCCI0076.

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PATIENT LEVEL CONTRACT MONITORING DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The purpose of the Patient Level Contract Monitoring Data Set (PLCM) is to enable the interchange, in a uniform format, of monthly PATIENT level Contract Monitoring data between all purchasers and Health Care Providers. This will ensure that Contract Monitoring and reporting is consistent, comparable and fit for purpose across all commissioning ORGANISATIONS.

The Patient Level Contract Monitoring Data Set is a PATIENT level report containing PATIENT identifiers. Its purpose is to substantiate and provide detail to the information contained within the Aggregate Contract Monitoring Data Set (ACM). It will contain details of PATIENT level clinical activities that are not found in flows of standard Commissioning Data Sets (CDS) submitted to the Secondary Uses Service.

Scope

Scope

The scope of the Patient Level Contract Monitoring Data Set Information Standard is all NHS-funded acute and community clinical care (excluding drugs and MEDICAL DEVICES not covered by the National Tariff Payment System) provided to PATIENTS, as well as financial adjustments not attributed directly to clinical care, for all commissioners.

This covers:

Note that the totality of expenditure in the Patient Level Contract Monitoring Data Set must be equivalent to the monetary value (excluding drugs and MEDICAL DEVICES not covered by the National Tariff Payment System) shown in the Aggregate Contract Monitoring Data Set.

Submission

Submission

The Patient Level Contract Monitoring Data Set is submitted on a monthly basis to the respective Data Services for Commissioners Regional Office (DSCRO) as nominated by each commissioning function in line with the dates documented in the data submission timetable within Schedule 6 of the NHS Standard Contract.

The completed monthly Patient Level Contract Monitoring Data Set should be transmitted using the NHS England Data Landing Portal (DLP).

For further information on the Patient Level Contract Monitoring Data Set, see the NHS England website at: Directly commissioned services reporting requirements.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Patient Level Contract Monitoring Data Set Constraints.

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RADIOTHERAPY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Radiotherapy Data Set (RTDS) allows for the routine collection of clinically and managerially relevant ACTIVITY data from Radiotherapy centres to provide operational data to enable bench marking and to support enhancing clinical practice, in addition to commissioning or monitoring Radiotherapy Services in an evidence-based manner.

Radiotherapy is a major modality in the treatment of cancer and also represents a significant sector within the NHS, in terms of both workforce and capital investment.

All NHS funded facilities in England providing Radiotherapy Services are required to return data to Public Health England (PHE) for all ACTIVITY undertaken on External Beam Radiotherapy (Teletherapy) and Brachytherapy MACHINES, or with radioisotopes not contained within an External Beam Radiotherapy (Teletherapy) or Brachytherapy MACHINE.

The Radiotherapy Data Set accompanies the Out-Patient Commissioning Data Set for PATIENTS attending for Radiotherapy.

Where admitted PATIENTS attend for Radiotherapy, a Radiotherapy Attendance record should be submitted to Public Health England along with the Out-Patient Commissioning Data Set for the In-Patient Attendance.

Data Submission

Data Submission

The Radiotherapy Data Set should be submitted to the National Disease Registration Service (NDRS) by the 20th working day of each month. The extracts should include all Radiotherapy Attendance records for the previous calendar month.

Data should be submitted using the National Cancer Registration and Analysis Service (NCRAS) upload portal at: NCRAS Login.

Further Guidance

Further Guidance

Further guidance for submission of the Radiotherapy Data Set is provided by the National Disease Registration Service at: National Radiotherapy Data Set (RTDS).

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data:

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes.

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SEXUAL AND REPRODUCTIVE HEALTH ACTIVITY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Sexual and Reproductive Health Activity Data Set covers PATIENT contact with the Sexual and Reproductive Health Services whether in a clinic setting, in the PATIENT's home or at an alternative location.

Public Health England requires the mandatory collection of information on the SERVICES provided by Sexual and Reproductive Health Services.

The Sexual and Reproductive Health Activity Data Set provides essential data to:

  • Ensure a relevant collection of electronic data to support local service development
  • Allow monitoring of key policy initiatives and indicators such as: The Public Health Outcome Framework Indicator on under 18 conceptions; increasing access to all methods of contraception, including Long Acting Reversible Contraceptions (LARC) methods and emergency contraception for women of all ages and their partners; reducing teenage conceptions; reducing the rate of unintended pregnancies and modernisation of Sexual and Reproductive Health Services
  • Provide appropriate definitions and guidance material to enable a standardised data set from Sexual and Reproductive Health Services
  • Support commissioners in understanding which population groups are accessing Sexual and Reproductive Health Services and which SERVICES they are receiving, including the LARC methods as recommended by National Institute for Health and Care Excellence (NICE), and therefore allowing for long-term commissioning of SERVICES
  • Develop, over time, indicators of quality and outcome in SERVICE delivery (especially in comparative reports). For example the removal and length of use for LARC devices, provision of emergency CONTRACEPTION, the provision of CONTRACEPTION post abortion and referrals to secondary care, the comparison of attendance rates for selected care and the diversity of young PERSON provision by Sexual and Reproductive Health Services including social referrals
  • Aid the development of a benchmark measure to indicate how SERVICES compare in delivering the most appropriate and effective care to PATIENTS
  • Reflect current data collection practices and requirements at Sexual and Reproductive Health Services.

Data Extract Specification

Data Extract Specification

Description: The Sexual and Reproductive Health Activity Data Set return includes PATIENT ACTIVITY provided by Sexual and Reproductive Health Services in clinics and non-clinic venues (e.g. outreach facilities or domiciliary visits). Also included are Sexual and Reproductive Health Services provided by non - NHS clinics funded wholly or in part by Local Authorities and/or Integrated Care Boards (e.g. Brook). It does not include SERVICES provided by CONSULTANTS in Outpatient Clinics or those provided by GENERAL MEDICAL PRACTITIONERS.

Data collected will be used by the NHS, Care Quality Commission, Local Authorities, Integrated Care BoardsUK Health Security Agency and other appropriate ORGANISATIONS to support the monitoring of the National Strategies on Sexual and Reproductive Health Services, service provision, benchmarking and development of commissioning.

Time period: The extract will cover one financial year.

Frequency: Extracts run annually, six weeks after the end of the financial year.

Format: Data returned should be formatted to a comma separated variable (CSV) or in a MS Excel file. The data variables should be transmitted in the order specified in the Sexual and Reproductive Health Activity Data Set.

Transmission: Data is submitted via an on-line process to NHS England.

For further information on the Sexual and Reproductive Health Activity Data Set see the NHS England website at: Sexual and Reproductive Health Activity Data Set (SRHAD) Collection.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

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STOP SMOKING SERVICE QUARTERLY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Stop Smoking Services Quarterly Data Set is used to monitor and evaluate the effectiveness and coverage of Stop Smoking Services. It is designed to provide consistent information on people who have sought and received quitting help from an evidence-based service.

Collection and Submission

Collection and Submission

The Stop Smoking Services Quarterly Data Set is required by Public Health England and is collected from Local Authorities.

The Stop Smoking Services Quarterly Data Set relates to ACTIVITY taking place over a 3 month period and should be submitted by the thirty second working day after the end of the quarter to which it relates.

The Stop Smoking Services Quarterly Data Set is transmitted at aggregate level to the NHS England Strategic Data Collection Service (SDCS) available at NHS Stop Smoking Services Collection.

Further guidance

Further guidance

Further information on the NHS Stop Smoking Services and the monitoring guidance can be found on the National Centre for Smoking Cessation and Training website at Local Stop Smoking Services: Service and Delivery Guidance 2014.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element.

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SYSTEMIC ANTI-CANCER THERAPY DATA SET OVERVIEW

Change to Supporting Information: Changed Description

Introduction

Introduction

The Systemic Anti-Cancer Therapy Data Set collects clinical management information on PATIENTS undergoing Systemic Anti-Cancer Therapy in (or funded by) the NHS in England.

In the clinical setting its primary use is in prescribing and administering Systemic Anti-Cancer Therapy. The standard also specifies secondary uses information about Systemic Anti-Cancer Therapy which is required to assist in achieving, supporting and monitoring the NHS Operating Framework, specialised commissioning and related policy.

Details of Standard

Details of Standard

The Systemic Anti-Cancer Therapy Data Set relates to all cancer PATIENTS, both adult and paediatric, in both admitted PATIENT care and outpatient and community settings, who are receiving Systemic Anti-Cancer Therapy for all solid Tumour and haematological malignancies, including those treated in CLINICAL TRIALS.

The Systemic Anti-Cancer Therapy Data Set covers the period from the Start Date of the Systemic Anti-Cancer Therapy Drug Regimen to the Start Date of the last Systemic Anti-Cancer Therapy Drug Cycle.

Note: PATIENTS may end their treatment with an oral or other component taken at home. Although the dispensing of this will be recorded in the final Systemic Anti-Cancer Therapy Drug Cycle, it is not possible to confirm that the PATIENT has taken the medication.

Data Set Structure and Transmission

Data Set Structure and Transmission

Systemic Anti-Cancer Therapy is given over a prolonged period of time, often months or years, comprising repeating and sequential elements.  The PATIENT may attend two or more Health Care Providers during the course of treatment.

In order to track the PATIENT during treatment, the data set must be capable of linking all the elements of care in a consistent and ordered way. In order to achieve this, the Systemic Anti-Cancer Therapy Data Set has a branching structure which links the initial data fields, which will remain constant during the treatment, with detail of each Systemic Anti-Cancer Therapy Drug Regimen, Systemic Anti-Cancer Therapy Drug Cycle and Systemic Anti-Cancer Therapy Drug Administration.  At the completion or cessation of a Systemic Anti-Cancer Therapy Drug Regimen, the outcome section must link back to all previous fields. It must be possible to reconstitute details of each PATIENT’s sequential management from the serial downloads received.

All NHS Trusts and NHS Foundation Trusts providing Systemic Anti-Cancer Therapy Services are required to submit monthly data downloads to an agreed timetable, two months in arrears. These data must represent all treatment activity in the month period, including Systemic Anti-Cancer Therapy Drug Regimens started and completed or ceased in the REPORTING PERIOD.

The data repository is hosted by the National Cancer Registration and Analysis Service (NCRAS) and the data is held under their section 251 of the National Health Service Act 2006.

Data downloads is by csv and will uniquely identify the Health Care Provider.

Further Guidance

Further Guidance

Detailed technical guidance on the processes required, and any required updates, is available from the National Disease Registration Service in the Downloads and guides supporting the programme.

Mandation

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

  • M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
  • R = Required: NHS business processes cannot be delivered without this data element
  • O = Optional: the inclusion of this data element is optional as required for local purposes
  • P = Pilot: this data element is for piloting use only.

Data Set Constraints

Data Set Constraints

For guidance on the Data Set constraints, see the Systemic Anti-Cancer Therapy Data Set Constraints.

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For enquiries about this Change Request, please email information.standards@nhs.net